ID
43219
Description
Register für Sichelzellerkrankungen Sichel-Reg, 3. Verlaufsdokumentation Registerzentrale: Dr. Dickerhoff / Dr. Potthoff, Klinik für Kinder-Onkologie, -Hämatologie und Klinische Immunologie, Universitätsklinikum Düsseldorf
Keywords
Versions (3)
- 9/22/14 9/22/14 - Martin Dugas
- 7/29/15 7/29/15 - Martin Dugas
- 9/20/21 9/20/21 -
Uploaded on
September 20, 2021
DOI
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License
Creative Commons BY-NC 3.0 Legacy
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Follow-Up Registry for Sickle Cell Diseases
Follow-Up Registry for Sickle Cell Diseases
- StudyEvent: ODM-Test
Description
Family history
Alias
- UMLS CUI-1
- C1522326
- UMLS CUI-2
- C0442592
Description
Professional career
Alias
- UMLS CUI-1
- C0017319
Description
Comments
Alias
- UMLS CUI-1
- C0814772
Description
Follow-up status
Alias
- UMLS CUI-1
- C0589120
Description
Pain crisis (last 12 months)
Alias
- UMLS CUI-1
- C0231225
Description
clinical examination
Alias
- UMLS CUI-1
- C0748932
Description
Lab
Alias
- UMLS CUI-1
- C0004623
- UMLS CUI-2
- C0750484
Description
Cholelithiasis
Alias
- UMLS CUI-1
- C0008350
Description
Cardiological test status
Alias
- UMLS CUI-1
- C0302111
Description
Aplastic crisis
Data type
boolean
Alias
- UMLS CUI-1
- C0302111
Data type
float
Measurement units
- mg/dl
Alias
- UMLS CUI-1
- C0019046
- UMLS CUI-2
- C1524031
Data type
float
Measurement units
- %
Alias
- UMLS CUI-1
- C0035286
- UMLS CUI-2
- C1524031
Data type
boolean
Alias
- UMLS CUI-1
- C1879316
Data type
integer
Alias
- UMLS CUI-1
- C0086776
Description
Eye examination
Alias
- UMLS CUI-1
- C0007785
Data type
boolean
Alias
- UMLS CUI-1
- C0007785
Data type
text
Data type
text
Alias
- UMLS CUI-1
- C0015236
Data type
text
Alias
- UMLS CUI-1
- C0749634
Data type
boolean
Alias
- UMLS CUI-1
- C0018989
Data type
boolean
Alias
- UMLS CUI-1
- C0003537
Data type
text
Alias
- UMLS CUI-1
- C2015799
Description
Comments
Alias
- UMLS CUI-1
- C0005940
Description
Lower leg ulcera
Description
Urological complications
Data type
boolean
Data type
boolean
Alias
- UMLS CUI-1
- C0473235
Data type
boolean
Alias
- UMLS CUI-1
- C0014394
Data type
date
Alias
- UMLS CUI-1
- C0033117
Data type
boolean
Data type
boolean
Data type
boolean
Data type
text
Description
Acute thoracic syndrome
Description
Transfusions
Alias
- UMLS CUI-1
- C1879316
Data type
date
Data type
text
Data type
boolean
Alias
- UMLS CUI-1
- C0749634
Data type
date
Data type
text
Data type
text
Alias
- UMLS CUI-1
- C0007975
Description
Other
Description
Medication
Alias
- UMLS CUI-1
- C0013227
Data type
text
Data type
date
Alias
- UMLS CUI-1
- C0020402
- UMLS CUI-2
- C0808070
Data type
float
Measurement units
- mg/Tag
Data type
text
Data type
boolean
Data type
text
Data type
date
Alias
- UMLS CUI-1
- C0003015
- UMLS CUI-2
- C0808070
Data type
text
Data type
text
Alias
- UMLS CUI-1
- C0013227
Description
Clinical examination
Alias
- UMLS CUI-1
- C1456356
Data type
date
Alias
- UMLS CUI-1
- C2826643
Description
Body weight
Data type
float
Measurement units
- kg
Alias
- UMLS CUI-1-1
- C0005910
Data type
integer
Alias
- UMLS CUI-1
- C0552346
Description
Height
Data type
float
Measurement units
- cm
Alias
- UMLS CUI-1-1
- C0005890
Data type
integer
Alias
- UMLS CUI-1
- C2030323
Data type
boolean
Alias
- UMLS CUI-1
- C0581852
Data type
integer
Measurement units
- mmHg
Alias
- UMLS CUI-1
- C0871470
Data type
integer
Measurement units
- mmHg
Alias
- UMLS CUI-1
- C0428883
Description
Lab values
Alias
- UMLS CUI-1
- C2346633
Data type
date
Alias
- UMLS CUI-1
- C2826643
Data type
float
Measurement units
- mg/dl
Alias
- UMLS CUI-1
- C0019046
Data type
float
Measurement units
- fl
Alias
- UMLS CUI-1
- C0524587
Data type
float
Measurement units
- %
Alias
- UMLS CUI-1
- C0035286
Data type
float
Measurement units
- ng/ml
Alias
- UMLS CUI-1
- C0015879
Data type
float
Measurement units
- Tera/l
Alias
- UMLS CUI-1
- C0014792
Data type
float
Measurement units
- /µl
Alias
- UMLS CUI-1
- C0023516
Data type
float
Measurement units
- /µl
Alias
- UMLS CUI-1
- C0005821
Data type
float
Measurement units
- %
Alias
- UMLS CUI-1
- C0018183
Data type
float
Measurement units
- %
Alias
- UMLS CUI-1
- C0024264
Data type
float
Measurement units
- mg/dl
Alias
- UMLS CUI-1
- C0201913
Data type
float
Measurement units
- mg/dl
Alias
- UMLS CUI-1
- C0010294
Data type
boolean
Alias
- UMLS CUI-1
- C2186573
Data type
float
Measurement units
- mg/24h
Alias
- UMLS CUI-1
- C1254855
Description
Transabdominal Ultrasound
Alias
- UMLS CUI-1
- C2348813
Data type
date
Alias
- UMLS CUI-1
- C2826643
Data type
boolean
Alias
- UMLS CUI-1
- C0019209
Data type
boolean
Alias
- UMLS CUI-1
- C0495790
Data type
float
Alias
- UMLS CUI-1
- C0426688
Data type
integer
Alias
- UMLS CUI-1
- C0016976
Data type
integer
Alias
- UMLS CUI-1
- C0037993
Description
Cardiological test status
Alias
- UMLS CUI-1
- C0420792
Data type
date
Alias
- UMLS CUI-1
- C2826643
Data type
integer
Alias
- UMLS CUI-1
- C1623258
Data type
boolean
Alias
- UMLS CUI-1
- C2036200
Data type
boolean
Alias
- UMLS CUI-1
- C0919857
Data type
text
Alias
- UMLS CUI-1
- C0522055
Data type
integer
Alias
- UMLS CUI-1
- C0013516
Data type
boolean
Alias
- UMLS CUI-1
- C3671557
Data type
boolean
Alias
- UMLS CUI-1
- C0581832
- UMLS CUI-2
- C0020542
Data type
text
Alias
- UMLS CUI-1
- C0476369
Description
Eye examination
Alias
- UMLS CUI-1
- C0200149
Data type
date
Alias
- UMLS CUI-1
- C2826643
Data type
text
Alias
- UMLS CUI-1
- C0029090
Data type
boolean
Alias
- UMLS CUI-1
- C0035305
Data type
boolean
Alias
- UMLS CUI-1
- C0339467
Data type
boolean
Alias
- UMLS CUI-1
- C0042909
Data type
text
Alias
- UMLS CUI-1
- C0744229
Data type
text
Alias
- UMLS CUI-1
- C0184661
Data type
integer
Alias
- UMLS CUI-1
- C0042812
Data type
text
Alias
- UMLS CUI-1
- C0042812
Description
Information needs and comments
Description
Signature
Alias
- UMLS CUI-1
- C1519316
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