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NINDS CDE Participant/Subject Characteristics Amyotrophic Lateral Sclerosis - Demographics and Social Status

- 2015-12-18 - 1 Formulär, 2 Item-grupper, 9 Dataelement, 1 Språk

Item-grupper: Demographics, Social Status

NINDS Common Data Elements [Participant/Subject Characteristics] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE [Medical History][Amyotrophic Lateral Sclerosis] - General Health History

- 2016-05-13 - 1 Formulär, 1 Item-grupp, 91 Dataelement, 1 Språk

Item-grupp: Medical history

NINDS Common Data Elements [Participant/Subject History and Family History] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Family History Amyotrophic Lateral Sclerosis - General Health History

- 2015-12-21 - 1 Formulär, 1 Item-grupp, 42 Dataelement, 1 Språk

Item-grupp: Family History

NINDS Common Data Elements [Participant/Subject History and Family History] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Electrophysiology Amyotrophic Lateral Sclerosis - Electrophysiology

- 2016-04-15 - 1 Formulär, 9 Item-grupper, 152 Dataelement, 1 Språk

Item-grupper: Core Table EMG/NCS, Cranial Supplemental Table for EMG, Cervical Supplemental Table for EMG, Thoracic Supplemental Table for EMG, Lumbosacral Supplemental Table for EMG, Core Table for MUNE, Supplemental Table for MUNE, Core Table for Transcranial Magnetic Stimulation, Core Table for Electrical Impedance Myography

NINDS Common Data Elements (Electrophysiology Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Grip Strength Amyotrophic Lateral Sclerosis - Grip Strength

- 2016-04-18 - 1 Formulär, 3 Item-grupper, 100 Dataelement, 1 Språk

Item-grupper: Grip Strength, Grip Strength Fatigue, Hand Held Dynamometry

NINDS Common Data Elements (Grip Strength Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Clinical Milestones and Events Amyotrophic Lateral Sclerosis - Clinical Milestones and Events

- 2016-04-15 - 1 Formulär, 3 Item-grupper, 21 Dataelement, 1 Språk

Item-grupper: Clinical Milestones and Events Data Collection Table, Clinical Events and Falls Data Collection Grid, Clinical Events Cramps Data Collection Grid

NINDS Common Data Elements (Clinical milestones and events Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Prior and Concomitant Medications Amyotrophic Lateral Sclerosis - Prior and Concomitant Medications

- 2016-04-15 - 1 Formulär, 1 Item-grupp, 14 Dataelement, 1 Språk

Item-grupp: Prior and Concomitant Medications

NINDS Common Data Elements [Magnetic Resonance Imaging][Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis - Magnetic Resonance Imaging

- 2016-04-14 - 1 Formulär, 5 Item-grupper, 319 Dataelement, 1 Språk

Item-grupper: Brain Perfusion Magnetic Resonance Imaging, Diffusion Tensor Imaging, Functional Magnetic Resonance Imaging, Magnetic Resonance Imaging, Magnetic Resonance Spectroscopy

NINDS Common Data Elements (Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Tissue Based Marker Amyotrophic Lateral Sclerosis - Tissue Based Marker

- 2016-04-05 - 1 Formulär, 1 Item-grupp, 9 Dataelement, 1 Språk

Item-grupp: Tissue Based Marker

NINDS Common Data Elements (Tissue Based Marker Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Vital Signs Amyotrophic Lateral Sclerosis - Vital Signs

- 2016-03-21 - 1 Formulär, 1 Item-grupp, 16 Dataelement, 1 Språk

Item-grupp: Vital Signs

NINDS Common Data Elements (Vital Signs Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Amyotrophic Lateral Sclerosis - Physical Examination

- 2016-03-21 - 1 Formulär, 1 Item-grupp, 34 Dataelement, 1 Språk

Item-grupp: Physical Exam

NINDS Common Data Elements [Neuromuscular Examination] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Neuromuscular Examination Amyotrophic Lateral Sclerosis - Neuromuscular Examination

- 2016-03-21 - 1 Formulär, 5 Item-grupper, 91 Dataelement, 1 Språk

Item-grupper: Neuromuscular Exam:cranial segment, Neuromuscular Exam:Arm muscle condition, Neuromuscular Exam:Arm muscle strength abnormalities, Neuromuscular Exam:Leg muscle condition, Neuromuscular Exam:Leg muscle strength

NINDS Common Data Elements Neuromuscular Examination Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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