ID

19275

Descrizione

PCORnet Common Data Model (CDM) PRO CM PCORnet Common Data Model (CDM) A patient-centered approach to building an agile research platform is at the heart of PCORnet, and data serves as the backbone. Considering the large number and diverse types of organizations that are part of PCORnet, we all benefit from having a streamlined, efficient way to use the data produced by these organizations. Enter the PCORnet Common Data Model. The Common Data Model (or CDM) is a way of organizing data into a standard structure. The approach PCORnet is using to do this mirrors the approaches used by other large national research consortia. Each PCORnet partner network maps data to the same consistent format (i.e., with the same variable name, attributes, and other metadata). By undertaking this step, we create a platform that enables much more rapid responses to research-related questions. Contrast this with having to transform and prepare data each time we want to ask a new research question, and the efficiencies become clear. The PCORnet CDM is based on the FDA Sentinel Initiative Common Data Model (www.sentinelsystem.org) and has been informed by other distributed initiatives such as the Health Care Systems Research Network, the Vaccine Safety Datalink, various AHRQ Distributed Research Network projects, and the ONC Standards & Interoperability Framework Query Health Initiative. The PCORnet CDM leverages standard terminologies and coding systems for healthcare (including ICD, SNOMED, CPT, HCPSC, and LOINC) to enable interoperability with and responsiveness to evolving data standards. The PCORnet CDM (like other parts of PCORnet) will grow and evolve. Version 1.0 focused on a set of data items that are frequently available. Subsequent versions build in additional data elements which are analytically important for patient-centered outcomes research and feasible to standardize across sites.

collegamento

www.sentinelsystem.org

Keywords

versioni (3)
  1. 17/12/16 17/12/16 -
  2. 01/07/19 01/07/19 -
  3. 30/03/20 30/03/20 -
Caricato su

17 dicembre 2016

DOI

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Licenza

Creative Commons BY-NC 3.0
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PCORnet Common Data Model (CDM) PRO CM

Inglese

PCORnet Common Data Model (CDM) PRO CM

1 moduli  
PRO CM
Descrizione

PRO CM

PRO CM ID
Descrizione

Arbitrary identifier for each unique record. Does not need to be persistent across refreshes, and may be created by methods such as sequence or GUID.

Tipo di dati

integer

Alias
UMLS CUI [1]
C1300638
Patient ID
Descrizione

Arbitrary person-level identifier. Used to link across tables.

Tipo di dati

integer

Alias
UMLS CUI [1]
C2348585
Encounter ID
Descrizione

Arbitrary encounter-level identifier used to link across tables. This is an optional field, and should only be populated if the lab was collected as part of a healthcare encounter.

Tipo di dati

text

Alias
UMLS CUI [1,1]
C1512346
UMLS CUI [1,2]
C1300638
PRO Item
Descrizione

PCORnet identifier for the specific Common Measure item. Please see the Common Measures Reference Table for more details. Character length increased in v3.1 to accommodate the potential for additional ontologies.

Tipo di dati

text

PRO Loinc
Descrizione

LOINC® code for item context and stem. Please see the Implementation Guidance for known LOINC codes for each common measure (description updated in v3.1). Logical Observation Identifiers, Names, and Codes (LOINC) from the Regenstrief Institute. Results with local versions of LOINC codes (e.g., LOINC candidate codes) should be included in the RAW_ table field, but the PRO_LOINC variable should be set to missing. Current LOINC codes are from 3-7 characters long but Regenstrief suggests a length of 10 for future growth. The last digit of the LOINC code is a check digit and is always preceded by a hyphen. All parts of the LOINC code, including the hyphen, must be included. Do not pad the LOINC code with leading zeros.

Tipo di dati

text

Alias
UMLS CUI [1]
C1136323
PRO Date
Descrizione

The date of the response.

Tipo di dati

date

Alias
UMLS CUI [1]
C0011008
PRO Time
Descrizione

The time of the response.

Tipo di dati

time

Alias
UMLS CUI [1]
C0040223
PRO Response
Descrizione

The numeric response recorded for the item. Please see the Common Measures Reference Table, “Value List” column, for the list of numeric valid values for each item. Number precision and scale updated in v3.1.

Tipo di dati

float

PRO Method
Descrizione

Method of administration. Electronic includes responses captured via a personal or tablet computer, at web kiosks, or via a smartphone.

Tipo di dati

text

PRO Mode
Descrizione

The person who responded on behalf of the patient for whom the response was captured. A proxy report is a measurement based on a report by someone other than the patient reporting as if he or she is the patient, such as a parent responding for a child, or a caregiver responding for an individual unable to report for themselves. Assistance excludes providing interpretation of the patient’s response.

Tipo di dati

text

PRO CAT
Descrizione

Indicates whether Computer Adaptive Testing (CAT) was used to administer the survey or instrument that the item was part of. May apply to electronic (EC) and telephonic (PH or IV) modes.

Tipo di dati

text

RAW PRO Code
Descrizione

Optional field for originating code, such as LOINC candidate codes that have not yet been adopted

Tipo di dati

text

RAW PRO Response
Descrizione

Optional field for originating code, such as LOINC candidate codes that have not yet been adopted

Tipo di dati

text

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Similar models

PCORnet Common Data Model (CDM) PRO CM

1 moduli
Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
PRO CM
PRO CM ID
Item
PRO CM ID
integer
C1300638 (UMLS CUI [1])
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Encounter ID
Item
Encounter ID
text
C1512346 (UMLS CUI [1,1])
C1300638 (UMLS CUI [1,2])
Item
PRO Item
text
PRO Item
Code List
PRO Item
CL Item
GLOBAL01 (PN_0001)
CL Item
GLOBAL02 (PN_0002)
CL Item
GLOBAL06 (PN_0003)
CL Item
PFA53 (PN_0004)
CL Item
EDDEP29 (PN_0005)
CL Item
HI7 (PN_0006)
CL Item
SLEEP20 (PN_0007)
CL Item
SRPPER11_CAPS (PN_0008)
CL Item
PAININ9 (PN_0009)
CL Item
3793R1 (PN_0010)
CL Item
28676R1 (PN_0011)
CL Item
EOS_P_011 (PN_0012)
CL Item
PEDSGLOBAL2 (PN_0013)
CL Item
PEDSGLOBAL5 (PN_0014)
CL Item
PEDSGLOBAL6 (PN_0015)
CL Item
GLOBAL03 (PN_0016)
CL Item
GLOBAL04 (PN_0017)
CL Item
EDANX53 (PN_0018)
CL Item
SAMHSA (PN_0019)
CL Item
CAHPS 4.0 (PN_0020)
CL Item
PA070 (PN_0021)
PRO Loinc
Item
PRO Loinc
text
C1136323 (UMLS CUI [1])
PRO Date
Item
PRO Date
date
C0011008 (UMLS CUI [1])
PRO Time
Item
PRO Time
time
C0040223 (UMLS CUI [1])
PRO Response
Item
PRO Response
float
Item
PRO Method
text
PRO Method
Code List
PRO Method
CL Item
Paper  (PA)
CL Item
Electronic (EC)
CL Item
Telephonic (PH)
CL Item
Telephonic with interactive voice response (IVR) technology (IV)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
Item
PRO Mode
text
PRO Mode
Code List
PRO Mode
CL Item
Self without assistance (SF)
CL Item
Self with assistance (SA)
CL Item
Proxy without assistance (PR)
CL Item
Proxy with assistance (PA)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
Item
PRO CAT
text
PRO CAT
Code List
PRO CAT
CL Item
Yes (Y)
CL Item
No (N)
CL Item
No information (NI)
CL Item
Unknown (UN)
CL Item
Other (OT)
RAW PRO Code
Item
RAW PRO Code
text
RAW PRO Response
Item
RAW PRO Response
text
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