ID

40569

Description

ICHOM Lung cancer data collection Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Lung Cancer, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Small Cell and Non-Small Cell Lung Cancer Treatment Approaches: Surgery | Radiotherapy | Chemotherapy | Targeted Therapy | Immunotherapy | Other This document contains Follow-up - Patient reported form. It covers: 3 months post initiation of treatment, 6 months post initiation of treatment, 1 year post initiation of treatment, 2 years post initiation of treatment and 3 years post initiation of treatment. Collecting Patient-Reported Outcome Measures: European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30). European Organization for Research and Treatment of Cancer Quality of Life Lung Cancer-Specific Questionnaire (EORTC QLQ-LC13). Both are free for all health care organizations, but a license is needed for use. http:// groups.eortc.be/qol/eortc-qlq-c30 is the official distribution site for EORTC QLQ-C30 and EORTC QLQ-LC13 questionnaires. Therefore only the total score will be included in this version of the standard set. Publication: Mak KS, van Bommel AC, Stowell C, et al. Defining a standard set of patient-centred outcomes for lung cancer. Eur Respir J. 2016;48(3):852–860. doi:10.1183/13993003.02049-2015 For this standard set ICHOM was supported by the Alliance of Dedicated Cancer Centers. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

http://www.ichom.org/

Keywords

Versions (4)
  1. 5/14/19 5/14/19 -
  2. 5/20/19 5/20/19 -
  3. 5/20/19 5/20/19 - Sarah Riepenhausen
  4. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Lung Cancer

English

Follow-up - Patient reported

1 forms  
Administrative data
Description

Administrative data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Data type

integer

Alias
UMLS CUI [1]
C2348585
Time Relative to Baseline (e.g. 3 months post initiation of treatment, 6 months post initiation of treatment, Tracked ongoing annually for life)
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Degree of health
Description

Degree of health

Alias
UMLS CUI-1
C0018759
EORTC QLQ-C30 Total Score
Description

As a license is needed for use of this questionnaire, the 30 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQC30_Q01 up to EORTCQLQC30_Q30. Inclusion Criteria: All patients Timing: Baseline 3 months post initiation of treatment 6 months post initiation of treatment 1 year post initiation of treatment Tracked ongoing annually for life Data Source: Patient-­‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0451149
UMLS CUI [1,2]
C2964552
EORTC QLQL-C13 Total score
Description

As a license is needed for use of this questionnaire, the 13 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQLC13_Q01 up to EORTCQLQLC30_Q13. EORTCQLQLC30_Q12 and EORTCQLQLC30_Q13 have each an additionally ID: EORTCQLQLC30_Q12SUB and EORTCQLQLC30_Q13SUB. Inclusion Criteria: All patients Timing: Baseline 3 months post initiation of treatment 6 months post initiation of treatment 1 year post initiation of treatment Tracked ongoing annually for life Data Source: Patient-­‐reported Type: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0451149
UMLS CUI [1,2]
C2964552
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Similar models

Follow-up - Patient reported

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. 3 months post initiation of treatment, 6 months post initiation of treatment, Tracked ongoing annually for life)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Degree of health
C0018759 (UMLS CUI-1)
EORTC QLQ-C30 Total Score
Item
EORTC QLQ-C30 Total Score
integer
C0451149 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
EORTC QLQL-C13 Total score
Item
EORTC QLQL-C13 Total score
integer
C0451149 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
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