ID

17851

Descrizione

Hospital Routine Documentation Form at the University Hospital Muenster. Original Form name: KIORTH CPChild MS. German description: CPChild Ein Index zur gesundheitsbezogenen Lebensqualität bei Menschen mit Behinderung

Keywords

  1. 05/10/16 05/10/16 -
  2. 06/10/16 06/10/16 - Julian Varghese
  3. 05/12/16 05/12/16 -
  4. 13/04/21 13/04/21 - Dr. rer. medic Philipp Neuhaus
  5. 17/11/21 17/11/21 -
Caricato su

5 ottobre 2016

DOI

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Licenza

Creative Commons BY-NC 3.0

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KIORTH CPChild MS University Hospital Muenster (UKM)

KIORTH CPChild MS University Hospital Muenster (UKM)

Allgemeines
Descrizione

Allgemeines

Name des Kindes
Descrizione

Name of child

Tipo di dati

text

Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
Descrizione

Name of parents or caregiver

Tipo di dati

text

Date
Descrizione

Datum

Tipo di dati

date

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Descrizione

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
Descrizione

Wie schwierig war Folgendes in den letzten 2 Wochen

Tipo di dati

integer

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
Descrizione

Wie schwierig war Folgendes in den letzten 2 Wochen

Tipo di dati

integer

2 Mundhygiene (Zähne putzen): Schwierigkeit
Descrizione

Wie schwierig war Folgendes in den letzten 2 Wochen

Tipo di dati

integer

2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
Descrizione

Wie schwierig war Folgendes in den letzten 2 Wochen

Tipo di dati

integer

3 Waschen/Baden: Schwierigkeit
Descrizione

Wie schwierig war Folgendes in den letzten 2 Wochen

Tipo di dati

integer

3 Waschen/Baden: Schwierigkeit
Descrizione

Wie schwierig war Folgendes in den letzten 2 Wochen

Tipo di dati

integer

4. toileting activities: difficulty
Descrizione

4. toileting activities: difficulty

Tipo di dati

integer

4. toileting activities: level of assistance
Descrizione

4. toileting activities: level of assistance

Tipo di dati

integer

5. changing diapers/underwear: difficulty
Descrizione

5. changing diapers/underwear: difficulty

Tipo di dati

integer

5. changing diapers/underwear: level of assistance
Descrizione

5. changing diapers/underwear: level of assistance

Tipo di dati

integer

6. putting on/taking off upper body clothing: difficulty
Descrizione

6. putting on/taking off upper body clothing: difficulty

Tipo di dati

integer

6. putting on/taking off upper body clothing: level of assistance
Descrizione

6. putting on/taking off upper body clothing: level of assistance

Tipo di dati

integer

7. putting on/taking off lower body clothing: difficulty
Descrizione

7. putting on/taking off lower body clothing: difficulty

Tipo di dati

integer

7. putting on/taking off lower body clothing: level of assistance
Descrizione

7. putting on/taking off lower body clothing: level of assistance

Tipo di dati

integer

8. putting on/wearing footwear: difficulty
Descrizione

8. putting on/wearing footwear: difficulty

Tipo di dati

integer

8. putting on/wearing footwear: level of assistance
Descrizione

8. putting on/wearing footwear: level of assistance

Tipo di dati

integer

9. hair care: difficulty
Descrizione

9. hair care: difficulty

Tipo di dati

integer

9. hair care: level of assistance
Descrizione

9. hair care: level of assistance

Tipo di dati

integer

1A. other personal care activity
Descrizione

1A. other personal care activity

Tipo di dati

text

1A. other personal care activity: difficulty
Descrizione

1A. other personal care activity: difficulty

Tipo di dati

integer

1A. other personal care activity: level of assistance
Descrizione

1A. other personal care activity: level of assistance

Tipo di dati

integer

1B. other personal care activity
Descrizione

1B. other personal care activity

Tipo di dati

text

1B. other personal care activity: difficulty
Descrizione

1B. other personal care activity: difficulty

Tipo di dati

integer

1B. other personal care activity: level of assistance
Descrizione

1B. other personal care activity: level of assistance

Tipo di dati

integer

Part 1: difficulty score
Descrizione

Part 1: difficulty score

Tipo di dati

text

Part 1: level of assistance score
Descrizione

Part 1: level of assistance score

Tipo di dati

text

Part 1: total score
Descrizione

Part 1: total score

Tipo di dati

text

2. Positioning, Transferring & Mobility
Descrizione

2. Positioning, Transferring & Mobility

10. getting in and out of bed: difficulty
Descrizione

10. getting in and out of bed: difficulty

Tipo di dati

integer

10. getting in and out of bed: level of assistance
Descrizione

10. getting in and out of bed: level of assistance

Tipo di dati

integer

11. transferring into /out of a wheelchair/chair: difficulty
Descrizione

11. transferring into /out of a wheelchair/chair: difficulty

Tipo di dati

integer

11. transferring into /out of a wheelchair/chair: level of assistance
Descrizione

11. transferring into /out of a wheelchair/chair: level of assistance

Tipo di dati

integer

12. sitting in a wheelchair/chair: difficulty
Descrizione

12. sitting in a wheelchair/chair: difficulty

Tipo di dati

integer

12. sitting in a wheelchair/chair: level of assistance
Descrizione

12. sitting in a wheelchair/chair: level of assistance

Tipo di dati

integer

13. standing for exercise/transfers: difficulty
Descrizione

13. standing for exercise/transfers: difficulty

Tipo di dati

integer

13. standing for exercise/transfers: level of assistance
Descrizione

13. standing for exercise/transfers: level of assistance

Tipo di dati

integer

14. moving about in the home: difficulty
Descrizione

14. moving about in the home: difficulty

Tipo di dati

integer

14. moving about in the home: level of assistance
Descrizione

14. moving about in the home: level of assistance

Tipo di dati

integer

15. moving about outdoors: difficulty
Descrizione

15. moving about outdoors: difficulty

Tipo di dati

integer

15. moving about outdoors: level of assistance
Descrizione

15. moving about outdoors: level of assistance

Tipo di dati

integer

16. getting in and out of a motor vehicle: difficulty
Descrizione

16. getting in and out of a motor vehicle: difficulty

Tipo di dati

integer

16. getting in and out of a motor vehicle: level of assistance
Descrizione

16. getting in and out of a motor vehicle: level of assistance

Tipo di dati

integer

17. visiting public places: difficulty
Descrizione

17. visiting public places: difficulty

Tipo di dati

integer

17. visiting public places: level of assistance
Descrizione

17. visiting public places: level of assistance

Tipo di dati

integer

2A. other activity
Descrizione

2A. other activity

Tipo di dati

text

2A. other activity: difficulty
Descrizione

2A. other activity: difficulty

Tipo di dati

integer

2A. other activity: level of assistance
Descrizione

2A. other activity: level of assistance

Tipo di dati

integer

2B. other activity
Descrizione

2B. other activity

Tipo di dati

text

2B. other activity: difficulty
Descrizione

2B. other activity: difficulty

Tipo di dati

integer

2B. other activity: level of assistance
Descrizione

2B. other activity: level of assistance

Tipo di dati

integer

Part 2: difficulty score
Descrizione

Part 2: difficulty score

Tipo di dati

text

Part 2: level of assistance score
Descrizione

Part 2: level of assistance score

Tipo di dati

text

Part 2: total score
Descrizione

Part 2: total score

Tipo di dati

text

3. Comfort & Emotions
Descrizione

3. Comfort & Emotions

18. while eating/drinking or being fed: frequency
Descrizione

18. while eating/drinking or being fed: frequency

Tipo di dati

integer

18. while eating/drinking or being fed: intensity
Descrizione

18. while eating/drinking or being fed: intensity

Tipo di dati

integer

19. during toileting: frequency
Descrizione

19. during toileting: frequency

Tipo di dati

integer

19. during toileting: intensity
Descrizione

19. during toileting: intensity

Tipo di dati

integer

20. while dressing/undressing: frequency
Descrizione

20. while dressing/undressing: frequency

Tipo di dati

integer

20. while dressing/undressing: intensity
Descrizione

20. while dressing/undressing: intensity

Tipo di dati

integer

21. during transfers or position changes: frequency
Descrizione

21. during transfers or position changes: frequency

Tipo di dati

integer

21. during transfers or position changes: intensity
Descrizione

21. during transfers or position changes: intensity

Tipo di dati

integer

22. while seated: frequency
Descrizione

22. while seated: frequency

Tipo di dati

integer

22. while seated: intensity
Descrizione

22. while seated: intensity

Tipo di dati

integer

23. while lying down in bed: frequency
Descrizione

23. while lying down in bed: frequency

Tipo di dati

integer

23. while lying down in bed: intensity
Descrizione

23. while lying down in bed: intensity

Tipo di dati

integer

24. that disturbed your child’s sleep: frequency
Descrizione

24. that disturbed your child’s sleep: frequency

Tipo di dati

integer

24. that disturbed your child’s sleep: intensity
Descrizione

24. that disturbed your child’s sleep: intensity

Tipo di dati

integer

3A. during other activity
Descrizione

3A. during other activity

Tipo di dati

text

3A. during other activity: frequency
Descrizione

3A. during other activity: frequency

Tipo di dati

integer

3A. during other activity: intensity
Descrizione

3A. during other activity: intensity

Tipo di dati

integer

3B. during other activity
Descrizione

3B. during other activity

Tipo di dati

text

3B. during other activity: frequency
Descrizione

3B. during other activity: frequency

Tipo di dati

integer

3B. during other activity: intensity
Descrizione

3B. during other activity: intensity

Tipo di dati

integer

25. agitated, upset, or angry: frequency
Descrizione

25. agitated, upset, or angry: frequency

Tipo di dati

integer

25. agitated, upset, or angry: intensity
Descrizione

25. agitated, upset, or angry: intensity

Tipo di dati

integer

26. unhappy or sad: frequency
Descrizione

26. unhappy or sad: frequency

Tipo di dati

integer

26. unhappy or sad: intensity
Descrizione

26. unhappy or sad: intensity

Tipo di dati

integer

Part 3: frequency score
Descrizione

Part 3: frequency score

Tipo di dati

text

Part 3: intensity score
Descrizione

Part 3: intensity score

Tipo di dati

text

Part 3: total score
Descrizione

Part 3: total score

Tipo di dati

text

4. Communication & Social Interaction
Descrizione

4. Communication & Social Interaction

27. understanding you: difficulty
Descrizione

27. understanding you: difficulty

Tipo di dati

integer

28. being understood by you: difficulty
Descrizione

28. being understood by you: difficulty

Tipo di dati

integer

29. communicating with strangers: difficulty
Descrizione

29. communicating with strangers: difficulty

Tipo di dati

integer

30. playing alone: difficulty
Descrizione

30. playing alone: difficulty

Tipo di dati

integer

31. playing with others: difficulty
Descrizione

31. playing with others: difficulty

Tipo di dati

integer

32. attending school/child care: difficulty
Descrizione

32. attending school/child care: difficulty

Tipo di dati

integer

33. participating in recreational activities: difficulty
Descrizione

33. participating in recreational activities: difficulty

Tipo di dati

integer

4A. other social activity
Descrizione

4A. other social activity

Tipo di dati

text

4A. other social activity: difficulty
Descrizione

4A. other social activity: difficulty

Tipo di dati

integer

4B. other social activity
Descrizione

4B. other social activity

Tipo di dati

text

4B. other social activity: difficulty
Descrizione

4B. other social activity: difficulty

Tipo di dati

integer

Part 4: total score
Descrizione

Part 4: total score

Tipo di dati

text

5. Health
Descrizione

5. Health

34. Visits of doctor/hospital: frequency
Descrizione

34. Visits of doctor/hospital: frequency

Tipo di dati

integer

35. Overall health
Descrizione

35. Overall health

Tipo di dati

integer

36. List of medications
Descrizione

36. List of medications

Tipo di dati

text

Part 5: total score
Descrizione

Part 5: total score

Tipo di dati

text

6. Overall Quality of Life
Descrizione

6. Overall Quality of Life

37. Overall quality of life
Descrizione

37. Overall quality of life

Tipo di dati

integer

Part 6: total score
Descrizione

Part 6: total score

Tipo di dati

text

7. Importance of items to your child's quality of life
Descrizione

7. Importance of items to your child's quality of life

1. Eating / drinking or being fed
Descrizione

1. Eating / drinking or being fed

Tipo di dati

integer

2. Maintaining oral hygiene
Descrizione

2. Maintaining oral hygiene

Tipo di dati

integer

3. Bathing / washing
Descrizione

3. Bathing / washing

Tipo di dati

integer

4. Toileting activities / hygiene
Descrizione

4. Toileting activities / hygiene

Tipo di dati

integer

5. Changing diapers / underwear
Descrizione

5. Changing diapers / underwear

Tipo di dati

integer

6. Putting on/taking off upper clothing
Descrizione

6. Putting on/taking off upper clothing

Tipo di dati

integer

7. Putting on/taking off lower clothing
Descrizione

7. Putting on/taking off lower clothing

Tipo di dati

integer

8. Putting on / wearing footwear
Descrizione

8. Putting on / wearing footwear

Tipo di dati

integer

9. Hair care / grooming
Descrizione

9. Hair care / grooming

Tipo di dati

integer

10. Getting in and out of bed
Descrizione

10. Getting in and out of bed

Tipo di dati

integer

11. Transferring into / out of a wheel chair / chair
Descrizione

11. Transferring into / out of a wheel chair / chair

Tipo di dati

integer

12. Sitting in a wheelchair / chair
Descrizione

12. Sitting in a wheelchair / chair

Tipo di dati

integer

13. Standing for exercise / transfers
Descrizione

13. Standing for exercise / transfers

Tipo di dati

integer

14. Moving about indoors
Descrizione

14. Moving about indoors

Tipo di dati

integer

15. Moving about outdoors
Descrizione

15. Moving about outdoors

Tipo di dati

integer

16. Getting in / out of a motor vehicle
Descrizione

16. Getting in / out of a motor vehicle

Tipo di dati

integer

17. Visiting public places
Descrizione

17. Visiting public places

Tipo di dati

integer

18. Comfort while feeding
Descrizione

18. Comfort while feeding

Tipo di dati

integer

19. Comfort during toileting activities
Descrizione

19. Comfort during toileting activities

Tipo di dati

integer

20. Comfort while dressing /undressing
Descrizione

20. Comfort while dressing /undressing

Tipo di dati

integer

21. Comfort during transfers or position changes
Descrizione

21. Comfort during transfers or position changes

Tipo di dati

integer

22. Comfort while sitting
Descrizione

22. Comfort while sitting

Tipo di dati

integer

23. Comfort while lying down
Descrizione

23. Comfort while lying down

Tipo di dati

integer

24. Comfort while sleeping
Descrizione

24. Comfort while sleeping

Tipo di dati

integer

25. Emotional state or behavior
Descrizione

25. Emotional state or behavior

Tipo di dati

integer

26. Happiness
Descrizione

26. Happiness

Tipo di dati

integer

27. Able to understand you
Descrizione

27. Able to understand you

Tipo di dati

integer

28. Able to be understood by you
Descrizione

28. Able to be understood by you

Tipo di dati

integer

29. Able to communicate with others
Descrizione

29. Able to communicate with others

Tipo di dati

integer

30. Able to play alone
Descrizione

30. Able to play alone

Tipo di dati

integer

31. Able to play with others
Descrizione

31. Able to play with others

Tipo di dati

integer

32. Able to attend school / child care
Descrizione

32. Able to attend school / child care

Tipo di dati

integer

33. Able to participate in recreational activities
Descrizione

33. Able to participate in recreational activities

Tipo di dati

integer

34. Minimizing doctor visits and hospitalization
Descrizione

34. Minimizing doctor visits and hospitalization

Tipo di dati

integer

35. Overall health
Descrizione

35. Overall health

Tipo di dati

integer

36. Minimizing number of medications
Descrizione

36. Minimizing number of medications

Tipo di dati

integer

Part 7: total score
Descrizione

Part 7: total score

Tipo di dati

text

8. Facts about your child
Descrizione

8. Facts about your child

Sex
Descrizione

Sex

Tipo di dati

text

Date of birth
Descrizione

Date of birth

Tipo di dati

date

Highest school grade completed
Descrizione

Highest school grade completed

Tipo di dati

text

If ungraded, how many years attended?
Descrizione

If ungraded, how many years attended?

Tipo di dati

text

9. Facts about you
Descrizione

9. Facts about you

Sex
Descrizione

Sex

Tipo di dati

text

Date of birth
Descrizione

Date of birth

Tipo di dati

date

Current work status: Not working due to child’s health
Descrizione

Current work status: Not working due to child’s health

Tipo di dati

boolean

Current work status: Not working for other reasons
Descrizione

Current work status: Not working for other reasons

Tipo di dati

boolean

Current work status: Looking for work outside the home
Descrizione

Current work status: Looking for work outside the home

Tipo di dati

boolean

Current work status: Working full or part time
Descrizione

Current work status: Working full or part time

Tipo di dati

boolean

Current work status: Full time homemaker
Descrizione

Current work status: Full time homemaker

Tipo di dati

boolean

Relationship to child: Biological Parent
Descrizione

Relationship to child: Biological Parent

Tipo di dati

boolean

Relationship to child: Step Parent
Descrizione

Relationship to child: Step Parent

Tipo di dati

boolean

Relationship to child: Foster Parent
Descrizione

Relationship to child: Foster Parent

Tipo di dati

boolean

Relationship to child: Adoptive Parent
Descrizione

Relationship to child: Adoptive Parent

Tipo di dati

boolean

Relationship to child: Guardian
Descrizione

Relationship to child: Guardian

Tipo di dati

boolean

Relationship to child: Professional caregiver
Descrizione

Relationship to child: Professional caregiver

Tipo di dati

boolean

Relationship to child: Other
Descrizione

Relationship to child: Other

Tipo di dati

boolean

Relationship to child: Other (please explain)
Descrizione

Relationship to child: Other (please explain)

Tipo di dati

text

Care giving (days per week)
Descrizione

Care giving (days per week)

Tipo di dati

integer

Highest level of school completed
Descrizione

Highest level of school completed

Tipo di dati

text

CPChild result
Descrizione

CPChild result

CPChild Result
Descrizione

CPChild Result

Tipo di dati

text

Similar models

KIORTH CPChild MS University Hospital Muenster (UKM)

Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
Allgemeines
Name of child
Item
Name des Kindes
text
Name of parents or caregiver
Item
Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
text
Date
Item
date
Item Group
Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
2 Mundhygiene (Zähne putzen): Schwierigkeit
integer
Code List
2 Mundhygiene (Zähne putzen): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
integer
Code List
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
Code List
4. toileting activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
4. toileting activities: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
5. changing diapers/underwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
5. changing diapers/underwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
6. putting on/taking off upper body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
6. putting on/taking off upper body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
7. putting on/taking off lower body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
7. putting on/taking off lower body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
8. putting on/wearing footwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
8. putting on/wearing footwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
9. hair care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
9. hair care: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1A. other personal care activity
Item
text
Code List
1A. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1A. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1B. other personal care activity
Item
text
Code List
1B. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1B. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 1: difficulty score
Item
text
Part 1: level of assistance score
Item
text
Part 1: total score
Item
text
Code List
10. getting in and out of bed: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
10. getting in and out of bed: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
11. transferring into /out of a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
11. transferring into /out of a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
12. sitting in a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
12. sitting in a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
13. standing for exercise/transfers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
13. standing for exercise/transfers: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
14. moving about in the home: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
14. moving about in the home: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
15. moving about outdoors: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
15. moving about outdoors: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
16. getting in and out of a motor vehicle: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
16. getting in and out of a motor vehicle: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
17. visiting public places: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
17. visiting public places: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2A. other activity
Item
text
Code List
2A. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2A. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2B. other activity
Item
text
Code List
2B. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2B. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 2: difficulty score
Item
text
Part 2: level of assistance score
Item
text
Part 2: total score
Item
text
Code List
18. while eating/drinking or being fed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. while eating/drinking or being fed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
19. during toileting: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. during toileting: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
20. while dressing/undressing: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. while dressing/undressing: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
21. during transfers or position changes: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. during transfers or position changes: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
22. while seated: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. while seated: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
23. while lying down in bed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. while lying down in bed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
24. that disturbed your child’s sleep: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. that disturbed your child’s sleep: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3A. during other activity
Item
text
Code List
3A. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3A. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3B. during other activity
Item
text
Code List
3B. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3B. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
25. agitated, upset, or angry: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. agitated, upset, or angry: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
26. unhappy or sad: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
26. unhappy or sad: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 3: frequency score
Item
text
Part 3: intensity score
Item
text
Part 3: total score
Item
text
Code List
27. understanding you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. being understood by you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. communicating with strangers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. playing alone: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. playing with others: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. attending school/child care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. participating in recreational activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4A. other social activity
Item
text
Code List
4A. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4B. other social activity
Item
text
Code List
4B. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 4: total score
Item
text
Item Group
Code List
34. Visits of doctor/hospital: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
36. List of medications
Item
text
Part 5: total score
Item
text
Code List
37. Overall quality of life
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 6: total score
Item
text
Code List
1. Eating / drinking or being fed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
2. Maintaining oral hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3. Bathing / washing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
4. Toileting activities / hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
5. Changing diapers / underwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
6. Putting on/taking off upper clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
7. Putting on/taking off lower clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
8. Putting on / wearing footwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
9. Hair care / grooming
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
10. Getting in and out of bed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
11. Transferring into / out of a wheel chair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
12. Sitting in a wheelchair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
13. Standing for exercise / transfers
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
14. Moving about indoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
15. Moving about outdoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
16. Getting in / out of a motor vehicle
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
17. Visiting public places
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. Comfort while feeding
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. Comfort during toileting activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. Comfort while dressing /undressing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. Comfort during transfers or position changes
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. Comfort while sitting
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. Comfort while lying down
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. Comfort while sleeping
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. Emotional state or behavior
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Item
integer
Code List
26. Happiness
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
27. Able to understand you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. Able to be understood by you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. Able to communicate with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. Able to play alone
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. Able to play with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. Able to attend school / child care
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. Able to participate in recreational activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
34. Minimizing doctor visits and hospitalization
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
36. Minimizing number of medications
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 7: total score
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Code List
Highest school grade completed
CL Item
 (Kindergarten)
CL Item
 (Vorschule)
CL Item
 (1. Klasse)
CL Item
 (2. Klasse)
CL Item
 (3. Klasse)
CL Item
 (4. Klasse)
CL Item
 (5. Klasse)
CL Item
 (6. Klasse)
CL Item
 (7. Klasse)
CL Item
 (8. Klasse)
CL Item
 (9. Klasse)
CL Item
 (10. Klasse)
CL Item
 (11. Klasse)
CL Item
 (12. Klasse)
CL Item
 (Keine abgeschlossen)
If ungraded, how many years attended?
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Current work status: Not working due to child’s health
Item
boolean
Current work status: Not working for other reasons
Item
boolean
Current work status: Looking for work outside the home
Item
boolean
Current work status: Working full or part time
Item
boolean
Current work status: Full time homemaker
Item
boolean
Relationship to child: Biological Parent
Item
boolean
Relationship to child: Step Parent
Item
boolean
Relationship to child: Foster Parent
Item
boolean
Relationship to child: Adoptive Parent
Item
boolean
Relationship to child: Guardian
Item
boolean
Relationship to child: Professional caregiver
Item
boolean
Relationship to child: Other
Item
boolean
Relationship to child: Other (please explain)
Item
text
Care giving (days per week)
Item
integer
Code List
Highest level of school completed
CL Item
 (Hauptschulabschluss)
CL Item
 (Realschulabschluss)
CL Item
 (Abitur)
CL Item
 (Fachschulabschluss)
CL Item
 (Universitätsabschluss)
Item Group
CPChild Result
Item
text

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