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Table des matières
  1. 1. Essai clinique
  2. 2. Routinedokumentation
  3. 3. Études de registres/cohortes
  4. 4. Assurance qualité
  5. 5. Standard de données
    1. 5.1. Jeu de données principales
      1. Validé
      1. Ébauche
      1. Désuet
    1. 5.2. Scores & instruments
      1. Validé
      1. Ébauche
      1. Désuet
    1. 5.3. Classification
      1. Validé
      1. Ébauche
      1. Désuet
    1. 5.4. Archétypes
      1. Publié
  6. 6. Questionnaire pour les patients
  7. 7. Spécialité médicale
Modèles de données sélectionnés

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69 Résultats de recherche.
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NIH Stroke Scale Routine documentation in German hospitals DMI

- 20/09/2021 - 1 Formulaire, 3 Groupes Item, 26 Eléments de données, 2 Langues
Groupes Item: General information, NIH Stroke Scale, Therapy
Routine documentation in German hospitals. Source file name: VL010107_NIH Stroke Scale. Examplary forms provided by DMI (http://www.dmi.de/)

NIH Stroke Scale Routine documentation in German hospitals DMI

- 20/09/2021 - 1 Formulaire, 2 Groupes Item, 20 Eléments de données, 2 Langues
Groupes Item: Patient, NIH Stroke Scale
Routine documentation in German hospitals. Source file name: VL010107_NIH Stroke Scale. Examplary forms provided by DMI (http://www.dmi.de/)

ICHOM Macular Degeneration

- 17/09/2021 - 1 Formulaire, 10 Groupes Item, 47 Eléments de données, 1 Langue
Groupes Item: Demographics, Physical examination visual acuity, clinical status, Medical History, Therapy eye, Treatment, treatment burden, Therapy complications, Disease activity, health related quality of life Vision Screening
MACULAR DEGENERATION DATA COLLECTION Version 3.0.1 Revised: April 10th, 2017, International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Conditions: Neovascular Macular Degeneration Neovascular Age Related Macular Degeneration | Polypoidal Choroidal Vasculopathy | Myopic Neovascular Macular Degeneration | Other Forms of Neovascular Macular Degeneration (includes Post-Traumatic, Inflammatory, Idiopathic, Macular Telangiectasia Type 2) Non-Neovascular Age Related Macular Degeneration Treatment Approaches: Intravitreal anti-VEGF treatment | Other intravitreal treatment | Photodynamic therapy | Thermal laser photocoagulation | Retinal radiation therapy | Transpupillary thermotherapy | Retinal surgical treatment Questionnaires used in this form: Brief IVI

Hannover Functional Questionnaire Backache (FFbH-R)

- 08/01/2021 - 1 Formulaire, 1 Groupe Item, 14 Eléments de données, 1 Langue
Groupe Item: FFbH-R
Questionnaire for the diagnosis of functional disability caused by backache. German title: Funktionsfragebogen Hannover Rücken (FFbH-R) References: Raspe, H. H., Hagedorn, U., Kohlmann, T., & Mattussek, S. (1990). Der Funktionsfragebogen Hannover (FFbH): Ein Instrument zur Funktionsdiagnostik bei polyartikulären Gelenkerkrankungen. In: J. Siegrist (Hrg.) Wohnortnahe Betreuung Rheumakranker. Ergebnisse sozialwissenschaftlicher Evaluation eines Modellversuchs (pp. 164-182). Schattauer Verlag, Stuttgart. Raspe, H. H., & Kohlmann, T. (1991). Fortschritte in der Klinischen Diagnostik und Dokumentation des chronisch-rheumatischen Schmerzes. Der Schmerz, 5, S38-S51.

ICHOM Advanced Prostate Cancer - Baseline Patient-reported Form

- 30/04/2020 - 1 Formulaire, 4 Groupes Item, 67 Eléments de données, 1 Langue
Groupes Item: Administrative Data, Demographic factors, Baseline Clinical Factors, Degree of health
ADVANCED PROSTATE CANCER DATA COLLECTION Version 2.3.1 Revised: April 10th, 2017 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: All patients with advanced prostate cancer, either having metastatic disease or biochemical recurrence progressing after salvage treatment or ineligible for salvage treatment. Patients with biochemical recurrence treated with salvage therapy are referred to the localized prostate cancer set. Treatment Approaches: Hormonal Therapy | Chemotherapy | Immunotherapy | Radiopharmaceuticals | Radiation | Interventions for Complications of Local Progression This form contains patient-reported variables, to be assessed at baseline. Questionnaires used in this form: Expanded Prostate Cancer Index Composite (EPIC-26): The EPIC-26 is free for all health care organizations, and a license is not needed. The scoring guide may be found at http://www.med.umich.edu/urology/research/EPIC/EPIC-26-Scoring-1.2007.pdf ; Wei J, Dunn R, Litwin M, Sandler H, and Sanda M. "Development and Validation of the Expanded Prostate Cancer Index Composite (EPIC) for Comprehensive Assessment of Health-Related Quality of Life in Men with Prostate Cancer", Urology. 56: 899-905, 2000. For registries choosing to implement the EPIC‐CP rather than the EPIC‐26, we recommend using the same variable IDs as the corresponding EPIC‐26 questions. This means that only questions 2, 3, 4a, 4b, 4d, 4e, 5, 6e, 6b, 7, 8b, 9, 12, 13a, 13c, and 13d of the EPIC-26 are administered. Utilization of Sexual Medications/Devices: The Utilization of Sexual Medications/Devices is free for all health care organizations, and a license is not needed (according to ICHOM). Refer to http://dx.doi.org/10.1016/j.urology.2006.01.077 for more information European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30): For use of the EORTC QLQ-C30 a license is needed, therefore the questions will not be part of this version of the standard set. (eortc.be) The following paper has been published about development of this standard set: Morgans AK, van Bommel ACM, Stowell C, Abrahm JL, Basch E, Bekelman JE, et al. Development of a Standardized Set of Patient-centered Outcomes for Advanced Prostate Cancer: An International Effort for a Unified Approach. Eur Urol. 2015 Nov;68(5):891–8. For the standard set ICHOM has been supported by the Movember Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

ICHOM Low Back Pain - Baseline Patient-reported Variables

- 30/04/2020 - 1 Formulaire, 5 Groupes Item, 30 Eléments de données, 1 Langue
Groupes Item: Patient ID, Demographic Factors, Baseline functional Status, Baseline Clinical Factors, Prior Treatment
LOW BACK PAIN DATA COLLECTION Version 2.0.3 Revised August 24th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Lumbar Disc Herniation | Lumbar Stenosis | Lumbar Spondylolisthesis | Degenerative Scoliosis | Adult Idiopathic Scoliosis | Degenerative Disc Disorder | Other Degenerative Lumbar Disorders | Mechanical, Acute, and Chronic Lumbar Back Pain and Back-Related Leg Pain Conditions Not Covered: Individuals < 18 Years of Age | Spinal Infection | Spinal Tumor | Spinal Fractures | Traumatic Dislocation | Congenital Scoliosis Documented as >20 Degrees, Moderate, Large, or Severe Treatment Approaches: Conservative Therapy (e.g. physical therapy, chiropractic, drug therapy, injections, etc.) | Surgical Therapy (e.g. spinal fusion, decompression, or discectomy) This ODM-file contains Baseline patient-reported Variables to be assessed at baseline, with use of the following Scores: ODI - Oswestry Disability Index Version 2.1a: The ODI is free for all health care organizations, but a license is needed for use (therefore not included in this version of the standard set). Please visit eprovide: https://eprovide.mapi-trust.org/ NPRS - Numerical Pain Rating Scale: The NPRS is free for all health care organizations, and a license is not needed. EQ-5D-3L - EuroQol‐5D descriptive system (EQ-­5D‐3L) and visual analogue scale (EQ-­VAS): The EQ-5D-3L is free for non-profits and academic research, but a license is needed for use (therefore not included in this version of the standard set). https://euroqol.org/support/how-to-obtain-eq-5d/ Publication: R Carter Clement, Adina Welander, Caleb Stowell, Thomas D Cha, John L Chen, Michelle Davies, Jeremy C Fairbank, Kevin T Foley, Martin Gehrchen, Olle Hagg, Wilco C Jacobs, Richard Kahler, Safdar N Khan, Isador H Lieberman, Beth Morisson, Donna D Ohnmeiss, Wilco C Peul, Neal H Shonnard, Matthew W Smuck, Tore K Solberg, Bjorn H Stromqvist, Miranda L Van Hooff, Ajay D Wasan, Paul C Willems, William Yeo & Peter FRitzell (2015) A proposed set of metrics for standardized outcome reporting in the management of low back pain, Acta Orthopaedica, 86:5, 523-533 ICHOM was supported for the Low Back Pain Standard Set by Arthritis Research UK. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

29893_CRAMS Scale - CRAMS Scale

- 30/05/2018 - 1 Formulaire, 1 Groupe Item, 6 Eléments de données, 2 Langues
Groupe Item: CRAMS Scale
"A simple 1O-point scale was devised for the purpose of determining which trauma patients should go to a trauma center. The acronym´"CRAMS" represents the five components measured: Circulation, Respiration, Abdomen, Motor, and Speech. " Reference: Gormican, S. P. (1982). CRAMS scale: field triage of trauma victims. Annals of emergency medicine, 11(3), 132-135.

29891_New Jersey Standard Adult Trauma Triage Guidelines - New Jersey Standard Adult Trauma Triage Guidelines

- 28/05/2018 - 1 Formulaire, 3 Groupes Item, 17 Eléments de données, 2 Langues
Groupes Item: Physiology, Anatomy, Mechanism of injury
Prehospital Trauma Triage Decision Guidelines. "The following trauma triage guidelines are provided to assist in determining the disposition of adult trauma patients. These guidelines are intended to be utilized in conjunction with clinical judgment. It is understood that these are guidelines only and are to be used whenever possible in communication with a base station physician." Reference: New Jersey Department of Health & Senior Services. Trauma triage & transport. Trenton: New Jersey Department of Health & Senior Services; 1992. See also: http://www.nj.gov/health/ems/special-services/fly-or-drive-criteria/

29890_Trauma Score - Trauma Score

- 28/05/2018 - 1 Formulaire, 2 Groupes Item, 10 Eléments de données, 2 Langues
Groupes Item: Glasgow Coma Scale, Trauma Score
The Trauma Score (TS), a simple physiological measure of injury severity, is presented as a modification of the previously reported Triage Index by consensus physician peer review. Performance of the Trauma Score is presented as an index of injury severity both alone and in combination with an anatomic index of injury severity, the Injury Severity Score (ISS) and patient age. The application of these tools for field triage and evaluation of care of the trauma victim is proposed. Reference: Champion, H. R., Sacco, W. J., Carnazzo, A. J., Copes, W., & Fouty, W. J. (1981). Trauma score. Critical care medicine, 9(9), 672-676.

29888_Baxt Trauma Triage Rule - Baxt Trauma Triage Rule

- 28/05/2018 - 1 Formulaire, 2 Groupes Item, 4 Eléments de données, 2 Langues
Groupes Item: Baxt Trauma Triage Rule criteria, Baxt Trauma Triage Rule result
The Trauma Triage Rule is an adult prehospital trauma decision rule, based on systolic blood pressure, Glasgow motor score, and the presence of penetrating injury of the head, neck, or trunk. Reference: Baxt, W. G., Jones, G., & Fortlage, D. (1990). The trauma triage rule: a new, resource-based approach to the prehospital identification of major trauma victims. Annals of emergency medicine, 19(12), 1401-1406.

29884_Injury Severity Score (ISS) - Hasar Agirligi Skoru (ISS)

- 28/05/2018 - 1 Formulaire, 2 Groupes Item, 7 Eléments de données, 2 Langues
Groupes Item: Body regions, Injury Severity Score
"Appropriate classification of injuries by type and severity is fundamental to the study of injury. The Abbreviated Injury Scale (AIS) was developed to provide researchers with a simple numerical method for ranking and comparing injuries by severity, and to standardize the description of injuries. It is a numerical scale of injury severity ranging from 1 (minor injury) to 6 (maximal injury-unsurvivable). Injuries are determined for each of the body regions. (...) To summarize multiple body injuries, the Injury Severity Score (ISS) - a summary score that is based on the AIS - was developed by Baker and colleagues (1974): It is the sum of squares for the highest values in each of the three most severely injured body regions." (Linn et al., 1995; p. 440). References: Baker, S. P., o'Neill, B., Haddon Jr, W., & Long, W. B. (1974). The injury severity score: a method for describing patients with multiple injuries and evaluating emergency care. Journal of Trauma and Acute Care Surgery, 14(3), 187-196. Linn, S. (1995). The injury severity score—importance and uses. Annals of epidemiology, 5(6), 440-446.

29887_Hannover Fracture Scale (HFS) - Hannover Fracture Scale (HFS)

- 28/05/2018 - 1 Formulaire, 8 Groupes Item, 14 Eléments de données, 2 Langues
Groupes Item: Fracture, Soft tissue, Circulation, Neurology, Contamination, Accompanying injuries, Only in case of soft tissue score >2 points, HFS score
"As one of the first salvage scores that should be working in any kind of open fracture regardless of their location, the Hannover Fracture Scale (HFS) was established (...) in 1983." (Krettek et al., 2001; p. 318) References: Tscherne H, Gotzen L. Fractures with soft tissue injuries. Fraktur und Weichteilschaden. Hefte zur Unfallheilkunde Nr. 162. Berlin: Springer, 1983. Krettek, C., Seekamp, A., Köntopp, H., & Tscherne, H. (2001). Hannover Fracture Scale'98—re-evaluation and new perspectives of an established extremity salvage score. Injury, 32(4), 317-328. German version derived from www.traumascores.com with permission from Dr. Müller.

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