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40293

Description

Patient reported outcome (PRO) Common Measures (CDM) V4.1 This table is used to store responses to patient-reported outcome measures (PROs) or questionnaires. This table can be used to store item-level responses as well as the overall score for each measure. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure.

Keywords

  1. 12/17/16 12/17/16 -
  2. 7/1/19 7/1/19 -
  3. 3/30/20 3/30/20 -
Copyright Holder

PCORnet

Uploaded on

March 30, 2020

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Creative Commons BY-NC 4.0

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    PCORnet Common Data Model (CDM)

    Patient reported outcome (PRO) Common Measures (CDM) V4.1

    PRO CM
    Description

    PRO CM

    Alias
    UMLS CUI-1
    C2987124
    PRO CM ID
    Description

    Arbitrary identifier for each unique record.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C2987124
    UMLS CUI [1,2]
    C1300638
    Patient ID
    Description

    Arbitrary person-level identifier for the patient for whom the PRO response was captured. Used to link across tables.

    Data type

    text

    Alias
    UMLS CUI [1]
    C2348585
    Encounter ID
    Description

    Arbitrary encounter-level identifier used to link across tables. This should only be populated if the item was collected as part of a healthcare encounter.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C1512346
    UMLS CUI [1,2]
    C1300638
    PRO Date
    Description

    The date of the response.

    Data type

    date

    Alias
    UMLS CUI [1,1]
    C2987124
    UMLS CUI [1,2]
    C0011008
    PRO Time
    Description

    The time of the response.

    Data type

    time

    Alias
    UMLS CUI [1,1]
    C2987124
    UMLS CUI [1,2]
    C0040223
    PRO_Item-Name
    Description

    Short name or code of the PRO item in the vocabulary/terminology as specified. More information on PROMIS, Neuro- QoL and ASQC-Me and the NIH Toolbox can be found on the HealthMeasures website.(www.healthmeasures.net) The Patient-Reported Outcome version of the Common Terminology Criteria for Adverse Events (PRO-CTCAETM) is maintained by the National Cancer Institute. (https://healthcaredelivery.cancer.gov/pro-ctcae/) Information on the Hospital Consumer Assessment of Healthcare Providers and Systems (HPCAHPS) is located here: http://www.hcahpsonline.org

    Data type

    text

    Alias
    UMLS CUI [1]
    C4684698
    PRO Loinc
    Description

    LOINC® code for the PRO item, if available. LOINC® code for the PRO item, if available. Logical Observation Identifiers, Names, and Codes (LOINC) from the Regenstrief Institute. Current LOINC codes are from 3-7 characters long but Regenstrief suggests a length of 10 for future growth. The last digit of the LOINC code is a check digit and is always preceded by a hyphen. All parts of the LOINC code, including the hyphen, must be included. Do not pad the LOINC code with leading zeros.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C2987124
    UMLS CUI [1,2]
    C1136323
    PRO Response Text
    Description

    Text version of the response recorded for the item, if available/applicable. Please see the Common Measures Reference Table, “Value List” column, for the list of numeric valid values for each item. Number precision and scale updated in v3.1.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C4285222
    UMLS CUI [1,2]
    C0947611
    PRO Response Number
    Description

    The numeric response recorded for the item. Please see the Common Measures Reference Table, “Value List” column, for the list of numeric valid values for each item. Number precision and scale updated in v3.1.

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C4285222
    UMLS CUI [1,2]
    C0237753
    PRO Method
    Description

    Method of administration. Electronic includes responses captured via a personal or tablet computer, at web kiosks, or via a smartphone.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C2987124
    UMLS CUI [1,2]
    C0025663
    PRO Mode
    Description

    The person who responded on behalf of the patient for whom the response was captured. A proxy report is a measurement based on a report by someone other than the patient reporting as if he or she is the patient, such as a parent responding for a child, or a caregiver responding for an individual unable to report for themselves. Assistance excludes providing interpretation of the patient’s response.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C2987124
    UMLS CUI [1,2]
    C1513371
    PRO CAT
    Description

    Indicates whether Computer Adaptive Testing (CAT) was used to administer the survey or instrument that the item was part of. May apply to electronic (EC) and telephonic (PH or IV) modes.

    Data type

    text

    Alias
    UMLS CUI [1]
    C4284883
    PRO Item Version
    Description

    Version of the item/question.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C4684729
    UMLS CUI [1,2]
    C0333052
    PRO Measure Name
    Description

    Short name or code of the PRO measure/form that item belongs to, if item is being administered as part of a measure. Will be blank if item is not being administered as part of a measure/form. If measure does not have a short name or code within the specified PRO terminology, do not create one. Populate PRO_MEASURE_FULLN AME instead. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    text

    Alias
    UMLS CUI [1]
    C4554568
    PRO Measure Seq
    Description

    Arbitrary ID/sequence number used to link PRO item responses that are associated with the same measure/form. All PRO item responses associated with the same form/measure should have the same value for PRO_MEASURE_SEQ. Will be blank if item is not part of a PRO measure/form.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C4277735
    UMLS CUI [1,2]
    C2348184
    PRO Measure Score
    Description

    Overall raw score for the PRO measure. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    integer

    Alias
    UMLS CUI [1]
    C4554390
    PRO Measure Theta
    Description

    The value of theta reported from the CAT PROMIS results. Only applies to items that are administered as part of a measure. Expected when scoring any measure/instrument that uses computer-adaptive testing (CAT) that has been calibrated with item-response theory (IRT), but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C4277735
    UMLS CUI [1,2]
    C0439101
    PRO Measure Scaled T-Score
    Description

    Standardized score based on the total raw score for the instrument. Only applies to items that are administered as part of a measure. Expected when scoring any measure/instrument that uses CAT that has been calibrated with IRT, but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C4277735
    UMLS CUI [1,2]
    C3854607
    PRO Measure Standard Error
    Description

    Possible range of the actual final score based on the scaled T-score. Only applies to items that are administered as part of a measure. Expected when scoring any measure/instrument that uses CAT that has been calibrated with IRT, but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C1710181
    UMLS CUI [1,2]
    C4277735
    PRO Measure Count Scored
    Description

    Number of PRO item responses that were involved in the scoring of the measure. Expected when scoring any measure/instrument that uses CAT that has been calibrated with IRT, but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C4277735
    UMLS CUI [1,2]
    C0750480
    UMLS CUI [1,3]
    C0449820
    PRO Measure LOINC
    Description

    LOINC® code for the PRO item, if available. Logical Observation Identifiers, Names, and Codes (LOINC) from the Regenstrief Institute. Current LOINC codes are from 3-7 characters long but Regenstrief suggests a length of 10 for future growth. The last digit of the LOINC code is a check digit and is always preceded by a hyphen. All parts of the LOINC code, including the hyphen, must be included. Do not pad the LOINC code with leading zeros. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C2987124
    UMLS CUI [1,2]
    C1136323
    PRO Measure Version
    Description

    Version of the measure. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C4277735
    UMLS CUI [1,2]
    C0333052
    PRO Item Full Name
    Description

    Full name of the PRO item.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C4684729
    UMLS CUI [1,2]
    C0027365
    PRO Item Text
    Description

    Text of the PRO item question.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C4684729
    UMLS CUI [1,2]
    C1527021
    PRO Measure Full Name
    Description

    Full name of the PRO measure. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C4277735
    UMLS CUI [1,2]
    C0027365

    Similar models

    Patient reported outcome (PRO) Common Measures (CDM) V4.1

    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    PRO CM
    C2987124 (UMLS CUI-1)
    PRO CM ID
    Item
    PRO CM ID
    text
    C2987124 (UMLS CUI [1,1])
    C1300638 (UMLS CUI [1,2])
    Patient ID
    Item
    Patient ID
    text
    C2348585 (UMLS CUI [1])
    Encounter ID
    Item
    Encounter ID
    text
    C1512346 (UMLS CUI [1,1])
    C1300638 (UMLS CUI [1,2])
    PRO Date
    Item
    PRO Date
    date
    C2987124 (UMLS CUI [1,1])
    C0011008 (UMLS CUI [1,2])
    PRO Time
    Item
    PRO Time
    time
    C2987124 (UMLS CUI [1,1])
    C0040223 (UMLS CUI [1,2])
    Item
    PRO_Item-Name
    text
    C4684698 (UMLS CUI [1])
    Code List
    PRO_Item-Name
    CL Item
    PROMIS  (PM)
    CL Item
    Neuro-QoL  (NQ)
    CL Item
    ASQC-Me  (AM)
    CL Item
    NIH Toolbox  (NT)
    CL Item
    PRO_CTCAE (PC)
    CL Item
    LOINC (LC)
    CL Item
    HCAHPS  (HC)
    CL Item
    No information  (NI)
    CL Item
    Unknown  (UN)
    CL Item
    Other (OT)
    PRO Loinc
    Item
    PRO Loinc
    text
    C2987124 (UMLS CUI [1,1])
    C1136323 (UMLS CUI [1,2])
    PRO Response Text
    Item
    PRO Response Text
    text
    C4285222 (UMLS CUI [1,1])
    C0947611 (UMLS CUI [1,2])
    PRO Response NUM
    Item
    PRO Response Number
    integer
    C4285222 (UMLS CUI [1,1])
    C0237753 (UMLS CUI [1,2])
    Item
    PRO Method
    text
    C2987124 (UMLS CUI [1,1])
    C0025663 (UMLS CUI [1,2])
    Code List
    PRO Method
    CL Item
    Paper  (PA)
    CL Item
    Electronic (EC)
    CL Item
    Telephonic (PH)
    CL Item
    Telephonic with interactive voice response (IVR) technology (IV)
    CL Item
    No information (NI)
    CL Item
    Unknown (UN)
    CL Item
    Other (OT)
    Item
    PRO Mode
    text
    C2987124 (UMLS CUI [1,1])
    C1513371 (UMLS CUI [1,2])
    Code List
    PRO Mode
    CL Item
    Self without assistance (SF)
    CL Item
    Self with assistance (SA)
    CL Item
    Proxy without assistance (PR)
    CL Item
    Proxy with assistance (PA)
    CL Item
    No information (NI)
    CL Item
    Unknown (UN)
    CL Item
    Other (OT)
    Item
    PRO CAT
    text
    C4284883 (UMLS CUI [1])
    Code List
    PRO CAT
    CL Item
    Yes (Y)
    CL Item
    No (N)
    CL Item
    No information (NI)
    CL Item
    Unknown (UN)
    CL Item
    Other (OT)
    PRO Item Version
    Item
    PRO Item Version
    text
    C4684729 (UMLS CUI [1,1])
    C0333052 (UMLS CUI [1,2])
    PRO Measure Name
    Item
    PRO Measure Name
    text
    C4554568 (UMLS CUI [1])
    PRO Measure Seq
    Item
    PRO Measure Seq
    text
    C4277735 (UMLS CUI [1,1])
    C2348184 (UMLS CUI [1,2])
    PRO Measure Score
    Item
    PRO Measure Score
    integer
    C4554390 (UMLS CUI [1])
    PRO Measure Theta
    Item
    PRO Measure Theta
    integer
    C4277735 (UMLS CUI [1,1])
    C0439101 (UMLS CUI [1,2])
    PRO Measure Scaled T-Score
    Item
    PRO Measure Scaled T-Score
    integer
    C4277735 (UMLS CUI [1,1])
    C3854607 (UMLS CUI [1,2])
    PRO Measure Standard Error
    Item
    PRO Measure Standard Error
    integer
    C1710181 (UMLS CUI [1,1])
    C4277735 (UMLS CUI [1,2])
    PRO Measure Count Scored
    Item
    PRO Measure Count Scored
    integer
    C4277735 (UMLS CUI [1,1])
    C0750480 (UMLS CUI [1,2])
    C0449820 (UMLS CUI [1,3])
    PRO Measure LOINC
    Item
    PRO Measure LOINC
    text
    C2987124 (UMLS CUI [1,1])
    C1136323 (UMLS CUI [1,2])
    PRO Measure Version
    Item
    PRO Measure Version
    text
    C4277735 (UMLS CUI [1,1])
    C0333052 (UMLS CUI [1,2])
    PRO Item Full Name
    Item
    PRO Item Full Name
    text
    C4684729 (UMLS CUI [1,1])
    C0027365 (UMLS CUI [1,2])
    PRO Item Text
    Item
    PRO Item Text
    text
    C4684729 (UMLS CUI [1,1])
    C1527021 (UMLS CUI [1,2])
    PRO Measure Full Name
    Item
    PRO Measure Full Name
    text
    C4277735 (UMLS CUI [1,1])
    C0027365 (UMLS CUI [1,2])

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