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Top 300 Dataset of the Medical Informatics Initiative Germany (MII) - Laboratory Tests (Overview)

- 29/04/19 - 1 modulo, 1 ItemGroup, 300 elementi, 2 lingue
ItemGroup: Laboratory Tests
The Top 300 Dataset (Kerndatensatz Labor) was developed by the Medical Informatics Initiative Germany (MII) and contains frequency-sorted, LOINC-coded analyses of the university clinics in Göttingen, Gießen, Munich, Greifswald and Erlangen. This form shows an overview of the preferred presentation of the most common laboratory parameters. Official german translations were used where available. https://www.medizininformatik-initiative.de/de/labordaten-in-der-medizininformatik-initiative Explanation of abbreviations (english / german): Bld = Blood / Blut BldA = arterial blood / arterielles Blut Ser = Serum / Serum Plas = Plasma / Plasma RBC = Red blood cells / Erythrozyten PPP = Platelet poor plasma / plättchenarmes Plasma Urine sed = Urine sediment / Urinsediment CSF = Cerebral spinal fluid / Liquor Body fld = Body fluid / Körperflüssigkeit

HiGHmed Use Case Infection Control - Minimal Data Set

- 14/12/17 - 1 modulo, 6 itemgroups, 17 elementi, 1 linguaggio
Itemgroups: Patient basic data, Microbiological data, Basic clinical chemistry lab, Basic hematology lab, Genomic data, Movement data
Minimal Data Set provided by medical data integration centers in the HiGHmed consortium. See http://www.highmed.org/ for further information on the consortium.

Top 300 Laboratory Value Dataset of the Medical Informatics Initiative Germany (MII) (Extended Version) - SERO

- 06/12/19 - 11 moduli, 17 itemgroups, 46 elementi, 1 linguaggio
Itemgroups: Rheumatoid factor, Thyroglobulin Ab, Neutrophil cytoplasmic Ab.perinuclear, Neutrophil cytoplasmic Ab.classic, Thyroperoxidase Ab, Thyrotropin receptor Ab, Smith extractable nuclear Ab, Nuclear Ab, SCL-70 extractable nuclear Ab, Mitochondria Ab, Tissue transglutaminase Ab.IgA, Mitochondria M2 Ab, PM-SCL extractable nuclear Ab, Cyclic citrullinated peptide Ab, Jo-1 extractable nuclear Ab, DNA double strand Ab, Myeloperoxidase Ab
The Top 300 Dataset (Kerndatensatz Labor) was developed by the Medical Informatics Initiative Germany (MII) and contains frequency-sorted, LOINC-coded analyses of the university clinics in Göttingen, Gießen, Munich, Greifswald and Erlangen. This form shows a detailed description containing primary and secondary LOINC codes of the 300 most common laboratory parameters. For each of the 300 laboratory parameters an itemgroup was created with all accepted variants of the laboratory parameters as items (secondary LOINC codes), the first item being the preferred LOINC variant of the MII (primary LOINC code). The itemgroup title is based on the primary LOINC code. The list is divided into subforms by the associated classes of laboratory parameters. If more than one class, the parameters can be found in the MIXED subform. An overview of the preferred presentation can also be found in the MDM portal (Laboratory Tests (Overview)). https://www.medizininformatik-initiative.de/de/labordaten-in-der-medizininformatik-initiative Explanation of abbreviations for types of specimen and classes/subforms: Type of specimen: Bld = Blood BldA = arterial blood Ser = Serum Plas = Plasma RBC = Red blood cells PPP = Platelet poor plasma Urine sed = Urine sediment CSF = Cerebral spinal fluid Body fld = Body fluid Classes (Subforms): CHEM = Chemistry HEM/BC = Hematology/Blood Cell Count COAG = Coagulation study UA = Urinalysis CELLMARK = Cell markers CLIN = clinical not elsewhere classified DRUG/TOX = drug levels & toxicology SERO = serology MICRO = Microbiology SPEC = Specimen characteristics

DRUG/TOX

17 itemgroups 55 elementi

MICRO

10 itemgroups 15 elementi

UA

12 itemgroups 30 elementi

CELLMARK

5 itemgroups 9 elementi

SPEC

5 itemgroups 5 elementi

CLIN

1 ItemGroup 1 elemento

International Prostate Symptom Score - IPSS

- 04/04/19 - 1 modulo, 1 ItemGroup, 7 elementi, 2 lingue
ItemGroup: Urination
The International Prostate Symptom Score (IPSS) is a questionnaire about the disease benign prostatic hyperplasia. This questionnaire was created in 1992 by the American Urological Association, the original name was "AUA symptom score" or "AUA-7" (American Urological Association symptom score 7). For each of the seven symptoms, zero to five points are awarded: Residual urinary sensation, urge to urinate again two hours after last toilet visit, urinary stuttering, inability to postpone urination, weak urinary stream, urination pressure and frequency of urination at night. According to this point system, patients are divided into those with mild (IPSS<8), moderate (IPSS=8-19) and severe (IPSS=20-35) symptoms. A therapy is usually started from a value greater than 7 and existing distress. Barry MJ et al. The American Urological Association symptom index for benign prostatic hyperplasia. The Measurement Committee of the American Urological Association. J Urol. 1992. https://www.ncbi.nlm.nih.gov/pubmed/1279218 https://de.wikipedia.org/wiki/International_Prostate_Symptom_Score Before applying for a DOI to reproduce the instrument in a publication, permission of the Journal of Urology is required. https://eprovide.mapi-trust.org/instruments/international-prostate-symptom-score

NIH Stroke Scale Routine documentation in German hospitals DMI

- 20/09/21 - 1 modulo, 3 itemgroups, 26 elementi, 2 lingue
Itemgroups: General information, NIH Stroke Scale, Therapy
Routine documentation in German hospitals. Source file name: VL010107_NIH Stroke Scale. Examplary forms provided by DMI (http://www.dmi.de/)

NIH Stroke Scale Routine documentation in German hospitals DMI

- 20/09/21 - 1 modulo, 2 itemgroups, 20 elementi, 2 lingue
Itemgroups: Patient, NIH Stroke Scale
Routine documentation in German hospitals. Source file name: VL010107_NIH Stroke Scale. Examplary forms provided by DMI (http://www.dmi.de/)

ICHOM Macular Degeneration

- 17/09/21 - 1 modulo, 10 itemgroups, 47 elementi, 1 linguaggio
Itemgroups: Demographics, Physical examination visual acuity, clinical status, Medical History, Therapy eye, Treatment, treatment burden, Therapy complications, Disease activity, health related quality of life Vision Screening
MACULAR DEGENERATION DATA COLLECTION Version 3.0.1 Revised: April 10th, 2017, International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Conditions: Neovascular Macular Degeneration Neovascular Age Related Macular Degeneration | Polypoidal Choroidal Vasculopathy | Myopic Neovascular Macular Degeneration | Other Forms of Neovascular Macular Degeneration (includes Post-Traumatic, Inflammatory, Idiopathic, Macular Telangiectasia Type 2) Non-Neovascular Age Related Macular Degeneration Treatment Approaches: Intravitreal anti-VEGF treatment | Other intravitreal treatment | Photodynamic therapy | Thermal laser photocoagulation | Retinal radiation therapy | Transpupillary thermotherapy | Retinal surgical treatment Questionnaires used in this form: Brief IVI

Hannover Functional Questionnaire Backache (FFbH-R)

- 08/01/21 - 1 modulo, 1 ItemGroup, 14 elementi, 1 linguaggio
ItemGroup: FFbH-R
Questionnaire for the diagnosis of functional disability caused by backache. German title: Funktionsfragebogen Hannover Rücken (FFbH-R) References: Raspe, H. H., Hagedorn, U., Kohlmann, T., & Mattussek, S. (1990). Der Funktionsfragebogen Hannover (FFbH): Ein Instrument zur Funktionsdiagnostik bei polyartikulären Gelenkerkrankungen. In: J. Siegrist (Hrg.) Wohnortnahe Betreuung Rheumakranker. Ergebnisse sozialwissenschaftlicher Evaluation eines Modellversuchs (pp. 164-182). Schattauer Verlag, Stuttgart. Raspe, H. H., & Kohlmann, T. (1991). Fortschritte in der Klinischen Diagnostik und Dokumentation des chronisch-rheumatischen Schmerzes. Der Schmerz, 5, S38-S51.

ICHOM Advanced Prostate Cancer - Baseline Patient-reported Form

- 30/04/20 - 1 modulo, 4 itemgroups, 67 elementi, 1 linguaggio
Itemgroups: Administrative Data, Demographic factors, Baseline Clinical Factors, Degree of health
ADVANCED PROSTATE CANCER DATA COLLECTION Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: All patients with advanced prostate cancer, either having metastatic disease or biochemical recurrence progressing after salvage treatment or ineligible for salvage treatment. Patients with biochemical recurrence treated with salvage therapy are referred to the localized prostate cancer set. Treatment Approaches: Hormonal Therapy | Chemotherapy | Immunotherapy | Radiopharmaceuticals | Radiation | Interventions for Complications of Local Progression This form contains patient-reported variables, to be assessed at baseline. Questionnaires used in this form: Expanded Prostate Cancer Index Composite (EPIC-26): The EPIC-26 is free for all health care organizations, and a license is not needed. The scoring guide may be found at http://www.med.umich.edu/urology/research/EPIC/EPIC-26-Scoring-1.2007.pdf ; Wei J, Dunn R, Litwin M, Sandler H, and Sanda M. "Development and Validation of the Expanded Prostate Cancer Index Composite (EPIC) for Comprehensive Assessment of Health-Related Quality of Life in Men with Prostate Cancer", Urology. 56: 899-905, 2000. For registries choosing to implement the EPIC‐CP rather than the EPIC‐26, we recommend using the same variable IDs as the corresponding EPIC‐26 questions. This means that only questions 2, 3, 4a, 4b, 4d, 4e, 5, 6e, 6b, 7, 8b, 9, 12, 13a, 13c, and 13d of the EPIC-26 are administered. Utilization of Sexual Medications/Devices: The Utilization of Sexual Medications/Devices is free for all health care organizations, and a license is not needed (according to ICHOM). Refer to http://dx.doi.org/10.1016/j.urology.2006.01.077 for more information European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30): For use of the EORTC QLQ-C30 a license is needed, therefore the questions will not be part of this version of the standard set. (eortc.be) The following paper has been published about development of this standard set: Morgans AK, van Bommel ACM, Stowell C, Abrahm JL, Basch E, Bekelman JE, et al. Development of a Standardized Set of Patient-centered Outcomes for Advanced Prostate Cancer: An International Effort for a Unified Approach. Eur Urol. 2015 Nov;68(5):891–8. For the standard set ICHOM has been supported by the Movember Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

ICHOM Low Back Pain - Baseline Patient-reported Variables

- 30/04/20 - 1 modulo, 5 itemgroups, 30 elementi, 1 linguaggio
Itemgroups: Patient ID, Demographic Factors, Baseline functional Status, Baseline Clinical Factors, Prior Treatment
LOW BACK PAIN DATA COLLECTION Version 2.0.3 Revised August 24th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Lumbar Disc Herniation | Lumbar Stenosis | Lumbar Spondylolisthesis | Degenerative Scoliosis | Adult Idiopathic Scoliosis | Degenerative Disc Disorder | Other Degenerative Lumbar Disorders | Mechanical, Acute, and Chronic Lumbar Back Pain and Back-Related Leg Pain Conditions Not Covered: Individuals < 18 Years of Age | Spinal Infection | Spinal Tumor | Spinal Fractures | Traumatic Dislocation | Congenital Scoliosis Documented as >20 Degrees, Moderate, Large, or Severe Treatment Approaches: Conservative Therapy (e.g. physical therapy, chiropractic, drug therapy, injections, etc.) | Surgical Therapy (e.g. spinal fusion, decompression, or discectomy) This ODM-file contains Baseline patient-reported Variables to be assessed at baseline, with use of the following Scores: ODI - Oswestry Disability Index Version 2.1a: The ODI is free for all health care organizations, but a license is needed for use (therefore not included in this version of the standard set). Please visit eprovide: https://eprovide.mapi-trust.org/ NPRS - Numerical Pain Rating Scale: The NPRS is free for all health care organizations, and a license is not needed. EQ-5D-3L - EuroQol‐5D descriptive system (EQ-­5D‐3L) and visual analogue scale (EQ-­VAS): The EQ-5D-3L is free for non-profits and academic research, but a license is needed for use (therefore not included in this version of the standard set). https://euroqol.org/support/how-to-obtain-eq-5d/ Publication: R Carter Clement, Adina Welander, Caleb Stowell, Thomas D Cha, John L Chen, Michelle Davies, Jeremy C Fairbank, Kevin T Foley, Martin Gehrchen, Olle Hagg, Wilco C Jacobs, Richard Kahler, Safdar N Khan, Isador H Lieberman, Beth Morisson, Donna D Ohnmeiss, Wilco C Peul, Neal H Shonnard, Matthew W Smuck, Tore K Solberg, Bjorn H Stromqvist, Miranda L Van Hooff, Ajay D Wasan, Paul C Willems, William Yeo & Peter FRitzell (2015) A proposed set of metrics for standardized outcome reporting in the management of low back pain, Acta Orthopaedica, 86:5, 523-533 ICHOM was supported for the Low Back Pain Standard Set by Arthritis Research UK. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

29893_CRAMS Scale - CRAMS Scale

- 30/05/18 - 1 modulo, 1 ItemGroup, 6 elementi, 2 lingue
ItemGroup: CRAMS Scale
"A simple 1O-point scale was devised for the purpose of determining which trauma patients should go to a trauma center. The acronym´"CRAMS" represents the five components measured: Circulation, Respiration, Abdomen, Motor, and Speech. " Reference: Gormican, S. P. (1982). CRAMS scale: field triage of trauma victims. Annals of emergency medicine, 11(3), 132-135.

29891_New Jersey Standard Adult Trauma Triage Guidelines - New Jersey Standard Adult Trauma Triage Guidelines

- 28/05/18 - 1 modulo, 3 itemgroups, 17 elementi, 2 lingue
Itemgroups: Physiology, Anatomy, Mechanism of injury
Prehospital Trauma Triage Decision Guidelines. "The following trauma triage guidelines are provided to assist in determining the disposition of adult trauma patients. These guidelines are intended to be utilized in conjunction with clinical judgment. It is understood that these are guidelines only and are to be used whenever possible in communication with a base station physician." Reference: New Jersey Department of Health & Senior Services. Trauma triage & transport. Trenton: New Jersey Department of Health & Senior Services; 1992. See also: http://www.nj.gov/health/ems/special-services/fly-or-drive-criteria/

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