ID

44685

Description

Source: Swedish National Quality Registry for Leukaemia http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Link

http://www.cancercentrum.se/samverkan/cancerdiagnoser/blod-lymfom-myelom/

Keywords

Versions (7)
  1. 10/14/17 10/14/17 - Martin Dugas
  2. 10/14/17 10/14/17 - Martin Dugas
  3. 10/21/17 10/21/17 - Martin Dugas
  4. 10/22/17 10/22/17 - Martin Dugas
  5. 10/22/17 10/22/17 - Martin Dugas
  6. 10/22/17 10/22/17 - Martin Dugas
  7. 9/27/21 9/27/21 -
Copyright Holder

Regionala cancercentrum i samverkan

Uploaded on

September 27, 2021

DOI

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License

Creative Commons BY-NC 3.0
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Swedish MDS registry

English Swedish

Myelodysplastic Syndrome - Follow-Up

2 forms  
Registration form and Cancer notification
Description

Registration form and Cancer notification

Alias
UMLS CUI-1
C1522577
Reporting hospital / clinic
Description

Reporting hospital

Data type

text

Alias
UMLS CUI [1]
C0019994
Reporting doctor
Description

Reporting doctor

Data type

text

Alias
UMLS CUI [1]
C0031831
Rapporteringsdatum
Description

reporting date

Data type

date

Alias
UMLS CUI [1]
C1302584
Personnummer
Description

patient number

Data type

text

Alias
UMLS CUI [1]
C1830427
Patient Name
Description

Name

Data type

text

Alias
UMLS CUI [1]
C1299487
Assessment date
Description

Assessment date

Data type

date

Alias
UMLS CUI [1]
C2985720
Follow-up 1 year
Description

Follow-up 1 year

Data type

boolean

Alias
UMLS CUI [1]
C0420338
Follow-up 3 years
Description

Follow-up 3 years

Data type

boolean

Alias
UMLS CUI [1,1]
C1522577
UMLS CUI [1,2]
C0439234
UMLS CUI [1,3]
C0205449
BLOOD SAMPLES at diagnosis
Description

BLOOD SAMPLES at diagnosis

Alias
UMLS CUI-1
C0018941
Hb
Description

Hb

Data type

float

Measurement units
  • g/dl
Alias
UMLS CUI [1]
C0019046
g/dl
MCV
Description

MCV

Data type

text

Measurement units
  • fL
Alias
UMLS CUI [1]
C1948043
fL
White blood cells
Description

White blood cells

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0023508
10E9/L
Neutrophil granulocytes
Description

Neutrophil granulocytes

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0018183
10E9/L
Neutrophil granulocytes
Description

Neutrophil granulocytes

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0018183
%
Monocytes
Description

Monocytes

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0026473
10E9/L
Monocytes
Description

Monocytes

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1]
C0026473
%
Blasts in blood
Description

Blasts in blood

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
10E9/L
Blasts in blood
Description

Blasts in blood

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0368761
UMLS CUI [1,2]
C0229664
%
Platelets
Description

Platelets

Data type

float

Measurement units
  • 10E9/L
Alias
UMLS CUI [1]
C0005821
10E9/L
LDH
Description

LDH

Data type

float

Measurement units
  • µkat/l
Alias
UMLS CUI [1]
C0202113
µkat/l
Erythropoetin
Description

Erythropoetin

Data type

float

Measurement units
  • IE/L
Alias
UMLS CUI [1]
C0014822
IE/L
Ferritin
Description

Ferritin

Data type

float

Measurement units
  • µg/l
Alias
UMLS CUI [1]
C0015879
µg/l
Biobank
Description

Biobank

Alias
UMLS CUI-1
C2347027
Samples to national biobank sent
Description

Samples to national biobank sent

Data type

integer

Alias
UMLS CUI [1,1]
C2347027
UMLS CUI [1,2]
C0370003
UMLS CUI [1,3]
C1515023
Samples are also sent to another biobank
Description

Samples are also sent to another biobank

Data type

integer

Which biobank
Description

Which biobank

Data type

text

Alias
UMLS CUI [1]
C2347027
BONE MARROW AT DIAGNOSIS
Description

BONE MARROW AT DIAGNOSIS

Alias
UMLS CUI-1
C0005953
New bone marrow test since diagnosis
Description

New bone marrow test since diagnosis

Data type

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0011900
Bone marrow examination date
Description

Bone marrow examination date

Data type

date

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0011008
Cell contents
Description

Cell contents

Data type

integer

Alias
UMLS CUI [1,1]
C0007634
UMLS CUI [1,2]
C0456205
Percentage of blasts in bone marrow
Description

Percentage of blasts in bone marrow

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
%
Exact blast fraction bone marrow not indicated; no blast increase
Description

no blast increase

Data type

boolean

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C1518422
UMLS CUI [1,3]
C0442805
Proportion of blasts missing / cannot be assessed
Description

Proportion of blasts missing

Data type

boolean

Alias
UMLS CUI [1,1]
C0587348
UMLS CUI [1,2]
C1705492
Ring sideroblasts >=15% of erythropoietic cells
Description

Ring sideroblasts >=15% of erythropoietic cells

Data type

integer

Alias
UMLS CUI [1,1]
C0432608
UMLS CUI [1,2]
C0205217
Fibrosis grade 2-3
Description

Fibrosis

Data type

integer

Alias
UMLS CUI [1]
C0016059
New bone marrow test since year 1 follow-up
Description

New bone marrow test since year 1 follow-up

Data type

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0420338
Bone marrow examination date
Description

Bone marrow examination date

Data type

date

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0011008
Cell contents
Description

Cell contents

Data type

integer

Alias
UMLS CUI [1,1]
C0007634
UMLS CUI [1,2]
C0456205
Percentage of blasts in bone marrow
Description

Percentage of blasts in bone marrow

Data type

float

Measurement units
  • %
Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
%
Exact blast fraction bone marrow not indicated; no blast increase
Description

no blast increase

Data type

boolean

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C1518422
UMLS CUI [1,3]
C0442805
Proportion of blasts missing / cannot be assessed
Description

Proportion of blasts missing

Data type

boolean

Alias
UMLS CUI [1,1]
C0587348
UMLS CUI [1,2]
C1705492
Ring sideroblasts >=15% of erythropoietic cells
Description

Ring sideroblasts >=15% of erythropoietic cells

Data type

integer

Alias
UMLS CUI [1,1]
C0432608
UMLS CUI [1,2]
C0205217
Fibrosis grade 2-3
Description

Fibrosis

Data type

integer

Alias
UMLS CUI [1]
C0016059
Cytogenetics at diagnosis (+/- 6 months from diagnosis)
Description

Cytogenetics at diagnosis (+/- 6 months from diagnosis)

Alias
UMLS CUI-1
C0010802
Cytogenetik utförd
Description

New cytogenetics since diagnosis

Data type

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0011900
Cytogenetics date
Description

Cytogenetics date

Data type

date

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0011008
Result of cytogenetics
Description

Chromosome aberration

Data type

integer

Alias
UMLS CUI [1]
C0008625
Karyotype text
Description

Karyotype text

Data type

text

Alias
UMLS CUI [1]
C1261273
Cytogenetik utförd
Description

New cytogenetics since 1 year follow-up

Data type

integer

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C1711239
UMLS CUI [1,3]
C0420338
Cytogenetics date
Description

Cytogenetics date

Data type

date

Alias
UMLS CUI [1,1]
C0010802
UMLS CUI [1,2]
C0011008
Chromosome aberration
Description

Chromosome aberration

Data type

integer

Alias
UMLS CUI [1]
C0008625
Karyotype text
Description

Karyotype text

Data type

text

Alias
UMLS CUI [1]
C1261273
TRANSFUSIONS RESERVED BY DIAGNOSIS
Description

TRANSFUSIONS RESERVED BY DIAGNOSIS

Alias
UMLS CUI-1
C1879316
UMLS CUI-2
C3244310
Erythrocyte transfusion
Description

Erythrocyte transfusion

Data type

integer

Alias
UMLS CUI [1]
C0086252
Thrombocyte transfusion
Description

Thrombocyte transfusion

Data type

integer

Alias
UMLS CUI [1]
C0086818
Treatment
Description

Treatment

Alias
UMLS CUI-1
C0087111
Treatment
Description

Treatment

Data type

integer

Alias
UMLS CUI [1]
C0087111
Treatment start date
Description

Treatment start date

Data type

date

Alias
UMLS CUI [1]
C3173309
Treatment stop date
Description

Treatment stop date

Data type

date

Alias
UMLS CUI [1]
C1531784
Ongoing
Description

Ongoing

Data type

boolean

Alias
UMLS CUI [1]
C0549178
Treatment according to
Description

Treatment according to

Data type

integer

Alias
UMLS CUI [1]
C0162791
Study name
Description

Study name

Data type

text

Alias
UMLS CUI [1]
C2348560
Allogeneic stem cell transplantation
Description

Allogeneic stem cell transplantation

Data type

integer

Alias
UMLS CUI [1]
C2242529
lead times
Description

lead times

Alias
UMLS CUI-1
C1963864
UMLS CUI-2
C0023467
Referral written
Description

Transformation of MDS into AML

Data type

integer

Alias
UMLS CUI [1,1]
C1963864
UMLS CUI [1,2]
C0023467
Referral written
Description

AML transformation date

Data type

date

Alias
UMLS CUI [1,1]
C0011008
UMLS CUI [1,2]
C1963864
UMLS CUI [1,3]
C0023467
Referral received
Description

Bone marrow test to confirm transformation

Data type

integer

Alias
UMLS CUI [1,1]
C0005957
UMLS CUI [1,2]
C0521091
UMLS CUI [1,3]
C1963864
Referral received
Description

Aspirate

Data type

boolean

Alias
UMLS CUI [1]
C0398523
First patient visit to reporting unit
Description

Laboratory / Clinic

Data type

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Sample ID
Description

Sample ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Sample year
Description

Sample year

Data type

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Referral received
Description

Biopsy

Data type

boolean

Alias
UMLS CUI [1]
C0005558
First patient visit to reporting unit
Description

Laboratory / Clinic

Data type

text

Alias
UMLS CUI [1,1]
C0022877
UMLS CUI [1,2]
C0442592
Sample ID
Description

Sample ID

Data type

text

Alias
UMLS CUI [1]
C1299222
Sample year
Description

Sample year

Data type

integer

Alias
UMLS CUI [1,1]
C0370003
UMLS CUI [1,2]
C0439234
Allogeneic Stem Cell Transplantation
Description

Allogeneic Stem Cell Transplantation

Alias
UMLS CUI-1
C2242529
Transplant completed
Description

Transplant completed

Data type

integer

Alias
UMLS CUI [1,1]
C0472699
UMLS CUI [1,2]
C0205197
HLA typing Date
Description

HLA typing Date

Data type

date

Alias
UMLS CUI [1,1]
C0242318
UMLS CUI [1,2]
C0011008
Transplantation Date
Description

Transplantation Date

Data type

date

Alias
UMLS CUI [1,1]
C0040732
UMLS CUI [1,2]
C0011008
Blast-reducing treatment before transplantation
Description

Blast-reducing treatment before transplantation

Data type

integer

Percentage of bone marrow blasts at transplantation
Description

Percentage of bone marrow blasts at transplantation

Data type

integer

Alias
UMLS CUI [1,1]
C1982687
UMLS CUI [1,2]
C0439165
UMLS CUI [1,3]
C0040732
Donor
Description

Donor

Data type

integer

Alias
UMLS CUI [1]
C0013018
Stem Cell Source
Description

Stem Cell Source

Data type

integer

Alias
UMLS CUI [1,1]
C0018956
UMLS CUI [1,2]
C0449416
Type of conditioning
Description

Type of conditioning

Data type

integer

Alias
UMLS CUI [1]
C0376450
Conditioning
Description

Conditioning

Data type

integer

Alias
UMLS CUI [1]
C0376450
Other conditioning
Description

Other conditioning

Data type

text

Alias
UMLS CUI [1]
C0376450
Follow-Up
Description

Follow-Up

Alias
UMLS CUI-1
C1522577
Patient deceased
Description

Patient deceased

Data type

boolean

Alias
UMLS CUI [1]
C1555024
Death date
Description

Death date

Data type

date

Alias
UMLS CUI [1]
C1148348
MDS related death
Description

MDS related death

Data type

integer

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C3463824
Follow-Up Hospital
Description

Follow-Up Hospital

Data type

text

Alias
UMLS CUI [1,1]
C1522577
UMLS CUI [1,2]
C0019994
Clinic
Description

Clinic

Data type

text

Alias
UMLS CUI [1]
C0442592
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Similar models

Myelodysplastic Syndrome - Follow-Up

2 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Registration form and Cancer notification
C1522577 (UMLS CUI-1)
Reporting hospital
Item
Reporting hospital / clinic
text
C0019994 (UMLS CUI [1])
Reporting doctor
Item
Reporting doctor
text
C0031831 (UMLS CUI [1])
reporting date
Item
Rapporteringsdatum
date
C1302584 (UMLS CUI [1])
patient number
Item
Personnummer
text
C1830427 (UMLS CUI [1])
Name
Item
Patient Name
text
C1299487 (UMLS CUI [1])
Assessment date
Item
date
C2985720 (UMLS CUI [1])
Follow-up 1 year
Item
boolean
C0420338 (UMLS CUI [1])
Follow-up 3 years
Item
boolean
C1522577 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
C0205449 (UMLS CUI [1,3])
Item Group
BLOOD SAMPLES at diagnosis
C0018941 (UMLS CUI-1)
Hb
Item
float
C0019046 (UMLS CUI [1])
MCV
Item
text
C1948043 (UMLS CUI [1])
White blood cells
Item
float
C0023508 (UMLS CUI [1])
Neutrophil granulocytes
Item
float
C0018183 (UMLS CUI [1])
Neutrophil granulocytes
Item
float
C0018183 (UMLS CUI [1])
Monocytes
Item
float
C0026473 (UMLS CUI [1])
Monocytes
Item
float
C0026473 (UMLS CUI [1])
Blasts in blood
Item
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Blasts in blood
Item
float
C0368761 (UMLS CUI [1,1])
C0229664 (UMLS CUI [1,2])
Platelets
Item
float
C0005821 (UMLS CUI [1])
LDH
Item
float
C0202113 (UMLS CUI [1])
Erythropoetin
Item
float
C0014822 (UMLS CUI [1])
Ferritin
Item
float
C0015879 (UMLS CUI [1])
Item Group
Biobank
C2347027 (UMLS CUI-1)
Item
integer
C2347027 (UMLS CUI [1,1])
C0370003 (UMLS CUI [1,2])
C1515023 (UMLS CUI [1,3])
Samples to national biobank sent
Code List
Samples to national biobank sent
CL Item
No (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Scheduled but not yet completed (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
CL Item
Patient rejects the biobank / cannot ask (3)
(Comment:en)
C1880386 (UMLS CUI-1)
(Comment:sv)
Samples are also sent to another biobank
Code List
Samples are also sent to another biobank
CL Item
Ja (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Which biobank
Item
text
C2347027 (UMLS CUI [1])
Item Group
BONE MARROW AT DIAGNOSIS
C0005953 (UMLS CUI-1)
Item
integer
C0005957 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Erythrocyte transfusion
Code List
New bone marrow test since diagnosis
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Bone marrow examination date
Item
date
C0005957 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
Cell contents
Code List
Cell contents
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cell content missing (11)
(Comment:en)
CL Item
Exact cell content not specified (12)
(Comment:en)
CL Item
Lower cell contents than normal (13)
(Comment:en)
CL Item
Normal cell contents (14)
(Comment:en)
CL Item
Higher cell contents than normal (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exact blast fraction bone marrow not indicated; no blast increase
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Proportion of blasts missing / cannot be assessed
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Ring sideroblasts >=15% of erythropoietic cells
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibrosis grade 2-3
integer
C0016059 (UMLS CUI [1])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Fibrosis grade 2-3
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
integer
C0005957 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0420338 (UMLS CUI [1,3])
Erythrocyte transfusion
Code List
New bone marrow test since year 1 follow-up
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Bone marrow examination date
Item
date
C0005957 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
integer
C0007634 (UMLS CUI [1,1])
C0456205 (UMLS CUI [1,2])
Cell contents
Code List
Cell contents
CL Item
100% (1)
C3817553 (UMLS CUI-1)
(Comment:en)
CL Item
90% (2)
(Comment:en)
CL Item
80% (3)
(Comment:en)
CL Item
70% (4)
(Comment:en)
CL Item
60% (5)
(Comment:en)
CL Item
50% (6)
C3842586 (UMLS CUI-1)
(Comment:en)
CL Item
40% (7)
(Comment:en)
CL Item
30% (8)
(Comment:en)
CL Item
20% (9)
(Comment:en)
CL Item
10% (10)
(Comment:en)
CL Item
Cell content missing (11)
(Comment:en)
CL Item
Exact cell content not specified (12)
(Comment:en)
CL Item
Lower cell contents than normal (13)
(Comment:en)
CL Item
Normal cell contents (14)
(Comment:en)
CL Item
Higher cell contents than normal (15)
(Comment:en)
Percentage of blasts in bone marrow
Item
float
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
no blast increase
Item
Exact blast fraction bone marrow not indicated; no blast increase
boolean
C1982687 (UMLS CUI [1,1])
C1518422 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
Proportion of blasts missing
Item
Proportion of blasts missing / cannot be assessed
boolean
C0587348 (UMLS CUI [1,1])
C1705492 (UMLS CUI [1,2])
Item
integer
C0432608 (UMLS CUI [1,1])
C0205217 (UMLS CUI [1,2])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Ring sideroblasts >=15% of erythropoietic cells
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item
Fibrosis grade 2-3
integer
C0016059 (UMLS CUI [1])
Ring sideroblasts >=15% of erythropoietic cells
Code List
Fibrosis grade 2-3
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Not assessed / missing (3)
C3846720 (UMLS CUI-1)
C1705492 (UMLS CUI-2)
(Comment:en)
Item Group
Cytogenetics at diagnosis (+/- 6 months from diagnosis)
C0010802 (UMLS CUI-1)
Item
Cytogenetik utförd
integer
C0010802 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Cytogenetics performed
Code List
Cytogenetik utförd
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ja men ej bedömbar (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Cytogenetics date
Item
date
C0010802 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Result of cytogenetics
integer
C0008625 (UMLS CUI [1])
Result of cytogenetics
Code List
Result of cytogenetics
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 deviation (not listed above) (13)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including -7 or del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 other deviations (16)
(Comment:sv)
(Comment:en)
CL Item
Complex with 3 deviations (17)
(Comment:sv)
(Comment:en)
CL Item
Complex with >3 deviations (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
text
C1261273 (UMLS CUI [1])
Item
Cytogenetik utförd
integer
C0010802 (UMLS CUI [1,1])
C1711239 (UMLS CUI [1,2])
C0420338 (UMLS CUI [1,3])
Cytogenetics performed
Code List
Cytogenetik utförd
CL Item
Nej (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Ja (2)
C1705108 (UMLS CUI-1)
(Comment:en)
CL Item
Ja men ej bedömbar (3)
C1707258 (UMLS CUI-1)
(Comment:en)
Cytogenetics date
Item
date
C0010802 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
integer
C0008625 (UMLS CUI [1])
Result of cytogenetics
Code List
Chromosome aberration
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
(Comment:en)
CL Item
-Y (2)
(Comment:en)
CL Item
Inv(3),t(3q),del(3q) (3)
(Comment:en)
CL Item
del(5q) (4)
C1521461 (UMLS CUI-1)
(Comment:en)
CL Item
Del(7q) (5)
C1517990 (UMLS CUI-1)
(Comment:en)
CL Item
-7 (6)
(Comment:en)
CL Item
+8 (7)
(Comment:en)
CL Item
Del(11q) (8)
(Comment:en)
CL Item
del(12p) (9)
(Comment:en)
CL Item
i(17q) (10)
(Comment:en)
CL Item
+19 (11)
(Comment:sv)
(Comment:en)
CL Item
del(20q) (12)
(Comment:sv)
(Comment:en)
CL Item
1 deviation (not listed above) (13)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including del(5q) (14)
(Comment:sv)
(Comment:en)
CL Item
2 deviations including -7 or del(7q) (15)
(Comment:sv)
(Comment:en)
CL Item
2 other deviations (16)
(Comment:sv)
(Comment:en)
CL Item
Complex with 3 deviations (17)
(Comment:sv)
(Comment:en)
CL Item
Complex with >3 deviations (18)
(Comment:sv)
(Comment:en)
Karyotype text
Item
text
C1261273 (UMLS CUI [1])
Item Group
TRANSFUSIONS RESERVED BY DIAGNOSIS
C1879316 (UMLS CUI-1)
C3244310 (UMLS CUI-2)
Item
integer
C0086252 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Erythrocyte transfusion
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0086818 (UMLS CUI [1])
Erythrocyte transfusion
Code List
Thrombocyte transfusion
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Item Group
C0087111 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI [1])
Treatment decision after diagnosis
Code List
Treatment
CL Item
Induction therapy (1)
(Comment:en)
C3179010 (UMLS CUI-1)
(Comment:sv)
CL Item
Azacytidine (2)
(Comment:en)
C0004475 (UMLS CUI-1)
(Comment:sv)
CL Item
Hydroxyurea (3)
(Comment:en)
C0020402 (UMLS CUI-1)
(Comment:sv)
CL Item
Erythropoetin (4)
(Comment:en)
C0014822 (UMLS CUI-1)
(Comment:sv)
CL Item
Immunsuppressive therapy (5)
(Comment:en)
C0021081 (UMLS CUI-1)
(Comment:sv)
CL Item
Lenalidomide (6)
(Comment:en)
C1144149 (UMLS CUI-1)
(Comment:sv)
CL Item
Chelation therapy (7)
(Comment:en)
C0007975 (UMLS CUI-1)
(Comment:sv)
CL Item
Annat (8)
(Comment:en)
C0418967 (UMLS CUI-1)
(Comment:sv)
CL Item
Only supportive treatment (9)
(Comment:en)
C0344211 (UMLS CUI-1)
(Comment:sv)
CL Item
 (10)
C0040732 (UMLS CUI-1)
(Comment:sv)
CL Item
 (11)
C0521090 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
(Comment:sv)
Treatment start date
Item
date
C3173309 (UMLS CUI [1])
Treatment stop date
Item
date
C1531784 (UMLS CUI [1])
Ongoing
Item
boolean
C0549178 (UMLS CUI [1])
Item
integer
C0162791 (UMLS CUI [1])
Treatment according to
Code List
Treatment according to
CL Item
 (1)
C0162791 (UMLS CUI-1)
(Comment:sv)
CL Item
 (2)
C2348563 (UMLS CUI-1)
(Comment:sv)
Study name
Item
text
C2348560 (UMLS CUI [1])
Item
integer
C2242529 (UMLS CUI [1])
Allogeneic stem cell transplantation
Code List
Allogeneic stem cell transplantation
CL Item
planned (1)
C1301732 (UMLS CUI-1)
(Comment:en)
CL Item
May be relevant (2)
C3844350 (UMLS CUI-1)
C2347946 (UMLS CUI-2)
(Comment:en)
CL Item
Can not be applied (3)
C1272460 (UMLS CUI-1)
(Comment:en)
Item Group
lead times
C1963864 (UMLS CUI-1)
C0023467 (UMLS CUI-2)
Item
Referral written
integer
C1963864 (UMLS CUI [1,1])
C0023467 (UMLS CUI [1,2])
Erythrocyte transfusion
Code List
Referral written
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
AML transformation date
Item
Referral written
date
C0011008 (UMLS CUI [1,1])
C1963864 (UMLS CUI [1,2])
C0023467 (UMLS CUI [1,3])
Item
Referral received
integer
C0005957 (UMLS CUI [1,1])
C0521091 (UMLS CUI [1,2])
C1963864 (UMLS CUI [1,3])
Erythrocyte transfusion
Code List
Referral received
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Aspirate
Item
Referral received
boolean
C0398523 (UMLS CUI [1])
Laboratory / Clinic
Item
First patient visit to reporting unit
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
text
C1299222 (UMLS CUI [1])
Sample year
Item
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Biopsy
Item
Referral received
boolean
C0005558 (UMLS CUI [1])
Laboratory / Clinic
Item
First patient visit to reporting unit
text
C0022877 (UMLS CUI [1,1])
C0442592 (UMLS CUI [1,2])
Sample ID
Item
text
C1299222 (UMLS CUI [1])
Sample year
Item
integer
C0370003 (UMLS CUI [1,1])
C0439234 (UMLS CUI [1,2])
Item Group
C2242529 (UMLS CUI-1)
Item
integer
C0472699 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
Transplant completed
Code List
Transplant completed
CL Item
No (1)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Transplant not applicable (2)
C0472699 (UMLS CUI-1)
C1272460 (UMLS CUI-2)
(Comment:en)
CL Item
Planned but not carried out e.g. because of progression (3)
C1301732 (UMLS CUI-1)
C0445106 (UMLS CUI-2)
(Comment:en)
CL Item
Planned (4)
C1301732 (UMLS CUI-1)
(Comment:en)
CL Item
HLA typing performed (5)
C0242318 (UMLS CUI-1)
C0884358 (UMLS CUI-2)
(Comment:en)
CL Item
HLA typing not performed (6)
C0242318 (UMLS CUI-1)
C0445106 (UMLS CUI-2)
(Comment:en)
CL Item
Yes (7)
C1705108 (UMLS CUI-1)
(Comment:en)
HLA typing Date
Item
date
C0242318 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Transplantation Date
Item
date
C0040732 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Blast-reducing treatment before transplantation
Code List
Blast-reducing treatment before transplantation
CL Item
 (1)
C0392920 (UMLS CUI-1)
(Comment:sv)
CL Item
 (2)
C0004475 (UMLS CUI-1)
C0049065 (UMLS CUI-2)
(Comment:sv)
CL Item
 (3)
C0205394 (UMLS CUI-1)
(Comment:sv)
CL Item
 (4)
C0549184 (UMLS CUI-1)
(Comment:sv)
Item
integer
C1982687 (UMLS CUI [1,1])
C0439165 (UMLS CUI [1,2])
C0040732 (UMLS CUI [1,3])
Percentage of bone marrow blasts at transplantation
Code List
Percentage of bone marrow blasts at transplantation
CL Item
 (1)
(Comment:sv)
CL Item
 (2)
(Comment:sv)
CL Item
 (3)
(Comment:sv)
CL Item
 (4)
(Comment:sv)
CL Item
 (5)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0013018 (UMLS CUI [1])
Donor
Code List
Donor
CL Item
 (1)
C0080103 (UMLS CUI-1)
C0019721 (UMLS CUI-2)
C0205280 (UMLS CUI-3)
(Comment:sv)
CL Item
 (2)
C0080103 (UMLS CUI-1)
C3829897 (UMLS CUI-2)
(Comment:sv)
CL Item
 (3)
C0375877 (UMLS CUI-1)
C0080103 (UMLS CUI-2)
(Comment:sv)
CL Item
 (4)
C3179133 (UMLS CUI-1)
(Comment:sv)
CL Item
 (5)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0018956 (UMLS CUI [1,1])
C0449416 (UMLS CUI [1,2])
Stem Cell Source
Code List
Stem Cell Source
CL Item
 (1)
C1518999 (UMLS CUI-1)
(Comment:sv)
CL Item
 (2)
C0005953 (UMLS CUI-1)
(Comment:sv)
CL Item
 (3)
C0162371 (UMLS CUI-1)
(Comment:sv)
CL Item
 (4)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0376450 (UMLS CUI [1])
Type of conditioning
Code List
Type of conditioning
CL Item
 (1)
C1513784 (UMLS CUI-1)
(Comment:sv)
CL Item
 (2)
C1831742 (UMLS CUI-1)
(Comment:sv)
CL Item
 (3)
C3829897 (UMLS CUI-1)
(Comment:sv)
CL Item
 (4)
C1880386 (UMLS CUI-1)
(Comment:sv)
Item
integer
C0376450 (UMLS CUI [1])
Conditioning
Code List
Conditioning
CL Item
 (1)
C0006463 (UMLS CUI-1)
(Comment:sv)
CL Item
 (2)
C0076959 (UMLS CUI-1)
(Comment:sv)
CL Item
 (3)
C0010583 (UMLS CUI-1)
(Comment:sv)
CL Item
 (4)
C0025241 (UMLS CUI-1)
(Comment:sv)
CL Item
 (5)
C0059985 (UMLS CUI-1)
(Comment:sv)
CL Item
 (6)
C0003442 (UMLS CUI-1)
(Comment:sv)
CL Item
 (7)
C1880386 (UMLS CUI-1)
(Comment:sv)
CL Item
 (8)
C0205394 (UMLS CUI-1)
(Comment:sv)
Other conditioning
Item
text
C0376450 (UMLS CUI [1])
Item Group
C1522577 (UMLS CUI-1)
Patient deceased
Item
boolean
C1555024 (UMLS CUI [1])
Death date
Item
date
C1148348 (UMLS CUI [1])
Item
integer
C0007465 (UMLS CUI [1,1])
C3463824 (UMLS CUI [1,2])
Erythrocyte transfusion
Code List
MDS related death
CL Item
Yes (1)
(Comment:en)
C1298908 (UMLS CUI-1)
(Comment:sv)
CL Item
Diagnosis based mainly on blood samples and cytogenetics (2)
(Comment:en)
C1705108 (UMLS CUI-1)
(Comment:sv)
Follow-Up Hospital
Item
text
C1522577 (UMLS CUI [1,1])
C0019994 (UMLS CUI [1,2])
Clinic
Item
text
C0442592 (UMLS CUI [1])
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