Resultados da pesquisa - Portal para modelos de dados médicos (portal MDM)

Swedish Heart Failure Registry (RiksSvikt) - SHFR Hospital

- 20/09/2021 - 1 Formulário, 9 Grupos de itens, 93 Elementos de dados, 2 Idiomas

Grupos de itens: Demography and Lifestyle, Patient self rated symptoms, Previous diseases, Performed procedures, Diagnostics, Biometrics and physical signs, Medication treatment, Patient and relative Information, Planned Follow-Up

Swedish Heart Failure Registry (RiksSvikt/SwedeHF) Sweden has a long tradition of measuring results and performance of the given health care. In order to stimulate to achieve better results, we try to find explanations for the discrepancies between different regions/hospitals/primary care units. In recent years, quality registries have become an increasingly important source of Swedish clinical research. SwedeHF (or RiksSvikt) was created in order to give the participating units knowledge, about how they diagnosed and treated their patients. The given information obtains indications where further efforts are needed in order to give patients with heart failure an optimal management. SwedeHF is an Internet-based registry, where participating units register their heart failure patient on-line, using transferred data from standardized forms or from computerized patients records. SHFR Hospital

Swedish Heart Failure Registry (RiksSvikt) - RiksSvikt Life and Life Quality

- 06/01/2018 - 1 Formulário, 4 Grupos de itens, 19 Elementos de dados, 2 Idiomas

Grupos de itens: RiksSvikt, LIFE AND LIFE QUALITY, FUNCTION CLASS - PATIENT ESTIMATED SYMPTOMS, Current medication

Swedish Heart Failure Registry (RiksSvikt/SwedeHF) Sweden has a long tradition of measuring results and performance of the given health care. In order to stimulate to achieve better results, we try to find explanations for the discrepancies between different regions/hospitals/primary care units. In recent years, quality registries have become an increasingly important source of Swedish clinical research. SwedeHF (or RiksSvikt) was created in order to give the participating units knowledge, about how they diagnosed and treated their patients. The given information obtains indications where further efforts are needed in order to give patients with heart failure an optimal management. SwedeHF is an Internet-based registry, where participating units register their heart failure patient on-line, using transferred data from standardized forms or from computerized patients records. RiksSvikt Life and Life Quality

DZHK Data Catalogue - Laboratory

- 08/06/2022 - 1 Formulário, 4 Grupos de itens, 68 Elementos de dados, 2 Idiomas

Grupos de itens: EDTA blood for Haematology and HbA1c, Serum and heparin plasma for clinical chemistry, Citrate Plasma (Coagulation), Urinalysis

With permission from the DZHK Main Office and Transfer Office, we present the DZHK Data Catalogue: The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany and develop new therapies and diagnostic procedures that have an impact on the lives of people suffering from cardiovascular diseases. (https://dzhk.de/dzhk-heart-bank) They developed a data catalogue that contains a detailed description of the data and biospecimen collected in their clinical studies, including the associated metadata, shown on their DZHK Heart Bank website (https://dzhk.de/en/dzhk-heart-bank/data-and-biospecimens/resource-with-liquid-samples-and-image-data/data-catalogue/). The version shown here contains the metadata part only. The form Laboratory is used to document different measurement parameters of laboratory examinations. The documentation of clinical data has to be performed according to the DZHK's SOPs, which can be accessed at https://service4studies.dzhk.de/studienzentren/klinische-daten/. For more informations or to request data and/or biospecimens please visit the DZHK Heart Bank.

Global registry of acute coronary events (GRACE) - GRACE Initial Form v3.5

- 25/11/2015 - 1 Formulário, 17 Grupos de itens, 193 Elementos de dados, 1 Idioma

Grupos de itens: General information, Enrollment, Demographics, Medical History, Presentation, ECG Findings, Laboratory, Procedures, Cardiac Cath/Interventions, LVEF, Thrombolytics, Antiplatelets/Antithrombins/Anticoagulants, Other Medications, Medication Contraindications, Lifestyle interventions, In-hospital Events: After Presentation, Discharge status

GRACE is an international observational database of outcomes for patients who are hospitalized with an acute coronary syndrome (ACS). GRACE includes over 200 hospitals in 28 countries that enroll a total of more than 10,000 patients per year. Participating physicians receive confidential quarterly reports showing ther outcomes side-by-side with the aggregate outcomes of all participating hospitals. (http://www.outcomes-umassmed.org/GRACE/overview.aspx)

Thrombosis Registry Oncology Thromboses UK Essen - Thrombosis

- 20/09/2021 - 1 Formulário, 1 Grupo de itens, 23 Elementos de dados, 1 Idioma

Grupo de itens: Thrombosis

Study part: Thrombosis Registry for oncologic patients with thromboses. The aim of the study was to determine the incidence of thrombosis in oncology patients. A register study of University Clinic Essen (UK Essen), permission granted by Claudia Ose from the Center for Clinical Studies Essen (Zentrums für Klinische Studien Essen, ZKSE).

Heparin Registry Oncology Thromboses UK Essen - Heparin

- 15/03/2021 - 1 Formulário, 1 Grupo de itens, 22 Elementos de dados, 1 Idioma

Grupo de itens: Heparin

Study part: Heparin Registry for oncologic patients with thromboses. The aim of the study was to determine the incidence of thrombosis in oncology patients. A register study of University Clinic Essen (UK Essen), permission granted by Claudia Ose from the Center for Clinical Studies Essen (Zentrums für Klinische Studien Essen, ZKSE).

S.0025_DGU TraumaRegister Outcome Prognosis Thromboembolic Events Point D1 in Time - Outcome Prognosis Thromboembolic Events Point D1 in Time DGU TraumaRegister questionnaire

- 19/03/2020 - 1 Formulário, 7 Grupos de itens, 11 Elementos de dados, 2 Idiomas

Grupos de itens: Patient Information, Entlassungs-/Todesdatum, Entlassung/Verlegung, Verlegung in anderes Krankenhaus, Outcome, Todesursache, Klinikrelevante thromboembolische Ereignisse

DGU TraumaRegister® questionnaire; Data are collected prospectively in four consecutive time phases from the site of the accident until discharge from hospital: A) Pre-hospital phase, B) Emergency room and initial surgery, C) Intensive care unit and D) Discharge. The documentation includes detailed information on demographics, injury pattern, comorbidities, pre- and in-hospital management, course on intensive care unit, relevant laboratory findings including data on transfusion and outcome of each individual. The inclusion criterion is admission to hospital via emergency room with subsequent ICU/ICM care or reach the hospital with vital signs and die before admission to ICU. The infrastructure for documentation, data management, and data analysis is provided by AUC - Academy for Trauma Surgery (AUC - Akademie der Unfallchirurgie GmbH), a company affiliated to the German Trauma Society. The scientific leadership is provided by the Committee on Emergency Medicine, Intensive Care and Trauma Management (Sektion NIS) of the German Trauma Society. The participating hospitals submit their data anon-ymously into a central database via a web-based application. Scientific data analysis is approved according to a peer review procedure established by Sektion NIS. TraumaRegister DGU® - Hinweise für die Publikation von Ergebnissen 5 März 2014 Seite 3 von 3 © 2014 TraumaRegister DGU® / AUC GmbH The participating hospitals are primarily located in Germany (90%), but a rising number of hospitals of other countries contribute data as well (at the moment from Austria, Belgium, China, Finland, Luxembourg, Slovenia, Switzerland, The Netherlands, and the United Arab Emirates). Currently, approx. 25,000 cases from more than 600 hospitals are entered into the database per year. Participation in TraumaRegister DGU® is voluntary. For hospitals associated with TraumaNetzwerk DGU®, however, the entry of at least a basic data set is obligatory for reasons of quality assurance. www.traumaregister-dgu.de

DZHK Data Catalogue - Cardiac Catheter

- 17/10/2019 - 1 Formulário, 7 Grupos de itens, 81 Elementos de dados, 2 Idiomas

Grupos de itens: Cardiac catheter details, Right heart catheterisation, Left heart catheterisation, Myocardial biopsy, Storage diseases, Histology/Immunohistochemistry/Immunology/Virology report, Procedural complications

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. The form Cardiac Catheter is used to document a cardiac catheter examination. This examination enables a better phenotyping of cardiomyopathies, an assessment of the degree of severity and of the prognosis. An invasive cardiac assessment is indicated according to the current guidelines. In the context of the objective, this applies especially to patients in whom cardiomyopathy has already been verified by other imaging techniques, unexplained reduced left ventricular systolic function and/or corresponding symptoms. The documentation is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). The SOP for this form is "Cardiac Catheterization. Left and rightheart examination. Left ventriculography. Left and right ventricular myocardial biopsies." (version 1.0, valid as of 01/09/2014) for the English language version, and "Herzkatheter. Links- und Rechtsherzkatheteruntersuchung. Linksventrikuläre Ventrikulographie. Entnahme von links-/ rechtsventrikulären Myokardbiopsien." (version 1.0, valid as of 01/09/2014) for the German version.

DZHK Data Catalogue - Anamnesis and Clinical Diagnoses (incl. Basic Data Set)

- 17/10/2019 - 1 Formulário, 11 Grupos de itens, 91 Elementos de dados, 2 Idiomas

Grupos de itens: General anamnesis information, Physical Examination and Sociodemographic Data, Cardiovascular risk factors, Cardiac Diagnoses (Anamnesis and Previous Findings), Previous cardiovascular interventions, Current secondary diagnoses, Anamnesis women, Resting blood pressure, Resting heart rate, Further diagnoses, Laboratory diagnostics (blood)

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. This form contains the mandatory basic data set with 42 items, which are recorded in all of the DZHK's studies, as well as other items related to Anamnesis and Clinical Diagnosis. This form is used to accurately record known cardiovascular risk factors, previous diagnoses and interventions, enabling a detailed assessment of a patient’s cardiovascular risk. The 42 basic items are marked as mandatory. The examination is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). The SOPs for this form are "Basic data - Anamnesis/Clinical Diagnoses/physical examination" (version 1.0, valid as of 01/09/2014) and "Anamnesis/Clinical Diagnoses" (version 1.0, valid as of 01/09/2014) for the English language version, and "Basisdatensatz – Anamnese/Klinische Diagnosen/Körperliche Untersuchung" (version 1.1, valid as of June 2019) and "Anamnese/Klinische Diagnosen" (version 1.0, valid as of 01/09/2014) for the German language version.

DZHK Data Catalogue - Spiroergometry

- 16/10/2019 - 1 Formulário, 2 Grupos de itens, 46 Elementos de dados, 2 Idiomas

Grupos de itens: Cardiopulmonary exercise testing details, Cardiopulmonary Exercise Test

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. The module Spiroergometry is used to document spiroergometry examinations. The cardiopulmonary exercise test analyses the reactions and the interplay of the heart, circulation, breathing and metabolism during gradually increasing exercise, both in terms of qualitative and quantitative measures. The cardiopulmonary exercise test should be the last test performed on the examination day. This form uses the Borg scales of dyspnoea (Borg, G.A., Psychophysical bases of perceived exertion. Medicine and science in sports and exercise, 1982. 14(5): p. 377-81) and exertion (Borg, G., Anstrengungsempfinden und körperliche Aktivität. Dtsch Arztebl International, 2004. 101(15): p. 1016-). The documentation is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). The SOPs for this form are "Cardiopulmonary exercise test (spiroergometry)" (version 1.1, effective as of 01/07/2017), and "Spiroergometrie " (version 1.1, effective as of 01/07/2015), for the English and German versions, respectively. Inclusion Criteria: All subjects who are capable of cycling on an ergometer or of doing exercise on a treadmill and to whom no exclusion criteria apply can take part. Special inclusion criteria are stipulated in the study protocol of the respective study/register. Exclusion criteria: Absolute contraindications: • Acute relevant disease, e.g. recent myocardial infarction, systemic infections, thromboses or embolisms, acute exacerbation of a respiratory disease. • Severe cardiac arrhythmia or blocks (second- or third-degree AV block). • Insufficiently controlled arterial hypertension (RRsyst >170 mmHg, and/or RRdiast >110 mmHg). • Known symptomatic or severe aortic stenosis. Relative contraindications: • Tachycardia at rest (>120 bpm). • Poorly managed epilepsy with the risk of provoking a seizure through exercise. • Symptomatic electrolyte imbalance or metabolic imbalance. • Symptomatic impaired cerebral circulation. If necessary, specific criteria of the respective studies or registers have to be observed.

DZHK Data Catalogue - MRI

- 16/10/2019 - 1 Formulário, 5 Grupos de itens, 29 Elementos de dados, 2 Idiomas

Grupos de itens: MRI details, Cine 4-chamber view, Cine 2-chamber view, Short-axis cine stack, Late Gadolinium Enhancement (LGE) details

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. The form MRI is used to document analyzing parameters of cardiac magnetic resonance imaging examinations. The documentation is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). The SOPs for this form are "Cardiac magnetic resonance imaging" (version 1.0, effective as of 01/09/2014), and "Kardiale Magnetresonanztomographie" (version 1.0, effective as of 01/09/2014), for the English and German versions, respectively. The SOP is ased on the guidelines of the Society for Cardiovascular Magnetic Resonance (Kramer CM et al. Journal of Cardiovascular Magnetic Resonance 2008, 10:35 and Journal of Cardiovascular Magnetic Resonance 2013, 15:91). Contraindications to MRI are: - Pacemakers, defibrillators - Neurostimulators - Metal vascular clips - Cochlear implants - Ferromagnetic intravascular filters and shunts that were implanted less than 1 month ago - Starr-Edwards prosthetic heart valves (old type of heart valve made of metal, implanted prior to 1970) - Recently implanted ferromagnetic vascular clips - Implanted permanent magnets (magnetic dentures) - Implanted insulin or pain pumps - Recently implanted joint replacement, magnetic resonance imaging is safe with titanium prostheses or joint replacements that were implanted a while ago - Shrapnel

DZHK Data Catalogue - Medication

- 16/10/2019 - 1 Formulário, 6 Grupos de itens, 33 Elementos de dados, 2 Idiomas

Grupos de itens: Details of medication intake, Cardiovascular medication, Anticoagulation, Antidiabetic drugs, Other medication, Medication female

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. The form Medication is used to document a patient’s medication intake. The documentation is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). As of 14/10/2019, there are no specific SOPs related to this form.

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