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Pediatric surgery UKM - Head injury admission form

- 9/27/21 - 1 form, 3 itemgroups, 22 items, 2 languages
Itemgroups: Patient identification, Glasgow coma scale, Neurological assessment
Head injury admission form converted to ODM format. Routine documentation of University Hospital of Münster.

Metronomic Treatment in Children and Adolescents With Recurrent or Progressive High Risk Neuroblastoma (METRO-NB2012) NCT02641314 - Therapy and toxicity cycle 10-13

- 9/20/21 - 16 forms, 16 itemgroups, 68 items, 1 language
Itemgroups: Therapy cycle 10-13, Therapy after cycle, Propranolol, Propranolol therapy deviation, Celecoxib, Celecoxib deviation, Cyclophosphamide, Cyclophosphamide deviation, Vinblastine, Vinblastine deviation, Toxicity overview, Toxicity, Hospitalization, Comments, Transfusion, Footer module
NCT02641314 Phase 2 Trial of Metronomic Treatment in Children and Adolescents With Recurrent or Progressive Neuroblastoma (NB). The study investigates the tolerance and the efficacy of a new combination of five drugs consisting of propranolol (antiangiogenetic, anti-neuroblastic), Celecoxib (modulating immune response, ant-neuroblastic), cyclophosphamide (antiangiogenetic, anti-neuroblastic), etoposide (antiangiogenetic, anti-neuroblastic), and vinblastin (antiangiogenetic, anti-neuroblastic). Vinblastin is scheduled every 14 days intravenously, all other drugs are applied daily throughout 365 days (except etoposide for 4x3 weeks). The efficacies of each of the drugs have been demonstrated in vitro and in vivo in animal studies. All drugs have been used in children for other conditions. From those experiences low toxicities and a favorable Quality of life are expected. Prof. Dr. Frank Berthold Abt. für Kinderonkologie und –hämatologie Zentrum für Kinder- und Jugendmedizin Universität zu Köln

Therapy and toxicity cycle > 13

16 itemgroups 68 items

Therapy and toxicity cycle 1-3

16 itemgroups 68 items

Therapy and toxicity cycle 4-6

16 itemgroups 68 items

Therapy and toxicity cycle 7-9

16 itemgroups 68 items

Baseline

13 itemgroups 77 items

Reference

12 itemgroups 111 items

NINDS CDE Surgeries and Other Procedures Epilepsy - Surgeries and Other Procedures

- 9/20/21 - 1 form, 3 itemgroups, 168 items, 1 language
Itemgroups: Surgery and Pathology, Additional surgical details, Postoperative complications
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Rotterdam score

- 1/25/18 - 1 form, 1 itemgroup, 5 items, 1 language
Itemgroup: Rotterdam score
The Marshall computed tomographic (CT) classification identifies six groups of patients with traumatic brain injury (TBI), based on morphological abnormalities on the CT scan. This classification is increasingly used as a predictor of outcome. Maas et al.(2005) aimed to examine the predictive value of the Marshall CT classification in comparison with alternative CT models. It is preferable to use combinations of individual CT predictors rather than the Marshall CT classification for prognostic purposes in TBI. Such models should include at least the following parameters: status of basal cisterns, shift, traumatic subarachnoid or intraventricular hemorrhage, and presence of different types of mass lesions. Maas AIR, Hukkelhoven CWPM, Marshall LF, Steyerberg EW. (2005) Prediction of outcome in traumatic brain injury with computed tomographic characteristics: a comparison between the computed tomographic classification and combinations of computed tomographic predictors. Neurosurgery. 57(6, 1173-82

NCT01041950 Hydrocephalus - Treatment Group

- 11/15/17 - 1 form, 10 itemgroups, 47 items, 1 language
Itemgroups: Lumbar Liquor Drainage, Attempt to disconnect LD, Liquor Drainage: Amount, Bleeding Complication, Overdrainage LD, Cerebrospinal Fluid Finding, Change of Drainage, Shunt, Discharge, Clinical Outcome
NCT01041950 Lumbar Drainage for Communicating Hydrocephalus After Intraventricular Hemorrhage: a Randomised, Controlled Trial(LUCAS-IVH: LUmbar CAtheter for Severe IntraVentricular Hemorrhage) Copyright-Holder: Prim. Priv.-Doz. Dr. med. Dimitre Staykov Krankenhaus Eisenstadt Prof. Dr. med. Dr. Hagen B. Huttner Universitätsklinikum Erlangen Treatment Group

NCT01041950 Hydrocephalus - Control Group

- 11/15/17 - 1 form, 11 itemgroups, 44 items, 1 language
Itemgroups: EVD Liquordrainage, Attempt to disconnect EVD, Liquor Drainage: Amount, Comment, Bleeding Complication, Overdrainage LD, Cerebrospinal Fluid Finding, Change of Drainage, Shunt, Discharge, Clinical Outcome
NCT01041950 Lumbar Drainage for Communicating Hydrocephalus After Intraventricular Hemorrhage: a Randomised, Controlled Trial(LUCAS-IVH: LUmbar CAtheter for Severe IntraVentricular Hemorrhage) Copyright-Holder: Prim. Priv.-Doz. Dr. med. Dimitre Staykov Krankenhaus Eisenstadt Prof. Dr. med. Dr. Hagen B. Huttner Universitätsklinikum Erlangen Control Group

NCT01041950 Hydrocephalus - Eligibility Criteria

- 11/10/17 - 1 form, 10 itemgroups, 34 items, 1 language
Itemgroups: General Information, Demographics, Diagnostic CCT, Admission, Medical History, Insertion of External Ventricular Drainage, Intraventricular Fibrinolysis, CT Progression of Cerebral Hemorrhage, EVD Disconnection, Safety Issue
NCT01041950 Lumbar Drainage for Communicating Hydrocephalus After Intraventricular Hemorrhage: a Randomised, Controlled Trial(LUCAS-IVH: LUmbar CAtheter for Severe IntraVentricular Hemorrhage) Copyright-Holder: Prim. Priv.-Doz. Dr. med. Dimitre Staykov Krankenhaus Eisenstadt Prof. Dr. med. Dr. Hagen B. Huttner Universitätsklinikum Erlangen Eligibility Criteria

Q102 16 Prozedur MS University Hospital Muenster (UKM) Subform

- 11/2/16 - 1 form, 2 itemgroups, 22 items, 2 languages
Itemgroups: Procedure, Verlauf der Prozedur
Hospital Routine Documentation Subform at the University Hospital Muenster. Original Form name: Q102 16 Prozedur.

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