ID

38442

Description

With permission from the DZHK administrative office. http://dzhk.de The DZHK (Deutsches Zentrum für Herz-Kreislauf-Forschung e.V.; German Center for Cardiovascular Research) is a joint cooperation of twenty-eight institutions in seven locations throughout Germany to develop a common research strategy. They developed a data catalogue with metadata and data as well as information about available biological materials from all their studies. For more information on the data catalogue and access to actual data and biosamples please visit https://dzhk.de/en/resources/data-manual/ . This version contains the metadata part only. The form Cardiac Catheter is used to document a cardiac catheter examination. This examination enables a better phenotyping of cardiomyopathies, an assessment of the degree of severity and of the prognosis. An invasive cardiac assessment is indicated according to the current guidelines. In the context of the objective, this applies especially to patients in whom cardiomyopathy has already been verified by other imaging techniques, unexplained reduced left ventricular systolic function and/or corresponding symptoms. The documentation is to be performed according to the DZHK's SOPs, which can be accessed at https://dzhk.de/en/resources/sops/ (or https://dzhk.de/ressourcen/sops/ for the German language versions). The SOP for this form is "Cardiac Catheterization. Left and rightheart examination. Left ventriculography. Left and right ventricular myocardial biopsies." (version 1.0, valid as of 01/09/2014) for the English language version, and "Herzkatheter. Links- und Rechtsherzkatheteruntersuchung. Linksventrikuläre Ventrikulographie. Entnahme von links-/ rechtsventrikulären Myokardbiopsien." (version 1.0, valid as of 01/09/2014) for the German version.

Link

http://dzhk.de

Keywords

Versions (2)
  1. 10/14/19 10/14/19 -
  2. 10/17/19 10/17/19 - Sarah Riepenhausen
Copyright Holder

DZHK

Uploaded on

October 17, 2019

DOI

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License

Creative Commons BY-NC 3.0
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DZHK Data Catalogue

German English

Cardiac Catheter

1 forms  
  1. StudyEvent: ODM
    1. Cardiac Catheter
Examination details
Description

Examination details

Alias
UMLS CUI-1
C1522508
UMLS CUI-2
C0018795
Quality level
Description

Cardiac catheter quality

Data type

integer

Alias
UMLS CUI [1,1]
C0332306
UMLS CUI [1,2]
C0018795
Right heart catheterisation
Description

Right heart catheterisation

Alias
UMLS CUI-1
C0189896
Was the right heart catheterisation performed
Description

Right heart catheterisation performed

Data type

text

Alias
UMLS CUI [1,1]
C0189896
UMLS CUI [1,2]
C0884358
Date of examination
Description

Date of right heart catheterisation

Data type

date

Alias
UMLS CUI [1,1]
C0189896
UMLS CUI [1,2]
C0011008
Left ventricular end-diastolic pressure (LVEDP)
Description

Left ventricular end-diastolic pressure

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0456190
mmHg
Heart time volume
Description

Calculation according to Fick's equation:(vO2 *avDO2-1) vO2 Men= KO*(161-age*0,54) (ml*min-1) (empiric) vO2 Women= KO*(147,5-age*0,47) (ml*min-1)(empiric) avDO2= CO2art-CO2ven CO2art=O2 saturation (femoral artery)*Hb*1,34 CO2ven=O2 saturation (pulmonary artery)*Hb*1,34

Data type

float

Measurement units
  • l/min
Alias
UMLS CUI [1]
C0007165
l/min
Systolic pulmonary artery pressure
Description

Systolic pulmonary artery pressure

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0428643
mmHg
Diastolic pulmonary artery pressure
Description

Diastolic pulmonary artery pressure

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0428644
mmHg
Mean pulmonary artery pressure
Description

Mean pulmonary artery pressure

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0428645
mmHg
Pulmonary capillary pressure (PCWP)
Description

Pulmonary capillary wedge pressure

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0086879
mmHg
Mean RA
Description

Mean right atrial pressure

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1]
C0456184
mmHg
Central venous oxygen saturation
Description

Central venous oxygen saturation

Data type

integer

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0364854
UMLS CUI [1,2]
C0205099
%
Arterial oxygen saturation
Description

Arterial oxygen saturation

Data type

integer

Measurement units
  • %
Alias
UMLS CUI [1]
C0428175
%
Transpulmonary gradient
Description

Transpulmonary gradient (mPAP - PCWP)

Data type

integer

Measurement units
  • mmHg
Alias
UMLS CUI [1,1]
C0812409
UMLS CUI [1,2]
C0428645
UMLS CUI [1,3]
C0086879
mmHg
Pulmonary vascular resistance
Description

Calculation: 80*(mPAP-mPCPW)*HZV-1(normal range: 45-120)

Data type

integer

Measurement units
  • dyn*s*cm-5
Alias
UMLS CUI [1]
C0456261
dyn*s*cm-5
Systemic vascular resistance (SVR)
Description

Calculation: 80*(mAP-ZVD)*HZV-1(normal range: 900-1400)

Data type

integer

Measurement units
  • dyn*s*cm-5
Alias
UMLS CUI [1]
C1258192
dyn*s*cm-5
Body height
Description

Body height

Data type

integer

Measurement units
  • cm
Alias
UMLS CUI [1]
C0005890
cm
Weight
Description

Weight

Data type

integer

Measurement units
  • kg
Alias
UMLS CUI [1]
C0005910
kg
Haemoglobin (g/dl)
Description

Haemoglobin (g/dl)

Data type

float

Measurement units
  • g/dl
Alias
UMLS CUI [1]
C0019046
g/dl
Haemoglobin (mmol/l)
Description

Haemoglobin (mmol/l)

Data type

float

Measurement units
  • mmol/l
Alias
UMLS CUI [1]
C0019046
mmol/l
Left heart catheterisation
Description

Left heart catheterisation

Alias
UMLS CUI-1
C0189897
Was the left heart catheterisation performed
Description

Left heart catheterisation performed

Data type

text

Alias
UMLS CUI [1,1]
C0189897
UMLS CUI [1,2]
C0884358
Date of recording
Description

Date of left heart catheterisation

Data type

date

Alias
UMLS CUI [1,1]
C0189897
UMLS CUI [1,2]
C0011008
Coronary heart disease (CHD)
Description

Coronary heart disease (CHD)

Data type

text

Alias
UMLS CUI [1]
C0010068
Pump function
Description

Assessment of left ventricular (pump)function is qualitative: 1. Evaluation of wall motion abnormalities according to the nomenclature defined by Herman at al. (Herman et al.). 2. The classification and evaluation of specific wall regions are to be documented according to the Coronary Artery Disease Reporting System of the AHA (Austen et al.).

Data type

text

Alias
UMLS CUI [1]
C0080310
Myokardial biopsy
Description

Myokardial biopsy

Alias
UMLS CUI-1
C1304881
Was the myokardial biopsy performed
Description

Removal of endomyocardial biopsies is performed in accordance with the relevant standards and the respective study protocol. After the coronary angiography has been performed the arterial 4F sheath is exchanged for the 8F sheath. This is followed by retrograde catheterization of the aortic valve in 20° RAO projection and placement of a 7F guiding catheter in the left ventricle. Under fluoroscopy, the tip of the catheter is positioned in the target region. Contrast agent is injected to ensure adequate distance to the endomyocard and to avoid injuries of the papillary muscles. The biopsy forceps is inserted through the 7F guiding catheter and biopsies are collected from different parts of the left ventricle. Immediately after collection of the myocardial biopsy, transthoracic echocardiography is performed to exclude the presence of pericardial effusion.

Data type

text

Alias
UMLS CUI [1,1]
C1304881
UMLS CUI [1,2]
C0884358
Date of recording
Description

Date of myocardial biopsy

Data type

date

Alias
UMLS CUI [1,1]
C1304881
UMLS CUI [1,2]
C2584899
Ventricle
Description

Myocardial biopsy ventricle

Data type

text

Alias
UMLS CUI [1,1]
C1304881
UMLS CUI [1,2]
C0018827
Institution performing the assessment
Description

Myocardial biopsy institution

Data type

text

Alias
UMLS CUI [1,1]
C1301943
UMLS CUI [1,2]
C1304881
Previous biopsies available
Description

Previous myocardial biopsies available

Data type

text

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C1304881
UMLS CUI [1,3]
C0470187
Date of previous biopsy
Description

Date of previous myocardial biopsy

Data type

date

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C1304881
UMLS CUI [1,3]
C2584899
Previous diagnosis
Description

Previous myocardial biopsy diagnosis

Data type

text

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C1304881
UMLS CUI [1,3]
C0011900
Number of biopsies
Description

The recommended number of biopsies depends on the clinical question under consideration and whether material is to be collected for the purpose of addressing research questions. The latter is only possible if an application for ethical approval exists. For the clinical clarification of, e.g. storage diseases, experience has shown that 1-2 samples are needed for histological analyses, 1 sample for immune-histological analysis and, where applicable, 1-3 samples for molecular biology questions. For questions related to inflammatory responses and/or virus identification, experience has shown that 6 additional samples are required. It is important to note that the quality/size of each biopsy obtained also determines the number of samples taken. We recommend to collect at least 5 samples per procedure and up to 10 to guarantee reliable results. Samples for histology and immunohistochemical analysis should be at least 1-2 mm in size.

Data type

integer

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C1304881
UMLS CUI [1,3]
C0449788
Ventricle
Description

Previous myocardial biopsy ventricle

Data type

text

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C1304881
UMLS CUI [1,3]
C0018827
Institution performing the assessment
Description

Previous myocardial biopsy institution

Data type

text

Alias
UMLS CUI [1,1]
C0205156
UMLS CUI [1,2]
C1304881
UMLS CUI [1,3]
C1301943
Storage diseases
Description

Storage diseases

Alias
UMLS CUI-1
C0267971
Storage diseases
Description

Storage diseases

Data type

text

Alias
UMLS CUI [1]
C0267971
Amyloidosis
Description

Amyloidosis

Data type

text

Alias
UMLS CUI [1]
C0002726
Other storage disease
Description

Other storage disease

Data type

text

Alias
UMLS CUI [1,1]
C0267971
UMLS CUI [1,2]
C0205394
Please specify
Description

Specify other storage disease

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0267971
UMLS CUI [1,3]
C0205394
Histological/ Immunohistological/ viral findings report
Description

Histological/ Immunohistological/ viral findings report

Alias
UMLS CUI-1
C0684224
UMLS CUI-2
C0019638
UMLS CUI-3
C0021044
UMLS CUI-4
C0152036
UMLS CUI-5
C0042762
Histological findings report available
Description

Histological findings report available

Data type

text

Alias
UMLS CUI [1,1]
C0684224
UMLS CUI [1,2]
C0449575
UMLS CUI [1,3]
C0470187
Dallas criteria positive (including cell analysis)
Description

Histological myocarditis criteria

Data type

text

Alias
UMLS CUI [1,1]
C0027059
UMLS CUI [1,2]
C0019638
UMLS CUI [1,3]
C0243161
Positive for fibrosis
Description

Fibrosis

Data type

text

Alias
UMLS CUI [1]
C0016059
Demonstration of fibrosis
Description

Fibrosis finding method

Data type

text

Alias
UMLS CUI [1,1]
C0025663
UMLS CUI [1,2]
C0016059
UMLS CUI [1,3]
C0243095
Quantified (Late Gadolinium Enhancement)
Description

Fibrosis quantified by Late Gadolinium Enhancement

Data type

text

Alias
UMLS CUI [1,1]
C0016059
UMLS CUI [1,2]
C0205087
UMLS CUI [1,3]
C0855566
UMLS CUI [1,4]
C1709793
Quantified (Late Gadolinium Enhancement)
Description

Quantified (Late Gadolinium Enhancement)

Data type

integer

Measurement units
  • %
Alias
UMLS CUI [1,1]
C0016059
UMLS CUI [1,2]
C0205087
UMLS CUI [1,3]
C0855566
UMLS CUI [1,4]
C1709793
%
left ventricular
Description

multiple answers possible

Data type

boolean

Alias
UMLS CUI [1,1]
C0016059
UMLS CUI [1,2]
C0205087
UMLS CUI [1,3]
C0855566
UMLS CUI [1,4]
C0225897
right ventricular
Description

multiple answers possible

Data type

boolean

Alias
UMLS CUI [1,1]
C0016059
UMLS CUI [1,2]
C0205087
UMLS CUI [1,3]
C0855566
UMLS CUI [1,4]
C0225883
Septum
Description

multiple answers possible

Data type

boolean

Alias
UMLS CUI [1,1]
C0016059
UMLS CUI [1,2]
C0205087
UMLS CUI [1,3]
C0855566
UMLS CUI [1,4]
C0018819
Necrosis
Description

Necrosis

Data type

text

Alias
UMLS CUI [1]
C0027540
Granulomas
Description

Granulomas

Data type

text

Alias
UMLS CUI [1]
C0018188
Giant cells
Description

Giant cells

Data type

text

Alias
UMLS CUI [1]
C0017526
Myozyte hypertrophy
Description

Myocyte hypertrophy

Data type

text

Alias
UMLS CUI [1,1]
C0020564
UMLS CUI [1,2]
C0225828
Immunhistological findings report available
Description

Immunhistological findings report available

Data type

text

Alias
UMLS CUI [1,1]
C0470187
UMLS CUI [1,2]
C0684224
UMLS CUI [1,3]
C0021044
Positive for inflammation
Description

Inflammation

Data type

text

Alias
UMLS CUI [1]
C0021368
Positive for virus and other pathogens in the myocardium
Description

Virus and other pathogens in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0042776
UMLS CUI [1,2]
C0027061
UMLS CUI [2,1]
C0027061
UMLS CUI [2,2]
C0450254
UMLS CUI [2,3]
C0205394
Adenovirus
Description

Adenovirus in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0001483
UMLS CUI [1,2]
C0027061
Coxsackie Virus
Description

Coxsackie Virus in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0010247
UMLS CUI [1,2]
C0027061
Epstein-Barr Virus
Description

Epstein-Barr Virus in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0014644
UMLS CUI [1,2]
C0027061
Parvovirus B19
Description

Parvovirus B19 in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0085274
UMLS CUI [1,2]
C0027061
Herpes Simplex Virus 1/2
Description

Herpes Simplex Virus 1/2 in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0206679
UMLS CUI [1,2]
C0027061
UMLS CUI [2,1]
C0019351
UMLS CUI [2,2]
C0027061
Human Herpesvirus 6
Description

Human Herpesvirus 6 in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0019381
UMLS CUI [1,2]
C0027061
Human Cytomegalovirus
Description

Human Cytomegalovirus in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0010825
UMLS CUI [1,2]
C0027061
Influenza A and B
Description

Influenza A / B in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0029347
UMLS CUI [1,2]
C0027061
UMLS CUI [2,1]
C0029348
UMLS CUI [2,2]
C0027061
Hepatitis C
Description

Hepatitis C in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0019196
UMLS CUI [1,2]
C0027061
Other pathogens (in myocardium)
Description

Other pathogens in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0027061
UMLS CUI [1,2]
C0450254
UMLS CUI [1,3]
C0205394
Chagas
Description

Chagas in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0041234
UMLS CUI [1,2]
C0027061
Borrelia
Description

Borrelia in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0006033
UMLS CUI [1,2]
C0027061
Fungi
Description

Fungi in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0016832
UMLS CUI [1,2]
C0027061
Other
Description

Other pathogens in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C0027061
UMLS CUI [1,2]
C0450254
UMLS CUI [1,3]
C0205394
Please specify
Description

Specify other pathogens in myocardium

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0027061
UMLS CUI [1,3]
C0450254
UMLS CUI [1,4]
C0205394
Positive virus detection in the blood
Description

Virus detected in blood

Data type

text

Alias
UMLS CUI [1,1]
C1514241
UMLS CUI [1,2]
C0005767
UMLS CUI [1,3]
C0042776
Determined by
Description

Virus blood sample type

Data type

text

Alias
UMLS CUI [1,1]
C0178913
UMLS CUI [1,2]
C0332307
UMLS CUI [1,3]
C0042776
Please specify virus
Description

Specify virus

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0042776
Procedural complications
Description

Procedural complications

Alias
UMLS CUI-1
C1141861
Procedural complications
Description

Procedural complications

Data type

text

Alias
UMLS CUI [1]
C1141861
Apoplexy
Description

Apoplexy

Data type

text

Alias
UMLS CUI [1]
C0038454
Pericardial effusion
Description

Pericardial effusion

Data type

text

Alias
UMLS CUI [1]
C0031039
Pericardial tamponade
Description

Cardiac tamponade

Data type

text

Alias
UMLS CUI [1]
C0007177
Access site
Description

Access site

Data type

text

Alias
UMLS CUI [1]
C0589360
Minor bleeding
Description

Minor bleeding

Data type

text

Alias
UMLS CUI [1,1]
C0019080
UMLS CUI [1,2]
C0205165
Major bleeding
Description

Major bleeding

Data type

text

Alias
UMLS CUI [1,1]
C0019080
UMLS CUI [1,2]
C0205164
Death
Description

Death

Data type

text

Alias
UMLS CUI [1]
C0011065
Other
Description

Other procedural complication

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1141861
Other, please specify
Description

Other complication, please specify

Data type

text

Alias
UMLS CUI [1,1]
C1521902
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C1141861
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Similar models

Cardiac Catheter

1 forms
  1. StudyEvent: ODM
    1. Cardiac Catheter
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Examination details
C1522508 (UMLS CUI-1)
C0018795 (UMLS CUI-2)
Item
Quality level
integer
C0332306 (UMLS CUI [1,1])
C0018795 (UMLS CUI [1,2])
6MWT quality
Code List
Quality level
CL Item
Level 1: The examination is performed in accordance with the guidelines of the medical associations. (1)
CL Item
Level 2: The examination is performed in accordance with the specifications of the DZHK SOP. Minimum requirements to ensure the quality of the implementation and the examiners are defined in the SOP. (2)
CL Item
Level 3: The examination is performed in accordance with the specifications of the DZHK SOP and certification of the examiners: Definition of intr-observer and interobserver-variability (standard of epidemiological studies). (3)
Item Group
Right heart catheterisation
C0189896 (UMLS CUI-1)
Item
Was the right heart catheterisation performed
text
C0189896 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Was the right heart catheterisation performed
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of right heart catheterisation
Item
Date of examination
date
C0189896 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Left ventricular end-diastolic pressure
Item
Left ventricular end-diastolic pressure (LVEDP)
integer
C0456190 (UMLS CUI [1])
Cardiac output
Item
Heart time volume
float
C0007165 (UMLS CUI [1])
Systolic pulmonary artery pressure
Item
Systolic pulmonary artery pressure
integer
C0428643 (UMLS CUI [1])
Diastolic pulmonary artery pressure
Item
Diastolic pulmonary artery pressure
integer
C0428644 (UMLS CUI [1])
Mean pulmonary artery pressure
Item
Mean pulmonary artery pressure
integer
C0428645 (UMLS CUI [1])
Pulmonary capillary wedge pressure
Item
Pulmonary capillary pressure (PCWP)
integer
C0086879 (UMLS CUI [1])
Mean right atrial pressure
Item
Mean RA
integer
C0456184 (UMLS CUI [1])
Central venous oxygen saturation
Item
Central venous oxygen saturation
integer
C0364854 (UMLS CUI [1,1])
C0205099 (UMLS CUI [1,2])
Arterial oxygen saturation
Item
Arterial oxygen saturation
integer
C0428175 (UMLS CUI [1])
Transpulmonary gradient (mPAP - PCWP)
Item
Transpulmonary gradient
integer
C0812409 (UMLS CUI [1,1])
C0428645 (UMLS CUI [1,2])
C0086879 (UMLS CUI [1,3])
Pulmonary vascular resistance
Item
Pulmonary vascular resistance
integer
C0456261 (UMLS CUI [1])
Systemic vascular resistance
Item
Systemic vascular resistance (SVR)
integer
C1258192 (UMLS CUI [1])
Body height
Item
Body height
integer
C0005890 (UMLS CUI [1])
Weight
Item
Weight
integer
C0005910 (UMLS CUI [1])
Haemoglobin (g/dl)
Item
Haemoglobin (g/dl)
float
C0019046 (UMLS CUI [1])
Haemoglobin (mmol/l)
Item
Haemoglobin (mmol/l)
float
C0019046 (UMLS CUI [1])
Item Group
Left heart catheterisation
C0189897 (UMLS CUI-1)
Item
Was the left heart catheterisation performed
text
C0189897 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Was the left heart catheterisation performed
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of left heart catheterisation
Item
Date of recording
date
C0189897 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Coronary heart disease (CHD)
text
C0010068 (UMLS CUI [1])
Coronary heart disease (CHD)
Code List
Coronary heart disease (CHD)
CL Item
none (none)
CL Item
1-vessel CHD (1-vessel CHD)
CL Item
2-vessel CHD (2-vessel CHD)
CL Item
3-vessel CHD (3-vessel CHD)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
CL Item
Coronary Sclerosis (Coronary Sclerosis)
Item
Pump function
text
C0080310 (UMLS CUI [1])
LV Pump function
Code List
Pump function
CL Item
good (good)
CL Item
mildly impaired (mildly impaired)
CL Item
moderately impaired (moderately impaired)
CL Item
severely impaired (severely impaired)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item Group
Myokardial biopsy
C1304881 (UMLS CUI-1)
Item
Was the myokardial biopsy performed
text
C1304881 (UMLS CUI [1,1])
C0884358 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Was the myokardial biopsy performed
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of myocardial biopsy
Item
Date of recording
date
C1304881 (UMLS CUI [1,1])
C2584899 (UMLS CUI [1,2])
Item
Ventricle
text
C1304881 (UMLS CUI [1,1])
C0018827 (UMLS CUI [1,2])
Myocardial biopsy ventricle
Code List
Ventricle
CL Item
RV (RV)
CL Item
LV and RV (LV and RV)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
CL Item
LV (LV)
Myocardial biopsy institution
Item
Institution performing the assessment
text
C1301943 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
Item
Previous biopsies available
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0470187 (UMLS CUI [1,3])
6-Minute Walking Test (6MWT) performed?
Code List
Previous biopsies available
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Date of previous myocardial biopsy
Item
Date of previous biopsy
date
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C2584899 (UMLS CUI [1,3])
Previous myocardial biopsy diagnosis
Item
Previous diagnosis
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0011900 (UMLS CUI [1,3])
Number of previous myocardial biopsies
Item
Number of biopsies
integer
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0449788 (UMLS CUI [1,3])
Item
Ventricle
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C0018827 (UMLS CUI [1,3])
Myocardial biopsy ventricle
Code List
Ventricle
CL Item
RV (RV)
CL Item
LV and RV (LV and RV)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
CL Item
LV (LV)
Previous myocardial biopsy institution
Item
Institution performing the assessment
text
C0205156 (UMLS CUI [1,1])
C1304881 (UMLS CUI [1,2])
C1301943 (UMLS CUI [1,3])
Item Group
Storage diseases
C0267971 (UMLS CUI-1)
Item
Storage diseases
text
C0267971 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Storage diseases
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Amyloidosis
text
C0002726 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Amyloidosis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other storage disease
text
C0267971 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Other storage disease
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify other storage disease
Item
Please specify
text
C1521902 (UMLS CUI [1,1])
C0267971 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
Histological/ Immunohistological/ viral findings report
C0684224 (UMLS CUI-1)
C0019638 (UMLS CUI-2)
C0021044 (UMLS CUI-3)
C0152036 (UMLS CUI-4)
C0042762 (UMLS CUI-5)
Item
Histological findings report available
text
C0684224 (UMLS CUI [1,1])
C0449575 (UMLS CUI [1,2])
C0470187 (UMLS CUI [1,3])
6-Minute Walking Test (6MWT) performed?
Code List
Histological findings report available
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Dallas criteria positive (including cell analysis)
text
C0027059 (UMLS CUI [1,1])
C0019638 (UMLS CUI [1,2])
C0243161 (UMLS CUI [1,3])
6-Minute Walking Test (6MWT) performed?
Code List
Dallas criteria positive (including cell analysis)
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive for fibrosis
text
C0016059 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Positive for fibrosis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Demonstration of fibrosis
text
C0025663 (UMLS CUI [1,1])
C0016059 (UMLS CUI [1,2])
C0243095 (UMLS CUI [1,3])
Fibrosis assessment method
Code List
Demonstration of fibrosis
CL Item
Biopsie (Biopsie)
CL Item
MRT (MRT)
CL Item
both (beides)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Quantified (Late Gadolinium Enhancement)
text
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C1709793 (UMLS CUI [1,4])
6-Minute Walking Test (6MWT) performed?
Code List
Quantified (Late Gadolinium Enhancement)
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Quantified (Late Gadolinium Enhancement)
Item
Quantified (Late Gadolinium Enhancement)
integer
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C1709793 (UMLS CUI [1,4])
Fibrosis location by LGE: left ventricular
Item
left ventricular
boolean
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C0225897 (UMLS CUI [1,4])
Fibrosis location by LGE: right ventricular
Item
right ventricular
boolean
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C0225883 (UMLS CUI [1,4])
Fibrosis location by LGE: septum
Item
Septum
boolean
C0016059 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0855566 (UMLS CUI [1,3])
C0018819 (UMLS CUI [1,4])
Item
Necrosis
text
C0027540 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Necrosis
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Granulomas
text
C0018188 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Granulomas
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Giant cells
text
C0017526 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Giant cells
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Myozyte hypertrophy
text
C0020564 (UMLS CUI [1,1])
C0225828 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Myozyte hypertrophy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Immunhistological findings report available
text
C0470187 (UMLS CUI [1,1])
C0684224 (UMLS CUI [1,2])
C0021044 (UMLS CUI [1,3])
6-Minute Walking Test (6MWT) performed?
Code List
Immunhistological findings report available
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive for inflammation
text
C0021368 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Positive for inflammation
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Positive for virus and other pathogens in the myocardium
text
C0042776 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0027061 (UMLS CUI [2,1])
C0450254 (UMLS CUI [2,2])
C0205394 (UMLS CUI [2,3])
6-Minute Walking Test (6MWT) performed?
Code List
Positive for virus and other pathogens in the myocardium
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Adenovirus
text
C0001483 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Adenovirus
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Coxsackie Virus
text
C0010247 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Coxsackie Virus
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Epstein-Barr Virus
text
C0014644 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Epstein-Barr Virus
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Parvovirus B19
text
C0085274 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Parvovirus B19
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Herpes Simplex Virus 1/2
text
C0206679 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0019351 (UMLS CUI [2,1])
C0027061 (UMLS CUI [2,2])
6-Minute Walking Test (6MWT) performed?
Code List
Herpes Simplex Virus 1/2
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Human Herpesvirus 6
text
C0019381 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Human Herpesvirus 6
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Human Cytomegalovirus
text
C0010825 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Human Cytomegalovirus
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Influenza A and B
text
C0029347 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0029348 (UMLS CUI [2,1])
C0027061 (UMLS CUI [2,2])
6-Minute Walking Test (6MWT) performed?
Code List
Influenza A and B
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Hepatitis C
text
C0019196 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Hepatitis C
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other pathogens (in myocardium)
text
C0027061 (UMLS CUI [1,1])
C0450254 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
6-Minute Walking Test (6MWT) performed?
Code List
Other pathogens (in myocardium)
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Chagas
text
C0041234 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Chagas
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Borrelia
text
C0006033 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Borrelia
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Fungi
text
C0016832 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Fungi
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other
text
C0027061 (UMLS CUI [1,1])
C0450254 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
6-Minute Walking Test (6MWT) performed?
Code List
Other
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify other pathogens in myocardium
Item
Please specify
text
C1521902 (UMLS CUI [1,1])
C0027061 (UMLS CUI [1,2])
C0450254 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
Item
Positive virus detection in the blood
text
C1514241 (UMLS CUI [1,1])
C0005767 (UMLS CUI [1,2])
C0042776 (UMLS CUI [1,3])
6-Minute Walking Test (6MWT) performed?
Code List
Positive virus detection in the blood
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Determined by
text
C0178913 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
C0042776 (UMLS CUI [1,3])
Virus blood sample type
Code List
Determined by
CL Item
plasma (plasma)
CL Item
serum (serum)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify virus
Item
Please specify virus
text
C1521902 (UMLS CUI [1,1])
C0042776 (UMLS CUI [1,2])
Item Group
Procedural complications
C1141861 (UMLS CUI-1)
Item
Procedural complications
text
C1141861 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Procedural complications
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Apoplexy
text
C0038454 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Apoplexy
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Pericardial effusion
text
C0031039 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Pericardial effusion
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Pericardial tamponade
text
C0007177 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Pericardial tamponade
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Access site
text
C0589360 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Access site
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Minor bleeding
text
C0019080 (UMLS CUI [1,1])
C0205165 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Minor bleeding
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Major bleeding
text
C0019080 (UMLS CUI [1,1])
C0205164 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Major bleeding
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Death
text
C0011065 (UMLS CUI [1])
6-Minute Walking Test (6MWT) performed?
Code List
Death
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Item
Other
text
C0205394 (UMLS CUI [1,1])
C1141861 (UMLS CUI [1,2])
6-Minute Walking Test (6MWT) performed?
Code List
Other
CL Item
yes (yes)
CL Item
no (no)
CL Item
unknown (unknown)
CL Item
not assessed (not assessed)
Specify other procedural complication
Item
Other, please specify
text
C1521902 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1141861 (UMLS CUI [1,3])
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