ID
36468
Beschreibung
ICHOM Lung cancer data collection Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ For Lung Cancer, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Small Cell and Non-Small Cell Lung Cancer Treatment Approaches: Surgery | Radiotherapy | Chemotherapy | Targeted Therapy | Immunotherapy | Other This document contains the Baseline - Patient-Reported Form. It depicts first doctor's visit. Collecting Patient-Reported Outcome Measures: European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30). European Organization for Research and Treatment of Cancer Quality of Life Lung Cancer-Specific Questionnaire (EORTC QLQ-LC13). Both are free for all health care organizations, but a license is needed for use. http:// groups.eortc.be/qol/eortc-qlq-c30 is the official distribution site for EORTC QLQ-C30 and EORTC QLQ-LC13 questionnaires. Therefore only the total score will be included in this version of the standard set. Publication: Mak KS, van Bommel AC, Stowell C, et al. Defining a standard set of patient-centred outcomes for lung cancer. Eur Respir J. 2016;48(3):852–860. doi:10.1183/13993003.02049-2015 For this standard set ICHOM was supported by the Alliance of Dedicated Cancer Centers.
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Versionen (3)
- 14.05.19 14.05.19 -
- 16.05.19 16.05.19 -
- 30.04.20 30.04.20 - Sarah Riepenhausen
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ICHOM
Hochgeladen am
16. Mai 2019
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ICHOM Lung Cancer
Baseline - Patient-Reported Form
- StudyEvent: ODM
Beschreibung
Demographic factors
Alias
- UMLS CUI-1
- C1704791
Beschreibung
Inclusion Criteria: All patients Timing: Baseline Data Source: Clinical or patient‐reported Type: Date by DD/MM/YYYY
Datentyp
date
Maßeinheiten
- DD/MM/YYYY
Alias
- UMLS CUI [1]
- C0421451
Beschreibung
Inclusion Criteria: All patients Timing: Baseline Data Source: Clinical or patient‐reported Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1]
- C0079399
Beschreibung
In the original form response option is N/A. A codelist is not supplemented because it varies by country and should be determined by country (not for cross country comparison). Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Datentyp
text
Alias
- UMLS CUI [1]
- C0015031
Beschreibung
Supporting Definition: The level of schooling is defined in each country as per ISCED [International Standard Classification] Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1]
- C0013658
Beschreibung
Baseline Clinical factors
Alias
- UMLS CUI-1
- C0449440
- UMLS CUI-2
- C1442488
Beschreibung
Inclusion Criteria: All patients Timing: Baseline Data Source: Patient‐reported Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1]
- C1262477
Beschreibung
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0549184
Beschreibung
Supporting Definition: Based upon the Self-administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0018799
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0020538
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1306889
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0024115
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0011849
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0022658
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0023895
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0038454
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0027765
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C1707251
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0011581
Beschreibung
Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline Data Source: Patient-reported Type: Multiple answer
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0003864
Beschreibung
Inclusion Criteria: All patients Timing: Baseline Data Source: Patient‐reported Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1]
- C1519386
Beschreibung
Degree of health
Alias
- UMLS CUI-1
- C0018759
Beschreibung
As a license is needed for use of this questionnaire, the 30 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQC30_Q01 up to EORTCQLQC30_Q30. Inclusion Criteria: All patients Timing: Baseline 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Clinical Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C4055104
- UMLS CUI [1,2]
- C2964552
Beschreibung
As a license is needed for use of this questionnaire, the 13 actual questions are not included in this version of the standard set. ICHOM IDs are EORTCQLQLC13_Q01 up to EORTCQLQLC30_Q13. EORTCQLQLC30_Q12 and EORTCQLQLC30_Q13 have each an additionally ID: EORTCQLQLC30_Q12SUB and EORTCQLQLC30_Q13SUB. Inclusion Criteria: All patients Inclusion Criteria: All patients Timing: Baseline 1 year post initiation of treatment Tracked ongoing annually for life (when hospital is able to track this ongoing) Data Source: Clinical Type: Single answer
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0451149
- UMLS CUI [1,2]
- C0242379
- UMLS CUI [1,3]
- C2964552
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Baseline - Patient-Reported Form
- StudyEvent: ODM
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C0439673 (UMLS CUI-2)
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C0033145 (UMLS CUI-2)
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C1442488 (UMLS CUI-2)
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C0549184 (UMLS CUI [1,2])
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C1306889 (UMLS CUI [1,2])
C0024115 (UMLS CUI [1,2])
C0011849 (UMLS CUI [1,2])
C0022658 (UMLS CUI [1,2])
C0023895 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,2])
C0027765 (UMLS CUI [1,2])
C1707251 (UMLS CUI [1,2])
C0011581 (UMLS CUI [1,2])
C0003864 (UMLS CUI [1,2])
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C1519384 (UMLS CUI-2)
C1277691 (UMLS CUI-3)
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C2964552 (UMLS CUI [1,2])
C0242379 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])