ID

44366

Description

ICHOM Depression and Anxiety data collection Version 2.3.2 Revised: August 10th, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Depression and Anxiety, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. This document contains the Annual Patient-Reported Form. It has to be filled in annually. After the first year there is a more comprehensive annual evaluation. Condition: Depression: Major Depressive Disorder | Dysthymia | Depressive Adaptive/Adjustment Disorder | Depressive Disorder - NOS Anxiety: Generalized Anxiety Disorder | Phobic Disorder | Agoraphobia | Post-Traumatic Stress Disorder | Panic Disorder | Obsessive-Compulsive Disorder Treatment Approaches : Psychopharmacotherapy | Psychotherapy | Lifestyle Interventions | Self-Guided Help | Other Forms of Therapy Collecting Clinician and Patient-Reported Outcome Measures: PHQ-9 (Patient Health Questionnaire). https://www.phqscreeners.com/ Pfizer: All PHQ, GAD-7 screeners and translations are downloadable from this website and no permission is required to reproduce, translate, display or distribute them. GAD-7 (Generalized Anxiety Disorder). https://www.phqscreeners.com/ Pfizer: All PHQ, GAD-7 screeners and translations are downloadable from this website and no permission is required to reproduce, translate, display or distribute them. Pfizer owner, authors: Drs. Spitzer, Williams and Kroenke SPIN (Social Phobia Inventory ), MIA (Mobility Inventory for Agoraphobia), IES-R (Impact of Event Scale - Revised for Post-traumatic Stress Disorder), PDSS-SR (Panic Disorder Severity Scale), OCI-R (Obsessive-Compulsive Inventory). As permission for use has to be obtained for all of these questionnaires from the copyright holder, only the total score will be included in this version of the standard set. WHODAS 2.0 (World Health Organization Disability Assessment Schedule 2.0). As there is a license needed for use of this questionnaire, only the total score will be included in this version oft he standard set. MOS-SSS (Medical Outcomes Study: Social Support Survey). There is no license or permission needed for use. https://www.rand.org/health-care/surveys_tools/mos/social-support.html ICHOM's Standard set was supported by the Douglas Institut universitaire en santé mentale and mental health university institute, Charité Universitätsmedizin Berlin, Stichting benchmark GGC. Publication: Obbarius A, van Maasakkers L, Baer L, et al. Standardization of health outcomes assessment for depression and anxiety: recommendations from the ICHOM Depression and Anxiety Working Group. Qual Life Res. 2017;26(12):3211–3225. doi:10.1007/s11136-017-1659-5 For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Lien

http://www.ichom.org/

Mots-clés

Versions (4)
  1. 17/06/2019 17/06/2019 -
  2. 19/06/2019 19/06/2019 -
  3. 30/04/2020 30/04/2020 - Sarah Riepenhausen
  4. 20/09/2021 20/09/2021 -
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ICHOM

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20 septembre 2021

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Creative Commons BY-NC 4.0
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ICHOM Depression and Anxiety

Anglais

Annual Patient-Reported Form

1 Formulaires  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Patient ID
Description

Definition: Indicate the patient's medical record number Supporting Definition: This number will not be shared with ICHOM. In the case patient-­‐level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-­‐linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution Inclusion Criteria: All patients Timing: On all forms Data Source: Administrative or clinical Type: Numerical Response Options: According to institution

Type de données

text

Alias
UMLS CUI [1]
C2348585
Time Relative to Baseline
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_AT (After treatment); VARIABLEID_AS (After surgery); VARIABLEID_UPDATE (Update at least annually), etc.

Type de données

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Demographic factors
Description

Demographic factors

Alias
UMLS CUI-1
C1704791
Which statement best describes your living arrangements?
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C2184149
What is your work status?
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient­‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C0014003
UMLS CUI [1,2]
C0449438
People sometimes look to others for companionship, assistance, or other types of support. How often is each of the following kinds of support available to you if you need it? Someone to share your most private worries and fears with
Description

As Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3829137
UMLS CUI [2]
C3827363
Someone to turn to for suggestions about how to deal with a personal problem
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3829137
UMLS CUI [2]
C3827984
Someone to do something enjoyable with
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3829137
UMLS CUI [2]
C4034911
Someone to love and make you feel wanted
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3829137
UMLS CUI [2,1]
C0027361
UMLS CUI [2,2]
C0024028
Health status
Description

Health status

Alias
UMLS CUI-1
C0018759
Have you been told by a doctor that you have any of the following? 0 = I have no other diseases
Description

Supporting Definition: Based upon the Self­‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C2359476
Have you been told by a doctor that you have any of the following? 1 = Heart disease (for example angina, heart attack or heart failure)
Description

Supporting Definition: Based upon the Self-­administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0018799
UMLS CUI [3]
C0018801
UMLS CUI [4]
C0002962
UMLS CUI [5]
C0027051
Have you been told by a doctor that you have any of the following? 2 = High blood pressure
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0020538
Have you been told by a doctor that you have any of the following? 3 = Leg pain when walking due to poor circulation
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C1306889
Have you been told by a doctor that you have any of the following? 4 = Lung disease (For example asthma, chronic bronchitis, or emphysema)
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0024115
UMLS CUI [3]
C0004096
UMLS CUI [4]
C0008677
UMLS CUI [5]
C0034067
Have you been told by a doctor that you have any of the following? 5 = Diabetes
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0011849
Have you been told by a doctor that you have any of the following? 6 = Kidney disease
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0022658
Have you been told by a doctor that you have any of the following? 7 = Liver disease
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0023895
Have you been told by a doctor that you have any of the following? 8 = Problems caused by stroke
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2,1]
C0038454
UMLS CUI [2,2]
C0678227
UMLS CUI [2,3]
C1546466
Have you been told by a doctor that you have any of the following? 9 = Disease of the nervous system (For example Parkinson’s disease or Multiple Sclerosis)
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0027765
UMLS CUI [3]
C0030567
UMLS CUI [4]
C0026769
Have you been told by a doctor that you have any of the following? 10 = Cancer (within the last 5 years)
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0006826
Have you been told by a doctor that you have any of the following? 11 = Depression
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0011581
Have you been told by a doctor that you have any of the following? 12 = Arthritis
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0003864
Have you been told by a doctor that you have any of the following? 13 = Substance abuse (For example alcohol or drugs)
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0038586
UMLS CUI [3]
C0013146
UMLS CUI [4]
C0001975
Have you been told by a doctor that you have any of the following? 14 = Somatoform disorder (unexplained medical symptoms)
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2,1]
C0037650
UMLS CUI [2,2]
C3839861
Have you been told by a doctor that you have any of the following? 15 = Personality disorder
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0031212
Have you been told by a doctor that you have any of the following? 16 = Chronic pain disorder
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C1298685
Have you been told by a doctor that you have any of the following? 17 = Schizophrenic disorder
Description

Supporting Definition: Based upon the Self‐administered Comorbidity Questionnaire (Sangha et al, 2003) Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Multiple answer Separate multiple entries with ";"

Type de données

boolean

Alias
UMLS CUI [1]
C0009488
UMLS CUI [2]
C0036341
Prior Treatment
Description

Prior Treatment

Alias
UMLS CUI-1
C1514463
During the last year, did you receive any of the following treatments for [specific condition]? Medication
Description

Supporting Definition: Specific conditions include: Depression Generalized anxiety disorder Social phobia Agoraphobia Post-­traumatic stress disorder Panic disorder Obsessive-­compulsive disorder Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient­‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C1514463
UMLS CUI [1,2]
C0013227
Psychotherapy
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C1514463
UMLS CUI [1,2]
C0033968
Other
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C1514463
UMLS CUI [1,2]
C0205394
Did you take your medication as prescribed over the last year?
Description

Inclusion Criteria: All patients If answered 'yes' to taking medication (TXMED) Timing: Annually Reporting Source: Patient­‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C1321605
UMLS CUI [1,2]
C0013216
Symptom Burden
Description

Symptom Burden

Alias
UMLS CUI-1
C1457887
UMLS CUI-2
C2828008
Over the last 2 weeks, how often have you been bothered by any of the following problems? 1: Little interest or pleasure in doing things
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2,1]
C2984078
UMLS CUI [2,2]
C0543488
UMLS CUI [3,1]
C0679105
UMLS CUI [3,2]
C3668946
2: Feeling down, depressed, or hopeless
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C2924103
3: Trouble falling or staying asleep, or sleeping too much
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0150079
4: Feeling tired or having little energy
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0849970
UMLS CUI [3]
C0015672
5: Poor appetite or overeating
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0003621
6: Feeling bad about yourself — or that you are a failure or have let yourself or your family down
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0854366
7: Trouble concentrating on things, such as reading the newspaper or watching television
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0424099
8: Moving or speaking so slowly that other people could have noticed? Or the opposite — being so fidgety or restless that you have been moving around a lot more than usual
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0424114
UMLS CUI [3]
C0237280
9: Thoughts that you would be better off dead or of hurting yourself in some way
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2]
C0178360
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
Description

Inclusion Criteria: All patients Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C4083201
UMLS CUI [2,1]
C0001288
UMLS CUI [2,2]
C0033213
Over the last 2 weeks, how often have you been bothered by the following problems? 1: Feeling nervous, anxious, or on edge
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C0849963
UMLS CUI [3]
C0003467
2: Not being able to stop or control worrying
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2,1]
C1298908
UMLS CUI [2,2]
C0243148
UMLS CUI [2,3]
C0233481
3: Worrying too much about different things
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C0233481
4: Trouble relaxing
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3827766
5: Being so restless that it’s hard to sit still
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3887611
6: Becoming easily annoyed or irritable
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3831378
7: Feeling afraid as if something awful might happen
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2]
C3830159
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
Description

Inclusion Criteria: Patients with generalized anxiety disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient‐reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3641330
UMLS CUI [2,1]
C0001288
UMLS CUI [2,2]
C0033213
Questionnaire SPIN, total score
Description

As permission has to be obtained, the actual 17 questions of the SPIN questionnaire are not included in this version of the standard set. The ICHOM ID's are SPIN_Q01 to SPIN_Q17 Inclusion Criteria: Patients with social phobia Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C2919383
UMLS CUI [1,2]
C2964552
Questionnaire MI, total score
Description

As permission has to be obtained, the actual 4 questions of the MI questionnaire are not included in this version of the standard set. The ICHOM ID's are MI_Q01, MI_Q01HIGH, MI_Q01OTHER, MI_Q02, MI_Q03a, MI_Q03b, MI_Q04a, MI_Q04b Supporting Definition: Each item corresponds to a separate VaraibleID. Inclusion Criteria: Patients with agoraphobia Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C3472508
UMLS CUI [1,2]
C2964552
Questionnaire IESR, total score
Description

As permission has to be obtained, the actual 22 questions of the IESR questionnaire are not included in this version of the standard set. The ICHOM ID's are IESR_Q01 to IESR_Q22 Inclusion Criteria: Patients with post-traumatic stress disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C0034394
UMLS CUI [1,2]
C0038436
UMLS CUI [1,3]
C2964552
Questionnaire PDSSSR, total score
Description

As permission has to be obtained, the actual 7 questions of the PDSSSR questionnaire are not included in this version of the standard set. The ICHOM ID's are PDSSSR_Q01 to PDSSSR_Q07 Inclusion Criteria: Patients with panic disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3472191
Questionnaire OCI, total score
Description

As permission has to be obtained, the actual 42 questions of the OCI questionnaire are not included in this version of the standard set. The ICHOM ID's are OCI_Q01 to OCI_Q42 Inclusion Criteria: Patients with obsessive-compulsive disorder Timing: Baseline, Ongoing, Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C3472189
Functioning
Description

Functioning

Questionnaire WHODAS 2.0, total score
Description

As license is needed for use of this questionnaire, the actual 12 questions of the WHODAS 2.0 questionnaire are not included in this version of the standard set. The ICHOM ID's are WHODAS_Q01 to WHODAS_Q12 Inclusion criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C4321496
UMLS CUI [1,2]
C2964552
Compared with how you were doing one year ago, would you say that now you are ______?
Description

Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C0450973
Recovery Speed and Health Sustainability
Description

Recovery Speed and Health Sustainability

Alias
UMLS CUI-1
C2004454
UMLS CUI-2
C0018759
How many working days have you missed within the last month due to illness?
Description

Inclusion Criteria: All patients Timing: Baseline, Annually Reporting Source: Patient-­reported Type: Numerical value Response Options: Numerical value of number of days

Type de données

integer

Unités de mesure
  • days
Alias
UMLS CUI [1,1]
C0012634
UMLS CUI [1,2]
C0439849
UMLS CUI [1,3]
C0000849
days
Has the treatment of your depression or anxiety over the last year been successful?
Description

Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C0679864
Have you experienced any episodes of depression within the last year?
Description

Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1,1]
C0011581
UMLS CUI [1,2]
C0034897
If you are currently undergoing therapy, how successful do you think your current therapy will be in reducing your symptoms in the future?
Description

Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C1547647
Other
Description

Other

Alias
UMLS CUI-1
C0205394
Did you experience any side-effects from the medication over the last year?
Description

Inclusion Criteria: All patients Timing: Annually Reporting Source: Patient-­reported Type: Single answer

Type de données

integer

Alias
UMLS CUI [1]
C0392325
If yes, please indicate which side-effects you experienced over the last year 1 = Weight gain
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0043094
If yes, please indicate which side-effects you experienced over the last year 2 = Sexual dysfunction
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0549622
If yes, please indicate which side-effects you experienced over the last year 3 = Sleep disturbances
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0037317
If yes, please indicate which side-effects you experienced over the last year 4 = Dry mouth
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0043352
If yes, please indicate which side-effects you experienced over the last year 5 = Drowsiness/sedation
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0013144
UMLS CUI [3]
C3179159
If yes, please indicate which side-effects you experienced over the last year 6 = Cardiovascular side‐effects (For example palpitations)
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0007226
UMLS CUI [3]
C0030252
If yes, please indicate which side-effects you experienced over the last year 7 = Gastrointestinal side­‐effects (For example diarrhea, nausea, vomiting)
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0012240
UMLS CUI [3]
C0011991
UMLS CUI [4]
C0027497
UMLS CUI [5]
C0042963
If yes, please indicate which side-effects you experienced over the last year 888 = Other (indicate what kind of side-effect)
Description

Inclusion Criteria: All patients If answered 'yes' on medication side-­effects (MEDSE_Q01ANN) Timing: Annually Reporting Source: Patient-­reported Type: Multiple answer Select all that apply In the case that more than one side­‐effect is selected, split each response with a ‘;’

Type de données

boolean

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0392325
UMLS CUI [2]
C0205394
Please indicate the side-effect you have experienced over the last year
Description

Inclusion Criteria: All patients If answered 'Other' on type of medication side-­effects (MEDSE_Q02ANN888) Timing: Annually Reporting Source: Patient‐reported Type: Free text Response Options: Medication side-­effect

Type de données

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0392325
Retour au début de la page

Similar models

Annual Patient-Reported Form

1 Formulaires
Name
Type
Description | Question | Decode (Coded Value)
Type de données
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Patient ID
text
C2348585 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Demographic factors
C1704791 (UMLS CUI-1)
Item
Which statement best describes your living arrangements?
integer
C2184149 (UMLS CUI [1])
Living status
Code List
Which statement best describes your living arrangements?
CL Item
I live with partner/spouse/family/friends (1)
C1443355 (UMLS CUI-1)
C2184147 (UMLS CUI-2)
C0557130 (UMLS CUI-3)
C0557128 (UMLS CUI-4)
(Comment:en)
CL Item
I live alone (2)
C0439044 (UMLS CUI-1)
(Comment:en)
CL Item
I live in a nursing home, hospital or other long term care home (3)
C0425205 (UMLS CUI-1)
C0557218 (UMLS CUI-2)
C3640869 (UMLS CUI-3)
(Comment:en)
CL Item
Other (888)
C0205394 (UMLS CUI-1)
(Comment:en)
Item
What is your work status?
integer
C0014003 (UMLS CUI [1,1])
C0449438 (UMLS CUI [1,2])
Work status
Code List
What is your work status?
CL Item
Unable to work due to a condition other than depression or anxiety (0)
C0849751 (UMLS CUI-1)
C0332300 (UMLS CUI-2)
C0003467 (UMLS CUI-3)
C0011581 (UMLS CUI-4)
(Comment:en)
CL Item
Unable to work due to depression or anxiety (1)
C0849751 (UMLS CUI-1)
C0003467 (UMLS CUI-2)
C0011581 (UMLS CUI-3)
(Comment:en)
CL Item
Not working by choice (student, retired, homemaker) (2)
C0439656 (UMLS CUI-1)
C0041674 (UMLS CUI-2)
C0038492 (UMLS CUI-3)
C0035345 (UMLS CUI-4)
C0555052 (UMLS CUI-5)
(Comment:en)
CL Item
Seeking employment (I consider myself able to work but cannot find a job) (3)
C0041674 (UMLS CUI-1)
C2984044 (UMLS CUI-2)
(Comment:en)
CL Item
Working part‐time (4)
C0682294 (UMLS CUI-1)
(Comment:en)
CL Item
Working full­‐time (5)
C0682295 (UMLS CUI-1)
(Comment:en)
Item
People sometimes look to others for companionship, assistance, or other types of support. How often is each of the following kinds of support available to you if you need it? Someone to share your most private worries and fears with
integer
C3829137 (UMLS CUI [1])
C3827363 (UMLS CUI [2])
Question 1 of MOSSSS
Code List
People sometimes look to others for companionship, assistance, or other types of support. How often is each of the following kinds of support available to you if you need it? Someone to share your most private worries and fears with
CL Item
None of the time (0)
C3812882 (UMLS CUI-1)
(Comment:en)
CL Item
A little of the time (1)
C3831570 (UMLS CUI-1)
(Comment:en)
CL Item
Some of the time (2)
C3827992 (UMLS CUI-1)
(Comment:en)
CL Item
Most of the time (3)
C3828954 (UMLS CUI-1)
(Comment:en)
CL Item
All of the time (4)
C3812891 (UMLS CUI-1)
(Comment:en)
Item
Someone to turn to for suggestions about how to deal with a personal problem
integer
C3829137 (UMLS CUI [1])
C3827984 (UMLS CUI [2])
Question 1 of MOSSSS
Code List
Someone to turn to for suggestions about how to deal with a personal problem
CL Item
None of the time (0)
C3812882 (UMLS CUI-1)
(Comment:en)
CL Item
A little of the time (1)
C3831570 (UMLS CUI-1)
(Comment:en)
CL Item
Some of the time (2)
C3827992 (UMLS CUI-1)
(Comment:en)
CL Item
Most of the time (3)
C3828954 (UMLS CUI-1)
(Comment:en)
CL Item
All of the time (4)
C3812891 (UMLS CUI-1)
(Comment:en)
Item
Someone to do something enjoyable with
integer
C3829137 (UMLS CUI [1])
C4034911 (UMLS CUI [2])
Question 1 of MOSSSS
Code List
Someone to do something enjoyable with
CL Item
None of the time (0)
C3812882 (UMLS CUI-1)
(Comment:en)
CL Item
A little of the time (1)
C3831570 (UMLS CUI-1)
(Comment:en)
CL Item
Some of the time (2)
C3827992 (UMLS CUI-1)
(Comment:en)
CL Item
Most of the time (3)
C3828954 (UMLS CUI-1)
(Comment:en)
CL Item
All of the time (4)
C3812891 (UMLS CUI-1)
(Comment:en)
Item
Someone to love and make you feel wanted
integer
C3829137 (UMLS CUI [1])
C0027361 (UMLS CUI [2,1])
C0024028 (UMLS CUI [2,2])
Question 1 of MOSSSS
Code List
Someone to love and make you feel wanted
CL Item
None of the time (0)
C3812882 (UMLS CUI-1)
(Comment:en)
CL Item
A little of the time (1)
C3831570 (UMLS CUI-1)
(Comment:en)
CL Item
Some of the time (2)
C3827992 (UMLS CUI-1)
(Comment:en)
CL Item
Most of the time (3)
C3828954 (UMLS CUI-1)
(Comment:en)
CL Item
All of the time (4)
C3812891 (UMLS CUI-1)
(Comment:en)
Item Group
Health status
C0018759 (UMLS CUI-1)
Comorbidities: No other diseases
Item
Have you been told by a doctor that you have any of the following? 0 = I have no other diseases
boolean
C0009488 (UMLS CUI [1])
C1298908 (UMLS CUI [2,1])
C2359476 (UMLS CUI [2,2])
Comorbidities: Heart disease
Item
Have you been told by a doctor that you have any of the following? 1 = Heart disease (for example angina, heart attack or heart failure)
boolean
C0009488 (UMLS CUI [1])
C0018799 (UMLS CUI [2])
C0018801 (UMLS CUI [3])
C0002962 (UMLS CUI [4])
C0027051 (UMLS CUI [5])
Comorbidities: High blood pressure
Item
Have you been told by a doctor that you have any of the following? 2 = High blood pressure
boolean
C0009488 (UMLS CUI [1])
C0020538 (UMLS CUI [2])
Comorbidities: Leg pain
Item
Have you been told by a doctor that you have any of the following? 3 = Leg pain when walking due to poor circulation
boolean
C0009488 (UMLS CUI [1])
C1306889 (UMLS CUI [2])
Comorbidities: Lung disease
Item
Have you been told by a doctor that you have any of the following? 4 = Lung disease (For example asthma, chronic bronchitis, or emphysema)
boolean
C0009488 (UMLS CUI [1])
C0024115 (UMLS CUI [2])
C0004096 (UMLS CUI [3])
C0008677 (UMLS CUI [4])
C0034067 (UMLS CUI [5])
Comorbidities: Diabetes
Item
Have you been told by a doctor that you have any of the following? 5 = Diabetes
boolean
C0009488 (UMLS CUI [1])
C0011849 (UMLS CUI [2])
Comorbidities: Kidney disease
Item
Have you been told by a doctor that you have any of the following? 6 = Kidney disease
boolean
C0009488 (UMLS CUI [1])
C0022658 (UMLS CUI [2])
Comorbidities: Liver disease
Item
Have you been told by a doctor that you have any of the following? 7 = Liver disease
boolean
C0009488 (UMLS CUI [1])
C0023895 (UMLS CUI [2])
Comorbidities: Problems caused by stroke
Item
Have you been told by a doctor that you have any of the following? 8 = Problems caused by stroke
boolean
C0009488 (UMLS CUI [1])
C0038454 (UMLS CUI [2,1])
C0678227 (UMLS CUI [2,2])
C1546466 (UMLS CUI [2,3])
Comorbidities: Disease of the nervous system
Item
Have you been told by a doctor that you have any of the following? 9 = Disease of the nervous system (For example Parkinson’s disease or Multiple Sclerosis)
boolean
C0009488 (UMLS CUI [1])
C0027765 (UMLS CUI [2])
C0030567 (UMLS CUI [3])
C0026769 (UMLS CUI [4])
Comorbidities: Cancer
Item
Have you been told by a doctor that you have any of the following? 10 = Cancer (within the last 5 years)
boolean
C0009488 (UMLS CUI [1])
C0006826 (UMLS CUI [2])
Comorbidities: Depression
Item
Have you been told by a doctor that you have any of the following? 11 = Depression
boolean
C0009488 (UMLS CUI [1])
C0011581 (UMLS CUI [2])
Comorbidities: Arthritis
Item
Have you been told by a doctor that you have any of the following? 12 = Arthritis
boolean
C0009488 (UMLS CUI [1])
C0003864 (UMLS CUI [2])
Comorbidities: Substance abuse
Item
Have you been told by a doctor that you have any of the following? 13 = Substance abuse (For example alcohol or drugs)
boolean
C0009488 (UMLS CUI [1])
C0038586 (UMLS CUI [2])
C0013146 (UMLS CUI [3])
C0001975 (UMLS CUI [4])
Comorbidities: Somatoform disorder
Item
Have you been told by a doctor that you have any of the following? 14 = Somatoform disorder (unexplained medical symptoms)
boolean
C0009488 (UMLS CUI [1])
C0037650 (UMLS CUI [2,1])
C3839861 (UMLS CUI [2,2])
Comorbidities: Personality disorder
Item
Have you been told by a doctor that you have any of the following? 15 = Personality disorder
boolean
C0009488 (UMLS CUI [1])
C0031212 (UMLS CUI [2])
Comorbidities: Chronic pain disorder
Item
Have you been told by a doctor that you have any of the following? 16 = Chronic pain disorder
boolean
C0009488 (UMLS CUI [1])
C1298685 (UMLS CUI [2])
Comorbidities: Schizophrenic disorder
Item
Have you been told by a doctor that you have any of the following? 17 = Schizophrenic disorder
boolean
C0009488 (UMLS CUI [1])
C0036341 (UMLS CUI [2])
Item Group
Prior Treatment
C1514463 (UMLS CUI-1)
Item
During the last year, did you receive any of the following treatments for [specific condition]? Medication
integer
C1514463 (UMLS CUI [1,1])
C0013227 (UMLS CUI [1,2])
Prior treatments: Medication
Code List
During the last year, did you receive any of the following treatments for [specific condition]? Medication
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes, 1-­3 months (1)
C0205172 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
C0439092 (UMLS CUI-4)
C0205449 (UMLS CUI-5)
C0439231 (UMLS CUI-6)
(Comment:en)
CL Item
Yes, 3-­6 months (2)
C0205172 (UMLS CUI-1)
C0205449 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
C0439092 (UMLS CUI-4)
C0205452 (UMLS CUI-5)
C0439231 (UMLS CUI-6)
(Comment:en)
CL Item
Yes, more than 6 months (3)
C0205172 (UMLS CUI-1)
C0205452 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
(Comment:en)
Item
Psychotherapy
integer
C1514463 (UMLS CUI [1,1])
C0033968 (UMLS CUI [1,2])
Prior treatments: Medication
Code List
Psychotherapy
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes, 1-­3 months (1)
C0205172 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
C0439092 (UMLS CUI-4)
C0205449 (UMLS CUI-5)
C0439231 (UMLS CUI-6)
(Comment:en)
CL Item
Yes, 3-­6 months (2)
C0205172 (UMLS CUI-1)
C0205449 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
C0439092 (UMLS CUI-4)
C0205452 (UMLS CUI-5)
C0439231 (UMLS CUI-6)
(Comment:en)
CL Item
Yes, more than 6 months (3)
C0205172 (UMLS CUI-1)
C0205452 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
(Comment:en)
Item
Other
integer
C1514463 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Prior treatments: Medication
Code List
Other
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes, 1-­3 months (1)
C0205172 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
C0439092 (UMLS CUI-4)
C0205449 (UMLS CUI-5)
C0439231 (UMLS CUI-6)
(Comment:en)
CL Item
Yes, 3-­6 months (2)
C0205172 (UMLS CUI-1)
C0205449 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
C0439092 (UMLS CUI-4)
C0205452 (UMLS CUI-5)
C0439231 (UMLS CUI-6)
(Comment:en)
CL Item
Yes, more than 6 months (3)
C0205172 (UMLS CUI-1)
C0205452 (UMLS CUI-2)
C0439231 (UMLS CUI-3)
(Comment:en)
Item
Did you take your medication as prescribed over the last year?
integer
C1321605 (UMLS CUI [1,1])
C0013216 (UMLS CUI [1,2])
Adherence to medication
Code List
Did you take your medication as prescribed over the last year?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Mostly (1)
C0750554 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
(Comment:en)
Item Group
Symptom Burden
C1457887 (UMLS CUI-1)
C2828008 (UMLS CUI-2)
Item
Over the last 2 weeks, how often have you been bothered by any of the following problems? 1: Little interest or pleasure in doing things
integer
C4083201 (UMLS CUI [1])
C2984078 (UMLS CUI [2,1])
C0543488 (UMLS CUI [2,2])
C0679105 (UMLS CUI [3,1])
C3668946 (UMLS CUI [3,2])
Question 1 of PHQ9
Code List
Over the last 2 weeks, how often have you been bothered by any of the following problems? 1: Little interest or pleasure in doing things
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
2: Feeling down, depressed, or hopeless
integer
C4083201 (UMLS CUI [1])
C2924103 (UMLS CUI [2])
Question 1 of PHQ9
Code List
2: Feeling down, depressed, or hopeless
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
3: Trouble falling or staying asleep, or sleeping too much
integer
C4083201 (UMLS CUI [1])
C0150079 (UMLS CUI [2])
Question 1 of PHQ9
Code List
3: Trouble falling or staying asleep, or sleeping too much
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
4: Feeling tired or having little energy
integer
C4083201 (UMLS CUI [1])
C0849970 (UMLS CUI [2])
C0015672 (UMLS CUI [3])
Question 1 of PHQ9
Code List
4: Feeling tired or having little energy
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
5: Poor appetite or overeating
integer
C4083201 (UMLS CUI [1])
C0003621 (UMLS CUI [2])
Question 1 of PHQ9
Code List
5: Poor appetite or overeating
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
6: Feeling bad about yourself — or that you are a failure or have let yourself or your family down
integer
C4083201 (UMLS CUI [1])
C0854366 (UMLS CUI [2])
Question 1 of PHQ9
Code List
6: Feeling bad about yourself — or that you are a failure or have let yourself or your family down
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
7: Trouble concentrating on things, such as reading the newspaper or watching television
integer
C4083201 (UMLS CUI [1])
C0424099 (UMLS CUI [2])
Question 1 of PHQ9
Code List
7: Trouble concentrating on things, such as reading the newspaper or watching television
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
8: Moving or speaking so slowly that other people could have noticed? Or the opposite — being so fidgety or restless that you have been moving around a lot more than usual
integer
C4083201 (UMLS CUI [1])
C0424114 (UMLS CUI [2])
C0237280 (UMLS CUI [3])
Question 1 of PHQ9
Code List
8: Moving or speaking so slowly that other people could have noticed? Or the opposite — being so fidgety or restless that you have been moving around a lot more than usual
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
9: Thoughts that you would be better off dead or of hurting yourself in some way
integer
C4083201 (UMLS CUI [1])
C0178360 (UMLS CUI [2])
Question 1 of PHQ9
Code List
9: Thoughts that you would be better off dead or of hurting yourself in some way
CL Item
Not at all (0)
C2984077 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
More than half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
integer
C4083201 (UMLS CUI [1])
C0001288 (UMLS CUI [2,1])
C0033213 (UMLS CUI [2,2])
Question 1 of PHQ9
Code List
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
CL Item
Not difficult at all (0)
C2984077 (UMLS CUI-1)
C0332218 (UMLS CUI-2)
(Comment:en)
CL Item
Somewhat difficult (1)
C3843068 (UMLS CUI-1)
(Comment:en)
CL Item
Very difficult (2)
C3843353 (UMLS CUI-1)
(Comment:en)
CL Item
Extremely difficult (3)
C3843354 (UMLS CUI-2)
(Comment:en)
Item
Over the last 2 weeks, how often have you been bothered by the following problems? 1: Feeling nervous, anxious, or on edge
integer
C3641330 (UMLS CUI [1])
C0849963 (UMLS CUI [2])
C0003467 (UMLS CUI [3])
Question 1 of GAD7
Code List
Over the last 2 weeks, how often have you been bothered by the following problems? 1: Feeling nervous, anxious, or on edge
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
2: Not being able to stop or control worrying
integer
C3641330 (UMLS CUI [1])
C1298908 (UMLS CUI [2,1])
C0243148 (UMLS CUI [2,2])
C0233481 (UMLS CUI [2,3])
Question 1 of GAD7
Code List
2: Not being able to stop or control worrying
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
3: Worrying too much about different things
integer
C3641330 (UMLS CUI [1])
C0233481 (UMLS CUI [2])
Question 1 of GAD7
Code List
3: Worrying too much about different things
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
4: Trouble relaxing
integer
C3641330 (UMLS CUI [1])
C3827766 (UMLS CUI [2])
Question 1 of GAD7
Code List
4: Trouble relaxing
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
5: Being so restless that it’s hard to sit still
integer
C3641330 (UMLS CUI [1])
C3887611 (UMLS CUI [2])
Question 1 of GAD7
Code List
5: Being so restless that it’s hard to sit still
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
6: Becoming easily annoyed or irritable
integer
C3641330 (UMLS CUI [1])
C3831378 (UMLS CUI [2])
Question 1 of GAD7
Code List
6: Becoming easily annoyed or irritable
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
7: Feeling afraid as if something awful might happen
integer
C3641330 (UMLS CUI [1])
C3830159 (UMLS CUI [2])
Question 1 of GAD7
Code List
7: Feeling afraid as if something awful might happen
CL Item
Not at all sure (0)
C3844332 (UMLS CUI-1)
(Comment:en)
CL Item
Several days (1)
C3844034 (UMLS CUI-1)
(Comment:en)
CL Item
Over half the days (2)
C3828960 (UMLS CUI-1)
(Comment:en)
CL Item
Nearly every day (3)
C3845713 (UMLS CUI-1)
(Comment:en)
Item
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
integer
C3641330 (UMLS CUI [1])
C0001288 (UMLS CUI [2,1])
C0033213 (UMLS CUI [2,2])
Question 1 of PHQ9
Code List
If you checked off any problems, how difficult have these problems made it for you to do your work, take care of things at home, or get along with other people?
CL Item
Not difficult at all (0)
C2984077 (UMLS CUI-1)
C0332218 (UMLS CUI-2)
(Comment:en)
CL Item
Somewhat difficult (1)
C3843068 (UMLS CUI-1)
(Comment:en)
CL Item
Very difficult (2)
C3843353 (UMLS CUI-1)
(Comment:en)
CL Item
Extremely difficult (3)
C3843354 (UMLS CUI-2)
(Comment:en)
Questionnaire SPIN, total score
Item
Questionnaire SPIN, total score
integer
C2919383 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Questionnaire MI, total score
Item
Questionnaire MI, total score
integer
C3472508 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Questionnaire IESR, total score
Item
Questionnaire IESR, total score
integer
C0034394 (UMLS CUI [1,1])
C0038436 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,3])
Questionnaire PDSSSR, total score
Item
Questionnaire PDSSSR, total score
integer
C3472191 (UMLS CUI [1])
Questionnaire OCI, total score
Item
Questionnaire OCI, total score
integer
C3472189 (UMLS CUI [1])
Item Group
Functioning
Questionnaire WHODAS 2.0, total score
Item
Questionnaire WHODAS 2.0, total score
integer
C4321496 (UMLS CUI [1,1])
C2964552 (UMLS CUI [1,2])
Item
Compared with how you were doing one year ago, would you say that now you are ______?
integer
C0450973 (UMLS CUI [1])
Global assessment
Code List
Compared with how you were doing one year ago, would you say that now you are ______?
CL Item
Much worse (1)
C3841448 (UMLS CUI-1)
(Comment:en)
CL Item
A little worse (2)
C3843175 (UMLS CUI-1)
(Comment:en)
CL Item
About the same (3)
C0442739 (UMLS CUI-1)
(Comment:en)
CL Item
A little better (4)
C3843173 (UMLS CUI-1)
(Comment:en)
CL Item
Much better (5)
C3841449 (UMLS CUI-1)
(Comment:en)
Item Group
Recovery Speed and Health Sustainability
C2004454 (UMLS CUI-1)
C0018759 (UMLS CUI-2)
Disease-related absenteeism
Item
How many working days have you missed within the last month due to illness?
integer
C0012634 (UMLS CUI [1,1])
C0439849 (UMLS CUI [1,2])
C0000849 (UMLS CUI [1,3])
Item
Has the treatment of your depression or anxiety over the last year been successful?
integer
C0679864 (UMLS CUI [1])
Patient's outcome expectancy
Code List
Has the treatment of your depression or anxiety over the last year been successful?
CL Item
Not at all successful (0)
C2984077 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
CL Item
Somewhat successful (1)
C2984079 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
CL Item
Moderately successful (2)
C4085643 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
CL Item
Very successful (3)
C2984081 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
Item
Have you experienced any episodes of depression within the last year?
integer
C0011581 (UMLS CUI [1,1])
C0034897 (UMLS CUI [1,2])
Recurrence of depression
Code List
Have you experienced any episodes of depression within the last year?
CL Item
I experienced no episodes (0)
C4086638 (UMLS CUI-1)
C1298908 (UMLS CUI-2)
(Comment:en)
CL Item
I had one episode  (1)
C4086638 (UMLS CUI-1)
C0205447 (UMLS CUI-2)
(Comment:en)
CL Item
I had several episodes  (2)
C4086638 (UMLS CUI-1)
C0443302 (UMLS CUI-2)
(Comment:en)
CL Item
My symptoms of depression do not occur in episodes (3)
C0011581 (UMLS CUI-1)
C1457887 (UMLS CUI-2)
C3842885 (UMLS CUI-3)
C2745955 (UMLS CUI-4)
(Comment:en)
Item
If you are currently undergoing therapy, how successful do you think your current therapy will be in reducing your symptoms in the future?
integer
C1547647 (UMLS CUI [1])
Patient's outcome expectancy
Code List
If you are currently undergoing therapy, how successful do you think your current therapy will be in reducing your symptoms in the future?
CL Item
Not at all successful (0)
C2984077 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
CL Item
Somewhat successful (1)
C2984079 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
CL Item
Moderately successful (2)
C4085643 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
CL Item
Very successful (3)
C2984081 (UMLS CUI-1)
C1272703 (UMLS CUI-2)
(Comment:en)
Item Group
Other
C0205394 (UMLS CUI-1)
Item
Did you experience any side-effects from the medication over the last year?
integer
C0392325 (UMLS CUI [1])
Medication side-effects
Code List
Did you experience any side-effects from the medication over the last year?
CL Item
No (0)
C1298908 (UMLS CUI-1)
(Comment:en)
CL Item
Yes (1)
C1705108 (UMLS CUI-1)
(Comment:en)
Type of medication side-effects: Weight gain
Item
If yes, please indicate which side-effects you experienced over the last year 1 = Weight gain
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0043094 (UMLS CUI [2])
Type of medication side-effects: Sexual dysfunction
Item
If yes, please indicate which side-effects you experienced over the last year 2 = Sexual dysfunction
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0549622 (UMLS CUI [2])
Type of medication side-effects: Sleep disturbances
Item
If yes, please indicate which side-effects you experienced over the last year 3 = Sleep disturbances
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0037317 (UMLS CUI [2])
Type of medication side-effects: Dry mouth
Item
If yes, please indicate which side-effects you experienced over the last year 4 = Dry mouth
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0043352 (UMLS CUI [2])
Type of medication side-effects: Drowsiness/sedation
Item
If yes, please indicate which side-effects you experienced over the last year 5 = Drowsiness/sedation
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0013144 (UMLS CUI [2])
C3179159 (UMLS CUI [3])
Type of medication side-effects: Cardiovascular side-­effects
Item
If yes, please indicate which side-effects you experienced over the last year 6 = Cardiovascular side‐effects (For example palpitations)
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0007226 (UMLS CUI [2])
C0030252 (UMLS CUI [3])
Type of medication side-effects: Gastrointestinal side-­effects
Item
If yes, please indicate which side-effects you experienced over the last year 7 = Gastrointestinal side­‐effects (For example diarrhea, nausea, vomiting)
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0012240 (UMLS CUI [2])
C0011991 (UMLS CUI [3])
C0027497 (UMLS CUI [4])
C0042963 (UMLS CUI [5])
Type of medication side-effects: Other
Item
If yes, please indicate which side-effects you experienced over the last year 888 = Other (indicate what kind of side-effect)
boolean
C0332307 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2])
Type of medication side-effect other than those explicitly listed
Item
Please indicate the side-effect you have experienced over the last year
text
C0205394 (UMLS CUI [1,1])
C0392325 (UMLS CUI [1,2])
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