ID

6061

Description

Datensatz des MS-Registers auf Grundlage des gemeinsamen Datensatz von DMSG und KKNMS v 1.1 http://www.dmsg.de/msregister/

Link

http://www.dmsg.de/msregister/

Keywords

  1. 11/16/14 11/16/14 - Martin Dugas
  2. 11/27/14 11/27/14 - Martin Dugas
Uploaded on

November 27, 2014

DOI

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License

Creative Commons BY-NC 3.0 Legacy

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Multiple Sclerosis Registry - Inclusion (DMSG)

Multiple Sclerosis Registry - Inclusion (DMSG)

Administrative documentation
Description

Administrative documentation

Alias
UMLS CUI-1
C1320722
Registration date
Description

Registration date

Data type

date

Alias
UMLS CUI-1
C2985881
Data entry person
Description

Data entry person

Data type

text

Alias
UMLS CUI-1
C1550483
Medical center
Description

Medical center

Data type

text

Alias
UMLS CUI-1
C0565990
Pseudonym
Data type

text

Alias
UMLS CUI-1
C0033824
Consent
Description

Consent

Alias
UMLS CUI-1
C1511481
Consent date
Description

Consent date

Data type

date

Alias
UMLS CUI-1
C2985782
Consent version
Description

Consent version

Data type

integer

Alias
UMLS CUI-1
C1548854
Consent for registry
Description

Consent for registry

Data type

boolean

Alias
UMLS CUI-1
C1511481
UMLS CUI-2
C0920631
Consent for further research
Description

Consent for further research

Data type

boolean

Alias
UMLS CUI-1
C1511481
UMLS CUI-2
C0242481
Consent to contact
Description

Consent to contact

Data type

boolean

Alias
UMLS CUI-1
C2051501
UMLS CUI-2
C1511481
Eligibility criteria
Description

Eligibility criteria

Alias
UMLS CUI-1
C1516637
Inclusion criterion
Description

Inclusion criterion

Data type

boolean

Alias
UMLS CUI-1
C1512693
Exclusion criterion
Description

Exclusion criterion

Data type

boolean

Alias
UMLS CUI-1
C0680251
Demographics
Description

Demographics

Alias
UMLS CUI-1
C1704791
Date of birth
Description

Date of birth

Data type

partialDate

Measurement units
  • MM.JJJJ
Alias
UMLS CUI-1
C0421451
MM.JJJJ
Gender
Description

Gender

Data type

integer

Alias
UMLS CUI-1
C0079399
Diagnostic criteria
Description

Diagnostic criteria

Data type

integer

Alias
UMLS CUI-1
C0679228
Diagnostic criteria
Description

Diagnostic criteria

Data type

integer

Alias
UMLS CUI-1
C0679228
Diagnostic criteria
Description

Diagnostic criteria

Data type

boolean

Alias
UMLS CUI-1
C0679228
Diagnosis confirmed
Description

Diagnosis confirmed

Data type

boolean

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C0750484
Medical History
Description

Medical History

Alias
UMLS CUI-1
C0262926
Disease onset
Description

Disease onset

Data type

partialDate

Measurement units
  • MM.JJJJ
Alias
UMLS CUI-1
C0277793
MM.JJJJ
Diagnosis date
Description

Diagnosis date

Data type

partialDate

Measurement units
  • MM.JJJJ
Alias
UMLS CUI-1
C2316983
MM.JJJJ
First Symptoms
Description

First Symptoms

Alias
UMLS CUI-1
C0205435
UMLS CUI-2
C1457887
Visual disturbance
Description

Visual disturbance

Data type

boolean

Alias
UMLS CUI-1
C0547030
Brain stem disorder
Description

Brain stem disorder

Data type

boolean

Alias
UMLS CUI-1
C0151532
Motor dysfunction
Description

Motor dysfunction

Data type

boolean

Alias
UMLS CUI-1
C0234131
Cerebellar disorder
Description

Cerebellar disorder

Data type

boolean

Alias
UMLS CUI-1
C0007760
Sensory Disorders
Description

Sensory Disorders

Data type

boolean

Alias
UMLS CUI-1
C0152027
Bladder dysfunction
Description

Bladder dysfunction

Data type

boolean

Alias
UMLS CUI-1
C0232841
Bowel dysfunction
Description

Bowel dysfunction

Data type

boolean

Alias
UMLS CUI-1
C2004461
Sexual Dysfunction
Description

Sexual Dysfunction

Data type

boolean

Alias
UMLS CUI-1
C0549622
Psychic symptoms
Description

Psychic symptoms

Data type

boolean

Other
Description

Other

Data type

boolean

Other
Description

Other

Data type

text

Expanded Disability Status Scale
Description

Expanded Disability Status Scale

Alias
UMLS CUI-1
C0451246
EDSS 12 months before
Data type

float

EDSS 24 months before
Data type

float

Similar models

Multiple Sclerosis Registry - Inclusion (DMSG)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative documentation
C1320722 (UMLS CUI-1)
Registration date
Item
Registration date
date
C2985881 (UMLS CUI-1)
Data entry person
Item
Data entry person
text
C1550483 (UMLS CUI-1)
Medical center
Item
Medical center
text
C0565990 (UMLS CUI-1)
Pseudonym
Item
text
C0033824 (UMLS CUI-1)
Item Group
Consent
C1511481 (UMLS CUI-1)
Consent date
Item
date
C2985782 (UMLS CUI-1)
Item
integer
C1548854 (UMLS CUI-1)
Code List
Consent version
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
Consent for registry
Item
boolean
C1511481 (UMLS CUI-1)
C0920631 (UMLS CUI-2)
Consent for further research
Item
boolean
C1511481 (UMLS CUI-1)
C0242481 (UMLS CUI-2)
Consent to contact
Item
boolean
C2051501 (UMLS CUI-1)
C1511481 (UMLS CUI-2)
Item Group
C1516637 (UMLS CUI-1)
Inclusion criterion
Item
boolean
C1512693 (UMLS CUI-1)
Exclusion criterion
Item
boolean
C0680251 (UMLS CUI-1)
Item Group
C1704791 (UMLS CUI-1)
Date of birth
Item
partialDate
C0421451 (UMLS CUI-1)
Item
integer
C0079399 (UMLS CUI-1)
Code List
Gender
CL Item
 (1)
CL Item
 (2)
Item
integer
C0679228 (UMLS CUI-1)
Code List
Diagnostic criteria
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
Item
integer
C0679228 (UMLS CUI-1)
Code List
Diagnostic criteria
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
Diagnostic criteria
Item
boolean
C0679228 (UMLS CUI-1)
Diagnosis confirmed
Item
boolean
C0011900 (UMLS CUI-1)
C0750484 (UMLS CUI-2)
Item Group
C0262926 (UMLS CUI-1)
Disease onset
Item
partialDate
C0277793 (UMLS CUI-1)
Diagnosis date
Item
partialDate
C2316983 (UMLS CUI-1)
Item Group
C0205435 (UMLS CUI-1)
C1457887 (UMLS CUI-2)
Visual disturbance
Item
boolean
C0547030 (UMLS CUI-1)
Brain stem disorder
Item
boolean
C0151532 (UMLS CUI-1)
Motor dysfunction
Item
boolean
C0234131 (UMLS CUI-1)
Cerebellar disorder
Item
boolean
C0007760 (UMLS CUI-1)
Sensory Disorders
Item
boolean
C0152027 (UMLS CUI-1)
Bladder dysfunction
Item
boolean
C0232841 (UMLS CUI-1)
Bowel dysfunction
Item
boolean
C2004461 (UMLS CUI-1)
Sexual Dysfunction
Item
boolean
C0549622 (UMLS CUI-1)
Psychic symptoms
Item
boolean
Other
Item
boolean
Other
Item
text
Item Group
Expanded Disability Status Scale
C0451246 (UMLS CUI-1)
EDSS 12 months before
Item
float
EDSS 24 months before
Item
float

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