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Common Data Elements (CDE) ×
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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
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PCORnet Common Data Model (CDM) - General observation V4.1

- 9/17/21 - 1 form, 1 itemgroup, 19 items, 1 language
Itemgroup: General Observation
PCORnet Common Data Model (CDM) Clinical Observation 4.1 Table to store everything else. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

PCORnet Common Data Model (CDM) - Encounter V4.1

- 9/17/21 - 1 form, 1 itemgroup, 29 items, 1 language
Itemgroup: Encounter
PCORnet Common Data Model (CDM) Encounter Encounters are interactions between patients and providers within the context of healthcare delivery. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

Spirometry Protocol PhenX Toolkit

- 9/17/21 - 1 form, 1 itemgroup, 66 items, 2 languages
Itemgroup: PhenX - respiratory - spirometry protocol
A spirometric test requires that the subject take a full, deep breath and then exhale as forcefully as possible into a hand-held portable spirometer. The subject’s effort is called the forced expiratory maneuver and most commonly measures the amount and speed of air that is exhaled. The total amount (volume) of air exhaled is called the forced vital capacity (FVC). The amount (volume) of air exhaled in 1 second is called the forced expiratory volume in 1 second (FEV1). While hand-held spirometers are commonly used in clinical research studies, the same results can be obtained from more sophisticated floor-mounted devices that are typically available in a respiratory function testing laboratory. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton. German translation not validated.

Extracranial Carotid and Vertebral Artery Disease data elements

- 4/13/21 - 1 form, 9 itemgroups, 52 items, 2 languages
Itemgroups: Patient history, Anatomic High-Risk Conditions, Comorbitiy, cardiopulmonary, Patient assessment, Diagnostic Procedures, Therapeutic Procedures, invasive, Outcomes, Patient education, Outcomes
2012 ACCF / AHA Data Standard Extracranial Carotid and Vertebral Artery Disease data elements see http://www.ncbi.nlm.nih.gov/pubmed/22144570

Peripheral Atherosclerotic Disease (PAD) - Lower Extremity data elements

- 4/13/21 - 1 form, 10 itemgroups, 57 items, 2 languages
Itemgroups: Signs and Symptoms, Physical evaluation, Diagnostics, noninvasive, Diagnostics, invasive, Pharmacological Therapy Claudication, Exercise Program, Therapeutic Procedures, Procedure Outcomes, Clinical Outcomes, Cardiovascular Outcomes
2012 ACCF / AHA Data Standard Peripheral Atherosclerotic Disease (PAD) Lower Extremity data elements see http://www.ncbi.nlm.nih.gov/pubmed/22144570

Abdominal Aortic Aneurysm (AAA) data elements

- 4/13/21 - 1 form, 8 itemgroups, 46 items, 2 languages
Itemgroups: Patient history (AAA), Physical Assessment, Diagnostics, noninvasive, Diagnostics, invasive, Therapeutic Procedures, Patient counseling education, Follow-Up, Outcomes of Open AAA and Endovascular Repair
2012 ACCF / AHA Data Standard Abdominal Aortic Aneurysm (AAA) data elements see http://www.ncbi.nlm.nih.gov/pubmed/22144570

NINDS CDE Non-Imaging Diagnostics Recommendations Multiple Sclerosis - Non-Imaging Diagnostics Recommendations

- 4/13/21 - 1 form, 6 itemgroups, 52 items, 1 language
Itemgroups: ECG, Pulmonary Function Tests, Scalp Electroencephalogram, Immune Cell, Electrophysiology, Studies Nerve Conduction
NINDS Common Data Elements, Multiple Sclerosis Non-Imaging Diagnostics Recommendations Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

dataset CPCTR CDE Prostata Cancer prostate cancer - dataset

- 3/15/21 - 1 form, 24 itemgroups, 94 items, 2 languages
Itemgroups: Demographics, Clinical History, Prostatic specific Antigen (PSA), Diagnostic PSA, PSA Matrix, Histological Characteristics of Prostatectomy, Prostatectomy: Primary Gleason Grade, Prostatectomy: Secondary Gleason Grade, Prostatectomy: Gleason Sum Score, Histological Characteristics of Prostatectomy II, Regional Lymph node status at the time of Prostatectomy, Recurrence/Metastasis Status, Clinical verified tissue recurrence/metastasis, Staging, Pathological staging, Clinical Staging, Vital Status/Follow Up Date, Therapy Matrix, Type of Therapy, Overall Needle Biopsy Attributes, Biopsy: Primary Gleason Grade, Biopsy: Secondary Gleason Grade, Biopsy: Gleason Sum Score, Overall Needle Biopsy Attributes II
with friendly permission, ODM derived from PDFs attached to the paper: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1236914/

PCORnet Common Data Model (CDM) - Prescribing V4.1

- 3/30/20 - 1 form, 1 itemgroup, 30 items, 1 language
Itemgroup: Prescribing
PCORnet Common Data Model (CDM) Prescribing V4.1 Provider orders for medication dispensing and/or administration. These orders may take place in any setting, including the inpatient or outpatient basis. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

PCORnet Common Data Model (CDM) - Dispensing V4.1

- 3/30/20 - 1 form, 1 itemgroup, 14 items, 1 language
Itemgroup: Dispensing
PCORnet Common Data Model (CDM) Dispensing V4.1 Prescriptions filled through a community, mail-order or hospital pharmacy. Outpatient dispensing may not be directly captured within healthcare systems. Each record represents an outpatient pharmacy dispensing. Administered medications should NOT be stored in this table. They should be stored in the MED_ADMIN table. Evidence of medications administered in outpatient settings, such as infusions given in medical practices, or those administered in an inpatient setting may be present in the PROCEDURES table if that level of detail is available in the source procedure data. In the uncommon situation where one NDC is dispensed more than once for a given patient on a given day, it is acceptable to combine the values from the multiple dispensings for days supply and number of units. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure.

PCORnet Common Data Model (CDM) Demographic

- 3/30/20 - 1 form, 1 itemgroup, 11 items, 1 language
Itemgroup: Demographic
PCORnet Common Data Model (CDM) Demographic PCORnet Common Data Model (CDM) A patient-centered approach to building an agile research platform is at the heart of PCORnet, and data serves as the backbone. Considering the large number and diverse types of organizations that are part of PCORnet, we all benefit from having a streamlined, efficient way to use the data produced by these organizations. Enter the PCORnet Common Data Model. The Common Data Model (or CDM) is a way of organizing data into a standard structure. The approach PCORnet is using to do this mirrors the approaches used by other large national research consortia. Each PCORnet partner network maps data to the same consistent format (i.e., with the same variable name, attributes, and other metadata). By undertaking this step, we create a platform that enables much more rapid responses to research-related questions. Contrast this with having to transform and prepare data each time we want to ask a new research question, and the efficiencies become clear. The PCORnet CDM is based on the FDA Sentinel Initiative Common Data Model (www.sentinelsystem.org) and has been informed by other distributed initiatives such as the Health Care Systems Research Network, the Vaccine Safety Datalink, various AHRQ Distributed Research Network projects, and the ONC Standards & Interoperability Framework Query Health Initiative. The PCORnet CDM leverages standard terminologies and coding systems for healthcare (including ICD, SNOMED, CPT, HCPSC, and LOINC) to enable interoperability with and responsiveness to evolving data standards. The PCORnet CDM (like other parts of PCORnet) will grow and evolve. Version 1.0 focused on a set of data items that are frequently available. Subsequent versions build in additional data elements which are analytically important for patient-centered outcomes research and feasible to standardize across sites.

PCORnet Common Data Model (CDM) - Vital V4.1

- 3/30/20 - 1 form, 1 itemgroup, 21 items, 1 language
Itemgroup: Vital
PCORnet Common Data Model (CDM) Vital Vital signs (such as height, weight, and blood pressure) directly measure an individual’s current state of attributes. This table includes measurements recorded in both healthcare and non-healthcare settings. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

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