ID

17851

Beschreibung

Hospital Routine Documentation Form at the University Hospital Muenster. Original Form name: KIORTH CPChild MS. German description: CPChild Ein Index zur gesundheitsbezogenen Lebensqualität bei Menschen mit Behinderung

Stichworte

  1. 05.10.16 05.10.16 -
  2. 06.10.16 06.10.16 - Julian Varghese
  3. 05.12.16 05.12.16 -
  4. 13.04.21 13.04.21 - Dr. rer. medic Philipp Neuhaus
  5. 17.11.21 17.11.21 -
Hochgeladen am

5. Oktober 2016

DOI

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Lizenz

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KIORTH CPChild MS University Hospital Muenster (UKM)

KIORTH CPChild MS University Hospital Muenster (UKM)

Allgemeines
Beschreibung

Allgemeines

Name des Kindes
Beschreibung

Name of child

Datentyp

text

Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
Beschreibung

Name of parents or caregiver

Datentyp

text

Date
Beschreibung

Datum

Datentyp

date

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Beschreibung

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
Beschreibung

Wie schwierig war Folgendes in den letzten 2 Wochen

Datentyp

integer

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
Beschreibung

Wie schwierig war Folgendes in den letzten 2 Wochen

Datentyp

integer

2 Mundhygiene (Zähne putzen): Schwierigkeit
Beschreibung

Wie schwierig war Folgendes in den letzten 2 Wochen

Datentyp

integer

2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
Beschreibung

Wie schwierig war Folgendes in den letzten 2 Wochen

Datentyp

integer

3 Waschen/Baden: Schwierigkeit
Beschreibung

Wie schwierig war Folgendes in den letzten 2 Wochen

Datentyp

integer

3 Waschen/Baden: Schwierigkeit
Beschreibung

Wie schwierig war Folgendes in den letzten 2 Wochen

Datentyp

integer

4. toileting activities: difficulty
Beschreibung

4. toileting activities: difficulty

Datentyp

integer

4. toileting activities: level of assistance
Beschreibung

4. toileting activities: level of assistance

Datentyp

integer

5. changing diapers/underwear: difficulty
Beschreibung

5. changing diapers/underwear: difficulty

Datentyp

integer

5. changing diapers/underwear: level of assistance
Beschreibung

5. changing diapers/underwear: level of assistance

Datentyp

integer

6. putting on/taking off upper body clothing: difficulty
Beschreibung

6. putting on/taking off upper body clothing: difficulty

Datentyp

integer

6. putting on/taking off upper body clothing: level of assistance
Beschreibung

6. putting on/taking off upper body clothing: level of assistance

Datentyp

integer

7. putting on/taking off lower body clothing: difficulty
Beschreibung

7. putting on/taking off lower body clothing: difficulty

Datentyp

integer

7. putting on/taking off lower body clothing: level of assistance
Beschreibung

7. putting on/taking off lower body clothing: level of assistance

Datentyp

integer

8. putting on/wearing footwear: difficulty
Beschreibung

8. putting on/wearing footwear: difficulty

Datentyp

integer

8. putting on/wearing footwear: level of assistance
Beschreibung

8. putting on/wearing footwear: level of assistance

Datentyp

integer

9. hair care: difficulty
Beschreibung

9. hair care: difficulty

Datentyp

integer

9. hair care: level of assistance
Beschreibung

9. hair care: level of assistance

Datentyp

integer

1A. other personal care activity
Beschreibung

1A. other personal care activity

Datentyp

text

1A. other personal care activity: difficulty
Beschreibung

1A. other personal care activity: difficulty

Datentyp

integer

1A. other personal care activity: level of assistance
Beschreibung

1A. other personal care activity: level of assistance

Datentyp

integer

1B. other personal care activity
Beschreibung

1B. other personal care activity

Datentyp

text

1B. other personal care activity: difficulty
Beschreibung

1B. other personal care activity: difficulty

Datentyp

integer

1B. other personal care activity: level of assistance
Beschreibung

1B. other personal care activity: level of assistance

Datentyp

integer

Part 1: difficulty score
Beschreibung

Part 1: difficulty score

Datentyp

text

Part 1: level of assistance score
Beschreibung

Part 1: level of assistance score

Datentyp

text

Part 1: total score
Beschreibung

Part 1: total score

Datentyp

text

2. Positioning, Transferring & Mobility
Beschreibung

2. Positioning, Transferring & Mobility

10. getting in and out of bed: difficulty
Beschreibung

10. getting in and out of bed: difficulty

Datentyp

integer

10. getting in and out of bed: level of assistance
Beschreibung

10. getting in and out of bed: level of assistance

Datentyp

integer

11. transferring into /out of a wheelchair/chair: difficulty
Beschreibung

11. transferring into /out of a wheelchair/chair: difficulty

Datentyp

integer

11. transferring into /out of a wheelchair/chair: level of assistance
Beschreibung

11. transferring into /out of a wheelchair/chair: level of assistance

Datentyp

integer

12. sitting in a wheelchair/chair: difficulty
Beschreibung

12. sitting in a wheelchair/chair: difficulty

Datentyp

integer

12. sitting in a wheelchair/chair: level of assistance
Beschreibung

12. sitting in a wheelchair/chair: level of assistance

Datentyp

integer

13. standing for exercise/transfers: difficulty
Beschreibung

13. standing for exercise/transfers: difficulty

Datentyp

integer

13. standing for exercise/transfers: level of assistance
Beschreibung

13. standing for exercise/transfers: level of assistance

Datentyp

integer

14. moving about in the home: difficulty
Beschreibung

14. moving about in the home: difficulty

Datentyp

integer

14. moving about in the home: level of assistance
Beschreibung

14. moving about in the home: level of assistance

Datentyp

integer

15. moving about outdoors: difficulty
Beschreibung

15. moving about outdoors: difficulty

Datentyp

integer

15. moving about outdoors: level of assistance
Beschreibung

15. moving about outdoors: level of assistance

Datentyp

integer

16. getting in and out of a motor vehicle: difficulty
Beschreibung

16. getting in and out of a motor vehicle: difficulty

Datentyp

integer

16. getting in and out of a motor vehicle: level of assistance
Beschreibung

16. getting in and out of a motor vehicle: level of assistance

Datentyp

integer

17. visiting public places: difficulty
Beschreibung

17. visiting public places: difficulty

Datentyp

integer

17. visiting public places: level of assistance
Beschreibung

17. visiting public places: level of assistance

Datentyp

integer

2A. other activity
Beschreibung

2A. other activity

Datentyp

text

2A. other activity: difficulty
Beschreibung

2A. other activity: difficulty

Datentyp

integer

2A. other activity: level of assistance
Beschreibung

2A. other activity: level of assistance

Datentyp

integer

2B. other activity
Beschreibung

2B. other activity

Datentyp

text

2B. other activity: difficulty
Beschreibung

2B. other activity: difficulty

Datentyp

integer

2B. other activity: level of assistance
Beschreibung

2B. other activity: level of assistance

Datentyp

integer

Part 2: difficulty score
Beschreibung

Part 2: difficulty score

Datentyp

text

Part 2: level of assistance score
Beschreibung

Part 2: level of assistance score

Datentyp

text

Part 2: total score
Beschreibung

Part 2: total score

Datentyp

text

3. Comfort & Emotions
Beschreibung

3. Comfort & Emotions

18. while eating/drinking or being fed: frequency
Beschreibung

18. while eating/drinking or being fed: frequency

Datentyp

integer

18. while eating/drinking or being fed: intensity
Beschreibung

18. while eating/drinking or being fed: intensity

Datentyp

integer

19. during toileting: frequency
Beschreibung

19. during toileting: frequency

Datentyp

integer

19. during toileting: intensity
Beschreibung

19. during toileting: intensity

Datentyp

integer

20. while dressing/undressing: frequency
Beschreibung

20. while dressing/undressing: frequency

Datentyp

integer

20. while dressing/undressing: intensity
Beschreibung

20. while dressing/undressing: intensity

Datentyp

integer

21. during transfers or position changes: frequency
Beschreibung

21. during transfers or position changes: frequency

Datentyp

integer

21. during transfers or position changes: intensity
Beschreibung

21. during transfers or position changes: intensity

Datentyp

integer

22. while seated: frequency
Beschreibung

22. while seated: frequency

Datentyp

integer

22. while seated: intensity
Beschreibung

22. while seated: intensity

Datentyp

integer

23. while lying down in bed: frequency
Beschreibung

23. while lying down in bed: frequency

Datentyp

integer

23. while lying down in bed: intensity
Beschreibung

23. while lying down in bed: intensity

Datentyp

integer

24. that disturbed your child’s sleep: frequency
Beschreibung

24. that disturbed your child’s sleep: frequency

Datentyp

integer

24. that disturbed your child’s sleep: intensity
Beschreibung

24. that disturbed your child’s sleep: intensity

Datentyp

integer

3A. during other activity
Beschreibung

3A. during other activity

Datentyp

text

3A. during other activity: frequency
Beschreibung

3A. during other activity: frequency

Datentyp

integer

3A. during other activity: intensity
Beschreibung

3A. during other activity: intensity

Datentyp

integer

3B. during other activity
Beschreibung

3B. during other activity

Datentyp

text

3B. during other activity: frequency
Beschreibung

3B. during other activity: frequency

Datentyp

integer

3B. during other activity: intensity
Beschreibung

3B. during other activity: intensity

Datentyp

integer

25. agitated, upset, or angry: frequency
Beschreibung

25. agitated, upset, or angry: frequency

Datentyp

integer

25. agitated, upset, or angry: intensity
Beschreibung

25. agitated, upset, or angry: intensity

Datentyp

integer

26. unhappy or sad: frequency
Beschreibung

26. unhappy or sad: frequency

Datentyp

integer

26. unhappy or sad: intensity
Beschreibung

26. unhappy or sad: intensity

Datentyp

integer

Part 3: frequency score
Beschreibung

Part 3: frequency score

Datentyp

text

Part 3: intensity score
Beschreibung

Part 3: intensity score

Datentyp

text

Part 3: total score
Beschreibung

Part 3: total score

Datentyp

text

4. Communication & Social Interaction
Beschreibung

4. Communication & Social Interaction

27. understanding you: difficulty
Beschreibung

27. understanding you: difficulty

Datentyp

integer

28. being understood by you: difficulty
Beschreibung

28. being understood by you: difficulty

Datentyp

integer

29. communicating with strangers: difficulty
Beschreibung

29. communicating with strangers: difficulty

Datentyp

integer

30. playing alone: difficulty
Beschreibung

30. playing alone: difficulty

Datentyp

integer

31. playing with others: difficulty
Beschreibung

31. playing with others: difficulty

Datentyp

integer

32. attending school/child care: difficulty
Beschreibung

32. attending school/child care: difficulty

Datentyp

integer

33. participating in recreational activities: difficulty
Beschreibung

33. participating in recreational activities: difficulty

Datentyp

integer

4A. other social activity
Beschreibung

4A. other social activity

Datentyp

text

4A. other social activity: difficulty
Beschreibung

4A. other social activity: difficulty

Datentyp

integer

4B. other social activity
Beschreibung

4B. other social activity

Datentyp

text

4B. other social activity: difficulty
Beschreibung

4B. other social activity: difficulty

Datentyp

integer

Part 4: total score
Beschreibung

Part 4: total score

Datentyp

text

5. Health
Beschreibung

5. Health

34. Visits of doctor/hospital: frequency
Beschreibung

34. Visits of doctor/hospital: frequency

Datentyp

integer

35. Overall health
Beschreibung

35. Overall health

Datentyp

integer

36. List of medications
Beschreibung

36. List of medications

Datentyp

text

Part 5: total score
Beschreibung

Part 5: total score

Datentyp

text

6. Overall Quality of Life
Beschreibung

6. Overall Quality of Life

37. Overall quality of life
Beschreibung

37. Overall quality of life

Datentyp

integer

Part 6: total score
Beschreibung

Part 6: total score

Datentyp

text

7. Importance of items to your child's quality of life
Beschreibung

7. Importance of items to your child's quality of life

1. Eating / drinking or being fed
Beschreibung

1. Eating / drinking or being fed

Datentyp

integer

2. Maintaining oral hygiene
Beschreibung

2. Maintaining oral hygiene

Datentyp

integer

3. Bathing / washing
Beschreibung

3. Bathing / washing

Datentyp

integer

4. Toileting activities / hygiene
Beschreibung

4. Toileting activities / hygiene

Datentyp

integer

5. Changing diapers / underwear
Beschreibung

5. Changing diapers / underwear

Datentyp

integer

6. Putting on/taking off upper clothing
Beschreibung

6. Putting on/taking off upper clothing

Datentyp

integer

7. Putting on/taking off lower clothing
Beschreibung

7. Putting on/taking off lower clothing

Datentyp

integer

8. Putting on / wearing footwear
Beschreibung

8. Putting on / wearing footwear

Datentyp

integer

9. Hair care / grooming
Beschreibung

9. Hair care / grooming

Datentyp

integer

10. Getting in and out of bed
Beschreibung

10. Getting in and out of bed

Datentyp

integer

11. Transferring into / out of a wheel chair / chair
Beschreibung

11. Transferring into / out of a wheel chair / chair

Datentyp

integer

12. Sitting in a wheelchair / chair
Beschreibung

12. Sitting in a wheelchair / chair

Datentyp

integer

13. Standing for exercise / transfers
Beschreibung

13. Standing for exercise / transfers

Datentyp

integer

14. Moving about indoors
Beschreibung

14. Moving about indoors

Datentyp

integer

15. Moving about outdoors
Beschreibung

15. Moving about outdoors

Datentyp

integer

16. Getting in / out of a motor vehicle
Beschreibung

16. Getting in / out of a motor vehicle

Datentyp

integer

17. Visiting public places
Beschreibung

17. Visiting public places

Datentyp

integer

18. Comfort while feeding
Beschreibung

18. Comfort while feeding

Datentyp

integer

19. Comfort during toileting activities
Beschreibung

19. Comfort during toileting activities

Datentyp

integer

20. Comfort while dressing /undressing
Beschreibung

20. Comfort while dressing /undressing

Datentyp

integer

21. Comfort during transfers or position changes
Beschreibung

21. Comfort during transfers or position changes

Datentyp

integer

22. Comfort while sitting
Beschreibung

22. Comfort while sitting

Datentyp

integer

23. Comfort while lying down
Beschreibung

23. Comfort while lying down

Datentyp

integer

24. Comfort while sleeping
Beschreibung

24. Comfort while sleeping

Datentyp

integer

25. Emotional state or behavior
Beschreibung

25. Emotional state or behavior

Datentyp

integer

26. Happiness
Beschreibung

26. Happiness

Datentyp

integer

27. Able to understand you
Beschreibung

27. Able to understand you

Datentyp

integer

28. Able to be understood by you
Beschreibung

28. Able to be understood by you

Datentyp

integer

29. Able to communicate with others
Beschreibung

29. Able to communicate with others

Datentyp

integer

30. Able to play alone
Beschreibung

30. Able to play alone

Datentyp

integer

31. Able to play with others
Beschreibung

31. Able to play with others

Datentyp

integer

32. Able to attend school / child care
Beschreibung

32. Able to attend school / child care

Datentyp

integer

33. Able to participate in recreational activities
Beschreibung

33. Able to participate in recreational activities

Datentyp

integer

34. Minimizing doctor visits and hospitalization
Beschreibung

34. Minimizing doctor visits and hospitalization

Datentyp

integer

35. Overall health
Beschreibung

35. Overall health

Datentyp

integer

36. Minimizing number of medications
Beschreibung

36. Minimizing number of medications

Datentyp

integer

Part 7: total score
Beschreibung

Part 7: total score

Datentyp

text

8. Facts about your child
Beschreibung

8. Facts about your child

Sex
Beschreibung

Sex

Datentyp

text

Date of birth
Beschreibung

Date of birth

Datentyp

date

Highest school grade completed
Beschreibung

Highest school grade completed

Datentyp

text

If ungraded, how many years attended?
Beschreibung

If ungraded, how many years attended?

Datentyp

text

9. Facts about you
Beschreibung

9. Facts about you

Sex
Beschreibung

Sex

Datentyp

text

Date of birth
Beschreibung

Date of birth

Datentyp

date

Current work status: Not working due to child’s health
Beschreibung

Current work status: Not working due to child’s health

Datentyp

boolean

Current work status: Not working for other reasons
Beschreibung

Current work status: Not working for other reasons

Datentyp

boolean

Current work status: Looking for work outside the home
Beschreibung

Current work status: Looking for work outside the home

Datentyp

boolean

Current work status: Working full or part time
Beschreibung

Current work status: Working full or part time

Datentyp

boolean

Current work status: Full time homemaker
Beschreibung

Current work status: Full time homemaker

Datentyp

boolean

Relationship to child: Biological Parent
Beschreibung

Relationship to child: Biological Parent

Datentyp

boolean

Relationship to child: Step Parent
Beschreibung

Relationship to child: Step Parent

Datentyp

boolean

Relationship to child: Foster Parent
Beschreibung

Relationship to child: Foster Parent

Datentyp

boolean

Relationship to child: Adoptive Parent
Beschreibung

Relationship to child: Adoptive Parent

Datentyp

boolean

Relationship to child: Guardian
Beschreibung

Relationship to child: Guardian

Datentyp

boolean

Relationship to child: Professional caregiver
Beschreibung

Relationship to child: Professional caregiver

Datentyp

boolean

Relationship to child: Other
Beschreibung

Relationship to child: Other

Datentyp

boolean

Relationship to child: Other (please explain)
Beschreibung

Relationship to child: Other (please explain)

Datentyp

text

Care giving (days per week)
Beschreibung

Care giving (days per week)

Datentyp

integer

Highest level of school completed
Beschreibung

Highest level of school completed

Datentyp

text

CPChild result
Beschreibung

CPChild result

CPChild Result
Beschreibung

CPChild Result

Datentyp

text

Ähnliche Modelle

KIORTH CPChild MS University Hospital Muenster (UKM)

Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Allgemeines
Name of child
Item
Name des Kindes
text
Name of parents or caregiver
Item
Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
text
Date
Item
date
Item Group
Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
2 Mundhygiene (Zähne putzen): Schwierigkeit
integer
Code List
2 Mundhygiene (Zähne putzen): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
integer
Code List
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
Code List
4. toileting activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
4. toileting activities: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
5. changing diapers/underwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
5. changing diapers/underwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
6. putting on/taking off upper body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
6. putting on/taking off upper body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
7. putting on/taking off lower body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
7. putting on/taking off lower body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
8. putting on/wearing footwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
8. putting on/wearing footwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
9. hair care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
9. hair care: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1A. other personal care activity
Item
text
Code List
1A. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1A. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1B. other personal care activity
Item
text
Code List
1B. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1B. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 1: difficulty score
Item
text
Part 1: level of assistance score
Item
text
Part 1: total score
Item
text
Code List
10. getting in and out of bed: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
10. getting in and out of bed: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
11. transferring into /out of a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
11. transferring into /out of a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
12. sitting in a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
12. sitting in a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
13. standing for exercise/transfers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
13. standing for exercise/transfers: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
14. moving about in the home: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
14. moving about in the home: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
15. moving about outdoors: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
15. moving about outdoors: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
16. getting in and out of a motor vehicle: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
16. getting in and out of a motor vehicle: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
17. visiting public places: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
17. visiting public places: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2A. other activity
Item
text
Code List
2A. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2A. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2B. other activity
Item
text
Code List
2B. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2B. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 2: difficulty score
Item
text
Part 2: level of assistance score
Item
text
Part 2: total score
Item
text
Code List
18. while eating/drinking or being fed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. while eating/drinking or being fed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
19. during toileting: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. during toileting: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
20. while dressing/undressing: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. while dressing/undressing: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
21. during transfers or position changes: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. during transfers or position changes: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
22. while seated: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. while seated: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
23. while lying down in bed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. while lying down in bed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
24. that disturbed your child’s sleep: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. that disturbed your child’s sleep: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3A. during other activity
Item
text
Code List
3A. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3A. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3B. during other activity
Item
text
Code List
3B. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3B. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
25. agitated, upset, or angry: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. agitated, upset, or angry: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
26. unhappy or sad: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
26. unhappy or sad: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 3: frequency score
Item
text
Part 3: intensity score
Item
text
Part 3: total score
Item
text
Code List
27. understanding you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. being understood by you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. communicating with strangers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. playing alone: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. playing with others: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. attending school/child care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. participating in recreational activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4A. other social activity
Item
text
Code List
4A. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4B. other social activity
Item
text
Code List
4B. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 4: total score
Item
text
Item Group
Code List
34. Visits of doctor/hospital: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
36. List of medications
Item
text
Part 5: total score
Item
text
Code List
37. Overall quality of life
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 6: total score
Item
text
Code List
1. Eating / drinking or being fed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
2. Maintaining oral hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3. Bathing / washing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
4. Toileting activities / hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
5. Changing diapers / underwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
6. Putting on/taking off upper clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
7. Putting on/taking off lower clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
8. Putting on / wearing footwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
9. Hair care / grooming
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
10. Getting in and out of bed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
11. Transferring into / out of a wheel chair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
12. Sitting in a wheelchair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
13. Standing for exercise / transfers
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
14. Moving about indoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
15. Moving about outdoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
16. Getting in / out of a motor vehicle
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
17. Visiting public places
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. Comfort while feeding
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. Comfort during toileting activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. Comfort while dressing /undressing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. Comfort during transfers or position changes
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. Comfort while sitting
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. Comfort while lying down
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. Comfort while sleeping
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. Emotional state or behavior
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Item
integer
Code List
26. Happiness
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
27. Able to understand you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. Able to be understood by you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. Able to communicate with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. Able to play alone
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. Able to play with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. Able to attend school / child care
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. Able to participate in recreational activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
34. Minimizing doctor visits and hospitalization
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
36. Minimizing number of medications
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 7: total score
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Code List
Highest school grade completed
CL Item
 (Kindergarten)
CL Item
 (Vorschule)
CL Item
 (1. Klasse)
CL Item
 (2. Klasse)
CL Item
 (3. Klasse)
CL Item
 (4. Klasse)
CL Item
 (5. Klasse)
CL Item
 (6. Klasse)
CL Item
 (7. Klasse)
CL Item
 (8. Klasse)
CL Item
 (9. Klasse)
CL Item
 (10. Klasse)
CL Item
 (11. Klasse)
CL Item
 (12. Klasse)
CL Item
 (Keine abgeschlossen)
If ungraded, how many years attended?
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Current work status: Not working due to child’s health
Item
boolean
Current work status: Not working for other reasons
Item
boolean
Current work status: Looking for work outside the home
Item
boolean
Current work status: Working full or part time
Item
boolean
Current work status: Full time homemaker
Item
boolean
Relationship to child: Biological Parent
Item
boolean
Relationship to child: Step Parent
Item
boolean
Relationship to child: Foster Parent
Item
boolean
Relationship to child: Adoptive Parent
Item
boolean
Relationship to child: Guardian
Item
boolean
Relationship to child: Professional caregiver
Item
boolean
Relationship to child: Other
Item
boolean
Relationship to child: Other (please explain)
Item
text
Care giving (days per week)
Item
integer
Code List
Highest level of school completed
CL Item
 (Hauptschulabschluss)
CL Item
 (Realschulabschluss)
CL Item
 (Abitur)
CL Item
 (Fachschulabschluss)
CL Item
 (Universitätsabschluss)
Item Group
CPChild Result
Item
text

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