ID

40294

Description

PCORnet Common Data Model (CDM) Demographic PCORnet Common Data Model (CDM) A patient-centered approach to building an agile research platform is at the heart of PCORnet, and data serves as the backbone. Considering the large number and diverse types of organizations that are part of PCORnet, we all benefit from having a streamlined, efficient way to use the data produced by these organizations. Enter the PCORnet Common Data Model. The Common Data Model (or CDM) is a way of organizing data into a standard structure. The approach PCORnet is using to do this mirrors the approaches used by other large national research consortia. Each PCORnet partner network maps data to the same consistent format (i.e., with the same variable name, attributes, and other metadata). By undertaking this step, we create a platform that enables much more rapid responses to research-related questions. Contrast this with having to transform and prepare data each time we want to ask a new research question, and the efficiencies become clear. The PCORnet CDM is based on the FDA Sentinel Initiative Common Data Model (www.sentinelsystem.org) and has been informed by other distributed initiatives such as the Health Care Systems Research Network, the Vaccine Safety Datalink, various AHRQ Distributed Research Network projects, and the ONC Standards & Interoperability Framework Query Health Initiative. The PCORnet CDM leverages standard terminologies and coding systems for healthcare (including ICD, SNOMED, CPT, HCPSC, and LOINC) to enable interoperability with and responsiveness to evolving data standards. The PCORnet CDM (like other parts of PCORnet) will grow and evolve. Version 1.0 focused on a set of data items that are frequently available. Subsequent versions build in additional data elements which are analytically important for patient-centered outcomes research and feasible to standardize across sites.

Link

www.sentinelsystem.org

Keywords

Versions (2)
  1. 12/8/16 12/8/16 -
  2. 3/30/20 3/30/20 -
Copyright Holder

PCORnet

Uploaded on

March 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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PCORnet Common Data Model (CDM) Demographic

English

PCORnet Common Data Model (CDM) Demographic

1 forms  
Demographic
Description

Demographic

Alias
UMLS CUI-1
C1704791
UMLS CUI-2
C1955348
Patient ID
Description

Arbitrary person-level identifier used to link across tables. PATID is a pseudoidentifier with a consistent crosswalk to the true identifier retained by the source data partner. For analytical data sets requiring patient-level data, only the pseudoidentifier is used to link across all information belonging to a patient. The PATID must be unique within each PCORnet data mart. Creating a unique identifier within a network would be beneficial and acceptable. The PATID is not the basis for linkages across data partners.

Data type

integer

Alias
UMLS CUI [1]
C2348585
Birth date
Description

Date of birth

Data type

date

Alias
UMLS CUI [1]
C0421451
Birth time
Description

Time of birth

Data type

time

Alias
UMLS CUI [1]
C2736116
Sex
Description

Sex assigned at birth (definition updated in v3.1)

Data type

text

Alias
UMLS CUI [1]
C0079399
Sexual Orientation
Description

Sexual orientation. (New field added in v3.1.)

Data type

text

Alias
UMLS CUI [1]
C0205949
Gender Identity
Description

Current gender identity. (New field added in v3.1.)

Data type

text

Alias
UMLS CUI [1]
C0017249
Hispanic
Description

A person of Cuban, Mexican, Puerto Rican, South or Central American, or other Spanish culture or origin, regardless of race.

Data type

text

Alias
UMLS CUI [1,1]
C0086409
UMLS CUI [1,2]
C0034510
Race
Description

Please use only one race value per patient. Details of categorical definitions: American Indian or Alaska Native: A person having origins in any of the original peoples of North and South America (including Central America), and who maintains tribal affiliation or community attachment. Asian: A person having origins in any of the original peoples of the Far East, Southeast Asia, or the Indian subcontinent including, for example, Cambodia, China, India, Japan, Korea, Malaysia, Pakistan, the Philippine Islands, Thailand, and Vietnam. Black or African American: A person having origins in any of the black racial groups of Africa. Native Hawaiian or Other Pacific Islander: A person having origins in any of the original peoples of Hawaii, Guam, Samoa, or other Pacific Islands. White: A person having origins in any of the original peoples of Europe, the Middle East, or North Africa.

Data type

integer

Alias
UMLS CUI [1]
C0034510
Biobank Flag
Description

Flag to indicate that one or more biobanked specimens are stored and available for research use. Examples of biospecimens could include blood, urine, or tissue (eg, skin cells, organ tissues). If biospecimens are available, locally maintained “mapping tables” would be necessary to map between the DEMOGRAPHIC record and the originating biobanking system(s). If no known biobanked specimens are available, this field should be marked “No”.

Data type

text

Alias
UMLS CUI [1]
C3854287
Raw Sex
Description

Optional field for originating value of field, prior to mapping into the PCORnet CDM value set.

Data type

text

Alias
UMLS CUI [1]
C0079399
Raw Sexual Orientation
Description

Optional field for originating value of field, prior to mapping into the PCORnet CDM value set.

Data type

text

Alias
UMLS CUI [1]
C0205949
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Similar models

PCORnet Common Data Model (CDM) Demographic

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Demographic
C1704791 (UMLS CUI-1)
C1955348 (UMLS CUI-2)
Patient ID
Item
Patient ID
integer
C2348585 (UMLS CUI [1])
Birth date
Item
Birth date
date
C0421451 (UMLS CUI [1])
Birth time
Item
Birth time
time
C2736116 (UMLS CUI [1])
Item
Sex
text
C0079399 (UMLS CUI [1])
Sex
Code List
Sex
CL Item
Ambiguous (A)
CL Item
Female (F)
CL Item
Male (M)
CL Item
No information (NI)
CL Item
Unknown  (UN)
CL Item
Other (OT)
Item
Sexual Orientation
text
C0205949 (UMLS CUI [1])
Sexual Orientation
Code List
Sexual Orientation
CL Item
Asexual (AS)
CL Item
Bisexual (BI)
CL Item
Gay (GA)
CL Item
Lesbian  (LE)
CL Item
Queer (QU)
CL Item
Questioning (QS)
CL Item
Straight (ST)
CL Item
Something else (SE)
CL Item
Multiple sexual orientations  (MU)
CL Item
Decline to answer  (DC)
CL Item
No information (NI)
CL Item
Unknown  (UN)
CL Item
Other (OT)
Item
Gender Identity
text
C0017249 (UMLS CUI [1])
Gender Identity
Code List
Gender Identity
CL Item
Man  (M)
CL Item
Woman (F)
CL Item
Transgender male/Trans man/Female-to-male (TM)
CL Item
Transgender female/Trans woman/Male-to-female  (TF)
CL Item
Genderqueer (GQ)
CL Item
Something else (SE)
CL Item
Multiple gender categories (MU)
CL Item
Decline to answer  (DC)
CL Item
No information  (NI)
CL Item
Unknown  (UN)
CL Item
Other (OT)
Item
Hispanic
text
C0086409 (UMLS CUI [1,1])
C0034510 (UMLS CUI [1,2])
Hispanic
Code List
Hispanic
CL Item
Yes  (Y)
CL Item
No (N)
CL Item
Refuse to answer (R)
CL Item
No information  (NI)
CL Item
Unknown  (UN)
CL Item
Other (OT)
Item
Race
integer
C0034510 (UMLS CUI [1])
Race
Code List
Race
CL Item
American Indian or Alaska Native (01)
CL Item
Asian  (02)
CL Item
Black or African American  (03)
CL Item
Native Hawaiian or Other Pacific Islander (04)
CL Item
White  (05)
CL Item
Multiple race (06)
CL Item
Refuse to answer (07)
CL Item
No information  (08)
CL Item
Unknown (09)
CL Item
Other (10)
Item
Biobank Flag
text
C3854287 (UMLS CUI [1])
Biobank Flag
Code List
Biobank Flag
CL Item
Yes (Y)
CL Item
No (N)
Raw Sex
Item
Raw Sex
text
C0079399 (UMLS CUI [1])
Raw Sexual Orientation
Item
Raw Sexual Orientation
text
C0205949 (UMLS CUI [1])
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