ID

17851

Description

Hospital Routine Documentation Form at the University Hospital Muenster. Original Form name: KIORTH CPChild MS. German description: CPChild Ein Index zur gesundheitsbezogenen Lebensqualität bei Menschen mit Behinderung

Keywords

  1. 10/5/16 10/5/16 -
  2. 10/6/16 10/6/16 - Julian Varghese
  3. 12/5/16 12/5/16 -
  4. 4/13/21 4/13/21 - Dr. rer. medic Philipp Neuhaus
  5. 11/17/21 11/17/21 -
Uploaded on

October 5, 2016

DOI

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License

Creative Commons BY-NC 3.0

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KIORTH CPChild MS University Hospital Muenster (UKM)

KIORTH CPChild MS University Hospital Muenster (UKM)

Allgemeines
Description

Allgemeines

Name des Kindes
Description

Name of child

Data type

text

Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
Description

Name of parents or caregiver

Data type

text

Date
Description

Datum

Data type

date

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Description

Teil 1: Körperpflege / Aktivitäten des täglichen Lebens

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
Description

Wie schwierig war Folgendes in den letzten 2 Wochen

Data type

integer

1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
Description

Wie schwierig war Folgendes in den letzten 2 Wochen

Data type

integer

2 Mundhygiene (Zähne putzen): Schwierigkeit
Description

Wie schwierig war Folgendes in den letzten 2 Wochen

Data type

integer

2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
Description

Wie schwierig war Folgendes in den letzten 2 Wochen

Data type

integer

3 Waschen/Baden: Schwierigkeit
Description

Wie schwierig war Folgendes in den letzten 2 Wochen

Data type

integer

3 Waschen/Baden: Schwierigkeit
Description

Wie schwierig war Folgendes in den letzten 2 Wochen

Data type

integer

4. toileting activities: difficulty
Description

4. toileting activities: difficulty

Data type

integer

4. toileting activities: level of assistance
Description

4. toileting activities: level of assistance

Data type

integer

5. changing diapers/underwear: difficulty
Description

5. changing diapers/underwear: difficulty

Data type

integer

5. changing diapers/underwear: level of assistance
Description

5. changing diapers/underwear: level of assistance

Data type

integer

6. putting on/taking off upper body clothing: difficulty
Description

6. putting on/taking off upper body clothing: difficulty

Data type

integer

6. putting on/taking off upper body clothing: level of assistance
Description

6. putting on/taking off upper body clothing: level of assistance

Data type

integer

7. putting on/taking off lower body clothing: difficulty
Description

7. putting on/taking off lower body clothing: difficulty

Data type

integer

7. putting on/taking off lower body clothing: level of assistance
Description

7. putting on/taking off lower body clothing: level of assistance

Data type

integer

8. putting on/wearing footwear: difficulty
Description

8. putting on/wearing footwear: difficulty

Data type

integer

8. putting on/wearing footwear: level of assistance
Description

8. putting on/wearing footwear: level of assistance

Data type

integer

9. hair care: difficulty
Description

9. hair care: difficulty

Data type

integer

9. hair care: level of assistance
Description

9. hair care: level of assistance

Data type

integer

1A. other personal care activity
Description

1A. other personal care activity

Data type

text

1A. other personal care activity: difficulty
Description

1A. other personal care activity: difficulty

Data type

integer

1A. other personal care activity: level of assistance
Description

1A. other personal care activity: level of assistance

Data type

integer

1B. other personal care activity
Description

1B. other personal care activity

Data type

text

1B. other personal care activity: difficulty
Description

1B. other personal care activity: difficulty

Data type

integer

1B. other personal care activity: level of assistance
Description

1B. other personal care activity: level of assistance

Data type

integer

Part 1: difficulty score
Description

Part 1: difficulty score

Data type

text

Part 1: level of assistance score
Description

Part 1: level of assistance score

Data type

text

Part 1: total score
Description

Part 1: total score

Data type

text

2. Positioning, Transferring & Mobility
Description

2. Positioning, Transferring & Mobility

10. getting in and out of bed: difficulty
Description

10. getting in and out of bed: difficulty

Data type

integer

10. getting in and out of bed: level of assistance
Description

10. getting in and out of bed: level of assistance

Data type

integer

11. transferring into /out of a wheelchair/chair: difficulty
Description

11. transferring into /out of a wheelchair/chair: difficulty

Data type

integer

11. transferring into /out of a wheelchair/chair: level of assistance
Description

11. transferring into /out of a wheelchair/chair: level of assistance

Data type

integer

12. sitting in a wheelchair/chair: difficulty
Description

12. sitting in a wheelchair/chair: difficulty

Data type

integer

12. sitting in a wheelchair/chair: level of assistance
Description

12. sitting in a wheelchair/chair: level of assistance

Data type

integer

13. standing for exercise/transfers: difficulty
Description

13. standing for exercise/transfers: difficulty

Data type

integer

13. standing for exercise/transfers: level of assistance
Description

13. standing for exercise/transfers: level of assistance

Data type

integer

14. moving about in the home: difficulty
Description

14. moving about in the home: difficulty

Data type

integer

14. moving about in the home: level of assistance
Description

14. moving about in the home: level of assistance

Data type

integer

15. moving about outdoors: difficulty
Description

15. moving about outdoors: difficulty

Data type

integer

15. moving about outdoors: level of assistance
Description

15. moving about outdoors: level of assistance

Data type

integer

16. getting in and out of a motor vehicle: difficulty
Description

16. getting in and out of a motor vehicle: difficulty

Data type

integer

16. getting in and out of a motor vehicle: level of assistance
Description

16. getting in and out of a motor vehicle: level of assistance

Data type

integer

17. visiting public places: difficulty
Description

17. visiting public places: difficulty

Data type

integer

17. visiting public places: level of assistance
Description

17. visiting public places: level of assistance

Data type

integer

2A. other activity
Description

2A. other activity

Data type

text

2A. other activity: difficulty
Description

2A. other activity: difficulty

Data type

integer

2A. other activity: level of assistance
Description

2A. other activity: level of assistance

Data type

integer

2B. other activity
Description

2B. other activity

Data type

text

2B. other activity: difficulty
Description

2B. other activity: difficulty

Data type

integer

2B. other activity: level of assistance
Description

2B. other activity: level of assistance

Data type

integer

Part 2: difficulty score
Description

Part 2: difficulty score

Data type

text

Part 2: level of assistance score
Description

Part 2: level of assistance score

Data type

text

Part 2: total score
Description

Part 2: total score

Data type

text

3. Comfort & Emotions
Description

3. Comfort & Emotions

18. while eating/drinking or being fed: frequency
Description

18. while eating/drinking or being fed: frequency

Data type

integer

18. while eating/drinking or being fed: intensity
Description

18. while eating/drinking or being fed: intensity

Data type

integer

19. during toileting: frequency
Description

19. during toileting: frequency

Data type

integer

19. during toileting: intensity
Description

19. during toileting: intensity

Data type

integer

20. while dressing/undressing: frequency
Description

20. while dressing/undressing: frequency

Data type

integer

20. while dressing/undressing: intensity
Description

20. while dressing/undressing: intensity

Data type

integer

21. during transfers or position changes: frequency
Description

21. during transfers or position changes: frequency

Data type

integer

21. during transfers or position changes: intensity
Description

21. during transfers or position changes: intensity

Data type

integer

22. while seated: frequency
Description

22. while seated: frequency

Data type

integer

22. while seated: intensity
Description

22. while seated: intensity

Data type

integer

23. while lying down in bed: frequency
Description

23. while lying down in bed: frequency

Data type

integer

23. while lying down in bed: intensity
Description

23. while lying down in bed: intensity

Data type

integer

24. that disturbed your child’s sleep: frequency
Description

24. that disturbed your child’s sleep: frequency

Data type

integer

24. that disturbed your child’s sleep: intensity
Description

24. that disturbed your child’s sleep: intensity

Data type

integer

3A. during other activity
Description

3A. during other activity

Data type

text

3A. during other activity: frequency
Description

3A. during other activity: frequency

Data type

integer

3A. during other activity: intensity
Description

3A. during other activity: intensity

Data type

integer

3B. during other activity
Description

3B. during other activity

Data type

text

3B. during other activity: frequency
Description

3B. during other activity: frequency

Data type

integer

3B. during other activity: intensity
Description

3B. during other activity: intensity

Data type

integer

25. agitated, upset, or angry: frequency
Description

25. agitated, upset, or angry: frequency

Data type

integer

25. agitated, upset, or angry: intensity
Description

25. agitated, upset, or angry: intensity

Data type

integer

26. unhappy or sad: frequency
Description

26. unhappy or sad: frequency

Data type

integer

26. unhappy or sad: intensity
Description

26. unhappy or sad: intensity

Data type

integer

Part 3: frequency score
Description

Part 3: frequency score

Data type

text

Part 3: intensity score
Description

Part 3: intensity score

Data type

text

Part 3: total score
Description

Part 3: total score

Data type

text

4. Communication & Social Interaction
Description

4. Communication & Social Interaction

27. understanding you: difficulty
Description

27. understanding you: difficulty

Data type

integer

28. being understood by you: difficulty
Description

28. being understood by you: difficulty

Data type

integer

29. communicating with strangers: difficulty
Description

29. communicating with strangers: difficulty

Data type

integer

30. playing alone: difficulty
Description

30. playing alone: difficulty

Data type

integer

31. playing with others: difficulty
Description

31. playing with others: difficulty

Data type

integer

32. attending school/child care: difficulty
Description

32. attending school/child care: difficulty

Data type

integer

33. participating in recreational activities: difficulty
Description

33. participating in recreational activities: difficulty

Data type

integer

4A. other social activity
Description

4A. other social activity

Data type

text

4A. other social activity: difficulty
Description

4A. other social activity: difficulty

Data type

integer

4B. other social activity
Description

4B. other social activity

Data type

text

4B. other social activity: difficulty
Description

4B. other social activity: difficulty

Data type

integer

Part 4: total score
Description

Part 4: total score

Data type

text

5. Health
Description

5. Health

34. Visits of doctor/hospital: frequency
Description

34. Visits of doctor/hospital: frequency

Data type

integer

35. Overall health
Description

35. Overall health

Data type

integer

36. List of medications
Description

36. List of medications

Data type

text

Part 5: total score
Description

Part 5: total score

Data type

text

6. Overall Quality of Life
Description

6. Overall Quality of Life

37. Overall quality of life
Description

37. Overall quality of life

Data type

integer

Part 6: total score
Description

Part 6: total score

Data type

text

7. Importance of items to your child's quality of life
Description

7. Importance of items to your child's quality of life

1. Eating / drinking or being fed
Description

1. Eating / drinking or being fed

Data type

integer

2. Maintaining oral hygiene
Description

2. Maintaining oral hygiene

Data type

integer

3. Bathing / washing
Description

3. Bathing / washing

Data type

integer

4. Toileting activities / hygiene
Description

4. Toileting activities / hygiene

Data type

integer

5. Changing diapers / underwear
Description

5. Changing diapers / underwear

Data type

integer

6. Putting on/taking off upper clothing
Description

6. Putting on/taking off upper clothing

Data type

integer

7. Putting on/taking off lower clothing
Description

7. Putting on/taking off lower clothing

Data type

integer

8. Putting on / wearing footwear
Description

8. Putting on / wearing footwear

Data type

integer

9. Hair care / grooming
Description

9. Hair care / grooming

Data type

integer

10. Getting in and out of bed
Description

10. Getting in and out of bed

Data type

integer

11. Transferring into / out of a wheel chair / chair
Description

11. Transferring into / out of a wheel chair / chair

Data type

integer

12. Sitting in a wheelchair / chair
Description

12. Sitting in a wheelchair / chair

Data type

integer

13. Standing for exercise / transfers
Description

13. Standing for exercise / transfers

Data type

integer

14. Moving about indoors
Description

14. Moving about indoors

Data type

integer

15. Moving about outdoors
Description

15. Moving about outdoors

Data type

integer

16. Getting in / out of a motor vehicle
Description

16. Getting in / out of a motor vehicle

Data type

integer

17. Visiting public places
Description

17. Visiting public places

Data type

integer

18. Comfort while feeding
Description

18. Comfort while feeding

Data type

integer

19. Comfort during toileting activities
Description

19. Comfort during toileting activities

Data type

integer

20. Comfort while dressing /undressing
Description

20. Comfort while dressing /undressing

Data type

integer

21. Comfort during transfers or position changes
Description

21. Comfort during transfers or position changes

Data type

integer

22. Comfort while sitting
Description

22. Comfort while sitting

Data type

integer

23. Comfort while lying down
Description

23. Comfort while lying down

Data type

integer

24. Comfort while sleeping
Description

24. Comfort while sleeping

Data type

integer

25. Emotional state or behavior
Description

25. Emotional state or behavior

Data type

integer

26. Happiness
Description

26. Happiness

Data type

integer

27. Able to understand you
Description

27. Able to understand you

Data type

integer

28. Able to be understood by you
Description

28. Able to be understood by you

Data type

integer

29. Able to communicate with others
Description

29. Able to communicate with others

Data type

integer

30. Able to play alone
Description

30. Able to play alone

Data type

integer

31. Able to play with others
Description

31. Able to play with others

Data type

integer

32. Able to attend school / child care
Description

32. Able to attend school / child care

Data type

integer

33. Able to participate in recreational activities
Description

33. Able to participate in recreational activities

Data type

integer

34. Minimizing doctor visits and hospitalization
Description

34. Minimizing doctor visits and hospitalization

Data type

integer

35. Overall health
Description

35. Overall health

Data type

integer

36. Minimizing number of medications
Description

36. Minimizing number of medications

Data type

integer

Part 7: total score
Description

Part 7: total score

Data type

text

8. Facts about your child
Description

8. Facts about your child

Sex
Description

Sex

Data type

text

Date of birth
Description

Date of birth

Data type

date

Highest school grade completed
Description

Highest school grade completed

Data type

text

If ungraded, how many years attended?
Description

If ungraded, how many years attended?

Data type

text

9. Facts about you
Description

9. Facts about you

Sex
Description

Sex

Data type

text

Date of birth
Description

Date of birth

Data type

date

Current work status: Not working due to child’s health
Description

Current work status: Not working due to child’s health

Data type

boolean

Current work status: Not working for other reasons
Description

Current work status: Not working for other reasons

Data type

boolean

Current work status: Looking for work outside the home
Description

Current work status: Looking for work outside the home

Data type

boolean

Current work status: Working full or part time
Description

Current work status: Working full or part time

Data type

boolean

Current work status: Full time homemaker
Description

Current work status: Full time homemaker

Data type

boolean

Relationship to child: Biological Parent
Description

Relationship to child: Biological Parent

Data type

boolean

Relationship to child: Step Parent
Description

Relationship to child: Step Parent

Data type

boolean

Relationship to child: Foster Parent
Description

Relationship to child: Foster Parent

Data type

boolean

Relationship to child: Adoptive Parent
Description

Relationship to child: Adoptive Parent

Data type

boolean

Relationship to child: Guardian
Description

Relationship to child: Guardian

Data type

boolean

Relationship to child: Professional caregiver
Description

Relationship to child: Professional caregiver

Data type

boolean

Relationship to child: Other
Description

Relationship to child: Other

Data type

boolean

Relationship to child: Other (please explain)
Description

Relationship to child: Other (please explain)

Data type

text

Care giving (days per week)
Description

Care giving (days per week)

Data type

integer

Highest level of school completed
Description

Highest level of school completed

Data type

text

CPChild result
Description

CPChild result

CPChild Result
Description

CPChild Result

Data type

text

Similar models

KIORTH CPChild MS University Hospital Muenster (UKM)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Allgemeines
Name of child
Item
Name des Kindes
text
Name of parents or caregiver
Item
Name der Eltern oder Pflegeperson, die den Bogen ausfüllt
text
Date
Item
date
Item Group
Teil 1: Körperpflege / Aktivitäten des täglichen Lebens
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
integer
Code List
1 Essen/Trinken oder gefüttert werden (wie im Alltag gemacht wird z.B. über den Mund oder über Sonde oder beides): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
2 Mundhygiene (Zähne putzen): Schwierigkeit
integer
Code List
2 Mundhygiene (Zähne putzen): Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
integer
Code List
2 Mundhygiene (Zähne putzen): Grad der Hilfestellung
CL Item
vollständig (0 )
CL Item
mäßig (1 )
CL Item
gering/zuschauend (2 )
CL Item
unabhängig (3 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
CL Item
leicht (4 )
CL Item
sehr leicht (5 )
CL Item
völlig unproblematisch (6 )
Item
3 Waschen/Baden: Schwierigkeit
integer
Code List
3 Waschen/Baden: Schwierigkeit
CL Item
nicht möglich (0 )
CL Item
sehr schwierig (1 )
CL Item
schwierig (2 )
CL Item
etwas schwierig (3 )
Code List
4. toileting activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
4. toileting activities: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
5. changing diapers/underwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
5. changing diapers/underwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
6. putting on/taking off upper body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
6. putting on/taking off upper body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
7. putting on/taking off lower body clothing: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
7. putting on/taking off lower body clothing: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
8. putting on/wearing footwear: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
8. putting on/wearing footwear: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
9. hair care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
9. hair care: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1A. other personal care activity
Item
text
Code List
1A. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1A. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
1B. other personal care activity
Item
text
Code List
1B. other personal care activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
1B. other personal care activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 1: difficulty score
Item
text
Part 1: level of assistance score
Item
text
Part 1: total score
Item
text
Code List
10. getting in and out of bed: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
10. getting in and out of bed: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
11. transferring into /out of a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
11. transferring into /out of a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
12. sitting in a wheelchair/chair: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
12. sitting in a wheelchair/chair: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
13. standing for exercise/transfers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
13. standing for exercise/transfers: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
14. moving about in the home: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
14. moving about in the home: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
15. moving about outdoors: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
15. moving about outdoors: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
16. getting in and out of a motor vehicle: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
16. getting in and out of a motor vehicle: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
17. visiting public places: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
17. visiting public places: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2A. other activity
Item
text
Code List
2A. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2A. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
2B. other activity
Item
text
Code List
2B. other activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
CL Item
 (6 )
Code List
2B. other activity: level of assistance
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 2: difficulty score
Item
text
Part 2: level of assistance score
Item
text
Part 2: total score
Item
text
Code List
18. while eating/drinking or being fed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. while eating/drinking or being fed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
19. during toileting: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. during toileting: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
20. while dressing/undressing: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. while dressing/undressing: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
21. during transfers or position changes: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. during transfers or position changes: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
22. while seated: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. while seated: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
23. while lying down in bed: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. while lying down in bed: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
24. that disturbed your child’s sleep: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. that disturbed your child’s sleep: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3A. during other activity
Item
text
Code List
3A. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3A. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
3B. during other activity
Item
text
Code List
3B. during other activity: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3B. during other activity: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
25. agitated, upset, or angry: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. agitated, upset, or angry: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Code List
26. unhappy or sad: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
26. unhappy or sad: intensity
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
Part 3: frequency score
Item
text
Part 3: intensity score
Item
text
Part 3: total score
Item
text
Code List
27. understanding you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. being understood by you: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. communicating with strangers: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. playing alone: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. playing with others: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. attending school/child care: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. participating in recreational activities: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4A. other social activity
Item
text
Code List
4A. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
4B. other social activity
Item
text
Code List
4B. other social activity: difficulty
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 4: total score
Item
text
Item Group
Code List
34. Visits of doctor/hospital: frequency
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
36. List of medications
Item
text
Part 5: total score
Item
text
Code List
37. Overall quality of life
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 6: total score
Item
text
Code List
1. Eating / drinking or being fed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
2. Maintaining oral hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
3. Bathing / washing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
4. Toileting activities / hygiene
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
5. Changing diapers / underwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
6. Putting on/taking off upper clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
7. Putting on/taking off lower clothing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
8. Putting on / wearing footwear
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
9. Hair care / grooming
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
10. Getting in and out of bed
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
11. Transferring into / out of a wheel chair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
12. Sitting in a wheelchair / chair
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
13. Standing for exercise / transfers
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
14. Moving about indoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
15. Moving about outdoors
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
16. Getting in / out of a motor vehicle
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
17. Visiting public places
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
18. Comfort while feeding
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
19. Comfort during toileting activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
20. Comfort while dressing /undressing
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
21. Comfort during transfers or position changes
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
22. Comfort while sitting
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
23. Comfort while lying down
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
24. Comfort while sleeping
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
25. Emotional state or behavior
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Item
integer
Code List
26. Happiness
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
27. Able to understand you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
28. Able to be understood by you
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
29. Able to communicate with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
30. Able to play alone
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
31. Able to play with others
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
32. Able to attend school / child care
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
33. Able to participate in recreational activities
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
34. Minimizing doctor visits and hospitalization
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
35. Overall health
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Code List
36. Minimizing number of medications
CL Item
 (0 )
CL Item
 (1 )
CL Item
 (2 )
CL Item
 (3 )
CL Item
 (4 )
CL Item
 (5 )
Part 7: total score
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Code List
Highest school grade completed
CL Item
 (Kindergarten)
CL Item
 (Vorschule)
CL Item
 (1. Klasse)
CL Item
 (2. Klasse)
CL Item
 (3. Klasse)
CL Item
 (4. Klasse)
CL Item
 (5. Klasse)
CL Item
 (6. Klasse)
CL Item
 (7. Klasse)
CL Item
 (8. Klasse)
CL Item
 (9. Klasse)
CL Item
 (10. Klasse)
CL Item
 (11. Klasse)
CL Item
 (12. Klasse)
CL Item
 (Keine abgeschlossen)
If ungraded, how many years attended?
Item
text
Item
text
Code List
Sex
CL Item
 (männlich)
CL Item
 (weiblich)
Date of birth
Item
date
Current work status: Not working due to child’s health
Item
boolean
Current work status: Not working for other reasons
Item
boolean
Current work status: Looking for work outside the home
Item
boolean
Current work status: Working full or part time
Item
boolean
Current work status: Full time homemaker
Item
boolean
Relationship to child: Biological Parent
Item
boolean
Relationship to child: Step Parent
Item
boolean
Relationship to child: Foster Parent
Item
boolean
Relationship to child: Adoptive Parent
Item
boolean
Relationship to child: Guardian
Item
boolean
Relationship to child: Professional caregiver
Item
boolean
Relationship to child: Other
Item
boolean
Relationship to child: Other (please explain)
Item
text
Care giving (days per week)
Item
integer
Code List
Highest level of school completed
CL Item
 (Hauptschulabschluss)
CL Item
 (Realschulabschluss)
CL Item
 (Abitur)
CL Item
 (Fachschulabschluss)
CL Item
 (Universitätsabschluss)
Item Group
CPChild Result
Item
text

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