ID
36734
Beschrijving
ICHOM Dementia data collection Version 1.0.1 Revised: April 3rd, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Dementia, the following conditions are covered by the Standard Set. Condition: Alzheimer’s disease | Vascular dementia | Dementia in other diseases classified elsewhere (e.g. dementia with Lewy bodies and fronto-temporal dementia) Stages: Early | Middle | Late This document contains the Annual - Patient/Proxy-Reported Form. It has to be filled in annually (from Baseline). Collecting Clinician and Patient-Reported Outcome Measures: Neuropsychiatric Inventory (NPI). Copyrighted, fees only for industry-sponsored research. No republishing without permission of the originator (JL Cummings, 1994). Therefore (for now) only the total score will be included in this version of the standard set. Bristol Activity Daily Living Scale (BADLS). As redistribution possibility is not yet cleared, for now only the total score will be included in this version of the standard set. Quality of Life-AD (QOL-AD). Use of the scale in clinical practice or by academic users is free as long as no funding is received from commercial users, however a license is required. Therefore only the total score score will be included in this version of the standard set. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of Life in Alzheimer’s disease: Patient and Caregiver Reports. Journal of Mental Health and Aging. 1999;5(1):21-32 Quality of Wellbeing Scale-Self Administered (QWB-SA). The QWB-SA may be used free of charge by non-profit organizations that provide evidence of their non-profit status and agree to provide a copy of relevant, non-identifiable project data with UCSD; Scoring instructions are provided free of charge after a signed copyright agreement is received. As https://hoap.ucsd.edu/qwb-info/NotforProfit-Copyright.pdf is the official permission site, only the total score score will be included in this version of the standard set. EuroQol-5D (EQ-5D). As a license is required for use this questionaire, only the total score will be included in this version of the standard set. Veterans RAND 12 (VR-12). As this questionaire is copyrighted and needs an user agreement for use, only the total score score will be included in this version of the standard set. Clinical Dementia Rating (CDR). This questionaire is Copyrighted.The Washington University The Charles F. and Joanne Knight Alzheimer’s Disease Research Center (Knight ADRC) holds the United States Copyright for the Clinical Dementia Rating (CDR). Therefore only the total score score will be included in this version of the standard set. Montreal Cognitive Assessment (MoCA copyrighted). For clinical and educational use, MoCA© may be used, reproduced, and distributed without permission. This Standard set was supported by the Scottish Government.
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- 05-06-19 05-06-19 -
- 05-06-19 05-06-19 -
- 30-04-20 30-04-20 - Sarah Riepenhausen
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ICHOM
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ICHOM Dementia
Annual - Patient/Proxy-Reported Form
- StudyEvent: ODM
Beschrijving
Demographic factors
Alias
- UMLS CUI-1
- C1704791
Beschrijving
Supporting Definition: Item is phrased as a patient/caregiver reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1]
- C2184149
Beschrijving
Supporting Definition: Item is phrased as a patient/caregiver reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1]
- C1519386
Beschrijving
Supporting Definition: One alcohol unit is measured as 10ml or 8g of pure alcohol. This equals one 25ml single measure of whisky (ABV 40%), or a third of a pint of beer (ABV 5‐6%) or half a standard (175ml) glass of red wine (ABV 12%). Item is phrased as a patient/caregiver reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1]
- C0001948
Beschrijving
Associated clinical history
Alias
- UMLS CUI-1
- C0262926
- UMLS CUI-2
- C0332281
Beschrijving
Supporting Definition: Has the patient had a cardiovascular death, non‐fatal myocardial infarction, sustained ventricular arrhythmia, any coronary intervention, hospitalization for congestive heart failure, angina requiring hospital admission, peripheral vascular or cerebrovascular event in the last year Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-reported, clinical or administrative Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1320716
- UMLS CUI [1,2]
- C0021149
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C1298908
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0018799
- UMLS CUI [3]
- C0018801
- UMLS CUI [4]
- C0002962
- UMLS CUI [5]
- C0027051
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0020538
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0024115
- UMLS CUI [3]
- C0004096
- UMLS CUI [4]
- C0008677
- UMLS CUI [5]
- C0034067
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C1306889
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0011854
- UMLS CUI [3]
- C0011860
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0022658
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0027765
- UMLS CUI [3]
- C0030567
- UMLS CUI [4]
- C0026769
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0023895
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0006826
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2,1]
- C0011581
- UMLS CUI [2,2]
- C0332152
- UMLS CUI [2,3]
- C0497327
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0020443
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2,1]
- C0038454
- UMLS CUI [2,2]
- C0678227
- UMLS CUI [2,3]
- C1546466
Beschrijving
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-‐reported, clinical or administrative Type: Multiple answers
Datatype
boolean
Alias
- UMLS CUI [1]
- C0009488
- UMLS CUI [2]
- C0038586
Beschrijving
Outcome
Alias
- UMLS CUI-1
- C1547647
Beschrijving
Supporting Definition: Financial resources How hard is it for you to pay for the very basics like food, housing, medical care, and heating? Choose the statement which is most relevant Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1]
- C0516918
Beschrijving
Supporting Definition: 24 hour care could be provided at home by a formal/informal carer, family or friends, or in a institution, for example, a nursing home Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0580931
- UMLS CUI [1,2]
- C1442770
Beschrijving
Supporting Definition: Using the WHO (2007) definition of an fall; “In- advertently coming to rest on the ground, floor or other lower level, excluding intentional change in position to rest in furniture, wall or other objects” Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Numerical
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0085639
- UMLS CUI [1,2]
- C4086728
Beschrijving
Supporting Definition: How many times has the person with dementia been admitted to a hospital requiring an overnight stay, in the last 12 months How many times has the person with dementia been readmitted to hospital within 30 days of first admission to hospital, in the last 12 months? Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Administrative or patient/caregiver reported Type: Numerical Response Options: Admissions, Readmissions
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0184666
- UMLS CUI [1,2]
- C4086728
Beschrijving
Overall quality of life
Alias
- UMLS CUI-1
- C0034380
- UMLS CUI-2
- C0034394
Beschrijving
Supporting Definition: QOL‐AD Inclusion Criteria: All patients Timing: Baseline and 6 monthly Data Source: Patient/caregiver reported Type: Numerical Response Options: 13‐52
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0034380
- UMLS CUI [1,2]
- C0497327
- UMLS CUI [1,3]
- C0034394
Beschrijving
As a license is needed for use of the QOL-AD, the actual questions are not part of this version of the standard set. In the original standard set the QOL - Person with Dementia includes 13 questions. The ICHOM OID's are: QOLADPATIENT_Q01 to QOLADPATIENT_Q13 Inclusion Criteria: All patients Timing: Baseline and 6 monthly Data Source: Patient‐reported Type: Single answer
Datatype
text
Alias
- UMLS CUI [1,1]
- C0034380
- UMLS CUI [1,2]
- C0497327
- UMLS CUI [1,3]
- C0034394
- UMLS CUI [1,4]
- C2964552
Beschrijving
As a license is needed for use of the QOL-AD, the actual questions are not part of this version of the standard set. In the original standard set the QOL - Family Member or Caregiver includes 13 questions. The ICHOM OID's are: QOLADRELATIVE_Q01 to QOLADRELATIVE_Q13 Inclusion Criteria: All patients Timing: Baseline and 6 monthly Data Source: Relative‐reported Type: Single answer
Datatype
text
Alias
- UMLS CUI [1,1]
- C0034380
- UMLS CUI [1,2]
- C0497327
- UMLS CUI [1,3]
- C0034394
- UMLS CUI [1,4]
- C2964552
Beschrijving
Carer quality of life
Alias
- UMLS CUI-1
- C0034380
- UMLS CUI-2
- C0085537
Beschrijving
Supporting Definition: 5L (but 3L can be used and cross walked to 5L score) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver-self-reported Type: Multiple answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0034380
- UMLS CUI [1,2]
- C0085537
- UMLS CUI [1,3]
- C0034394
- UMLS CUI [2,1]
- C2733251
- UMLS CUI [2,2]
- C2964552
Beschrijving
Supporting Definition: 5L (but 3L can be used and cross walked to 5L score) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver-self-reported Type: Multiple answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0034380
- UMLS CUI [1,2]
- C0085537
- UMLS CUI [1,3]
- C0034394
- UMLS CUI [2,1]
- C3639380
- UMLS CUI [2,2]
- C2964552
Beschrijving
As a license is needed for use of EuroQol questionnaires, the actual questions are not part of this version of the standard set. In the original standard set the EQ5D Questionaire includes 6 questions. The ICHOM OID's are: MOBILITY, SELFCARE, ACTIVITY, PAIN, ANXIETY and EQ_VAS. Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported (carer) Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C2733251
- UMLS CUI [1,2]
- C2964552
Beschrijving
Health-Related Quality of Life
Alias
- UMLS CUI-1
- C4279947
Beschrijving
As a request for access and an agreement to terms of use are necessary before access, the actual questions of these questionnaires are not part of this version of the standard set. In the original standard set the VR-12 Questionaire includes 9 questions. The ICHOM OID's are: GH1, PF2, PF4, VRP2, VRP3, VRE2, VRE3, BP2, MH3, VT2, MH4, SF2, VR12_Q08 and VR12_Q09. Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported (carer) Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3655770
- UMLS CUI [1,2]
- C2964552
Beschrijving
Overall quality of wellbeing
Alias
- UMLS CUI-1
- C0451401
Beschrijving
Supporting Definition: QWB‐SA Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Numerical
Datatype
float
Alias
- UMLS CUI [1,1]
- C0451402
- UMLS CUI [1,2]
- C0036588
- UMLS CUI [1,3]
- C1533734
Beschrijving
As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Acute and Chronic Symptoms includes 59 questions. The ICHOM OID's are: QWB_SA_1A to QWB_SA_1K, QWB_SA_A to QWB_SA_G, QWB_SA_2A to QWB_SA_2Y, QWB_SA_3A to QWB_SA_3N, QWB_SA_4 (in th original standard the ICHOM OID QWB_SA_4 is listed twice). Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer (for QWB_SA_4: Free text)
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451402
- UMLS CUI [1,2]
- C0036588
- UMLS CUI [1,3]
- C1533734
- UMLS CUI [1,4]
- C2964552
- UMLS CUI [2,1]
- C0205178
- UMLS CUI [2,2]
- C1457887
- UMLS CUI [3,1]
- C0205191
- UMLS CUI [3,2]
- C1457887
Beschrijving
As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Self Care includes 5 questions. The ICHOM OID's are: QWB_SA_5A, QWB_SA_5B, QWB_SA_6A to QWB_SA_6C Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451402
- UMLS CUI [1,2]
- C0036588
- UMLS CUI [1,3]
- C1533734
- UMLS CUI [1,4]
- C2964552
- UMLS CUI [2]
- C0474417
Beschrijving
As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Physical Activity includes 9 questions. The ICHOM OID's are: QWB_SA_7A to QWB_SA_7I Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451402
- UMLS CUI [1,2]
- C0036588
- UMLS CUI [1,3]
- C1533734
- UMLS CUI [1,4]
- C2964552
- UMLS CUI [2]
- C0026606
Beschrijving
As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Usual Activity includes 11 questions. The ICHOM OID's are: QWB_SA_8A to QWB_SA_8D, QWB_SA_9A to QWB_SA_9C, QWB_SA_10, QWB_SA_10I to QWB_SA_10III Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer (For QWB_SA_8D and QWB_SA_10I: Free text)
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451402
- UMLS CUI [1,2]
- C0036588
- UMLS CUI [1,3]
- C1533734
- UMLS CUI [1,4]
- C2964552
- UMLS CUI [2,1]
- C0026606
- UMLS CUI [2,2]
- C3538928
Beschrijving
Neuropsychiatric
Alias
- UMLS CUI-1
- C3203509
Beschrijving
As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_D, NPI_C_D1 to NPI_C_D8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Options: Delusions (0‐24)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C0011253
- UMLS CUI [1,3]
- C2964552
Beschrijving
As permission for use is required, the 8 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_H, NPI_C_H1 to NPI_C_H7. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Hallucinations (0-21)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C0018524
- UMLS CUI [1,3]
- C2964552
Beschrijving
As permission for use is required, the 14 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_AGI, NPI_C_AGI1 to NPI_C_AGI13. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Agitation (0-39)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C0085631
- UMLS CUI [1,3]
- C2964552
Beschrijving
As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_AGG, NPI_C_AGG1 to NPI_C_AGG8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Aggression (0-24)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C1457883
- UMLS CUI [1,3]
- C2964552
Beschrijving
As permission for use is required, the 14 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_DYS, NPI_C_DYS1 to NPI_C_DYS13. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Dysphoria (0-39)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C3176492
- UMLS CUI [1,3]
- C2964552
Beschrijving
As permission for use is required, the 15 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_ANX, NPI_C_ANX1 to NPI_C_ANX14. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Anxiety (0-42)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C0003467
- UMLS CUI [1,3]
- C2964552
Beschrijving
As permission for use is required, the 13 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_APA_IND, NPI_C_APA_IND1 to NPI_C_APA_IND12. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Apathy (0-36)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C3828762
Beschrijving
As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_SLEEPDIS, NPI_C_SLEEPDIS1 to NPI_C_SLEEPDIS8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Sleep (0-24)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C0851578
- UMLS CUI [1,3]
- C2964552
Beschrijving
As permission for use is required, the 10 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_APP_ EAT_DIS, NPI_C_APP_ EAT_DIS1 to NPI_C_APP_ EAT_DIS9. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Appetite (0-27)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3539727
- UMLS CUI [1,2]
- C0003621
- UMLS CUI [1,3]
- C0013473
- UMLS CUI [1,4]
- C2964552
Beschrijving
Clinical Dementia Rating
Alias
- UMLS CUI-1
- C0451074
Beschrijving
As this questionaire is copyrighted, the 16 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_PAT_MEM1 to CDR_PAT_MEM10. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Free text (For CDR_INFOR_MEM1: Single answer)
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451074
- UMLS CUI [1,2]
- C0025260
- UMLS CUI [1,3]
- C0030705
- UMLS CUI [1,4]
- C2964552
Beschrijving
As this questionaire is copyrighted, the 8 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_PAT_ORIENT1 to CDR_PAT_ORIENT8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451074
- UMLS CUI [1,2]
- C0029266
- UMLS CUI [1,3]
- C0030705
- UMLS CUI [1,4]
- C2964552
Beschrijving
As this questionaire is copyrighted, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_PAT_JUDGE_PROB1 to CDR_PAT_JUDGE_PROB9. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451074
- UMLS CUI [1,2]
- C0022423
- UMLS CUI [1,3]
- C0033211
- UMLS CUI [1,4]
- C0030705
- UMLS CUI [1,5]
- C2964552
Beschrijving
As this questionaire is copyrighted, the 27 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_INFOR_COMMAFF, CDR_INFOR_COMMAFF1 to CDR_INFOR_COMMAFF10. Additionnaly some questions have subquestions: CDR_INFOR_COMMAFF4A, CDR_INFOR_COMMAFF4B, CDR_INFOR_COMMAFF8A, CDR_INFOR_COMMAFF10_1A, CDR_INFOR_COMMAFF10_1B, CDR_INFOR_COMMAFF10_2A, CDR_INFOR_COMMAFF10_2B, CDR_INFOR_COMMAFF10_3, CDR_INFOR_COMMAFF10_4, CDR_INFOR_COMMAFF10_4A, CDR_INFOR_COMMAFF10_5, CDR_INFOR_COMMAFF10_6, CDR_INFOR_COMMAFF10_6A to CDR_INFOR_COMMAFF10_6D Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver or Clinical Impression Type: Single answer
Datatype
text
Alias
- UMLS CUI [1,1]
- C0451074
- UMLS CUI [1,2]
- C3640458
- UMLS CUI [1,3]
- C1550484
- UMLS CUI [1,4]
- C2964552
Beschrijving
Daily Living
Alias
- UMLS CUI-1
- C4552744
Beschrijving
As redistribution possibility is not yet cleared, for now the 20 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are BADLS_Q01 to BADLS_Q20 Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Single answer
Datatype
integer
Alias
- UMLS CUI [1]
- C2959408
Beschrijving
Cognitive
Alias
- UMLS CUI-1
- C0392335
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-5
Datatype
integer
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2]
- C2370887
- UMLS CUI [3]
- C0935584
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-3
Datatype
integer
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2]
- C0233735
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: N/A Response Options: N/A
Datatype
text
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2]
- C0025260
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-3
Datatype
integer
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2]
- C0004268
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-1
Datatype
integer
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2]
- C0023008
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-2
Datatype
integer
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2]
- C0679195
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-5
Datatype
integer
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2,1]
- C0205421
- UMLS CUI [2,2]
- C0034770
Beschrijving
Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-6
Datatype
integer
Alias
- UMLS CUI [1]
- C3496286
- UMLS CUI [2]
- C0029266
Similar models
Annual - Patient/Proxy-Reported Form
- StudyEvent: ODM
C1442488 (UMLS CUI [1,2])
(Comment:en)
C2184147 (UMLS CUI-2)
C0557130 (UMLS CUI-3)
C0557128 (UMLS CUI-4)
(Comment:en)
C0259945 (UMLS CUI-2)
C0023977 (UMLS CUI-3)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C0919414 (UMLS CUI-2)
C0560579 (UMLS CUI-3)
(Comment:en)
C0919414 (UMLS CUI-2)
C3715152 (UMLS CUI-3)
C0560579 (UMLS CUI-4)
(Comment:en)
C3715152 (UMLS CUI-2)
C3715213 (UMLS CUI-3)
C0560579 (UMLS CUI-4)
(Comment:en)
C0205172 (UMLS CUI-2)
C3715213 (UMLS CUI-3)
C0560579 (UMLS CUI-4)
(Comment:en)
C0332281 (UMLS CUI-2)
C0021149 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
(Comment:en)
C1298908 (UMLS CUI [2])
C0018799 (UMLS CUI [2])
C0018801 (UMLS CUI [3])
C0002962 (UMLS CUI [4])
C0027051 (UMLS CUI [5])
C0020538 (UMLS CUI [2])
C0024115 (UMLS CUI [2])
C0004096 (UMLS CUI [3])
C0008677 (UMLS CUI [4])
C0034067 (UMLS CUI [5])
C1306889 (UMLS CUI [2])
C0011854 (UMLS CUI [2])
C0011860 (UMLS CUI [3])
C0022658 (UMLS CUI [2])
C0027765 (UMLS CUI [2])
C0030567 (UMLS CUI [3])
C0026769 (UMLS CUI [4])
C0023895 (UMLS CUI [2])
C0006826 (UMLS CUI [2])
C0011581 (UMLS CUI [2,1])
C0332152 (UMLS CUI [2,2])
C0497327 (UMLS CUI [2,3])
C0020443 (UMLS CUI [2])
C0038454 (UMLS CUI [2,1])
C0678227 (UMLS CUI [2,2])
C1546466 (UMLS CUI [2,3])
C0038586 (UMLS CUI [2])
(Comment:en)
(Comment:en)
(Comment:en)
(Comment:en)
C1442770 (UMLS CUI [1,2])
(Comment:en)
(Comment:en)
(Comment:en)
C4086728 (UMLS CUI [1,2])
C4086728 (UMLS CUI [1,2])
C0034394 (UMLS CUI-2)
C0497327 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C0497327 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0497327 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0085537 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2733251 (UMLS CUI [2,1])
C2964552 (UMLS CUI [2,2])
C0085537 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C3639380 (UMLS CUI [2,1])
C2964552 (UMLS CUI [2,2])
C2964552 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,2])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0205178 (UMLS CUI [2,1])
C1457887 (UMLS CUI [2,2])
C0205191 (UMLS CUI [3,1])
C1457887 (UMLS CUI [3,2])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0474417 (UMLS CUI [2])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0026606 (UMLS CUI [2])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0026606 (UMLS CUI [2,1])
C3538928 (UMLS CUI [2,2])
C0011253 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
C0018524 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
C0085631 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
C1457883 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
C3176492 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
C0003467 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
C3828762 (UMLS CUI [1,2])
C0851578 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
C0003621 (UMLS CUI [1,2])
C0013473 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0025260 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0029266 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0022423 (UMLS CUI [1,2])
C0033211 (UMLS CUI [1,3])
C0030705 (UMLS CUI [1,4])
C2964552 (UMLS CUI [1,5])
C3640458 (UMLS CUI [1,2])
C1550484 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C2370887 (UMLS CUI [2])
C0935584 (UMLS CUI [3])
C0233735 (UMLS CUI [2])
C0025260 (UMLS CUI [2])
C0004268 (UMLS CUI [2])
C0023008 (UMLS CUI [2])
C0679195 (UMLS CUI [2])
C0205421 (UMLS CUI [2,1])
C0034770 (UMLS CUI [2,2])
C0029266 (UMLS CUI [2])