ID

27779

Beschreibung

Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. Acute Phase for Registration of Stroke

Link

http://www.riksstroke.org/eng/

Stichworte

Versionen (3)
  1. 23.11.17 23.11.17 -
  2. 29.11.17 29.11.17 -
  3. 20.09.21 20.09.21 -
Rechteinhaber

Riksstroke

Hochgeladen am

29. November 2017

DOI

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Lizenz

Creative Commons BY-NC 3.0
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Swedish Stroke Registry RIKSSTROKE

Englisch Schwedisch

Acute Phase for Registration of Stroke

1 Formulare  
Acute Phase for Registration of Stroke - Personal Information
Beschreibung

Acute Phase for Registration of Stroke - Personal Information

Alias
UMLS CUI-1
C0038454
UMLS CUI-2
C0439557
UMLS CUI-3
C0011900
UMLS CUI-4
C1955348
UMLS CUI-5
C0034975
Personal ID number
Beschreibung

Personal ID number

Datentyp

integer

Alias
UMLS CUI [1]
C2348585
Gender
Beschreibung

Gender

Datentyp

integer

Alias
UMLS CUI [1]
C0079399
Name
Beschreibung

Name

Datentyp

text

Alias
UMLS CUI [1]
C1299487
Date of onset stroke
Beschreibung

Date of onset stroke

Datentyp

date

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0574845
Diagnosis Code (I / G)
Beschreibung

I 61= cerebral haemorrhage I 63= cerebral infarction I 64= acute cerebrovascular illness UNS G 45.x= thrombolytic therapy or thrombectomy for stroke with complete symptom regression within 24 hours after onset (N.B. optional). The decimal x is used only for technical purposes for registration.

Datentyp

text

Alias
UMLS CUI [1,1]
C1550350
UMLS CUI [1,2]
C0038454
Sequence of care
Beschreibung

Sequence of care

Alias
UMLS CUI-1
C0017313
UMLS CUI-2
C0679878
UMLS CUI-3
C0038454
Reporting hospital
Beschreibung

Reporting hospital

Datentyp

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0700287
Reporting Ward/department
Beschreibung

Reporting Ward/department

Datentyp

text

Alias
UMLS CUI [1,1]
C0019961
UMLS CUI [1,2]
C0700287
Completed by (name of person completing this form)
Beschreibung

name of person completing this form

Datentyp

text

Alias
UMLS CUI [1,1]
C1550483
UMLS CUI [1,2]
C0027365
Date deceased (Complete only if patient died during treatment period)
Beschreibung

Date deceased

Datentyp

date

Alias
UMLS CUI [1]
C1148348
Has the patient been admitted for treatment for this stroke episode?
Beschreibung

admitted for treatment for this stroke episode

Datentyp

boolean

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0332189
UMLS CUI [1,3]
C0087111
Was the patient already admitted at the hospital at the time of this stroke episode?
Beschreibung

already admitted at the hospital at the time of this stroke episode

Datentyp

boolean

Alias
UMLS CUI [1,1]
C3489408
UMLS CUI [1,2]
C0038454
UMLS CUI [1,3]
C0332189
Stroke time of onset
Beschreibung

If the patient woke up with symptoms, please state the last time without symptoms. Enter the code "9999" if the time is not known. If the time can only be given to the nearest hour, the minutes should be recorded in the first instance where possible to the nearest whole or half hour, or else enter the code "99" for minutes. If the patient admitted had suffered a stroke and the time of onset is not known, please state where possible the last time without symptoms. If the time of onset is not known, specify the closest possible time interval below.

Datentyp

time

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0449244
Number of hours from onset to arrival at hospital
Beschreibung

If the time of onset is not known (9999) or if only the hour can be given (e.g. 1099), specify the closest possible time interval from onset to arrival at hospital. If the patient woke up with symptoms, please state the last time without symptoms. If the admitted patient had suffered a stroke and the time of onset is not known (the last time without symptoms is not known), choose the closest possible time interval from onset to identification of this stroke episode.

Datentyp

integer

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0449244
UMLS CUI [1,3]
C1320532
UMLS CUI [1,4]
C0449238
Did the patient wake up with symptoms?
Beschreibung

wake up with symptoms

Datentyp

integer

Alias
UMLS CUI [1,1]
C1457887
UMLS CUI [1,2]
C0038454
UMLS CUI [1,3]
C1170730
Thrombolysis alarm “save the brain/stroke alarm”
Beschreibung

(refers to the alarm for thrombolytic therapy if needed)

Datentyp

integer

Alias
UMLS CUI [1,1]
C0040044
UMLS CUI [1,2]
C2956061
Did the patient arrive by ambulance?
Beschreibung

arrive by ambulance

Datentyp

integer

Alias
UMLS CUI [1,1]
C0002422
UMLS CUI [1,2]
C0150390
Initially admitted to another hospital at the time of this stroke episode
Beschreibung

Initially admitted to another hospital at the time of this stroke episode

Datentyp

integer

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0332189
UMLS CUI [1,3]
C0184666
Date of arrival at hospital
Beschreibung

(refers to date of arrival at the hospital where the patient initially received treatment for stroke)

Datentyp

date

Alias
UMLS CUI [1,1]
C3263562
UMLS CUI [1,2]
C0019994
UMLS CUI [1,3]
C0011008
Time of arrival at hospital
Beschreibung

(refers to time of arrival at the hospital where the patient initially received treatment for stroke)

Datentyp

time

Alias
UMLS CUI [1]
C1320532
Date of arrival at stroke unit
Beschreibung

(refers to the first stroke unit where the patient received treatment for this medical event)

Datentyp

date

Alias
UMLS CUI [1,1]
C0587502
UMLS CUI [1,2]
C3263562
UMLS CUI [1,3]
C0011008
Time of arrival at stroke unit
Beschreibung

(refers to time of arrival at the first stroke unit where the patient received treatment for this medical event)

Datentyp

time

Alias
UMLS CUI [1,1]
C0587502
UMLS CUI [1,2]
C3263562
UMLS CUI [1,3]
C0040223
First admitted to a
Beschreibung

First admitted to

Datentyp

integer

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C1704729
First admitted to "Other", please specify
Beschreibung

department admitted to

Datentyp

text

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C1704729
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
Beschreibung

Continued care during the acute phase department

Datentyp

integer

Alias
UMLS CUI [1,1]
C0679878
UMLS CUI [1,2]
C1704729
Continued care during the acute phase department "Other", please specify
Beschreibung

Continued care during the acute phase department

Datentyp

text

Alias
UMLS CUI [1,1]
C0679878
UMLS CUI [1,2]
C1704729
Date of discharge
Beschreibung

Date of discharge

Datentyp

date

Alias
UMLS CUI [1]
C2361123
Number of days at stroke unit, intensive care unit or department of neurosurgery
Beschreibung

(day of admission = day 1) 999 = not known If treatment took place at several units, enter the total treatment time at the stroke unit, intensive care unit or department of neurosurgery.

Datentyp

integer

Alias
UMLS CUI [1]
C4019086
UMLS CUI [2]
C0021708
UMLS CUI [3]
C0587502
UMLS CUI [4]
C1552762
After acute care the patient is discharged to
Beschreibung

After acute care the patient is discharged to

Datentyp

integer

Alias
UMLS CUI [1,1]
C0030685
UMLS CUI [1,2]
C1550391
UMLS CUI [2]
C0679878
Address and phone number of the place to which the patient is discharged
Beschreibung

Address and phone number of the place to which the patient is discharged

Datentyp

text

Alias
UMLS CUI [1]
C1550391
UMLS CUI [2]
C1515258
UMLS CUI [3]
C1442065
UMLS CUI [4]
C0679878
PLANNED REHABILITATION after discharge from ACUTE CARE
Beschreibung

planned rehabilitation after discharge from acute care

Datentyp

integer

Alias
UMLS CUI [1]
C0034991
UMLS CUI [2]
C0679878
Aftercare
Beschreibung

Aftercare

Alias
UMLS CUI-1
C0001758
UMLS CUI-2
C0017313
UMLS CUI-3
C0038454
Date of arrival aftercare
Beschreibung

AFTERCARE refers to institutional care funded by the County Council

Datentyp

date

Alias
UMLS CUI [1,1]
C0001758
UMLS CUI [1,2]
C0808070
Date of discharge Aftercare
Beschreibung

Date of discharge Aftercare

Datentyp

date

Alias
UMLS CUI [1,1]
C0001758
UMLS CUI [1,2]
C2361123
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
Beschreibung

After aftercare the patient is discharged to

Datentyp

integer

Alias
UMLS CUI [1,1]
C0030685
UMLS CUI [1,2]
C1550391
UMLS CUI [2]
C0001758
Address and phone number of the place to which the patient is discharged
Beschreibung

Address and phone number of the place to which the patient is discharged

Datentyp

text

Alias
UMLS CUI [1]
C1550391
UMLS CUI [2]
C1515258
UMLS CUI [3]
C1442065
UMLS CUI [4]
C0001758
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
Beschreibung

planned rehabilitation after discharge from aftercare

Datentyp

integer

Alias
UMLS CUI [1]
C0034991
UMLS CUI [2]
C0001758
ADL/Accommodation BEFORE ONSET of stroke
Beschreibung

ADL/Accommodation BEFORE ONSET of stroke

Alias
UMLS CUI-1
C0595920
UMLS CUI-2
C0038454
UMLS CUI-3
C1955348
Accommodation
Beschreibung

Accommodation

Datentyp

integer

Alias
UMLS CUI [1]
C0595920
Those living alone
Beschreibung

iving alone

Datentyp

integer

Alias
UMLS CUI [1]
C0439044
Need for assistance
Beschreibung

Need for assistance

Datentyp

integer

Alias
UMLS CUI [1,1]
C1521721
UMLS CUI [1,2]
C3840284
Mobility
Beschreibung

Mobility

Datentyp

integer

Alias
UMLS CUI [1]
C0449580
Toilet visits
Beschreibung

Toilet visits

Datentyp

integer

Alias
UMLS CUI [1]
C0562816
Clothes
Beschreibung

Clothes

Datentyp

integer

Alias
UMLS CUI [1]
C0518459
Risk Factors Stroke
Beschreibung

Risk Factors Stroke

Alias
UMLS CUI-1
C0035648
UMLS CUI-2
C0038454
Previous stroke
Beschreibung

Previous stroke

Datentyp

integer

Alias
UMLS CUI [1]
C0559159
Previous TIA / Amaurosis fugax?
Beschreibung

(Does not apply to G45.4 transitory global amnesia)

Datentyp

integer

Alias
UMLS CUI [1]
C0149793
UMLS CUI [2]
C0007787
Auricular fibrillation, previously diagnosed
Beschreibung

(Including intermittent fibrillation or flutter)

Datentyp

integer

Alias
UMLS CUI [1]
C0004238
Auricular fibrillation, recently identified on arrival at hospital or during treatment
Beschreibung

(Including intermittent fibrillation or flutter)

Datentyp

integer

Alias
UMLS CUI [1]
C0004238
Diabetes, previously diagnosed or recently identified
Beschreibung

Diabetes

Datentyp

integer

Alias
UMLS CUI [1]
C0011849
Treated for hypertension at onset of stroke
Beschreibung

Treated for hypertension

Datentyp

integer

Alias
UMLS CUI [1,1]
C0020538
UMLS CUI [1,2]
C0087111
Smoker (>1 cigarette/day, or quit during the last three months)
Beschreibung

Smoker

Datentyp

integer

Alias
UMLS CUI [1]
C0543414
Acute Care/Diagnosis Stroke
Beschreibung

Acute Care/Diagnosis Stroke

Alias
UMLS CUI-1
C0038454
UMLS CUI-2
C0679878
UMLS CUI-3
C0011900
Level of consciousness on arrival at hospital
Beschreibung

Level of consciousness

Datentyp

integer

Alias
UMLS CUI [1]
C0234425
First NIHSS (National Institute of Health Stroke Scale) at admission (within 24 hrs) using Riksstroke's NIHSS form
Beschreibung

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Beschreibung

based on Riksstroke's NIHSS form

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
Has the ability to swallow been tested?
Beschreibung

ability to swallow

Datentyp

integer

Alias
UMLS CUI [1,1]
C0566355
UMLS CUI [1,2]
C0430022
Has the patient been evaluated by a speech therapist for difficulties with speech?
Beschreibung

speech therapist

Datentyp

integer

Alias
UMLS CUI [1,1]
C0233715
UMLS CUI [1,2]
C0679830
UMLS CUI [1,3]
C0402015
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
Beschreibung

evaluated for difficulties with swallowing

Datentyp

integer

Alias
UMLS CUI [1,1]
C0566355
UMLS CUI [1,2]
C0679830
UMLS CUI [1,3]
C0402015
CT brain scan during treatment
Beschreibung

CT brain scan

Datentyp

integer

Alias
UMLS CUI [1]
C0412585
MRI brain scan during treatment
Beschreibung

MRI brain scan

Datentyp

integer

Alias
UMLS CUI [1]
C0412675
If yes, MR brain scan during acute phase:
Beschreibung

MR brain scan result

Datentyp

integer

Alias
UMLS CUI [1,1]
C0412675
UMLS CUI [1,2]
C1274040
Carotid ultrasound performed
Beschreibung

Carotid ultrasound

Datentyp

integer

Alias
UMLS CUI [1]
C0948945
If yes, examination date
Beschreibung

Carotid ultrasound date

Datentyp

date

Alias
UMLS CUI [1,1]
C0948945
UMLS CUI [1,2]
C0011008
CT angiography performed
Beschreibung

(does not refer to CT perfusion)

Datentyp

integer

Alias
UMLS CUI [1]
C1536105
If yes, examination date
Beschreibung

CT angiography date

Datentyp

date

Alias
UMLS CUI [1,1]
C0085532
UMLS CUI [1,2]
C0011008
MR angiography performed
Beschreibung

MR angiography

Datentyp

integer

Alias
UMLS CUI [1]
C0002978
If yes, examination date
Beschreibung

MR angiography date

Datentyp

date

Alias
UMLS CUI [1,1]
C0002978
UMLS CUI [1,2]
C0011008
CT or MR angiography performed of vessels affected
Beschreibung

(always ask a doctor if uncertain about which vessels)

Datentyp

integer

Alias
UMLS CUI [1]
C0002978
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
Beschreibung

Long term ECG

Datentyp

integer

Alias
UMLS CUI [1]
C0430461
Pharmaceutical Treatment
Beschreibung

Pharmaceutical Treatment

Alias
UMLS CUI-1
C0013227
UMLS CUI-2
C0087111
UMLS CUI-3
C0038454
Antihypertensive agents: At onset?
Beschreibung

(applies to all groups, independent of indication)

Datentyp

integer

Alias
UMLS CUI [1]
C0003364
Antihypertensive agents: At discharge?
Beschreibung

Antihypertensive agents

Datentyp

integer

Alias
UMLS CUI [1]
C0003364
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
Beschreibung

Statins

Datentyp

integer

Alias
UMLS CUI [1]
C0360714
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
Beschreibung

Statins

Datentyp

integer

Alias
UMLS CUI [1]
C0360714
ASA (e.g. Trombyl): At onset?
Beschreibung

ASA

Datentyp

integer

Alias
UMLS CUI [1]
C0004057
ASA (e.g. Trombyl): At discharge?
Beschreibung

ASA

Datentyp

integer

Alias
UMLS CUI [1]
C0004057
Clopidogrel (e.g. Plavix): At onset?
Beschreibung

Clopidogrel

Datentyp

integer

Alias
UMLS CUI [1]
C0070166
Clopidogrel (e.g. Plavix): At discharge?
Beschreibung

Clopidogrel

Datentyp

integer

Alias
UMLS CUI [1]
C0070166
ASA + dipyridamole (Asasantin): At onset?
Beschreibung

ASA + dipyridamole

Datentyp

integer

Alias
UMLS CUI [1]
C0626271
ASA + dipyridamole (Asasantin): At discharge?
Beschreibung

ASA + dipyridamole

Datentyp

integer

Alias
UMLS CUI [1]
C0626271
Dipyridamole (Persantin): At onset?
Beschreibung

Dipyridamole

Datentyp

integer

Alias
UMLS CUI [1]
C0012582
Dipyridamole (Persantin): At discharge?
Beschreibung

Dipyridamole

Datentyp

integer

Alias
UMLS CUI [1]
C0012582
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
Beschreibung

Antithrombotic drugs

Datentyp

integer

Alias
UMLS CUI [1]
C1704311
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
Beschreibung

Antithrombotic drugs

Datentyp

integer

Alias
UMLS CUI [1]
C1704311
Warfarin (Waran): At onset?
Beschreibung

Warfarin

Datentyp

integer

Alias
UMLS CUI [1]
C0043031
If yes, treatment with warfarin at onset state PK (INR) value regardless of diagnosis
Beschreibung

9.9= not known

Datentyp

float

Alias
UMLS CUI [1]
C0525032
Apixaban (Eliquis): At onset?
Beschreibung

Apixaban

Datentyp

integer

Alias
UMLS CUI [1]
C1831808
Apixaban (Eliquis): At discharge?
Beschreibung

Apixaban

Datentyp

integer

Alias
UMLS CUI [1]
C1831808
Dabigatran (Pradaxa): At onset?
Beschreibung

Dabigatran

Datentyp

integer

Alias
UMLS CUI [1]
C2348066
Dabigatran (Pradaxa): At discharge?
Beschreibung

Dabigatran

Datentyp

integer

Alias
UMLS CUI [1]
C2348066
Rivaroxaban (Xarelto): At onset?
Beschreibung

Rivaroxaban

Datentyp

integer

Alias
UMLS CUI [1]
C1739768
Rivaroxaban (Xarelto): At discharge?
Beschreibung

Rivaroxaban

Datentyp

integer

Alias
UMLS CUI [1]
C1739768
Peroral anticoagulants other than the above: At onset?
Beschreibung

Peroral anticoagulants

Datentyp

integer

Alias
UMLS CUI [1]
C0354604
Peroral anticoagulants other than the above: At discharge?
Beschreibung

Peroral anticoagulants

Datentyp

integer

Alias
UMLS CUI [1]
C0354604
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
Beschreibung

peroral anticoagulants

Datentyp

integer

Alias
UMLS CUI [1,1]
C0354604
UMLS CUI [1,2]
C0392360
Thrombolysis
Beschreibung

Thrombolysis

Alias
UMLS CUI-1
C0040044
UMLS CUI-2
C0038454
Thrombolysis – performed for stroke e.g. Actilyse
Beschreibung

(if treatment was started but interrupted / not completed please respond using 1= yes)

Datentyp

integer

Alias
UMLS CUI [1]
C0040044
Reason thrombolysis not performed
Beschreibung

Reason thrombolysis not performed

Datentyp

integer

Alias
UMLS CUI [1,1]
C1272236
UMLS CUI [1,2]
C0392360
Start date thrombolytic therapy
Beschreibung

Start date thrombolytic therapy

Datentyp

date

Alias
UMLS CUI [1,1]
C0040044
UMLS CUI [1,2]
C1301880
Start time thrombolytic therapy
Beschreibung

Start time thrombolytic therapy

Datentyp

time

Alias
UMLS CUI [1,1]
C0040044
UMLS CUI [1,2]
C1301880
NIHSS (National Institute of Health Stroke Scale) at thrombolysis start using Riksstroke's NIHSS form
Beschreibung

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Beschreibung

NIHSS based on Riksstroke's NIHSS form

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
NIHSS 24 hours after thrombolysis using Riksstroke's NIHSS form
Beschreibung

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Beschreibung

NIHSS based on Riksstroke's NIHSS form

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
Complete symptom regression after thrombolysis within 24 hours of onset?
Beschreibung

symptom regression

Datentyp

integer

Alias
UMLS CUI [1,1]
C0684320
UMLS CUI [1,2]
C1457887
UMLS CUI [1,3]
C0040044
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
Beschreibung

(Respond using 1=yes only if the patient has clinically deteriorated by 4 points or more on the NIHSS, irrespective of how large an haemorrhage the CT scan shows).

Datentyp

integer

Alias
UMLS CUI [1,1]
C2937358
UMLS CUI [1,2]
C1279889
UMLS CUI [2]
C0040044
Enter Riks-Stroke hospital code where thrombolysis was performed
Beschreibung

888= code for overseas 999= hospital code not known

Datentyp

integer

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C1827636
UMLS CUI [2]
C0040044
Thrombectomy
Beschreibung

Thrombectomy

Alias
UMLS CUI-1
C0162578
UMLS CUI-2
C0038454
Thrombectomy or other catheter-based (endovascular) stroke therapy
Beschreibung

(For intracranial vessels. If treatment was started but interrupted / not completed, please respond using 1= yes)

Datentyp

integer

Alias
UMLS CUI [1]
C0162578
state date of a thrombectomy or other catheter-based (endovascular) therapy
Beschreibung

state date of thrombectomy

Datentyp

date

Alias
UMLS CUI [1,1]
C0162578
UMLS CUI [1,2]
C0808070
state time of a thrombectomy or other catheter-based (endovascular) therapy
Beschreibung

state time of thrombectomy

Datentyp

time

Alias
UMLS CUI [1,1]
C0162578
UMLS CUI [1,2]
C0040223
NIHSS at start of thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
Beschreibung

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Beschreibung

NIHSS based on Riksstroke's NIHSS form

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
NIHSS 24 hours after thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
Beschreibung

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Beschreibung

NIHSS based on Riksstroke's NIHSS form

Datentyp

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
Beschreibung

symptom regression after thrombolysis

Datentyp

integer

Alias
UMLS CUI [1,1]
C0684320
UMLS CUI [1,2]
C1457887
UMLS CUI [2]
C0162578
Enter Riks-Stroke hospital code where the thrombectomy or other catheter-based (endovascular) therapy was performed
Beschreibung

888= code for overseas 999= hospital code not known

Datentyp

integer

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C1827636
UMLS CUI [2]
C0162578
Hemicraniectomy
Beschreibung

Hemicraniectomy

Alias
UMLS CUI-1
C0195897
UMLS CUI-2
C0038454
Hemicraniectomy performed for expansive ischaemic stroke
Beschreibung

Hemicraniectomy

Datentyp

integer

Alias
UMLS CUI [1]
C0195897
Please state date of hemicraniectomy
Beschreibung

date of hemicraniectomy

Datentyp

date

Alias
UMLS CUI [1,1]
C0195897
UMLS CUI [1,2]
C0011008
Enter Riks-Stroke hospital code where thrombolysis was performed
Beschreibung

hospital code

Datentyp

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C1827636
UMLS CUI [2]
C0195897
UMLS CUI [3]
C0040044
Information and Follow-up
Beschreibung

Information and Follow-up

Alias
UMLS CUI-1
C1522577
UMLS CUI-2
C1533716
UMLS CUI-3
C1955348
UMLS CUI-4
C0038454
Smoker informed at onset of need to quit smoking
Beschreibung

Smoker informed of need to quit smoking

Datentyp

integer

Alias
UMLS CUI [1,1]
C1273715
UMLS CUI [1,2]
C1272683
Information provided regarding driving
Beschreibung

Information provided regarding driving

Datentyp

integer

Alias
UMLS CUI [1,1]
C0004379
UMLS CUI [1,2]
C1533716
UMLS CUI [1,3]
C0038454
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
Beschreibung

follow-up appointment

Datentyp

integer

Alias
UMLS CUI [1,1]
C0589121
UMLS CUI [1,2]
C0586344
Rehabilitation
Beschreibung

Rehabilitation

Alias
UMLS CUI-1
C0034991
UMLS CUI-2
C0038454
Did an occupational therapist evaluate the patient after arrival in the ward/department?
Beschreibung

The answer should specify how long after arrival on the ward the patient was evaluated by an occupational therapist. (Does not apply to patients in palliative care, where evaluation can be done by a nurse or doctor). The evaluation should be based on a face-to-face meeting and should determine any need for occupational therapy during the patient's stay in hospital. Evaluation day 1 is counted as of the date of the patient's admission to hospital, irrespective of ward/department. The time spent in the emergency department should not be included. If the patient was already admitted to hospital at the time of the onset of stroke, count day 1 from date of onset. If the patient has come from another hospital, the first evaluation should be recorded as not known if no handover of the occupational therapist's evaluation has taken place.

Datentyp

integer

Alias
UMLS CUI [1,1]
C1444296
UMLS CUI [1,2]
C0028807
Has the patient received occupational therapy?
Beschreibung

occupational therapy

Datentyp

integer

Alias
UMLS CUI [1,1]
C0949766
UMLS CUI [1,2]
C1318464
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
Beschreibung

Non-weekday refers to Saturdays, Sundays and public holidays

Datentyp

integer

Alias
UMLS CUI [1,1]
C0949766
UMLS CUI [1,2]
C1318464
Did a physiotherapist evaluate the patient after arrival in the ward/department?
Beschreibung

The answer should specify how long after arrival on the ward the patient was evaluated by a physiotherapist. (Does not apply to patients in palliative care, where evaluation can be done by a nurse or doctor). The evaluation should be based on a face-to-face meeting and should determine any need for physiotherapy during the patient's stay in hospital. Evaluation day 1 is counted as of the date of the patient's admission to hospital, irrespective of ward/department. The time spent in the emergency department should not be included. If the patient was already admitted to hospital at the time of the onset of stroke, count day 1 from date of onset. If the patient has come from another hospital, the first evaluation should be recorded as not known if no handover of the physiotherapist's evaluation has taken place.

Datentyp

integer

Alias
UMLS CUI [1,1]
C0679830
UMLS CUI [1,2]
C2362565
Has the patient received physiotherapy?
Beschreibung

(Question refers to the total time spent in hospital and also rehab while in hospital.) The answer should specify how much physiotherapy the patient received during the total time spent in hospital. Please note that the time spent by the patient receiving treatment in the rehab ward while in hospital should also be included. The answer should specify the total time on average spent in physiotherapy per day, during that portion of time when treatment for the patient was considered necessary (applies to all 7 days of the week). Physiotherapy refers to evaluation/treatment carried out by a physiotherapist or physiotherapy assistant following transfer of tasks from the physiotherapist. Ongoing assessments during the care event (with the exception of the arrival assessment) are included in the period of treatment. Administration relating to the patient is not included in the period of treatment. - Other influencing factors; e.g. isolation, or patient unavailable due to his/her undergoing examination, are assessed as 3. - Patients unable to respond because of severe cognitive impairment/dementia or aphasia are assessed as 4. - Patients who have neither sensorimotor nor cognitive impairment and who have not received treatment, and also patients in palliative care, are assessed as 5.

Datentyp

integer

Alias
UMLS CUI [1]
C0949766
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
Beschreibung

Non-weekday refers to Saturdays, Sundays and public holidays

Datentyp

integer

Alias
UMLS CUI [1]
C0949766
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Ähnliche Modelle

Acute Phase for Registration of Stroke

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Acute Phase for Registration of Stroke - Personal Information
C0038454 (UMLS CUI-1)
C0439557 (UMLS CUI-2)
C0011900 (UMLS CUI-3)
C1955348 (UMLS CUI-4)
C0034975 (UMLS CUI-5)
Personal ID number
Item
Personal ID number
integer
C2348585 (UMLS CUI [1])
Item
Gender
integer
C0079399 (UMLS CUI [1])
Gender
Code List
Gender
CL Item
male (1)
CL Item
female (2)
Name
Item
Name
text
C1299487 (UMLS CUI [1])
Date of onset stroke
Item
Date of onset stroke
date
C0038454 (UMLS CUI [1,1])
C0574845 (UMLS CUI [1,2])
Diagnosis Code
Item
Diagnosis Code (I / G)
text
C1550350 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
Item Group
Sequence of care
C0017313 (UMLS CUI-1)
C0679878 (UMLS CUI-2)
C0038454 (UMLS CUI-3)
Reporting hospital
Item
Reporting hospital
text
C0019994 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
Reporting Ward/department
Item
Reporting Ward/department
text
C0019961 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
name of person completing this form
Item
Completed by (name of person completing this form)
text
C1550483 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Date deceased
Item
Date deceased (Complete only if patient died during treatment period)
date
C1148348 (UMLS CUI [1])
admitted for treatment for this stroke episode
Item
Has the patient been admitted for treatment for this stroke episode?
boolean
C0038454 (UMLS CUI [1,1])
C0332189 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
already admitted at the hospital at the time of this stroke episode
Item
Was the patient already admitted at the hospital at the time of this stroke episode?
boolean
C3489408 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C0332189 (UMLS CUI [1,3])
Stroke time of onset
Item
Stroke time of onset
time
C0038454 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
Item
Number of hours from onset to arrival at hospital
integer
C0038454 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
C1320532 (UMLS CUI [1,3])
C0449238 (UMLS CUI [1,4])
Number of hours from onset to arrival at hospital
Code List
Number of hours from onset to arrival at hospital
CL Item
< 3 hrs  (1)
CL Item
< 4.5 hrs  (2)
CL Item
< 24 hrs  (3)
CL Item
> 24 hrs (4)
CL Item
not known (5)
CL Item
 (6)
Item
Did the patient wake up with symptoms?
integer
C1457887 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C1170730 (UMLS CUI [1,3])
wake up with symptoms
Code List
Did the patient wake up with symptoms?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Thrombolysis alarm “save the brain/stroke alarm”
integer
C0040044 (UMLS CUI [1,1])
C2956061 (UMLS CUI [1,2])
wake up with symptoms
Code List
Thrombolysis alarm “save the brain/stroke alarm”
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Did the patient arrive by ambulance?
integer
C0002422 (UMLS CUI [1,1])
C0150390 (UMLS CUI [1,2])
wake up with symptoms
Code List
Did the patient arrive by ambulance?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Initially admitted to another hospital at the time of this stroke episode
integer
C0038454 (UMLS CUI [1,1])
C0332189 (UMLS CUI [1,2])
C0184666 (UMLS CUI [1,3])
wake up with symptoms
Code List
Initially admitted to another hospital at the time of this stroke episode
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Date of arrival at hospital
Item
Date of arrival at hospital
date
C3263562 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Time of arrival at hospital
Item
Time of arrival at hospital
time
C1320532 (UMLS CUI [1])
Date of arrival at stroke unit
Item
Date of arrival at stroke unit
date
C0587502 (UMLS CUI [1,1])
C3263562 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Time of arrival at stroke unit
Item
Time of arrival at stroke unit
time
C0587502 (UMLS CUI [1,1])
C3263562 (UMLS CUI [1,2])
C0040223 (UMLS CUI [1,3])
Item
First admitted to a
integer
C0184666 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
First admitted to
Code List
First admitted to a
CL Item
general ward or ward other than those specified in choice of response 2 or 3, 4 or 6 (1)
CL Item
stroke unit  (2)
CL Item
admissions/obs. ward  (3)
CL Item
intensive care unit (4)
CL Item
other (please specify) (5)
CL Item
Department of Neurosurgery  (6)
CL Item
not known (7)
department admitted to
Item
First admitted to "Other", please specify
text
C0184666 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Item
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
integer
C0679878 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
First admitted to
Code List
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
CL Item
general ward or ward other than those specified in choice of response 2 or 3, 4 or 6 (1)
CL Item
stroke unit  (2)
CL Item
admissions/obs. ward  (3)
CL Item
intensive care unit (4)
CL Item
other (please specify) (5)
CL Item
Department of Neurosurgery  (6)
CL Item
not known (7)
Continued care during the acute phase department
Item
Continued care during the acute phase department "Other", please specify
text
C0679878 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Date of discharge
Item
Date of discharge
date
C2361123 (UMLS CUI [1])
Number of days at stroke unit, intensive care unit or department of neurosurgery
Item
Number of days at stroke unit, intensive care unit or department of neurosurgery
integer
C4019086 (UMLS CUI [1])
C0021708 (UMLS CUI [2])
C0587502 (UMLS CUI [3])
C1552762 (UMLS CUI [4])
Item
After acute care the patient is discharged to
integer
C0030685 (UMLS CUI [1,1])
C1550391 (UMLS CUI [1,2])
C0679878 (UMLS CUI [2])
After acute care the patient is discharged to
Code List
After acute care the patient is discharged to
CL Item
own accommodation  (1)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, old people's home or nursing home) (2)
CL Item
other acute-care department (=complete Aftercare)  (3)
CL Item
Geriatrics/Rehab (=complete Aftercare) (4)
CL Item
deceased during treatment  (5)
CL Item
other (e.g. the patient is resident in another country)  (6)
CL Item
not known  (7)
CL Item
still in hospital  (8)
CL Item
other stroke unit for aftercare (= complete Aftercare) (9)
CL Item
health centre with emergency beds (= complete Aftercare) (10)
Address and phone number of the place to which the patient is discharged
Item
Address and phone number of the place to which the patient is discharged
text
C1550391 (UMLS CUI [1])
C1515258 (UMLS CUI [2])
C1442065 (UMLS CUI [3])
C0679878 (UMLS CUI [4])
Item
PLANNED REHABILITATION after discharge from ACUTE CARE
integer
C0034991 (UMLS CUI [1])
C0679878 (UMLS CUI [2])
planned rehabilitation after discharge from acute care
Code List
PLANNED REHABILITATION after discharge from ACUTE CARE
CL Item
home rehabilitation provided by a multidisciplinary rehabilitation team (including available doctor) with specialist knowledge in stroke care (1)
CL Item
other home rehabilitation (2)
CL Item
day rehabilitation or equivalent (refers to team-based rehabilitation for a defined period of time) (3)
CL Item
polyclinical rehabilitation (refers to rehabilitation with individual visits) (4)
CL Item
no need for rehabilitation in team's opinion (5)
CL Item
care accommodation with rehab (e.g. arranged accommodation, service flat with full board, temporary accommodation or nursing home) (6)
CL Item
patient does not want the rehabilitation offered (7)
CL Item
rehabilitation is needed but not available (8)
CL Item
not known (9)
CL Item
 (10)
Item Group
Aftercare
C0001758 (UMLS CUI-1)
C0017313 (UMLS CUI-2)
C0038454 (UMLS CUI-3)
Date of arrival aftercare
Item
Date of arrival aftercare
date
C0001758 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
Date of discharge Aftercare
Item
Date of discharge Aftercare
date
C0001758 (UMLS CUI [1,1])
C2361123 (UMLS CUI [1,2])
Item
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
integer
C0030685 (UMLS CUI [1,1])
C1550391 (UMLS CUI [1,2])
C0001758 (UMLS CUI [2])
After aftercare the patient is discharged to
Code List
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
CL Item
own accommodation  (1)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, old people's home or nursing home)  (2)
CL Item
other acute-care department  (3)
CL Item
deceased during treatment  (4)
CL Item
other (e.g. the patient is resident in another country)  (5)
CL Item
not known  (6)
CL Item
still in hospital  (7)
Address and phone number of the place to which the patient is discharged
Item
Address and phone number of the place to which the patient is discharged
text
C1550391 (UMLS CUI [1])
C1515258 (UMLS CUI [2])
C1442065 (UMLS CUI [3])
C0001758 (UMLS CUI [4])
Item
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
integer
C0034991 (UMLS CUI [1])
C0001758 (UMLS CUI [2])
planned rehabilitation after discharge from acute care
Code List
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
CL Item
home rehabilitation provided by a multidisciplinary rehabilitation team (including available doctor) with specialist knowledge in stroke care (1)
CL Item
other home rehabilitation (2)
CL Item
day rehabilitation or equivalent (refers to team-based rehabilitation for a defined period of time) (3)
CL Item
polyclinical rehabilitation (refers to rehabilitation with individual visits) (4)
CL Item
no need for rehabilitation in team's opinion (5)
CL Item
care accommodation with rehab (e.g. arranged accommodation, service flat with full board, temporary accommodation or nursing home) (6)
CL Item
patient does not want the rehabilitation offered (7)
CL Item
rehabilitation is needed but not available (8)
CL Item
not known (9)
CL Item
 (10)
Item Group
ADL/Accommodation BEFORE ONSET of stroke
C0595920 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
C1955348 (UMLS CUI-3)
Item
Accommodation
integer
C0595920 (UMLS CUI [1])
Accommodation
Code List
Accommodation
CL Item
own accommodation without home help (home help does not mean home nursing or advanced home nursing) (1)
CL Item
own accommodation with home help (home help does not mean home nursing or advanced home nursing) (2)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, nursing home or equivalent) (3)
CL Item
other (please specify) (4)
Item
Those living alone
integer
C0439044 (UMLS CUI [1])
iving alone
Code List
Those living alone
CL Item
patient lives entirely on his/her own (1)
CL Item
patient shares his/her household with spouse/partner or other person e.g. sibling, child or parents  (2)
Item
Need for assistance
integer
C1521721 (UMLS CUI [1,1])
C3840284 (UMLS CUI [1,2])
Need for assistance
Code List
Need for assistance
CL Item
patient can cope on his/her own without assistance  (1)
CL Item
patient requires assistance from another person  (2)
Item
Mobility
integer
C0449580 (UMLS CUI [1])
Mobility
Code List
Mobility
CL Item
patient could move around without supervision both indoors and outdoors (use (1)
CL Item
of walking-aid permitted) (2)
CL Item
patient was able to move around by himself/herself indoors but not outdoors (2)
CL Item
patient was assisted by another person when moving around, or was bedridden (3)
Item
Toilet visits
integer
C0562816 (UMLS CUI [1])
Toilet visits
Code List
Toilet visits
CL Item
patient managed toilet visits without any help (1)
CL Item
patient was unable to get to the bathroom or go to the toilet without help, (2)
Item
Clothes
integer
C0518459 (UMLS CUI [1])
Clothes
Code List
Clothes
CL Item
patient was able to get dressed without help, including outdoor clothes, socks and shoes, or only needed help when tying shoelaces (1)
CL Item
patient needed someone to fetch his/her clothes or needed help with dressing/undressing, or remained undressed (2)
Item Group
Risk Factors Stroke
C0035648 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Previous stroke
integer
C0559159 (UMLS CUI [1])
wake up with symptoms
Code List
Previous stroke
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Previous TIA / Amaurosis fugax?
integer
C0149793 (UMLS CUI [1])
C0007787 (UMLS CUI [2])
wake up with symptoms
Code List
Previous TIA / Amaurosis fugax?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Auricular fibrillation, previously diagnosed
integer
C0004238 (UMLS CUI [1])
wake up with symptoms
Code List
Auricular fibrillation, previously diagnosed
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Auricular fibrillation, recently identified on arrival at hospital or during treatment
integer
C0004238 (UMLS CUI [1])
wake up with symptoms
Code List
Auricular fibrillation, recently identified on arrival at hospital or during treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Diabetes, previously diagnosed or recently identified
integer
C0011849 (UMLS CUI [1])
wake up with symptoms
Code List
Diabetes, previously diagnosed or recently identified
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Treated for hypertension at onset of stroke
integer
C0020538 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
wake up with symptoms
Code List
Treated for hypertension at onset of stroke
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Smoker (>1 cigarette/day, or quit during the last three months)
integer
C0543414 (UMLS CUI [1])
wake up with symptoms
Code List
Smoker (>1 cigarette/day, or quit during the last three months)
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item Group
Acute Care/Diagnosis Stroke
C0038454 (UMLS CUI-1)
C0679878 (UMLS CUI-2)
C0011900 (UMLS CUI-3)
Item
Level of consciousness on arrival at hospital
integer
C0234425 (UMLS CUI [1])
Level of consciousness
Code List
Level of consciousness on arrival at hospital
CL Item
fully awake (RLS 1)  (1)
CL Item
drowsy but responding to stimulus (RLS 2-3)  (2)
CL Item
unconscious (RLS 4-8) (3)
CL Item
not known (4)
NIHSS at admission
Item
First NIHSS (National Institute of Health Stroke Scale) at admission (within 24 hrs) using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
wake up with symptoms
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Has the ability to swallow been tested?
integer
C0566355 (UMLS CUI [1,1])
C0430022 (UMLS CUI [1,2])
ability to swallow
Code List
Has the ability to swallow been tested?
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not examined due to patient's reduced consciousness  (3)
Item
Has the patient been evaluated by a speech therapist for difficulties with speech?
integer
C0233715 (UMLS CUI [1,1])
C0679830 (UMLS CUI [1,2])
C0402015 (UMLS CUI [1,3])
speech therapist
Code List
Has the patient been evaluated by a speech therapist for difficulties with speech?
CL Item
yes  (1)
CL Item
no; no need  (2)
CL Item
no; no speech therapist available (3)
CL Item
no, but arranged for period after discharge  (4)
Item
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
integer
C0566355 (UMLS CUI [1,1])
C0679830 (UMLS CUI [1,2])
C0402015 (UMLS CUI [1,3])
undefined item
Code List
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
CL Item
yes  (1)
CL Item
no; no need  (2)
CL Item
no; no speech therapist or other dysphagia specialist available  (3)
CL Item
not known (4)
CL Item
nej  (5)
CL Item
okänt eller patient avböjer bedömning (9)
Item
CT brain scan during treatment
integer
C0412585 (UMLS CUI [1])
wake up with symptoms
Code List
CT brain scan during treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
MRI brain scan during treatment
integer
C0412675 (UMLS CUI [1])
wake up with symptoms
Code List
MRI brain scan during treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
If yes, MR brain scan during acute phase:
integer
C0412675 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
MR brain scan result
Code List
If yes, MR brain scan during acute phase:
CL Item
shows new cerebral infarction  (1)
CL Item
shows no new cerebral infarction (2)
CL Item
examination result uncertain or not known (3)
Item
Carotid ultrasound performed
integer
C0948945 (UMLS CUI [1])
Carotid ultrasound
Code List
Carotid ultrasound performed
CL Item
yes  (1)
CL Item
no  (2)
CL Item
examination performed no more than 28 days before onset (3)
CL Item
not known (4)
Carotid ultrasound date
Item
If yes, examination date
date
C0948945 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
CT angiography performed
integer
C1536105 (UMLS CUI [1])
ability to swallow
Code List
CT angiography performed
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not examined due to patient's reduced consciousness  (3)
CT angiography date
Item
If yes, examination date
date
C0085532 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
MR angiography performed
integer
C0002978 (UMLS CUI [1])
CT angiography
Code List
MR angiography performed
CL Item
yes  (1)
CL Item
no  (2)
CL Item
examination performed no more than 28 days before onset (3)
CL Item
not known (4)
MR angiography date
Item
If yes, examination date
date
C0002978 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
CT or MR angiography performed of vessels affected
integer
C0002978 (UMLS CUI [1])
CT or MR angiography performed of vessels affected
Code List
CT or MR angiography performed of vessels affected
CL Item
carotid vessels  (1)
CL Item
intracranial vessels  (2)
CL Item
both carotid and intracranial vessels  (3)
CL Item
not known (4)
Item
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
integer
C0430461 (UMLS CUI [1])
Long term ECG
Code List
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
CL Item
yes  (1)
CL Item
no  (2)
CL Item
no, but arranged for period after discharge  (3)
CL Item
not known (4)
Item Group
Pharmaceutical Treatment
C0013227 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
C0038454 (UMLS CUI-3)
Item
Antihypertensive agents: At onset?
integer
C0003364 (UMLS CUI [1])
Antihypertensive agents
Code List
Antihypertensive agents: At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antihypertensive agents: At discharge?
integer
C0003364 (UMLS CUI [1])
Antihypertensive agents
Code List
Antihypertensive agents: At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
integer
C0360714 (UMLS CUI [1])
Antihypertensive agents
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
integer
C0360714 (UMLS CUI [1])
Antihypertensive agents
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA (e.g. Trombyl): At onset?
integer
C0004057 (UMLS CUI [1])
Antihypertensive agents
Code List
ASA (e.g. Trombyl): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA (e.g. Trombyl): At discharge?
integer
C0004057 (UMLS CUI [1])
Antihypertensive agents
Code List
ASA (e.g. Trombyl): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Clopidogrel (e.g. Plavix): At onset?
integer
C0070166 (UMLS CUI [1])
Antihypertensive agents
Code List
Clopidogrel (e.g. Plavix): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Clopidogrel (e.g. Plavix): At discharge?
integer
C0070166 (UMLS CUI [1])
Antihypertensive agents
Code List
Clopidogrel (e.g. Plavix): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA + dipyridamole (Asasantin): At onset?
integer
C0626271 (UMLS CUI [1])
Antihypertensive agents
Code List
ASA + dipyridamole (Asasantin): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA + dipyridamole (Asasantin): At discharge?
integer
C0626271 (UMLS CUI [1])
Antihypertensive agents
Code List
ASA + dipyridamole (Asasantin): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dipyridamole (Persantin): At onset?
integer
C0012582 (UMLS CUI [1])
Antihypertensive agents
Code List
Dipyridamole (Persantin): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dipyridamole (Persantin): At discharge?
integer
C0012582 (UMLS CUI [1])
Antihypertensive agents
Code List
Dipyridamole (Persantin): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
integer
C1704311 (UMLS CUI [1])
Antihypertensive agents
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
integer
C1704311 (UMLS CUI [1])
Antihypertensive agents
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Warfarin (Waran): At onset?
integer
C0043031 (UMLS CUI [1])
Antihypertensive agents
Code List
Warfarin (Waran): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
PK (INR) value
Item
If yes, treatment with warfarin at onset state PK (INR) value regardless of diagnosis
float
C0525032 (UMLS CUI [1])
Item
Apixaban (Eliquis): At onset?
integer
C1831808 (UMLS CUI [1])
Antihypertensive agents
Code List
Apixaban (Eliquis): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Apixaban (Eliquis): At discharge?
integer
C1831808 (UMLS CUI [1])
Antihypertensive agents
Code List
Apixaban (Eliquis): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dabigatran (Pradaxa): At onset?
integer
C2348066 (UMLS CUI [1])
Antihypertensive agents
Code List
Dabigatran (Pradaxa): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dabigatran (Pradaxa): At discharge?
integer
C2348066 (UMLS CUI [1])
Antihypertensive agents
Code List
Dabigatran (Pradaxa): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Rivaroxaban (Xarelto): At onset?
integer
C1739768 (UMLS CUI [1])
Antihypertensive agents
Code List
Rivaroxaban (Xarelto): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Rivaroxaban (Xarelto): At discharge?
integer
C1739768 (UMLS CUI [1])
Antihypertensive agents
Code List
Rivaroxaban (Xarelto): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Peroral anticoagulants other than the above: At onset?
integer
C0354604 (UMLS CUI [1])
Antihypertensive agents
Code List
Peroral anticoagulants other than the above: At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Peroral anticoagulants other than the above: At discharge?
integer
C0354604 (UMLS CUI [1])
Antihypertensive agents
Code List
Peroral anticoagulants other than the above: At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
integer
C0354604 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
peroral anticoagulants
Code List
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
CL Item
insertion planned after discharge 2= contraindications (in accordance with FASS) (1)
CL Item
interactions with other drugs/neuropathy (in accordance with FASS) (3)
CL Item
caution (in accordance with FASS) (4)
CL Item
fall-prone  (5)
CL Item
dementia  (6)
CL Item
patient refuses treatment  (7)
CL Item
other reason  (8)
CL Item
not known (9)
CL Item
kontraindicerat (enl. FASS) (2)
Item Group
Thrombolysis
C0040044 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Thrombolysis – performed for stroke e.g. Actilyse
integer
C0040044 (UMLS CUI [1])
Thrombolysis
Code List
Thrombolysis – performed for stroke e.g. Actilyse
CL Item
yes  (1)
CL Item
no  (2)
CL Item
yes, included in study  (3)
CL Item
not known (4)
Item
Reason thrombolysis not performed
integer
C1272236 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
Reason thrombolysis not performed
Code List
Reason thrombolysis not performed
CL Item
cerebral haemorrhage  (1)
CL Item
symptoms too mild (2)
CL Item
symptoms too severe (3)
CL Item
not possible to administer treatment in time (within 4.5 hrs) (4)
CL Item
other contraindications for thrombolysis (5)
CL Item
other reason  (6)
CL Item
no “save the brain” alarm (7)
CL Item
necessary expertise not available (e.g. doctor with thrombolysis experience, assessment of scans)  (8)
CL Item
not known (9)
Start date thrombolytic therapy
Item
Start date thrombolytic therapy
date
C0040044 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
Start time thrombolytic therapy
Item
Start time thrombolytic therapy
time
C0040044 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
NIHSS at thrombolysis
Item
NIHSS (National Institute of Health Stroke Scale) at thrombolysis start using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
wake up with symptoms
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
NIHSS after thrombolysis
Item
NIHSS 24 hours after thrombolysis using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
wake up with symptoms
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Complete symptom regression after thrombolysis within 24 hours of onset?
integer
C0684320 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C0040044 (UMLS CUI [1,3])
wake up with symptoms
Code List
Complete symptom regression after thrombolysis within 24 hours of onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
integer
C2937358 (UMLS CUI [1,1])
C1279889 (UMLS CUI [1,2])
C0040044 (UMLS CUI [2])
wake up with symptoms
Code List
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Riks-Stroke hospital code
Item
Enter Riks-Stroke hospital code where thrombolysis was performed
integer
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0040044 (UMLS CUI [2])
Item Group
Thrombectomy
C0162578 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Thrombectomy or other catheter-based (endovascular) stroke therapy
integer
C0162578 (UMLS CUI [1])
Thrombectomy
Code List
Thrombectomy or other catheter-based (endovascular) stroke therapy
CL Item
yes  (1)
CL Item
no  (2)
CL Item
yes, included in study  (3)
CL Item
not known (4)
state date of thrombectomy
Item
state date of a thrombectomy or other catheter-based (endovascular) therapy
date
C0162578 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
state time of thrombectomy
Item
state time of a thrombectomy or other catheter-based (endovascular) therapy
time
C0162578 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
NIHSS at start of thrombectomy
Item
NIHSS at start of thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
wake up with symptoms
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
NIHSS 24 hours after thrombectomy
Item
NIHSS 24 hours after thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
wake up with symptoms
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
integer
C0684320 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C0162578 (UMLS CUI [2])
wake up with symptoms
Code List
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Riks-Stroke hospital code
Item
Enter Riks-Stroke hospital code where the thrombectomy or other catheter-based (endovascular) therapy was performed
integer
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0162578 (UMLS CUI [2])
Item Group
Hemicraniectomy
C0195897 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Hemicraniectomy performed for expansive ischaemic stroke
integer
C0195897 (UMLS CUI [1])
wake up with symptoms
Code List
Hemicraniectomy performed for expansive ischaemic stroke
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
date of hemicraniectomy
Item
Please state date of hemicraniectomy
date
C0195897 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
hospital code
Item
Enter Riks-Stroke hospital code where thrombolysis was performed
text
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0195897 (UMLS CUI [2])
C0040044 (UMLS CUI [3])
Item Group
Information and Follow-up
C1522577 (UMLS CUI-1)
C1533716 (UMLS CUI-2)
C1955348 (UMLS CUI-3)
C0038454 (UMLS CUI-4)
Item
Smoker informed at onset of need to quit smoking
integer
C1273715 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
Smoker informed of need to quit smoking
Code List
Smoker informed at onset of need to quit smoking
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not relevant given patient's condition  (3)
CL Item
not known (4)
Item
Information provided regarding driving
integer
C0004379 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,3])
Information provided regarding driving
Code List
Information provided regarding driving
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not relevant/no driving licence  (3)
CL Item
not known (4)
Item
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
integer
C0589121 (UMLS CUI [1,1])
C0586344 (UMLS CUI [1,2])
follow-up appointment
Code List
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
CL Item
yes, at a special stroke unit (at or outside the hospital)  (1)
CL Item
yes, at another hospital admissions ward/department  (2)
CL Item
yes, at a health centre/equivalent (3)
CL Item
yes, at arranged accommodation (4)
CL Item
yes, at day rehab  (5)
CL Item
not known (7)
Item Group
Rehabilitation
C0034991 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Did an occupational therapist evaluate the patient after arrival in the ward/department?
integer
C1444296 (UMLS CUI [1,1])
C0028807 (UMLS CUI [1,2])
occupational therapist evaluate the patient
Code List
Did an occupational therapist evaluate the patient after arrival in the ward/department?
CL Item
yes, ≤ 24 hrs (1)
CL Item
yes, > 24 hrs but ≤ 48 hrs  (2)
CL Item
yes, > 48 hrs (3)
CL Item
no (5)
CL Item
 (4)
Item
Has the patient received occupational therapy?
integer
C0949766 (UMLS CUI [1,1])
C1318464 (UMLS CUI [1,2])
occupational therapy
Code List
Has the patient received occupational therapy?
CL Item
yes ≥ 30 min (1)
CL Item
yes < 30 min (2)
CL Item
no, but has needed it (3)
CL Item
no, has needed but not been able to take advantage of rehabilitation 5= no, has not needed it (4)
CL Item
patient has refused (6)
CL Item
not known (7)
CL Item
 (5)
Item
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
integer
C0949766 (UMLS CUI [1,1])
C1318464 (UMLS CUI [1,2])
occupational therapy
Code List
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
CL Item
yes, part of weekend  (1)
CL Item
yes, entire weekend  (2)
CL Item
no  (3)
CL Item
not known (4)
Item
Did a physiotherapist evaluate the patient after arrival in the ward/department?
integer
C0679830 (UMLS CUI [1,1])
C2362565 (UMLS CUI [1,2])
occupational therapist evaluate the patient
Code List
Did a physiotherapist evaluate the patient after arrival in the ward/department?
CL Item
yes, ≤ 24 hrs (1)
CL Item
yes, > 24 hrs but ≤ 48 hrs  (2)
CL Item
yes, > 48 hrs (3)
CL Item
no (5)
CL Item
 (4)
Item
Has the patient received physiotherapy?
integer
C0949766 (UMLS CUI [1])
occupational therapy
Code List
Has the patient received physiotherapy?
CL Item
yes ≥ 30 min (1)
CL Item
yes < 30 min (2)
CL Item
no, but has needed it (3)
CL Item
no, has needed but not been able to take advantage of rehabilitation 5= no, has not needed it (4)
CL Item
patient has refused (6)
CL Item
not known (7)
CL Item
 (5)
Item
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
integer
C0949766 (UMLS CUI [1])
occupational therapy
Code List
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
CL Item
yes, part of weekend  (1)
CL Item
yes, entire weekend  (2)
CL Item
no  (3)
CL Item
not known (4)
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