ID

27625

Description

Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. Acute Phase for Registration of Stroke

Link

http://www.riksstroke.org/eng/

Keywords

  1. 11/23/17 11/23/17 -
  2. 11/29/17 11/29/17 -
  3. 9/20/21 9/20/21 -
Copyright Holder

http://www.riksstroke.org/eng/

Uploaded on

November 23, 2017

DOI

To request one please log in.

License

Creative Commons BY-NC 3.0

Model comments :

You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.

Itemgroup comments for :

Item comments for :

In order to download data models you must be logged in. Please log in or register for free.

Schwedisches Schlaganfallregister RIKSSTROKE

Acute Phase for Registration of Stroke

Acute Phase for Registration of Stroke - Personal Information
Description

Acute Phase for Registration of Stroke - Personal Information

Alias
UMLS CUI-1
C0038454
UMLS CUI-2
C0439557
UMLS CUI-3
C0011900
UMLS CUI-4
C1955348
UMLS CUI-5
C0034975
Personal ID number
Description

Personal ID number

Data type

integer

Alias
UMLS CUI [1]
C2348585
Gender
Description

Gender

Data type

integer

Alias
UMLS CUI [1]
C0079399
Name
Description

Name

Data type

text

Alias
UMLS CUI [1]
C1299487
Date of onset stroke
Description

Date of onset stroke

Data type

date

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0574845
Diagnosis Code (I / G)
Description

I 61= cerebral haemorrhage I 63= cerebral infarction I 64= acute cerebrovascular illness UNS G 45.x= thrombolytic therapy or thrombectomy for stroke with complete symptom regression within 24 hours after onset (N.B. optional). The decimal x is used only for technical purposes for registration.

Data type

text

Alias
UMLS CUI [1,1]
C1550350
UMLS CUI [1,2]
C0038454
Sequence of care
Description

Sequence of care

Alias
UMLS CUI-1
C0017313
UMLS CUI-2
C0679878
UMLS CUI-3
C0038454
Reporting hospital
Description

Reporting hospital

Data type

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C0700287
Reporting Ward/department
Description

Reporting Ward/department

Data type

text

Alias
UMLS CUI [1,1]
C0019961
UMLS CUI [1,2]
C0700287
Completed by (name of person completing this form)
Description

name of person completing this form

Data type

text

Alias
UMLS CUI [1,1]
C1550483
UMLS CUI [1,2]
C0027365
Date deceased (Complete only if patient died during treatment period)
Description

Date deceased

Data type

date

Alias
UMLS CUI [1]
C1148348
Has the patient been admitted for treatment for this stroke episode?
Description

admitted for treatment for this stroke episode

Data type

boolean

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0332189
UMLS CUI [1,3]
C0087111
Was the patient already admitted at the hospital at the time of this stroke episode?
Description

already admitted at the hospital at the time of this stroke episode

Data type

boolean

Alias
UMLS CUI [1,1]
C3489408
UMLS CUI [1,2]
C0038454
UMLS CUI [1,3]
C0332189
Stroke time of onset
Description

If the patient woke up with symptoms, please state the last time without symptoms. Enter the code "9999" if the time is not known. If the time can only be given to the nearest hour, the minutes should be recorded in the first instance where possible to the nearest whole or half hour, or else enter the code "99" for minutes. If the patient admitted had suffered a stroke and the time of onset is not known, please state where possible the last time without symptoms. If the time of onset is not known, specify the closest possible time interval below.

Data type

time

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0449244
Number of hours from onset to arrival at hospital
Description

If the time of onset is not known (9999) or if only the hour can be given (e.g. 1099), specify the closest possible time interval from onset to arrival at hospital. If the patient woke up with symptoms, please state the last time without symptoms. If the admitted patient had suffered a stroke and the time of onset is not known (the last time without symptoms is not known), choose the closest possible time interval from onset to identification of this stroke episode.

Data type

integer

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0449244
UMLS CUI [1,3]
C1320532
UMLS CUI [1,4]
C0449238
Did the patient wake up with symptoms?
Description

wake up with symptoms

Data type

integer

Alias
UMLS CUI [1,1]
C1457887
UMLS CUI [1,2]
C0038454
UMLS CUI [1,3]
C1170730
Thrombolysis alarm “save the brain/stroke alarm”
Description

(refers to the alarm for thrombolytic therapy if needed)

Data type

integer

Alias
UMLS CUI [1,1]
C0040044
UMLS CUI [1,2]
C2956061
Did the patient arrive by ambulance?
Description

arrive by ambulance

Data type

integer

Alias
UMLS CUI [1,1]
C0002422
UMLS CUI [1,2]
C0150390
Initially admitted to another hospital at the time of this stroke episode
Description

Initially admitted to another hospital at the time of this stroke episode

Data type

integer

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C0332189
UMLS CUI [1,3]
C0184666
Date of arrival at hospital
Description

(refers to date of arrival at the hospital where the patient initially received treatment for stroke)

Data type

date

Alias
UMLS CUI [1,1]
C3263562
UMLS CUI [1,2]
C0019994
UMLS CUI [1,3]
C0011008
Time of arrival at hospital
Description

(refers to time of arrival at the hospital where the patient initially received treatment for stroke)

Data type

time

Alias
UMLS CUI [1]
C1320532
Date of arrival at stroke unit
Description

(refers to the first stroke unit where the patient received treatment for this medical event)

Data type

date

Alias
UMLS CUI [1,1]
C0587502
UMLS CUI [1,2]
C3263562
UMLS CUI [1,3]
C0011008
Time of arrival at stroke unit
Description

(refers to time of arrival at the first stroke unit where the patient received treatment for this medical event)

Data type

time

Alias
UMLS CUI [1,1]
C0587502
UMLS CUI [1,2]
C3263562
UMLS CUI [1,3]
C0040223
First admitted to a
Description

First admitted to

Data type

integer

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C1704729
First admitted to "Other", please specify
Description

department admitted to

Data type

text

Alias
UMLS CUI [1,1]
C0184666
UMLS CUI [1,2]
C1704729
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
Description

Continued care during the acute phase department

Data type

integer

Alias
UMLS CUI [1,1]
C0679878
UMLS CUI [1,2]
C1704729
Continued care during the acute phase department "Other", please specify
Description

Continued care during the acute phase department

Data type

text

Alias
UMLS CUI [1,1]
C0679878
UMLS CUI [1,2]
C1704729
Date of discharge
Description

Date of discharge

Data type

date

Alias
UMLS CUI [1]
C2361123
Number of days at stroke unit, intensive care unit or department of neurosurgery
Description

(day of admission = day 1) 999 = not known If treatment took place at several units, enter the total treatment time at the stroke unit, intensive care unit or department of neurosurgery.

Data type

integer

Alias
UMLS CUI [1]
C4019086
UMLS CUI [2]
C0021708
UMLS CUI [3]
C0587502
UMLS CUI [4]
C1552762
After acute care the patient is discharged to
Description

After acute care the patient is discharged to

Data type

integer

Alias
UMLS CUI [1,1]
C0030685
UMLS CUI [1,2]
C1550391
UMLS CUI [2]
C0679878
Address and phone number of the place to which the patient is discharged
Description

Address and phone number of the place to which the patient is discharged

Data type

text

Alias
UMLS CUI [1]
C1550391
UMLS CUI [2]
C1515258
UMLS CUI [3]
C1442065
UMLS CUI [4]
C0679878
PLANNED REHABILITATION after discharge from ACUTE CARE
Description

planned rehabilitation after discharge from acute care

Data type

integer

Alias
UMLS CUI [1]
C0034991
UMLS CUI [2]
C0679878
Aftercare
Description

Aftercare

Alias
UMLS CUI-1
C0001758
UMLS CUI-2
C0017313
UMLS CUI-3
C0038454
Date of arrival aftercare
Description

AFTERCARE refers to institutional care funded by the County Council

Data type

date

Alias
UMLS CUI [1,1]
C0001758
UMLS CUI [1,2]
C0808070
Date of discharge Aftercare
Description

Date of discharge Aftercare

Data type

date

Alias
UMLS CUI [1,1]
C0001758
UMLS CUI [1,2]
C2361123
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
Description

After aftercare the patient is discharged to

Data type

integer

Alias
UMLS CUI [1,1]
C0030685
UMLS CUI [1,2]
C1550391
UMLS CUI [2]
C0001758
Address and phone number of the place to which the patient is discharged
Description

Address and phone number of the place to which the patient is discharged

Data type

text

Alias
UMLS CUI [1]
C1550391
UMLS CUI [2]
C1515258
UMLS CUI [3]
C1442065
UMLS CUI [4]
C0001758
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
Description

planned rehabilitation after discharge from aftercare

Data type

integer

Alias
UMLS CUI [1]
C0034991
UMLS CUI [2]
C0001758
ADL/Accommodation BEFORE ONSET of stroke
Description

ADL/Accommodation BEFORE ONSET of stroke

Alias
UMLS CUI-1
C0595920
UMLS CUI-2
C0038454
UMLS CUI-3
C1955348
Accommodation
Description

Accommodation

Data type

integer

Alias
UMLS CUI [1]
C0595920
Those living alone
Description

iving alone

Data type

integer

Alias
UMLS CUI [1]
C0439044
Need for assistance
Description

Need for assistance

Data type

integer

Alias
UMLS CUI [1,1]
C1521721
UMLS CUI [1,2]
C3840284
Mobility
Description

Mobility

Data type

integer

Alias
UMLS CUI [1]
C0449580
Toilet visits
Description

Toilet visits

Data type

integer

Alias
UMLS CUI [1]
C0562816
Clothes
Description

Clothes

Data type

integer

Alias
UMLS CUI [1]
C0518459
Risk Factors Stroke
Description

Risk Factors Stroke

Alias
UMLS CUI-1
C0035648
UMLS CUI-2
C0038454
Previous stroke
Description

Previous stroke

Data type

integer

Alias
UMLS CUI [1]
C0559159
Previous TIA / Amaurosis fugax?
Description

(Does not apply to G45.4 transitory global amnesia)

Data type

integer

Alias
UMLS CUI [1]
C0149793
UMLS CUI [2]
C0007787
Auricular fibrillation, previously diagnosed
Description

(Including intermittent fibrillation or flutter)

Data type

integer

Alias
UMLS CUI [1]
C0004238
Auricular fibrillation, recently identified on arrival at hospital or during treatment
Description

(Including intermittent fibrillation or flutter)

Data type

integer

Alias
UMLS CUI [1]
C0004238
Diabetes, previously diagnosed or recently identified
Description

Diabetes

Data type

integer

Alias
UMLS CUI [1]
C0011849
Treated for hypertension at onset of stroke
Description

Treated for hypertension

Data type

integer

Alias
UMLS CUI [1,1]
C0020538
UMLS CUI [1,2]
C0087111
Smoker (>1 cigarette/day, or quit during the last three months)
Description

Smoker

Data type

integer

Alias
UMLS CUI [1]
C0543414
Acute Care/Diagnosis Stroke
Description

Acute Care/Diagnosis Stroke

Alias
UMLS CUI-1
C0038454
UMLS CUI-2
C0679878
UMLS CUI-3
C0011900
Level of consciousness on arrival at hospital
Description

Level of consciousness

Data type

integer

Alias
UMLS CUI [1]
C0234425
First NIHSS (National Institute of Health Stroke Scale) at admission (within 24 hrs) using Riksstroke's NIHSS form
Description

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Data type

integer

Alias
UMLS CUI [1]
C3476804
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Description

based on Riksstroke's NIHSS form

Data type

integer

Alias
UMLS CUI [1]
C3476804
Has the ability to swallow been tested?
Description

ability to swallow

Data type

integer

Alias
UMLS CUI [1,1]
C0566355
UMLS CUI [1,2]
C0430022
Has the patient been evaluated by a speech therapist for difficulties with speech?
Description

speech therapist

Data type

integer

Alias
UMLS CUI [1,1]
C0233715
UMLS CUI [1,2]
C0679830
UMLS CUI [1,3]
C0402015
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
Description

evaluated for difficulties with swallowing

Data type

integer

Alias
UMLS CUI [1,1]
C0566355
UMLS CUI [1,2]
C0679830
UMLS CUI [1,3]
C0402015
CT brain scan during treatment
Description

CT brain scan

Data type

integer

Alias
UMLS CUI [1]
C0412585
MRI brain scan during treatment
Description

MRI brain scan

Data type

integer

Alias
UMLS CUI [1]
C0412675
If yes, MR brain scan during acute phase:
Description

MR brain scan result

Data type

integer

Alias
UMLS CUI [1,1]
C0412675
UMLS CUI [1,2]
C1274040
Carotid ultrasound performed
Description

Carotid ultrasound

Data type

integer

Alias
UMLS CUI [1]
C0948945
If yes, examination date
Description

Carotid ultrasound date

Data type

date

Alias
UMLS CUI [1,1]
C0948945
UMLS CUI [1,2]
C0011008
CT angiography performed
Description

(does not refer to CT perfusion)

Data type

integer

Alias
UMLS CUI [1]
C1536105
If yes, examination date
Description

CT angiography date

Data type

date

Alias
UMLS CUI [1,1]
C0085532
UMLS CUI [1,2]
C0011008
MR angiography performed
Description

MR angiography

Data type

integer

Alias
UMLS CUI [1]
C0002978
If yes, examination date
Description

MR angiography date

Data type

date

Alias
UMLS CUI [1,1]
C0002978
UMLS CUI [1,2]
C0011008
CT or MR angiography performed of vessels affected
Description

(always ask a doctor if uncertain about which vessels)

Data type

integer

Alias
UMLS CUI [1]
C0002978
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
Description

Long term ECG

Data type

integer

Alias
UMLS CUI [1]
C0430461
Pharmaceutical Treatment
Description

Pharmaceutical Treatment

Alias
UMLS CUI-1
C0013227
UMLS CUI-2
C0087111
UMLS CUI-3
C0038454
Antihypertensive agents: At onset?
Description

(applies to all groups, independent of indication)

Data type

integer

Alias
UMLS CUI [1]
C0003364
Antihypertensive agents: At discharge?
Description

Antihypertensive agents

Data type

integer

Alias
UMLS CUI [1]
C0003364
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
Description

Statins

Data type

integer

Alias
UMLS CUI [1]
C0360714
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
Description

Statins

Data type

integer

Alias
UMLS CUI [1]
C0360714
ASA (e.g. Trombyl): At onset?
Description

ASA

Data type

integer

Alias
UMLS CUI [1]
C0004057
ASA (e.g. Trombyl): At discharge?
Description

ASA

Data type

integer

Alias
UMLS CUI [1]
C0004057
Clopidogrel (e.g. Plavix): At onset?
Description

Clopidogrel

Data type

integer

Alias
UMLS CUI [1]
C0070166
Clopidogrel (e.g. Plavix): At discharge?
Description

Clopidogrel

Data type

integer

Alias
UMLS CUI [1]
C0070166
ASA + dipyridamole (Asasantin): At onset?
Description

ASA + dipyridamole

Data type

integer

Alias
UMLS CUI [1]
C0626271
ASA + dipyridamole (Asasantin): At discharge?
Description

ASA + dipyridamole

Data type

integer

Alias
UMLS CUI [1]
C0626271
Dipyridamole (Persantin): At onset?
Description

Dipyridamole

Data type

integer

Alias
UMLS CUI [1]
C0012582
Dipyridamole (Persantin): At discharge?
Description

Dipyridamole

Data type

integer

Alias
UMLS CUI [1]
C0012582
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
Description

Antithrombotic drugs

Data type

integer

Alias
UMLS CUI [1]
C1704311
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
Description

Antithrombotic drugs

Data type

integer

Alias
UMLS CUI [1]
C1704311
Warfarin (Waran): At onset?
Description

Warfarin

Data type

integer

Alias
UMLS CUI [1]
C0043031
If yes, treatment with warfarin at onset state PK (INR) value regardless of diagnosis
Description

9.9= not known

Data type

float

Alias
UMLS CUI [1]
C0525032
Apixaban (Eliquis): At onset?
Description

Apixaban

Data type

integer

Alias
UMLS CUI [1]
C1831808
Apixaban (Eliquis): At discharge?
Description

Apixaban

Data type

integer

Alias
UMLS CUI [1]
C1831808
Dabigatran (Pradaxa): At onset?
Description

Dabigatran

Data type

integer

Alias
UMLS CUI [1]
C2348066
Dabigatran (Pradaxa): At discharge?
Description

Dabigatran

Data type

integer

Alias
UMLS CUI [1]
C2348066
Rivaroxaban (Xarelto): At onset?
Description

Rivaroxaban

Data type

integer

Alias
UMLS CUI [1]
C1739768
Rivaroxaban (Xarelto): At discharge?
Description

Rivaroxaban

Data type

integer

Alias
UMLS CUI [1]
C1739768
Peroral anticoagulants other than the above: At onset?
Description

Peroral anticoagulants

Data type

integer

Alias
UMLS CUI [1]
C0354604
Peroral anticoagulants other than the above: At discharge?
Description

Peroral anticoagulants

Data type

integer

Alias
UMLS CUI [1]
C0354604
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
Description

peroral anticoagulants

Data type

integer

Alias
UMLS CUI [1,1]
C0354604
UMLS CUI [1,2]
C0392360
Thrombolysis
Description

Thrombolysis

Alias
UMLS CUI-1
C0040044
UMLS CUI-2
C0038454
Thrombolysis – performed for stroke e.g. Actilyse
Description

(if treatment was started but interrupted / not completed please respond using 1= yes)

Data type

integer

Alias
UMLS CUI [1]
C0040044
Reason thrombolysis not performed
Description

Reason thrombolysis not performed

Data type

integer

Alias
UMLS CUI [1,1]
C1272236
UMLS CUI [1,2]
C0392360
Start date thrombolytic therapy
Description

Start date thrombolytic therapy

Data type

date

Alias
UMLS CUI [1,1]
C0040044
UMLS CUI [1,2]
C1301880
Start time thrombolytic therapy
Description

Start time thrombolytic therapy

Data type

time

Alias
UMLS CUI [1,1]
C0040044
UMLS CUI [1,2]
C1301880
NIHSS (National Institute of Health Stroke Scale) at thrombolysis start using Riksstroke's NIHSS form
Description

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Description

NIHSS based on Riksstroke's NIHSS form

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
NIHSS 24 hours after thrombolysis using Riksstroke's NIHSS form
Description

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Description

NIHSS based on Riksstroke's NIHSS form

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0040044
Complete symptom regression after thrombolysis within 24 hours of onset?
Description

symptom regression

Data type

integer

Alias
UMLS CUI [1,1]
C0684320
UMLS CUI [1,2]
C1457887
UMLS CUI [1,3]
C0040044
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
Description

(Respond using 1=yes only if the patient has clinically deteriorated by 4 points or more on the NIHSS, irrespective of how large an haemorrhage the CT scan shows).

Data type

integer

Alias
UMLS CUI [1,1]
C2937358
UMLS CUI [1,2]
C1279889
UMLS CUI [2]
C0040044
Enter Riks-Stroke hospital code where thrombolysis was performed
Description

888= code for overseas 999= hospital code not known

Data type

integer

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C1827636
UMLS CUI [2]
C0040044
Thrombectomy
Description

Thrombectomy

Alias
UMLS CUI-1
C0162578
UMLS CUI-2
C0038454
Thrombectomy or other catheter-based (endovascular) stroke therapy
Description

(For intracranial vessels. If treatment was started but interrupted / not completed, please respond using 1= yes)

Data type

integer

Alias
UMLS CUI [1]
C0162578
state date of a thrombectomy or other catheter-based (endovascular) therapy
Description

state date of thrombectomy

Data type

date

Alias
UMLS CUI [1,1]
C0162578
UMLS CUI [1,2]
C0808070
state time of a thrombectomy or other catheter-based (endovascular) therapy
Description

state time of thrombectomy

Data type

time

Alias
UMLS CUI [1,1]
C0162578
UMLS CUI [1,2]
C0040223
NIHSS at start of thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
Description

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Description

NIHSS based on Riksstroke's NIHSS form

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
NIHSS 24 hours after thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
Description

(State total score; if score >= 24, state 24 p) 99= not known/not examined

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
Description

NIHSS based on Riksstroke's NIHSS form

Data type

integer

Alias
UMLS CUI [1]
C3476804
UMLS CUI [2]
C0162578
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
Description

symptom regression after thrombolysis

Data type

integer

Alias
UMLS CUI [1,1]
C0684320
UMLS CUI [1,2]
C1457887
UMLS CUI [2]
C0162578
Enter Riks-Stroke hospital code where the thrombectomy or other catheter-based (endovascular) therapy was performed
Description

888= code for overseas 999= hospital code not known

Data type

integer

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C1827636
UMLS CUI [2]
C0162578
Hemicraniectomy
Description

Hemicraniectomy

Alias
UMLS CUI-1
C0195897
UMLS CUI-2
C0038454
Hemicraniectomy performed for expansive ischaemic stroke
Description

Hemicraniectomy

Data type

integer

Alias
UMLS CUI [1]
C0195897
Please state date of hemicraniectomy
Description

date of hemicraniectomy

Data type

date

Alias
UMLS CUI [1,1]
C0195897
UMLS CUI [1,2]
C0011008
Enter Riks-Stroke hospital code where thrombolysis was performed
Description

hospital code

Data type

text

Alias
UMLS CUI [1,1]
C0019994
UMLS CUI [1,2]
C1827636
UMLS CUI [2]
C0195897
UMLS CUI [3]
C0040044
Information and Follow-up
Description

Information and Follow-up

Alias
UMLS CUI-1
C1522577
UMLS CUI-2
C1533716
UMLS CUI-3
C1955348
UMLS CUI-4
C0038454
Smoker informed at onset of need to quit smoking
Description

Smoker informed of need to quit smoking

Data type

integer

Alias
UMLS CUI [1,1]
C1273715
UMLS CUI [1,2]
C1272683
Information provided regarding driving
Description

Information provided regarding driving

Data type

integer

Alias
UMLS CUI [1,1]
C0004379
UMLS CUI [1,2]
C1533716
UMLS CUI [1,3]
C0038454
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
Description

follow-up appointment

Data type

integer

Alias
UMLS CUI [1,1]
C0589121
UMLS CUI [1,2]
C0586344
Rehabilitation
Description

Rehabilitation

Alias
UMLS CUI-1
C0034991
UMLS CUI-2
C0038454
Did an occupational therapist evaluate the patient after arrival in the ward/department?
Description

The answer should specify how long after arrival on the ward the patient was evaluated by an occupational therapist. (Does not apply to patients in palliative care, where evaluation can be done by a nurse or doctor). The evaluation should be based on a face-to-face meeting and should determine any need for occupational therapy during the patient's stay in hospital. Evaluation day 1 is counted as of the date of the patient's admission to hospital, irrespective of ward/department. The time spent in the emergency department should not be included. If the patient was already admitted to hospital at the time of the onset of stroke, count day 1 from date of onset. If the patient has come from another hospital, the first evaluation should be recorded as not known if no handover of the occupational therapist's evaluation has taken place.

Data type

integer

Alias
UMLS CUI [1,1]
C1444296
UMLS CUI [1,2]
C0028807
Has the patient received occupational therapy?
Description

occupational therapy

Data type

integer

Alias
UMLS CUI [1,1]
C0949766
UMLS CUI [1,2]
C1318464
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
Description

Non-weekday refers to Saturdays, Sundays and public holidays

Data type

integer

Alias
UMLS CUI [1,1]
C0949766
UMLS CUI [1,2]
C1318464
Did a physiotherapist evaluate the patient after arrival in the ward/department?
Description

The answer should specify how long after arrival on the ward the patient was evaluated by a physiotherapist. (Does not apply to patients in palliative care, where evaluation can be done by a nurse or doctor). The evaluation should be based on a face-to-face meeting and should determine any need for physiotherapy during the patient's stay in hospital. Evaluation day 1 is counted as of the date of the patient's admission to hospital, irrespective of ward/department. The time spent in the emergency department should not be included. If the patient was already admitted to hospital at the time of the onset of stroke, count day 1 from date of onset. If the patient has come from another hospital, the first evaluation should be recorded as not known if no handover of the physiotherapist's evaluation has taken place.

Data type

integer

Alias
UMLS CUI [1,1]
C0679830
UMLS CUI [1,2]
C2362565
Has the patient received physiotherapy?
Description

(Question refers to the total time spent in hospital and also rehab while in hospital.) The answer should specify how much physiotherapy the patient received during the total time spent in hospital. Please note that the time spent by the patient receiving treatment in the rehab ward while in hospital should also be included. The answer should specify the total time on average spent in physiotherapy per day, during that portion of time when treatment for the patient was considered necessary (applies to all 7 days of the week). Physiotherapy refers to evaluation/treatment carried out by a physiotherapist or physiotherapy assistant following transfer of tasks from the physiotherapist. Ongoing assessments during the care event (with the exception of the arrival assessment) are included in the period of treatment. Administration relating to the patient is not included in the period of treatment. - Other influencing factors; e.g. isolation, or patient unavailable due to his/her undergoing examination, are assessed as 3. - Patients unable to respond because of severe cognitive impairment/dementia or aphasia are assessed as 4. - Patients who have neither sensorimotor nor cognitive impairment and who have not received treatment, and also patients in palliative care, are assessed as 5.

Data type

integer

Alias
UMLS CUI [1]
C0949766
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
Description

Non-weekday refers to Saturdays, Sundays and public holidays

Data type

integer

Alias
UMLS CUI [1]
C0949766

Similar models

Acute Phase for Registration of Stroke

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Acute Phase for Registration of Stroke - Personal Information
C0038454 (UMLS CUI-1)
C0439557 (UMLS CUI-2)
C0011900 (UMLS CUI-3)
C1955348 (UMLS CUI-4)
C0034975 (UMLS CUI-5)
Personal ID number
Item
Personal ID number
integer
C2348585 (UMLS CUI [1])
Item
Gender
integer
C0079399 (UMLS CUI [1])
Code List
Gender
CL Item
male (1)
CL Item
female (2)
Name
Item
Name
text
C1299487 (UMLS CUI [1])
Date of onset stroke
Item
Date of onset stroke
date
C0038454 (UMLS CUI [1,1])
C0574845 (UMLS CUI [1,2])
Diagnosis Code
Item
Diagnosis Code (I / G)
text
C1550350 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
Item Group
Sequence of care
C0017313 (UMLS CUI-1)
C0679878 (UMLS CUI-2)
C0038454 (UMLS CUI-3)
Reporting hospital
Item
Reporting hospital
text
C0019994 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
Reporting Ward/department
Item
Reporting Ward/department
text
C0019961 (UMLS CUI [1,1])
C0700287 (UMLS CUI [1,2])
name of person completing this form
Item
Completed by (name of person completing this form)
text
C1550483 (UMLS CUI [1,1])
C0027365 (UMLS CUI [1,2])
Date deceased
Item
Date deceased (Complete only if patient died during treatment period)
date
C1148348 (UMLS CUI [1])
admitted for treatment for this stroke episode
Item
Has the patient been admitted for treatment for this stroke episode?
boolean
C0038454 (UMLS CUI [1,1])
C0332189 (UMLS CUI [1,2])
C0087111 (UMLS CUI [1,3])
already admitted at the hospital at the time of this stroke episode
Item
Was the patient already admitted at the hospital at the time of this stroke episode?
boolean
C3489408 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C0332189 (UMLS CUI [1,3])
Stroke time of onset
Item
Stroke time of onset
time
C0038454 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
Item
Number of hours from onset to arrival at hospital
integer
C0038454 (UMLS CUI [1,1])
C0449244 (UMLS CUI [1,2])
C1320532 (UMLS CUI [1,3])
C0449238 (UMLS CUI [1,4])
Code List
Number of hours from onset to arrival at hospital
CL Item
< 3 hrs  (1)
CL Item
< 4.5 hrs  (2)
CL Item
< 24 hrs  (3)
CL Item
> 24 hrs (4)
CL Item
not known (5)
CL Item
 (6)
Item
Did the patient wake up with symptoms?
integer
C1457887 (UMLS CUI [1,1])
C0038454 (UMLS CUI [1,2])
C1170730 (UMLS CUI [1,3])
Code List
Did the patient wake up with symptoms?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Thrombolysis alarm “save the brain/stroke alarm”
integer
C0040044 (UMLS CUI [1,1])
C2956061 (UMLS CUI [1,2])
Code List
Thrombolysis alarm “save the brain/stroke alarm”
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Did the patient arrive by ambulance?
integer
C0002422 (UMLS CUI [1,1])
C0150390 (UMLS CUI [1,2])
Code List
Did the patient arrive by ambulance?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Initially admitted to another hospital at the time of this stroke episode
integer
C0038454 (UMLS CUI [1,1])
C0332189 (UMLS CUI [1,2])
C0184666 (UMLS CUI [1,3])
Code List
Initially admitted to another hospital at the time of this stroke episode
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Date of arrival at hospital
Item
Date of arrival at hospital
date
C3263562 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Time of arrival at hospital
Item
Time of arrival at hospital
time
C1320532 (UMLS CUI [1])
Date of arrival at stroke unit
Item
Date of arrival at stroke unit
date
C0587502 (UMLS CUI [1,1])
C3263562 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Time of arrival at stroke unit
Item
Time of arrival at stroke unit
time
C0587502 (UMLS CUI [1,1])
C3263562 (UMLS CUI [1,2])
C0040223 (UMLS CUI [1,3])
Item
First admitted to a
integer
C0184666 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Code List
First admitted to a
CL Item
general ward or ward other than those specified in choice of response 2 or 3, 4 or 6 (1)
CL Item
stroke unit  (2)
CL Item
admissions/obs. ward  (3)
CL Item
intensive care unit (4)
CL Item
other (please specify) (5)
CL Item
Department of Neurosurgery  (6)
CL Item
not known (7)
department admitted to
Item
First admitted to "Other", please specify
text
C0184666 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Item
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
integer
C0679878 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Code List
Continued care during the acute phase; also applies to care provided in other hospitals during the acute phase (You can choose more than one response)
CL Item
general ward or ward other than those specified in choice of response 2 or 3, 4 or 6 (1)
CL Item
stroke unit  (2)
CL Item
admissions/obs. ward  (3)
CL Item
intensive care unit (4)
CL Item
other (please specify) (5)
CL Item
Department of Neurosurgery  (6)
CL Item
not known (7)
Continued care during the acute phase department
Item
Continued care during the acute phase department "Other", please specify
text
C0679878 (UMLS CUI [1,1])
C1704729 (UMLS CUI [1,2])
Date of discharge
Item
Date of discharge
date
C2361123 (UMLS CUI [1])
Number of days at stroke unit, intensive care unit or department of neurosurgery
Item
Number of days at stroke unit, intensive care unit or department of neurosurgery
integer
C4019086 (UMLS CUI [1])
C0021708 (UMLS CUI [2])
C0587502 (UMLS CUI [3])
C1552762 (UMLS CUI [4])
Item
After acute care the patient is discharged to
integer
C0030685 (UMLS CUI [1,1])
C1550391 (UMLS CUI [1,2])
C0679878 (UMLS CUI [2])
Code List
After acute care the patient is discharged to
CL Item
own accommodation  (1)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, old people's home or nursing home) (2)
CL Item
other acute-care department (=complete Aftercare)  (3)
CL Item
Geriatrics/Rehab (=complete Aftercare) (4)
CL Item
deceased during treatment  (5)
CL Item
other (e.g. the patient is resident in another country)  (6)
CL Item
not known  (7)
CL Item
still in hospital  (8)
CL Item
other stroke unit for aftercare (= complete Aftercare) (9)
CL Item
health centre with emergency beds (= complete Aftercare) (10)
Address and phone number of the place to which the patient is discharged
Item
Address and phone number of the place to which the patient is discharged
text
C1550391 (UMLS CUI [1])
C1515258 (UMLS CUI [2])
C1442065 (UMLS CUI [3])
C0679878 (UMLS CUI [4])
Item
PLANNED REHABILITATION after discharge from ACUTE CARE
integer
C0034991 (UMLS CUI [1])
C0679878 (UMLS CUI [2])
Code List
PLANNED REHABILITATION after discharge from ACUTE CARE
CL Item
home rehabilitation provided by a multidisciplinary rehabilitation team (including available doctor) with specialist knowledge in stroke care (1)
CL Item
other home rehabilitation (2)
CL Item
day rehabilitation or equivalent (refers to team-based rehabilitation for a defined period of time) (3)
CL Item
polyclinical rehabilitation (refers to rehabilitation with individual visits) (4)
CL Item
no need for rehabilitation in team's opinion (5)
CL Item
care accommodation with rehab (e.g. arranged accommodation, service flat with full board, temporary accommodation or nursing home) (6)
CL Item
patient does not want the rehabilitation offered (7)
CL Item
rehabilitation is needed but not available (8)
CL Item
not known (9)
CL Item
 (10)
Item Group
Aftercare
C0001758 (UMLS CUI-1)
C0017313 (UMLS CUI-2)
C0038454 (UMLS CUI-3)
Date of arrival aftercare
Item
Date of arrival aftercare
date
C0001758 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
Date of discharge Aftercare
Item
Date of discharge Aftercare
date
C0001758 (UMLS CUI [1,1])
C2361123 (UMLS CUI [1,2])
Item
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
integer
C0030685 (UMLS CUI [1,1])
C1550391 (UMLS CUI [1,2])
C0001758 (UMLS CUI [2])
Code List
When AFTERCARE is complete THE PATIENT IS DISCHARGED TO
CL Item
own accommodation  (1)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, old people's home or nursing home)  (2)
CL Item
other acute-care department  (3)
CL Item
deceased during treatment  (4)
CL Item
other (e.g. the patient is resident in another country)  (5)
CL Item
not known  (6)
CL Item
still in hospital  (7)
Address and phone number of the place to which the patient is discharged
Item
Address and phone number of the place to which the patient is discharged
text
C1550391 (UMLS CUI [1])
C1515258 (UMLS CUI [2])
C1442065 (UMLS CUI [3])
C0001758 (UMLS CUI [4])
Item
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
integer
C0034991 (UMLS CUI [1])
C0001758 (UMLS CUI [2])
Code List
PLANNED REHABILITATION after discharge from AFTERCARE (you can choose more than one response)
CL Item
home rehabilitation provided by a multidisciplinary rehabilitation team (including available doctor) with specialist knowledge in stroke care (1)
CL Item
other home rehabilitation (2)
CL Item
day rehabilitation or equivalent (refers to team-based rehabilitation for a defined period of time) (3)
CL Item
polyclinical rehabilitation (refers to rehabilitation with individual visits) (4)
CL Item
no need for rehabilitation in team's opinion (5)
CL Item
care accommodation with rehab (e.g. arranged accommodation, service flat with full board, temporary accommodation or nursing home) (6)
CL Item
patient does not want the rehabilitation offered (7)
CL Item
rehabilitation is needed but not available (8)
CL Item
not known (9)
CL Item
 (10)
Item Group
ADL/Accommodation BEFORE ONSET of stroke
C0595920 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
C1955348 (UMLS CUI-3)
Item
Accommodation
integer
C0595920 (UMLS CUI [1])
Code List
Accommodation
CL Item
own accommodation without home help (home help does not mean home nursing or advanced home nursing) (1)
CL Item
own accommodation with home help (home help does not mean home nursing or advanced home nursing) (2)
CL Item
arranged accommodation (e.g. service flat with full board, temporary accommodation, nursing home or equivalent) (3)
CL Item
other (please specify) (4)
Item
Those living alone
integer
C0439044 (UMLS CUI [1])
Code List
Those living alone
CL Item
patient lives entirely on his/her own (1)
CL Item
patient shares his/her household with spouse/partner or other person e.g. sibling, child or parents  (2)
Item
Need for assistance
integer
C1521721 (UMLS CUI [1,1])
C3840284 (UMLS CUI [1,2])
Code List
Need for assistance
CL Item
patient can cope on his/her own without assistance  (1)
CL Item
patient requires assistance from another person  (2)
Item
Mobility
integer
C0449580 (UMLS CUI [1])
Code List
Mobility
CL Item
patient could move around without supervision both indoors and outdoors (use (1)
CL Item
of walking-aid permitted) (2)
CL Item
patient was able to move around by himself/herself indoors but not outdoors (2)
CL Item
patient was assisted by another person when moving around, or was bedridden (3)
Item
Toilet visits
integer
C0562816 (UMLS CUI [1])
Code List
Toilet visits
CL Item
patient managed toilet visits without any help (1)
CL Item
patient was unable to get to the bathroom or go to the toilet without help, (2)
Item
Clothes
integer
C0518459 (UMLS CUI [1])
Code List
Clothes
CL Item
patient was able to get dressed without help, including outdoor clothes, socks and shoes, or only needed help when tying shoelaces (1)
CL Item
patient needed someone to fetch his/her clothes or needed help with dressing/undressing, or remained undressed (2)
Item Group
Risk Factors Stroke
C0035648 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Previous stroke
integer
C0559159 (UMLS CUI [1])
Code List
Previous stroke
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Previous TIA / Amaurosis fugax?
integer
C0149793 (UMLS CUI [1])
C0007787 (UMLS CUI [2])
Code List
Previous TIA / Amaurosis fugax?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Auricular fibrillation, previously diagnosed
integer
C0004238 (UMLS CUI [1])
Code List
Auricular fibrillation, previously diagnosed
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Auricular fibrillation, recently identified on arrival at hospital or during treatment
integer
C0004238 (UMLS CUI [1])
Code List
Auricular fibrillation, recently identified on arrival at hospital or during treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Diabetes, previously diagnosed or recently identified
integer
C0011849 (UMLS CUI [1])
Code List
Diabetes, previously diagnosed or recently identified
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Treated for hypertension at onset of stroke
integer
C0020538 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
Code List
Treated for hypertension at onset of stroke
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Smoker (>1 cigarette/day, or quit during the last three months)
integer
C0543414 (UMLS CUI [1])
Code List
Smoker (>1 cigarette/day, or quit during the last three months)
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item Group
Acute Care/Diagnosis Stroke
C0038454 (UMLS CUI-1)
C0679878 (UMLS CUI-2)
C0011900 (UMLS CUI-3)
Item
Level of consciousness on arrival at hospital
integer
C0234425 (UMLS CUI [1])
Code List
Level of consciousness on arrival at hospital
CL Item
fully awake (RLS 1)  (1)
CL Item
drowsy but responding to stimulus (RLS 2-3)  (2)
CL Item
unconscious (RLS 4-8) (3)
CL Item
not known (4)
NIHSS at admission
Item
First NIHSS (National Institute of Health Stroke Scale) at admission (within 24 hrs) using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Has the ability to swallow been tested?
integer
C0566355 (UMLS CUI [1,1])
C0430022 (UMLS CUI [1,2])
Code List
Has the ability to swallow been tested?
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not examined due to patient's reduced consciousness  (3)
Item
Has the patient been evaluated by a speech therapist for difficulties with speech?
integer
C0233715 (UMLS CUI [1,1])
C0679830 (UMLS CUI [1,2])
C0402015 (UMLS CUI [1,3])
Code List
Has the patient been evaluated by a speech therapist for difficulties with speech?
CL Item
yes  (1)
CL Item
no; no need  (2)
CL Item
no; no speech therapist available (3)
CL Item
no, but arranged for period after discharge  (4)
Item
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
integer
C0566355 (UMLS CUI [1,1])
C0679830 (UMLS CUI [1,2])
C0402015 (UMLS CUI [1,3])
Code List
Has the patient been evaluated by a speech therapist or another dysphagia specialist for difficulties with swallowing during the period of treatment?
CL Item
yes  (1)
CL Item
no; no need  (2)
CL Item
no; no speech therapist or other dysphagia specialist available  (3)
CL Item
not known (4)
CL Item
nej  (5)
CL Item
okänt eller patient avböjer bedömning (9)
Item
CT brain scan during treatment
integer
C0412585 (UMLS CUI [1])
Code List
CT brain scan during treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
MRI brain scan during treatment
integer
C0412675 (UMLS CUI [1])
Code List
MRI brain scan during treatment
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
If yes, MR brain scan during acute phase:
integer
C0412675 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
Code List
If yes, MR brain scan during acute phase:
CL Item
shows new cerebral infarction  (1)
CL Item
shows no new cerebral infarction (2)
CL Item
examination result uncertain or not known (3)
Item
Carotid ultrasound performed
integer
C0948945 (UMLS CUI [1])
Code List
Carotid ultrasound performed
CL Item
yes  (1)
CL Item
no  (2)
CL Item
examination performed no more than 28 days before onset (3)
CL Item
not known (4)
Carotid ultrasound date
Item
If yes, examination date
date
C0948945 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
CT angiography performed
integer
C1536105 (UMLS CUI [1])
Code List
CT angiography performed
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not examined due to patient's reduced consciousness  (3)
CT angiography date
Item
If yes, examination date
date
C0085532 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
MR angiography performed
integer
C0002978 (UMLS CUI [1])
Code List
MR angiography performed
CL Item
yes  (1)
CL Item
no  (2)
CL Item
examination performed no more than 28 days before onset (3)
CL Item
not known (4)
MR angiography date
Item
If yes, examination date
date
C0002978 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
CT or MR angiography performed of vessels affected
integer
C0002978 (UMLS CUI [1])
Code List
CT or MR angiography performed of vessels affected
CL Item
carotid vessels  (1)
CL Item
intracranial vessels  (2)
CL Item
both carotid and intracranial vessels  (3)
CL Item
not known (4)
Item
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
integer
C0430461 (UMLS CUI [1])
Code List
Long term ECG (telemetry, Holter or equivalent) performed during period of treatment
CL Item
yes  (1)
CL Item
no  (2)
CL Item
no, but arranged for period after discharge  (3)
CL Item
not known (4)
Item Group
Pharmaceutical Treatment
C0013227 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
C0038454 (UMLS CUI-3)
Item
Antihypertensive agents: At onset?
integer
C0003364 (UMLS CUI [1])
Code List
Antihypertensive agents: At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antihypertensive agents: At discharge?
integer
C0003364 (UMLS CUI [1])
Code List
Antihypertensive agents: At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
integer
C0360714 (UMLS CUI [1])
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
integer
C0360714 (UMLS CUI [1])
Code List
Statins (e.g. Atorvastatin, Crestor, Lipitor, Pravastatin, Simvastatin): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA (e.g. Trombyl): At onset?
integer
C0004057 (UMLS CUI [1])
Code List
ASA (e.g. Trombyl): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA (e.g. Trombyl): At discharge?
integer
C0004057 (UMLS CUI [1])
Code List
ASA (e.g. Trombyl): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Clopidogrel (e.g. Plavix): At onset?
integer
C0070166 (UMLS CUI [1])
Code List
Clopidogrel (e.g. Plavix): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Clopidogrel (e.g. Plavix): At discharge?
integer
C0070166 (UMLS CUI [1])
Code List
Clopidogrel (e.g. Plavix): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA + dipyridamole (Asasantin): At onset?
integer
C0626271 (UMLS CUI [1])
Code List
ASA + dipyridamole (Asasantin): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
ASA + dipyridamole (Asasantin): At discharge?
integer
C0626271 (UMLS CUI [1])
Code List
ASA + dipyridamole (Asasantin): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dipyridamole (Persantin): At onset?
integer
C0012582 (UMLS CUI [1])
Code List
Dipyridamole (Persantin): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dipyridamole (Persantin): At discharge?
integer
C0012582 (UMLS CUI [1])
Code List
Dipyridamole (Persantin): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
integer
C1704311 (UMLS CUI [1])
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
integer
C1704311 (UMLS CUI [1])
Code List
Antithrombotic drugs other than ASA, clopidogrel and dipyradimole (e.g. Brilique, Efient, Pletal, Possia): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Warfarin (Waran): At onset?
integer
C0043031 (UMLS CUI [1])
Code List
Warfarin (Waran): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
PK (INR) value
Item
If yes, treatment with warfarin at onset state PK (INR) value regardless of diagnosis
float
C0525032 (UMLS CUI [1])
Item
Apixaban (Eliquis): At onset?
integer
C1831808 (UMLS CUI [1])
Code List
Apixaban (Eliquis): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Apixaban (Eliquis): At discharge?
integer
C1831808 (UMLS CUI [1])
Code List
Apixaban (Eliquis): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dabigatran (Pradaxa): At onset?
integer
C2348066 (UMLS CUI [1])
Code List
Dabigatran (Pradaxa): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Dabigatran (Pradaxa): At discharge?
integer
C2348066 (UMLS CUI [1])
Code List
Dabigatran (Pradaxa): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Rivaroxaban (Xarelto): At onset?
integer
C1739768 (UMLS CUI [1])
Code List
Rivaroxaban (Xarelto): At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Rivaroxaban (Xarelto): At discharge?
integer
C1739768 (UMLS CUI [1])
Code List
Rivaroxaban (Xarelto): At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Peroral anticoagulants other than the above: At onset?
integer
C0354604 (UMLS CUI [1])
Code List
Peroral anticoagulants other than the above: At onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Peroral anticoagulants other than the above: At discharge?
integer
C0354604 (UMLS CUI [1])
Code List
Peroral anticoagulants other than the above: At discharge?
CL Item
yes (1)
CL Item
no (2)
CL Item
no, intervention planned at time of follow-up appointment within two weeks after discharge (3)
CL Item
not known (4)
Item
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
integer
C0354604 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
Code List
Main reason for non-intervention with peroral anticoagulants at time of discharge in the case of atrial fibrillation and diagnosis I63
CL Item
insertion planned after discharge 2= contraindications (in accordance with FASS) (1)
CL Item
interactions with other drugs/neuropathy (in accordance with FASS) (3)
CL Item
caution (in accordance with FASS) (4)
CL Item
fall-prone  (5)
CL Item
dementia  (6)
CL Item
patient refuses treatment  (7)
CL Item
other reason  (8)
CL Item
not known (9)
CL Item
kontraindicerat (enl. FASS) (2)
Item Group
Thrombolysis
C0040044 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Thrombolysis – performed for stroke e.g. Actilyse
integer
C0040044 (UMLS CUI [1])
Code List
Thrombolysis – performed for stroke e.g. Actilyse
CL Item
yes  (1)
CL Item
no  (2)
CL Item
yes, included in study  (3)
CL Item
not known (4)
Item
Reason thrombolysis not performed
integer
C1272236 (UMLS CUI [1,1])
C0392360 (UMLS CUI [1,2])
Code List
Reason thrombolysis not performed
CL Item
cerebral haemorrhage  (1)
CL Item
symptoms too mild (2)
CL Item
symptoms too severe (3)
CL Item
not possible to administer treatment in time (within 4.5 hrs) (4)
CL Item
other contraindications for thrombolysis (5)
CL Item
other reason  (6)
CL Item
no “save the brain” alarm (7)
CL Item
necessary expertise not available (e.g. doctor with thrombolysis experience, assessment of scans)  (8)
CL Item
not known (9)
Start date thrombolytic therapy
Item
Start date thrombolytic therapy
date
C0040044 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
Start time thrombolytic therapy
Item
Start time thrombolytic therapy
time
C0040044 (UMLS CUI [1,1])
C1301880 (UMLS CUI [1,2])
NIHSS at thrombolysis
Item
NIHSS (National Institute of Health Stroke Scale) at thrombolysis start using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
NIHSS after thrombolysis
Item
NIHSS 24 hours after thrombolysis using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0040044 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Complete symptom regression after thrombolysis within 24 hours of onset?
integer
C0684320 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C0040044 (UMLS CUI [1,3])
Code List
Complete symptom regression after thrombolysis within 24 hours of onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
integer
C2937358 (UMLS CUI [1,1])
C1279889 (UMLS CUI [1,2])
C0040044 (UMLS CUI [2])
Code List
Cerebral haemorrhage with clinical deterioration <36 hrs after start of therapy
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Riks-Stroke hospital code
Item
Enter Riks-Stroke hospital code where thrombolysis was performed
integer
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0040044 (UMLS CUI [2])
Item Group
Thrombectomy
C0162578 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Thrombectomy or other catheter-based (endovascular) stroke therapy
integer
C0162578 (UMLS CUI [1])
Code List
Thrombectomy or other catheter-based (endovascular) stroke therapy
CL Item
yes  (1)
CL Item
no  (2)
CL Item
yes, included in study  (3)
CL Item
not known (4)
state date of thrombectomy
Item
state date of a thrombectomy or other catheter-based (endovascular) therapy
date
C0162578 (UMLS CUI [1,1])
C0808070 (UMLS CUI [1,2])
state time of thrombectomy
Item
state time of a thrombectomy or other catheter-based (endovascular) therapy
time
C0162578 (UMLS CUI [1,1])
C0040223 (UMLS CUI [1,2])
NIHSS at start of thrombectomy
Item
NIHSS at start of thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
NIHSS 24 hours after thrombectomy
Item
NIHSS 24 hours after thrombectomy or other catheter-based (endovascular) therapy using Riksstroke's NIHSS form
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Item
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
integer
C3476804 (UMLS CUI [1])
C0162578 (UMLS CUI [2])
Code List
Is the NIHSS assessment up to 24 points complete based on Riksstroke's NIHSS form?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Item
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
integer
C0684320 (UMLS CUI [1,1])
C1457887 (UMLS CUI [1,2])
C0162578 (UMLS CUI [2])
Code List
Complete symptom regression after thrombolysis or other catheter-based (endovascular) therapy within 24 hours of onset?
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
Riks-Stroke hospital code
Item
Enter Riks-Stroke hospital code where the thrombectomy or other catheter-based (endovascular) therapy was performed
integer
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0162578 (UMLS CUI [2])
Item Group
Hemicraniectomy
C0195897 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Hemicraniectomy performed for expansive ischaemic stroke
integer
C0195897 (UMLS CUI [1])
Code List
Hemicraniectomy performed for expansive ischaemic stroke
CL Item
yes (1)
CL Item
no (2)
CL Item
not known (3)
date of hemicraniectomy
Item
Please state date of hemicraniectomy
date
C0195897 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
hospital code
Item
Enter Riks-Stroke hospital code where thrombolysis was performed
text
C0019994 (UMLS CUI [1,1])
C1827636 (UMLS CUI [1,2])
C0195897 (UMLS CUI [2])
C0040044 (UMLS CUI [3])
Item Group
Information and Follow-up
C1522577 (UMLS CUI-1)
C1533716 (UMLS CUI-2)
C1955348 (UMLS CUI-3)
C0038454 (UMLS CUI-4)
Item
Smoker informed at onset of need to quit smoking
integer
C1273715 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
Code List
Smoker informed at onset of need to quit smoking
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not relevant given patient's condition  (3)
CL Item
not known (4)
Item
Information provided regarding driving
integer
C0004379 (UMLS CUI [1,1])
C1533716 (UMLS CUI [1,2])
C0038454 (UMLS CUI [1,3])
Code List
Information provided regarding driving
CL Item
yes  (1)
CL Item
no  (2)
CL Item
not relevant/no driving licence  (3)
CL Item
not known (4)
Item
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
integer
C0589121 (UMLS CUI [1,1])
C0586344 (UMLS CUI [1,2])
Code List
Has a follow-up appointment on the basis of this stroke episode been made with a nurse or doctor?
CL Item
yes, at a special stroke unit (at or outside the hospital)  (1)
CL Item
yes, at another hospital admissions ward/department  (2)
CL Item
yes, at a health centre/equivalent (3)
CL Item
yes, at arranged accommodation (4)
CL Item
yes, at day rehab  (5)
CL Item
not known (7)
Item Group
Rehabilitation
C0034991 (UMLS CUI-1)
C0038454 (UMLS CUI-2)
Item
Did an occupational therapist evaluate the patient after arrival in the ward/department?
integer
C1444296 (UMLS CUI [1,1])
C0028807 (UMLS CUI [1,2])
Code List
Did an occupational therapist evaluate the patient after arrival in the ward/department?
CL Item
yes, ≤ 24 hrs (1)
CL Item
yes, > 24 hrs but ≤ 48 hrs  (2)
CL Item
yes, > 48 hrs (3)
CL Item
no (5)
CL Item
 (4)
Item
Has the patient received occupational therapy?
integer
C0949766 (UMLS CUI [1,1])
C1318464 (UMLS CUI [1,2])
Code List
Has the patient received occupational therapy?
CL Item
yes ≥ 30 min (1)
CL Item
yes < 30 min (2)
CL Item
no, but has needed it (3)
CL Item
no, has needed but not been able to take advantage of rehabilitation 5= no, has not needed it (4)
CL Item
patient has refused (6)
CL Item
not known (7)
CL Item
 (5)
Item
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
integer
C0949766 (UMLS CUI [1,1])
C1318464 (UMLS CUI [1,2])
Code List
Has patient in need of occupational therapy who received care on a non-weekday received occupational therapy?
CL Item
yes, part of weekend  (1)
CL Item
yes, entire weekend  (2)
CL Item
no  (3)
CL Item
not known (4)
Item
Did a physiotherapist evaluate the patient after arrival in the ward/department?
integer
C0679830 (UMLS CUI [1,1])
C2362565 (UMLS CUI [1,2])
Code List
Did a physiotherapist evaluate the patient after arrival in the ward/department?
CL Item
yes, ≤ 24 hrs (1)
CL Item
yes, > 24 hrs but ≤ 48 hrs  (2)
CL Item
yes, > 48 hrs (3)
CL Item
no (5)
CL Item
 (4)
Item
Has the patient received physiotherapy?
integer
C0949766 (UMLS CUI [1])
Code List
Has the patient received physiotherapy?
CL Item
yes ≥ 30 min (1)
CL Item
yes < 30 min (2)
CL Item
no, but has needed it (3)
CL Item
no, has needed but not been able to take advantage of rehabilitation 5= no, has not needed it (4)
CL Item
patient has refused (6)
CL Item
not known (7)
CL Item
 (5)
Item
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
integer
C0949766 (UMLS CUI [1])
Code List
Has patient in need of physiotherapy who received care on a non-weekday received physiotherapy?
CL Item
yes, part of weekend  (1)
CL Item
yes, entire weekend  (2)
CL Item
no  (3)
CL Item
not known (4)

Please use this form for feedback, questions and suggestions for improvements.

Fields marked with * are required.

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

Watch Tutorial