Information:
Fel:
ID
44964
Beskrivning
Principal Investigator: S. Faraone, SUNY Upstate Medical University, Syracuse, NY, USA MeSH: Attention Deficit Disorder with Hyperactivity https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000016 The goal of the project is to complete a 600,000 tag SNP genome-wide association scan of 958 parent-child trios from the International Multisite ADHD Genetics (IMAGE) project, in order to assess the association of SNP markers with ADHD, analyze quantitative ADHD phenotypes, complete copy number analyses, assess parent of origin effects and season of birth effects, and test for epistasis among apparently uncorrelated genes. *Acquiring DNA Samples* All consent forms stipulate that the samples can only be used by researchers who have been approved by the National Institute of Mental Health (NIMH), National Institutes of Health. All consent forms, except those used at the Zürich site (N=141 subjects), explicitly indicate that the samples may be used by researchers from commercial enterprises seeking to benefit financially from the analysis of the samples. The Zürich consent does not prohibit such use. The Zürich consent form also included an "opt out" that allowed the subjects to indicate that they did not want their samples stored at the NIMH repository or used by researchers external to the project. No subjects enrolled in the project opted out. *Consent groups and participant set* - ADHD (ADHD): 2758 (924 trios)
Länk
https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000016
Nyckelord
Versioner (4)
- 2022-05-11 2022-05-11 - Martin Dugas
- 2022-05-11 2022-05-11 - Martin Dugas
- 2022-05-12 2022-05-12 - Martin Dugas
- 2022-05-20 2022-05-20 - Dr. Christian Niklas
Rättsinnehavare
S. Faraone, SUNY Upstate Medical University, Syracuse, NY, USA
Uppladdad den
20 maj 2022
DOI
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Licens
Creative Commons BY-NC 4.0
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dbGaP phs000016 International Multi-Center ADHD Genetics Project
The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
- StudyEvent: SEV1
- Eligibility Criteria
- The data table contains the main diagnosis (DSM-IV), information on comorbidity, prorated hyperactivity scores (quantitative trait 1, 2, 3, 4), I.Q. score, medication status (n=10 variables) and sociodemographic information (n=12 variables).
- The data table contains information obtained through the Conners' behavioral rating scale (n=80 questions), describing the child's behavior as observed by the parent.
- The data table contains information obtained through the Conners' behavioral rating scale (n=59 questions), describing the child's behavior as observed by a teacher.
- The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
- The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
- The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by a teacher. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
- ADHD Pedigree Information
- Subject - Consent Information
- Subject - Sample Mapping
Similar models
The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
- StudyEvent: SEV1
- Eligibility Criteria
- The data table contains the main diagnosis (DSM-IV), information on comorbidity, prorated hyperactivity scores (quantitative trait 1, 2, 3, 4), I.Q. score, medication status (n=10 variables) and sociodemographic information (n=12 variables).
- The data table contains information obtained through the Conners' behavioral rating scale (n=80 questions), describing the child's behavior as observed by the parent.
- The data table contains information obtained through the Conners' behavioral rating scale (n=59 questions), describing the child's behavior as observed by a teacher.
- The data table contains information obtained through the PACS (Parental Account of Childhood Symptoms) interview administered by a trained interviewer (n=200 questions). Questions represent four behavioral sub-categories: emotional pattern; activity level and inattentive behavior; disruptive behavior; comorbidity and other problems (including autism spectrum disorders).
- The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by the parent. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
- The data table contains information obtained through the SDQ (Strength and Difficulties, n=25 questions) questionnaire describing the child's behavior as observed by a teacher. The questions address five subcategories: emotional symptoms scale; conduct problem scale; hyperactivity scale; peer problems scale; prosocial scale.
- ADHD Pedigree Information
- Subject - Consent Information
- Subject - Sample Mapping
Name
Typ
Description | Question | Decode (Coded Value)
Datatyp
Alias
subid
Item
Child's project ID
text
CL Item
No misery (0)
CL Item
Transient misery, lasting less than 6 hours, easy to cheer up (1)
CL Item
Marked; lasting more than 6 hours or could only be cheered up with difficulty (2)
CL Item
Severe; could not be cheered up at all or was talking about a wish to die or run away or too miserable to engage in usual activities (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No misery or less than once a week (0)
CL Item
On 1 or 2 days a week (1)
CL Item
On 3 to 6 days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No worries (0)
CL Item
Mild or transient worrying, lasting less than 6 hours appropriate to the problem no interference with usual activities easy to reassure (1)
CL Item
Marked Lasting more than 6 hours or difficult to reassure or moderate interference with usual activities or out of proportion to the problem (2)
CL Item
Severe; could not be reassured or marked interference with usual activities e.g. loss of sleep, not going out etc. (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No worries or less than once a week (0)
CL Item
On 1 or 2 days a week (1)
CL Item
On 3 to 6 days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Does not occur (0)
CL Item
Dubious, minimal (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No fears (0)
CL Item
Mild; involves worry or reluctance to approach only, minimal (1)
CL Item
Marked; avoids situation or expresses severe worry (2)
CL Item
Severe; total avoidance leading to handicap of normal life (e.g. not going out, not going to school) or panic or gross anxiety shown (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No eating difficulties (0)
CL Item
Mild; one symptom only, no interference with activities, no vomiting, no weight loss or excessive weight gain (1)
CL Item
Moderate; more than one symptom or some interference with activities, but no vomiting, no weight loss or excessive weight gain (2)
CL Item
Severe; many symptoms or marked interference with activities or vomiting, weight loss, excessive weight gain (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No eating problems or less than once a week (0)
CL Item
On 1 or 2 days a week (1)
CL Item
On 3 to 6 days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No sleep difficulties (0)
CL Item
Mild; little distress, no interference with daytime activities (1)
CL Item
Moderate; moderate distress or moderate interference with daytime activities (2)
CL Item
Severe; marked distress or marked interference with daytime activities (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No sleep difficulties or less than once a week (0)
CL Item
On 1 or 2 days a week (1)
CL Item
On 3 to 6 days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No mood change (0)
CL Item
Transient mood change, lasting less than 6 hours, easy to cheer up/ engage in activity (1)
CL Item
Marked; lasting more than 6 hours or could only be cheered up/engaged with difficulty (2)
CL Item
Severe; could not be cheered up at all, no engagement even in normally pleasurable activities (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No mood change or less than once a week (0)
CL Item
On 1 or 2 days a week (1)
CL Item
On 3 to 6 days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No problem perceived, no parental concern (0)
CL Item
Minor problem perceived, slight/intermittent concern (1)
CL Item
Serious problem perceived, much/constant concern (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Not relevant (88)
CL Item
Unknown (99)
CL Item
Not Applicable (NA)
CL Item
Can almost always control behaviour/ can modify on most occasions (0)
CL Item
Sometimes has control over behaviour/ can often modify or stop (1)
CL Item
No control over behaviour/ cannot modify or stop (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No impairment (0)
CL Item
Impaired at times or minor impairment (1)
CL Item
Serious impairment (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Normal (0)
CL Item
Mildly abnormal (1)
CL Item
Markedly abnormal (2)
CL Item
Severely abnormal (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Highly efficient, problems always or nearly always anticipated and avoided (0)
CL Item
Efficient, proven plans in place even though they may not work every time (1)
CL Item
Problems are not avoided but ineffective strategies have been replaced with more effective (2)
CL Item
Ineffective strategies only, but do not aggravate the problem (3)
CL Item
Lack of response to a problem (e.g. uninvolved), but not making it worse (4)
CL Item
Parental actions are making the problem worse or adding new problem (5)
CL Item
Parental actions lead to the problem getting out of hand (6)
CL Item
Parental actions are abusive (7)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Highly efficient, problems always or nearly always anticipated and avoided (0)
CL Item
Efficient, proven plans in place even though they may not work every time (1)
CL Item
Problems are not avoided but ineffective strategies have been replaced with more effective (2)
CL Item
Ineffective strategies only, but do not aggravate the problem (3)
CL Item
Lack of response to a problem (e.g. uninvolved), but not making it worse (4)
CL Item
Parental actions are making the problem worse or adding new problem (5)
CL Item
Parental actions lead to the problem getting out of hand (6)
CL Item
Parental actions are abusive (7)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No disagreements (0)
CL Item
Differences of opinion but not of style (1)
CL Item
Differences in behaviour towards child (2)
CL Item
Parents overrule, countermand, or argue openly (3)
CL Item
One parent family (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Normal (0)
CL Item
Mildly abnormal (1)
CL Item
Markedly abnormal (2)
CL Item
Severely abnormal (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - watching TV - usual attention span - PACS section 2.1
text
Code List
Activity level and inattentive behaviour - watching TV - usual attention span - PACS section 2.1
CL Item
More than 30 minutes (0)
CL Item
Between 15 and 30 minutes (1)
CL Item
Between six to 15 minutes (2)
CL Item
Five minutes or less (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - watching TV - usual restlessness - PACS section 2.1
text
Code List
Activity level and inattentive behaviour - watching TV - usual restlessness - PACS section 2.1
CL Item
No restlessness (0)
CL Item
Once every 15 minutes (1)
CL Item
More than once every 15 minutes but less than once every five minutes (2)
CL Item
Once every five minutes or stays in place for less than five minutes (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - watching TV - usual fidgeting - PACS section 2.1
text
Code List
Activity level and inattentive behaviour - watching TV - usual fidgeting - PACS section 2.1
CL Item
No fidgeting (0)
CL Item
Less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continuous fidgeting (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - watching TV - usual talkativeness - PACS section 2.1
text
Code List
Activity level and inattentive behaviour - watching TV - usual talkativeness - PACS section 2.1
CL Item
No talking or the occasional comment (0)
CL Item
Talked for less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Talked continuously (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - watching TV - usual noisiness - PACS section 2.1
text
Code List
Activity level and inattentive behaviour - watching TV - usual noisiness - PACS section 2.1
CL Item
No noise (0)
CL Item
Noisy less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continual noise throughout (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - reading - usual attention span - PACS section 2.2
text
Code List
Activity level and inattentive behaviour - reading - usual attention span - PACS section 2.2
CL Item
More than 30 minutes (0)
CL Item
Between 15 and 30 minutes (1)
CL Item
Between six to 15 minutes (2)
CL Item
Five minutes or less (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - reading - usual restlessness - PACS section 2.2
text
Code List
Activity level and inattentive behaviour - reading - usual restlessness - PACS section 2.2
CL Item
No restlessness (0)
CL Item
Once every 15 minutes (1)
CL Item
More than once every 15 minutes but less than once every five minutes (2)
CL Item
Once every five minutes or stays in place for less than five minutes (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - reading - usual fidgeting - PACS section 2.2
text
Code List
Activity level and inattentive behaviour - reading - usual fidgeting - PACS section 2.2
CL Item
No fidgeting (0)
CL Item
Less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continuous fidgeting (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - reading - usual talkativeness - PACS section 2.2
text
Code List
Activity level and inattentive behaviour - reading - usual talkativeness - PACS section 2.2
CL Item
No talking or the occasional comment (0)
CL Item
Talked for less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Talked continuously (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - reading - usual noisiness - PACS section 2.2
text
Code List
Activity level and inattentive behaviour - reading - usual noisiness - PACS section 2.2
CL Item
No noise (0)
CL Item
Noisy less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continual noise throughout (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - solitary play - usual attention span - PACS section 2.3
text
Code List
Activity level and inattentive behaviour - solitary play - usual attention span - PACS section 2.3
CL Item
More than 30 minutes (0)
CL Item
Between 15 and 30 minutes (1)
CL Item
Between six to 15 minutes (2)
CL Item
Five minutes or less (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - solitary play - usual restlessness - PACS section 2.3
text
Code List
Activity level and inattentive behaviour - solitary play - usual restlessness - PACS section 2.3
CL Item
No restlessness (0)
CL Item
Once every 15 minutes (1)
CL Item
More than once every 15 minutes but less than once every five minutes (2)
CL Item
Once every five minutes or stays in place for less than five minutes (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - solitary play - usual fidgeting - PACS section 2.3
text
Code List
Activity level and inattentive behaviour - solitary play - usual fidgeting - PACS section 2.3
CL Item
No fidgeting (0)
CL Item
Less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continuous fidgeting (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - solitary play - usual talkativeness - PACS section 2.3
text
Code List
Activity level and inattentive behaviour - solitary play - usual talkativeness - PACS section 2.3
CL Item
No talking or the occasional comment (0)
CL Item
Talked for less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Talked continuously (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - solitary play - usual noisiness - PACS section 2.3
text
Code List
Activity level and inattentive behaviour - solitary play - usual noisiness - PACS section 2.3
CL Item
No noise (0)
CL Item
Noisy less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continual noise throughout (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - joint play - usual attention span - PACS section 2.4
text
Code List
Activity level and inattentive behaviour - joint play - usual attention span - PACS section 2.4
CL Item
More than 30 minutes (0)
CL Item
Between 15 and 30 minutes (1)
CL Item
Between six to 15 minutes (2)
CL Item
Five minutes or less (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - joint play - usual restlessness - PACS section 2.4
text
Code List
Activity level and inattentive behaviour - joint play - usual restlessness - PACS section 2.4
CL Item
No restlessness (0)
CL Item
Once every 15 minutes (1)
CL Item
More than once every 15 minutes but less than once every five minutes (2)
CL Item
Once every five minutes or stays in place for less than five minutes (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - joint play - usual talkativeness - PACS section 2.4
text
Code List
Activity level and inattentive behaviour - joint play - usual talkativeness - PACS section 2.4
CL Item
No talking or the occasional comment (0)
CL Item
Talked for less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Talked continuously (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - joint play - usual noisiness - PACS section 2.4
text
Code List
Activity level and inattentive behaviour - joint play - usual noisiness - PACS section 2.4
CL Item
No noise (0)
CL Item
Noisy less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continual noise throughout (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - meal times - usual restlessness - PACS section 2.5
text
Code List
Activity level and inattentive behaviour - meal times - usual restlessness - PACS section 2.5
CL Item
No restlessness (0)
CL Item
Once every 15 minutes (1)
CL Item
More than once every 15 minutes but less than once every five minutes (2)
CL Item
Once every five minutes or stays in place for less than five minutes (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - meal times - usual fidgeting - PACS section 2.5
text
Code List
Activity level and inattentive behaviour - meal times - usual fidgeting - PACS section 2.5
CL Item
No fidgeting (0)
CL Item
Less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continuous fidgeting (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - meal times - usual talkativeness - PACS section 2.5
text
Code List
Activity level and inattentive behaviour - meal times - usual talkativeness - PACS section 2.5
CL Item
No talking or the occasional comment (0)
CL Item
Talked for less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Talked continuously (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - meal times - usual noisiness - PACS section 2.5
text
Code List
Activity level and inattentive behaviour - meal times - usual noisiness - PACS section 2.5
CL Item
No noise (0)
CL Item
Noisy less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continual noise throughout (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - shopping trips - usual restlessness - PACS section 2.6
text
Code List
Activity level and inattentive behaviour - shopping trips - usual restlessness - PACS section 2.6
CL Item
No restlessness (0)
CL Item
Once every 15 minutes (1)
CL Item
More than once every 15 minutes but less than once every five minutes (2)
CL Item
Once every five minutes or stays in place for less than five minutes (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - shopping trips - usual talkativeness - PACS section 2.6
text
Code List
Activity level and inattentive behaviour - shopping trips - usual talkativeness - PACS section 2.6
CL Item
No talking or the occasional comment (0)
CL Item
Talked for less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Talked continuously (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - shopping trips - usual noisiness - PACS section 2.6
text
Code List
Activity level and inattentive behaviour - shopping trips - usual noisiness - PACS section 2.6
CL Item
No noise (0)
CL Item
Noisy less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continual noise throughout (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - family outings - usual restlessness - PACS section 2.7
text
Code List
Activity level and inattentive behaviour - family outings - usual restlessness - PACS section 2.7
CL Item
No restlessness (0)
CL Item
Once every 15 minutes (1)
CL Item
More than once every 15 minutes but less than once every five minutes (2)
CL Item
Once every five minutes or stays in place for less than five minutes (3)
CL Item
No outing in last 6 months (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Activity level and inattentive behaviour - family outings - usual noisiness - PACS section 2.7
text
Code List
Activity level and inattentive behaviour - family outings - usual noisiness - PACS section 2.7
CL Item
No noise (0)
CL Item
Noisy less than half the time (1)
CL Item
More than half the time but not throughout (2)
CL Item
Continual noise throughout (3)
CL Item
No outing in last 6 months (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Little or no difficulty waiting (0)
CL Item
Becomes impatient very quickly but can wait (1)
CL Item
Often ' butts in ' or goes before his turn (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Little or no difficulty waiting (0)
CL Item
Becomes impatient very quickly but can wait (1)
CL Item
Often ' butts in ' or goes before his/her turn (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Little or no difficulty waiting (0)
CL Item
Becomes impatient very quickly but can wait (1)
CL Item
Often ' butts in ' or goes before his/her turn (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Waits until the question is completed (0)
CL Item
Is somewhat hasty but listens to the question first (1)
CL Item
Blurts out the answer before the question is completed (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Impulsivity - interrupted the conversation or made unnecessary comments - PACS section 2.8
text
Code List
Impulsivity - interrupted the conversation or made unnecessary comments - PACS section 2.8
CL Item
No interruptions (0)
CL Item
Some interrupting (1)
CL Item
Constant interrupting so as to make conversation impossible (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Parental perceptions of child's hyperactivity/impulsivity - perceived severity - PACS section 2.9
text
Code List
Parental perceptions of child's hyperactivity/impulsivity - perceived severity - PACS section 2.9
CL Item
No problem perceived, no parental concern (0)
CL Item
Minor problem perceived, slight/intermittent concern (1)
CL Item
Serious problem perceived, much/constant concern (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Parental perceptions of child's hyperactivity/impulsivity - age of onset - PACS section 2.9
text
Code List
Parental perceptions of child's hyperactivity/impulsivity - age of onset - PACS section 2.9
CL Item
Not relevant (88)
CL Item
Unknown (99)
CL Item
Not Applicable (NA)
Item
Parental perceptions of child's hyperactivity/impulsivity - control - PACS section 2.9
text
Code List
Parental perceptions of child's hyperactivity/impulsivity - control - PACS section 2.9
CL Item
Can almost always control behaviour/ can modify on most occasions (0)
CL Item
Sometimes has control over behaviour/ can often modify or stop (1)
CL Item
No control over behaviour/ cannot modify or stop (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No impairment (0)
CL Item
Impaired at times or minor impairment (1)
CL Item
Serious impairment (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Parental perceptions of child's hyperactivity/impulsivity - abnormality - PACS section 2.9
text
Code List
Parental perceptions of child's hyperactivity/impulsivity - abnormality - PACS section 2.9
CL Item
Normal (0)
CL Item
Mildly abnormal (1)
CL Item
Markedly abnormal (2)
CL Item
Severely abnormal (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Inattentive behaviour a- reluctant to begin structured task at home - PACS section 2.9a
text
Code List
Inattentive behaviour a- reluctant to begin structured task at home - PACS section 2.9a
CL Item
Eager, or at least co-operative at first (0)
CL Item
Somewhat reluctant at first but no further complaints when started (1)
CL Item
Strong initial resistance or continued to complain throughout the task (2)
CL Item
Strong continued resistance or complete avoidance of the task (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Inattentive behaviour a - paid attention to detail during structured task - PACS section 2.9a
text
Code List
Inattentive behaviour a - paid attention to detail during structured task - PACS section 2.9a
CL Item
Yes (0)
CL Item
Made effort to get things right, but occasional lapses (1)
CL Item
Showed little attention to detail (2)
CL Item
No attention to detail at all, task unfinished or sloppily done (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No mistakes (0)
CL Item
Understood the task but made 1 or 2 unnecessary mistakes (1)
CL Item
Failed to pay close attention resulting in repeated careless mistakes (2)
CL Item
Was so careless that the task could not be completed or had to be done again (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Listened and understood the instructions (0)
CL Item
Did not seem to listen but showed by actions that he/she had heard the instructions and understood (1)
CL Item
Did not seem to listen and showed by actions that he/she had only partly understood the instructions (2)
CL Item
Showed a marked lack of attention to and clearly misunderstood instructions (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Followed all instructions completely (0)
CL Item
Followed the most important instructions but failed to follow others (1)
CL Item
Failed to follow most instructions including the most important ones (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Completed the task (0)
CL Item
Completed most of task but left unfinished (1)
CL Item
Gave up very quickly or had to be forced to complete task (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Not at all distracted (0)
CL Item
Temporarily distracted but returned to task of their own accord (1)
CL Item
Had to be told to return to task or abandoned task (2)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Eager, or at least co-operative at first (0)
CL Item
Somewhat reluctant at first but no further complaints when started (1)
CL Item
Strong initial resistance or continued to complain throughout the task (2)
CL Item
Strong continued resistance or complete avoidance of the task (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Yes (0)
CL Item
Effort to get things right, but occasional lapses (1)
CL Item
Showed little attention to detail (2)
CL Item
No attention to detail at all, task unfinished or sloppily done (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No mistakes (0)
CL Item
Understood the task but made 1 or 2 unnecessary mistakes (1)
CL Item
Failed to pay close attention resulting in repeated careless mistakes (2)
CL Item
Was so careless that the task could not be completed or had to be done again (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Listened and understood the instructions (0)
CL Item
Did not seem to listen but showed by actions that he/she had heard the instructions and understood (1)
CL Item
Did not seem to listen and showed by actions that he/she had only partly understood the instructions (2)
CL Item
Showed a marked lack of attention to and clearly misunderstood instructions (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Followed all instructions completely (0)
CL Item
Followed the most important instructions but failed to follow others (1)
CL Item
Failed to follow most instructions including the most important ones (2)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Completed the task (0)
CL Item
Completed most of task but left unfinished (1)
CL Item
Gave up very quickly or had to be forced to complete task (2)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Not at all distracted (0)
CL Item
Temporarily distracted but returned to task of their own accord (1)
CL Item
Had to be told to return to task or abandoned task (2)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Collects everything needed before starting a task (0)
CL Item
Frequently has to get things after a task has been started (1)
CL Item
Never thinks beforehand about what is needed for the task (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never loses things (0)
CL Item
Loses things occasionally but does not make a habit of it (1)
CL Item
Loses things frequently, materials scattered or carelessly handled (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never or rarely forgetful (0)
CL Item
Forgetful occasionally but does not make a habit of it (1)
CL Item
Forgets things frequently (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No problem perceived, no parental concern (0)
CL Item
Minor problem perceived, slight/intermittent concern (1)
CL Item
Serious problem perceived, much/constant concern (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Not relevant (88)
CL Item
Unknown (99)
CL Item
Not Applicable (NA)
CL Item
Can almost always control behaviour/ can modify on most occasions (0)
CL Item
Sometimes has control over behaviour/ can often modify or stop (1)
CL Item
No control over behaviour/ cannot modify or stop (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No impairment (0)
CL Item
Impaired at times or minor impairment (1)
CL Item
Serious impairment (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Normal (0)
CL Item
Mildly abnormal (1)
CL Item
Markedly abnormal (2)
CL Item
Severely abnormal (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - mother's coping with activity level/inattentiveness
text
Code List
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - mother's coping with activity level/inattentiveness
CL Item
Highly efficient, problems always or nearly always anticipated and avoided (0)
CL Item
Efficient, proven plans in place even though they may not work every time (1)
CL Item
Problems are not avoided but ineffective strategies have been replaced with more effective (2)
CL Item
Ineffective strategies only, but do not aggravate the problem (3)
CL Item
Lack of response to a problem (e.g. uninvolved), but not making it worse (4)
CL Item
Parental actions are making the problem worse or adding new problem (5)
CL Item
Parental actions lead to the problem getting out of hand (6)
CL Item
Parental actions are abusive (7)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - father's coping with activity level/inattentiveness
text
Code List
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - father's coping with activity level/inattentiveness
CL Item
Highly efficient, problems always or nearly always anticipated and avoided (0)
CL Item
Efficient, proven plans in place even though they may not work every time (1)
CL Item
Problems are not avoided but ineffective strategies have been replaced with more effective (2)
CL Item
Ineffective strategies only, but do not aggravate the problem (3)
CL Item
Lack of response to a problem (e.g. uninvolved), but not making it worse (4)
CL Item
Parental actions are making the problem worse or adding new problem (5)
CL Item
Parental actions lead to the problem getting out of hand (6)
CL Item
Parental actions are abusive (7)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - parental consistency activity level/inattentiveness
text
Code List
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - parental consistency activity level/inattentiveness
CL Item
No disagreements (0)
CL Item
Differences of opinion but not of style (1)
CL Item
Differences in behaviour towards child (2)
CL Item
Parents overrule, countermand, or argue openly (3)
CL Item
One parent family (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - school behaviours
text
Code List
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - school behaviours
CL Item
Do not know (0)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - interviewer's abnormality rating
text
Code List
Coping and consistency for hyperactivity, impulsiveness and inattentiveness - interviewer's abnormality rating
CL Item
Normal (0)
CL Item
Mildly abnormal (1)
CL Item
Markedly abnormal (2)
CL Item
Severely abnormal (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No lies (0)
CL Item
Exaggerates or makes up stories (1)
CL Item
Lies but does not persist when challenged (2)
CL Item
Persists in lies when challenged (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never lies or less than once a week (0)
CL Item
On 1 or 2 days (1)
CL Item
On 3 to 6 days (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No stealing (0)
CL Item
Trivial items, trivial amounts of money (1)
CL Item
Valuable family possessions (2)
CL Item
Large sums of money or steals from shops (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Not at all or less than once a month (0)
CL Item
More than once a month but less than once a week (1)
CL Item
Once or twice a week (2)
CL Item
More than twice a week (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No destructive behaviour (0)
CL Item
Destroyed own property only (1)
CL Item
Destroyed siblings' property or mild damage outside home (2)
CL Item
Serious damage (e.g. starts fires) either in or outside home (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No aggressive behaviour (0)
CL Item
Only when threatened or lashes out if provoked (1)
CL Item
Physically aggressive but not intensely (2)
CL Item
Attacks/hurts people, has to be restrained (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - antisocial behaviour outside of home - tried to set fire to something
text
Code List
Disruptive behaviour - antisocial behaviour outside of home - tried to set fire to something
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - antisocial behaviour outside of home - has broken into a building or car
text
Code List
Disruptive behaviour - antisocial behaviour outside of home - has broken into a building or car
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
never (0)
CL Item
occasionally in the last 6 months (1)
CL Item
frequently in the last 6 months (2)
CL Item
present in the last 7-12 months (3)
CL Item
present more than 12 months ago (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - antisocial behaviour outside of home - threatened anyone with a gun
text
Code List
Disruptive behaviour - antisocial behaviour outside of home - threatened anyone with a gun
CL Item
Not completed (0)
CL Item
No (1)
CL Item
Yes (2)
CL Item
under12 (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - antisocial behaviour outside of home - engaged in mugging, extortion, committed robbery
text
Code List
Disruptive behaviour - antisocial behaviour outside of home - engaged in mugging, extortion, committed robbery
CL Item
Not completed (0)
CL Item
No (1)
CL Item
Yes (2)
CL Item
under12 (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - antisocial behaviour outside of home - forced someone into sexual activity
text
Code List
Disruptive behaviour - antisocial behaviour outside of home - forced someone into sexual activity
CL Item
Not completed (0)
CL Item
No (1)
CL Item
Yes (2)
CL Item
under12 (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - antisocial behaviour outside of home - conned anyone to obtain goods, money, favours
text
Code List
Disruptive behaviour - antisocial behaviour outside of home - conned anyone to obtain goods, money, favours
CL Item
Not completed (0)
CL Item
No (1)
CL Item
Yes (2)
CL Item
under12 (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No loss of temper (0)
CL Item
Mild, shouts, waves arms, stamps feet (1)
CL Item
Marked, throws things, kicks objects (2)
CL Item
Severe, breaks things, kicks or hits people (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No rudeness (0)
CL Item
Cheeky, answers back, pulls faces without intensely negative attitude (1)
CL Item
Rude, more disrespectful than cheeky (2)
CL Item
Swears or verbally abuses parent or other adults (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No disobedience (0)
CL Item
Mild, tries to ignore request or stall (1)
CL Item
Marked, refuses (2)
CL Item
Severe, refuses leading to loss of temper or aggression (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of arguments with adults
text
Code List
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of arguments with adults
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of deliberately doing things to annoy people
text
Code List
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of deliberately doing things to annoy people
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of expressing touchiness, irritation or annoyance
text
Code List
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of expressing touchiness, irritation or annoyance
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of expressing anger or resentment
text
Code List
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of expressing anger or resentment
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of expressing spitefulness
text
Code List
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of expressing spitefulness
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of blaming others
text
Code List
Disruptive behaviour - oppositional behaviour PACS section 3.9 - frequency of blaming others
CL Item
Never or less than once a week (0)
CL Item
On one or two days a week (1)
CL Item
On three to six days a week (2)
CL Item
Daily (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No problem perceived, no parental concern (0)
CL Item
Minor problem perceived, slight/intermittent concern (1)
CL Item
Serious problem perceived, much/constant concern (2)
CL Item
Unknown (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Not relevant (88)
CL Item
Unknown (99)
CL Item
Not Applicable (NA)
CL Item
Can almost always control behaviour/ can modify on most occasions (0)
CL Item
Sometimes has control over behaviour/ can often modify or stop (1)
CL Item
No control over behaviour/ cannot modify or stop (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No impairment (0)
CL Item
Impaired at times or minor impairment (1)
CL Item
Serious impairment (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Normal (0)
CL Item
Mildly abnormal (1)
CL Item
Markedly abnormal (2)
CL Item
Severely abnormal (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Highly efficient, problems always or nearly always anticipated and avoided (0)
CL Item
Efficient, proven plans in place even though they may not work every time (1)
CL Item
Problems are not avoided but ineffective strategies have been replaced with more effective (2)
CL Item
Ineffective strategies only, but do not aggravate the problem (3)
CL Item
Lack of response to a problem (e.g. uninvolved), but not making it worse (4)
CL Item
Parental actions are making the problem worse or adding new problem (5)
CL Item
Parental actions lead to the problem getting out of hand (6)
CL Item
Parental actions are abusive (7)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Highly efficient, problems always or nearly always anticipated and avoided (0)
CL Item
Efficient, proven plans in place even though they may not work every time (1)
CL Item
Problems are not avoided but ineffective strategies have been replaced with more effective (2)
CL Item
Ineffective strategies only, but do not aggravate the problem (3)
CL Item
Lack of response to a problem (e.g. uninvolved), but not making it worse (4)
CL Item
Parental actions are making the problem worse or adding new problem (5)
CL Item
Parental actions lead to the problem getting out of hand (6)
CL Item
Parental actions are abusive (7)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No disagreements (0)
CL Item
Differences of opinion but not of style (1)
CL Item
Differences in behaviour towards child (2)
CL Item
Parents overrule, countermand, or argue openly (3)
CL Item
Unknown (5)
CL Item
One parent family (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Do not know (0)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
Normal (0)
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Mildly abnormal (1)
CL Item
Markedly abnormal (2)
CL Item
Severely abnormal (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No tics present with the above frequency (0)
CL Item
Single motor tics only, i.e. affecting 1 or 2 muscle groups only (1)
CL Item
Multiple motor tics, affecting 3 or more muscle groups (2)
CL Item
Vocal tics present, but motor tics are absent or single (3)
CL Item
Multiple motor and vocal tics both present (4)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No tics (0)
CL Item
Less than 12 consecutive months (1)
CL Item
More than a year, though with tic-free periods of >3 months (2)
CL Item
More than a year, with no tic-free periods of >3 months (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No tics (0)
CL Item
Tics have only appeared during stimulant medication (1)
CL Item
At some time tics have been present in the absence of stimulant (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Problems in non-verbal communication - autism spectrum disorders - PACS section 4, age 4
text
Code List
Problems in non-verbal communication - autism spectrum disorders - PACS section 4, age 4
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None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Problems in non-verbal communication - autism spectrum disorders - PACS section 4, now
text
Code List
Problems in non-verbal communication - autism spectrum disorders - PACS section 4, now
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Lack of sharing of enjoyments/interests - autism spectrum disorders - PACS section 4, age 4
text
Code List
Lack of sharing of enjoyments/interests - autism spectrum disorders - PACS section 4, age 4
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Lack of sharing of enjoyments/interests - autism spectrum disorders - PACS section 4, now
text
Code List
Lack of sharing of enjoyments/interests - autism spectrum disorders - PACS section 4, now
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Problems in reciprocity of communication - autism spectrum disorders - PACS section 4, age 4
text
Code List
Problems in reciprocity of communication - autism spectrum disorders - PACS section 4, age 4
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Problems in reciprocity of communication - autism spectrum disorders - PACS section 4, now
text
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Problems in reciprocity of communication - autism spectrum disorders - PACS section 4, now
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None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Restricted and preoccupying interests - autism spectrum disorders - PACS section 4, age 4
text
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Restricted and preoccupying interests - autism spectrum disorders - PACS section 4, age 4
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None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Restricted and preoccupying interests - autism spectrum disorders - PACS section 4, now
text
Code List
Restricted and preoccupying interests - autism spectrum disorders - PACS section 4, now
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Problem before the age of 3 in social interaction, social language or imaginative play - autism spectrum disorders section 4, age 4
text
Code List
Problem before the age of 3 in social interaction, social language or imaginative play - autism spectrum disorders section 4, age 4
CL Item
No (0)
CL Item
Yes (1)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Attachment disorders: Ever been significantly neglected, physically abused or sexually molested
text
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Attachment disorders: Ever been significantly neglected, physically abused or sexually molested
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None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Attachment disorders: Other persisting abnormalities of social interaction in the first 5 years: marked withdrawal or lack of responsiveness, or excessively wary or hypervigilant.
text
Code List
Attachment disorders: Other persisting abnormalities of social interaction in the first 5 years: marked withdrawal or lack of responsiveness, or excessively wary or hypervigilant.
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None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
Item
Attachment disorders: At which age would you say he/she behaved in this disinhibited way?
text
Code List
Attachment disorders: At which age would you say he/she behaved in this disinhibited way?
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Not relevant (88)
CL Item
Unknown (99)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
>85 (0)
CL Item
70-84 (1)
CL Item
50-69 (2)
CL Item
<50 (3)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
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Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
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Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
None (0)
CL Item
Possible (1)
CL Item
Definite (2)
CL Item
NA (8)
CL Item
Unknown (9)
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Not Applicable (NA)
CL Item
No (0)
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Prescribed previously (1)
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Prescribed now (2)
CL Item
NA (8)
CL Item
Unknown (9)
CL Item
A great deal of expressed warmth (0)
CL Item
Quite a lot of demonstration of warmth (1)
CL Item
Moderate demonstration of warmth (2)
CL Item
Little or no demonstration of warmth (3)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
A great deal of expressed warmth (0)
CL Item
Quite a lot of demonstration of warmth (1)
CL Item
Moderate demonstration of warmth (2)
CL Item
Little or no demonstration of warmth (3)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No expressed criticism (0)
CL Item
Very little expressed criticism (1)
CL Item
Some expressed criticism (2)
CL Item
Quite a lot of expressed criticism (3)
CL Item
A lot of expressed criticism throughout (4)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
CL Item
No expressed criticism (0)
CL Item
Very little expressed criticism (1)
CL Item
Some expressed criticism (2)
CL Item
Quite a lot of expressed criticism (3)
CL Item
A lot of expressed criticism throughout (4)
CL Item
Not applicable (8)
CL Item
Unknown (9)
CL Item
Not Applicable (NA)
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