ID

44061

Description

REGIMS is a registry of the administration, adverse events and benefit of immunotherapeutic agents in patients with Multiple Sclerosis. REGIMS is a project from the Institute of Epidemiology and Social Medicine of the University of Muenster, publication granted by Prof. Dr. Berger. For further information (in German), please view http://campus.uni-muenster.de/index.php?id=6075 or http://www.kompetenznetz-multiplesklerose.de/aktuelle-studien/regims. REGIMS ist ein Immuntherapieregister zur Verbesserung der Arzneimittelsicherheit in der Multiple Sklerose Therapie innerhalb des krankheitsbezogenen Kompetenznetzes MS. Das primäre Ziel von REGIMS ist die Erfassung der Häufigkeit, Charakteristika und Auswirkungen von Nebenwirkungen aktueller und neuer Immuntherapien in der klinischen Routinebehandlung der MS. Sekundäre Ziele sind die Auswertung von Faktoren, die a) mit Nebenwirkungen und b) mit guter Therapie-Adhärenz assoziiert sind. Optional können bei Zustimmung der Patienten Blutproben für die Biobank des KKNMS gesammelt werden. Patienten mit Multipler Sklerose (MS) weisen trotz des chronischen Verlaufs eine große Heterogenität klinischer Symptome, in Befunden der Bildgebung sowie pathophysiologischen Prozessen auf. Faktoren, die zur individuellen Krankheitsprognose beitragen sind kaum bekannt, jedoch hat die Einführung neuer Substanzen die Therapiemöglichkeiten der MS in den letzten Jahren deutlich erweitert. Die Anwendung sogenannter Immuntherapeutika (inklusive der neuen Substanzklasse der Biologika) bietet in der MS-Therapie eine Reihe von Chancen, birgt aber auch Risiken.

Link

http://campus.uni-muenster.de/index.php?id=6075

Keywords

Versions (10)
  1. 7/7/16 7/7/16 -
  2. 7/7/16 7/7/16 -
  3. 7/7/16 7/7/16 -
  4. 7/11/16 7/11/16 -
  5. 7/11/16 7/11/16 -
  6. 7/12/16 7/12/16 -
  7. 8/3/16 8/3/16 -
  8. 12/7/17 12/7/17 -
  9. 3/15/21 3/15/21 - Dr. rer. medic Philipp Neuhaus
  10. 9/20/21 9/20/21 -
Copyright Holder

Institute of Epidemiology and Social Medicine UKM

Uploaded on

September 20, 2021

DOI

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License

Creative Commons BY-NC 3.0
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REGIMS Multiple Sclerosis Immunotherapy Registry Version 2016

German English

Baseline Main Sheet

9 forms  
Inclusion-/Exclusion Criteria
Description

Inclusion-/Exclusion Criteria

Alias
UMLS CUI-1
C1516637
Visit date
Description

Visitendatum

Data type

date

Alias
UMLS CUI [1]
C1320303
Patient meets the criteria for inclusion
Description

Kriterien erfüllt

Data type

integer

Alias
UMLS CUI [1]
C1512693
Written informed consent obtained?
Description

Einverständnis

Data type

integer

Alias
UMLS CUI [1]
C0021430
Patient's Data
Description

Patient's Data

Alias
UMLS CUI-1
C2707520
Sex
Description

sex

Data type

integer

Alias
UMLS CUI [1]
C0079399
Year of birth
Description

Geburtsjahr

Data type

integer

Alias
UMLS CUI [1]
C2826771
Size (cm)
Description

geoesse

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Body weight (kg)
Description

Gewicht

Data type

float

Alias
UMLS CUI [1]
C0005910
Multiple Sclerosis specific information
Description

Multiple Sclerosis specific information

Alias
UMLS CUI-1
C0026769
Date of first symptoms of MS: month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0574845
UMLS CUI [1,2]
C0026769
Unknown
Description

Unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0574845
UMLS CUI [1,2]
C0026769
UMLS CUI [1,3]
C0439673
MS diagnosis date: month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0026769
Unknown
Description

Unbekannt MS-Diag

Data type

integer

Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0439673
UMLS CUI [1,3]
C0026769
Clinical Course of multiple sclerosis
Description

mslauf

Data type

integer

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0026769
Other clinical course?
Description

Andere Verlaufsform

Data type

text

Alias
UMLS CUI [1,1]
C0449259
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0026769
Number of flares in the last 24 months
Description

Schübe anzahl

Data type

integer

Alias
UMLS CUI [1,1]
C0035020
UMLS CUI [1,2]
C3846158
Current flare?
Description

Schub

Data type

integer

Alias
UMLS CUI [1]
C0856120
UMLS CUI [2]
C0035020
EDSS-Score 12 month ago
Description

EDSS-Score 12 month ago

Alias
UMLS CUI-1
C3830336
UMLS CUI-2
C3898100
EDSS score
Description

Please specify the score between 0 and 10 months ago.

Data type

float

Alias
UMLS CUI [1,1]
C3830336
UMLS CUI [1,2]
C3898100
Unknown
Description

Unbekannt EDSSv12

Data type

integer

Alias
UMLS CUI [1,1]
C3830336
UMLS CUI [1,2]
C3898100
UMLS CUI [1,3]
C0439673
Today's scores for functional systems
Description

Today's scores for functional systems

Alias
UMLS CUI-1
C3830336
Today's EDSS
Description

Please specify a value between 0 and 10.

Data type

float

Alias
UMLS CUI [1]
C3830336
Unknown / not obtained
Description

Unbekannt EDSS

Data type

integer

Alias
UMLS CUI [1,1]
C3830336
UMLS CUI [1,2]
C0439673
Pyramidal
Description

Pyramidal

Data type

integer

Alias
UMLS CUI [1]
C3829393
Sensitivity
Description

Sensibilität

Data type

integer

Alias
UMLS CUI [1]
C3829391
Cerebral
Description

Zerebral

Data type

integer

Alias
UMLS CUI [1]
C3829397
Cerebellum
Description

Kleinhirn

Data type

integer

Alias
UMLS CUI [1]
C3829398
Bowel and Bladder Functions
Description

BlaseMastdarm

Data type

integer

Alias
UMLS CUI [1]
C3829400
Ability to walk
Description

Gehfähigkeit

Data type

integer

Alias
UMLS CUI [1,1]
C3829396
UMLS CUI [1,2]
C0559964
Brain stem
Description

Hirnstamm

Data type

integer

Alias
UMLS CUI [1]
C3829399
Visual
Description

Visuell

Data type

integer

Alias
UMLS CUI [1]
C3827261
Sum
Description

Score

Data type

float

Alias
UMLS CUI [1]
C3830336
Previous disease-modifying MS-Medication
Description

Previous disease-modifying MS-Medication

Alias
UMLS CUI-1
C2114510
Was a disease-modifying MS therapy previously conducted?
Description

mentryr

Data type

integer

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0026769
Active ingredient
Description

Wirkstoff

Data type

text

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0026769
other active ingredient
Description

Wirkstoff anderer

Data type

text

Alias
UMLS CUI [1,1]
C2114510
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0026769
Start: Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C3173309
UMLS CUI [1,2]
C2114510
UMLS CUI [1,3]
C0026769
End: Month
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C1531784
UMLS CUI [1,2]
C2114510
UMLS CUI [1,3]
C0026769
Main reason for stopping the therapy
Description

HauptgrundTherapieende

Data type

integer

Alias
UMLS CUI [1,1]
C0850893
UMLS CUI [1,2]
C0566251
UMLS CUI [1,3]
C0026769
If other, please indicate the reason
Description

Text Anderer Grund

Data type

text

Alias
UMLS CUI [1,1]
C3840932
UMLS CUI [1,2]
C0850893
UMLS CUI [1,3]
C0026769
Current MS therapy
Description

Current MS therapy

Alias
UMLS CUI-1
C2827774
Active ingredient
Description

Wirkstoff

Data type

text

Alias
UMLS CUI [1,1]
C2827774
UMLS CUI [1,2]
C0026769
other active ingredient
Description

curth1a

Data type

text

Alias
UMLS CUI [1,1]
C2827774
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0026769
Start: Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C3173309
UMLS CUI [1,2]
C2827774
UMLS CUI [1,3]
C0026769
Regimen
Description

Therapieschema

Data type

integer

Alias
UMLS CUI [1,1]
C1276413
UMLS CUI [1,2]
C2827774
UMLS CUI [1,3]
C0026769
Please specify the dose and type of administration
Description

andere

Data type

text

Alias
UMLS CUI [1,1]
C0001555
UMLS CUI [1,2]
C2827774
UMLS CUI [1,3]
C0026769
Other diagnoses
Description

Other diagnoses

Alias
UMLS CUI-1
C0332138
Has any other of the following diagnoses been diagnosed?
Description

WeitereErkr

Data type

boolean

Alias
UMLS CUI [1]
C0332138
Heart / cardiovascular disease
Description

Heart / cardiovascular disease

Alias
UMLS CUI-1
C0007222
Heart / cardiovascular disease
Description

Gruppe Kreislauferkrankungen

Data type

integer

Alias
UMLS CUI [1]
C0007222
Which disease has been diagnosed?
Description

Kreislauferkrankungen

Data type

integer

Alias
UMLS CUI [1,1]
C0007222
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0007222
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0007222
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0007222
UMLS CUI [1,2]
C2827774
Metabolic diseases
Description

Metabolic diseases

Alias
UMLS CUI-1
C0025517
Metabolic diseases
Description

Gruppe Stoffwechsel

Data type

integer

Alias
UMLS CUI [1]
C0025517
Which disease has been diagnosed?
Description

Stoffwechsel

Data type

integer

Alias
UMLS CUI [1,1]
C0025517
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0025517
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0025517
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0025517
UMLS CUI [1,2]
C2827774
Infectious diseases
Description

Infectious diseases

Alias
UMLS CUI-1
C0009450
Infectious diseases
Description

Gruppe Infektionserkrankungen

Data type

integer

Alias
UMLS CUI [1]
C0009450
Which disease has been diagnosed?
Description

Infekt

Data type

integer

Alias
UMLS CUI [1,1]
C0009450
UMLS CUI [1,2]
C0457464
If Yes, what opportunistic infection
Description

Welche opportunistische Infektion

Data type

text

Alias
UMLS CUI [1]
C0029118
Site of infection
Description

Ort der Herpes-Infektion

Data type

text

Alias
UMLS CUI [1,1]
C0019372
UMLS CUI [1,2]
C0475264
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0009450
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0009450
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0009450
UMLS CUI [1,2]
C2827774
Gastrointestinal diseases
Description

Gastrointestinal diseases

Alias
UMLS CUI-1
C0017178
Gastrointestinal diseases
Description

Gruppe Gastrointestinale Erkrankungen

Data type

integer

Alias
UMLS CUI [1]
C0017178
Which disease has been diagnosed?
Description

Gastro

Data type

integer

Alias
UMLS CUI [1,1]
C0017178
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0017178
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0017178
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0017178
UMLS CUI [1,2]
C2827774
Neurological / psychiatric disorders
Description

Neurological / psychiatric disorders

Alias
UMLS CUI-1
C0027765
UMLS CUI-3
C0004936
Neurological / psychiatric disorders
Description

Gruppe Neurologische Erkrankungen

Data type

integer

Alias
UMLS CUI [1]
C0027765
UMLS CUI [2]
C0004936
Which disease has been diagnosed?
Description

Neurologische / Psychiatrische Erkrankungen

Data type

integer

Alias
UMLS CUI [1,1]
C0027765
UMLS CUI [1,2]
C0457464
UMLS CUI [2,1]
C0004936
UMLS CUI [2,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0027765
UMLS CUI [1,2]
C0011008
UMLS CUI [2,1]
C0004936
UMLS CUI [2,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0027765
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
UMLS CUI [2,1]
C0004936
UMLS CUI [2,2]
C0011008
UMLS CUI [2,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0027765
UMLS CUI [1,2]
C2827774
UMLS CUI [2,1]
C0004936
UMLS CUI [2,2]
C2827774
Allergies
Description

Allergies

Alias
UMLS CUI-1
C0020517
Allergies
Description

Gruppe Allergien

Data type

integer

Alias
UMLS CUI [1]
C0020517
Which disease has been diagnosed?
Description

Allergien

Data type

integer

Alias
UMLS CUI [1,1]
C0020517
UMLS CUI [1,2]
C0457464
Which drug?
Description

Medikamentenallergien

Data type

text

Alias
UMLS CUI [1,1]
C0013182
UMLS CUI [1,2]
C2360065
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0020517
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0020517
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0020517
UMLS CUI [1,2]
C2827774
Genitourinary Disorders
Description

Genitourinary Disorders

Alias
UMLS CUI-1
C0080276
Genitourinary Disorders
Description

Gruppe Urogenitale Erkrankungen

Data type

integer

Alias
UMLS CUI [1]
C0080276
Which disease has been diagnosed?
Description

Uro

Data type

integer

Alias
UMLS CUI [1,1]
C0080276
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0080276
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0080276
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0080276
UMLS CUI [1,2]
C2827774
Auto-immune diseases
Description

Auto-immune diseases

Alias
UMLS CUI-1
C0004364
Auto-immune diseases
Description

Gruppe Autoimmunerkrankungen

Data type

integer

Alias
UMLS CUI [1]
C0004364
Which disease has been diagnosed?
Description

Autoimmunerkrankungen

Data type

integer

Alias
UMLS CUI [1,1]
C0004364
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0004364
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0004364
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0004364
UMLS CUI [1,2]
C2827774
Blood Count / laboratory
Description

Blood Count / laboratory

Alias
UMLS CUI-1
C0018939
Blood Count / laboratory
Description

Gruppe Blutbild / Labor

Data type

integer

Alias
UMLS CUI [1]
C0018939
Which disease has been diagnosed?
Description

BlutLabVer

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0018939
UMLS CUI [1,2]
C2827774
General Symptoms
Description

General Symptoms

Alias
UMLS CUI-1
C0159028
General symptoms
Description

Gruppe AllgemSympt

Data type

integer

Alias
UMLS CUI [1]
C0159028
Which symptom was diagnosed?
Description

AllgemSympt

Data type

integer

Alias
UMLS CUI [1,1]
C0159028
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0159028
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0159028
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0159028
UMLS CUI [1,2]
C2827774
Operation
Description

Operation

Alias
UMLS CUI-1
C0543467
Operation
Description

Gruppe Operation

Data type

integer

Alias
UMLS CUI [1]
C0543467
Which operations?
Description

Operation

Data type

text

Alias
UMLS CUI [1]
C0679638
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0543467
UMLS CUI [1,2]
C0011008
Date unknown
Description

Datum unbekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0543467
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0543467
UMLS CUI [1,2]
C2827774
Cancer
Description

Cancer

Alias
UMLS CUI-1
C0006826
Cancer
Description

Gruppe Krebs

Data type

integer

Alias
UMLS CUI [1]
C0006826
What kind of cancer
Description

Art von Krebs

Data type

text

Alias
UMLS CUI [1,1]
C0006826
UMLS CUI [1,2]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0006826
UMLS CUI [1,2]
C0011008
Cancer Treatment?
Description

Cancer Treatment?

Alias
UMLS CUI-1
C0920425
Operation
Description

Operation

Data type

integer

Alias
UMLS CUI [1,1]
C0543467
UMLS CUI [1,2]
C0920425
Radiation
Description

Bestrahlung

Data type

integer

Alias
UMLS CUI [1,1]
C1522449
UMLS CUI [1,2]
C0920425
Chemotherapy
Description

Chemotherapie

Data type

integer

Alias
UMLS CUI [1,1]
C3665472
UMLS CUI [1,2]
C0920425
If yes, please specify substances chemotherapy
Description

Substanzen

Data type

text

Alias
UMLS CUI [1,1]
C0729502
UMLS CUI [1,2]
C0920425
not known
Description

nicht bekannt

Data type

integer

Alias
UMLS CUI [1,1]
C0729502
UMLS CUI [1,2]
C0439673
UMLS CUI [1,3]
C0920425
Other diseases?
Description

Other diseases?

Alias
UMLS CUI-1
C0332138
UMLS CUI-2
C0205394
Other diseases
Description

Gruppe Andere

Data type

integer

Alias
UMLS CUI [1,1]
C0332138
UMLS CUI [1,2]
C0205394
What other disease?
Description

Andere

Data type

text

Alias
UMLS CUI [1,1]
C0332138
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0457464
Month/year
Description

Please select a day of the respective month. It is applied to only the month and year

Data type

date

Alias
UMLS CUI [1,1]
C0332138
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0011008
Date unknown
Description

ubk

Data type

integer

Alias
UMLS CUI [1,1]
C0332138
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0011008
UMLS CUI [1,4]
C0439673
Current drug treatment
Description

MediBehandlung

Data type

integer

Alias
UMLS CUI [1,1]
C0332138
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C2827774
None of the mentioned secondary diagnoses known
Description

None of the mentioned secondary diagnoses known

Applicable
Description

Keine

Data type

integer

Alias
UMLS CUI [1]
C0549184
Pregnancy
Description

Pregnancy

Alias
UMLS CUI-1
C0032961
Currently pregnant?
Description

Schwangerschaft

Data type

integer

Alias
UMLS CUI [1]
C0549206
Biologic Material (for example blood)
Description

Biologic Material (for example blood)

Alias
UMLS CUI-1
C0370003
Sample No.
Description

Probennummer

Data type

text

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C1300638
Additional (currently disabled)
Description

Zusatz

Data type

text

Alias
UMLS CUI [1]
C0947611
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Similar models

Baseline Main Sheet

9 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Inclusion-/Exclusion Criteria
C1516637 (UMLS CUI-1)
Visitendatum
Item
Visit date
date
C1320303 (UMLS CUI [1])
Item
Patient meets the criteria for inclusion
integer
C1512693 (UMLS CUI [1])
Yes / No
Code List
Patient meets the criteria for inclusion
CL Item
Yes (1)
CL Item
No (0)
Item
Written informed consent obtained?
integer
C0021430 (UMLS CUI [1])
Yes / No
Code List
Written informed consent obtained?
CL Item
Yes (1)
CL Item
No (0)
Item Group
Patient's Data
C2707520 (UMLS CUI-1)
Item
Sex
integer
C0079399 (UMLS CUI [1])
sex
Code List
Sex
CL Item
male (1)
CL Item
female (2)
Geburtsjahr
Item
Year of birth
integer
C2826771 (UMLS CUI [1])
geoesse
Item
Size (cm)
integer
C0005890 (UMLS CUI [1])
Gewicht
Item
Body weight (kg)
float
C0005910 (UMLS CUI [1])
Item Group
Multiple Sclerosis specific information
C0026769 (UMLS CUI-1)
Datum MS-Symptomatik
Item
Date of first symptoms of MS: month/year
date
C0574845 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
Item
Unknown
integer
C0574845 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Unknown
CL Item
Yes (1)
diagdat
Item
MS diagnosis date: month/year
date
C2316983 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
Item
Unknown
integer
C2316983 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Unknown
CL Item
Yes (1)
Item
Clinical Course of multiple sclerosis
integer
C0449259 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
mslauf
Code List
Clinical Course of multiple sclerosis
CL Item
not clearly attributable (-1)
(Comment:en)
CL Item
Clinically isolated syndrome (CIS) (1)
C2350037 (UMLS CUI-1)
(Comment:en)
CL Item
Relapsing-remitting MS (RRMS) (2)
C0751967 (UMLS CUI-1)
(Comment:en)
CL Item
Secondary progressive MS (SPMS) (3)
C0751965 (UMLS CUI-1)
(Comment:en)
CL Item
Primary progressive MS (PPMS) (4)
C0751964 (UMLS CUI-1)
(Comment:en)
CL Item
Others (5)
C0026769 (UMLS CUI-1)
C0449259 (UMLS CUI-2)
C0205394 (UMLS CUI-3)
(Comment:en)
Andere Verlaufsform
Item
Other clinical course?
text
C0449259 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item
Number of flares in the last 24 months
integer
C0035020 (UMLS CUI [1,1])
C3846158 (UMLS CUI [1,2])
Anzahl Schübe
Code List
Number of flares in the last 24 months
CL Item
0 (0)
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
10 (10)
CL Item
> 10 (11)
Item
Current flare?
integer
C0856120 (UMLS CUI [1])
C0035020 (UMLS CUI [2])
Yes / No
Code List
Current flare?
CL Item
Yes (1)
CL Item
No (0)
Item Group
EDSS-Score 12 month ago
C3830336 (UMLS CUI-1)
C3898100 (UMLS CUI-2)
EDSS vor 12
Item
EDSS score
float
C3830336 (UMLS CUI [1,1])
C3898100 (UMLS CUI [1,2])
Item
Unknown
integer
C3830336 (UMLS CUI [1,1])
C3898100 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Unknown
CL Item
Yes (1)
Item Group
Today's scores for functional systems
C3830336 (UMLS CUI-1)
Heutiger EDSS
Item
Today's EDSS
float
C3830336 (UMLS CUI [1])
Item
Unknown / not obtained
integer
C3830336 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
Unbekannt Ja
Code List
Unknown / not obtained
CL Item
Yes (1)
Pyramidal
Item
Pyramidal
integer
C3829393 (UMLS CUI [1])
Sensibilität
Item
Sensitivity
integer
C3829391 (UMLS CUI [1])
Zerebral
Item
Cerebral
integer
C3829397 (UMLS CUI [1])
Kleinhirn
Item
Cerebellum
integer
C3829398 (UMLS CUI [1])
BlaseMastdarm
Item
Bowel and Bladder Functions
integer
C3829400 (UMLS CUI [1])
Gehfähigkeit
Item
Ability to walk
integer
C3829396 (UMLS CUI [1,1])
C0559964 (UMLS CUI [1,2])
Hirnstamm
Item
Brain stem
integer
C3829399 (UMLS CUI [1])
Visuell
Item
Visual
integer
C3827261 (UMLS CUI [1])
Score
Item
Sum
float
C3830336 (UMLS CUI [1])
Item Group
Previous disease-modifying MS-Medication
C2114510 (UMLS CUI-1)
Item
Was a disease-modifying MS therapy previously conducted?
integer
C2114510 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
YESdenovo
Code List
Was a disease-modifying MS therapy previously conducted?
CL Item
Yes (1)
CL Item
No, de novo therapy (please go to next field) (99)
Item
Active ingredient
text
C2114510 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
curth1
Code List
Active ingredient
CL Item
Alemtuzumab (Lemtrada) (22)
C0383429 (UMLS CUI-1)
CL Item
Azathioprine (2)
C0004482 (UMLS CUI-1)
CL Item
Cyclophosphamide (4)
C0010583 (UMLS CUI-1)
CL Item
Fingolimod (Gilenya) (18)
C1699926 (UMLS CUI-1)
CL Item
Fumarate (BG-12; Tecfidera) (24)
C0058218 (UMLS CUI-1)
CL Item
COPAXONE (Copaxone) (6)
C0289884 (UMLS CUI-1)
CL Item
Immune Globulins (7)
C0021027 (UMLS CUI-1)
CL Item
Interferon ß-1A (Avonex) (19)
C0254119 (UMLS CUI-1)
C0021492 (UMLS CUI-2)
CL Item
Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
C0254119 (UMLS CUI-1)
CL Item
Interferon ß 1SC (Betaseron, Extavia) (21)
C0244713 (UMLS CUI-1)
CL Item
* Medication from a MS study (8)
C0013175 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
CL Item
Methotrexate (9)
C0025677 (UMLS CUI-1)
CL Item
Mitoxantrone (10)
C0026259 (UMLS CUI-1)
CL Item
Natalizumab (Tysabri) (11)
C1172734 (UMLS CUI-1)
CL Item
Rituximab (14)
C0393022 (UMLS CUI-1)
CL Item
Teriflunomide (Aubagio) (23)
C1718383 (UMLS CUI-1)
CL Item
Cortisone (25)
C0010137 (UMLS CUI-1)
CL Item
Others... (99)
C1115771 (UMLS CUI-1)
Wirkstoff anderer
Item
other active ingredient
text
C2114510 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Wirkstoff Beginn
Item
Start: Month/year
date
C3173309 (UMLS CUI [1,1])
C2114510 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Wirkstoff Ende
Item
End: Month
date
C1531784 (UMLS CUI [1,1])
C2114510 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item
Main reason for stopping the therapy
integer
C0850893 (UMLS CUI [1,1])
C0566251 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Therapieende
Code List
Main reason for stopping the therapy
CL Item
Side effects (1)
C0559546 (UMLS CUI-1)
(Comment:en)
CL Item
Lack effectiveness (2)
C0235828 (UMLS CUI-1)
(Comment:en)
CL Item
Another reason (99)
C3840932 (UMLS CUI-1)
C0850893 (UMLS CUI-2)
(Comment:en)
Text Anderer Grund
Item
If other, please indicate the reason
text
C3840932 (UMLS CUI [1,1])
C0850893 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item Group
Current MS therapy
C2827774 (UMLS CUI-1)
Item
Active ingredient
text
C2827774 (UMLS CUI [1,1])
C0026769 (UMLS CUI [1,2])
curth1
Code List
Active ingredient
CL Item
Alemtuzumab (Lemtrada) (22)
C0383429 (UMLS CUI-1)
CL Item
Azathioprine (2)
C0004482 (UMLS CUI-1)
CL Item
Cyclophosphamide (4)
C0010583 (UMLS CUI-1)
CL Item
Fingolimod (Gilenya) (18)
C1699926 (UMLS CUI-1)
CL Item
Fumarate (BG-12; Tecfidera) (24)
C0058218 (UMLS CUI-1)
CL Item
COPAXONE (Copaxone) (6)
C0289884 (UMLS CUI-1)
CL Item
Immune Globulins (7)
C0021027 (UMLS CUI-1)
CL Item
Interferon ß-1A (Avonex) (19)
C0254119 (UMLS CUI-1)
C0021492 (UMLS CUI-2)
CL Item
Interferon ß-1A SC (Rebif 22 µg, Rebif 44 µg) (20)
C0254119 (UMLS CUI-1)
CL Item
Interferon ß 1SC (Betaseron, Extavia) (21)
C0244713 (UMLS CUI-1)
CL Item
* Medication from a MS study (8)
C0013175 (UMLS CUI-1)
C0013227 (UMLS CUI-2)
CL Item
Methotrexate (9)
C0025677 (UMLS CUI-1)
CL Item
Mitoxantrone (10)
C0026259 (UMLS CUI-1)
CL Item
Natalizumab (Tysabri) (11)
C1172734 (UMLS CUI-1)
CL Item
Rituximab (14)
C0393022 (UMLS CUI-1)
CL Item
Teriflunomide (Aubagio) (23)
C1718383 (UMLS CUI-1)
CL Item
Cortisone (25)
C0010137 (UMLS CUI-1)
CL Item
Others... (99)
C1115771 (UMLS CUI-1)
curth1a
Item
other active ingredient
text
C2827774 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
curth1ab
Item
Start: Month/year
date
C3173309 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item
Regimen
integer
C1276413 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
TherapieSchema
Code List
Regimen
CL Item
Standard (1)
CL Item
Others (99)
andere
Item
Please specify the dose and type of administration
text
C0001555 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
C0026769 (UMLS CUI [1,3])
Item Group
Other diagnoses
C0332138 (UMLS CUI-1)
WeitereErkr
Item
Has any other of the following diagnoses been diagnosed?
boolean
C0332138 (UMLS CUI [1])
Item Group
Heart / cardiovascular disease
C0007222 (UMLS CUI-1)
Item
Heart / cardiovascular disease
integer
C0007222 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Heart / cardiovascular disease
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0007222 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
Kreislauferkrankungen
Code List
Which disease has been diagnosed?
CL Item
High blood pressure (02)
C0020538 (UMLS CUI-1)
CL Item
Heart failure/insufficiency (03)
C0392173 (UMLS CUI-1)
CL Item
Heart rhythm disorder (04)
C0003811 (UMLS CUI-1)
CL Item
Heart attack (05)
C0027051 (UMLS CUI-1)
CL Item
CHD / Angina Pectoris (06)
C0010068 (UMLS CUI-1)
CL Item
Vein thrombosis (07)
C0587220 (UMLS CUI-1)
CL Item
Pulmonary embolism (08)
C0034065 (UMLS CUI-1)
Kreislauferkrankungen: Monat/Jahr
Item
Month/year
date
C0007222 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0007222 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0007222 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Metabolic diseases
C0025517 (UMLS CUI-1)
Item
Metabolic diseases
integer
C0025517 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Metabolic diseases
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0025517 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
Stoffwechsel
Code List
Which disease has been diagnosed?
CL Item
Diabetes mellitus (11)
C0011849 (UMLS CUI-1)
CL Item
Thyroid under or overactive (12)
C0040128 (UMLS CUI-1)
Stoffwechsel: Monat/Jahr
Item
Month/year
date
C0025517 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0025517 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0025517 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Infectious diseases
C0009450 (UMLS CUI-1)
Item
Infectious diseases
integer
C0009450 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Infectious diseases
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0009450 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
Infekt
Code List
Which disease has been diagnosed?
CL Item
Hepatitis B or C (21)
C0019163 (UMLS CUI-1)
C0019196 (UMLS CUI-3)
CL Item
HIV infection (22)
C0019693 (UMLS CUI-1)
CL Item
Tuberculosis (23)
C0041296 (UMLS CUI-1)
CL Item
Opportunistic infections (24)
C0029118 (UMLS CUI-1)
CL Item
Herpes infection (25)
C0019372 (UMLS CUI-1)
CL Item
PML (26)
C0023524 (UMLS CUI-1)
CL Item
Lung inflammation (27)
C0032285 (UMLS CUI-1)
Welche opportunistische Infektion
Item
If Yes, what opportunistic infection
text
C0029118 (UMLS CUI [1])
Ort der Herpes-Infektion
Item
Site of infection
text
C0019372 (UMLS CUI [1,1])
C0475264 (UMLS CUI [1,2])
Infektion: Monat/Jahr
Item
Month/year
date
C0009450 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0009450 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0009450 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Gastrointestinal diseases
C0017178 (UMLS CUI-1)
Item
Gastrointestinal diseases
integer
C0017178 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Gastrointestinal diseases
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0017178 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
Gastro
Code List
Which disease has been diagnosed?
CL Item
Inflammation of the pancreas (31)
C0030305 (UMLS CUI-1)
CL Item
Cirrhosis of the liver (32)
C0023890 (UMLS CUI-1)
CL Item
Crohn's disease (33)
C0010346 (UMLS CUI-1)
CL Item
Ulcerative colitis (34)
C0009324 (UMLS CUI-1)
Gastro: Monat/Jahr
Item
Month/year
date
C0017178 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0017178 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0017178 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Neurological / psychiatric disorders
C0027765 (UMLS CUI-1)
C0004936 (UMLS CUI-3)
Item
Neurological / psychiatric disorders
integer
C0027765 (UMLS CUI [1])
C0004936 (UMLS CUI [2])
Unbekannt Ja ohne Überschrift
Code List
Neurological / psychiatric disorders
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0027765 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2,1])
C0457464 (UMLS CUI [2,2])
Neuro
Code List
Which disease has been diagnosed?
CL Item
Epileptic seizures (41)
C0036572 (UMLS CUI-1)
CL Item
Depression (42)
C0011581 (UMLS CUI-1)
CL Item
Angsstörungen, panic attacks (43)
C0497330 (UMLS CUI-1)
CL Item
Migraine / headache (44)
C0149931 (UMLS CUI-1)
CL Item
Anorexia (45)
C0003123 (UMLS CUI-1)
Neuro: Monat/Jahr
Item
Month/year
date
C0027765 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2,1])
C0011008 (UMLS CUI [2,2])
Item
Date unknown
integer
C0027765 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0004936 (UMLS CUI [2,1])
C0011008 (UMLS CUI [2,2])
C0439673 (UMLS CUI [2,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0027765 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
C0004936 (UMLS CUI [2,1])
C2827774 (UMLS CUI [2,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Allergies
C0020517 (UMLS CUI-1)
Item
Allergies
integer
C0020517 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Allergies
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0020517 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
Allergien
Code List
Which disease has been diagnosed?
CL Item
Drug allergy (51)
C0013182 (UMLS CUI-1)
CL Item
House dust / pollen (52)
C0339808 (UMLS CUI-1)
C1548336 (UMLS CUI-3)
CL Item
Food (53)
C0016470 (UMLS CUI-1)
CL Item
Nickel / fragrances (54)
C1690547 (UMLS CUI-1)
C0577618 (UMLS CUI-3)
CL Item
Insect bites (55)
C0854051 (UMLS CUI-1)
Medikamentenallergien
Item
Which drug?
text
C0013182 (UMLS CUI [1,1])
C2360065 (UMLS CUI [1,2])
Allergien: Monat/Jahr
Item
Month/year
date
C0020517 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0020517 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0020517 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Genitourinary Disorders
C0080276 (UMLS CUI-1)
Item
Genitourinary Disorders
integer
C0080276 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Genitourinary Disorders
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0080276 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
AndereUro
Code List
Which disease has been diagnosed?
CL Item
Recurrent urinary tract infections (61)
C0262655 (UMLS CUI-1)
CL Item
Renal impairment (62)
C0151746 (UMLS CUI-1)
CL Item
Other urological diseases (63)
C0080276 (UMLS CUI-1)
Uro: Monat/Jahr
Item
Month/year
date
C0080276 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0080276 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0080276 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Auto-immune diseases
C0004364 (UMLS CUI-1)
Item
Auto-immune diseases
integer
C0004364 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Auto-immune diseases
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0004364 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
Autoimmun
Code List
Which disease has been diagnosed?
CL Item
Myasthenia gravis (71)
C0026896 (UMLS CUI-1)
CL Item
Autoimmune thyroid disease (72)
C0178468 (UMLS CUI-1)
CL Item
Systemic Lupus Erythematosus (73)
C0024141 (UMLS CUI-1)
CL Item
Psoriasis (74)
C0033860 (UMLS CUI-1)
Autoimmun: Monat/Jahr
Item
Month/year
date
C0004364 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0004364 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0004364 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Blood Count / laboratory
C0018939 (UMLS CUI-1)
Item
Blood Count / laboratory
integer
C0018939 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Blood Count / laboratory
CL Item
NA (1)
Item
Which disease has been diagnosed?
integer
C0018939 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
BlutLabVer
Code List
Which disease has been diagnosed?
CL Item
Anemia (81)
C0002871 (UMLS CUI-1)
CL Item
Lymphopenia (82)
C0024312 (UMLS CUI-1)
CL Item
Leukopenia (83)
C0023530 (UMLS CUI-1)
CL Item
Neutropenia (84)
C0027947 (UMLS CUI-1)
CL Item
Coagulation disorders (85)
C0005779 (UMLS CUI-1)
CL Item
Myelodysplastic syndrome (86)
C3463824 (UMLS CUI-1)
CL Item
Saliency in Lebertest(s) (87)
C0438237 (UMLS CUI-1)
CL Item
Saliency in Nierentest(s) (88)
C0236151 (UMLS CUI-1)
BlutLab: Monat/Jahr
Item
Month/year
date
C0018939 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0018939 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0018939 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
General Symptoms
C0159028 (UMLS CUI-1)
Item
General symptoms
integer
C0159028 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
General symptoms
CL Item
NA (1)
Item
Which symptom was diagnosed?
integer
C0159028 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
AllgemSympt
Code List
Which symptom was diagnosed?
CL Item
Hair loss (91)
C0002170 (UMLS CUI-1)
CL Item
Skin rash (92)
C0015230 (UMLS CUI-1)
CL Item
local symptoms with medications (93)
C0853813 (UMLS CUI-1)
C0877248 (UMLS CUI-2)
CL Item
Retinopathy, macular edema (94)
C0035309 (UMLS CUI-1)
C0271051 (UMLS CUI-3)
CL Item
Joint pain (95)
C0003862 (UMLS CUI-1)
CL Item
Weight loss or gain (96)
C0005911 (UMLS CUI-1)
AllgemSympt: Monat/Jahr
Item
Month/year
date
C0159028 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0159028 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0159028 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Operation
C0543467 (UMLS CUI-1)
Item
Operation
integer
C0543467 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Operation
CL Item
NA (1)
Operation
Item
Which operations?
text
C0679638 (UMLS CUI [1])
Operation: Monat/Jahr
Item
Month/year
date
C0543467 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Date unknown
integer
C0543467 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0543467 (UMLS CUI [1,1])
C2827774 (UMLS CUI [1,2])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
Cancer
C0006826 (UMLS CUI-1)
Item
Cancer
integer
C0006826 (UMLS CUI [1])
Unbekannt Ja ohne Überschrift
Code List
Cancer
CL Item
NA (1)
Art von Krebs
Item
What kind of cancer
text
C0006826 (UMLS CUI [1,1])
C0457464 (UMLS CUI [1,2])
Krebs: Monat/Jahr
Item
Month/year
date
C0006826 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item Group
Cancer Treatment?
C0920425 (UMLS CUI-1)
Item
Operation
integer
C0543467 (UMLS CUI [1,1])
C0920425 (UMLS CUI [1,2])
Yes / No
Code List
Operation
CL Item
Yes (1)
CL Item
No (0)
Item
Radiation
integer
C1522449 (UMLS CUI [1,1])
C0920425 (UMLS CUI [1,2])
Yes / No
Code List
Radiation
CL Item
Yes (1)
CL Item
No (0)
Item
Chemotherapy
integer
C3665472 (UMLS CUI [1,1])
C0920425 (UMLS CUI [1,2])
Yes / No
Code List
Chemotherapy
CL Item
Yes (1)
CL Item
No (0)
Substanzen
Item
If yes, please specify substances chemotherapy
text
C0729502 (UMLS CUI [1,1])
C0920425 (UMLS CUI [1,2])
Item
not known
integer
C0729502 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C0920425 (UMLS CUI [1,3])
Unbekannt Ja
Code List
not known
CL Item
Yes (1)
Item Group
Other diseases?
C0332138 (UMLS CUI-1)
C0205394 (UMLS CUI-2)
Item
Other diseases
integer
C0332138 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Unbekannt Ja ohne Überschrift
Code List
Other diseases
CL Item
NA (1)
Andere
Item
What other disease?
text
C0332138 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0457464 (UMLS CUI [1,3])
Andere: Monat/Jahr
Item
Month/year
date
C0332138 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
Item
Date unknown
integer
C0332138 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0439673 (UMLS CUI [1,4])
Unbekannt Ja
Code List
Date unknown
CL Item
Yes (1)
Item
Current drug treatment
integer
C0332138 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C2827774 (UMLS CUI [1,3])
Yes / No
Code List
Current drug treatment
CL Item
Yes (1)
CL Item
No (0)
Item Group
None of the mentioned secondary diagnoses known
Item
Applicable
integer
C0549184 (UMLS CUI [1])
Unbekannt Ja
Code List
Applicable
CL Item
Yes (1)
Item Group
Pregnancy
C0032961 (UMLS CUI-1)
Item
Currently pregnant?
integer
C0549206 (UMLS CUI [1])
No Yes
Code List
Currently pregnant?
CL Item
No (0)
CL Item
Yes (1)
Item Group
Biologic Material (for example blood)
C0370003 (UMLS CUI-1)
Probennummer
Item
Sample No.
text
C0370003 (UMLS CUI [1,1])
C1300638 (UMLS CUI [1,2])
Zusatz
Item
Additional (currently disabled)
text
C0947611 (UMLS CUI [1])
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