ID

36737

Description

ICHOM Dementia data collection Version 1.0.1 Revised: April 3rd, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Dementia, the following conditions are covered by the Standard Set. Condition: Alzheimer’s disease | Vascular dementia | Dementia in other diseases classified elsewhere (e.g. dementia with Lewy bodies and fronto-temporal dementia) Stages: Early | Middle | Late This document contains the Annual - Patient/Proxy-Reported Form. It has to be filled in annually (from Baseline). Note: Please fill in parallel the document "6-monthly - Patient/Proxy-Reported Form". Collecting Clinician and Patient-Reported Outcome Measures: Neuropsychiatric Inventory (NPI). Copyrighted, fees only for industry-sponsored research. No republishing without permission of the originator (JL Cummings, 1994). Therefore (for now) only the total score will be included in this version of the standard set. Bristol Activity Daily Living Scale (BADLS). As redistribution possibility is not yet cleared, for now only the total score will be included in this version of the standard set. Quality of Life-AD (QOL-AD). Use of the scale in clinical practice or by academic users is free as long as no funding is received from commercial users, however a license is required. Therefore only the total score score will be included in this version of the standard set. Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of Life in Alzheimer’s disease: Patient and Caregiver Reports. Journal of Mental Health and Aging. 1999;5(1):21-32 Quality of Wellbeing Scale-Self Administered (QWB-SA). The QWB-SA may be used free of charge by non-profit organizations that provide evidence of their non-profit status and agree to provide a copy of relevant, non-identifiable project data with UCSD; Scoring instructions are provided free of charge after a signed copyright agreement is received. As https://hoap.ucsd.edu/qwb-info/NotforProfit-Copyright.pdf is the official permission site, only the total score score will be included in this version of the standard set. EuroQol-5D (EQ-5D). As a license is required for use this questionaire, only the total score will be included in this version of the standard set. Veterans RAND 12 (VR-12). As this questionaire is copyrighted and needs an user agreement for use, only the total score score will be included in this version of the standard set. Clinical Dementia Rating (CDR). This questionaire is Copyrighted.The Washington University The Charles F. and Joanne Knight Alzheimer’s Disease Research Center (Knight ADRC) holds the United States Copyright for the Clinical Dementia Rating (CDR). Therefore only the total score score will be included in this version of the standard set. Montreal Cognitive Assessment (MoCA copyrighted). For clinical and educational use, MoCA© may be used, reproduced, and distributed without permission. This Standard set was supported by the Scottish Government.

Link

http://www.ichom.org/

Keywords

Versions (3)
  1. 6/5/19 6/5/19 -
  2. 6/5/19 6/5/19 -
  3. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

June 5, 2019

DOI

To request one please log in.

License

Creative Commons BY-NC 3.0
Model comments :

You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.

Back to model comments
Itemgroup comments for :

Item comments for :

In order to download data models you must be logged in. Please log in or register for free.

ICHOM Dementia

English

Annual - Patient/Proxy-Reported Form

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Definition: Indicate the patient's medical record number Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

text

Alias
UMLS CUI [1]
C2348585
Time Relative to Baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Demographic factors
Description

Demographic factors

Alias
UMLS CUI-1
C1704791
Which statement best describes the person with dementia's living arrangement?
Description

Supporting Definition: Item is phrased as a patient/caregiver reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C2184149
Smoking status (of cigarettes, cigars or tobacco)
Description

Supporting Definition: Item is phrased as a patient/caregiver reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C1519386
Which statement best matches the amount of alcohol consumed regularly (in units) by the person with dementia?
Description

Supporting Definition: One alcohol unit is measured as 10ml or 8g of pure alcohol. This equals one 25ml single measure of whisky (ABV 40%), or a third of a pint of beer (ABV 5‐6%) or half a standard (175ml) glass of red wine (ABV 12%). Item is phrased as a patient/caregiver reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0001948
Associated clinical history
Description

Associated clinical history

Alias
UMLS CUI-1
C0262926
UMLS CUI-2
C0332281
Has the person with dementia sustained a cardio-­vascular event in the previous year?
Description

Supporting Definition: Has the patient had a cardiovascular death, non­‐fatal myocardial infarction, sustained ventricular arrhythmia, any coronary intervention, hospitalization for congestive heart failure, angina requiring hospital admission, peripheral vascular or cerebrovascular event in the last year Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­reported, clinical or administrative Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C1320716
UMLS CUI [1,2]
C0021149
Have you ever been told by a doctor that you have any of the following? (select all that apply) 0 = The person with dementia has no other diseases
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C1298908
Have you ever been told by a doctor that you have any of the following? (select all that apply) 1 = Heart disease (for example angina, heart attack or heart failure)
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0018799
UMLS CUI [3]
C0018801
UMLS CUI [4]
C0002962
UMLS CUI [5]
C0027051
Have you ever been told by a doctor that you have any of the following? (select all that apply) 2 = High blood pressure (sometimes referred to as 'hypertension')
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0020538
Have you ever been told by a doctor that you have any of the following? (select all that apply) 3 = Lung disease (for example asthma, chronic bronchitis or emphysema)
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0024115
UMLS CUI [3]
C0004096
UMLS CUI [4]
C0008677
UMLS CUI [5]
C0034067
Have you ever been told by a doctor that you have any of the following? (select all that apply) 4 = Leg pain when walking due to poor circulation
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C1306889
Have you ever been told by a doctor that you have any of the following? (select all that apply) 5 = Diabetes (Type I or Type II)
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0011854
UMLS CUI [3]
C0011860
Have you ever been told by a doctor that you have any of the following? (select all that apply) 6 = Kidney disease
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0022658
Have you ever been told by a doctor that you have any of the following? (select all that apply) 7 = Disease of the nervous system (for example Parkinson's disease or multiple sclerosis)
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0027765
UMLS CUI [3]
C0030567
UMLS CUI [4]
C0026769
Have you ever been told by a doctor that you have any of the following? (select all that apply) 8 = Liver disease
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0023895
Have you ever been told by a doctor that you have any of the following? (select all that apply) 9 = Cancer (within the last 5 years)
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0006826
Have you ever been told by a doctor that you have any of the following? (select all that apply) 10 = Depression before diagnosis of dementia
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2,1]
C0011581
UMLS CUI [2,2]
C0332152
UMLS CUI [2,3]
C0497327
Have you ever been told by a doctor that you have any of the following? (select all that apply) 11 = High cholesterol (sometimes referred to as hyperlipidemia)
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0020443
Have you ever been told by a doctor that you have any of the following? (select all that apply) 12 = Problems caused by stroke
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2,1]
C0038454
UMLS CUI [2,2]
C0678227
UMLS CUI [2,3]
C1546466
Have you ever been told by a doctor that you have any of the following? (select all that apply) 13 = Substance abuse
Description

Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sanga et al, 2003) Item is phrased as a patient reported measure. However, if the patient is unable to answer, this information can be abstracted from the medical records. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver-­‐reported, clinical or administrative Type: Multiple answers

Data type

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0038586
Outcome
Description

Outcome

Alias
UMLS CUI-1
C1547647
Patient reported question for financial resource
Description

Supporting Definition: Financial resources How hard is it for you to pay for the very basics like food, housing, medical care, and heating? Choose the statement which is most relevant Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0516918
Does the person with dementia require 24 hour care?
Description

Supporting Definition: 24 hour care could be provided at home by a formal/informal carer, family or friends, or in a institution, for example, a nursing home Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0580931
UMLS CUI [1,2]
C1442770
How many falls has the person with dementia sustained in the last 12 months?
Description

Supporting Definition: Using the WHO (2007) definition of an fall; “In-­ advertently coming to rest on the ground, floor or other lower level, excluding intentional change in position to rest in furniture, wall or other objects” Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Numerical

Data type

integer

Alias
UMLS CUI [1,1]
C0085639
UMLS CUI [1,2]
C4086728
How many times has the person with dementia been admitted and readmitted to hospital in the last 12 months?
Description

Supporting Definition: How many times has the person with dementia been admitted to a hospital requiring an overnight stay, in the last 12 months How many times has the person with dementia been readmitted to hospital within 30 days of first admission to hospital, in the last 12 months? Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Administrative or patient/caregiver reported Type: Numerical Response Options: Admissions, Readmissions

Data type

integer

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C4086728
Carer quality of life
Description

Carer quality of life

Alias
UMLS CUI-1
C0034380
UMLS CUI-2
C0085537
Carer-reported health related QOL (Tracked via the EuroQol-5D): 5 digit code for EQ-­5D-­5L
Description

Supporting Definition: 5L (but 3L can be used and cross walked to 5L score) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver-­self-­reported Type: Multiple answer

Data type

integer

Alias
UMLS CUI [1,1]
C0034380
UMLS CUI [1,2]
C0085537
UMLS CUI [1,3]
C0034394
UMLS CUI [2,1]
C2733251
UMLS CUI [2,2]
C2964552
Carer-reported health related QOL (Tracked via the EuroQol-5D): EQ-VAS (0-100)
Description

Supporting Definition: 5L (but 3L can be used and cross walked to 5L score) Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver-­self-­reported Type: Multiple answer

Data type

integer

Alias
UMLS CUI [1,1]
C0034380
UMLS CUI [1,2]
C0085537
UMLS CUI [1,3]
C0034394
UMLS CUI [2,1]
C3639380
UMLS CUI [2,2]
C2964552
EQ5D Questionaire total score
Description

As a license is needed for use of EuroQol questionnaires, the actual questions are not part of this version of the standard set. In the original standard set the EQ5D Questionaire includes 6 questions. The ICHOM OID's are: MOBILITY, SELFCARE, ACTIVITY, PAIN, ANXIETY and EQ_VAS. Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported (carer) Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C2733251
UMLS CUI [1,2]
C2964552
Health-Related Quality of Life
Description

Health-Related Quality of Life

Alias
UMLS CUI-1
C4279947
VR-12 Questionaire total score
Description

As a request for access and an agreement to terms of use are necessary before access, the actual questions of these questionnaires are not part of this version of the standard set. In the original standard set the VR-12 Questionaire includes 9 questions. The ICHOM OID's are: GH1, PF2, PF4, VRP2, VRP3, VRE2, VRE3, BP2, MH3, VT2, MH4, SF2, VR12_Q08 and VR12_Q09. Inclusion criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported (carer) Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C3655770
UMLS CUI [1,2]
C2964552
Overall quality of wellbeing
Description

Overall quality of wellbeing

Alias
UMLS CUI-1
C0451401
General health-related QOL and wellbeing (tracked via the Quality of Wellbeing Scale-Self-Administered)
Description

Supporting Definition: QWB­‐SA Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient/caregiver reported Type: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C0451402
UMLS CUI [1,2]
C0036588
UMLS CUI [1,3]
C1533734
QWB_SA - Acute and Chronic Symptoms, total score
Description

As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Acute and Chronic Symptoms includes 59 questions. The ICHOM OID's are: QWB_SA_1A to QWB_SA_1K, QWB_SA_A to QWB_SA_G, QWB_SA_2A to QWB_SA_2Y, QWB_SA_3A to QWB_SA_3N, QWB_SA_4 (in th original standard the ICHOM OID QWB_SA_4 is listed twice). Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-­reported Type: Single answer (for QWB_SA_4: Free text)

Data type

text

Alias
UMLS CUI [1,1]
C0451402
UMLS CUI [1,2]
C0036588
UMLS CUI [1,3]
C1533734
UMLS CUI [1,4]
C2964552
UMLS CUI [2,1]
C0205178
UMLS CUI [2,2]
C1457887
UMLS CUI [3,1]
C0205191
UMLS CUI [3,2]
C1457887
QWB_SA - Self Care, total score
Description

As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Self Care includes 5 questions. The ICHOM OID's are: QWB_SA_5A, QWB_SA_5B, QWB_SA_6A to QWB_SA_6C Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-­reported Type: Single answer

Data type

text

Alias
UMLS CUI [1,1]
C0451402
UMLS CUI [1,2]
C0036588
UMLS CUI [1,3]
C1533734
UMLS CUI [1,4]
C2964552
UMLS CUI [2]
C0474417
QWB_SA - Physical Activity, total score
Description

As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Physical Activity includes 9 questions. The ICHOM OID's are: QWB_SA_7A to QWB_SA_7I Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-­reported Type: Single answer

Data type

text

Alias
UMLS CUI [1,1]
C0451402
UMLS CUI [1,2]
C0036588
UMLS CUI [1,3]
C1533734
UMLS CUI [1,4]
C2964552
UMLS CUI [2]
C0026606
QWB_SA - Usual Activity, total score
Description

As a license is needed for use of the QWB-SA, the actual questions are not part of this version of the standard set. In the original standard set the QWB_SA - Usual Activity includes 11 questions. The ICHOM OID's are: QWB_SA_8A to QWB_SA_8D, QWB_SA_9A to QWB_SA_9C, QWB_SA_10, QWB_SA_10I to QWB_SA_10III Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-­reported Type: Single answer (For QWB_SA_8D and QWB_SA_10I: Free text)

Data type

text

Alias
UMLS CUI [1,1]
C0451402
UMLS CUI [1,2]
C0036588
UMLS CUI [1,3]
C1533734
UMLS CUI [1,4]
C2964552
UMLS CUI [2,1]
C0026606
UMLS CUI [2,2]
C3538928
Neuropsychiatric
Description

Neuropsychiatric

Alias
UMLS CUI-1
C3203509
NPI_C ‐ Delusions total score
Description

As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_D, NPI_C_D1 to NPI_C_D8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Options: Delusions (0‐24)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C0011253
UMLS CUI [1,3]
C2964552
NPI_C ‐ Hallucinations total score
Description

As permission for use is required, the 8 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_H, NPI_C_H1 to NPI_C_H7. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Hallucinations (0-21)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C0018524
UMLS CUI [1,3]
C2964552
NPI_C ‐ Agitation total score
Description

As permission for use is required, the 14 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_AGI, NPI_C_AGI1 to NPI_C_AGI13. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Agitation (0-39)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C0085631
UMLS CUI [1,3]
C2964552
NPI_C ‐ Aggression total score
Description

As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_AGG, NPI_C_AGG1 to NPI_C_AGG8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Aggression (0-24)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C1457883
UMLS CUI [1,3]
C2964552
NPI_C ‐ Dysphoria total score
Description

As permission for use is required, the 14 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_DYS, NPI_C_DYS1 to NPI_C_DYS13. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Dysphoria (0-39)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C3176492
UMLS CUI [1,3]
C2964552
NPI_C ‐ Anxiety total score
Description

As permission for use is required, the 15 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_ANX, NPI_C_ANX1 to NPI_C_ANX14. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Anxiety (0-42)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C0003467
UMLS CUI [1,3]
C2964552
NPI_C ‐ Apathy/Indifference total score
Description

As permission for use is required, the 13 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_APA_IND, NPI_C_APA_IND1 to NPI_C_APA_IND12. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Apathy (0-36)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C3828762
NPI_C ‐ Sleep Disorders total score
Description

As permission for use is required, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_SLEEPDIS, NPI_C_SLEEPDIS1 to NPI_C_SLEEPDIS8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Sleep (0-24)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C0851578
UMLS CUI [1,3]
C2964552
NPI_C ‐ Appetite and Eating Disorders total score
Description

As permission for use is required, the 10 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are NPI_C_APP_ EAT_DIS, NPI_C_APP_ EAT_DIS1 to NPI_C_APP_ EAT_DIS9. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver, Patient, or Clinical Impression Type: Numerical Response Option: Appetite (0-27)

Data type

integer

Alias
UMLS CUI [1,1]
C3539727
UMLS CUI [1,2]
C0003621
UMLS CUI [1,3]
C0013473
UMLS CUI [1,4]
C2964552
Clinical Dementia Rating
Description

Clinical Dementia Rating

Alias
UMLS CUI-1
C0451074
CDR_Memory Questions for Patient total score
Description

As this questionaire is copyrighted, the 16 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_PAT_MEM1 to CDR_PAT_MEM10. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Free text (For CDR_INFOR_MEM1: Single answer)

Data type

text

Alias
UMLS CUI [1,1]
C0451074
UMLS CUI [1,2]
C0025260
UMLS CUI [1,3]
C0030705
UMLS CUI [1,4]
C2964552
CDR_Orientation Questions for Patient total score
Description

As this questionaire is copyrighted, the 8 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_PAT_ORIENT1 to CDR_PAT_ORIENT8. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer

Data type

text

Alias
UMLS CUI [1,1]
C0451074
UMLS CUI [1,2]
C0029266
UMLS CUI [1,3]
C0030705
UMLS CUI [1,4]
C2964552
CDR_Judgement and Problem Solving Questions for Patient total score
Description

As this questionaire is copyrighted, the 9 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_PAT_JUDGE_PROB1 to CDR_PAT_JUDGE_PROB9. Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient-reported Type: Single answer

Data type

text

Alias
UMLS CUI [1,1]
C0451074
UMLS CUI [1,2]
C0022423
UMLS CUI [1,3]
C0033211
UMLS CUI [1,4]
C0030705
UMLS CUI [1,5]
C2964552
CDR_Community Affairs Questions for Informant total score
Description

As this questionaire is copyrighted, the 27 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are CDR_INFOR_COMMAFF, CDR_INFOR_COMMAFF1 to CDR_INFOR_COMMAFF10. Additionnaly some questions have subquestions: CDR_INFOR_COMMAFF4A, CDR_INFOR_COMMAFF4B, CDR_INFOR_COMMAFF8A, CDR_INFOR_COMMAFF10_1A, CDR_INFOR_COMMAFF10_1B, CDR_INFOR_COMMAFF10_2A, CDR_INFOR_COMMAFF10_2B, CDR_INFOR_COMMAFF10_3, CDR_INFOR_COMMAFF10_4, CDR_INFOR_COMMAFF10_4A, CDR_INFOR_COMMAFF10_5, CDR_INFOR_COMMAFF10_6, CDR_INFOR_COMMAFF10_6A to CDR_INFOR_COMMAFF10_6D Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Caregiver or Clinical Impression Type: Single answer

Data type

text

Alias
UMLS CUI [1,1]
C0451074
UMLS CUI [1,2]
C3640458
UMLS CUI [1,3]
C1550484
UMLS CUI [1,4]
C2964552
Daily Living
Description

Daily Living

Alias
UMLS CUI-1
C4552744
Bristol Activities of Daily Living Scale
Description

As redistribution possibility is not yet cleared, for now the 20 actual questions are not included in this version of the standard set. ICHOM ID of the single questions are BADLS_Q01 to BADLS_Q20 Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1]
C2959408
Cognitive
Description

Cognitive

Alias
UMLS CUI-1
C0392335
Visuospatial/Executive
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-5

Data type

integer

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2]
C2370887
UMLS CUI [3]
C0935584
Naming
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-3

Data type

integer

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2]
C0233735
Memory
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: N/A Response Options: N/A

Data type

text

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2]
C0025260
Attention
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-3

Data type

integer

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2]
C0004268
Language
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-1

Data type

integer

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2]
C0023008
Abstraction
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-2

Data type

integer

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2]
C0679195
Delayed Recall
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-5

Data type

integer

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2,1]
C0205421
UMLS CUI [2,2]
C0034770
Orientation
Description

Supporting Definition: http://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-English_7_1.pdf Inclusion Criteria: All patients Timing: Baseline, Annually Data Source: Patient‐reported Type: Numerical score Response Options: Score 0-6

Data type

integer

Alias
UMLS CUI [1]
C3496286
UMLS CUI [2]
C0029266
Back to the top of the page

Similar models

Annual - Patient/Proxy-Reported Form

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
text
C2348585 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Demographic factors
C1704791 (UMLS CUI-1)
Item
Which statement best describes the person with dementia's living arrangement?
integer
C2184149 (UMLS CUI [1])
Living status and location
Code List
Which statement best describes the person with dementia's living arrangement?
CL Item
Lives alone (0)
C0439044 (UMLS CUI-1)
(Comment:en)
CL Item
Lives with partner/spouse/family/friends (1)
C1443355 (UMLS CUI-1)
C2184147 (UMLS CUI-2)
C0557130 (UMLS CUI-3)
C0557128 (UMLS CUI-4)
(Comment:en)
CL Item
Lives in nursing home, hospital or long‐term care home (2)
C0028688 (UMLS CUI-1)
C0259945 (UMLS CUI-2)
C0023977 (UMLS CUI-3)
(Comment:en)
CL Item
Other (888)
C0205394 (UMLS CUI-1)
(Comment:en)
Item
Smoking status (of cigarettes, cigars or tobacco)
integer
C1519386 (UMLS CUI [1])
Smoking status
Code List
Smoking status (of cigarettes, cigars or tobacco)
CL Item
Never smoked (0)
C3472670 (UMLS CUI-1)
(Comment:en)
CL Item
Ex‐smoker (1)
C0337671 (UMLS CUI-1)
(Comment:en)
CL Item
Current smoker (2)
C3241966 (UMLS CUI-1)
(Comment:en)
Item
Which statement best matches the amount of alcohol consumed regularly (in units) by the person with dementia?
integer
C0001948 (UMLS CUI [1])
Alcohol use
Code List
Which statement best matches the amount of alcohol consumed regularly (in units) by the person with dementia?
CL Item
0 units of alcohol per week (0)
C0001948 (UMLS CUI-1)
C0919414 (UMLS CUI-2)
C0560579 (UMLS CUI-3)
(Comment:en)
CL Item
0‐14 units of alcohol per week (1)
C0001948 (UMLS CUI-1)
C0919414 (UMLS CUI-2)
C3715152 (UMLS CUI-3)
C0560579 (UMLS CUI-4)
(Comment:en)
CL Item
14-­21 units of alcohol per week (2)
C0001948 (UMLS CUI-1)
C3715152 (UMLS CUI-2)
C3715213 (UMLS CUI-3)
C0560579 (UMLS CUI-4)
(Comment:en)
CL Item
>21 units of alcohol per week (3)
C0001948 (UMLS CUI-1)
C0205172 (UMLS CUI-2)
C3715213 (UMLS CUI-3)
C0560579 (UMLS CUI-4)
(Comment:en)
Item Group
Associated clinical history
C0262926 (UMLS CUI-1)
C0332281 (UMLS CUI-2)
Item
Has the person with dementia sustained a cardio-­vascular event in the previous year?
integer
C1320716 (UMLS CUI [1,1])
C0021149 (UMLS CUI [1,2])
Cardiovascular event incidence
Code List
Has the person with dementia sustained a cardio-­vascular event in the previous year?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Co-­morbid conditions: The person with dementia has no other diseases
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 0 = The person with dementia has no other diseases
boolean
C0009488 (UMLS CUI [1])
C1298908 (UMLS CUI [2])
Co-­morbid conditions: Heart disease
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 1 = Heart disease (for example angina, heart attack or heart failure)
boolean
C0009488 (UMLS CUI [1])
C0018799 (UMLS CUI [2])
C0018801 (UMLS CUI [3])
C0002962 (UMLS CUI [4])
C0027051 (UMLS CUI [5])
Co-­morbid conditions: High blood pressure
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 2 = High blood pressure (sometimes referred to as 'hypertension')
boolean
C0009488 (UMLS CUI [1])
C0020538 (UMLS CUI [2])
Co-­morbid conditions: Lung disease
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 3 = Lung disease (for example asthma, chronic bronchitis or emphysema)
boolean
C0009488 (UMLS CUI [1])
C0024115 (UMLS CUI [2])
C0004096 (UMLS CUI [3])
C0008677 (UMLS CUI [4])
C0034067 (UMLS CUI [5])
Co-­morbid conditions: Leg pain when walking due to poor circulation
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 4 = Leg pain when walking due to poor circulation
boolean
C0009488 (UMLS CUI [1])
C1306889 (UMLS CUI [2])
Co-­morbid conditions: Diabetes
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 5 = Diabetes (Type I or Type II)
boolean
C0009488 (UMLS CUI [1])
C0011854 (UMLS CUI [2])
C0011860 (UMLS CUI [3])
Co-­morbid conditions: Kidney disease
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 6 = Kidney disease
boolean
C0009488 (UMLS CUI [1])
C0022658 (UMLS CUI [2])
Co-­morbid conditions: Disease of the nervous system
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 7 = Disease of the nervous system (for example Parkinson's disease or multiple sclerosis)
boolean
C0009488 (UMLS CUI [1])
C0027765 (UMLS CUI [2])
C0030567 (UMLS CUI [3])
C0026769 (UMLS CUI [4])
Co-­morbid conditions: Liver disease
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 8 = Liver disease
boolean
C0009488 (UMLS CUI [1])
C0023895 (UMLS CUI [2])
Co-­morbid conditions: Cancer
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 9 = Cancer (within the last 5 years)
boolean
C0009488 (UMLS CUI [1])
C0006826 (UMLS CUI [2])
Co-­morbid conditions: Depression before diagnosis of dementia
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 10 = Depression before diagnosis of dementia
boolean
C0009488 (UMLS CUI [1])
C0011581 (UMLS CUI [2,1])
C0332152 (UMLS CUI [2,2])
C0497327 (UMLS CUI [2,3])
Co-­morbid conditions: High cholesterol
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 11 = High cholesterol (sometimes referred to as hyperlipidemia)
boolean
C0009488 (UMLS CUI [1])
C0020443 (UMLS CUI [2])
Co-­morbid conditions: Problems caused by stroke
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 12 = Problems caused by stroke
boolean
C0009488 (UMLS CUI [1])
C0038454 (UMLS CUI [2,1])
C0678227 (UMLS CUI [2,2])
C1546466 (UMLS CUI [2,3])
Co-­morbid conditions: Substance abuse
Item
Have you ever been told by a doctor that you have any of the following? (select all that apply) 13 = Substance abuse
boolean
C0009488 (UMLS CUI [1])
C0038586 (UMLS CUI [2])
Item Group
Outcome
C1547647 (UMLS CUI-1)
Item
Patient reported question for financial resource
integer
C0516918 (UMLS CUI [1])
Overall quality of life and wellbeing
Code List
Patient reported question for financial resource
CL Item
Very hard (0)
C3842677 (UMLS CUI-1)
(Comment:en)
CL Item
Somewhat hard (1)
C4050071 (UMLS CUI-1)
(Comment:en)
CL Item
Not hard at all (2)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Item
Does the person with dementia require 24 hour care?
integer
C0580931 (UMLS CUI [1,1])
C1442770 (UMLS CUI [1,2])
Cardiovascular event incidence
Code List
Does the person with dementia require 24 hour care?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
unknown (999)
C0439673 (UMLS CUI-1)
(Comment:en)
Falls
Item
How many falls has the person with dementia sustained in the last 12 months?
integer
C0085639 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
Hospital admissions
Item
How many times has the person with dementia been admitted and readmitted to hospital in the last 12 months?
integer
C0184666 (UMLS CUI [1,1])
C4086728 (UMLS CUI [1,2])
Item Group
Carer quality of life
C0034380 (UMLS CUI-1)
C0085537 (UMLS CUI-2)
Carer quality of life: 5 digit code for EQ-­5D-­5L
Item
Carer-reported health related QOL (Tracked via the EuroQol-5D): 5 digit code for EQ-­5D-­5L
integer
C0034380 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C2733251 (UMLS CUI [2,1])
C2964552 (UMLS CUI [2,2])
Carer quality of life: EQ-VAS (0-100)
Item
Carer-reported health related QOL (Tracked via the EuroQol-5D): EQ-VAS (0-100)
integer
C0034380 (UMLS CUI [1,1])
C0085537 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,3])
C3639380 (UMLS CUI [2,1])
C2964552 (UMLS CUI [2,2])
EQ5D Questionaire total score
Item
EQ5D Questionaire total score
integer
C2733251 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item Group
Health-Related Quality of Life
C4279947 (UMLS CUI-1)
VR-12 Questionaire total score
Item
VR-12 Questionaire total score
integer
C3655770 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item Group
Overall quality of wellbeing
C0451401 (UMLS CUI-1)
Overall quality of life and wellbeing
Item
General health-related QOL and wellbeing (tracked via the Quality of Wellbeing Scale-Self-Administered)
float
C0451402 (UMLS CUI [1,1])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
QWB_SA - Acute and Chronic Symptoms, total score
Item
QWB_SA - Acute and Chronic Symptoms, total score
text
C0451402 (UMLS CUI [1,1])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0205178 (UMLS CUI [2,1])
C1457887 (UMLS CUI [2,2])
C0205191 (UMLS CUI [3,1])
C1457887 (UMLS CUI [3,2])
QWB_SA - Self Care, total score
Item
QWB_SA - Self Care, total score
text
C0451402 (UMLS CUI [1,1])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0474417 (UMLS CUI [2])
QWB_SA - Physical Activity, total score
Item
QWB_SA - Physical Activity, total score
text
C0451402 (UMLS CUI [1,1])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0026606 (UMLS CUI [2])
QWB_SA - Usual Activity, total score
Item
QWB_SA - Usual Activity, total score
text
C0451402 (UMLS CUI [1,1])
C0036588 (UMLS CUI [1,2])
C1533734 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
C0026606 (UMLS CUI [2,1])
C3538928 (UMLS CUI [2,2])
Item Group
Neuropsychiatric
C3203509 (UMLS CUI-1)
NPI_C ‐ Delusions total score
Item
NPI_C ‐ Delusions total score
integer
C3539727 (UMLS CUI [1,1])
C0011253 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
NPI_C ‐ Hallucinations total score
Item
NPI_C ‐ Hallucinations total score
integer
C3539727 (UMLS CUI [1,1])
C0018524 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
NPI_C ‐ Agitation total score
Item
NPI_C ‐ Agitation total score
integer
C3539727 (UMLS CUI [1,1])
C0085631 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
NPI_C ‐ Aggression total score
Item
NPI_C ‐ Aggression total score
integer
C3539727 (UMLS CUI [1,1])
C1457883 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
NPI_C ‐ Dysphoria total score
Item
NPI_C ‐ Dysphoria total score
integer
C3539727 (UMLS CUI [1,1])
C3176492 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
NPI_C ‐ Anxiety total score
Item
NPI_C ‐ Anxiety total score
integer
C3539727 (UMLS CUI [1,1])
C0003467 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
NPI_C ‐ Apathy/Indifference total score
Item
NPI_C ‐ Apathy/Indifference total score
integer
C3539727 (UMLS CUI [1,1])
C3828762 (UMLS CUI [1,2])
NPI_C ‐ Sleep Disorders total score
Item
NPI_C ‐ Sleep Disorders total score
integer
C3539727 (UMLS CUI [1,1])
C0851578 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
NPI_C ‐ Appetite and Eating Disorders total score
Item
NPI_C ‐ Appetite and Eating Disorders total score
integer
C3539727 (UMLS CUI [1,1])
C0003621 (UMLS CUI [1,2])
C0013473 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
Item Group
Clinical Dementia Rating
C0451074 (UMLS CUI-1)
CDR_Memory Questions for Patient total score
Item
CDR_Memory Questions for Patient total score
text
C0451074 (UMLS CUI [1,1])
C0025260 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
CDR_Orientation Questions for Patient total score
Item
CDR_Orientation Questions for Patient total score
text
C0451074 (UMLS CUI [1,1])
C0029266 (UMLS CUI [1,2])
C0030705 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
CDR_Judgement and Problem Solving Questions for Patient total score
Item
CDR_Judgement and Problem Solving Questions for Patient total score
text
C0451074 (UMLS CUI [1,1])
C0022423 (UMLS CUI [1,2])
C0033211 (UMLS CUI [1,3])
C0030705 (UMLS CUI [1,4])
C2964552 (UMLS CUI [1,5])
CDR_Community Affairs Questions for Informant total score
Item
CDR_Community Affairs Questions for Informant total score
text
C0451074 (UMLS CUI [1,1])
C3640458 (UMLS CUI [1,2])
C1550484 (UMLS CUI [1,3])
C2964552 (UMLS CUI [1,4])
Item Group
Daily Living
C4552744 (UMLS CUI-1)
Bristol Activities of Daily Living Scale
Item
Bristol Activities of Daily Living Scale
integer
C2959408 (UMLS CUI [1])
Item Group
Cognitive
C0392335 (UMLS CUI-1)
Visuospatial/Executive
Item
Visuospatial/Executive
integer
C3496286 (UMLS CUI [1])
C2370887 (UMLS CUI [2])
C0935584 (UMLS CUI [3])
Naming
Item
Naming
integer
C3496286 (UMLS CUI [1])
C0233735 (UMLS CUI [2])
Memory
Item
Memory
text
C3496286 (UMLS CUI [1])
C0025260 (UMLS CUI [2])
Attention
Item
Attention
integer
C3496286 (UMLS CUI [1])
C0004268 (UMLS CUI [2])
Language
Item
Language
integer
C3496286 (UMLS CUI [1])
C0023008 (UMLS CUI [2])
Abstraction
Item
Abstraction
integer
C3496286 (UMLS CUI [1])
C0679195 (UMLS CUI [2])
Delayed Recall
Item
Delayed Recall
integer
C3496286 (UMLS CUI [1])
C0205421 (UMLS CUI [2,1])
C0034770 (UMLS CUI [2,2])
Orientation
Item
Orientation
integer
C3496286 (UMLS CUI [1])
C0029266 (UMLS CUI [2])
Back to the top of the page 

Contact

Please use this form for feedback, questions and suggestions for improvements.

Fields marked with * are required.

Help

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

Watch Tutorial