ID

14234

Description

NINDS Common Data Elements (Tissue Based Marker Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

Versions (1)
  1. 4/5/16 4/5/16 -
Uploaded on

April 5, 2016

DOI

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License

Creative Commons BY-NC 3.0
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NINDS CDE Tissue Based Marker Amyotrophic Lateral Sclerosis

English

Tissue Based Marker

1 forms  
  1. StudyEvent: ODM
    1. Tissue Based Marker
Tissue Based Marker
Description

Tissue Based Marker

Study-ID
Description

Study ID

Data type

integer

Alias
UMLS CUI [1]
C2826693
Study site name
Description

Study site

Data type

text

Alias
UMLS CUI [1]
C2825164
Subject ID
Description

Patient Study ID

Data type

text

Alias
UMLS CUI [1]
C2348585
Was a muscle biopsy done?
Description

Muscle biopsy

Data type

integer

Alias
UMLS CUI [1]
C0185283
If muscle biopsy was done, was the limb which the biopsy was taken from, affected clinically?
Description

Muscle biopsy

Data type

boolean

Alias
UMLS CUI [1]
C0185283
If yes, specify how the limb was clinically affected
Description

Muscle biopsy

Data type

text

Alias
UMLS CUI [1]
C0185283
Indicate the results of the electromyography (EMG)
Description

Electromyography (EMG)

Data type

integer

Alias
UMLS CUI [1]
C0013839
Was skin biopsy performed?
Description

Skin biopsy

Data type

integer

Alias
UMLS CUI [1]
C0150866
If skin biopsy was done what site was it collected from
Description

Skin biopsy

Data type

text

Alias
UMLS CUI [1]
C0150866
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Similar models

Tissue Based Marker

1 forms
  1. StudyEvent: ODM
    1. Tissue Based Marker
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Tissue Based Marker
Study ID
Item
Study-ID
integer
C2826693 (UMLS CUI [1])
Study site
Item
Study site name
text
C2825164 (UMLS CUI [1])
Patient Study ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
Item
Was a muscle biopsy done?
integer
C0185283 (UMLS CUI [1])
Muscle biopsy
Code List
Was a muscle biopsy done?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Muscle biopsy
Item
If muscle biopsy was done, was the limb which the biopsy was taken from, affected clinically?
boolean
C0185283 (UMLS CUI [1])
Muscle biopsy
Item
If yes, specify how the limb was clinically affected
text
C0185283 (UMLS CUI [1])
Item
Indicate the results of the electromyography (EMG)
integer
C0013839 (UMLS CUI [1])
Electromyography (EMG)
Code List
Indicate the results of the electromyography (EMG)
CL Item
Normal (1)
CL Item
Abnormal (2)
Item
Was skin biopsy performed?
integer
C0150866 (UMLS CUI [1])
Muscle biopsy
Code List
Was skin biopsy performed?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Skin biopsy
Item
If skin biopsy was done what site was it collected from
text
C0150866 (UMLS CUI [1])
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