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ID

44964

Description

Principal Investigator: S. Faraone, SUNY Upstate Medical University, Syracuse, NY, USA MeSH: Attention Deficit Disorder with Hyperactivity https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000016 The goal of the project is to complete a 600,000 tag SNP genome-wide association scan of 958 parent-child trios from the International Multisite ADHD Genetics (IMAGE) project, in order to assess the association of SNP markers with ADHD, analyze quantitative ADHD phenotypes, complete copy number analyses, assess parent of origin effects and season of birth effects, and test for epistasis among apparently uncorrelated genes. *Acquiring DNA Samples* All consent forms stipulate that the samples can only be used by researchers who have been approved by the National Institute of Mental Health (NIMH), National Institutes of Health. All consent forms, except those used at the Zürich site (N=141 subjects), explicitly indicate that the samples may be used by researchers from commercial enterprises seeking to benefit financially from the analysis of the samples. The Zürich consent does not prohibit such use. The Zürich consent form also included an "opt out" that allowed the subjects to indicate that they did not want their samples stored at the NIMH repository or used by researchers external to the project. No subjects enrolled in the project opted out. *Consent groups and participant set* - ADHD (ADHD): 2758 (924 trios)

Link

https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000016

Keywords

Versions (4)
  1. 5/11/22 5/11/22 - Martin Dugas
  2. 5/11/22 5/11/22 - Martin Dugas
  3. 5/12/22 5/12/22 - Martin Dugas
  4. 5/20/22 5/20/22 - Dr. Christian Niklas
Copyright Holder

S. Faraone, SUNY Upstate Medical University, Syracuse, NY, USA

Uploaded on

May 20, 2022

DOI

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License

Creative Commons BY-NC 4.0
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    dbGaP phs000016 International Multi-Center ADHD Genetics Project

    English

    The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.

    10 forms  
    1. StudyEvent: SEV1
      1. Eligibility Criteria
      2. The data table contains the main diagnosis (DSM-IV), information on comorbidity, prorated hyperactivity scores (quantitative trait 1, 2, 3, 4), I.Q. score, medication status (n=10 variables) and sociodemographic information (n=12 variables).
      3. The data table contains information obtained through the Conners' behavioral rating scale (n=80 questions), describing the child's behavior as observed by the parent.
      4. The data table contains information obtained through the Conners' behavioral rating scale (n=59 questions), describing the child's behavior as observed by a teacher.
      5. The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
      6. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
      7. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by a teacher. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
      8. ADHD Pedigree Information
      9. Subject - Consent Information
      10. Subject - Sample Mapping
    pht000053
    Description

    pht000053

    Child's project ID
    Description

    subid

    Data type

    text

    Is considerate of other people's feelings
    Description

    spq1

    Data type

    text

    Is restless, overactive, cannot stay still for long
    Description

    spq2

    Data type

    text

    Often complains of headaches, stomach-aches or sickness
    Description

    spq3

    Data type

    text

    Shares readily with other children (treats, toys, pencils etc.)
    Description

    spq4

    Data type

    text

    Often has temper tantrums or hot tempers
    Description

    spq5

    Data type

    text

    Is rather solitary, tends to play alone
    Description

    spq6

    Data type

    text

    Is generally obedient, usually does what adults request
    Description

    spq7

    Data type

    text

    Has many worries, often seems worried
    Description

    spq8

    Data type

    text

    Is helpful if someone is hurt, upset or feeling ill
    Description

    spq9

    Data type

    text

    Is constantly fidgeting or squirming
    Description

    spq10

    Data type

    text

    Has at least one good friend
    Description

    spq11

    Data type

    text

    Often fights with other children or bullies them
    Description

    spq12

    Data type

    text

    Is often unhappy, down-hearted or tearful
    Description

    spq13

    Data type

    text

    Is generally liked by other children
    Description

    spq14

    Data type

    text

    Is easily distracted, concentration wanders
    Description

    spq15

    Data type

    text

    Is nervous or clingy in new situations, easily loses confidence
    Description

    spq16

    Data type

    text

    Is kind to younger children
    Description

    spq17

    Data type

    text

    Often lies or cheats
    Description

    spq18

    Data type

    text

    Is picked on or bullied by other children
    Description

    spq19

    Data type

    text

    Often volunteers to help others (parents, teachers, other children)
    Description

    spq20

    Data type

    text

    Thinks things out before acting
    Description

    spq21

    Data type

    text

    Steals from home, school or elsewhere
    Description

    spq22

    Data type

    text

    Gets along better with adults than with other children
    Description

    spq23

    Data type

    text

    Has many fears, is easily scared
    Description

    spq24

    Data type

    text

    Good attention span, sees chores or homework through to the end
    Description

    spq25

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people?
    Description

    spq26

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? How long have these difficulties been present?
    Description

    spq27

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties upset or distress your child?
    Description

    spq28

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life at home?
    Description

    spq29

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in friendships?
    Description

    spq30

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in classroom learning?
    Description

    spq31

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in leisure activities?
    Description

    spq32

    Data type

    text

    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties put a burden on you or your family as a whole?
    Description

    spq33

    Data type

    text

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    Similar models

    The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.

    10 forms
    1. StudyEvent: SEV1
      1. Eligibility Criteria
      2. The data table contains the main diagnosis (DSM-IV), information on comorbidity, prorated hyperactivity scores (quantitative trait 1, 2, 3, 4), I.Q. score, medication status (n=10 variables) and sociodemographic information (n=12 variables).
      3. The data table contains information obtained through the Conners' behavioral rating scale (n=80 questions), describing the child's behavior as observed by the parent.
      4. The data table contains information obtained through the Conners' behavioral rating scale (n=59 questions), describing the child's behavior as observed by a teacher.
      5. The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
      6. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
      7. The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by a teacher. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
      8. ADHD Pedigree Information
      9. Subject - Consent Information
      10. Subject - Sample Mapping
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    pht000053
    subid
    Item
    Child's project ID
    text
    Item
    Is considerate of other people's feelings
    text
    spq1
    Code List
    Is considerate of other people's feelings
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is restless, overactive, cannot stay still for long
    text
    spq2
    Code List
    Is restless, overactive, cannot stay still for long
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Often complains of headaches, stomach-aches or sickness
    text
    spq3
    Code List
    Often complains of headaches, stomach-aches or sickness
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Shares readily with other children (treats, toys, pencils etc.)
    text
    spq4
    Code List
    Shares readily with other children (treats, toys, pencils etc.)
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Often has temper tantrums or hot tempers
    text
    spq5
    Code List
    Often has temper tantrums or hot tempers
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is rather solitary, tends to play alone
    text
    spq6
    Code List
    Is rather solitary, tends to play alone
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is generally obedient, usually does what adults request
    text
    spq7
    Code List
    Is generally obedient, usually does what adults request
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Has many worries, often seems worried
    text
    spq8
    Code List
    Has many worries, often seems worried
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is helpful if someone is hurt, upset or feeling ill
    text
    spq9
    Code List
    Is helpful if someone is hurt, upset or feeling ill
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is constantly fidgeting or squirming
    text
    spq10
    Code List
    Is constantly fidgeting or squirming
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Has at least one good friend
    text
    spq11
    Code List
    Has at least one good friend
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Often fights with other children or bullies them
    text
    spq12
    Code List
    Often fights with other children or bullies them
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is often unhappy, down-hearted or tearful
    text
    spq13
    Code List
    Is often unhappy, down-hearted or tearful
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is generally liked by other children
    text
    spq14
    Code List
    Is generally liked by other children
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is easily distracted, concentration wanders
    text
    spq15
    Code List
    Is easily distracted, concentration wanders
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is nervous or clingy in new situations, easily loses confidence
    text
    spq16
    Code List
    Is nervous or clingy in new situations, easily loses confidence
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is kind to younger children
    text
    spq17
    Code List
    Is kind to younger children
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Often lies or cheats
    text
    spq18
    Code List
    Often lies or cheats
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Is picked on or bullied by other children
    text
    spq19
    Code List
    Is picked on or bullied by other children
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Often volunteers to help others (parents, teachers, other children)
    text
    spq20
    Code List
    Often volunteers to help others (parents, teachers, other children)
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Thinks things out before acting
    text
    spq21
    Code List
    Thinks things out before acting
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Steals from home, school or elsewhere
    text
    spq22
    Code List
    Steals from home, school or elsewhere
    CL Item
    Not true (0)
    CL Item
    Somewhat true (1)
    CL Item
    Certainly true (2)
    CL Item
    Not ticked (3)
    CL Item
    Not Applicable (NA)
    Item
    Gets along better with adults than with other children
    text
    spq23
    Code List
    Gets along better with adults than with other children
    CL Item
    No (0)
    CL Item
    Yes, minor difficulties (1)
    CL Item
    Yes, definite difficulties (2)
    CL Item
    Yes, severe difficulties (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Has many fears, is easily scared
    text
    spq24
    Code List
    Has many fears, is easily scared
    CL Item
    Less than a month (0)
    CL Item
    1-5 months (1)
    CL Item
    6-12 months (2)
    CL Item
    Over a year (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Good attention span, sees chores or homework through to the end
    text
    spq25
    Code List
    Good attention span, sees chores or homework through to the end
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people?
    text
    spq26
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? How long have these difficulties been present?
    text
    spq27
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? How long have these difficulties been present?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties upset or distress your child?
    text
    spq28
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties upset or distress your child?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life at home?
    text
    spq29
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life at home?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in friendships?
    text
    spq30
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in friendships?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in classroom learning?
    text
    spq31
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in classroom learning?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in leisure activities?
    text
    spq32
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties interfere with your child's everyday life in leisure activities?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
    Item
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties put a burden on you or your family as a whole?
    text
    spq33
    Code List
    Do you think that your child has difficulties in one or more of the following areas: emotions, concentration, behaviour or being able to get on with other people? Do these difficulties put a burden on you or your family as a whole?
    CL Item
    Not at all (0)
    CL Item
    Only a little (1)
    CL Item
    Quite a lot (2)
    CL Item
    A great deal (3)
    CL Item
    Not ticked (4)
    CL Item
    Not Applicable (NA)
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