- 9/20/21 - 2 forms, 9 itemgroups, 52 items, 2 languages
Itemgroups: Care problem, Score, Care goal, Nursing procedure, Activities of daily living, Homecare Status, Social Environment, Legal Aspects, Medical information

Header

3 itemgroups, 18 items
- 9/27/21 - 1 form, 12 itemgroups, 97 items, 2 languages
Itemgroups: Baseline / Follow-up, Administrative Data, Personal information, Living situation, Health and disease, Tasks and activities of daily life, Mouth care and complaints with mouth, jaws or temples, How you are feeling, Social activities, Quality of life, Your care use, Closure
The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and wellbeing of older persons and informal caregivers across the Netherlands. The database was developed in part to ensure uniform collection of outcomes measures, thus promoting comparability between studies. To date, 53 different research projects have contributed data to this initiative, resulting in a pooled dataset >44,000 older persons and >9,000 informal caregivers. Early 2021, the database will be updated with new data, specifically from older persons with dementia and their informal caregivers. More information can be found at https://topics-mds.eu This form contains the English and Dutch version of TOPICS-MDS 2017 questionnaire for the care receiver for the Baseline and Follow-up measurement. For follow-up, please note that for each follow-up measurement separately, all questions containing ‘12 months’ / ‘12 maanden’, the 12 needs to be replaced by the actual follow-up period. For example, when follow-up takes place after 3 months, the 12 is replaced by ‘3’. Additionally some questions are not needed for follow-up: From "Personal Information" only the marital status is needed. From "Health and Disease" the questions about the diseases are optional. They are recommended, if you want to use the frailty index. English Instructions for the participant (Dutch version below): Your experiences as a care receiver are valuable. You receive care. This list contains questions about what this care means for you as a care receiver. Your answers will be used in research to improve care for the elderly. The more information there is about care for elderly people, the more this can be taken into consideration. For example, when changing the facilities, regulations or legislation for care and wellbeing. Therefore, your experiences are also valuable for other elderly people. Instructions for this questionnaire: - Completing this questionnaire will take approximately half an hour. - Read each question through completely before selecting an answer. - If you find it difficult to understand or answer the questions, ask your partner, a family member or a friend to help you. - Some questions may appear to be ‘repeated’, but please answer all questions. They are intended to view your situation again from a different angle. - When you are done, please check that you have not forgotten any questions. Nederlandse aanwijzingen: Uw ervaringen als zorgvrager zijn waardevol. In deze lijst staan vragen over uw lichamelijke en geestelijke gezondheid, kwaliteit van leven en zorggebruik. Uw antwoorden worden gebruikt in onderzoek naar verbetering van de zorg voor ouderen. Want hoe meer er bekend is over wat ouderen zelf vinden, hoe beter er rekening mee gehouden kan worden. Bijvoorbeeld bij het veranderen van voorzieningen, regelingen of wetten voor zorg en welzijn. Uw ervaringen zijn dus waardevol, ook voor andere ouderen. Aanwijzingen bij deze vragenlijst: Het invullen van de vragenlijst kost u ongeveer een half uur. Lees elke vraag eerst helemaal door voordat u een antwoord geeft. Als u het moeilijk vindt om de vragen te begrijpen of in te vullen, vraag dan hulp aan uw partner, een familielid of vriendof vriendin. Sommige vragen lijken ‘dubbel’, maar we verzoeken u ze toch in te vullen. Ze zijn bedoeld om uw situatie nog eens van een andere kant te bekijken. Bent u klaar? Kijk dan of u geen vragen vergeten bent.
- 9/20/21 - 1 form, 12 itemgroups, 122 items, 2 languages
Itemgroups: Acute Phase for Registration of Stroke - Personal Information, Sequence of care, Aftercare, ADL/Accommodation BEFORE ONSET of stroke, Risk Factors Stroke, Acute Care/Diagnosis Stroke, Pharmaceutical Treatment, Thrombolysis, Thrombectomy, Hemicraniectomy, Information and Follow-up, Rehabilitation
- 2/11/21 - 1 form, 8 itemgroups, 34 items, 2 languages
Itemgroups: Administrative Documentation, Administrative Documentation of Care Receiver, Relation to your loved one, Your health, Time spent caring for your loved one, How difficult is the care for you, Quality of life for yourself, Closure
The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and wellbeing of older persons and informal caregivers across the Netherlands. The database was developed in part to ensure uniform collection of outcomes measures, thus promoting comparability between studies. To date, 53 different research projects have contributed data to this initiative, resulting in a pooled dataset >44,000 older persons and >9,000 informal caregivers. Early 2021, the database will be updated with new data, specifically from older persons with dementia and their informal caregivers. More information can be found at https://topics-mds.eu This form contains the English and Dutch version of TOPICS-MDS 2017 questionnaire for the caregiver for the Baseline and Follow-up measurement. English Instructions for the participant (Dutch version below): Your experiences are valuable. You are caring for your partner, a family member, a friend or a loved one. This list contains questions about what this care means for you as a caregiver. Your answers will be used in research aimed at improving elderly care and informal care. The more information there is about these types of care, the more they can be taken into consideration. For example, when changing the facilities, regulations or legislation for care and wellbeing. Therefore, your experiences are also valuable for other caregivers. Instructions for filling in this questionnaire: Completing this questionnaire will take approximately twenty minutes. If you read ‘your loved one’, then the question refers to the person for whom you are a caregiver. Read each question through completely before answering. Some questions may appear to be ‘repeated’, but please answer all questions. They are intended to view your situation again from a different angle. When you are done, please check that you have not forgotten any questions Nederlandse aanwijzingen: U zorgt voor uw partner, een familielid, een vriend of andere naaste. In deze lijst staan vragen over wat die zorg betekent voor u als mantelzorger. Uw antwoorden worden gebruikt in onderzoek gericht op verbeteringen in de ouderen zorg en mantelzorg. Want hoe meer er bekend is over deze vormen van zorg, hoe beter er rekening mee gehouden kan worden. Bijvoorbeeld bij het veranderen van voorzieningen, regelingen of wetten voor zorgen wel zijn. Uw ervaringen zijn dus waardevol, ook voor andere mantelzorgers. Aanwijzingen bij deze vragenlijst: Het invullen van de vragenlijst kost u ongeveer twintig minuten. Als u leest ‘uw naaste’, dan gaat de vraag over de persoon voor wie u mantelzorger bent. Lees elke vraag eerst helemaal door voordat u een antwoord geeft. Sommige vragen lijken ‘dubbel’, maar we verzoeken u ze toch in te vullen. Ze zijn bedoeld om uw situatie nog eens van een andere kant te bekijken. Bent u klaar? Kijk dan of u geen vragen vergeten bent.
- 11/18/20 - 1 form, 8 itemgroups, 23 items, 2 languages
Itemgroups: Administrative Documentation, General health, Pain/discomfort, Brain functions, Tasks and activities of daily life, Feelings past 4 weeks, Social activities, Closure
The TOPICS – Short Form 2017 including Casemix forms were developed by the TOPICS-MDS team in collaboration with the Nederlandse Vereniging voor Klinische Geriatrie (NvKG – Dutch Association for Clinical Geriatrics) to use as a Patient Reported Outcome Measure (PROM) in the Dutch outpatient and clinical daily practice. In this version the casemix variables were left out of the Dutch version (with permission by the TOPICS-MDS team), as they are currently not available for the English version. The short forms (including casemix variables for various situations and follow-up in Dutch) can be found on https://topics-mds.eu/topics-short-form/ as pdfs. More information on the public data repository TOPICS-MDS can be found at https://topics-mds.eu/. English Instructions (Dutch Version below): Your experiences as a care receiver are valuable. This list contains questions about your physical and mental health and quality of life. Your answers will be used in research to improve care for the elderly. The more information there is about care for elderly people, the more this can be taken into consideration. Therefore, your experiences are also valuable for other elderly people. Instructions for this questionnaire: - Completing this questionnaire will take approximately 10 minutes. - If you find it difficult to understand or answer the questions, ask your partner, a family member or a friend to help you. - Read each question through completely before selecting an answer. - When you are done, please check that you have not forgotten any questions. Nederlandse Aanwijzingen: Uw ervaringen zijn waardevol. In deze lijst staan vragen over uw lichamelijke en geestelijke gezondheid en kwaliteit van leven. Uw antwoorden worden gebruikt om de zorg voor ouderen in kaart te brengen. Want hoe meer er bekend is over zorg voor ouderen, hoe beter er rekening mee gehouden kan worden. Uw ervaringen zijn dus waardevol, ook voor andere ouderen. Aanwijzingen bij deze vragenlijst: - Het invullen van de vragenlijst kost u ongeveer 10 minuten. - Als u het moeilijk vindt om de vragen te begrijpen of in te vullen, vraag dan hulp aan uw partner, een familielid of vriend. - Lees elke vraag eerst helemaal door voordat u een antwoord kiest. - Bent u klaar, kijk dan of u geen vragen vergeten bent.
- 8/3/16 - 1 form, 11 itemgroups, 42 items, 1 language
Itemgroups: Address, Contracted hospital care, Episode of admitted patient care (newborn), Episode of admitted patient care, Episode of care, Establishment, Hospital service, Injury event, Patient, Person, Record
- 8/3/16 - 1 form, 2 itemgroups, 10 items, 1 language
Itemgroups: Episode of admitted patient care, Person
- 8/3/16 - 1 form, 11 itemgroups, 42 items, 1 language
Itemgroups: Address, Contracted hospital care, Episode of admitted patient care (newborn), Episode of admitted patient care, Episode of care, Establishment, Hospital service, Injury event, Patient, Person, Record
- 7/11/16 - 1 form, 3 itemgroups, 7 items, 1 language
Itemgroups: Episode of care, Establishment, Non-admitted patient service event
Health sector data set specifications from METeOR, Australia's repository for national metadata standards, developed by the Australian Institute of Health and Welfare (http://meteor.aihw.gov.au/content/index.phtml/itemId/345165) Non-admitted patient care Local Hospital Network aggregate DSS 2015-16 The scope of the Non-admitted patient care Local Hospital Network aggregate data set specification (DSS) is non-admitted patient service events involving non-admitted patients provided by: · Local Hospital Networks · other public hospital services that are managed by a state or territory health authority and are included in the General list of in-scope public hospital services, which have been developed under the National Health Reform Agreement (2011). This also includes all in-scope services contracted by a public hospital, Local Hospital Network or jurisdiction regardless of the physical location of the contracting public hospital, Local Hospital Network or jurisdiction, or the location where the services are delivered. The DSS is intended to capture instances of service provision from the point of view of the patient. The DSS scope includes: All arrangements made to deliver non-admitted patient service events (not covered by the national minimum data sets listed below) to non-admitted patients: · irrespective of location (includes on-campus and off-campus), · whose treatment has been funded through the jurisdictional health authority, Local Hospital Network or hospital, regardless of the source from which the entity derives these funds. In particular, Department of Veterans' Affairs, compensable and other patients funded through the hospital (including Medicare ineligible patients) are included; and · regardless of setting or mode. Excluded from the DSS scope are: All services covered by: · the Admitted patient care NMDS; · the Admitted patient mental health care NMDS; · the Non-admitted patient emergency department care NMDS, e.g. all non-admitted services provided to admitted patients are excluded; · The Community mental health care NMDS; and · service events which deliver non-clinical care, e.g. activities such as home cleaning, meals on wheels or home maintenance. For the purpose of this DSS, a non-admitted service is a specialty unit or organisational arrangement under which a jurisdictional health authority, Local Hospital Network or public hospital provides non-admitted services. Local Hospital Networks are defined as those entities recognised as such by the relevant jurisdictional health authority. © Australian Institute of Health and Welfare 2015 Metadata and Classifications Unit Australian Institute of Health and Welfare GPO Box 570 Canberra ACT 2601
- 7/11/16 - 1 form, 6 itemgroups, 19 items, 1 language
Itemgroups: Episode of care, Establishment, Non-admitted patient service event, Non-admitted patient service request, Person, Record
Health sector data set specifications from METeOR, Australia's repository for national metadata standards, developed by the Australian Institute of Health and Welfare (http://meteor.aihw.gov.au/content/index.phtml/itemId/345165) Non-admitted patient DSS 2015-16 The scope of the Non-admitted patient DSS is non-admitted patient service events involving non-admitted patients provided by: · public hospitals · Local Hospital Networks · other public hospital services that are managed by a state or territory health authority and are included in the General list of in-scope public hospital services, which have been developed under the National Health Reform Agreement (2011). This also includes all in scope services contracted by a public hospital, Local Hospital Network or jurisdiction regardless of the physical location of the contracting public hospital, Local Hospital Network or jurisdiction, or the location where the services are delivered. The DSS is intended to capture instances of service provision from the point of view of the patient. The scope of the DSS includes: All arrangements made to deliver non-admitted patient service events (not covered by the national minimum data sets listed below) to non-admitted patients: · irrespective of location (includes on-campus and off-campus), · whose treatment has been funded through the jurisdictional health authority, Local Hospital Network or hospital, regardless of the source from which the entity derives these funds. In particular, Department of Veterans' Affairs, compensable and other patients funded through the hospital (including Medicare ineligible patients) are included; and · regardless of setting or mode. Excluded from the scope of the DSS are: All services covered by: · the Admitted patient care NMDS, · the Admitted patient mental health care NMDS, · the Non-admitted patient emergency department care NMDS, e.g. all non-admitted services provided to admitted patients or emergency department patients are excluded; · The Community mental health care NMDS; and · service events which deliver non-clinical care, e.g. activities such as home cleaning, meals on wheels or home maintenance. For the purpose of this DSS, a non-admitted service is a specialty unit or organisational arrangement under which a jurisdictional health authority, Local Hospital Network or public hospital provides non-admitted services. Local Hospital Networks are defined as those entities recognised as such by the relevant state or territory health authority. © Australian Institute of Health and Welfare 2015 Metadata and Classifications Unit Australian Institute of Health and Welfare GPO Box 570 Canberra ACT 2601
- 7/11/16 - 1 form, 3 itemgroups, 8 items, 1 language
Itemgroups: Episode of care, Establishment, Non-admitted patient service event
Health sector data set specifications from METeOR, Australia's repository for national metadata standards, developed by the Australian Institute of Health and Welfare (http://meteor.aihw.gov.au/content/index.phtml/itemId/345165) Non-admitted patient care hospital aggregate NMDS The scope of the Non-admitted patient care hospital aggregate national minimum data set (NMDS) is non-admitted patient service events involving non-admitted patients provided by public hospitals The NMDS is intended to capture instances of service provision from the point of view of the patient. The NMDS scope includes: All arrangements made to deliver non-admitted patient service events (not covered by the national minimum data sets listed below) to non-admitted patients: • irrespective of location (includes on-campus and off-campus), • whose treatment has been funded through the jurisdictional health authority, Local Hospital Network or hospital, regardless of the source from which the entity derives these funds. In particular, Department of Veterans' Affairs, compensable and other patients funded through the hospital (including Medicare ineligible patients) are included; and • regardless of setting or mode. Excluded from the NMDS scope are: All services covered by: • the Admitted patient care NMDS; • the Admitted patient mental health care NMDS; • the Non-admitted patient emergency department care NMDS, e.g. all non-admitted services provided to admitted patients are excluded; • The Community mental health care NMDS; and • service events which deliver non-clinical care, e.g. activities such as home cleaning, meals on wheels or home maintenance. For the purpose of this NMDS, a non-admitted service is a specialty unit or organisational arrangement under which a public hospital provides non-admitted services. © Australian Institute of Health and Welfare 2015 Metadata and Classifications Unit Australian Institute of Health and Welfare GPO Box 570 Canberra ACT 2601