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REGIMS - SUE Report

- 2021-09-27 - 1 Formulär, 10 Item-grupper, 43 Dataelement, 2 Språk
Item-grupper: SUE, Patientenangaben, SUE: Beschreibung, SUE: Behandlung, SUE: Ausgang, SUE: MS-Medikation, SUE: Begleitmedikation, SUE: Relevante Vorerkrankung / Sypmtome, Ergebnisse der relevanten Diagnostischen Untersuchungen, Kontaktdaten des Berichterstatters
Schwerwiegendes unerwünschtes Ereignis (SUE) in der Therapie SUE Berichtsformular Bitte ausfüllen und faxen oder senden an: Westfälische Wilhelms-Universität Münster, Institut für Epidemiologie und Sozialmedizin, Albert-Schweitzer-Campus 1, Gebäude 03, 48149 Münster Fax: (0251) 83-55300, E-Mail: regims@uni-muenster.de http://epi.uni-muenster.de

Multiple Sclerosis - Base Sheet (REGIMS)

- 2015-01-19 - 1 Formulär, 9 Item-grupper, 38 Dataelement, 2 Språk
Item-grupper: General information, Disease-specific information, Current Symptoms Multiple Sclerosis, Past treatment Multiple Sclerosis, Current Therapy Multiple Sclerosis, Cortisone, MRT, Disease history, Pregnancy, current
Medizinischer Basisbogen Multiple Sklerose http://epi.uni-muenster.de

Multiple Sclerosis - In-/Exclusion Criteria (REGIMS)

- 2014-12-12 - 1 Formulär, 3 Item-grupper, 8 Dataelement, 2 Språk
Item-grupper: Inclusion criteria, Exclusion criteria, Comments
REGIMS Multiple Sklerose-Register http://epi.uni-muenster.de

eurILDreg - K-BILD Questionnaire

- 2024-08-14 - 32 Formulär, 2 Item-grupper, 16 Dataelement, 1 Språk
Item-grupper: <div class="rich-text-field-label"><p>KING'S BRIEF INTERSTITIAL LUNG DISEASE QUESTIONNAIRE (K-BILD)</p> <p>Please answer the following questions as precise as possible:</p> <p>&nbsp;</p></div>, K-BILD Questionnaire
This file contains the metadata, events, and data for REDCap project "eurILDreg".

Leicester Cough Questionnaire

2 Item-grupper 20 Dataelement

MDT board diagnosis

3 Item-grupper 70 Dataelement

Supportive therapy and immunisation

4 Item-grupper 14 Dataelement

Health care utilization

3 Item-grupper 159 Dataelement

Clinical diagnosis

2 Item-grupper 67 Dataelement

Symptom survey

1 Item-grupp 8 Dataelement

DZG-Basisdatensatz - DZG_Core_Dataset

- 2024-07-12 - 1 Formulär, 2 Item-grupper, 28 Dataelement, 2 Språk
Item-grupper: General_Information, Diseases
Deutsch: Die Deutsche Zentren der Gesundheitsforschung (DZG) haben sich dazu verpflichtet, die Standardisierung und Harmonisierung ihrer Daten und Prozesse voranzutreiben, um die Zusammenarbeit und Forschungskapazitäten zu stärken. In diesem Zusammenhang wurde der DZG Basisdatensatz von klinisch Forschendern aller DZG entwickelt, der prospektiv in DZG geförderten Studien zu erheben ist. Der DZG-übergreifende Basisdatensatz ermöglicht es Forschenden, mit den erhobenen Daten in offenen Projekten zu arbeiten und trägt so zur Stärkung der Forschungskapazitäten bei. English: The German Centers for Health Research (DZG) have committed to advancing the standardization and harmonization of their data and processes to strengthen collaboration and research capabilities. In this context, the DZG core dataset was developed by clinical researchers from all DZG, which is to be collected prospectively in DZG-funded studies. The DZG basic dataset allows researchers to work with the collected data in open projects and thus contributes to strengthening research capacities.

Heidelberger Register chronischer Singultus - Primary Visit

- 2022-03-22 - 2 Formulär, 8 Item-grupper, 118 Dataelement, 2 Språk
Item-grupper: Demografie und Anamnese bei der Visite, Durchgeführte Diagnostik, Ausführung der Komorbiditäten, Aktuelle Medikation, Pausierung der Medikation, Befund und Beurteilung, Quantifizierung der Symptome, Empfehlungen
Erhebung eines klinischen Datensatzes zum chronischen Singultus (Schluckauf). Durchgeführt durch die Sektion Schmerzmedizin an der Klinik für Anästhesiologie und Intensivmedizin am Universtätsklinikum Heidelberg. Dr. med. Claudia Busch & PD Dr. Jens Keßler

Secondary Visit

6 Item-grupper 84 Dataelement

Heidelberg Perioperative Deep Data Study – a prospective cohort study - PDMS ICU - Primary data

- 2022-01-10 - 1 Formulär, 8 Item-grupper, 125 Dataelement, 1 Språk
Item-grupper: Respiratory system data, Cardiovascular system data, Diagnosis related data, Laboratory values, Medication related data, Medical Scores, Medical device related data, Quantitative data body fluids
HeiPoDD registry will form a clinical database and a corresponding biobank as the basis to predict overall postoperative morbidity and mortality using data-driven, personalized risk prediction from the entirety of available clinical records. Prospective single-center observational registry. DRKS00025924

Heidelberg Perioperative Deep Data Study – a prospective cohort study - DRKS00025924 - Patient monitoring - primary data

- 2021-12-28 - 1 Formulär, 9 Item-grupper, 242 Dataelement, 1 Språk
Item-grupper: Height Weight BSA, Respiratory system data, Laboratory data, Medication data, Neurological data, Clinical Scores, Temperature data, Electrocardiography data, Cardiovascular system data
HeiPoDD registry will form a clinical database and a corresponding biobank as the basis to predict overall postoperative morbidity and mortality using data-driven, personalized risk prediction from the entirety of available clinical records. Prospective single-center observational registry. DRKS00025924

ACTION Registry®-GWTG™ - ACTION Registry

- 2021-11-18 - 1 Formulär, 8 Item-grupper, 186 Dataelement, 1 Språk
Item-grupper: Demographics, Admission, Cardiac status on first medical contact, History and Risk Factors, Medications, Procedures and Tests, Reperfusion Strategy, In-Hospital clinical events
The ACTION Registry®–GWTG™ is a risk-adjusted, outcomes-based quality improvement program that focuses exclusively on high-risk STEMI/NSTEMI patients. It helps hospitals apply ACC/AHA clinical guideline recommendations in their facilities and provides invaluable tools to measure care and achieve quality improvement goals. (http://cvquality.acc.org/NCDR-Home/Registries/Hospital-Registries.aspx)

Cell Therapy Registry EBMT

- 2021-09-27 - 1 Formulär, 13 Item-grupper, 74 Dataelement, 1 Språk
Item-grupper: Cell Therapy Registry – Med-A, CENTRE IDENTIFICATION, REPORT INFORMATION, PATIENT IDENTIFICATION, INDICATION FOR TREATMENT If Primary disease, CELL THERAPY TREATMENT, GRAFT MANIPULATION, TREATMENT, RESPONSE, DATE OF LAST CONTACT, CENTRE IDENTIFICATION, REPORT INFORMATION, PATIENT IDENTIFICATION
The Cell Therapy Registry (CTR) aims to collect data on fetal or adult stem cells, or progenitor cells used for treatment other than haematopoietic stem cell transplantation or donor lymphocyte infusion, as well as data on the clinical characteristics and outcome of the patients. Data will be collected on characteristics of the cell graft, /in/ or /ex vivo/ cell manipulation and the cell origin (autologous versus allogeneic). Data will include details on patients treated with mesenchymal cells, for instance, to enhance haematopoietic engraftment, for prophylaxis and treatment of GvHD. The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: The registry will also include data on patients treated by other disciplines for neurologic, rheumatologic, cardiac and inflammatory bowel diseases and tissue regeneration. For further information, please contact: Dr. Katarina Le Blanc Karolinska University Hospital Centre for Allogeneic Stem Cell Transplantation Huddinge SE-141 86 Stockholm Sweden e-mail : Katarina.Leblanc@ki.se please refer: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Swedish MDS registry - Myelodysplastic Syndrome - Registration

- 2021-09-27 - 2 Formulär, 13 Item-grupper, 76 Dataelement, 2 Språk
Item-grupper: Registration form, Lead times, Diagnosis, Biobank, PREVIOUS DISEASE, Transfusions, Blood samples at diagnosis, Bone marrow at diagnosis, Cytogenetics at diagnosis, IPSS, Diagnosis reason, Treatment, Follow-Up
Source: Swedish National Quality Registry for Leukaemia http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Myelodysplastic Syndrome - Follow-Up

10 Item-grupper 83 Dataelement

Greek MDS Registry - Registry Data

- 2021-09-27 - 1 Formulär, 8 Item-grupper, 104 Dataelement, 2 Språk
Item-grupper: Demographic data, Classification, Hematological findings, Bone marrow smear, Bone marrow biopsy, Karyotype and Prognosis, Treatment, Follow-Up – Progress
Ελληνικό Αρχείο Καταγραφής Μυελοδυσπλαστικών και Υποπλαστικών Συνδρόμων (ΕΑΚΜΥΣ) Hellenic National Registry of Myelodysplastic and Hypoplastic Syndromes Source: Prof. Dr. Argiris Symeonidis University of Patras Greece

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