ID

16135

Description

NHL-BFM 2012 Registry. Principal Investigators: Birgit Burkhardt and Wilhelm Woessmann. NHL study group

Keywords

Versions (2)
  1. 5/15/14 5/15/14 - Martin Dugas
  2. 7/1/16 7/1/16 -
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July 1, 2016

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Creative Commons BY-NC 3.0 Legacy
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NHL-BFM Registry 2012 ALCL

German English

ALCL

1 forms  
  1. StudyEvent: SE
    1. ALCL
Diagnosis
Description

Diagnosis

Diagnosis
Description

Diagnosis

Data type

integer

Alias
UMLS CUI [1]
C0011900
ALK + ALCL: morphological features: common type
Description

ALK + ALCL: morphological features: common type

Data type

integer

Alias
UMLS CUI [1]
C0445617
ALK + ALCL: morphological features: small-cell type
Description

ALK + ALCL: morphological features: small-cell type

Data type

integer

Alias
UMLS CUI [1]
C0445617
ALK + ALCL: morphological features: lymphohistiocytic type
Description

ALK + ALCL: morphological features: lymphohistiocytic type

Data type

integer

Alias
UMLS CUI [1]
C0445617
ALK + ALCL: morphological features: non-common type not otherwise specified
Description

ALK + ALCL: morphological features: non-common type not otherwise specified

Data type

integer

Alias
UMLS CUI [1]
C0445617
ALK + ALCL: morphological features: other
Description

ALK + ALCL: morphological features: other

Data type

integer

Alias
UMLS CUI [1]
C0445617
ALK + ALCL: morphological features: other: please specify
Description

ALK + ALCL: morphological features: other: please specify

Data type

text

Alias
UMLS CUI [1,1]
C0445617
UMLS CUI [1,2]
C1521902
Lymphomatoid papulosis: subtype
Description

Lymphomatoid papulosis: subtype

Data type

integer

Alias
UMLS CUI [1]
C0206182
Other diagnosis: specify including ICD-O code
Description

Other diagnosis: specify including ICD-O code

Data type

text

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C1512892
UMLS CUI [1,3]
C1521902
Mandatory antibodies
Description

Mandatory antibodies

ALK
Description

ALK

Data type

integer

Alias
UMLS CUI [1]
C0252409
ALK positivity: specify
Description

ALK positivity: specify

Data type

integer

Alias
UMLS CUI [1,1]
C3888914
UMLS CUI [1,2]
C1521902
other ALK positivity: specify
Description

other ALK positivity: specify

Data type

text

Alias
UMLS CUI [1,1]
C3888914
UMLS CUI [1,2]
C1521902
CD30
Description

CD30

Data type

integer

Alias
UMLS CUI [1]
C3888910
CD3
Description

CD3

Data type

integer

Alias
UMLS CUI [1]
C0882828
CD2 (mandatory if CD3 negative)
Description

CD2 (mandatory if CD3 negative)

Data type

integer

Alias
UMLS CUI [1]
C0108773
CD5 (mandatory if CD3 negative)
Description

CD5 (mandatory if CD3 negative)

Data type

integer

Alias
UMLS CUI [1]
C0054964
Perforin
Description

Perforin

Data type

integer

Alias
UMLS CUI [1]
C0070410
Granzyme
Description

Granzyme

Data type

integer

Alias
UMLS CUI [1]
C1333877
Mandatory antibodies for ALK-negative systemic ALCL
Description

Mandatory antibodies for ALK-negative systemic ALCL

Pax5
Description

Pax5

Data type

integer

Alias
UMLS CUI [1]
C1335193
Mandatory antibodies for cutaneous cases
Description

Mandatory antibodies for cutaneous cases

EMA
Description

EMA

Data type

integer

Alias
UMLS CUI [1]
C0057628
Optional antibodies
Description

Optional antibodies

Additional antibody 1: specify
Description

Additional antibody 1: specify

Data type

text

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C1524062
UMLS CUI [1,3]
C1521902
Additional antibody 1: result
Description

Additional antibody 1: result

Data type

integer

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C1524062
UMLS CUI [1,3]
C1274040
Additional antibody 2: specify
Description

Additional antibody 2: specify

Data type

text

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C1524062
UMLS CUI [1,3]
C1521902
Additional antibody 2: result
Description

Additional antibody 2: result

Data type

integer

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C1524062
UMLS CUI [1,3]
C1274040
Additional antibody 3: specify
Description

Additional antibody 3: specify

Data type

text

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C1524062
UMLS CUI [1,3]
C1521902
Additional antibody 3: result
Description

Additional antibody 3: result

Data type

integer

Alias
UMLS CUI [1,1]
C0003241
UMLS CUI [1,2]
C1524062
UMLS CUI [1,3]
C1274040
Molecuar analyses
Description

Molecuar analyses

TCR-rearrangement
Description

TCR-rearrangement

Data type

integer

Alias
UMLS CUI [1]
C0200916
Other analysis (e.g. FISH): please specify
Description

Other analysis (e.g. FISH): please specify

Data type

text

Alias
UMLS CUI [1,1]
C0936012
UMLS CUI [1,2]
C1521902
Other characteristics / remarks
Description

Other characteristics / remarks

Other characteristics / remarks
Description

Other characteristics / remarks

Data type

text

Alias
UMLS CUI [1]
C0947611
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Similar models

ALCL

1 forms
  1. StudyEvent: SE
    1. ALCL
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Item
Diagnosis
integer
C0011900 (UMLS CUI [1])
HIST_A
Code List
Diagnosis
CL Item
ALK-positive ALCL (ICD-O 9714/3) (1)
CL Item
ALK-negative ALCL (ICD-O 9702/3) (2)
CL Item
primary cutaneous ALK-negative ALCL (ICD-O 9718/3) (3)
CL Item
lymphomatoid papulosis (ICD-O 9718/1) (4)
CL Item
CD30-positive cutaneous lymphoproliferative disease, not further specified (5)
CL Item
other diagnosis (9)
Item
ALK + ALCL: morphological features: common type
integer
C0445617 (UMLS CUI [1])
NOYES
Code List
ALK + ALCL: morphological features: common type
CL Item
no (1)
CL Item
yes (2)
Item
ALK + ALCL: morphological features: small-cell type
integer
C0445617 (UMLS CUI [1])
NOYES
Code List
ALK + ALCL: morphological features: small-cell type
CL Item
no (1)
CL Item
yes (2)
Item
ALK + ALCL: morphological features: lymphohistiocytic type
integer
C0445617 (UMLS CUI [1])
NOYES
Code List
ALK + ALCL: morphological features: lymphohistiocytic type
CL Item
no (1)
CL Item
yes (2)
Item
ALK + ALCL: morphological features: non-common type not otherwise specified
integer
C0445617 (UMLS CUI [1])
NOYES
Code List
ALK + ALCL: morphological features: non-common type not otherwise specified
CL Item
no (1)
CL Item
yes (2)
Item
ALK + ALCL: morphological features: other
integer
C0445617 (UMLS CUI [1])
NOYES
Code List
ALK + ALCL: morphological features: other
CL Item
no (1)
CL Item
yes (2)
ALK + ALCL: morphological features: other: please specify
Item
ALK + ALCL: morphological features: other: please specify
text
C0445617 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Item
Lymphomatoid papulosis: subtype
integer
C0206182 (UMLS CUI [1])
LP_TYP
Code List
Lymphomatoid papulosis: subtype
CL Item
Type A (1)
CL Item
Type B (2)
CL Item
Type C (3)
Other diagnosis: specify including ICD-O code
Item
Other diagnosis: specify including ICD-O code
text
C0011900 (UMLS CUI [1,1])
C1512892 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
ALK
integer
C0252409 (UMLS CUI [1])
APOS
Code List
ALK
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
ALK positivity: specify
integer
C3888914 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
ALKPOS
Code List
ALK positivity: specify
CL Item
nuclear and cytoplasmatic (1)
CL Item
only nuclear (2)
CL Item
only cytoplasmatic, diffuse (3)
CL Item
only cytoplasmatic, granular (4)
CL Item
only cytoplasmatic, membrane associated (5)
CL Item
other (9)
other ALK positivity: specify
Item
other ALK positivity: specify
text
C3888914 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Item
CD30
integer
C3888910 (UMLS CUI [1])
APOS
Code List
CD30
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
CD3
integer
C0882828 (UMLS CUI [1])
APOS
Code List
CD3
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
CD2 (mandatory if CD3 negative)
integer
C0108773 (UMLS CUI [1])
APOS
Code List
CD2 (mandatory if CD3 negative)
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
CD5 (mandatory if CD3 negative)
integer
C0054964 (UMLS CUI [1])
APOS
Code List
CD5 (mandatory if CD3 negative)
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
Perforin
integer
C0070410 (UMLS CUI [1])
APOS
Code List
Perforin
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
Granzyme
integer
C1333877 (UMLS CUI [1])
APOS
Code List
Granzyme
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
Pax5
integer
C1335193 (UMLS CUI [1])
APOS
Code List
Pax5
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
EMA
integer
C0057628 (UMLS CUI [1])
APOS
Code List
EMA
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Additional antibody 1: specify
Item
Additional antibody 1: specify
text
C0003241 (UMLS CUI [1,1])
C1524062 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Additional antibody 1: result
integer
C0003241 (UMLS CUI [1,1])
C1524062 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
APOS
Code List
Additional antibody 1: result
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Additional antibody 2: specify
Item
Additional antibody 2: specify
text
C0003241 (UMLS CUI [1,1])
C1524062 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Additional antibody 2: result
integer
C0003241 (UMLS CUI [1,1])
C1524062 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
APOS
Code List
Additional antibody 2: result
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Additional antibody 3: specify
Item
Additional antibody 3: specify
text
C0003241 (UMLS CUI [1,1])
C1524062 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Additional antibody 3: result
integer
C0003241 (UMLS CUI [1,1])
C1524062 (UMLS CUI [1,2])
C1274040 (UMLS CUI [1,3])
APOS
Code List
Additional antibody 3: result
CL Item
+ (1)
CL Item
+/- (2)
CL Item
-/+ (3)
CL Item
- (4)
CL Item
n.e. (not evaluable) (5)
Item
TCR-rearrangement
integer
C0200916 (UMLS CUI [1])
TCR
Code List
TCR-rearrangement
CL Item
clonal (1)
CL Item
polyclonal (2)
CL Item
n.e. (not evaluable) (3)
Other analysis (e.g. FISH): please specify
Item
Other analysis (e.g. FISH): please specify
text
C0936012 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Other characteristics / remarks
Item
Other characteristics / remarks
text
C0947611 (UMLS CUI [1])
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