Search results - Portal of Medical Data Models (MDM-Portal)

Filter search results
Select data models

Selected data models

You must log in to select data models for download or further analysis.

414 Search results.

Assay for Hepatitis B Protocol PhenX Toolkit

- 4/25/16 - 1 form, 3 itemgroups, 11 items, 1 language

Itemgroups: Exclusion criteria - assays PhenX, Process variables for assays PhenX, Manufacturer variables for assays PhenX

This protocol provides instructions for drawing, processing, and storing blood for hepatitis B (HBV) from the National Health and Nutrition Examination Survey (NHANES). As multiple tests must be performed to make the most accurate diagnosis of HBV, the protocol also provides basic guidelines to aid comparability among different studies. Toolkit users are referred to the U.S. Food and Drug Administration’s (FDA’s) approved laboratory assays. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Attention-Deficit/Hyperactivity Disorder Symptoms - Child PhenX Toolkit

- 4/22/16 - 1 form, 1 itemgroup, 18 items, 1 language

Itemgroup: PhenX - attention-deficit - hyperactivity disorder symptoms protocol - child

The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN) is an 18-question parent or teacher rating scale to assess for the indication of attention-deficit hyperactivity disorder in children. "Weaknesses" are scored as positive and the "strengths" are scored as negative because the usual ratings (i.e., in the Swanson, Nolan and Pelham (SNAP)) are ratings of "symptom severity". This keeps the average rating-per-item of the SWAN aligned with the average rating-per-item of the SNAP if the negative item ratings of the SWAN are set to 0 before averaging the items. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

NINDS CDE Imaging Diagnostics Epilepsy - Imaging Diagnostics

- 4/22/16 - 1 form, 5 itemgroups, 148 items, 1 language

Itemgroups: Functional Magnetic Resonance Imaging, Ictal SPECT Localization, Magnetic Resonance Imaging, MEG Acquisition, PET Localization

NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Family History Amyotrophic Lateral Sclerosis - General Health History

- 12/21/15 - 1 form, 1 itemgroup, 42 items, 1 language

Itemgroup: Family History

NINDS Common Data Elements [Participant/Subject History and Family History] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Participant/Subject Characteristics Amyotrophic Lateral Sclerosis - Demographics and Social Status

- 12/18/15 - 1 form, 2 itemgroups, 9 items, 1 language

Itemgroups: Demographics, Social Status

NINDS Common Data Elements [Participant/Subject Characteristics] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

The GRDR® Registry Model Common Data Elements (CDEs) - The GRDR® Registry Model Common Data Elements (CDEs)

- 12/2/15 - 1 form, 10 itemgroups, 76 items, 1 language

Itemgroups: Current Contact Information, Socio-Demographic, Diagnosis, Family History, Anthropometric, Patient reported outcome, Devices and Health services, Clinical Research Participation and Biospecimen, Contact and Communication Preferences, Administrative

The main goals of the GRDR (Global Rare Diseases Patient Registry and Data Repository) CDE (Common Data Elements) effort are to: 1) develop a set of CDEs to facilitate data collection for the GRDR in a standardized and meaningful manner; 2) assist organizations that have no patient registry to establish a registry and be able to share data with the GRDR or other databases; 3) facilitate harmonization among the many organizations collecting patient information. NIH has developed Model Registry CDEs (ORDR CDEs) for patient data entry to be used in any rare disease registry, including a subset of CDEs (GRDR CDEs) to collect only de-identified information for the GRDR data repository. ODM derived from: https://ncats.nih.gov/grdr Permission to publish granted by Yaffa Rubinstein.

Please use this form for feedback, questions and suggestions for improvements.

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.