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ID

16135

Description

NHL-BFM 2012 Registry. Principal Investigators: Birgit Burkhardt and Wilhelm Woessmann. NHL study group

Keywords

Versions (2)
  1. 5/15/14 5/15/14 - Martin Dugas
  2. 7/1/16 7/1/16 -
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July 1, 2016

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Creative Commons BY-NC 3.0 Legacy
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    NHL-BFM Registry 2012 ALCL

    German English

    ALCL

    1 forms  
    1. StudyEvent: SE
      1. ALCL
    Diagnosis
    Description

    Diagnosis

    Diagnosis
    Description

    Diagnosis

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0011900
    ALK + ALCL: morphological features: common type
    Description

    ALK + ALCL: morphological features: common type

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0445617
    ALK + ALCL: morphological features: small-cell type
    Description

    ALK + ALCL: morphological features: small-cell type

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0445617
    ALK + ALCL: morphological features: lymphohistiocytic type
    Description

    ALK + ALCL: morphological features: lymphohistiocytic type

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0445617
    ALK + ALCL: morphological features: non-common type not otherwise specified
    Description

    ALK + ALCL: morphological features: non-common type not otherwise specified

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0445617
    ALK + ALCL: morphological features: other
    Description

    ALK + ALCL: morphological features: other

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0445617
    ALK + ALCL: morphological features: other: please specify
    Description

    ALK + ALCL: morphological features: other: please specify

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0445617
    UMLS CUI [1,2]
    C1521902
    Lymphomatoid papulosis: subtype
    Description

    Lymphomatoid papulosis: subtype

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0206182
    Other diagnosis: specify including ICD-O code
    Description

    Other diagnosis: specify including ICD-O code

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0011900
    UMLS CUI [1,2]
    C1512892
    UMLS CUI [1,3]
    C1521902
    Mandatory antibodies
    Description

    Mandatory antibodies

    ALK
    Description

    ALK

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0252409
    ALK positivity: specify
    Description

    ALK positivity: specify

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C3888914
    UMLS CUI [1,2]
    C1521902
    other ALK positivity: specify
    Description

    other ALK positivity: specify

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C3888914
    UMLS CUI [1,2]
    C1521902
    CD30
    Description

    CD30

    Data type

    integer

    Alias
    UMLS CUI [1]
    C3888910
    CD3
    Description

    CD3

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0882828
    CD2 (mandatory if CD3 negative)
    Description

    CD2 (mandatory if CD3 negative)

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0108773
    CD5 (mandatory if CD3 negative)
    Description

    CD5 (mandatory if CD3 negative)

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0054964
    Perforin
    Description

    Perforin

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0070410
    Granzyme
    Description

    Granzyme

    Data type

    integer

    Alias
    UMLS CUI [1]
    C1333877
    Mandatory antibodies for ALK-negative systemic ALCL
    Description

    Mandatory antibodies for ALK-negative systemic ALCL

    Pax5
    Description

    Pax5

    Data type

    integer

    Alias
    UMLS CUI [1]
    C1335193
    Mandatory antibodies for cutaneous cases
    Description

    Mandatory antibodies for cutaneous cases

    EMA
    Description

    EMA

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0057628
    Optional antibodies
    Description

    Optional antibodies

    Additional antibody 1: specify
    Description

    Additional antibody 1: specify

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0003241
    UMLS CUI [1,2]
    C1524062
    UMLS CUI [1,3]
    C1521902
    Additional antibody 1: result
    Description

    Additional antibody 1: result

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0003241
    UMLS CUI [1,2]
    C1524062
    UMLS CUI [1,3]
    C1274040
    Additional antibody 2: specify
    Description

    Additional antibody 2: specify

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0003241
    UMLS CUI [1,2]
    C1524062
    UMLS CUI [1,3]
    C1521902
    Additional antibody 2: result
    Description

    Additional antibody 2: result

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0003241
    UMLS CUI [1,2]
    C1524062
    UMLS CUI [1,3]
    C1274040
    Additional antibody 3: specify
    Description

    Additional antibody 3: specify

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0003241
    UMLS CUI [1,2]
    C1524062
    UMLS CUI [1,3]
    C1521902
    Additional antibody 3: result
    Description

    Additional antibody 3: result

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0003241
    UMLS CUI [1,2]
    C1524062
    UMLS CUI [1,3]
    C1274040
    Molecuar analyses
    Description

    Molecuar analyses

    TCR-rearrangement
    Description

    TCR-rearrangement

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0200916
    Other analysis (e.g. FISH): please specify
    Description

    Other analysis (e.g. FISH): please specify

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0936012
    UMLS CUI [1,2]
    C1521902
    Other characteristics / remarks
    Description

    Other characteristics / remarks

    Other characteristics / remarks
    Description

    Other characteristics / remarks

    Data type

    text

    Alias
    UMLS CUI [1]
    C0947611
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    Similar models

    ALCL

    1 forms
    1. StudyEvent: SE
      1. ALCL
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Item
    Diagnosis
    integer
    C0011900 (UMLS CUI [1])
    HIST_A
    Code List
    Diagnosis
    CL Item
    ALK-positive ALCL (ICD-O 9714/3) (1)
    CL Item
    ALK-negative ALCL (ICD-O 9702/3) (2)
    CL Item
    primary cutaneous ALK-negative ALCL (ICD-O 9718/3) (3)
    CL Item
    lymphomatoid papulosis (ICD-O 9718/1) (4)
    CL Item
    CD30-positive cutaneous lymphoproliferative disease, not further specified (5)
    CL Item
    other diagnosis (9)
    Item
    ALK + ALCL: morphological features: common type
    integer
    C0445617 (UMLS CUI [1])
    NOYES
    Code List
    ALK + ALCL: morphological features: common type
    CL Item
    no (1)
    CL Item
    yes (2)
    Item
    ALK + ALCL: morphological features: small-cell type
    integer
    C0445617 (UMLS CUI [1])
    NOYES
    Code List
    ALK + ALCL: morphological features: small-cell type
    CL Item
    no (1)
    CL Item
    yes (2)
    Item
    ALK + ALCL: morphological features: lymphohistiocytic type
    integer
    C0445617 (UMLS CUI [1])
    NOYES
    Code List
    ALK + ALCL: morphological features: lymphohistiocytic type
    CL Item
    no (1)
    CL Item
    yes (2)
    Item
    ALK + ALCL: morphological features: non-common type not otherwise specified
    integer
    C0445617 (UMLS CUI [1])
    NOYES
    Code List
    ALK + ALCL: morphological features: non-common type not otherwise specified
    CL Item
    no (1)
    CL Item
    yes (2)
    Item
    ALK + ALCL: morphological features: other
    integer
    C0445617 (UMLS CUI [1])
    NOYES
    Code List
    ALK + ALCL: morphological features: other
    CL Item
    no (1)
    CL Item
    yes (2)
    ALK + ALCL: morphological features: other: please specify
    Item
    ALK + ALCL: morphological features: other: please specify
    text
    C0445617 (UMLS CUI [1,1])
    C1521902 (UMLS CUI [1,2])
    Item
    Lymphomatoid papulosis: subtype
    integer
    C0206182 (UMLS CUI [1])
    LP_TYP
    Code List
    Lymphomatoid papulosis: subtype
    CL Item
    Type A (1)
    CL Item
    Type B (2)
    CL Item
    Type C (3)
    Other diagnosis: specify including ICD-O code
    Item
    Other diagnosis: specify including ICD-O code
    text
    C0011900 (UMLS CUI [1,1])
    C1512892 (UMLS CUI [1,2])
    C1521902 (UMLS CUI [1,3])
    Item
    ALK
    integer
    C0252409 (UMLS CUI [1])
    APOS
    Code List
    ALK
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    ALK positivity: specify
    integer
    C3888914 (UMLS CUI [1,1])
    C1521902 (UMLS CUI [1,2])
    ALKPOS
    Code List
    ALK positivity: specify
    CL Item
    nuclear and cytoplasmatic (1)
    CL Item
    only nuclear (2)
    CL Item
    only cytoplasmatic, diffuse (3)
    CL Item
    only cytoplasmatic, granular (4)
    CL Item
    only cytoplasmatic, membrane associated (5)
    CL Item
    other (9)
    other ALK positivity: specify
    Item
    other ALK positivity: specify
    text
    C3888914 (UMLS CUI [1,1])
    C1521902 (UMLS CUI [1,2])
    Item
    CD30
    integer
    C3888910 (UMLS CUI [1])
    APOS
    Code List
    CD30
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    CD3
    integer
    C0882828 (UMLS CUI [1])
    APOS
    Code List
    CD3
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    CD2 (mandatory if CD3 negative)
    integer
    C0108773 (UMLS CUI [1])
    APOS
    Code List
    CD2 (mandatory if CD3 negative)
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    CD5 (mandatory if CD3 negative)
    integer
    C0054964 (UMLS CUI [1])
    APOS
    Code List
    CD5 (mandatory if CD3 negative)
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    Perforin
    integer
    C0070410 (UMLS CUI [1])
    APOS
    Code List
    Perforin
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    Granzyme
    integer
    C1333877 (UMLS CUI [1])
    APOS
    Code List
    Granzyme
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    Pax5
    integer
    C1335193 (UMLS CUI [1])
    APOS
    Code List
    Pax5
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    EMA
    integer
    C0057628 (UMLS CUI [1])
    APOS
    Code List
    EMA
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Additional antibody 1: specify
    Item
    Additional antibody 1: specify
    text
    C0003241 (UMLS CUI [1,1])
    C1524062 (UMLS CUI [1,2])
    C1521902 (UMLS CUI [1,3])
    Item
    Additional antibody 1: result
    integer
    C0003241 (UMLS CUI [1,1])
    C1524062 (UMLS CUI [1,2])
    C1274040 (UMLS CUI [1,3])
    APOS
    Code List
    Additional antibody 1: result
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Additional antibody 2: specify
    Item
    Additional antibody 2: specify
    text
    C0003241 (UMLS CUI [1,1])
    C1524062 (UMLS CUI [1,2])
    C1521902 (UMLS CUI [1,3])
    Item
    Additional antibody 2: result
    integer
    C0003241 (UMLS CUI [1,1])
    C1524062 (UMLS CUI [1,2])
    C1274040 (UMLS CUI [1,3])
    APOS
    Code List
    Additional antibody 2: result
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Additional antibody 3: specify
    Item
    Additional antibody 3: specify
    text
    C0003241 (UMLS CUI [1,1])
    C1524062 (UMLS CUI [1,2])
    C1521902 (UMLS CUI [1,3])
    Item
    Additional antibody 3: result
    integer
    C0003241 (UMLS CUI [1,1])
    C1524062 (UMLS CUI [1,2])
    C1274040 (UMLS CUI [1,3])
    APOS
    Code List
    Additional antibody 3: result
    CL Item
    + (1)
    CL Item
    +/- (2)
    CL Item
    -/+ (3)
    CL Item
    - (4)
    CL Item
    n.e. (not evaluable) (5)
    Item
    TCR-rearrangement
    integer
    C0200916 (UMLS CUI [1])
    TCR
    Code List
    TCR-rearrangement
    CL Item
    clonal (1)
    CL Item
    polyclonal (2)
    CL Item
    n.e. (not evaluable) (3)
    Other analysis (e.g. FISH): please specify
    Item
    Other analysis (e.g. FISH): please specify
    text
    C0936012 (UMLS CUI [1,1])
    C1521902 (UMLS CUI [1,2])
    Other characteristics / remarks
    Item
    Other characteristics / remarks
    text
    C0947611 (UMLS CUI [1])
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