ID

42964

Description

National Survey of Children with Special Health Care Needs, 2009/10 Survey Design and Sponsorship: Maternal and Child Health Bureau at the Health Resources and Services Administration in partnership with National Center for Health Statistics at the Centers for Disease Control, Child and Adolescent Health Measurement Initiative, and a National Technical Expert Panel Data Collection: National Center for Health Statistics at the Centers for Disease Control Geographic Areas: Nationwide, all 50 states and the District of Columbia Periodicity: 2001, 2005/06, 2009/10, yearly as of 2016/17 Population sampled: Non-institutionalized children with special health care needs (CSHCN) in the US ages 0-17 years Sample size range: Nationally: between 38,000 and 40,000 State: approximately 750 Representative: Weighted to be representative of the US population of non-institutionalized CSHCN ages 0-17 Topics: Assesses overall health and health status of CSHCN, including medical home, adequate health insurance, access to needed services, and adequate care coordination. Other topics include functional difficulties, transition services, and shared decision-making. http://childhealthdata.org/learn/NS-CSHCN

Link

http://childhealthdata.org/learn/NS-CSHCN

Keywords

Versions (2)
  1. 4/10/17 4/10/17 -
  2. 9/17/21 9/17/21 -
Copyright Holder

Centers for Disease Control

Uploaded on

September 17, 2021

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License

Creative Commons BY-NC 3.0
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NS-CSHCN 2009

English

SECTION 5: Care Coordination

14 forms  
SECTION 5: Care Coordination
Description

SECTION 5: Care Coordination

Did (S.C.) use any other health-related medical, educational, or social services [in the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] since (his/her) birth]?
Description

ONLY ASKED FOR CHILDREN WHO REPORTED USING LESS THAN 2 SERVICES ON QUESTIONS K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, AND C3Q15 READ IF NECESSARY: There are many types of services children might use to improve their education, their health, or their well-being. We listed 15 of these services earlier, but there could be others that your child uses.

Data type

integer

Alias
UMLS CUI [1,1]
C0199168
UMLS CUI [1,2]
C3843288
UMLS CUI [2,1]
C1553069
UMLS CUI [2,2]
C3843288
(During the past 12 months/ Since (his/her) birth), did (S.C.) need a referral to see any doctors or receive any services?
Description

C5Q11

Data type

integer

Alias
UMLS CUI [1,1]
C0034927
UMLS CUI [1,2]
C3843288
Was getting referrals a big problem, a small problem, or not a problem?
Description

NOTE: Only children with YES to needing a referral

Data type

integer

Alias
UMLS CUI [1,1]
C0034927
UMLS CUI [1,2]
C0033213
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
Description

If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):

Does anyone help you arrange or coordinate (S.C.)’s care among the different doctors or services that (he/she) uses?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] READ IF NECESSARY: By "arrange or coordinate," I mean: Is there anyone who helps you make sure that (S.C.) gets all the health care and services (he/she) needs, that health care providers share information, and that these services fit together and are paid for in a way that works for you? READ IF NECESSARY: Anyone means anyone.

Data type

integer

Alias
UMLS CUI [1,1]
C1269765
UMLS CUI [1,2]
C0422343
Does a doctor or someone in a doctor’s office provide this help arranging or coordinating (S.C.)’s care?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] NOTE: Only children with YES to help coordinating care

Data type

integer

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0025099
Is there anyone else who helps arrange or coordinate (S.C.)'s care?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] Note: Only children with YES to help coordinating care and YES to doctor or someone is doctor's office providing help

Data type

integer

Alias
UMLS CUI [1,1]
C1269765
UMLS CUI [1,2]
C0422343
[IF C5Q13=01, DISPLAY] Is this person a parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else? [IF C5Q13=02,77,99, THEN DISPLAY] Who does provide help arranging or coordinating [S.C.]'s care? A parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else?
Description

[IF C5Q13=01, DISPLAY] Is this person a parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else? [IF C5Q13=02,77,99, THEN DISPLAY] Who does provide help arranging or coordinating [S.C.]'s care? A parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else?

Alias
UMLS CUI-1
C0422343
UMLS CUI-2
C1269765
PARENT
Description

C5Q16_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0030551
GUARDIAN
Description

C5Q16_2

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C1274041
OTHER FAMILY MEMBER
Description

C5Q16_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C3845474
FRIEND
Description

C5Q16_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0079382
NURSE
Description

C5Q16_5

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0028661
THERAPIST
Description

C5Q16_6

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0871525
SOCIAL WORKER
Description

C5Q16_7

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0037444
HOSPITAL DISCHARGE PLANNER
Description

C5Q16_8

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0374894
CASE MANAGER
Description

C5Q16_9

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0687694
SOMEONE AT CHILD'S SCHOOL
Description

C5Q16_10

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0036375
UMLS CUI [1,4]
C0599987
SOMEONE ELSE
Description

C5Q16_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0027361
DON'T KNOW DON'T KNOW
Description

C5Q16_77

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C3840856
REFUSED
Description

C5Q16_99

Data type

boolean

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C3844811
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
Description

If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):

(During the past 12 months/ Since (his/her) birth), have you felt that you could have used extra help arranging or coordinating (S.C.)’s care among these different health care providers or services?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01]

Data type

integer

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0205172
UMLS CUI [1,4]
C3843288
(During the past 12 months/ Since (his/her) birth), how often did you get as much help as you wanted with arranging or coordinating (S.C.)’s care? Would you say never, sometimes, or usually?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] NOTE: Only children with YES to extra help with coordinating care

Data type

integer

Alias
UMLS CUI [1,1]
C0422343
UMLS CUI [1,2]
C1269765
UMLS CUI [1,3]
C0871208
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with the communication among (S.C.)’s doctors and other health care providers?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01]

Data type

integer

Alias
UMLS CUI [1,1]
C0242428
UMLS CUI [1,2]
C0009452
Do (S.C.)’s doctors or other health care providers need to communicate with (his/her) school, early intervention program, child care providers, vocational education or rehabilitation program?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01]

Data type

integer

Alias
UMLS CUI [1,1]
C0031831
UMLS CUI [1,2]
C1705415
UMLS CUI [1,3]
C0018747
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with that communication?
Description

[NOTE: ONLY ASKED IF CHILD RECEIVED TWO OR MORE OF THE FOLLOWING SERVICES IN THE PAST 12 MONTHS: K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, AND C5Q01] Note: Only children with YES to doctors communicating with school

Data type

integer

Alias
UMLS CUI [1,1]
C0242428
UMLS CUI [1,2]
C0009452
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Similar models

SECTION 5: Care Coordination

14 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
SECTION 5: Care Coordination
C5Q01
Item
Did (S.C.) use any other health-related medical, educational, or social services [in the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] since (his/her) birth]?
integer
C0199168 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C1553069 (UMLS CUI [2,1])
C3843288 (UMLS CUI [2,2])
C5Q11
Item
(During the past 12 months/ Since (his/her) birth), did (S.C.) need a referral to see any doctors or receive any services?
integer
C0034927 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C4Q07
Item
Was getting referrals a big problem, a small problem, or not a problem?
integer
C0034927 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
Item Group
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
C5Q12
Item
Does anyone help you arrange or coordinate (S.C.)’s care among the different doctors or services that (he/she) uses?
integer
C1269765 (UMLS CUI [1,1])
C0422343 (UMLS CUI [1,2])
C5Q13
Item
Does a doctor or someone in a doctor’s office provide this help arranging or coordinating (S.C.)’s care?
integer
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0025099 (UMLS CUI [1,3])
C5Q15
Item
Is there anyone else who helps arrange or coordinate (S.C.)'s care?
integer
C1269765 (UMLS CUI [1,1])
C0422343 (UMLS CUI [1,2])
Item Group
[IF C5Q13=01, DISPLAY] Is this person a parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else? [IF C5Q13=02,77,99, THEN DISPLAY] Who does provide help arranging or coordinating [S.C.]'s care? A parent, guardian, other family member, friend, nurse, therapist, social worker, hospital discharge planner, case manager, or someone else?
C0422343 (UMLS CUI-1)
C1269765 (UMLS CUI-2)
C5Q16_1
Item
PARENT
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0030551 (UMLS CUI [1,3])
C5Q16_2
Item
GUARDIAN
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C1274041 (UMLS CUI [1,3])
C5Q16_3
Item
OTHER FAMILY MEMBER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C3845474 (UMLS CUI [1,3])
C5Q16_4
Item
FRIEND
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0079382 (UMLS CUI [1,3])
C5Q16_5
Item
NURSE
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0028661 (UMLS CUI [1,3])
C5Q16_6
Item
THERAPIST
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0871525 (UMLS CUI [1,3])
C5Q16_7
Item
SOCIAL WORKER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0037444 (UMLS CUI [1,3])
C5Q16_8
Item
HOSPITAL DISCHARGE PLANNER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0374894 (UMLS CUI [1,3])
C5Q16_9
Item
CASE MANAGER
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0687694 (UMLS CUI [1,3])
C5Q16_10
Item
SOMEONE AT CHILD'S SCHOOL
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0036375 (UMLS CUI [1,3])
C0599987 (UMLS CUI [1,4])
C5Q16_11
Item
SOMEONE ELSE
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,3])
C5Q16_77
Item
DON'T KNOW DON'T KNOW
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C3840856 (UMLS CUI [1,3])
C5Q16_99
Item
REFUSED
boolean
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C3844811 (UMLS CUI [1,3])
Item Group
If child received two or more of the following services in the past 12 months (questions K4Q20, K4Q21, C4Q05_1A-C4Q05_14A, C4Q05_2C-C4Q05_14C, C3Q12, C3Q13, C3Q15, and C5Q01):
C5Q17
Item
(During the past 12 months/ Since (his/her) birth), have you felt that you could have used extra help arranging or coordinating (S.C.)’s care among these different health care providers or services?
integer
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0205172 (UMLS CUI [1,3])
C3843288 (UMLS CUI [1,4])
C5Q09
Item
(During the past 12 months/ Since (his/her) birth), how often did you get as much help as you wanted with arranging or coordinating (S.C.)’s care? Would you say never, sometimes, or usually?
integer
C0422343 (UMLS CUI [1,1])
C1269765 (UMLS CUI [1,2])
C0871208 (UMLS CUI [1,3])
C5Q10
Item
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with the communication among (S.C.)’s doctors and other health care providers?
integer
C0242428 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
C5Q05
Item
Do (S.C.)’s doctors or other health care providers need to communicate with (his/her) school, early intervention program, child care providers, vocational education or rehabilitation program?
integer
C0031831 (UMLS CUI [1,1])
C1705415 (UMLS CUI [1,2])
C0018747 (UMLS CUI [1,3])
C5Q06
Item
Overall, are you very satisfied, somewhat satisfied, somewhat dissatisfied, or very dissatisfied with that communication?
integer
C0242428 (UMLS CUI [1,1])
C0009452 (UMLS CUI [1,2])
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