ID

17851

Beskrivning

Hospital Routine Documentation Form at the University Hospital Muenster. Original Form name: KIORTH CPChild MS. German description: CPChild Ein Index zur gesundheitsbezogenen Lebensqualität bei Menschen mit Behinderung

Nyckelord

  1. 2016-10-05 2016-10-05 -
  2. 2016-10-06 2016-10-06 - Julian Varghese
  3. 2016-12-05 2016-12-05 -
  4. 2021-04-13 2021-04-13 - Dr. rer. medic Philipp Neuhaus
  5. 2021-11-17 2021-11-17 -
Uppladdad den

5 oktober 2016

DOI

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Licens

Creative Commons BY-NC 3.0

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KIORTH CPChild MS University Hospital Muenster (UKM)

KIORTH CPChild MS University Hospital Muenster (UKM)

Allgemeines
Beskrivning

Allgemeines

Name des Kindes
Beskrivning

Name of child

Datatyp

text

Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
Beskrivning

Name of parents or caregiver

Datatyp

text

Date
Beskrivning

Datum

Datatyp

date

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Beskrivning

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
Beskrivning

Wie schwierig war Folgendes in den letzten 2 Wochen

Datatyp

integer

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
Beskrivning

Wie schwierig war Folgendes in den letzten 2 Wochen

Datatyp

integer

2 Mundhygiene (Zähne putzen): Schwierigkeit
Beskrivning

Wie schwierig war Folgendes in den letzten 2 Wochen

Datatyp

integer

2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
Beskrivning

Wie schwierig war Folgendes in den letzten 2 Wochen

Datatyp

integer

3 Waschen/Baden: Schwierigkeit
Beskrivning

Wie schwierig war Folgendes in den letzten 2 Wochen

Datatyp

integer

3 Waschen/Baden: Schwierigkeit
Beskrivning

Wie schwierig war Folgendes in den letzten 2 Wochen

Datatyp

integer

4. toileting activities: difficulty
Beskrivning

4. toileting activities: difficulty

Datatyp

integer

4. toileting activities: level of assistance
Beskrivning

4. toileting activities: level of assistance

Datatyp

integer

5. changing diapers/underwear: difficulty
Beskrivning

5. changing diapers/underwear: difficulty

Datatyp

integer

5. changing diapers/underwear: level of assistance
Beskrivning

5. changing diapers/underwear: level of assistance

Datatyp

integer

6. putting on/taking off upper body clothing: difficulty
Beskrivning

6. putting on/taking off upper body clothing: difficulty

Datatyp

integer

6. putting on/taking off upper body clothing: level of assistance
Beskrivning

6. putting on/taking off upper body clothing: level of assistance

Datatyp

integer

7. putting on/taking off lower body clothing: difficulty
Beskrivning

7. putting on/taking off lower body clothing: difficulty

Datatyp

integer

7. putting on/taking off lower body clothing: level of assistance
Beskrivning

7. putting on/taking off lower body clothing: level of assistance

Datatyp

integer

8. putting on/wearing footwear: difficulty
Beskrivning

8. putting on/wearing footwear: difficulty

Datatyp

integer

8. putting on/wearing footwear: level of assistance
Beskrivning

8. putting on/wearing footwear: level of assistance

Datatyp

integer

9. hair care: difficulty
Beskrivning

9. hair care: difficulty

Datatyp

integer

9. hair care: level of assistance
Beskrivning

9. hair care: level of assistance

Datatyp

integer

1A. other personal care activity
Beskrivning

1A. other personal care activity

Datatyp

text

1A. other personal care activity: difficulty
Beskrivning

1A. other personal care activity: difficulty

Datatyp

integer

1A. other personal care activity: level of assistance
Beskrivning

1A. other personal care activity: level of assistance

Datatyp

integer

1B. other personal care activity
Beskrivning

1B. other personal care activity

Datatyp

text

1B. other personal care activity: difficulty
Beskrivning

1B. other personal care activity: difficulty

Datatyp

integer

1B. other personal care activity: level of assistance
Beskrivning

1B. other personal care activity: level of assistance

Datatyp

integer

Part 1: difficulty score
Beskrivning

Part 1: difficulty score

Datatyp

text

Part 1: level of assistance score
Beskrivning

Part 1: level of assistance score

Datatyp

text

Part 1: total score
Beskrivning

Part 1: total score

Datatyp

text

2. Positioning, Transferring & Mobility
Beskrivning

2. Positioning, Transferring & Mobility

10. getting in and out of bed: difficulty
Beskrivning

10. getting in and out of bed: difficulty

Datatyp

integer

10. getting in and out of bed: level of assistance
Beskrivning

10. getting in and out of bed: level of assistance

Datatyp

integer

11. transferring into /out of a wheelchair/chair: difficulty
Beskrivning

11. transferring into /out of a wheelchair/chair: difficulty

Datatyp

integer

11. transferring into /out of a wheelchair/chair: level of assistance
Beskrivning

11. transferring into /out of a wheelchair/chair: level of assistance

Datatyp

integer

12. sitting in a wheelchair/chair: difficulty
Beskrivning

12. sitting in a wheelchair/chair: difficulty

Datatyp

integer

12. sitting in a wheelchair/chair: level of assistance
Beskrivning

12. sitting in a wheelchair/chair: level of assistance

Datatyp

integer

13. standing for exercise/transfers: difficulty
Beskrivning

13. standing for exercise/transfers: difficulty

Datatyp

integer

13. standing for exercise/transfers: level of assistance
Beskrivning

13. standing for exercise/transfers: level of assistance

Datatyp

integer

14. moving about in the home: difficulty
Beskrivning

14. moving about in the home: difficulty

Datatyp

integer

14. moving about in the home: level of assistance
Beskrivning

14. moving about in the home: level of assistance

Datatyp

integer

15. moving about outdoors: difficulty
Beskrivning

15. moving about outdoors: difficulty

Datatyp

integer

15. moving about outdoors: level of assistance
Beskrivning

15. moving about outdoors: level of assistance

Datatyp

integer

16. getting in and out of a motor vehicle: difficulty
Beskrivning

16. getting in and out of a motor vehicle: difficulty

Datatyp

integer

16. getting in and out of a motor vehicle: level of assistance
Beskrivning

16. getting in and out of a motor vehicle: level of assistance

Datatyp

integer

17. visiting public places: difficulty
Beskrivning

17. visiting public places: difficulty

Datatyp

integer

17. visiting public places: level of assistance
Beskrivning

17. visiting public places: level of assistance

Datatyp

integer

2A. other activity
Beskrivning

2A. other activity

Datatyp

text

2A. other activity: difficulty
Beskrivning

2A. other activity: difficulty

Datatyp

integer

2A. other activity: level of assistance
Beskrivning

2A. other activity: level of assistance

Datatyp

integer

2B. other activity
Beskrivning

2B. other activity

Datatyp

text

2B. other activity: difficulty
Beskrivning

2B. other activity: difficulty

Datatyp

integer

2B. other activity: level of assistance
Beskrivning

2B. other activity: level of assistance

Datatyp

integer

Part 2: difficulty score
Beskrivning

Part 2: difficulty score

Datatyp

text

Part 2: level of assistance score
Beskrivning

Part 2: level of assistance score

Datatyp

text

Part 2: total score
Beskrivning

Part 2: total score

Datatyp

text

3. Comfort & Emotions
Beskrivning

3. Comfort & Emotions

18. while eating/drinking or being fed: frequency
Beskrivning

18. while eating/drinking or being fed: frequency

Datatyp

integer

18. while eating/drinking or being fed: intensity
Beskrivning

18. while eating/drinking or being fed: intensity

Datatyp

integer

19. during toileting: frequency
Beskrivning

19. during toileting: frequency

Datatyp

integer

19. during toileting: intensity
Beskrivning

19. during toileting: intensity

Datatyp

integer

20. while dressing/undressing: frequency
Beskrivning

20. while dressing/undressing: frequency

Datatyp

integer

20. while dressing/undressing: intensity
Beskrivning

20. while dressing/undressing: intensity

Datatyp

integer

21. during transfers or position changes: frequency
Beskrivning

21. during transfers or position changes: frequency

Datatyp

integer

21. during transfers or position changes: intensity
Beskrivning

21. during transfers or position changes: intensity

Datatyp

integer

22. while seated: frequency
Beskrivning

22. while seated: frequency

Datatyp

integer

22. while seated: intensity
Beskrivning

22. while seated: intensity

Datatyp

integer

23. while lying down in bed: frequency
Beskrivning

23. while lying down in bed: frequency

Datatyp

integer

23. while lying down in bed: intensity
Beskrivning

23. while lying down in bed: intensity

Datatyp

integer

24. that disturbed your child’s sleep: frequency
Beskrivning

24. that disturbed your child’s sleep: frequency

Datatyp

integer

24. that disturbed your child’s sleep: intensity
Beskrivning

24. that disturbed your child’s sleep: intensity

Datatyp

integer

3A. during other activity
Beskrivning

3A. during other activity

Datatyp

text

3A. during other activity: frequency
Beskrivning

3A. during other activity: frequency

Datatyp

integer

3A. during other activity: intensity
Beskrivning

3A. during other activity: intensity

Datatyp

integer

3B. during other activity
Beskrivning

3B. during other activity

Datatyp

text

3B. during other activity: frequency
Beskrivning

3B. during other activity: frequency

Datatyp

integer

3B. during other activity: intensity
Beskrivning

3B. during other activity: intensity

Datatyp

integer

25. agitated, upset, or angry: frequency
Beskrivning

25. agitated, upset, or angry: frequency

Datatyp

integer

25. agitated, upset, or angry: intensity
Beskrivning

25. agitated, upset, or angry: intensity

Datatyp

integer

26. unhappy or sad: frequency
Beskrivning

26. unhappy or sad: frequency

Datatyp

integer

26. unhappy or sad: intensity
Beskrivning

26. unhappy or sad: intensity

Datatyp

integer

Part 3: frequency score
Beskrivning

Part 3: frequency score

Datatyp

text

Part 3: intensity score
Beskrivning

Part 3: intensity score

Datatyp

text

Part 3: total score
Beskrivning

Part 3: total score

Datatyp

text

4. Communication & Social Interaction
Beskrivning

4. Communication & Social Interaction

27. understanding you: difficulty
Beskrivning

27. understanding you: difficulty

Datatyp

integer

28. being understood by you: difficulty
Beskrivning

28. being understood by you: difficulty

Datatyp

integer

29. communicating with strangers: difficulty
Beskrivning

29. communicating with strangers: difficulty

Datatyp

integer

30. playing alone: difficulty
Beskrivning

30. playing alone: difficulty

Datatyp

integer

31. playing with others: difficulty
Beskrivning

31. playing with others: difficulty

Datatyp

integer

32. attending school/child care: difficulty
Beskrivning

32. attending school/child care: difficulty

Datatyp

integer

33. participating in recreational activities: difficulty
Beskrivning

33. participating in recreational activities: difficulty

Datatyp

integer

4A. other social activity
Beskrivning

4A. other social activity

Datatyp

text

4A. other social activity: difficulty
Beskrivning

4A. other social activity: difficulty

Datatyp

integer

4B. other social activity
Beskrivning

4B. other social activity

Datatyp

text

4B. other social activity: difficulty
Beskrivning

4B. other social activity: difficulty

Datatyp

integer

Part 4: total score
Beskrivning

Part 4: total score

Datatyp

text

5. Health
Beskrivning

5. Health

34. Visits of doctor/hospital: frequency
Beskrivning

34. Visits of doctor/hospital: frequency

Datatyp

integer

35. Overall health
Beskrivning

35. Overall health

Datatyp

integer

36. List of medications
Beskrivning

36. List of medications

Datatyp

text

Part 5: total score
Beskrivning

Part 5: total score

Datatyp

text

6. Overall Quality of Life
Beskrivning

6. Overall Quality of Life

37. Overall quality of life
Beskrivning

37. Overall quality of life

Datatyp

integer

Part 6: total score
Beskrivning

Part 6: total score

Datatyp

text

7. Importance of items to your child's quality of life
Beskrivning

7. Importance of items to your child's quality of life

1. Eating / drinking or being fed
Beskrivning

1. Eating / drinking or being fed

Datatyp

integer

2. Maintaining oral hygiene
Beskrivning

2. Maintaining oral hygiene

Datatyp

integer

3. Bathing / washing
Beskrivning

3. Bathing / washing

Datatyp

integer

4. Toileting activities / hygiene
Beskrivning

4. Toileting activities / hygiene

Datatyp

integer

5. Changing diapers / underwear
Beskrivning

5. Changing diapers / underwear

Datatyp

integer

6. Putting on/taking off upper clothing
Beskrivning

6. Putting on/taking off upper clothing

Datatyp

integer

7. Putting on/taking off lower clothing
Beskrivning

7. Putting on/taking off lower clothing

Datatyp

integer

8. Putting on / wearing footwear
Beskrivning

8. Putting on / wearing footwear

Datatyp

integer

9. Hair care / grooming
Beskrivning

9. Hair care / grooming

Datatyp

integer

10. Getting in and out of bed
Beskrivning

10. Getting in and out of bed

Datatyp

integer

11. Transferring into / out of a wheel chair / chair
Beskrivning

11. Transferring into / out of a wheel chair / chair

Datatyp

integer

12. Sitting in a wheelchair / chair
Beskrivning

12. Sitting in a wheelchair / chair

Datatyp

integer

13. Standing for exercise / transfers
Beskrivning

13. Standing for exercise / transfers

Datatyp

integer

14. Moving about indoors
Beskrivning

14. Moving about indoors

Datatyp

integer

15. Moving about outdoors
Beskrivning

15. Moving about outdoors

Datatyp

integer

16. Getting in / out of a motor vehicle
Beskrivning

16. Getting in / out of a motor vehicle

Datatyp

integer

17. Visiting public places
Beskrivning

17. Visiting public places

Datatyp

integer

18. Comfort while feeding
Beskrivning

18. Comfort while feeding

Datatyp

integer

19. Comfort during toileting activities
Beskrivning

19. Comfort during toileting activities

Datatyp

integer

20. Comfort while dressing /undressing
Beskrivning

20. Comfort while dressing /undressing

Datatyp

integer

21. Comfort during transfers or position changes
Beskrivning

21. Comfort during transfers or position changes

Datatyp

integer

22. Comfort while sitting
Beskrivning

22. Comfort while sitting

Datatyp

integer

23. Comfort while lying down
Beskrivning

23. Comfort while lying down

Datatyp

integer

24. Comfort while sleeping
Beskrivning

24. Comfort while sleeping

Datatyp

integer

25. Emotional state or behavior
Beskrivning

25. Emotional state or behavior

Datatyp

integer

26. Happiness
Beskrivning

26. Happiness

Datatyp

integer

27. Able to understand you
Beskrivning

27. Able to understand you

Datatyp

integer

28. Able to be understood by you
Beskrivning

28. Able to be understood by you

Datatyp

integer

29. Able to communicate with others
Beskrivning

29. Able to communicate with others

Datatyp

integer

30. Able to play alone
Beskrivning

30. Able to play alone

Datatyp

integer

31. Able to play with others
Beskrivning

31. Able to play with others

Datatyp

integer

32. Able to attend school / child care
Beskrivning

32. Able to attend school / child care

Datatyp

integer

33. Able to participate in recreational activities
Beskrivning

33. Able to participate in recreational activities

Datatyp

integer

34. Minimizing doctor visits and hospitalization
Beskrivning

34. Minimizing doctor visits and hospitalization

Datatyp

integer

35. Overall health
Beskrivning

35. Overall health

Datatyp

integer

36. Minimizing number of medications
Beskrivning

36. Minimizing number of medications

Datatyp

integer

Part 7: total score
Beskrivning

Part 7: total score

Datatyp

text

8. Facts about your child
Beskrivning

8. Facts about your child

Sex
Beskrivning

Sex

Datatyp

text

Date of birth
Beskrivning

Date of birth

Datatyp

date

Highest school grade completed
Beskrivning

Highest school grade completed

Datatyp

text

If ungraded, how many years attended?
Beskrivning

If ungraded, how many years attended?

Datatyp

text

9. Facts about you
Beskrivning

9. Facts about you

Sex
Beskrivning

Sex

Datatyp

text

Date of birth
Beskrivning

Date of birth

Datatyp

date

Current work status: Not working due to child’s health
Beskrivning

Current work status: Not working due to child’s health

Datatyp

boolean

Current work status: Not working for other reasons
Beskrivning

Current work status: Not working for other reasons

Datatyp

boolean

Current work status: Looking for work outside the home
Beskrivning

Current work status: Looking for work outside the home

Datatyp

boolean

Current work status: Working full or part time
Beskrivning

Current work status: Working full or part time

Datatyp

boolean

Current work status: Full time homemaker
Beskrivning

Current work status: Full time homemaker

Datatyp

boolean

Relationship to child: Biological Parent
Beskrivning

Relationship to child: Biological Parent

Datatyp

boolean

Relationship to child: Step Parent
Beskrivning

Relationship to child: Step Parent

Datatyp

boolean

Relationship to child: Foster Parent
Beskrivning

Relationship to child: Foster Parent

Datatyp

boolean

Relationship to child: Adoptive Parent
Beskrivning

Relationship to child: Adoptive Parent

Datatyp

boolean

Relationship to child: Guardian
Beskrivning

Relationship to child: Guardian

Datatyp

boolean

Relationship to child: Professional caregiver
Beskrivning

Relationship to child: Professional caregiver

Datatyp

boolean

Relationship to child: Other
Beskrivning

Relationship to child: Other

Datatyp

boolean

Relationship to child: Other (please explain)
Beskrivning

Relationship to child: Other (please explain)

Datatyp

text

Care giving (days per week)
Beskrivning

Care giving (days per week)

Datatyp

integer

Highest level of school completed
Beskrivning

Highest level of school completed

Datatyp

text

CPChild result
Beskrivning

CPChild result

CPChild Result
Beskrivning

CPChild Result

Datatyp

text

Similar models

KIORTH CPChild MS University Hospital Muenster (UKM)

Name
Typ
Description | Question | Decode (Coded Value)
Datatyp
Alias
Item Group
Allgemeines
Name of child
Item
Name des Kindes
text
Name of parents or caregiver
Item
Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
text
Date
Item
date
Item Group
Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
2 Mundhygiene (Zähne putzen): Schwierigkeit
integer
Code List
2 Mundhygiene (Zähne putzen): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
integer
Code List
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
Code List
4. toileting activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
4. toileting activities: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
5. changing diapers/underwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
5. changing diapers/underwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
6. putting on/taking off upper body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
6. putting on/taking off upper body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
7. putting on/taking off lower body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
7. putting on/taking off lower body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
8. putting on/wearing footwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
8. putting on/wearing footwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
9. hair care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
9. hair care: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1A. other personal care activity
Item
text
Code List
1A. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1A. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1B. other personal care activity
Item
text
Code List
1B. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1B. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 1: difficulty score
Item
text
Part 1: level of assistance score
Item
text
Part 1: total score
Item
text
Code List
10. getting in and out of bed: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
10. getting in and out of bed: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
11. transferring into /out of a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
11. transferring into /out of a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
12. sitting in a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
12. sitting in a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
13. standing for exercise/transfers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
13. standing for exercise/transfers: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
14. moving about in the home: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
14. moving about in the home: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
15. moving about outdoors: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
15. moving about outdoors: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
16. getting in and out of a motor vehicle: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
16. getting in and out of a motor vehicle: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
17. visiting public places: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
17. visiting public places: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2A. other activity
Item
text
Code List
2A. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2A. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2B. other activity
Item
text
Code List
2B. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2B. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 2: difficulty score
Item
text
Part 2: level of assistance score
Item
text
Part 2: total score
Item
text
Code List
18. while eating/drinking or being fed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. while eating/drinking or being fed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
19. during toileting: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. during toileting: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
20. while dressing/undressing: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. while dressing/undressing: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
21. during transfers or position changes: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. during transfers or position changes: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
22. while seated: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. while seated: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
23. while lying down in bed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. while lying down in bed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
24. that disturbed your child’s sleep: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. that disturbed your child’s sleep: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3A. during other activity
Item
text
Code List
3A. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3A. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3B. during other activity
Item
text
Code List
3B. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3B. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
25. agitated, upset, or angry: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. agitated, upset, or angry: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
26. unhappy or sad: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
26. unhappy or sad: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 3: frequency score
Item
text
Part 3: intensity score
Item
text
Part 3: total score
Item
text
Code List
27. understanding you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. being understood by you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. communicating with strangers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. playing alone: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. playing with others: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. attending school/child care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. participating in recreational activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4A. other social activity
Item
text
Code List
4A. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4B. other social activity
Item
text
Code List
4B. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 4: total score
Item
text
Item Group
Code List
34. Visits of doctor/hospital: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
36. List of medications
Item
text
Part 5: total score
Item
text
Code List
37. Overall quality of life
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 6: total score
Item
text
Code List
1. Eating / drinking or being fed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
2. Maintaining oral hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3. Bathing / washing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
4. Toileting activities / hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
5. Changing diapers / underwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
6. Putting on/taking off upper clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
7. Putting on/taking off lower clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
8. Putting on / wearing footwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
9. Hair care / grooming
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
10. Getting in and out of bed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
11. Transferring into / out of a wheel chair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
12. Sitting in a wheelchair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
13. Standing for exercise / transfers
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
14. Moving about indoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
15. Moving about outdoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
16. Getting in / out of a motor vehicle
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
17. Visiting public places
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. Comfort while feeding
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. Comfort during toileting activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. Comfort while dressing /undressing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. Comfort during transfers or position changes
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. Comfort while sitting
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. Comfort while lying down
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. Comfort while sleeping
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. Emotional state or behavior
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Item
integer
Code List
26. Happiness
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
27. Able to understand you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. Able to be understood by you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. Able to communicate with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. Able to play alone
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. Able to play with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. Able to attend school / child care
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. Able to participate in recreational activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
34. Minimizing doctor visits and hospitalization
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
36. Minimizing number of medications
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 7: total score
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Code List
Highest school grade completed
CL Item
 (Kindergarten)
CL Item
 (Vorschule)
CL Item
 (1. Klasse)
CL Item
 (2. Klasse)
CL Item
 (3. Klasse)
CL Item
 (4. Klasse)
CL Item
 (5. Klasse)
CL Item
 (6. Klasse)
CL Item
 (7. Klasse)
CL Item
 (8. Klasse)
CL Item
 (9. Klasse)
CL Item
 (10. Klasse)
CL Item
 (11. Klasse)
CL Item
 (12. Klasse)
CL Item
 (Keine abgeschlossen)
If ungraded, how many years attended?
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Current work status: Not working due to child’s health
Item
boolean
Current work status: Not working for other reasons
Item
boolean
Current work status: Looking for work outside the home
Item
boolean
Current work status: Working full or part time
Item
boolean
Current work status: Full time homemaker
Item
boolean
Relationship to child: Biological Parent
Item
boolean
Relationship to child: Step Parent
Item
boolean
Relationship to child: Foster Parent
Item
boolean
Relationship to child: Adoptive Parent
Item
boolean
Relationship to child: Guardian
Item
boolean
Relationship to child: Professional caregiver
Item
boolean
Relationship to child: Other
Item
boolean
Relationship to child: Other (please explain)
Item
text
Care giving (days per week)
Item
integer
Code List
Highest level of school completed
CL Item
 (Hauptschulabschluss)
CL Item
 (Realschulabschluss)
CL Item
 (Abitur)
CL Item
 (Fachschulabschluss)
CL Item
 (Universitätsabschluss)
Item Group
CPChild Result
Item
text

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