ID
32846
Description
HEART FAILURE DATA COLLECTION Version 1.1.4 Revised October 31st, 2017 www.ichom.org Conditions: Heart Failure Treatment Approaches: Pharmacotherapy | Invasive Therapy | Rehabilitation This ODM-file contains patient-reported outcome variables. It should be tracked 6-monthly for life, starting 30 days and 6 months post-index event. The collection rhythm has to be reset after an acute admission (including complications), starting anew at 30 days post-discharge and 6 months post-hospital admission, and tracked 6-monthly from then on. Use of the following Scores for this standard set: KCCQ-12: Kansas City Cardiomyopathy Questionnaire-Short Version: You can obtain a license to use this instrument at your institution by visiting http://cvoutcomes.org/licenses NYHA – New York Heart Association Functional Classification: The NYHA is free for all health care organizations, and a license is not needed. PROMIS Physical Function Short Form 4a – Patient-Reported Outcome Measurement Information System: PROMIS Physical Function is free for all health care organizations, and a license is not needed. For more information, please visit http://www.healthmeasures.net/explore-measurement-systems/promis/obtain-administer-measures . As http://www.nihpromis.org/ is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Patient Health Questionnaire (PHQ-2): Copyright by Pfizer: "content found on the PHQ Screeners site is free for download and use as stated within the PHQ Screeners site, please visit http://www.phqscreeners.com/ for more information. ICHOM was supported by GIG Cymru NHS Wales, American Heart Association, British Heart Foundation, Heart Failure Association of the ESC and European Society of Cardiology.
Link
Keywords
Versions (2)
- 11/16/18 11/16/18 - Sarah Riepenhausen
- 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder
ICHOM
Uploaded on
November 16, 2018
DOI
To request one please log in.
License
Creative Commons BY-NC 3.0
Model comments :
You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.
Itemgroup comments for :
Item comments for :
In order to download data models you must be logged in. Please log in or register for free.
ICHOM Heart Failure
Patient-reported Outcome
- StudyEvent: ODM
Description
Degree of Health
Alias
- UMLS CUI-1
- C0018759
Description
As a license has to be obtained for use of KCCQ12, the questionnaire is not included in this version of the standard set. ICHOM IDs for the question look like this: KCCQ12_Qo1a to KCCQ12_Qo8c . INCLUSION CRITERIA: All patients TIMING: Tracked ongoing REPORTING SOURCE: Patient-reported TYPE: Numerical (Single Answer in the original)
Data type
integer
Alias
- UMLS CUI [1,1]
- C2964552
- UMLS CUI [1,2]
- C4533771
Description
As nihpromis.org is the official distribution site for PROMIS scores, the questionnaire is not included in this version of the standard set. ICHOM IDs are PROMIS_QPFA11, PROMIS_QPFA21, PROMIS_QPFA23 and PROMIS_QPFA53. INCLUSION CRITERIA: All patients TIMING: Tracked ongoing REPORTING SOURCE: Patient-reported TYPE: Numerical (Single Answer in the original)
Data type
integer
Alias
- UMLS CUI [1]
- C4019234
Description
INCLUSION CRITERIA: All patients TIMING: Tracked ongoing except at acute admissions REPORTING SOURCE: Patient-reported TYPE: Single Answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C2706101
- UMLS CUI [1,2]
- C1522634
- UMLS CUI [1,3]
- C0205435
Description
INCLUSION CRITERIA: All patients TIMING: Tracked ongoing except at acute admissions REPORTING SOURCE: Patient-reported TYPE: Single Answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C2706101
- UMLS CUI [1,2]
- C1522634
- UMLS CUI [1,3]
- C0205436
Description
Burden of Care
Alias
- UMLS CUI-1
- C0087111
- UMLS CUI-2
- C2828008
Description
INCLUSION CRITERIA: All patients TIMING: Tracked ongoing except at acute admissions REPORTING SOURCE: Patient-reported TYPE: Single Answer
Data type
integer
Alias
- UMLS CUI [1]
- C0516918
Similar models
Patient-reported Outcome
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
C4533771 (UMLS CUI [1,2])
C1522634 (UMLS CUI [1,2])
C0205435 (UMLS CUI [1,3])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C1522634 (UMLS CUI [1,2])
C0205436 (UMLS CUI [1,3])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)