ID

40293

Beschreibung

Patient reported outcome (PRO) Common Measures (CDM) V4.1 This table is used to store responses to patient-reported outcome measures (PROs) or questionnaires. This table can be used to store item-level responses as well as the overall score for each measure. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure.

Stichworte

Versionen (3)
  1. 17.12.16 17.12.16 -
  2. 01.07.19 01.07.19 -
  3. 30.03.20 30.03.20 -
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PCORnet

Hochgeladen am

30. März 2020

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PCORnet Common Data Model (CDM)

Englisch

Patient reported outcome (PRO) Common Measures (CDM) V4.1

1 Formulare  
PRO CM
Beschreibung

PRO CM

Alias
UMLS CUI-1
C2987124
PRO CM ID
Beschreibung

Arbitrary identifier for each unique record.

Datentyp

text

Alias
UMLS CUI [1,1]
C2987124
UMLS CUI [1,2]
C1300638
Patient ID
Beschreibung

Arbitrary person-level identifier for the patient for whom the PRO response was captured. Used to link across tables.

Datentyp

text

Alias
UMLS CUI [1]
C2348585
Encounter ID
Beschreibung

Arbitrary encounter-level identifier used to link across tables. This should only be populated if the item was collected as part of a healthcare encounter.

Datentyp

text

Alias
UMLS CUI [1,1]
C1512346
UMLS CUI [1,2]
C1300638
PRO Date
Beschreibung

The date of the response.

Datentyp

date

Alias
UMLS CUI [1,1]
C2987124
UMLS CUI [1,2]
C0011008
PRO Time
Beschreibung

The time of the response.

Datentyp

time

Alias
UMLS CUI [1,1]
C2987124
UMLS CUI [1,2]
C0040223
PRO_Item-Name
Beschreibung

Short name or code of the PRO item in the vocabulary/terminology as specified. More information on PROMIS, Neuro- QoL and ASQC-Me and the NIH Toolbox can be found on the HealthMeasures website.(www.healthmeasures.net) The Patient-Reported Outcome version of the Common Terminology Criteria for Adverse Events (PRO-CTCAETM) is maintained by the National Cancer Institute. (https://healthcaredelivery.cancer.gov/pro-ctcae/) Information on the Hospital Consumer Assessment of Healthcare Providers and Systems (HPCAHPS) is located here: http://www.hcahpsonline.org

Datentyp

text

Alias
UMLS CUI [1]
C4684698
PRO Loinc
Beschreibung

LOINC® code for the PRO item, if available. LOINC® code for the PRO item, if available. Logical Observation Identifiers, Names, and Codes (LOINC) from the Regenstrief Institute. Current LOINC codes are from 3-7 characters long but Regenstrief suggests a length of 10 for future growth. The last digit of the LOINC code is a check digit and is always preceded by a hyphen. All parts of the LOINC code, including the hyphen, must be included. Do not pad the LOINC code with leading zeros.

Datentyp

text

Alias
UMLS CUI [1,1]
C2987124
UMLS CUI [1,2]
C1136323
PRO Response Text
Beschreibung

Text version of the response recorded for the item, if available/applicable. Please see the Common Measures Reference Table, “Value List” column, for the list of numeric valid values for each item. Number precision and scale updated in v3.1.

Datentyp

text

Alias
UMLS CUI [1,1]
C4285222
UMLS CUI [1,2]
C0947611
PRO Response Number
Beschreibung

The numeric response recorded for the item. Please see the Common Measures Reference Table, “Value List” column, for the list of numeric valid values for each item. Number precision and scale updated in v3.1.

Datentyp

integer

Alias
UMLS CUI [1,1]
C4285222
UMLS CUI [1,2]
C0237753
PRO Method
Beschreibung

Method of administration. Electronic includes responses captured via a personal or tablet computer, at web kiosks, or via a smartphone.

Datentyp

text

Alias
UMLS CUI [1,1]
C2987124
UMLS CUI [1,2]
C0025663
PRO Mode
Beschreibung

The person who responded on behalf of the patient for whom the response was captured. A proxy report is a measurement based on a report by someone other than the patient reporting as if he or she is the patient, such as a parent responding for a child, or a caregiver responding for an individual unable to report for themselves. Assistance excludes providing interpretation of the patient’s response.

Datentyp

text

Alias
UMLS CUI [1,1]
C2987124
UMLS CUI [1,2]
C1513371
PRO CAT
Beschreibung

Indicates whether Computer Adaptive Testing (CAT) was used to administer the survey or instrument that the item was part of. May apply to electronic (EC) and telephonic (PH or IV) modes.

Datentyp

text

Alias
UMLS CUI [1]
C4284883
PRO Item Version
Beschreibung

Version of the item/question.

Datentyp

text

Alias
UMLS CUI [1,1]
C4684729
UMLS CUI [1,2]
C0333052
PRO Measure Name
Beschreibung

Short name or code of the PRO measure/form that item belongs to, if item is being administered as part of a measure. Will be blank if item is not being administered as part of a measure/form. If measure does not have a short name or code within the specified PRO terminology, do not create one. Populate PRO_MEASURE_FULLN AME instead. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

text

Alias
UMLS CUI [1]
C4554568
PRO Measure Seq
Beschreibung

Arbitrary ID/sequence number used to link PRO item responses that are associated with the same measure/form. All PRO item responses associated with the same form/measure should have the same value for PRO_MEASURE_SEQ. Will be blank if item is not part of a PRO measure/form.

Datentyp

text

Alias
UMLS CUI [1,1]
C4277735
UMLS CUI [1,2]
C2348184
PRO Measure Score
Beschreibung

Overall raw score for the PRO measure. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

integer

Alias
UMLS CUI [1]
C4554390
PRO Measure Theta
Beschreibung

The value of theta reported from the CAT PROMIS results. Only applies to items that are administered as part of a measure. Expected when scoring any measure/instrument that uses computer-adaptive testing (CAT) that has been calibrated with item-response theory (IRT), but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

integer

Alias
UMLS CUI [1,1]
C4277735
UMLS CUI [1,2]
C0439101
PRO Measure Scaled T-Score
Beschreibung

Standardized score based on the total raw score for the instrument. Only applies to items that are administered as part of a measure. Expected when scoring any measure/instrument that uses CAT that has been calibrated with IRT, but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

integer

Alias
UMLS CUI [1,1]
C4277735
UMLS CUI [1,2]
C3854607
PRO Measure Standard Error
Beschreibung

Possible range of the actual final score based on the scaled T-score. Only applies to items that are administered as part of a measure. Expected when scoring any measure/instrument that uses CAT that has been calibrated with IRT, but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

integer

Alias
UMLS CUI [1,1]
C1710181
UMLS CUI [1,2]
C4277735
PRO Measure Count Scored
Beschreibung

Number of PRO item responses that were involved in the scoring of the measure. Expected when scoring any measure/instrument that uses CAT that has been calibrated with IRT, but may not be present for PRO measures/instruments that are not using CAT. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

integer

Alias
UMLS CUI [1,1]
C4277735
UMLS CUI [1,2]
C0750480
UMLS CUI [1,3]
C0449820
PRO Measure LOINC
Beschreibung

LOINC® code for the PRO item, if available. Logical Observation Identifiers, Names, and Codes (LOINC) from the Regenstrief Institute. Current LOINC codes are from 3-7 characters long but Regenstrief suggests a length of 10 for future growth. The last digit of the LOINC code is a check digit and is always preceded by a hyphen. All parts of the LOINC code, including the hyphen, must be included. Do not pad the LOINC code with leading zeros. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

text

Alias
UMLS CUI [1,1]
C2987124
UMLS CUI [1,2]
C1136323
PRO Measure Version
Beschreibung

Version of the measure. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

text

Alias
UMLS CUI [1,1]
C4277735
UMLS CUI [1,2]
C0333052
PRO Item Full Name
Beschreibung

Full name of the PRO item.

Datentyp

text

Alias
UMLS CUI [1,1]
C4684729
UMLS CUI [1,2]
C0027365
PRO Item Text
Beschreibung

Text of the PRO item question.

Datentyp

text

Alias
UMLS CUI [1,1]
C4684729
UMLS CUI [1,2]
C1527021
PRO Measure Full Name
Beschreibung

Full name of the PRO measure. Will be blank if item is not part of a PRO measure/form. If item is part of a PRO measure, the value for this field will be replicated for all items in the measure.

Datentyp

text

Alias
UMLS CUI [1,1]
C4277735
UMLS CUI [1,2]
C0027365
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Ähnliche Modelle

Patient reported outcome (PRO) Common Measures (CDM) V4.1

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
PRO CM
C2987124 (UMLS CUI-1)
PRO CM ID
Item
PRO CM ID
text
C2987124 (UMLS CUI [1,1])
C1300638 (UMLS CUI [1,2])
Patient ID
Item
Patient ID
text
C2348585 (UMLS CUI [1])
Encounter ID
Item
Encounter ID
text
C1512346 (UMLS CUI [1,1])
C1300638 (UMLS CUI [1,2])
PRO Date
Item
PRO Date
date
C2987124 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
PRO Time
Item
PRO Time
time
C2987124 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
Item
PRO_Item-Name
text
C4684698 (UMLS CUI [1])
PRO_Item-Name
Code List
PRO_Item-Name
CL Item
PROMIS  (PM)
CL Item
Neuro-QoL  (NQ)
CL Item
ASQC-Me  (AM)
CL Item
NIH Toolbox  (NT)
CL Item
PRO_CTCAE (PC)
CL Item
LOINC (LC)
CL Item
HCAHPS  (HC)
CL Item
No information  (NI)
CL Item
Unknown  (UN)
CL Item
Other (OT)
PRO Loinc
Item
PRO Loinc
text
C2987124 (UMLS CUI [1,1])
C1136323 (UMLS CUI [1,2])
PRO Response Text
Item
PRO Response Text
text
C4285222 (UMLS CUI [1,1])
C0947611 (UMLS CUI [1,2])
PRO Response NUM
Item
PRO Response Number
integer
C4285222 (UMLS CUI [1,1])
C0237753 (UMLS CUI [1,2])
Item
PRO Method
text
C2987124 (UMLS CUI [1,1])
C0025663 (UMLS CUI [1,2])
PRO Method
Code List
PRO Method
CL Item
Paper  (PA)
CL Item
Electronic (EC)
CL Item
Telephonic (PH)
CL Item
Telephonic with interactive voice response (IVR) technology (IV)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
Item
PRO Mode
text
C2987124 (UMLS CUI [1,1])
C1513371 (UMLS CUI [1,2])
PRO Mode
Code List
PRO Mode
CL Item
Self without assistance (SF)
CL Item
Self with assistance (SA)
CL Item
Proxy without assistance (PR)
CL Item
Proxy with assistance (PA)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
Item
PRO CAT
text
C4284883 (UMLS CUI [1])
PRO CAT
Code List
PRO CAT
CL Item
Yes (Y)
CL Item
No (N)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
PRO Item Version
Item
PRO Item Version
text
C4684729 (UMLS CUI [1,1])
C0333052 (UMLS CUI [1,2])
PRO Measure Name
Item
PRO Measure Name
text
C4554568 (UMLS CUI [1])
PRO Measure Seq
Item
PRO Measure Seq
text
C4277735 (UMLS CUI [1,1])
C2348184 (UMLS CUI [1,2])
PRO Measure Score
Item
PRO Measure Score
integer
C4554390 (UMLS CUI [1])
PRO Measure Theta
Item
PRO Measure Theta
integer
C4277735 (UMLS CUI [1,1])
C0439101 (UMLS CUI [1,2])
PRO Measure Scaled T-Score
Item
PRO Measure Scaled T-Score
integer
C4277735 (UMLS CUI [1,1])
C3854607 (UMLS CUI [1,2])
PRO Measure Standard Error
Item
PRO Measure Standard Error
integer
C1710181 (UMLS CUI [1,1])
C4277735 (UMLS CUI [1,2])
PRO Measure Count Scored
Item
PRO Measure Count Scored
integer
C4277735 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
PRO Measure LOINC
Item
PRO Measure LOINC
text
C2987124 (UMLS CUI [1,1])
C1136323 (UMLS CUI [1,2])
PRO Measure Version
Item
PRO Measure Version
text
C4277735 (UMLS CUI [1,1])
C0333052 (UMLS CUI [1,2])
PRO Item Full Name
Item
PRO Item Full Name
text
C4684729 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
PRO Item Text
Item
PRO Item Text
text
C4684729 (UMLS CUI [1,1])
C1527021 (UMLS CUI [1,2])
PRO Measure Full Name
Item
PRO Measure Full Name
text
C4277735 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
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