ID

12742

Description

NINDS Common Data Elements [Participant/Subject Characteristics] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

Versions (1)
  1. 12/18/15 12/18/15 -
Uploaded on

December 18, 2015

DOI

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License

Creative Commons BY-NC 3.0
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NINDS CDE Participant/Subject Characteristics Amyotrophic Lateral Sclerosis

English

Demographics and Social Status

1 forms  
Demographics
Description

Demographics

Gender
Description

Gender

Data type

integer

Alias
UMLS CUI [1]
C0079399
Date of birth
Description

Date of birth

Data type

date

Alias
UMLS CUI [1]
C0421451
Ethnicity
Description

(“X” ONLY one with which you MOST CLOSELY identify)

Data type

integer

Alias
UMLS CUI [1]
C0015031
Race
Description

(Mark all those with which you identify)

Data type

text

Alias
UMLS CUI [1]
C0034510
Fathers country(s) of origin
Description

Fathers country(s) of origin

Data type

text

Alias
UMLS CUI [1]
C3260806
Mothers country(s)of origin
Description

Mothers country(s)of origin

Data type

text

Alias
UMLS CUI [1]
C3260806
Social Status
Description

Social Status

Religion
Description

Religion

Data type

text

Alias
UMLS CUI [1]
C0035039
Years of education
Description

Education

Data type

integer

Measurement units
  • yrs
Alias
UMLS CUI [1]
C0013658
yrs
Highest education level attained
Description

Education level

Data type

text

Alias
UMLS CUI [1]
C0013658
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Similar models

Demographics and Social Status

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Demographics
Item
Gender
integer
C0079399 (UMLS CUI [1])
Gender
Code List
Gender
CL Item
female (1)
CL Item
male (2)
CL Item
unknown (3)
CL Item
unspecified (4)
CL Item
not reported (5)
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
Item
Ethnicity
integer
C0015031 (UMLS CUI [1])
Ethnicity
Code List
Ethnicity
CL Item
Hispanic or Latino (1)
CL Item
not Hispanic or Latino (2)
CL Item
Not Reported (3)
CL Item
Unknown (4)
Item
Race
text
C0034510 (UMLS CUI [1])
Race
Code List
Race
CL Item
American Indian/Alaska Native (1)
CL Item
African - Black (i.e., south of the Sahara) (2)
CL Item
African - North (i.e., Sahara or north of the Sahara: e.g., Algeria, Egypt, Morocco, Tunisia, etc.) (3)
CL Item
American - Black (i.e., people of African descent whose area of origin is within the Americas: e.g., Canada, Caribbean, Brazil, US, etc.) (4)
CL Item
Asian - East (i.e., China, Japan, Korea, etc.) (5)
CL Item
Asian - West (i.e., Bangladesh, India, Iran, Iraq, Pakistan, etc.) (6)
CL Item
Caucasian (e.g., United Kingdom, Germany, Peninsular Spain, Latin America, France, Italy, (7)
CL Item
Ireland, Sweden, etc.) (Ireland, Sweden, etc.))
CL Item
Native Hawaiian or other Pacific Islander (8)
CL Item
Other (i.e., if none of the above categories reflects your area of origin, then specify as precisely as possible) (9)
CL Item
Unknown (10)
CL Item
Not Reported (11)
Fathers country(s) of origin
Item
Fathers country(s) of origin
text
C3260806 (UMLS CUI [1])
Mothers country(s)of origin
Item
Mothers country(s)of origin
text
C3260806 (UMLS CUI [1])
Item Group
Social Status
Item
Religion
text
C0035039 (UMLS CUI [1])
Religion
Code List
Religion
CL Item
None (1)
CL Item
Christian (2)
CL Item
Buddhist (3)
CL Item
Hindu (4)
CL Item
Jewish (5)
CL Item
Muslim (6)
CL Item
Sikh (7)
CL Item
Other (please specify) (8)
Education
Item
Years of education
integer
C0013658 (UMLS CUI [1])
Item
Highest education level attained
text
C0013658 (UMLS CUI [1])
Education level
Code List
Highest education level attained
CL Item
Never attended/ Kindergarten only (1)
CL Item
1st Grade (2)
CL Item
2nd Grade (3)
CL Item
3rd Grade (4)
CL Item
4th Grade (5)
CL Item
5th Grade (6)
CL Item
6th Grade (7)
CL Item
7th Grade (8)
CL Item
8th Grade (9)
CL Item
9th Grade (10)
CL Item
10th Grade (11)
CL Item
11th Grade (12)
CL Item
12th Grade, no diploma (13)
CL Item
High school graduate (14)
CL Item
GED or equivalent (15)
CL Item
Some college, no degree  (16)
CL Item
Associate degree: occupational, technical, or vocational program (17)
CL Item
Associate degree: academic program (18)
CL Item
Bachelor's degree (e.g., BA, AB, BS, BBA) (19)
CL Item
Master's degree (e.g., MA, MS, MEng, MEd, MBA) (20)
CL Item
Professional school degree (e.g., MD, DDS, DVM, JD) (21)
CL Item
Doctoral degree (e.g., PhD, EdD) (22)
CL Item
Unknown (23)
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