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  1. 1. Test clinico
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EBMT Allograft

- 20/09/21 - 1 modulo, 29 itemgroups, 257 elementi, 1 linguaggio
Itemgroups: ANTIBODIES IN THE PATIENT, PRE-TRANSPLANT HISTORY OF DOCUMENTED INVASIVE FUNGAL INFECTION SINCE INITIAL DIAGNOSIS, PERFORMANCE SCORE, DONOR AND STEM CELL SOURCE, HLA MISMATCHES BETWEEN DONOR AND PATIENT, BLOOD GROUP, DATE OF BIRTH AND SEX OF DONOR, STATUS OF THE DONOR OR CORD BLOOD UNIT BEFORE HSCT, HISTOCOMPATIBILITY RESULTS, DNA (Allelic/molecular) HLA typing done, Serology (antigenic) HLA typing done, GRAFT MANIPULATION, CELL INFUSION, CELL VIABILITY RESULTS AT HSCT CENTRE, CELLS INFUSED FROM THIS DONOR AND STEM CELL SOURCE COMBINATION, HSC TRANSPLANTATION, PREPARATIVE TREATMENT (conditioning), Drugs, TREATMENT DURING THE IMMEDIATE POST-TRANSPLANT PERIOD, Number of cells infused by type, Total number of cells infused, GRAFT PERFORMANCE, DATE(S) AND RESULTS OF ALL TESTS DONE FOR ALL DONORS, ACUTE GRAFT VERSUS HOST DISEASE (GvHD), COMPLICATIONS WITHIN THE FIRST 100 DAYS., STATUS AT 100 DAYS, Method of detection, LAST DISEASE STATUS, ADDITIONAL NOTES IF APPLICABLE, ALLOGRAFT APPENDIX
ODM form derived from EBMT Allograft. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

EBMT Haemoglobinopathy General Information

- 20/09/21 - 1 modulo, 11 itemgroups, 79 elementi, 1 linguaggio
Itemgroups: GENERAL INFORMATION, Patient, DISEASE, CLINICAL FEATURES AND COMPLICATIONS, STATUS OF DISEASE AT HSCT, Enzymes, LIVER FUNCTION, RESULTS OF LIVER BIOPSY, CARDIAC FUNCTION, ADDITIONAL TREATMENT POST-HSCT, FORMS TO BE FILLED IN
ODM form derived from 113pp EBMT Haemoglobinopathy 12Hgbpthy.pdf refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

AML- Register_First diagnosis_SAL_University hospital dresden - First diagnosis

- 20/09/21 - 2 moduli, 4 itemgroups, 40 elementi, 1 linguaggio
Itemgroups: Patient information, Anamnesis status, Laboratory, Mutations
Items used as routine documentation for the SAL (Studienallianz Leukmie) study centre of university hospital dresden. ODM derived from original form "AML-Register Erstdiagnose-B1 und Komorbidität-B2", converted to ODM format.

Comorbidity

1 ItemGroup 27 elementi

Swedish Stroke Registry RIKSSTROKE - 3-month Follow-up

- 20/09/21 - 1 modulo, 2 itemgroups, 41 elementi, 3 lingue
Itemgroups: 3-month Follow-up, General information, RIKSSTROKE – 3-month Follow-Up Questionnaire
Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. 3-month Follow-up

Swedish Stroke Registry RIKSSTROKE - Acute Phase for Registration of Stroke

- 20/09/21 - 1 modulo, 12 itemgroups, 122 elementi, 2 lingue
Itemgroups: Acute Phase for Registration of Stroke - Personal Information, Sequence of care, Aftercare, ADL/Accommodation BEFORE ONSET of stroke, Risk Factors Stroke, Acute Care/Diagnosis Stroke, Pharmaceutical Treatment, Thrombolysis, Thrombectomy, Hemicraniectomy, Information and Follow-up, Rehabilitation
Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. Acute Phase for Registration of Stroke

Swedish Stroke Registry RIKSSTROKE - 2-years Follow-up

- 20/09/21 - 1 modulo, 1 ItemGroup, 41 elementi, 2 lingue
ItemGroup: RIKS-STRROKE - 2 YEARS FOLLOW-UP
Schwedisches Schlaganfallregister RIKSSTROKE Quelle: http://www.riksstroke.org/eng/ Riksstroke – a Swedish national quality register for stroke care primarily aimed at health professionals and decision makers in health care. We collect, analyze and follow-up data on morbidity and hospital stay. 2-years Follow-up

Age Related Macular Degeneration Registry National Eye Database (NED) - Age Related Macular Degeneration Registry

- 20/09/21 - 1 modulo, 9 itemgroups, 86 elementi, 1 linguaggio
Itemgroups: Administrative Data, Demography, Risk Factors, Quality of Life, Medical History, Clinical features, Investigation, Diagnosis, Therapy
Age Related Macular Degeneration Registry. The National Eye Database (NED) is a service supported by the Ministry of Health (MOH) as an approach to collect health information. It collects data on incidences and distributions, and evaluates risk factors as well as treatment outcome of visually threatening eye diseases such as cataract, diabetic retinopathy, glaucoma and contact lens related corneal ulcer. National Eye Database, Clinical Research Centre, Kepong-Selayang Highway 68100, Batu Caves Selangor. http://www.acrm.org.my/ned/index.htm.

Diabetic Eye Registry National Eye Database (NED) - SECTION 3: OCULAR FINDINGS AT PRESENTATION TO OPHTHALMOLOGY CLINIC

- 20/09/21 - 3 moduli, 2 itemgroups, 12 elementi, 1 linguaggio
Itemgroups: Finding ocular Right Eye, Finding ocular Left eye
Diabetic Eye Registry. The National Eye Database (NED) is a service supported by the Ministry of Health (MOH) as an approach to collect health information. It collects data on incidences and distributions, and evaluates risk factors as well as treatment outcome of visually threatening eye diseases such as cataract, diabetic retinopathy, glaucoma and contact lens related corneal ulcer. National Eye Database, Clinical Research Centre, Kepong-Selayang Highway 68100, Batu Caves Selangor.http://www.acrm.org.my/ned/index.htm.

SECTION 1: PATIENTS DEMOGRAPHY AND MEDICAL HISTORY

1 ItemGroup 14 elementi

SECTION 2: OCULAR FINDINGS DURING REFERRAL

2 itemgroups 11 elementi

dataset medical therapy cancer - dataset

- 20/09/21 - 1 modulo, 5 itemgroups, 41 elementi, 2 lingue
Itemgroups: Patient data, -, Therapeutic procedure , Tumor Status, Tumor Expansion
clinical cancer registry used in Münster

Patient Admission and Medical History Bridging UK Essen

- 20/09/21 - 1 modulo, 3 itemgroups, 59 elementi, 1 linguaggio
Itemgroups: Patient administration, Medical History, Anticoagulation, platelet aggregation inhibitors or anti-imflammatories in medial history
A prospective register study, investigating the change from Marcumar to Heparin in surgical patients. This is the fourth of its kind (Bridging). Authorisation granted by Mrs. Ose (Frau Ose), ZKS Essen (UK Essen)

MDS Register Düsseldorf

- 20/09/21 - 1 modulo, 15 itemgroups, 189 elementi, 1 linguaggio
Itemgroups: Administrative data, Symptoms at initial diagnosis, Comorbidity at initial diagnosis, Comorbidity Follow up, Laboratory at initial diagnosis, Laboratory follow-up, Follow up, Disease progression, Blood cell morphology, Cellular Morphology Bone marrow, Histology Bone Marrow, Molecular Genetics, secondary myelodysplastic syndromes, Therapy Myelodysplastic syndrome, Treatment
Documentation for MDS Register Düsseldorf. Provided by Prof. Gattermann, Author: Prof. Germing.

REGIMS Registry Baseline - Baseline Pregnancy Part 1

- 20/09/21 - 3 moduli, 5 itemgroups, 24 elementi, 2 lingue
Itemgroups: Daten der Patientin, Schwangerschaft, Relevante Anamnese (Grunderkrankung, Begleiterkrankungen, Allergien, Risikofaktoren, ...), MS-Medikation, Andere Medikation vor / während der Schwangerschaft
Baseline items for semantic analysis of the Multiple sclerosis immunotherapy registry REGIMS of the Institute of Epidemiology and Social Medicine of the University Hospital Münster provided by Prof. Dr. Klaus Berger and Dr. Maximov Stanislav.

Baseline Pregnancy Part 2

5 itemgroups 21 elementi

Baseline Main Sheet

25 itemgroups 116 elementi

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