ID
40430
Description
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the Clinical Dementia Rating (CDR) form. It has to be filled in for baseline and for all follow-ups. Due to a necessary license agreement for use of the CDR, it will only be included as subscore/result items in this version of DELCODE forms. The respective score items will have a comment in their descriptions about this to distinguish them from score items that were already defined like that by DZNE. For more information see: https://otm.wustl.edu/for-industry/tools/cdr-licensing/
Link
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Keywords
Versions (1)
- 4/20/20 4/20/20 -
Copyright Holder
DZNE
Uploaded on
April 20, 2020
DOI
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License
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
Clinical Dementia Rating (CDR)
- StudyEvent: ODM
Description
Clinical Dementia Rating (CDR), modified, Informant
Alias
- UMLS CUI-1
- C0451074
- UMLS CUI-2
- C1550484
Description
CDR - memory, result
Data type
text
Alias
- UMLS CUI [1,1]
- C3640455
- UMLS CUI [1,2]
- C1274040
Description
CDR - orientation skills, result
Data type
text
Alias
- UMLS CUI [1,1]
- C3640456
- UMLS CUI [1,2]
- C1274040
Description
CDR - judgment and problem solving, result
Data type
text
Alias
- UMLS CUI [1,1]
- C3640457
- UMLS CUI [1,2]
- C1274040
Description
CDR - community life, result
Data type
text
Alias
- UMLS CUI [1,1]
- C3640458
- UMLS CUI [1,2]
- C1274040
Description
CDR - home and hobbies, result
Data type
text
Alias
- UMLS CUI [1,1]
- C3640459
- UMLS CUI [1,2]
- C1274040
Description
CDR - personal care, result
Data type
text
Alias
- UMLS CUI [1,1]
- C3640460
- UMLS CUI [1,2]
- C1274040
Description
Clinical Dementia Rating (CDR), modified, Subject
Alias
- UMLS CUI-1
- C0451074
- UMLS CUI-2
- C1997894
Description
Clinical Dementia Rating (CDR), modified, summary
Alias
- UMLS CUI-1
- C0451074
- UMLS CUI-2
- C0242482
Description
Clinical assessment of the severity of dementia (CDR)
Data type
text
Alias
- UMLS CUI [1,1]
- C0451074
- UMLS CUI [1,2]
- C4534461
- UMLS CUI [1,3]
- C0392364
- UMLS CUI [1,4]
- C0497327
Description
CDR - Memory
Data type
float
Alias
- UMLS CUI [1]
- C3640455
Description
CDR - Orientation
Data type
float
Alias
- UMLS CUI [1]
- C3640456
Description
CDR - Judgement and problem solving
Data type
float
Alias
- UMLS CUI [1]
- C3640457
Description
CDR - Social life
Data type
float
Alias
- UMLS CUI [1]
- C3640458
Description
CDR - Home and hobbies
Data type
float
Alias
- UMLS CUI [1]
- C3640459
Description
CDR - Personal care
Data type
integer
Alias
- UMLS CUI [1]
- C3640460
Similar models
Clinical Dementia Rating (CDR)
- StudyEvent: ODM
C1550484 (UMLS CUI-2)
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
C1997894 (UMLS CUI-2)
C1274040 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,2])
C0242482 (UMLS CUI-2)
C4534461 (UMLS CUI [1,2])
C0392364 (UMLS CUI [1,3])
C0497327 (UMLS CUI [1,4])