ID
44268
Beskrivning
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the Diagnosis criteria Amyotrophic lateral sclerosis (ALS) form. It has to be filled in if an ALS is diagnosed. Note: If there is a motor neuron disease, fill in the motor neuron disease assessment!
Länk
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Nyckelord
Versioner (2)
- 2020-04-02 2020-04-02 -
- 2021-09-20 2021-09-20 -
Rättsinnehavare
DZNE
Uppladdad den
20 september 2021
DOI
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Licens
Creative Commons BY-NC 4.0
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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
Diagnosis criteria Amyotrophic lateral sclerosis (ALS) (Diagnosekriterien Amyotrophe Lateralsklerose (ALS))
Beskrivning
Amyotrophe Lateralsklerose (ALS)
Alias
- UMLS CUI-1
- C0002736
Beskrivning
Diagnosekriterien und motorische Subtypen, Klassische ALS
Alias
- UMLS CUI-1
- C0332140
- UMLS CUI-2
- C0002736
- UMLS CUI-3
- C0026649
- UMLS CUI-4
- C0449560
Beskrivning
UMN = upper motor neuron LMN = lower motor neuron
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0205329
- UMLS CUI [1,2]
- C0221198
- UMLS CUI [1,3]
- C0524458
- UMLS CUI [2,1]
- C0205329
- UMLS CUI [2,2]
- C0221198
- UMLS CUI [2,3]
- C0524459
Beskrivning
Progressive bulbar palsy
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0030442
Beskrivning
Bulbar upper and lower motor neuron sign
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1856507
- UMLS CUI [1,2]
- C0524458
- UMLS CUI [2,1]
- C1856507
- UMLS CUI [2,2]
- C0524459
Beskrivning
Man-in-the-barrel syndrome
Datatyp
boolean
Alias
- UMLS CUI [1]
- C4522181
Beskrivning
Early lower motor neuron sign cervical
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0524459
- UMLS CUI [1,2]
- C0221198
- UMLS CUI [1,3]
- C0205064
- UMLS CUI [1,4]
- C2363430
Beskrivning
Flail leg syndrome
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0231717
Beskrivning
Early lower motor neuron sign lumbo‐sacral
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0524459
- UMLS CUI [1,2]
- C0221198
- UMLS CUI [1,3]
- C0024090
- UMLS CUI [1,4]
- C2363430
- UMLS CUI [2,1]
- C0524459
- UMLS CUI [2,2]
- C0221198
- UMLS CUI [2,3]
- C0036033
- UMLS CUI [2,4]
- C2363430
Beskrivning
Progressive Muscular Atrophy
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0917981
Beskrivning
Multiple lower motor neuron
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0524459
- UMLS CUI [1,2]
- C0221198
- UMLS CUI [1,3]
- C0439064
Beskrivning
Primary lateral sclerosis
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0154682
- UMLS CUI [1,2]
- C0205225
Beskrivning
Early upper motor neuron lesion
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0749870
- UMLS CUI [1,2]
- C2363430
Beskrivning
Genetic ALS
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0017399
- UMLS CUI [1,2]
- C0002736
Beskrivning
Evidence for ALS mutation in upper and lower motor neuron lesion
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0002736
- UMLS CUI [1,2]
- C0026882
- UMLS CUI [2]
- C0749870
- UMLS CUI [3,1]
- C0221198
- UMLS CUI [3,2]
- C0524459
Beskrivning
ALS Ausschlusskriterien
Alias
- UMLS CUI-1
- C0002736
- UMLS CUI-2
- C0680251
Beskrivning
Diseases similar to ALS (e.g. cervical myelopathy, radiculopathy, multifocal motor neuropathy, multiple Sclerosis)
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0012634
- UMLS CUI [1,2]
- C2348205
- UMLS CUI [1,3]
- C0002736
- UMLS CUI [2,1]
- C0205064
- UMLS CUI [2,2]
- C0005956
- UMLS CUI [3]
- C0700594
- UMLS CUI [4]
- C0393847
- UMLS CUI [5]
- C0026769
Beskrivning
Diagnoseerleichterung
Alias
- UMLS CUI-1
- C0011900
- UMLS CUI-2
- C0002736
- UMLS CUI-3
- C0043232
Beskrivning
Zur Diagnoseerleichterung: Bitte die betroffenen Regionen ankreuzen. UMN = upper motor neuron LMN = lower motor neuron
Datatyp
integer
Alias
- UMLS CUI [1]
- C0026609
Beskrivning
Zur Diagnoseerleichterung: Bitte die betroffenen Regionen ankreuzen.
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0005898
- UMLS CUI [1,2]
- C1947952
Beskrivning
Zur Diagnoseerleichterung: Bitte die betroffenen Regionen ankreuzen.
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0005898
- UMLS CUI [1,2]
- C0205064
Beskrivning
Zur Diagnoseerleichterung: Bitte die betroffenen Regionen ankreuzen.
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0005898
- UMLS CUI [1,2]
- C0817096
Beskrivning
Zur Diagnoseerleichterung: Bitte die betroffenen Regionen ankreuzen.
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0005898
- UMLS CUI [1,2]
- C0450206
Beskrivning
Auftreten der ALS
Alias
- UMLS CUI-1
- C2745955
- UMLS CUI-2
- C0002736
Beskrivning
ALS occurrence: sporadic
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C2745955
- UMLS CUI [1,2]
- C0002736
- UMLS CUI [1,3]
- C0205422
Beskrivning
Wenn gegeben, bitte das Formular Anamnese zur Diagnostik – Genetik und Familienanamnese ausfüllen.
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C2745955
- UMLS CUI [1,2]
- C0002736
- UMLS CUI [1,3]
- C0017399
Beskrivning
Wenn gegeben, bitte Familienanamnese ausfüllen
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C2745955
- UMLS CUI [1,2]
- C0002736
- UMLS CUI [1,3]
- C0015576
Beskrivning
ALSni (not impaired) ohne kognitive Einschränkung
Alias
- UMLS CUI-1
- C0002736
- UMLS CUI-2
- C1298908
- UMLS CUI-3
- C0338656
Beskrivning
ALSci (cognitively impaired)
Alias
- UMLS CUI-1
- C0002736
- UMLS CUI-2
- C0338656
Beskrivning
weiter mit DESCRIBE‐FTD (gemäß den revidierten Strong‐Kriterien von 2017). ECAS = Edinburgh Cognitive and Behavioural ALS Screen.
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0002736
- UMLS CUI [1,2]
- C0338656
- UMLS CUI [2,1]
- C0679228
- UMLS CUI [2,2]
- C3846158
- UMLS CUI [3,1]
- C0221099
- UMLS CUI [3,2]
- C0935584
- UMLS CUI [4,1]
- C0221099
- UMLS CUI [4,2]
- C0233714
Beskrivning
ALSbi (behaviourally impaired)
Alias
- UMLS CUI-1
- C0002736
- UMLS CUI-2
- C0004927
- UMLS CUI-3
- C0221099
Beskrivning
weiter mit DESCRIBE‐FTD (gemäß den revidierten Strong‐Kriterien von 2017). ECAS = Edinburgh Cognitive and Behavioural ALS Screen
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0002736
- UMLS CUI [1,2]
- C0004927
- UMLS CUI [1,3]
- C0221099
- UMLS CUI [2,1]
- C0679228
- UMLS CUI [2,2]
- C0080103
- UMLS CUI [2,3]
- C3846158
- UMLS CUI [3,1]
- C0679228
- UMLS CUI [3,2]
- C3846158
- UMLS CUI [4]
- C0085632
- UMLS CUI [5]
- C0023380
Beskrivning
weiter mit DESCRIBE‐FTD (gemäß den revidierten Strong‐Kriterien von 2017).
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0002736
- UMLS CUI [1,2]
- C0004927
- UMLS CUI [1,3]
- C0221099
- UMLS CUI [2,1]
- C0679228
- UMLS CUI [2,2]
- C0080103
- UMLS CUI [2,3]
- C3846158
- UMLS CUI [3,1]
- C0679228
- UMLS CUI [3,2]
- C3846158
- UMLS CUI [4]
- C0424296
- UMLS CUI [5,1]
- C1517945
- UMLS CUI [5,2]
- C0013989
- UMLS CUI [6,1]
- C1517945
- UMLS CUI [6,2]
- C0683287
- UMLS CUI [7]
- C0038271
- UMLS CUI [8]
- C1295579
- UMLS CUI [9]
- C0233651
- UMLS CUI [10]
- C1838320
- UMLS CUI [11,1]
- C0015745
- UMLS CUI [11,2]
- C0392747
- UMLS CUI [12,1]
- C1517945
- UMLS CUI [12,2]
- C0233820
- UMLS CUI [13]
- C0871189
Beskrivning
ALScbi (cognitively and behaviourally impaired)
Alias
- UMLS CUI-1
- C0002736
- UMLS CUI-2
- C0338656
- UMLS CUI-3
- C0004927
- UMLS CUI-4
- C0221099
Beskrivning
weiter mit DESCRIBE‐FTD
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0243161
- UMLS CUI [1,2]
- C0002736
- UMLS CUI [1,3]
- C0338656
- UMLS CUI [2,1]
- C0243161
- UMLS CUI [2,2]
- C0002736
- UMLS CUI [2,3]
- C0004927
- UMLS CUI [2,4]
- C0221099
Beskrivning
ALS‐FTD
Alias
- UMLS CUI-1
- C0002736
- UMLS CUI-2
- C0338451
Beskrivning
weiter mit DESCRIBE‐FTD
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0002736
- UMLS CUI [1,2]
- C4011788
Beskrivning
weiter mit DESCRIBE‐FTD
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0002736
- UMLS CUI [1,2]
- C0282513
Beskrivning
ALSgen ohne kognitives Defizit aber mit genetischem Risiko für FTD
Alias
- UMLS CUI-1
- C0002736
- UMLS CUI-2
- C1298908
- UMLS CUI-3
- C0338656
- UMLS CUI-4
- C1517512
- UMLS CUI-5
- C0338451
Beskrivning
weiter mit DESCRIBE‐FTD
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0002736
- UMLS CUI [1,2]
- C1298908
- UMLS CUI [1,3]
- C0338656
- UMLS CUI [1,4]
- C1517512
- UMLS CUI [1,5]
- C0338451
- UMLS CUI [2,1]
- C0026882
- UMLS CUI [2,2]
- C1428691
- UMLS CUI [3,1]
- C0026882
- UMLS CUI [3,2]
- C1336579
Similar models
Diagnosis criteria Amyotrophic lateral sclerosis (ALS) (Diagnosekriterien Amyotrophe Lateralsklerose (ALS))
C0243161 (UMLS CUI [1,2])
C3846158 (UMLS CUI [1,3])
C0002736 (UMLS CUI-2)
C0026649 (UMLS CUI-3)
C0449560 (UMLS CUI-4)
C0221198 (UMLS CUI [1,2])
C0524458 (UMLS CUI [1,3])
C0205329 (UMLS CUI [2,1])
C0221198 (UMLS CUI [2,2])
C0524459 (UMLS CUI [2,3])
C0524458 (UMLS CUI [1,2])
C1856507 (UMLS CUI [2,1])
C0524459 (UMLS CUI [2,2])
C0221198 (UMLS CUI [1,2])
C0205064 (UMLS CUI [1,3])
C2363430 (UMLS CUI [1,4])
C0221198 (UMLS CUI [1,2])
C0024090 (UMLS CUI [1,3])
C2363430 (UMLS CUI [1,4])
C0524459 (UMLS CUI [2,1])
C0221198 (UMLS CUI [2,2])
C0036033 (UMLS CUI [2,3])
C2363430 (UMLS CUI [2,4])
C0221198 (UMLS CUI [1,2])
C0439064 (UMLS CUI [1,3])
C0205225 (UMLS CUI [1,2])
C2363430 (UMLS CUI [1,2])
C0002736 (UMLS CUI [1,2])
C0026882 (UMLS CUI [1,2])
C0749870 (UMLS CUI [2])
C0221198 (UMLS CUI [3,1])
C0524459 (UMLS CUI [3,2])
C0680251 (UMLS CUI-2)
C2348205 (UMLS CUI [1,2])
C0002736 (UMLS CUI [1,3])
C0205064 (UMLS CUI [2,1])
C0005956 (UMLS CUI [2,2])
C0700594 (UMLS CUI [3])
C0393847 (UMLS CUI [4])
C0026769 (UMLS CUI [5])
C0002736 (UMLS CUI-2)
C0043232 (UMLS CUI-3)
C1947952 (UMLS CUI [1,2])
C0205064 (UMLS CUI [1,2])
C0817096 (UMLS CUI [1,2])
C0450206 (UMLS CUI [1,2])
C0002736 (UMLS CUI [1,2])
C0205422 (UMLS CUI [1,3])
C0002736 (UMLS CUI [1,2])
C0017399 (UMLS CUI [1,3])
C0002736 (UMLS CUI [1,2])
C0015576 (UMLS CUI [1,3])
C1298908 (UMLS CUI-2)
C0338656 (UMLS CUI-3)
C1298908 (UMLS CUI [1,2])
C0338656 (UMLS CUI [1,3])
C0205409 (UMLS CUI [2,1])
C0426980 (UMLS CUI [2,2])
C0338656 (UMLS CUI-2)
C0338656 (UMLS CUI [1,2])
C0679228 (UMLS CUI [2,1])
C3846158 (UMLS CUI [2,2])
C0221099 (UMLS CUI [3,1])
C0935584 (UMLS CUI [3,2])
C0221099 (UMLS CUI [4,1])
C0233714 (UMLS CUI [4,2])
C0004927 (UMLS CUI-2)
C0221099 (UMLS CUI-3)
C0004927 (UMLS CUI [1,2])
C0221099 (UMLS CUI [1,3])
C0679228 (UMLS CUI [2,1])
C0080103 (UMLS CUI [2,2])
C3846158 (UMLS CUI [2,3])
C0679228 (UMLS CUI [3,1])
C3846158 (UMLS CUI [3,2])
C0085632 (UMLS CUI [4])
C0023380 (UMLS CUI [5])
C0004927 (UMLS CUI [1,2])
C0221099 (UMLS CUI [1,3])
C0679228 (UMLS CUI [2,1])
C0080103 (UMLS CUI [2,2])
C3846158 (UMLS CUI [2,3])
C0679228 (UMLS CUI [3,1])
C3846158 (UMLS CUI [3,2])
C0424296 (UMLS CUI [4])
C1517945 (UMLS CUI [5,1])
C0013989 (UMLS CUI [5,2])
C1517945 (UMLS CUI [6,1])
C0683287 (UMLS CUI [6,2])
C0038271 (UMLS CUI [7])
C1295579 (UMLS CUI [8])
C0233651 (UMLS CUI [9])
C1838320 (UMLS CUI [10])
C0015745 (UMLS CUI [11,1])
C0392747 (UMLS CUI [11,2])
C1517945 (UMLS CUI [12,1])
C0233820 (UMLS CUI [12,2])
C0871189 (UMLS CUI [13])
C0338656 (UMLS CUI-2)
C0004927 (UMLS CUI-3)
C0221099 (UMLS CUI-4)
C0002736 (UMLS CUI [1,2])
C0338656 (UMLS CUI [1,3])
C0243161 (UMLS CUI [2,1])
C0002736 (UMLS CUI [2,2])
C0004927 (UMLS CUI [2,3])
C0221099 (UMLS CUI [2,4])
C4011788 (UMLS CUI [1,2])
C0282513 (UMLS CUI [1,2])
C1298908 (UMLS CUI-2)
C0338656 (UMLS CUI-3)
C1517512 (UMLS CUI-4)
C0338451 (UMLS CUI-5)
C1298908 (UMLS CUI [1,2])
C0338656 (UMLS CUI [1,3])
C1517512 (UMLS CUI [1,4])
C0338451 (UMLS CUI [1,5])
C0026882 (UMLS CUI [2,1])
C1428691 (UMLS CUI [2,2])
C0026882 (UMLS CUI [3,1])
C1336579 (UMLS CUI [3,2])