ID

40430

Description

DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the Clinical Dementia Rating (CDR) form. It has to be filled in for baseline and for all follow-ups. Due to a necessary license agreement for use of the CDR, it will only be included as subscore/result items in this version of DELCODE forms. The respective score items will have a comment in their descriptions about this to distinguish them from score items that were already defined like that by DZNE. For more information see: https://otm.wustl.edu/for-industry/tools/cdr-licensing/

Link

https://www.dzne.de/en/research/studies/clinical-studies/delcode/

Keywords

  1. 4/20/20 4/20/20 -
Copyright Holder

DZNE

Uploaded on

April 20, 2020

DOI

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License

Creative Commons BY-NC 4.0

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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study

Clinical Dementia Rating (CDR)

Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Study ID
Description

Study ID

Data type

text

Alias
UMLS CUI [1]
C2826693
Date of Visit
Description

Date of Visit

Data type

date

Alias
UMLS CUI [1]
C1320303
Type of visit
Description

Type of visit

Data type

integer

Alias
UMLS CUI [1,1]
C0545082
UMLS CUI [1,2]
C0332307
Clinical Dementia Rating (CDR), modified, Informant
Description

Clinical Dementia Rating (CDR), modified, Informant

Alias
UMLS CUI-1
C0451074
UMLS CUI-2
C1550484
CDR - memory, result
Description

CDR - memory, result

Data type

text

Alias
UMLS CUI [1,1]
C3640455
UMLS CUI [1,2]
C1274040
CDR - orientation skills, result
Description

CDR - orientation skills, result

Data type

text

Alias
UMLS CUI [1,1]
C3640456
UMLS CUI [1,2]
C1274040
CDR - judgment and problem solving, result
Description

CDR - judgment and problem solving, result

Data type

text

Alias
UMLS CUI [1,1]
C3640457
UMLS CUI [1,2]
C1274040
CDR - community life, result
Description

CDR - community life, result

Data type

text

Alias
UMLS CUI [1,1]
C3640458
UMLS CUI [1,2]
C1274040
CDR - home and hobbies, result
Description

CDR - home and hobbies, result

Data type

text

Alias
UMLS CUI [1,1]
C3640459
UMLS CUI [1,2]
C1274040
CDR - personal care, result
Description

CDR - personal care, result

Data type

text

Alias
UMLS CUI [1,1]
C3640460
UMLS CUI [1,2]
C1274040
Clinical Dementia Rating (CDR), modified, Subject
Description

Clinical Dementia Rating (CDR), modified, Subject

Alias
UMLS CUI-1
C0451074
UMLS CUI-2
C1997894
CDR - memory, result
Description

CDR - memory, result

Data type

text

Alias
UMLS CUI [1,1]
C3640455
UMLS CUI [1,2]
C1274040
CDR - judgment and problem solving, result
Description

CDR - judgment and problem solving, result

Data type

text

Alias
UMLS CUI [1,1]
C3640457
UMLS CUI [1,2]
C1274040
Clinical Dementia Rating (CDR), modified, summary
Description

Clinical Dementia Rating (CDR), modified, summary

Alias
UMLS CUI-1
C0451074
UMLS CUI-2
C0242482
Clinical assessment of the severity of dementia (CDR)
Description

Clinical assessment of the severity of dementia (CDR)

Data type

text

Alias
UMLS CUI [1,1]
C0451074
UMLS CUI [1,2]
C4534461
UMLS CUI [1,3]
C0392364
UMLS CUI [1,4]
C0497327
CDR - Memory
Description

CDR - Memory

Data type

float

Alias
UMLS CUI [1]
C3640455
CDR - Orientation
Description

CDR - Orientation

Data type

float

Alias
UMLS CUI [1]
C3640456
CDR - Judgement and problem solving
Description

CDR - Judgement and problem solving

Data type

float

Alias
UMLS CUI [1]
C3640457
CDR - Social life
Description

CDR - Social life

Data type

float

Alias
UMLS CUI [1]
C3640458
CDR - Home and hobbies
Description

CDR - Home and hobbies

Data type

float

Alias
UMLS CUI [1]
C3640459
CDR - Personal care
Description

CDR - Personal care

Data type

integer

Alias
UMLS CUI [1]
C3640460

Similar models

Clinical Dementia Rating (CDR)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
C1320722 (UMLS CUI-1)
Study ID
Item
text
C2826693 (UMLS CUI [1])
Date of Visit
Item
date
C1320303 (UMLS CUI [1])
Item
integer
C0545082 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Type of visit
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
CL Item
 (7)
CL Item
 (8)
CL Item
 (9)
CL Item
 (0)
Item Group
C0451074 (UMLS CUI-1)
C1550484 (UMLS CUI-2)
CDR - memory, result
Item
text
C3640455 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
CDR - orientation skills, result
Item
text
C3640456 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
CDR - judgment and problem solving, result
Item
text
C3640457 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
CDR - community life, result
Item
text
C3640458 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
CDR - home and hobbies, result
Item
text
C3640459 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
CDR - personal care, result
Item
text
C3640460 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
Item Group
C0451074 (UMLS CUI-1)
C1997894 (UMLS CUI-2)
CDR - memory, result
Item
text
C3640455 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
CDR - judgment and problem solving, result
Item
text
C3640457 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
Item Group
C0451074 (UMLS CUI-1)
C0242482 (UMLS CUI-2)
Clinical assessment of the severity of dementia (CDR)
Item
text
C0451074 (UMLS CUI [1,1])
C4534461 (UMLS CUI [1,2])
C0392364 (UMLS CUI [1,3])
C0497327 (UMLS CUI [1,4])
CDR - Memory
Item
float
C3640455 (UMLS CUI [1])
CDR - Orientation
Item
float
C3640456 (UMLS CUI [1])
CDR - Judgement and problem solving
Item
float
C3640457 (UMLS CUI [1])
CDR - Social life
Item
float
C3640458 (UMLS CUI [1])
CDR - Home and hobbies
Item
float
C3640459 (UMLS CUI [1])
CDR - Personal care
Item
integer
C3640460 (UMLS CUI [1])

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