ID
36468
Description
ICHOM Lung cancer data collection Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Lung Cancer, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Small Cell and Non-Small Cell Lung Cancer Treatment Approaches: Surgery | Radiotherapy | Chemotherapy | Targeted Therapy | Immunotherapy | Other This document contains the Baseline - Patient-Reported Form. It depicts first doctor's visit. Collecting Patient-Reported Outcome Measures: European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30). European Organization for Research and Treatment of Cancer Quality of Life Lung Cancer-Specific Questionnaire (EORTC QLQ-LC13). Both are free for all health care organizations, but a license is needed for use. http:// groups.eortc.be/qol/eortc-qlq-c30 is the official distribution site for EORTC QLQ-C30 and EORTC QLQ-LC13 questionnaires. Therefore only the total score will be included in this version of the standard set. Publication: Mak KS, van Bommel AC, Stowell C, et al. Defining a standard set of patient-centred outcomes for lung cancer. Eur Respir J. 2016;48(3):852–860. doi:10.1183/13993003.02049-2015 For this standard set ICHOM was supported by the Alliance of Dedicated Cancer Centers.
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Keywords
Versions (3)
- 5/14/19 5/14/19 -
- 5/16/19 5/16/19 -
- 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder
ICHOM
Uploaded on
May 16, 2019
DOI
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License
Creative Commons BY-NC 3.0
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ICHOM Lung Cancer
Baseline - Patient-Reported Form
- StudyEvent: ODM
Description
Demographic factors
Alias
- UMLS CUI-1
- C1704791
Description
Inclusion Criteria: All patients Timing: Baseline Data Source: Clinical or patient‐reported Type: Date by DD/MM/YYYY
Data type
date
Measurement units
- DD/MM/YYYY
Alias
- UMLS CUI [1]
- C0421451
Description
Inclusion Criteria: All patients Timing: Baseline Data Source: Clinical or patient‐reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1]
- C0079399
Description
In the original form response option is N/A. A codelist is not supplemented because it varies by country and should be determined by country (not for cross country comparison). Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Data type
text
Alias
- UMLS CUI [1]
- C0015031
Description
Supporting Definition: The level of schooling is defined in each country as per ISCED [International Standard Classification] Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1]
- C0013658
Description
Baseline Clinical factors
Alias
- UMLS CUI-1
- C0449440
- UMLS CUI-2
- C1442488
Description
Inclusion Criteria: All patients Timing: Baseline Data Source: Patient‐reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1]
- C1262477
Description
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0549184
Description
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0018799
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0020538
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1306889
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0024115
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0011849
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0022658
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0023895
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0038454
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0027765
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1707251
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0011581
Description
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0003864
Description
Inclusion Criteria: All patients Timing: Baseline Data Source: Patient‐reported Type: Single answer
Data type
integer
Alias
- UMLS CUI [1]
- C1519386
Description
Degree of health
Alias
- UMLS CUI-1
- C0018759
Description
As a license is needed for use of this questionnaire, the 30 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQC30_Q01 up to EORTCQLQC30_Q30. Inclusion Criteria: All patients Timing: Baseline 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Clinical Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C4055104
- UMLS CUI [1,2]
- C2964552
Description
As a license is needed for use of this questionnaire, the 13 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQLC13_Q01 up to EORTCQLQLC30_Q13. EORTCQLQLC30_Q12 and EORTCQLQLC30_Q13 have each an additionally ID: EORTCQLQLC30_Q12SUB and EORTCQLQLC30_Q13SUB. Inclusion Criteria: All patients Inclusion Criteria: All patients Timing: Baseline 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Clinical Type: Single answer
Data type
integer
Alias
- UMLS CUI [1,1]
- C0451149
- UMLS CUI [1,2]
- C0242379
- UMLS CUI [1,3]
- C2964552
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