ID
40547
Description
HEART FAILURE DATA COLLECTION Version 1.1.4 Revised October 31st, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Heart Failure Treatment Approaches: Pharmacotherapy | Invasive Therapy | Rehabilitation This ODM-file contains patient-reported outcome variables. It should be tracked 6-monthly for life, starting 30 days and 6 months post-index event. The collection rhythm has to be reset after an acute admission (including complications), starting anew at 30 days post-discharge and 6 months post-hospital admission, and tracked 6-monthly from then on. Use of the following Scores for this standard set: KCCQ-12: Kansas City Cardiomyopathy Questionnaire-Short Version: You can obtain a license to use this instrument at your institution by visiting http://cvoutcomes.org/licenses NYHA – New York Heart Association Functional Classification: The NYHA is free for all health care organizations, and a license is not needed. PROMIS Physical Function Short Form 4a – Patient-Reported Outcome Measurement Information System: PROMIS Physical Function is free for all health care organizations, and a license is not needed. For more information, please visit http://www.healthmeasures.net/explore-measurement-systems/promis/obtain-administer-measures . As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Patient Health Questionnaire (PHQ-2): Copyright by Pfizer: "content found on the PHQ Screeners site is free for download and use as stated within the PHQ Screeners site, please visit http://www.phqscreeners.com/ for more information. ICHOM was supported for the Heart Failure Standard Set by GIG Cymru NHS Wales, American Heart Association, British Heart Foundation, Heart Failure Association of the ESC and European Society of Cardiology. Publication: Burns DJP, Arora J, Okunade O, Beltrame JF, Bernardez-Pereira S, Crespo-Leiro MG, et al. International Consortium for Health Outcomes Measurement (ICHOM): Standardized Patient-Centered Outcomes Measurement Set for Heart Failure Patients. JACC: Heart Failure. 2020 Mar 1;8(3):212–22. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Versions (2)
- 16/11/2018 16/11/2018 - Sarah Riepenhausen
- 30/04/2020 30/04/2020 - Sarah Riepenhausen
Détendeur de droits
ICHOM
Téléchargé le
30 avril 2020
DOI
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Licence
Creative Commons BY-NC 4.0
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ICHOM Heart Failure
Patient-reported Outcome
- StudyEvent: ODM
Description
Degree of Health
Alias
- UMLS CUI-1
- C0018759
Description
As a license has to be obtained for use of KCCQ12, the questionnaire is not included in this version of the standard set. ICHOM IDs for the question look like this: KCCQ12_Qo1a to KCCQ12_Qo8c . INCLUSION CRITERIA: All patients TIMING: Tracked ongoing REPORTING SOURCE: Patient-reported TYPE: Numerical (Single Answer in the original)
Type de données
integer
Alias
- UMLS CUI [1,1]
- C2964552
- UMLS CUI [1,2]
- C4533771
Description
As nihpromis.org is the official distribution site for PROMIS scores, the questionnaire is not included in this version of the standard set. ICHOM IDs are PROMIS_QPFA11, PROMIS_QPFA21, PROMIS_QPFA23 and PROMIS_QPFA53. INCLUSION CRITERIA: All patients TIMING: Tracked ongoing REPORTING SOURCE: Patient-reported TYPE: Numerical (Single Answer in the original)
Type de données
integer
Alias
- UMLS CUI [1]
- C4019234
Description
INCLUSION CRITERIA: All patients TIMING: Tracked ongoing except at acute admissions REPORTING SOURCE: Patient-reported TYPE: Single Answer
Type de données
integer
Alias
- UMLS CUI [1,1]
- C2706101
- UMLS CUI [1,2]
- C1522634
- UMLS CUI [1,3]
- C0205435
Description
INCLUSION CRITERIA: All patients TIMING: Tracked ongoing except at acute admissions REPORTING SOURCE: Patient-reported TYPE: Single Answer
Type de données
integer
Alias
- UMLS CUI [1,1]
- C2706101
- UMLS CUI [1,2]
- C1522634
- UMLS CUI [1,3]
- C0205436
Description
Burden of Care
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C2828008
Description
INCLUSION CRITERIA: All patients TIMING: Tracked ongoing except at acute admissions REPORTING SOURCE: Patient-reported TYPE: Single Answer
Type de données
integer
Alias
- UMLS CUI [1]
- C0516918
Similar models
Patient-reported Outcome
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C4533771 (UMLS CUI [1,2])
C1522634 (UMLS CUI [1,2])
C0205435 (UMLS CUI [1,3])
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C1522634 (UMLS CUI [1,2])
C0205436 (UMLS CUI [1,3])
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