ID

44964

Beschrijving

Principal Investigator: S. Faraone, SUNY Upstate Medical University, Syracuse, NY, USA MeSH: Attention Deficit Disorder with Hyperactivity https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000016 The goal of the project is to complete a 600,000 tag SNP genome-wide association scan of 958 parent-child trios from the International Multisite ADHD Genetics (IMAGE) project, in order to assess the association of SNP markers with ADHD, analyze quantitative ADHD phenotypes, complete copy number analyses, assess parent of origin effects and season of birth effects, and test for epistasis among apparently uncorrelated genes. *Acquiring DNA Samples* All consent forms stipulate that the samples can only be used by researchers who have been approved by the National Institute of Mental Health (NIMH), National Institutes of Health. All consent forms, except those used at the Zürich site (N=141 subjects), explicitly indicate that the samples may be used by researchers from commercial enterprises seeking to benefit financially from the analysis of the samples. The Zürich consent does not prohibit such use. The Zürich consent form also included an "opt out" that allowed the subjects to indicate that they did not want their samples stored at the NIMH repository or used by researchers external to the project. No subjects enrolled in the project opted out. *Consent groups and participant set* - ADHD (ADHD): 2758 (924 trios)

Link

https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000016

Trefwoorden

Versies (4)
  1. 11-05-22 11-05-22 - Martin Dugas
  2. 11-05-22 11-05-22 - Martin Dugas
  3. 12-05-22 12-05-22 - Martin Dugas
  4. 20-05-22 20-05-22 - Dr. Christian Niklas
Houder van rechten

S. Faraone, SUNY Upstate Medical University, Syracuse, NY, USA

Geüploaded op

20 mei 2022

DOI

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Licentie

Creative Commons BY-NC 4.0
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dbGaP phs000016 International Multi-Center ADHD Genetics Project

Engels

The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.

10 Formulieren  
  1. StudyEvent: SEV1
    1. Eligibility Criteria
    2. The data table contains the main diagnosis (DSM-IV), information on comorbidity, prorated hyperactivity scores (quantitative trait 1, 2, 3, 4), I.Q. score, medication status (n=10 variables) and sociodemographic information (n=12 variables).
    3. The data table contains information obtained through the Conners' behavioral rating scale (n=80 questions), describing the child's behavior as observed by the parent.
    4. The data table contains information obtained through the Conners' behavioral rating scale (n=59 questions), describing the child's behavior as observed by a teacher.
    5. The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
    6. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
    7. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by a teacher. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
    8. ADHD Pedigree Information
    9. Subject - Consent Information
    10. Subject - Sample Mapping
pht000053
Beschrijving

pht000053

Child's project ID
Beschrijving

subid

Datatype

text

Is considerate of other people's feelings
Beschrijving

spq1

Datatype

text

Is restless, overactive, cannot stay still for long
Beschrijving

spq2

Datatype

text

Often complains of headaches, stomach-aches or sickness
Beschrijving

spq3

Datatype

text

Shares readily with other children (treats, toys, pencils etc.)
Beschrijving

spq4

Datatype

text

Often has temper tantrums or hot tempers
Beschrijving

spq5

Datatype

text

Is rather solitary, tends to play alone
Beschrijving

spq6

Datatype

text

Is generally obedient, usually does what adults request
Beschrijving

spq7

Datatype

text

Has many worries, often seems worried
Beschrijving

spq8

Datatype

text

Is helpful if someone is hurt, upset or feeling ill
Beschrijving

spq9

Datatype

text

Is constantly fidgeting or squirming
Beschrijving

spq10

Datatype

text

Has at least one good friend
Beschrijving

spq11

Datatype

text

Often fights with other children or bullies them
Beschrijving

spq12

Datatype

text

Is often unhappy, down-hearted or tearful
Beschrijving

spq13

Datatype

text

Is generally liked by other children
Beschrijving

spq14

Datatype

text

Is easily distracted, concentration wanders
Beschrijving

spq15

Datatype

text

Is nervous or clingy in new situations, easily loses confidence
Beschrijving

spq16

Datatype

text

Is kind to younger children
Beschrijving

spq17

Datatype

text

Often lies or cheats
Beschrijving

spq18

Datatype

text

Is picked on or bullied by other children
Beschrijving

spq19

Datatype

text

Often volunteers to help others (parents, teachers, other children)
Beschrijving

spq20

Datatype

text

Thinks things out before acting
Beschrijving

spq21

Datatype

text

Steals from home, school or elsewhere
Beschrijving

spq22

Datatype

text

Gets along better with adults than with other children
Beschrijving

spq23

Datatype

text

Has many fears, is easily scared
Beschrijving

spq24

Datatype

text

Good attention span, sees chores or homework through to the end
Beschrijving

spq25

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people?
Beschrijving

spq26

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? How long have these difficulties been present?
Beschrijving

spq27

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties upset or distress your child?
Beschrijving

spq28

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life at home?
Beschrijving

spq29

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in friendships?
Beschrijving

spq30

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in classroom learning?
Beschrijving

spq31

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in leisure activities?
Beschrijving

spq32

Datatype

text

Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties put a burden on you or your family as a whole?
Beschrijving

spq33

Datatype

text

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Similar models

The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.

10 Formulieren
  1. StudyEvent: SEV1
    1. Eligibility Criteria
    2. The data table contains the main diagnosis (DSM-IV), information on comorbidity, prorated hyperactivity scores (quantitative trait 1, 2, 3, 4), I.Q. score, medication status (n=10 variables) and sociodemographic information (n=12 variables).
    3. The data table contains information obtained through the Conners' behavioral rating scale (n=80 questions), describing the child's behavior as observed by the parent.
    4. The data table contains information obtained through the Conners' behavioral rating scale (n=59 questions), describing the child's behavior as observed by a teacher.
    5. The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
    6. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
    7. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by a teacher. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
    8. ADHD Pedigree Information
    9. Subject - Consent Information
    10. Subject - Sample Mapping
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
pht000053
subid
Item
Child's project ID
text
Item
Is considerate of other people's feelings
text
spq1
Code List
Is considerate of other people's feelings
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is restless, overactive, cannot stay still for long
text
spq2
Code List
Is restless, overactive, cannot stay still for long
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Often complains of headaches, stomach-aches or sickness
text
spq3
Code List
Often complains of headaches, stomach-aches or sickness
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Shares readily with other children (treats, toys, pencils etc.)
text
spq4
Code List
Shares readily with other children (treats, toys, pencils etc.)
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Often has temper tantrums or hot tempers
text
spq5
Code List
Often has temper tantrums or hot tempers
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is rather solitary, tends to play alone
text
spq6
Code List
Is rather solitary, tends to play alone
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is generally obedient, usually does what adults request
text
spq7
Code List
Is generally obedient, usually does what adults request
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Has many worries, often seems worried
text
spq8
Code List
Has many worries, often seems worried
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is helpful if someone is hurt, upset or feeling ill
text
spq9
Code List
Is helpful if someone is hurt, upset or feeling ill
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is constantly fidgeting or squirming
text
spq10
Code List
Is constantly fidgeting or squirming
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Has at least one good friend
text
spq11
Code List
Has at least one good friend
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Often fights with other children or bullies them
text
spq12
Code List
Often fights with other children or bullies them
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is often unhappy, down-hearted or tearful
text
spq13
Code List
Is often unhappy, down-hearted or tearful
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is generally liked by other children
text
spq14
Code List
Is generally liked by other children
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is easily distracted, concentration wanders
text
spq15
Code List
Is easily distracted, concentration wanders
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is nervous or clingy in new situations, easily loses confidence
text
spq16
Code List
Is nervous or clingy in new situations, easily loses confidence
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is kind to younger children
text
spq17
Code List
Is kind to younger children
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Often lies or cheats
text
spq18
Code List
Often lies or cheats
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Is picked on or bullied by other children
text
spq19
Code List
Is picked on or bullied by other children
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Often volunteers to help others (parents, teachers, other children)
text
spq20
Code List
Often volunteers to help others (parents, teachers, other children)
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Thinks things out before acting
text
spq21
Code List
Thinks things out before acting
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Steals from home, school or elsewhere
text
spq22
Code List
Steals from home, school or elsewhere
CL Item
Not true (0)
CL Item
Somewhat true (1)
CL Item
Certainly true (2)
CL Item
Not ticked (3)
CL Item
Not Applicable (NA)
Item
Gets along better with adults than with other children
text
spq23
Code List
Gets along better with adults than with other children
CL Item
No (0)
CL Item
Yes, minor difficulties (1)
CL Item
Yes, definite difficulties (2)
CL Item
Yes, severe difficulties (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Has many fears, is easily scared
text
spq24
Code List
Has many fears, is easily scared
CL Item
Less than a month (0)
CL Item
1-5 months (1)
CL Item
6-12 months (2)
CL Item
Over a year (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Good attention span, sees chores or homework through to the end
text
spq25
Code List
Good attention span, sees chores or homework through to the end
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people?
text
spq26
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? How long have these difficulties been present?
text
spq27
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? How long have these difficulties been present?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties upset or distress your child?
text
spq28
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties upset or distress your child?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life at home?
text
spq29
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life at home?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in friendships?
text
spq30
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in friendships?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in classroom learning?
text
spq31
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in classroom learning?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in leisure activities?
text
spq32
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in leisure activities?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
Item
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties put a burden on you or your family as a whole?
text
spq33
Code List
Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties put a burden on you or your family as a whole?
CL Item
Not at all (0)
CL Item
Only a little (1)
CL Item
Quite a lot (2)
CL Item
A great deal (3)
CL Item
Not ticked (4)
CL Item
Not Applicable (NA)
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