Informações:
Falhas:
ID
28108
Descrição
Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry Source: https://old.liu.se/habq/habq-formular-cp?l=sv Registry owner:Gunilla Rydberg, HabQ, Region Skåne, Child and youth rehabilitation, Skåne University Hospital (SUS), 205 02 Malmö gunilla.rydberg@skane.se Copyright:old.liu.se (habq) 9 year follow up Health monitoring of children and adolescents with Cerebral Palsy
Link
https://old.liu.se/habq/habq-formular-cp?l=sv
Palavras-chave
Versões (1)
- 18/12/2017 18/12/2017 -
Titular dos direitos
old.liu.se (habq)
Transferido a
18 de dezembro de 2017
DOI
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Licença
Creative Commons BY-NC 3.0
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Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry
9 year follow up Health monitoring of children and adolescents with Cerebral Palsy
Similar models
9 year follow up Health monitoring of children and adolescents with Cerebral Palsy
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
Item Group
9 year follow up Health monitoring of children and adolescents with Cerebral Palsy
C0007789 (UMLS CUI-1)
C1522577 (UMLS CUI-2)
C0017313 (UMLS CUI-3)
C0030695 (UMLS CUI-4)
C1522577 (UMLS CUI-2)
C0017313 (UMLS CUI-3)
C0030695 (UMLS CUI-4)
Study ID
Item
Study ID
text
C2348585 (UMLS CUI [1])
name
Item
name
text
C0027365 (UMLS CUI [1])
ID-nr Compos
Item
ID-nr Compos
text
rehabilitation unit
Item
rehabilitation unit
text
C0018704 (UMLS CUI [1,1])
C0034991 (UMLS CUI [1,2])
C1549700 (UMLS CUI [1,3])
C0034991 (UMLS CUI [1,2])
C1549700 (UMLS CUI [1,3])
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
C0010995 (UMLS CUI [1,2])
Family, Mother is biological parent
Item
Family, Mother is biological parent
boolean
C0026591 (UMLS CUI [1,1])
C0337465 (UMLS CUI [1,2])
C0337465 (UMLS CUI [1,2])
Year of birth mother
Item
Year of birth mother
integer
C2319404 (UMLS CUI [1])
Family, Father is biological parent
Item
Family, Father is biological parent
boolean
C0015671 (UMLS CUI [1,1])
C0337465 (UMLS CUI [1,2])
C0337465 (UMLS CUI [1,2])
Year of birth father
Item
Year of birth father
integer
C2136977 (UMLS CUI [1])
Mother is born in another country
Item
Mother is born in another country
boolean
C1300001 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,2])
Mother immigrated from
Item
Mother immigrated from
text
C0026591 (UMLS CUI [1,1])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
Mother came to Sweden year
Item
Mother came to Sweden year
integer
C0020942 (UMLS CUI [1,1])
C0038995 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,3])
C0038995 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,3])
Mother needs an interpreter
Item
Mother needs an interpreter
boolean
C0150646 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,2])
The father was born in another country
Item
The father was born in another country
boolean
C1300001 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,2])
The father immigrated from
Item
The father immigrated from
text
C0015671 (UMLS CUI [1,1])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
The father came to Sweden year
Item
The father came to Sweden year
integer
C0020942 (UMLS CUI [1,1])
C0038995 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,3])
C0038995 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,3])
The father needs an interpreter
Item
The father needs an interpreter
boolean
C0150646 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,2])
CL Item
Both parents (1)
CL Item
The mother (2)
CL Item
The father (3)
CL Item
Exchange Housing (4)
Other accommodation
Item
Other accommodation
text
C2184149 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Sibling's birth year
Item
Sibling's birth year
integer
C0037047 (UMLS CUI [1,1])
C2826771 (UMLS CUI [1,2])
C2826771 (UMLS CUI [1,2])
Item Group
Community Outreach
C0009482 (UMLS CUI-1)
C0037438 (UMLS CUI-2)
C1521721 (UMLS CUI-3)
C0037438 (UMLS CUI-2)
C1521721 (UMLS CUI-3)
Social support, Care contribution
Item
Social support, Care contribution
boolean
C0037438 (UMLS CUI [1])
Item
How much care allowance
integer
C0017313 (UMLS CUI [1,1])
C0556660 (UMLS CUI [1,2])
C0556660 (UMLS CUI [1,2])
CL Item
25% (1)
CL Item
50% (2)
CL Item
75% (3)
CL Item
100% (4)
Actions according to SoL
Item
Actions according to SoL
boolean
What actions according to SoL
Item
What actions according to SoL
text
Actions according to LSS 9§
Item
Actions according to LSS 9§
boolean
Advice and other personal support
Item
If yes, check which ones Advice and other personal support
boolean
C1521721 (UMLS CUI [1])
Personal Assistant
Item
Personal Assistant
boolean
C0401893 (UMLS CUI [1])
Item
Personal Assistant Number of hours / week
integer
C0401893 (UMLS CUI [1])
CL Item
less than 10 (1)
CL Item
> 10-20 (2)
CL Item
> 20-40 (3)
CL Item
more than 40 (4)
Attendant Service
Item
Attendant Service
boolean
C0554205 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
Contact
Item
Contact
boolean
C0337611 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
Relief service at home
Item
Relief service at home
boolean
C1521721 (UMLS CUI [1,1])
C0442519 (UMLS CUI [1,2])
C0442519 (UMLS CUI [1,2])
Short-term stay outside of home
Item
Short-term stay outside of home
boolean
C0034993 (UMLS CUI [1,1])
C0023303 (UMLS CUI [1,2])
C0023303 (UMLS CUI [1,2])
Short-term supervision for schoolchildren over 12 years
Item
Short-term supervision for schoolchildren over 12 years
boolean
C0038842 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
C0008059 (UMLS CUI [1,2])
Accommodation
Item
Accommodation in a family home or in a residence with special service for children and adolescents
boolean
C0595920 (UMLS CUI [1])
Personal assistance according to LASS
Item
Personal assistance according to LASS
boolean
C1521721 (UMLS CUI [1])
Item
Number of hours / week personal assistant according to LASS
integer
C1521721 (UMLS CUI [1])
Code List
Number of hours / week personal assistant according to LASS
CL Item
20-40 (1)
CL Item
41-60 (2)
CL Item
more than 60 (3)
Coordinated plan according to SOFS§2008: 20
Item
Coordinated plan according to SOFS§2008: 20
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
Transportation service
Item
Transportation service
boolean
C2003850 (UMLS CUI [1])
car allowance
Item
car allowance
boolean
C0556660 (UMLS CUI [1,1])
C0004381 (UMLS CUI [1,2])
C0004381 (UMLS CUI [1,2])
Individual plan according to LSS 10§
Item
Individual plan according to LSS 10§
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
HSL Habilitation Plan
Item
HSL Habilitation Plan
boolean
C0018459 (UMLS CUI [1,1])
C0178916 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C0178916 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
Coordinated Individual Plan (SIP)
Item
Coordinated Individual Plan (SIP)
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
School / leisure
Item
Stay daytime: School / leisure
boolean
C0086542 (UMLS CUI [1,1])
C0023292 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])
C0023292 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])
Elementary school
Item
Stay daytime: Elementary school
boolean
C0683859 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,2])
special needs elementary school
Item
Stay daytime: special needs elementary school
boolean
C0557805 (UMLS CUI [1,1])
C0683859 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])
C0683859 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])
special needs school
Item
Stay daytime: special needs school
boolean
C0557805 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,2])
school childcare/leisure
Item
school childcare/leisure
boolean
C0036375 (UMLS CUI [1,1])
C0683807 (UMLS CUI [1,2])
C0023292 (UMLS CUI [2])
C0683807 (UMLS CUI [1,2])
C0023292 (UMLS CUI [2])
Additional resources
Item
Additional resources in school / childcare
boolean
C0035201 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C0683807 (UMLS CUI [2])
C0036375 (UMLS CUI [1,2])
C0683807 (UMLS CUI [2])
Support of specialist teacher
Item
If yes, what: Support of special educator / specialist teacher
boolean
C0221457 (UMLS CUI [1,1])
C0871403 (UMLS CUI [1,2])
C1521721 (UMLS CUI [2])
C0871403 (UMLS CUI [1,2])
C1521721 (UMLS CUI [2])
Assistant
Item
If yes, what: Assistant / resource appointed by preschool / school
boolean
C0401893 (UMLS CUI [1])
C1521721 (UMLS CUI [2])
C1521721 (UMLS CUI [2])
Personal Assistance according to LSS
Item
If yes, what: Personal Assistance according to LSS / LASS
boolean
C0401893 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
participate in any recreational activities
Item
Does the child participate in any recreational activities?
boolean
C0023292 (UMLS CUI [1])
type of activities
Item
If yes, what activities
text
C0023292 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0332307 (UMLS CUI [1,2])
Item
How often?
integer
C0023292 (UMLS CUI [1,1])
C3898838 (UMLS CUI [1,2])
C3898838 (UMLS CUI [1,2])
CL Item
one or more times / week (1)
CL Item
one or more times / month (2)
CL Item
more rarely (3)
meet other children to play or hang out
Item
Does the child meet other children / young people during their free time to play or hang out?
boolean
C0023292 (UMLS CUI [1,1])
C0079382 (UMLS CUI [1,2])
C0079382 (UMLS CUI [1,2])
Item
If yes, how often?
integer
C0023292 (UMLS CUI [1,1])
C0079382 (UMLS CUI [1,2])
C3898838 (UMLS CUI [1,3])
C0079382 (UMLS CUI [1,2])
C3898838 (UMLS CUI [1,3])
CL Item
one or more times / week (1)
CL Item
one or more times / month (2)
CL Item
more rarely (3)
CL Item
1 friend (1)
CL Item
2-3 friends (2)
CL Item
4 friends or more (3)
Item Group
Medical background data
C0262926 (UMLS CUI-1)
C0007789 (UMLS CUI-2)
C0007789 (UMLS CUI-2)
Date of data collection:
Item
Date of data collection:
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
C0010995 (UMLS CUI [1,2])
Spastic Bilateral Diplegia
Item
Spastic Bilateral Diplegia (= G80.1) ?
boolean
C0270804 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
C0238767 (UMLS CUI [1,2])
Spastic Unilateral Hemiplegia
Item
Spastic Unilateral Hemiplegia (=G80.2) ?
boolean
C0270804 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])
C0205092 (UMLS CUI [1,2])
dyskinetic
Item
Dyskinetic (=G80.3) ?
boolean
C0013384 (UMLS CUI [1])
Dyskinetic Tonic Change
Item
Dyskinetic Tonic Change (=G80.3A) ?
boolean
C0013384 (UMLS CUI [1,1])
C1836825 (UMLS CUI [1,2])
C1836825 (UMLS CUI [1,2])
Dyskinetic
Item
Dyskinetic Koreo-atetos (=G80.3B) ?
boolean
C0013384 (UMLS CUI [1])
ataxia
Item
Ataxia (=G80.4) ?
boolean
C0004134 (UMLS CUI [1])
Spastic Bilateral Tetraplegia
Item
Spastic Bilateral Tetraplegia (=G80.8) ?
boolean
C0837207 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
C0238767 (UMLS CUI [1,2])
CP other
Item
CP other (=G80.9)
boolean
C0007789 (UMLS CUI [1])
GMFCS
Item
= GMFCS (I - V):
integer
C0677549 (UMLS CUI [1,1])
C0456079 (UMLS CUI [1,2])
C0456079 (UMLS CUI [1,2])
CT / MR brain
Item
CT / MR brain
boolean
C0412585 (UMLS CUI [1])
C0412675 (UMLS CUI [2])
C0412675 (UMLS CUI [2])
Date of X-ray
Item
Date of X-ray
date
C0011923 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
result diagnostic imaging
Item
result diagnostic imaging
text
C1274040 (UMLS CUI [1,1])
C0011923 (UMLS CUI [1,2])
C0011923 (UMLS CUI [1,2])
Prenatal damage
Item
Prenatal damage
boolean
C0270611 (UMLS CUI [1,1])
C2735348 (UMLS CUI [1,2])
C2735348 (UMLS CUI [1,2])
Perinatal damage
Item
Perinatal damage
boolean
C0270611 (UMLS CUI [1,1])
C0178795 (UMLS CUI [1,2])
C0178795 (UMLS CUI [1,2])
Postnatal damage
Item
Postnatal damage
boolean
C0270611 (UMLS CUI [1,1])
C0443281 (UMLS CUI [1,2])
C0443281 (UMLS CUI [1,2])
Unclear time
Item
Unclear time
boolean
C0270611 (UMLS CUI [1,1])
C2348792 (UMLS CUI [1,2])
C3845108 (UMLS CUI [1,3])
C2348792 (UMLS CUI [1,2])
C3845108 (UMLS CUI [1,3])
Item Group
Additional handicap
C0262926 (UMLS CUI-1)
C0520817 (UMLS CUI-2)
C0009488 (UMLS CUI-3)
C0520817 (UMLS CUI-2)
C0009488 (UMLS CUI-3)
CL Item
Unknown (1)
CL Item
Cortical Visual Impairment (2)
CL Item
Hemianopsia (3)
CL Item
Visible 0.1-0.3 (4)
CL Item
Blind less than 0.1 (5)
CL Item
Unknown (1)
CL Item
Impaired hearing (2)
CL Item
Hearing aid (3)
CL Item
Deaf (4)
Language / speech impairments
Item
Language / speech impairments
boolean
C0233715 (UMLS CUI [1,1])
C0564649 (UMLS CUI [1,2])
C0564649 (UMLS CUI [1,2])
Dysphagia / difficulty swallowing
Item
Dysphagia / difficulty swallowing
boolean
C0973461 (UMLS CUI [1])
C0566355 (UMLS CUI [2])
C0566355 (UMLS CUI [2])
Epilepsy
Item
Epilepsy (OBS diagnosis above)
boolean
C0014544 (UMLS CUI [1])
resistant to therapy
Item
Therapeutic resistance > 1g / month, despite 2 years of treatment
boolean
C0332325 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,2])
Autism
Item
Autism
boolean
C0004352 (UMLS CUI [1])
Autism Spectrum Disorders
Item
Autism Spectrum Disorders
boolean
C1510586 (UMLS CUI [1])
Incontinence
Item
Bladder function: Incontinence
boolean
C0021167 (UMLS CUI [1])
emptying disorder
Item
Bladder function: emptying disorder
boolean
C0429805 (UMLS CUI [1])
intestinal incontinence
Item
Gastrointestinal function: intestinal incontinence
boolean
C0021167 (UMLS CUI [1,1])
C0516983 (UMLS CUI [1,2])
C0516983 (UMLS CUI [1,2])
Constipation
Item
Gastrointestinal function: Constipation
boolean
C0009806 (UMLS CUI [1])
dislocated hip
Item
dislocated hip (clicky hips)
boolean
C0019554 (UMLS CUI [1])
dislocated hip bilateral
Item
dislocated hip bilateral
boolean
C0019554 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
C0238767 (UMLS CUI [1,2])
scoliosis
Item
dislocated hip: scoliosis
boolean
C0036439 (UMLS CUI [1])
C0019554 (UMLS CUI [2])
C0019554 (UMLS CUI [2])
dislocated hip degree
Item
dislocated hip: Degree
integer
C0019554 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
C0439792 (UMLS CUI [1,2])
Gastrostomy / tube
Item
Gastrostomy / tube
boolean
C0017196 (UMLS CUI [1])
C0041281 (UMLS CUI [2])
C0041281 (UMLS CUI [2])
Date of data collection
Item
Date of data collection:
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
height
Item
height
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight
float
C0005910 (UMLS CUI [1])
Item Group
Attention to daily life
C0001288 (UMLS CUI-1)
C0004268 (UMLS CUI-2)
C1521721 (UMLS CUI-3)
C0007789 (UMLS CUI-4)
C0004268 (UMLS CUI-2)
C1521721 (UMLS CUI-3)
C0007789 (UMLS CUI-4)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
C0010995 (UMLS CUI [1,2])
Item
At home or in preschool: To maintain attention (d160 according to ICF)
integer
C0004268 (UMLS CUI [1])
Code List
At home or in preschool: To maintain attention (d160 according to ICF)
CL Item
No difficulty (1)
CL Item
Easy difficulty (2)
CL Item
Moderate difficulty (3)
CL Item
Great difficulty (4)
CL Item
Total difficulty (5)
CL Item
Not specified (6)
CL Item
Not applicable (7)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
C0010995 (UMLS CUI [1,2])
Manual Ability
Item
Manual Ability Classification System (MACS)
integer
C0175674 (UMLS CUI [1,1])
C0085732 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,3])
C0085732 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,3])
Gross Motor Function Classification System (GMFCS-ER)
Item
Gross Motor Function Classification System (GMFCS-ER)
integer
C0677549 (UMLS CUI [1,1])
C0456079 (UMLS CUI [1,2])
C0456079 (UMLS CUI [1,2])
CL Item
Less than the measuring range (1)
CL Item
Greater than the measuring range (2)
Gross Motor Function Measure (GMFM-66) score
Item
Gross Motor Function Measure (GMFM-66) score
float
C0677549 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,2])
GMFM
Item
GMFM-66 confidence interval (95 percent) lower than
float
C0677549 (UMLS CUI [1,1])
C0009667 (UMLS CUI [1,2])
C0009667 (UMLS CUI [1,2])
GMFM
Item
GMFM-66 confidence interval (95 percent) higher than
float
C0677549 (UMLS CUI [1,1])
C0009667 (UMLS CUI [1,2])
C0009667 (UMLS CUI [1,2])
Item Group
Pediatric Evaluation of Disability Inventory (PEDI)
C0012605 (UMLS CUI-1)
C1521725 (UMLS CUI-2)
C1521725 (UMLS CUI-2)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
C0010995 (UMLS CUI [1,2])
Item
PEDI not tested because of
integer
C0012605 (UMLS CUI [1,1])
C1521725 (UMLS CUI [1,2])
C1521725 (UMLS CUI [1,2])
CL Item
Less than the measuring range (1)
CL Item
Greater than the range (2)
Item Group
Functional skills
C0678856 (UMLS CUI-1)
C1518965 (UMLS CUI-2)
C0007789 (UMLS CUI-3)
C1518965 (UMLS CUI-2)
C0007789 (UMLS CUI-3)
Personal care score
Item
Personal care raw score
integer
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care scale score
Item
Functional skills Personal care scale score
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Average mean error
Item
Functional skills Personal care Average mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility score
Item
mobility score
integer
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility scale score
Item
mobility scale score
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Average mean error
Item
mobility Average mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability score
Item
Social ability raw score
integer
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability scale score
Item
Social ability scale score
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Average mean error
Item
Social ability Average mean error
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Item Group
Help Requirements
C1521721 (UMLS CUI-1)
C1514873 (UMLS CUI-2)
C0007789 (UMLS CUI-3)
C1514873 (UMLS CUI-2)
C0007789 (UMLS CUI-3)
Item
help Requirements
integer
C1521721 (UMLS CUI [1,1])
C1514873 (UMLS CUI [1,2])
C0007789 (UMLS CUI [1,3])
C1514873 (UMLS CUI [1,2])
C0007789 (UMLS CUI [1,3])
CL Item
total (1)
CL Item
none (2)
Personal care score
Item
Personal care raw score
integer
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care scale score
Item
Functional skills Personal care scale score
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Average mean error
Item
Functional skills Personal care Average mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility score
Item
mobility score
integer
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility scale score
Item
mobility scale score
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Average mean error
Item
mobility Average mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability score
Item
Social ability raw score
integer
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability scale score
Item
Social ability scale score
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Average mean error
Item
Social ability Average mean error
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Item
Number of adjustments: Personal care
integer
C0376209 (UMLS CUI [1,1])
C0563471 (UMLS CUI [1,2])
C0563471 (UMLS CUI [1,2])
CL Item
None (1)
CL Item
General (2)
CL Item
Aids (3)
CL Item
Extensive (4)
Item
Number of adjustments: mobility
integer
C0376209 (UMLS CUI [1,1])
C0449580 (UMLS CUI [1,2])
C0449580 (UMLS CUI [1,2])
CL Item
None (1)
CL Item
General (2)
CL Item
Aids (3)
CL Item
Extensive (4)
Item
Number of adjustments: Social ability
integer
C0376209 (UMLS CUI [1,1])
C0679005 (UMLS CUI [1,2])
C0679005 (UMLS CUI [1,2])
CL Item
None (1)
CL Item
General (2)
CL Item
Aids (3)
CL Item
Extensive (4)
Item Group
General self-assessed health
C0516984 (UMLS CUI-1)
C0220825 (UMLS CUI-2)
C0220825 (UMLS CUI-2)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
Ability to move
Item
Ability to move
integer
C0344382 (UMLS CUI [1])
Ability to take care of yourself
Item
Ability to take care of yourself
integer
C0580166 (UMLS CUI [1])
Ability to do regular activities
Item
Ability to do regular activities
integer
C0441655 (UMLS CUI [1,1])
C0085732 (UMLS CUI [1,2])
C0085732 (UMLS CUI [1,2])
pain or inconvenience
Item
Do you have a pain or have an inconvenience?
integer
C0030193 (UMLS CUI [1])
Do you feel worried or sad?
Item
Do you feel worried or sad?
integer
C2987511 (UMLS CUI [1])
VAS
Item
VAS
integer
C2732809 (UMLS CUI [1])
Item Group
Background issues regarding socio-emotional and practical support to Parents / Guardians
C1521721 (UMLS CUI-1)
C0600015 (UMLS CUI-2)
C0030551 (UMLS CUI-3)
C0600015 (UMLS CUI-2)
C0030551 (UMLS CUI-3)
Date of assessment
Item
Date of assessment:
date
C0034394 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
CL Item
Mom (1)
CL Item
Dad (2)
CL Item
Both parents (3)
CL Item
Other (4)
help from relatives
Item
1.A How much help do you get from parents / guardians from close associates around your / yours children?
integer
C1521721 (UMLS CUI [1,1])
C0581904 (UMLS CUI [1,2])
C0581904 (UMLS CUI [1,2])
satisfied with this amount of help from relatives
Item
1.B How satisfied are you / you as parents / guardians with this amount of help from related?
integer
C0581904 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,2])
help from non-family members eg friends
Item
2.A How much help do you / you receive as parents / guardians from non-family members eg friends?
integer
C0557462 (UMLS CUI [1])
satisfied with this amount of help from non-family members
Item
2.B How satisfied are you / you as parents / guardians with this amount of help from non-family members around your / your child?
integer
C0557462 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
C0242428 (UMLS CUI [1,2])
Item
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
integer
C0337606 (UMLS CUI [1])
Code List
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
CL Item
Very difficult (1)
CL Item
Difficult (2)
CL Item
Sometimes easy / sometimes difficult (3)
CL Item
Easy (4)
CL Item
Very easy (5)