ID

28108

Descripción

Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry Source: https://old.liu.se/habq/habq-formular-cp?l=sv Registry owner:Gunilla Rydberg, HabQ, Region Skåne, Child and youth rehabilitation, Skåne University Hospital (SUS), 205 02 Malmö gunilla.rydberg@skane.se Copyright:old.liu.se (habq) 9 year follow up Health monitoring of children and adolescents with Cerebral Palsy

Link

https://old.liu.se/habq/habq-formular-cp?l=sv

Palabras clave

Versiones (1)
  1. 18/12/17 18/12/17 -
Titular de derechos de autor

old.liu.se (habq)

Subido en

18 de diciembre de 2017

DOI

Para solicitar uno, por favor iniciar sesión.

Licencia

Creative Commons BY-NC 3.0
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Child and Adolescent Habilitation (cerebral palsy) Swedish National Quality Registry

Inglés ( localization.languageCode.US ) Sueco

9 year follow up Health monitoring of children and adolescents with Cerebral Palsy

1 formularios  
9 year follow up Health monitoring of children and adolescents with Cerebral Palsy
Descripción

9 year follow up Health monitoring of children and adolescents with Cerebral Palsy

Alias
UMLS CUI-1
C0007789
UMLS CUI-2
C1522577
UMLS CUI-3
C0017313
UMLS CUI-4
C0030695
Study ID
Descripción

Study ID

Tipo de datos

text

Alias
UMLS CUI [1]
C2348585
name
Descripción

name

Tipo de datos

text

Alias
UMLS CUI [1]
C0027365
ID-nr Compos
Descripción

ID-nr Compos

Tipo de datos

text

rehabilitation unit
Descripción

rehabilitation unit

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0018704
UMLS CUI [1,2]
C0034991
UMLS CUI [1,3]
C1549700
Demography
Descripción

Demography

Alias
UMLS CUI-1
C0011298
UMLS CUI-2
C1955348
Date of data collection
Descripción

Date of data collection

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0010995
UMLS CUI [1,2]
C0011008
Interpreters were used in data collection
Descripción

Interpreters were used in data collection

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0150646
UMLS CUI [1,2]
C0010995
Family, Mother is biological parent
Descripción

Family, Mother is biological parent

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0026591
UMLS CUI [1,2]
C0337465
Year of birth mother
Descripción

Year of birth mother

Tipo de datos

integer

Alias
UMLS CUI [1]
C2319404
Family, Father is biological parent
Descripción

Family, Father is biological parent

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0015671
UMLS CUI [1,2]
C0337465
Year of birth father
Descripción

Year of birth father

Tipo de datos

integer

Alias
UMLS CUI [1]
C2136977
Mother is born in another country
Descripción

Mother is born in another country

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1300001
UMLS CUI [1,2]
C0026591
Mother immigrated from
Descripción

Mother immigrated from

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0026591
UMLS CUI [1,2]
C0020942
UMLS CUI [1,3]
C0454664
Mother came to Sweden year
Descripción

Mother came to Sweden year

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0020942
UMLS CUI [1,2]
C0038995
UMLS CUI [1,3]
C0026591
Mother needs an interpreter
Descripción

Mother needs an interpreter

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0150646
UMLS CUI [1,2]
C0026591
The father was born in another country
Descripción

The father was born in another country

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1300001
UMLS CUI [1,2]
C0015671
The father immigrated from
Descripción

The father immigrated from

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0015671
UMLS CUI [1,2]
C0020942
UMLS CUI [1,3]
C0454664
The father came to Sweden year
Descripción

The father came to Sweden year

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0020942
UMLS CUI [1,2]
C0038995
UMLS CUI [1,3]
C0015671
The father needs an interpreter
Descripción

The father needs an interpreter

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0150646
UMLS CUI [1,2]
C0015671
The child lives with
Descripción

The child lives with

Tipo de datos

integer

Alias
UMLS CUI [1]
C2184149
Other accommodation
Descripción

Other accommodation

Tipo de datos

text

Alias
UMLS CUI [1]
C2184149
Sibling
Descripción

Sibling

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0037047
Sibling's birth year
Descripción

Sibling's birth year

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0037047
UMLS CUI [1,2]
C2826771
Community Outreach
Descripción

Community Outreach

Alias
UMLS CUI-1
C0009482
UMLS CUI-2
C0037438
UMLS CUI-3
C1521721
Social support, Care contribution
Descripción

Social support, Care contribution

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0037438
How much care allowance
Descripción

care allowance

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0017313
UMLS CUI [1,2]
C0556660
Actions according to SoL
Descripción

Actions according to SoL

Tipo de datos

boolean

What actions according to SoL
Descripción

What actions according to SoL

Tipo de datos

text

Actions according to LSS 9§
Descripción

Actions according to LSS 9§

Tipo de datos

boolean

If yes, check which ones Advice and other personal support
Descripción

Advice and other personal support

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1521721
Personal Assistant
Descripción

Personal Assistant

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0401893
Personal Assistant Number of hours / week
Descripción

Personal Assistant Number of hours / week

Tipo de datos

integer

Alias
UMLS CUI [1]
C0401893
Attendant Service
Descripción

Attendant Service

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0554205
UMLS CUI [1,2]
C1521721
Contact
Descripción

Contact

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0337611
UMLS CUI [1,2]
C1521721
Relief service at home
Descripción

Relief service at home

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1521721
UMLS CUI [1,2]
C0442519
Short-term stay outside of home
Descripción

Short-term stay outside of home

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0034993
UMLS CUI [1,2]
C0023303
Short-term supervision for schoolchildren over 12 years
Descripción

Short-term supervision for schoolchildren over 12 years

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0038842
UMLS CUI [1,2]
C0008059
Accommodation in a family home or in a residence with special service for children and adolescents
Descripción

Accommodation

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0595920
Personal assistance according to LASS
Descripción

Personal assistance according to LASS

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1521721
Number of hours / week personal assistant according to LASS
Descripción

Number of hours / week personal assistant according to LASS

Tipo de datos

integer

Alias
UMLS CUI [1]
C1521721
Coordinated plan according to SOFS§2008: 20
Descripción

Coordinated plan according to SOFS§2008: 20

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0178916
UMLS CUI [1,2]
C1521721
Transportation service
Descripción

Transportation service

Tipo de datos

boolean

Alias
UMLS CUI [1]
C2003850
car allowance
Descripción

car allowance

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0556660
UMLS CUI [1,2]
C0004381
Individual plan according to LSS 10§
Descripción

Individual plan according to LSS 10§

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0178916
UMLS CUI [1,2]
C1521721
HSL Habilitation Plan
Descripción

HSL Habilitation Plan

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0018459
UMLS CUI [1,2]
C0178916
UMLS CUI [1,3]
C1521721
Coordinated Individual Plan (SIP)
Descripción

Coordinated Individual Plan (SIP)

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0178916
UMLS CUI [1,2]
C1521721
School
Descripción

School

Alias
UMLS CUI-1
C0036375
UMLS CUI-2
C1521721
Stay daytime: School / leisure
Descripción

School / leisure

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0086542
UMLS CUI [1,2]
C0023292
UMLS CUI [1,3]
C0332169
Stay daytime: Elementary school
Descripción

Elementary school

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0683859
UMLS CUI [1,2]
C0332169
Stay daytime: special needs elementary school
Descripción

special needs elementary school

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0557805
UMLS CUI [1,2]
C0683859
UMLS CUI [1,3]
C0332169
Stay daytime: special needs school
Descripción

special needs school

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0557805
UMLS CUI [1,2]
C0332169
school childcare/leisure
Descripción

school childcare/leisure

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0036375
UMLS CUI [1,2]
C0683807
UMLS CUI [2]
C0023292
Additional resources in school / childcare
Descripción

Additional resources

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0035201
UMLS CUI [1,2]
C0036375
UMLS CUI [2]
C0683807
If yes, what: Support of special educator / specialist teacher
Descripción

Support of specialist teacher

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0221457
UMLS CUI [1,2]
C0871403
UMLS CUI [2]
C1521721
If yes, what: Assistant / resource appointed by preschool / school
Descripción

Assistant

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0401893
UMLS CUI [2]
C1521721
If yes, what: Personal Assistance according to LSS / LASS
Descripción

Personal Assistance according to LSS

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0401893
UMLS CUI [1,2]
C1521721
leisure / free time
Descripción

leisure / free time

Alias
UMLS CUI-1
C0023292
UMLS CUI-2
C0683585
Does the child participate in any recreational activities?
Descripción

participate in any recreational activities

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0023292
If yes, what activities
Descripción

type of activities

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0023292
UMLS CUI [1,2]
C0332307
How often?
Descripción

recreational activities how often

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0023292
UMLS CUI [1,2]
C3898838
Does the child meet other children / young people during their free time to play or hang out?
Descripción

meet other children to play or hang out

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0023292
UMLS CUI [1,2]
C0079382
If yes, how often?
Descripción

meet friends how often

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0023292
UMLS CUI [1,2]
C0079382
UMLS CUI [1,3]
C3898838
Friends Network
Descripción

Friends Network

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0150775
UMLS CUI [1,2]
C0079382
Medical background data
Descripción

Medical background data

Alias
UMLS CUI-1
C0262926
UMLS CUI-2
C0007789
Date of data collection:
Descripción

Date of data collection:

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0010995
UMLS CUI [1,2]
C0011008
Interpreters were used in data collection
Descripción

Interpreters were used in data collection

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0150646
UMLS CUI [1,2]
C0010995
Spastic Bilateral Diplegia (= G80.1) ?
Descripción

Spastic Bilateral Diplegia

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0270804
UMLS CUI [1,2]
C0238767
Spastic Unilateral Hemiplegia (=G80.2) ?
Descripción

Spastic Unilateral Hemiplegia

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0270804
UMLS CUI [1,2]
C0205092
Dyskinetic (=G80.3) ?
Descripción

dyskinetic

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0013384
Dyskinetic Tonic Change (=G80.3A) ?
Descripción

Dyskinetic Tonic Change

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0013384
UMLS CUI [1,2]
C1836825
Dyskinetic Koreo-atetos (=G80.3B) ?
Descripción

Dyskinetic

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0013384
Ataxia (=G80.4) ?
Descripción

ataxia

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0004134
Spastic Bilateral Tetraplegia (=G80.8) ?
Descripción

Spastic Bilateral Tetraplegia

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0837207
UMLS CUI [1,2]
C0238767
CP other (=G80.9)
Descripción

CP other

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0007789
= GMFCS (I - V):
Descripción

GMFCS

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0677549
UMLS CUI [1,2]
C0456079
CT / MR brain
Descripción

CT / MR brain

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0412585
UMLS CUI [2]
C0412675
Date of X-ray
Descripción

Date of X-ray

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0011923
UMLS CUI [1,2]
C0011008
result diagnostic imaging
Descripción

result diagnostic imaging

Tipo de datos

text

Alias
UMLS CUI [1,1]
C1274040
UMLS CUI [1,2]
C0011923
Prenatal damage
Descripción

Prenatal damage

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0270611
UMLS CUI [1,2]
C2735348
Perinatal damage
Descripción

Perinatal damage

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0270611
UMLS CUI [1,2]
C0178795
Postnatal damage
Descripción

Postnatal damage

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0270611
UMLS CUI [1,2]
C0443281
Unclear time
Descripción

Unclear time

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0270611
UMLS CUI [1,2]
C2348792
UMLS CUI [1,3]
C3845108
Additional handicap
Descripción

Additional handicap

Alias
UMLS CUI-1
C0262926
UMLS CUI-2
C0520817
UMLS CUI-3
C0009488
Sight:
Descripción

Sight

Tipo de datos

integer

Alias
UMLS CUI [1]
C3665347
Hearing:
Descripción

Hearing

Tipo de datos

integer

Alias
UMLS CUI [1]
C1384666
Language / speech impairments
Descripción

Language / speech impairments

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0233715
UMLS CUI [1,2]
C0564649
Dysphagia / difficulty swallowing
Descripción

Dysphagia / difficulty swallowing

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0973461
UMLS CUI [2]
C0566355
Epilepsy (OBS diagnosis above)
Descripción

Epilepsy

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0014544
Therapeutic resistance > 1g / month, despite 2 years of treatment
Descripción

resistant to therapy

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0332325
UMLS CUI [1,2]
C0087111
Autism
Descripción

Autism

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0004352
Autism Spectrum Disorders
Descripción

Autism Spectrum Disorders

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1510586
Bladder function: Incontinence
Descripción

Incontinence

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0021167
Bladder function: emptying disorder
Descripción

emptying disorder

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0429805
Gastrointestinal function: intestinal incontinence
Descripción

intestinal incontinence

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0021167
UMLS CUI [1,2]
C0516983
Gastrointestinal function: Constipation
Descripción

Constipation

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0009806
dislocated hip (clicky hips)
Descripción

dislocated hip

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0019554
dislocated hip bilateral
Descripción

dislocated hip bilateral

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0019554
UMLS CUI [1,2]
C0238767
dislocated hip: scoliosis
Descripción

scoliosis

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0036439
UMLS CUI [2]
C0019554
dislocated hip: Degree
Descripción

dislocated hip degree

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0019554
UMLS CUI [1,2]
C0439792
Gastrostomy / tube
Descripción

Gastrostomy / tube

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0017196
UMLS CUI [2]
C0041281
Date of data collection:
Descripción

Date of data collection

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0010995
UMLS CUI [1,2]
C0011008
height
Descripción

height

Tipo de datos

integer

Unidades de medida
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Weight
Descripción

Weight

Tipo de datos

float

Unidades de medida
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Attention to daily life
Descripción

Attention to daily life

Alias
UMLS CUI-1
C0001288
UMLS CUI-2
C0004268
UMLS CUI-3
C1521721
UMLS CUI-4
C0007789
Date of data collection
Descripción

Date of data collection

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0010995
UMLS CUI [1,2]
C0011008
Interpreters were used in data collection
Descripción

Interpreters were used in data collection

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0150646
UMLS CUI [1,2]
C0010995
At home or in preschool: To maintain attention (d160 according to ICF)
Descripción

attention in school activities

Tipo de datos

integer

Alias
UMLS CUI [1]
C0004268
activities
Descripción

activities

Alias
UMLS CUI-1
C0001288
UMLS CUI-2
C1521721
UMLS CUI-3
C0007789
Date of data collection
Descripción

Date of data collection

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0010995
UMLS CUI [1,2]
C0011008
Interpreters were used in data collection
Descripción

Interpreters were used in data collection

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0150646
UMLS CUI [1,2]
C0010995
Manual Ability Classification System (MACS)
Descripción

Manual Ability

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0175674
UMLS CUI [1,2]
C0085732
UMLS CUI [1,3]
C0008902
Gross Motor Function Classification System (GMFCS-ER)
Descripción

Gross Motor Function Classification System (GMFCS-ER)

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0677549
UMLS CUI [1,2]
C0456079
GMFM-66 not tested because of
Descripción

GMFM-66 not tested

Tipo de datos

integer

Alias
UMLS CUI [1]
C0677549
Gross Motor Function Measure (GMFM-66) score
Descripción

Gross Motor Function Measure (GMFM-66) score

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0677549
UMLS CUI [1,2]
C0449820
GMFM-66 confidence interval (95 percent) lower than
Descripción

GMFM

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0677549
UMLS CUI [1,2]
C0009667
GMFM-66 confidence interval (95 percent) higher than
Descripción

GMFM

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0677549
UMLS CUI [1,2]
C0009667
Pediatric Evaluation of Disability Inventory (PEDI)
Descripción

Pediatric Evaluation of Disability Inventory (PEDI)

Alias
UMLS CUI-1
C0012605
UMLS CUI-2
C1521725
Date of data collection
Descripción

Date of data collection

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0010995
UMLS CUI [1,2]
C0011008
Interpreters were used in data collection
Descripción

Interpreters were used in data collection

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0150646
UMLS CUI [1,2]
C0010995
PEDI not tested because of
Descripción

Pediatric Evaluation of Disability

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0012605
UMLS CUI [1,2]
C1521725
Functional skills
Descripción

Functional skills

Alias
UMLS CUI-1
C0678856
UMLS CUI-2
C1518965
UMLS CUI-3
C0007789
Personal care raw score
Descripción

Personal care score

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0563471
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Functional skills Personal care scale score
Descripción

Personal care scale score

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0563471
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Functional skills Personal care Average mean error (1 SE)
Descripción

Personal care Average mean error

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0563471
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C1710181
mobility score
Descripción

mobility score

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0449580
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
mobility scale score
Descripción

mobility scale score

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0449580
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
mobility Average mean error (1 SE)
Descripción

mobility Average mean error

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0449580
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C1710181
Social ability raw score
Descripción

Social ability score

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0679005
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Social ability scale score
Descripción

Social ability scale score

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0679005
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Social ability Average mean error
Descripción

Social ability Average mean error

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0679005
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C1710181
Help Requirements
Descripción

Help Requirements

Alias
UMLS CUI-1
C1521721
UMLS CUI-2
C1514873
UMLS CUI-3
C0007789
help Requirements
Descripción

help Requirements

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C1521721
UMLS CUI [1,2]
C1514873
UMLS CUI [1,3]
C0007789
Personal care raw score
Descripción

Personal care score

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0563471
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Functional skills Personal care scale score
Descripción

Personal care scale score

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0563471
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Functional skills Personal care Average mean error (1 SE)
Descripción

Personal care Average mean error

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0563471
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C1710181
mobility score
Descripción

mobility score

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0449580
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
mobility scale score
Descripción

mobility scale score

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0449580
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
mobility Average mean error (1 SE)
Descripción

mobility Average mean error

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0449580
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C1710181
Social ability raw score
Descripción

Social ability score

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0679005
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Social ability scale score
Descripción

Social ability scale score

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0679005
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C0449820
Social ability Average mean error
Descripción

Social ability Average mean error

Tipo de datos

float

Alias
UMLS CUI [1,1]
C0679005
UMLS CUI [1,2]
C1518965
UMLS CUI [1,3]
C1710181
Number of adjustments: Personal care
Descripción

adjustments Personal care

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0376209
UMLS CUI [1,2]
C0563471
Number of adjustments: mobility
Descripción

adjustments mobility

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0376209
UMLS CUI [1,2]
C0449580
Number of adjustments: Social ability
Descripción

adjustments Social ability

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0376209
UMLS CUI [1,2]
C0679005
General self-assessed health
Descripción

General self-assessed health

Alias
UMLS CUI-1
C0516984
UMLS CUI-2
C0220825
Date of data collection
Descripción

Date of data collection

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0010995
UMLS CUI [1,2]
C0011008
Ability to move
Descripción

1-3

Tipo de datos

integer

Alias
UMLS CUI [1]
C0344382
Ability to take care of yourself
Descripción

1-3

Tipo de datos

integer

Alias
UMLS CUI [1]
C0580166
Ability to do regular activities
Descripción

1-3

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0441655
UMLS CUI [1,2]
C0085732
Do you have a pain or have an inconvenience?
Descripción

1-3

Tipo de datos

integer

Alias
UMLS CUI [1]
C0030193
Do you feel worried or sad?
Descripción

1-3

Tipo de datos

integer

Alias
UMLS CUI [1]
C2987511
VAS
Descripción

VAS

Tipo de datos

integer

Alias
UMLS CUI [1]
C2732809
Background issues regarding socio-emotional and practical support to Parents / Guardians
Descripción

Background issues regarding socio-emotional and practical support to Parents / Guardians

Alias
UMLS CUI-1
C1521721
UMLS CUI-2
C0600015
UMLS CUI-3
C0030551
Date of assessment:
Descripción

Date of assessment

Tipo de datos

date

Alias
UMLS CUI [1,1]
C0034394
UMLS CUI [1,2]
C0011008
Form Answered by:
Descripción

Form Answered by

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0034394
UMLS CUI [1,2]
C0508431
1.A How much help do you get from parents / guardians from close associates around your / yours children?
Descripción

help from relatives

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C1521721
UMLS CUI [1,2]
C0581904
1.B How satisfied are you / you as parents / guardians with this amount of help from related?
Descripción

satisfied with this amount of help from relatives

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0581904
UMLS CUI [1,2]
C0242428
2.A How much help do you / you receive as parents / guardians from non-family members eg friends?
Descripción

help from non-family members eg friends

Tipo de datos

integer

Alias
UMLS CUI [1]
C0557462
2.B How satisfied are you / you as parents / guardians with this amount of help from non-family members around your / your child?
Descripción

satisfied with this amount of help from non-family members

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0557462
UMLS CUI [1,2]
C0242428
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
Descripción

babysitter

Tipo de datos

integer

Alias
UMLS CUI [1]
C0337606
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Similar models

9 year follow up Health monitoring of children and adolescents with Cerebral Palsy

1 formularios
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
9 year follow up Health monitoring of children and adolescents with Cerebral Palsy
C0007789 (UMLS CUI-1)
C1522577 (UMLS CUI-2)
C0017313 (UMLS CUI-3)
C0030695 (UMLS CUI-4)
Study ID
Item
Study ID
text
C2348585 (UMLS CUI [1])
name
Item
name
text
C0027365 (UMLS CUI [1])
ID-nr Compos
Item
ID-nr Compos
text
rehabilitation unit
Item
rehabilitation unit
text
C0018704 (UMLS CUI [1,1])
C0034991 (UMLS CUI [1,2])
C1549700 (UMLS CUI [1,3])
Item Group
Demography
C0011298 (UMLS CUI-1)
C1955348 (UMLS CUI-2)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Family, Mother is biological parent
Item
Family, Mother is biological parent
boolean
C0026591 (UMLS CUI [1,1])
C0337465 (UMLS CUI [1,2])
Year of birth mother
Item
Year of birth mother
integer
C2319404 (UMLS CUI [1])
Family, Father is biological parent
Item
Family, Father is biological parent
boolean
C0015671 (UMLS CUI [1,1])
C0337465 (UMLS CUI [1,2])
Year of birth father
Item
Year of birth father
integer
C2136977 (UMLS CUI [1])
Mother is born in another country
Item
Mother is born in another country
boolean
C1300001 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
Mother immigrated from
Item
Mother immigrated from
text
C0026591 (UMLS CUI [1,1])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
Mother came to Sweden year
Item
Mother came to Sweden year
integer
C0020942 (UMLS CUI [1,1])
C0038995 (UMLS CUI [1,2])
C0026591 (UMLS CUI [1,3])
Mother needs an interpreter
Item
Mother needs an interpreter
boolean
C0150646 (UMLS CUI [1,1])
C0026591 (UMLS CUI [1,2])
The father was born in another country
Item
The father was born in another country
boolean
C1300001 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
The father immigrated from
Item
The father immigrated from
text
C0015671 (UMLS CUI [1,1])
C0020942 (UMLS CUI [1,2])
C0454664 (UMLS CUI [1,3])
The father came to Sweden year
Item
The father came to Sweden year
integer
C0020942 (UMLS CUI [1,1])
C0038995 (UMLS CUI [1,2])
C0015671 (UMLS CUI [1,3])
The father needs an interpreter
Item
The father needs an interpreter
boolean
C0150646 (UMLS CUI [1,1])
C0015671 (UMLS CUI [1,2])
Item
The child lives with
integer
C2184149 (UMLS CUI [1])
The child lives with
Code List
The child lives with
CL Item
Both parents (1)
CL Item
The mother (2)
CL Item
The father (3)
CL Item
Exchange Housing (4)
Other accommodation
Item
Other accommodation
text
C2184149 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Sibling's birth year
Item
Sibling's birth year
integer
C0037047 (UMLS CUI [1,1])
C2826771 (UMLS CUI [1,2])
Item Group
Community Outreach
C0009482 (UMLS CUI-1)
C0037438 (UMLS CUI-2)
C1521721 (UMLS CUI-3)
Social support, Care contribution
Item
Social support, Care contribution
boolean
C0037438 (UMLS CUI [1])
Item
How much care allowance
integer
C0017313 (UMLS CUI [1,1])
C0556660 (UMLS CUI [1,2])
How much care allowance
Code List
How much care allowance
CL Item
25% (1)
CL Item
50% (2)
CL Item
75% (3)
CL Item
100% (4)
Actions according to SoL
Item
Actions according to SoL
boolean
What actions according to SoL
Item
What actions according to SoL
text
Actions according to LSS 9§
Item
Actions according to LSS 9§
boolean
Advice and other personal support
Item
If yes, check which ones Advice and other personal support
boolean
C1521721 (UMLS CUI [1])
Personal Assistant
Item
Personal Assistant
boolean
C0401893 (UMLS CUI [1])
Item
Personal Assistant Number of hours / week
integer
C0401893 (UMLS CUI [1])
Personal Assistant Number of hours / week
Code List
Personal Assistant Number of hours / week
CL Item
less than 10 (1)
CL Item
> 10-20 (2)
CL Item
> 20-40 (3)
CL Item
more than 40 (4)
Attendant Service
Item
Attendant Service
boolean
C0554205 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Contact
Item
Contact
boolean
C0337611 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Relief service at home
Item
Relief service at home
boolean
C1521721 (UMLS CUI [1,1])
C0442519 (UMLS CUI [1,2])
Short-term stay outside of home
Item
Short-term stay outside of home
boolean
C0034993 (UMLS CUI [1,1])
C0023303 (UMLS CUI [1,2])
Short-term supervision for schoolchildren over 12 years
Item
Short-term supervision for schoolchildren over 12 years
boolean
C0038842 (UMLS CUI [1,1])
C0008059 (UMLS CUI [1,2])
Accommodation
Item
Accommodation in a family home or in a residence with special service for children and adolescents
boolean
C0595920 (UMLS CUI [1])
Personal assistance according to LASS
Item
Personal assistance according to LASS
boolean
C1521721 (UMLS CUI [1])
Item
Number of hours / week personal assistant according to LASS
integer
C1521721 (UMLS CUI [1])
Number of hours / week personal assistant according to LASS
Code List
Number of hours / week personal assistant according to LASS
CL Item
20-40  (1)
CL Item
41-60 (2)
CL Item
more than 60 (3)
Coordinated plan according to SOFS§2008: 20
Item
Coordinated plan according to SOFS§2008: 20
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Transportation service
Item
Transportation service
boolean
C2003850 (UMLS CUI [1])
car allowance
Item
car allowance
boolean
C0556660 (UMLS CUI [1,1])
C0004381 (UMLS CUI [1,2])
Individual plan according to LSS 10§
Item
Individual plan according to LSS 10§
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
HSL Habilitation Plan
Item
HSL Habilitation Plan
boolean
C0018459 (UMLS CUI [1,1])
C0178916 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
Coordinated Individual Plan (SIP)
Item
Coordinated Individual Plan (SIP)
boolean
C0178916 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Item Group
School
C0036375 (UMLS CUI-1)
C1521721 (UMLS CUI-2)
School / leisure
Item
Stay daytime: School / leisure
boolean
C0086542 (UMLS CUI [1,1])
C0023292 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])
Elementary school
Item
Stay daytime: Elementary school
boolean
C0683859 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
special needs elementary school
Item
Stay daytime: special needs elementary school
boolean
C0557805 (UMLS CUI [1,1])
C0683859 (UMLS CUI [1,2])
C0332169 (UMLS CUI [1,3])
special needs school
Item
Stay daytime: special needs school
boolean
C0557805 (UMLS CUI [1,1])
C0332169 (UMLS CUI [1,2])
school childcare/leisure
Item
school childcare/leisure
boolean
C0036375 (UMLS CUI [1,1])
C0683807 (UMLS CUI [1,2])
C0023292 (UMLS CUI [2])
Additional resources
Item
Additional resources in school / childcare
boolean
C0035201 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C0683807 (UMLS CUI [2])
Support of specialist teacher
Item
If yes, what: Support of special educator / specialist teacher
boolean
C0221457 (UMLS CUI [1,1])
C0871403 (UMLS CUI [1,2])
C1521721 (UMLS CUI [2])
Assistant
Item
If yes, what: Assistant / resource appointed by preschool / school
boolean
C0401893 (UMLS CUI [1])
C1521721 (UMLS CUI [2])
Personal Assistance according to LSS
Item
If yes, what: Personal Assistance according to LSS / LASS
boolean
C0401893 (UMLS CUI [1,1])
C1521721 (UMLS CUI [1,2])
Item Group
leisure / free time
C0023292 (UMLS CUI-1)
C0683585 (UMLS CUI-2)
participate in any recreational activities
Item
Does the child participate in any recreational activities?
boolean
C0023292 (UMLS CUI [1])
type of activities
Item
If yes, what activities
text
C0023292 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Item
How often?
integer
C0023292 (UMLS CUI [1,1])
C3898838 (UMLS CUI [1,2])
How often?
Code List
How often?
CL Item
one or more times / week (1)
CL Item
one or more times / month (2)
CL Item
more rarely (3)
meet other children to play or hang out
Item
Does the child meet other children / young people during their free time to play or hang out?
boolean
C0023292 (UMLS CUI [1,1])
C0079382 (UMLS CUI [1,2])
Item
If yes, how often?
integer
C0023292 (UMLS CUI [1,1])
C0079382 (UMLS CUI [1,2])
C3898838 (UMLS CUI [1,3])
How often?
Code List
If yes, how often?
CL Item
one or more times / week (1)
CL Item
one or more times / month (2)
CL Item
more rarely (3)
Item
Friends Network
integer
C0150775 (UMLS CUI [1,1])
C0079382 (UMLS CUI [1,2])
Friends Network
Code List
Friends Network
CL Item
1 friend (1)
CL Item
2-3 friends (2)
CL Item
4 friends or more (3)
Item Group
Medical background data
C0262926 (UMLS CUI-1)
C0007789 (UMLS CUI-2)
Date of data collection:
Item
Date of data collection:
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Spastic Bilateral Diplegia
Item
Spastic Bilateral Diplegia (= G80.1) ?
boolean
C0270804 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
Spastic Unilateral Hemiplegia
Item
Spastic Unilateral Hemiplegia (=G80.2) ?
boolean
C0270804 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])
dyskinetic
Item
Dyskinetic (=G80.3) ?
boolean
C0013384 (UMLS CUI [1])
Dyskinetic Tonic Change
Item
Dyskinetic Tonic Change (=G80.3A) ?
boolean
C0013384 (UMLS CUI [1,1])
C1836825 (UMLS CUI [1,2])
Dyskinetic
Item
Dyskinetic Koreo-atetos (=G80.3B) ?
boolean
C0013384 (UMLS CUI [1])
ataxia
Item
Ataxia (=G80.4) ?
boolean
C0004134 (UMLS CUI [1])
Spastic Bilateral Tetraplegia
Item
Spastic Bilateral Tetraplegia (=G80.8) ?
boolean
C0837207 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
CP other
Item
CP other (=G80.9)
boolean
C0007789 (UMLS CUI [1])
GMFCS
Item
= GMFCS (I - V):
integer
C0677549 (UMLS CUI [1,1])
C0456079 (UMLS CUI [1,2])
CT / MR brain
Item
CT / MR brain
boolean
C0412585 (UMLS CUI [1])
C0412675 (UMLS CUI [2])
Date of X-ray
Item
Date of X-ray
date
C0011923 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
result diagnostic imaging
Item
result diagnostic imaging
text
C1274040 (UMLS CUI [1,1])
C0011923 (UMLS CUI [1,2])
Prenatal damage
Item
Prenatal damage
boolean
C0270611 (UMLS CUI [1,1])
C2735348 (UMLS CUI [1,2])
Perinatal damage
Item
Perinatal damage
boolean
C0270611 (UMLS CUI [1,1])
C0178795 (UMLS CUI [1,2])
Postnatal damage
Item
Postnatal damage
boolean
C0270611 (UMLS CUI [1,1])
C0443281 (UMLS CUI [1,2])
Unclear time
Item
Unclear time
boolean
C0270611 (UMLS CUI [1,1])
C2348792 (UMLS CUI [1,2])
C3845108 (UMLS CUI [1,3])
Item Group
Additional handicap
C0262926 (UMLS CUI-1)
C0520817 (UMLS CUI-2)
C0009488 (UMLS CUI-3)
Item
Sight:
integer
C3665347 (UMLS CUI [1])
Sight:
Code List
Sight:
CL Item
Unknown (1)
CL Item
Cortical Visual Impairment (2)
CL Item
Hemianopsia (3)
CL Item
Visible 0.1-0.3 (4)
CL Item
Blind less than 0.1 (5)
Item
Hearing:
integer
C1384666 (UMLS CUI [1])
Hearing:
Code List
Hearing:
CL Item
Unknown (1)
CL Item
Impaired hearing  (2)
CL Item
Hearing aid (3)
CL Item
Deaf (4)
Language / speech impairments
Item
Language / speech impairments
boolean
C0233715 (UMLS CUI [1,1])
C0564649 (UMLS CUI [1,2])
Dysphagia / difficulty swallowing
Item
Dysphagia / difficulty swallowing
boolean
C0973461 (UMLS CUI [1])
C0566355 (UMLS CUI [2])
Epilepsy
Item
Epilepsy (OBS diagnosis above)
boolean
C0014544 (UMLS CUI [1])
resistant to therapy
Item
Therapeutic resistance > 1g / month, despite 2 years of treatment
boolean
C0332325 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Autism
Item
Autism
boolean
C0004352 (UMLS CUI [1])
Autism Spectrum Disorders
Item
Autism Spectrum Disorders
boolean
C1510586 (UMLS CUI [1])
Incontinence
Item
Bladder function: Incontinence
boolean
C0021167 (UMLS CUI [1])
emptying disorder
Item
Bladder function: emptying disorder
boolean
C0429805 (UMLS CUI [1])
intestinal incontinence
Item
Gastrointestinal function: intestinal incontinence
boolean
C0021167 (UMLS CUI [1,1])
C0516983 (UMLS CUI [1,2])
Constipation
Item
Gastrointestinal function: Constipation
boolean
C0009806 (UMLS CUI [1])
dislocated hip
Item
dislocated hip (clicky hips)
boolean
C0019554 (UMLS CUI [1])
dislocated hip bilateral
Item
dislocated hip bilateral
boolean
C0019554 (UMLS CUI [1,1])
C0238767 (UMLS CUI [1,2])
scoliosis
Item
dislocated hip: scoliosis
boolean
C0036439 (UMLS CUI [1])
C0019554 (UMLS CUI [2])
dislocated hip degree
Item
dislocated hip: Degree
integer
C0019554 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
Gastrostomy / tube
Item
Gastrostomy / tube
boolean
C0017196 (UMLS CUI [1])
C0041281 (UMLS CUI [2])
Date of data collection
Item
Date of data collection:
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
height
Item
height
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight
float
C0005910 (UMLS CUI [1])
Item Group
Attention to daily life
C0001288 (UMLS CUI-1)
C0004268 (UMLS CUI-2)
C1521721 (UMLS CUI-3)
C0007789 (UMLS CUI-4)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Item
At home or in preschool: To maintain attention (d160 according to ICF)
integer
C0004268 (UMLS CUI [1])
At home or in preschool
Code List
At home or in preschool: To maintain attention (d160 according to ICF)
CL Item
No difficulty (1)
CL Item
Easy difficulty (2)
CL Item
Moderate difficulty (3)
CL Item
Great difficulty (4)
CL Item
Total difficulty (5)
CL Item
Not specified (6)
CL Item
Not applicable (7)
Item Group
activities
C0001288 (UMLS CUI-1)
C1521721 (UMLS CUI-2)
C0007789 (UMLS CUI-3)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Manual Ability
Item
Manual Ability Classification System (MACS)
integer
C0175674 (UMLS CUI [1,1])
C0085732 (UMLS CUI [1,2])
C0008902 (UMLS CUI [1,3])
Gross Motor Function Classification System (GMFCS-ER)
Item
Gross Motor Function Classification System (GMFCS-ER)
integer
C0677549 (UMLS CUI [1,1])
C0456079 (UMLS CUI [1,2])
Item
GMFM-66 not tested because of
integer
C0677549 (UMLS CUI [1])
GMFM-66 not tested because of:
Code List
GMFM-66 not tested because of
CL Item
Less than the measuring range (1)
CL Item
Greater than the measuring range (2)
Gross Motor Function Measure (GMFM-66) score
Item
Gross Motor Function Measure (GMFM-66) score
float
C0677549 (UMLS CUI [1,1])
C0449820 (UMLS CUI [1,2])
GMFM
Item
GMFM-66 confidence interval (95 percent) lower than
float
C0677549 (UMLS CUI [1,1])
C0009667 (UMLS CUI [1,2])
GMFM
Item
GMFM-66 confidence interval (95 percent) higher than
float
C0677549 (UMLS CUI [1,1])
C0009667 (UMLS CUI [1,2])
Item Group
Pediatric Evaluation of Disability Inventory (PEDI)
C0012605 (UMLS CUI-1)
C1521725 (UMLS CUI-2)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Interpreters were used in data collection
Item
Interpreters were used in data collection
boolean
C0150646 (UMLS CUI [1,1])
C0010995 (UMLS CUI [1,2])
Item
PEDI not tested because of
integer
C0012605 (UMLS CUI [1,1])
C1521725 (UMLS CUI [1,2])
PEDI not tested because of:
Code List
PEDI not tested because of
CL Item
Less than the measuring range (1)
CL Item
Greater than the range (2)
Item Group
Functional skills
C0678856 (UMLS CUI-1)
C1518965 (UMLS CUI-2)
C0007789 (UMLS CUI-3)
Personal care score
Item
Personal care raw score
integer
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care scale score
Item
Functional skills Personal care scale score
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Average mean error
Item
Functional skills Personal care Average mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility score
Item
mobility score
integer
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility scale score
Item
mobility scale score
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Average mean error
Item
mobility Average mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability score
Item
Social ability raw score
integer
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability scale score
Item
Social ability scale score
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Average mean error
Item
Social ability Average mean error
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Item Group
Help Requirements
C1521721 (UMLS CUI-1)
C1514873 (UMLS CUI-2)
C0007789 (UMLS CUI-3)
Item
help Requirements
integer
C1521721 (UMLS CUI [1,1])
C1514873 (UMLS CUI [1,2])
C0007789 (UMLS CUI [1,3])
help Requirements
Code List
help Requirements
CL Item
total (1)
CL Item
none (2)
Personal care score
Item
Personal care raw score
integer
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care scale score
Item
Functional skills Personal care scale score
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Personal care Average mean error
Item
Functional skills Personal care Average mean error (1 SE)
float
C0563471 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
mobility score
Item
mobility score
integer
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility scale score
Item
mobility scale score
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
mobility Average mean error
Item
mobility Average mean error (1 SE)
float
C0449580 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Social ability score
Item
Social ability raw score
integer
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability scale score
Item
Social ability scale score
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,3])
Social ability Average mean error
Item
Social ability Average mean error
float
C0679005 (UMLS CUI [1,1])
C1518965 (UMLS CUI [1,2])
C1710181 (UMLS CUI [1,3])
Item
Number of adjustments: Personal care
integer
C0376209 (UMLS CUI [1,1])
C0563471 (UMLS CUI [1,2])
Number of adjustments: Personal care
Code List
Number of adjustments: Personal care
CL Item
None (1)
CL Item
General (2)
CL Item
Aids (3)
CL Item
Extensive (4)
Item
Number of adjustments: mobility
integer
C0376209 (UMLS CUI [1,1])
C0449580 (UMLS CUI [1,2])
Number of adjustments: Personal care
Code List
Number of adjustments: mobility
CL Item
None (1)
CL Item
General (2)
CL Item
Aids (3)
CL Item
Extensive (4)
Item
Number of adjustments: Social ability
integer
C0376209 (UMLS CUI [1,1])
C0679005 (UMLS CUI [1,2])
Number of adjustments: Personal care
Code List
Number of adjustments: Social ability
CL Item
None (1)
CL Item
General (2)
CL Item
Aids (3)
CL Item
Extensive (4)
Item Group
General self-assessed health
C0516984 (UMLS CUI-1)
C0220825 (UMLS CUI-2)
Date of data collection
Item
Date of data collection
date
C0010995 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Ability to move
Item
Ability to move
integer
C0344382 (UMLS CUI [1])
Ability to take care of yourself
Item
Ability to take care of yourself
integer
C0580166 (UMLS CUI [1])
Ability to do regular activities
Item
Ability to do regular activities
integer
C0441655 (UMLS CUI [1,1])
C0085732 (UMLS CUI [1,2])
pain or inconvenience
Item
Do you have a pain or have an inconvenience?
integer
C0030193 (UMLS CUI [1])
Do you feel worried or sad?
Item
Do you feel worried or sad?
integer
C2987511 (UMLS CUI [1])
VAS
Item
VAS
integer
C2732809 (UMLS CUI [1])
Item Group
Background issues regarding socio-emotional and practical support to Parents / Guardians
C1521721 (UMLS CUI-1)
C0600015 (UMLS CUI-2)
C0030551 (UMLS CUI-3)
Date of assessment
Item
Date of assessment:
date
C0034394 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Form Answered by:
integer
C0034394 (UMLS CUI [1,1])
C0508431 (UMLS CUI [1,2])
Form Answered by:
Code List
Form Answered by:
CL Item
Mom (1)
CL Item
Dad (2)
CL Item
Both parents (3)
CL Item
Other (4)
help from relatives
Item
1.A How much help do you get from parents / guardians from close associates around your / yours children?
integer
C1521721 (UMLS CUI [1,1])
C0581904 (UMLS CUI [1,2])
satisfied with this amount of help from relatives
Item
1.B How satisfied are you / you as parents / guardians with this amount of help from related?
integer
C0581904 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
help from non-family members eg friends
Item
2.A How much help do you / you receive as parents / guardians from non-family members eg friends?
integer
C0557462 (UMLS CUI [1])
satisfied with this amount of help from non-family members
Item
2.B How satisfied are you / you as parents / guardians with this amount of help from non-family members around your / your child?
integer
C0557462 (UMLS CUI [1,1])
C0242428 (UMLS CUI [1,2])
Item
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
integer
C0337606 (UMLS CUI [1])
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
Code List
3. How easy or difficult do you / you think as a parent / guardian is to arrange a babysitter when you / you want / need it?
CL Item
Very difficult (1)
CL Item
Difficult (2)
CL Item
Sometimes easy / sometimes difficult (3)
CL Item
Easy (4)
CL Item
Very easy (5)
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