ID

42964

Description

National Survey of Children with Special Health Care Needs, 2009/10 Survey Design and Sponsorship: Maternal and Child Health Bureau at the Health Resources and Services Administration in partnership with National Center for Health Statistics at the Centers for Disease Control, Child and Adolescent Health Measurement Initiative, and a National Technical Expert Panel Data Collection: National Center for Health Statistics at the Centers for Disease Control Geographic Areas: Nationwide, all 50 states and the District of Columbia Periodicity: 2001, 2005/06, 2009/10, yearly as of 2016/17 Population sampled: Non-institutionalized children with special health care needs (CSHCN) in the US ages 0-17 years Sample size range: Nationally: between 38,000 and 40,000 State: approximately 750 Representative: Weighted to be representative of the US population of non-institutionalized CSHCN ages 0-17 Topics: Assesses overall health and health status of CSHCN, including medical home, adequate health insurance, access to needed services, and adequate care coordination. Other topics include functional difficulties, transition services, and shared decision-making. http://childhealthdata.org/learn/NS-CSHCN

Link

http://childhealthdata.org/learn/NS-CSHCN

Keywords

Versions (2)
  1. 4/10/17 4/10/17 -
  2. 9/17/21 9/17/21 -
Copyright Holder

Centers for Disease Control

Uploaded on

September 17, 2021

DOI

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License

Creative Commons BY-NC 3.0
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NS-CSHCN 2009

English

SECTION 4: Access to Care – Use of Services and Unmet Needs

14 forms  
SECTION 4: Access to Care – Use of Services and Unmet Needs
Description

SECTION 4: Access to Care – Use of Services and Unmet Needs

Is there a place that (S.C.) USUALLY goes when (he/she) is sick or you need advice about (his/her) health?
Description

C4Q0A

Data type

integer

Alias
UMLS CUI [1,1]
C0018704
What kind of place?
Description

asked only for children with a usual source of care

Data type

text

Is there a place that (S.C.) USUALLY goes when (he/she) needs routine preventive care, such as a physical examination or well-child check-up?
Description

C4Q0D

Data type

integer

Alias
UMLS CUI [1,1]
C1547538
UMLS CUI [1,2]
C0476709
UMLS CUI [2,1]
C1547538
UMLS CUI [2,2]
C0031809
Is that the same [place selected in C4Q0B] where (S.C.) goes to when (he/she) is sick?
Description

NOTE: Asked only for children with a usual source of care [IF C4Q0A = 02, 77, 99, OR IF C4Q0B = 9, 77, 99, THEN GO TO C4Q02] [IF C4Q0B = 06, 07, 08, 77, 99 FILL WITH "place"]

Data type

integer

Alias
UMLS CUI [1,1]
C0337611
UMLS CUI [1,2]
C0868928
UMLS CUI [1,3]
C0221423
What kind of place does (S.C.) (USUALLY) go to when (he/she) needs routine preventive care?
Description

NOTE: Asked only [IF C4Q0A= 2, 77, 99, OR IF C4Q0B= 9, 77, 99].

Data type

integer

Alias
UMLS CUI [1,1]
C1547538
UMLS CUI [1,2]
C0199176
Do you have one or more persons you think of as [CHILD’S NAME]’s personal doctor or nurse?
Description

C4Q02A

Data type

integer

Alias
UMLS CUI [1,1]
C0439064
UMLS CUI [1,2]
C1704221
UMLS CUI [2,1]
C0439064
UMLS CUI [2,2]
C0028661
Is this Person a /Are those people general doctor(s), pediatrician(s), specialist(s), Nurse practitioner(s), or physician’s assistant(s)?
Description

C4Q02B INDEX

Data type

integer

Alias
UMLS CUI [1]
C0028811
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because the services (S.C.) needed were not available in your area?
Description

HELP SCREEN: These questions are about all the types of services children may need or use, such as medical care, dental care, specialized therapies, counseling, medical equipment, special education, and early intervention. These services can be obtained in clinics, schools, child care centers, through community programs, at home, and other places.

Data type

integer

Alias
UMLS CUI [1,1]
C0199168
UMLS CUI [1,2]
C0686905
UMLS CUI [1,3]
C3843288
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because there were waiting lists, backlogs, or other problems getting appointments?
Description

HELP SCREEN: These questions are about all the types of services children may need or use, such as medical care, dental care, specialized therapies, counseling, medical equipment, special education, and early intervention. These services can be obtained in clinics, schools, child care centers, through community programs, at home, and other places.

Data type

integer

Alias
UMLS CUI [1,1]
C3854235
UMLS CUI [1,2]
C3843288
UMLS CUI [1,3]
C0043010
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because of issues related to cost?
Description

HELP SCREEN: These questions are about all the types of services children may need or use, such as medical care, dental care, specialized therapies, counseling, medical equipment, special education, and early intervention. These services can be obtained in clinics, schools, child care centers, through community programs, at home, and other places.

Data type

integer

Alias
UMLS CUI [1,1]
C3854235
UMLS CUI [1,2]
C3843288
UMLS CUI [1,3]
C0549106
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because you had trouble getting the information you needed?
Description

HELP SCREEN: These questions are about all the types of services children may need or use, such as medical care, dental care, specialized therapies, counseling, medical equipment, special education, and early intervention. These services can be obtained in clinics, schools, child care centers, through community programs, at home, and other places.

Data type

integer

Alias
UMLS CUI [1,1]
C3854235
UMLS CUI [1,2]
C3843288
UMLS CUI [1,3]
C0079623
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays for any other reason?
Description

HELP SCREEN: These questions are about all the types of services children may need or use, such as medical care, dental care, specialized therapies, counseling, medical equipment, special education, and early intervention. These services can be obtained in clinics, schools, child care centers, through community programs, at home, and other places.

Data type

integer

Alias
UMLS CUI [1,1]
C3854235
UMLS CUI [1,2]
C3843288
UMLS CUI [1,3]
C3840932
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how often have you been frustrated in your efforts to get services for (S.C.)? Would you say never, sometimes, usually, or always?
Description

C4Q04

Data type

integer

Alias
UMLS CUI [1,1]
C0016770
UMLS CUI [1,2]
C3843288
UMLS CUI [1,3]
C1554216
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) visit a hospital emergency room?
Description

READ IF NECESSARY: This includes emergency room visits that results in a hospital admission. READ IF NECESSARY: THIS QUESTION IS ASKING SPECIFICALLY ABOUT VISITS TO A HOSPITAL EMERGENCY ROOM. DO NOT INCLUDE VISITS TO URGENT CARE CENTERS OR CLINICS, WHICH TAKE SICK PATIENTS WHO CANNOT BE SEEN BY THEIR REGULAR OR PRIMARY CARE DOCTORS. (000) NO VISITS IN PAST 12 MONTHS (777) DON'T KNOW (999) REFUSED

Data type

integer

Measurement units
  • NUMBER OF VISITS
Alias
UMLS CUI [1,1]
C2114437
UMLS CUI [1,2]
C3843288
NUMBER OF VISITS
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) visit a hospital emergency room?
Description

READ IF NECESSARY: This includes emergency room visits that results in a hospital admission. READ IF NECESSARY: THIS QUESTION IS ASKING SPECIFICALLY ABOUT VISITS TO A HOSPITAL EMERGENCY ROOM. DO NOT INCLUDE VISITS TO URGENT CARE CENTERS OR CLINICS, WHICH TAKE SICK PATIENTS WHO CANNOT BE SEEN BY THEIR REGULAR OR PRIMARY CARE DOCTORS. (000) NO VISITS IN PAST 12 MONTHS (777) DON'T KNOW (999) REFUSED

Data type

integer

Alias
UMLS CUI [1,1]
C2114437
UMLS CUI [1,2]
C3843288
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) receive a well-child check-up, that is a general check-up, when (he/she) was not sick or injured?
Description

(77) DON'T KNOW (99) REFUSED

Data type

integer

Measurement units
  • NUMBER OF TIMES
Alias
UMLS CUI [1,1]
C0476709
UMLS CUI [1,2]
C3843288
NUMBER OF TIMES
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) see a dentist for preventive dental care, such as check-ups and dental cleanings?
Description

(77) DON'T KNOW (99) REFUSED

Data type

integer

Measurement units
  • NUMBER OF TIMES
Alias
UMLS CUI [1,1]
C0033109
UMLS CUI [1,2]
C0282684
UMLS CUI [1,3]
C3843288
NUMBER OF TIMES
Well child check up:
Description

Well child check up:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed a well child check-up?
Description

C4Q05_1

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0476709
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the well-child check-ups that (he/she) needed?
Description

C4Q05_1A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0476709
Why did (S.C.) not get all the well-child check-ups (he/she) needed?
Description

Why did (S.C.) not get all the well-child check-ups (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C0476709
UMLS CUI-4
C3843288
(01) COST TOO MUCH
Description

C4Q05_1B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_1B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_1B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_1B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_1B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_1B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_1B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_1B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_1B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_1B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_1B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_1B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_1B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_1B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_1B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_1B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_1B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Preventive Dental Care:
Description

Preventive Dental Care:

(During the past 12 months/Since (his/her) birth, was there any time when (S.C.) needed preventive dental care, such as check-ups and dental cleanings?
Description

C4Q05_31

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0033109
UMLS CUI [1,3]
C0282684
UMLS CUI [1,4]
C3843288
Did (S.C) receive all the preventive dental care that (he/she) needed?
Description

C4Q05_31A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0033109
UMLS CUI [1,3]
C0282684
Why did (S.C.) not get all the preventive dental care (he/she) needed?
Description

Why did (S.C.) not get all the preventive dental care (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C0033109
UMLS CUI-4
C0282684
UMLS CUI-5
C3843288
(01) COST TOO MUCH
Description

C4Q05_31B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_31B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_31B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_31B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_31B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_31B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_31B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_31B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_31B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_31B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_31B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_31B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_31B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_31B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_31B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_31B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_31B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Other Dental Care:
Description

Other Dental Care:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed any other dental care or orthodontia?
Description

OTHER DENTAL CARE CAN INCLUDE ORTHODONTIAL CARE SUCH AS BRACES AND RETAINERS, OR PERIODONTIAL CARE SUCH AS TREATMENT FOR GUM DISEASE.

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0282684
UMLS CUI [1,3]
C3843288
Did (S.C.) receive all the other dental care that (he/she) needed?
Description

C4Q05_32A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0282684
Did (S.C.) get any non-preventive dental care (during the past 12 months/since (his/her) birth)?
Description

C4Q05_32C

Data type

integer

Alias
UMLS CUI [1,1]
C0282684
UMLS CUI [1,2]
C3843288
Why did (S.C.) not get all the other dental care (he/she) needed?
Description

Why did (S.C.) not get all the other dental care (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C0282684
(01) COST TOO MUCH
Description

C4Q05_32B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_32B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_32B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_32B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_32B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_32B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_32B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_32B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_32B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_32B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_32B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_32B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_32B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_32B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_32B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_32B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_32B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Specialty care:
Description

Specialty care:

(During the past 12 months/Since (his/her) birth), was there any time when (S.C.) needed care from a specialty doctor?
Description

READ IF NECESSARY: Specialty doctors focus on one part of your child's health. These include cardiologists, pulmonologists, ear, nose and throat doctors, surgeons, etc. Do not include dentists or psychiatrists. Needs for care from dentists and psychiatrists are asked in other questions.

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C2348234
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the care from a specialty doctor that (he/she) needed?
Description

C4Q05_2A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C2348234
Did (S.C.) get any care from a specialty doctor (during the past 12 months/since (his/her) birth)?
Description

C4Q05_2C

Data type

integer

Alias
UMLS CUI [1,1]
C0237078
UMLS CUI [1,2]
C2348234
Why did (S.C.) not get all the care from a specialty doctor (he/she) needed?
Description

Why did (S.C.) not get all the care from a specialty doctor (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C2348234
(01) COST TOO MUCH
Description

C4Q05_2B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_2B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_2B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_2B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_2B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_2B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_2B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_2B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_2B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_2B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_2B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_2B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_2B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_2B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_2B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_2B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_2B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Prescription medications:
Description

Prescription medications:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed prescription medications?
Description

C4Q05_4

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0033081
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the prescription medications that (he/she) needed?
Description

C4Q05_4A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0033081
Did (S.C.) get any prescription medications (during the past 12 months/since (his/her) birth)?
Description

C4Q05_4C

Data type

integer

Alias
UMLS CUI [1]
C0033081
Why did (S.C.) not get all the prescription medications (he/she) needed?
Description

Why did (S.C.) not get all the prescription medications (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C0033081
(01) COST TOO MUCH
Description

C4Q05_4B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_4B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_4B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_4B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_4B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_4B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_4B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_4B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_4B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_4B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_4B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_4B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_4B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_4B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_4B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_4B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_4B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Physical, Occupational, or Speech Therapy:
Description

Physical, Occupational, or Speech Therapy:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed physical, occupational, or speech therapy?
Description

C4Q05_5

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0034991
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the therapy that (he/she) needed?
Description

C4Q05_5A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0034991
Did (S.C.) get any physical, occupational, or speech therapy (during the past 12 months/since (his/her) birth)?
Description

C4Q05_5C

Data type

integer

Alias
UMLS CUI [1,1]
C0034991
UMLS CUI [1,2]
C3843288
Why did (S.C.) not get all the therapy (he/she) needed?
Description

Why did (S.C.) not get all the therapy (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C0034991
(01) COST TOO MUCH
Description

C4Q05_5B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_5B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_5B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_5B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_5B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_5B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_5B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_5B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_5B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_5B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_5B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_5B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_5B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_5B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_5B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_5B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_5B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Mental health care or counseling:
Description

Mental health care or counseling:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed mental health care or counseling?
Description

C4Q05_6

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0184643
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the mental health care or counseling that (he/she) needed?
Description

C4Q05_6A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0184643
Did (S.C.) get any mental health care or counseling (during the past 12 months/since (his/her) birth?
Description

C4Q05_6C

Data type

integer

Alias
UMLS CUI [1,1]
C0184643
UMLS CUI [1,2]
C3843288
Why did (S.C.) not get all the mental health care or counseling (he/she) needed?
Description

Why did (S.C.) not get all the mental health care or counseling (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C0184643
(01) COST TOO MUCH
Description

C4Q05_6B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_6B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_6B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_6B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_6B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_6B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_6B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_6B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_6B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_6B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_6B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_6B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_6B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_6B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_6B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_6B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_6B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Substance abuse treatment or counseling:
Description

Substance abuse treatment or counseling:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed substance abuse treatment or counseling?
Description

HELP SCREEN: SUBSTANCE ABUSE TREATMENT INCLUDES TREATMENT FOR ALCOHOL AND TOBACCO ABUSE. SOME RESPONDENTS MAY FIND THIS QUESTION INAPPROPRIATE. IF THIS OCCURS, TELL THE RESPONDENT: I understand this question may be more appropriate for older children, but I am required to ask and read verbatim.

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C2551443
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the substance abuse treatment or counseling that (he/she) needed?
Description

C4Q05_7A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C2551443
Did (S.C.) get any substance abuse treatment or counseling (during the past 12 months/since (his/her) birth)?
Description

C4Q05_7C

Data type

integer

Alias
UMLS CUI [1,1]
C2551443
UMLS CUI [1,2]
C3843288
Why did (S.C.) not get all the substance abuse treatment or counseling (he/she) needed?
Description

Why did (S.C.) not get all the substance abuse treatment or counseling (he/she) needed?

Alias
UMLS CUI-1
C0746919
UMLS CUI-2
C0566251
UMLS CUI-3
C2551443
(01) COST TOO MUCH
Description

C4Q05_7B_1

Data type

boolean

Alias
UMLS CUI [1,1]
C0010186
UMLS CUI [1,2]
C3843660
(02) NO INSURANCE
Description

C4Q05_7B_2

Data type

boolean

Alias
UMLS CUI [1]
C0085561
(03) HEALTH PLAN PROBLEM
Description

C4Q05_7B_3

Data type

boolean

Alias
UMLS CUI [1,1]
C0018727
UMLS CUI [1,2]
C0033213
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
Description

C4Q05_7B_4

Data type

boolean

Alias
UMLS CUI [1,1]
C0021682
UMLS CUI [1,2]
C1272684
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
Description

C4Q05_7B_5

Data type

boolean

Alias
UMLS CUI [1]
C0018748
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
Description

C4Q05_7B_6

Data type

boolean

Alias
UMLS CUI [1]
C0586344
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
Description

C4Q05_7B_7

Data type

boolean

Alias
UMLS CUI [1]
C0086035
(08) DISSATISFACTION WITH PROVIDER
Description

C4Q05_7B_8

Data type

boolean

Alias
UMLS CUI [1]
C0237166
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
Description

C4Q05_7B_9

Data type

boolean

Alias
UMLS CUI [1,1]
C1555342
UMLS CUI [1,2]
C0439673
(10) CHILD REFUSED TO GO
Description

C4Q05_7B_10

Data type

boolean

Alias
UMLS CUI [1]
C1321605
(11) TREATMENT IS ONGOING
Description

C4Q05_7B_11

Data type

boolean

Alias
UMLS CUI [1,1]
C0549178
UMLS CUI [1,2]
C0087111
(13) NO REFERRAL
Description

C4Q05_7B_13

Data type

boolean

Alias
UMLS CUI [1]
C0034927
(14) LACK OF RESOURCES AT SCHOOL
Description

C4Q05_7B_14

Data type

boolean

Alias
UMLS CUI [1,1]
C0204168
UMLS CUI [1,2]
C0036375
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
Description

C4Q05_7B_15

Data type

boolean

Alias
UMLS CUI [1]
C3854235
(16) OTHER
Description

C4Q05_7B_16

Data type

boolean

Alias
UMLS CUI [1]
C3840932
(77) DON'T KNOW
Description

C4Q05_7B_77

Data type

boolean

Alias
UMLS CUI [1]
C3840856
(99) REFUSED
Description

C4Q05_7B_99

Data type

boolean

Alias
UMLS CUI [1]
C3844811
Home health care:
Description

Home health care:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed home health care?
Description

C4Q05_8

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0019855
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the home health care that (he/she) needed?
Description

C4Q05_8A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0019855
Did (S.C.) get any home helath care (during the past 12 months/since (his/her) birth)?
Description

C4Q05_8C

Data type

integer

Alias
UMLS CUI [1,1]
C0019855
UMLS CUI [1,2]
C3843288
Eyeglasses or vision:
Description

Eyeglasses or vision:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed eyeglasses or vision care?
Description

C4Q05_9

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0150177
UMLS CUI [1,3]
C3843288
Did [S.C.] receive all the eyeglasses or vision care that [he/she] needed?
Description

Only asked of children who needed eyeglasses or vision care in past 12 months.

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0150177
Did (S.C.) get any eyeglasses or vision care [during the past 12 months/ since [his/her] birth]?
Description

C4Q05_9C

Data type

integer

Alias
UMLS CUI [1,1]
C0150177
UMLS CUI [1,2]
C3843288
Hearing aids or hearing care:
Description

Hearing aids or hearing care:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed hearing aids or hearing care?
Description

C4Q05_10

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0200310
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the hearing aids or hearing care that (he/she) needed?
Description

C4Q05_10A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0200310
Did (S.C.) get any hearing aids or hearing care (during the past 12 months/since (his/her) birth)?
Description

C4Q05_10C

Data type

integer

Alias
UMLS CUI [1,1]
C0200310
UMLS CUI [1,2]
C3843288
Mobility aids or devices:
Description

Mobility aids or devices:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed mobility aids or devices, such as canes, crutches, wheelchairs, or scooters?
Description

IF AGE IS LESS THAN 4 YEARS OLD SKIP TO C4Q05_14.

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C3495449
UMLS CUI [1,3]
C3843288
Did [S.C.] receive all the mobility aids or devices that [he/she] needed?
Description

C4Q05_11A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C3495449
Did (S.C.) get any mobility aids or devices (during the past 12 months/since (his/her) birth)?
Description

C4Q05_11C

Data type

integer

Alias
UMLS CUI [1,1]
C3495449
UMLS CUI [1,2]
C3843288
Communication aids or devices:
Description

Communication aids or devices:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed a communication aids or devices, such as communication boards?
Description

SKIP IF AGE IS LESS THAN 3 YEARS OLD

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0180037
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the communication aids or devices that (he/she) needed?
Description

C4Q05_12A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0180037
Did (S.C.) get any communication aids or devices (during the past 12 months/since (his/her) birth)?
Description

C4Q05_12C

Data type

integer

Alias
UMLS CUI [1,1]
C0180037
UMLS CUI [1,2]
C3843288
Durable medical equipment:
Description

Durable medical equipment:

During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed durable medical equipment?
Description

READ IF NECESSARY: Some examples of durable medical equipment include nebulizers, blood glucose monitors, hospital beds, oxygen tanks, pressure machines, and orthotics. These are items that are not disposable.

Data type

text

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0013314
UMLS CUI [1,3]
C3843288
Did (S.C) receive all the durable medical equipment that (he/she) needed?
Description

C4Q05_14A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0013314
Did (S.C.) get any durable medical equipment (during the past 12 months/since (his/her) birth)?
Description

C4Q05_14C

Data type

integer

Alias
UMLS CUI [1,1]
C0013314
UMLS CUI [1,2]
C3843288
In past 12 months, was there any time when you or other family members needed the following services:
Description

In past 12 months, was there any time when you or other family members needed the following services:

(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth, was there any time when you or other family members needed respite care?
Description

READ IF NECESSARY: Respite care is care for the child so the family can have a break from ongoing care of the child. Respite care can be thought of as child care or babysitting by someone trained to meet any special needs the child may have. Both professional and non-professional respite care should be included

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0011017
UMLS CUI [1,3]
C0086282
UMLS CUI [1,4]
C3843288
Did you or your family receive all the respite care that was needed?
Description

C4Q06_1A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0011017
Did you or your family get any respite care (during the past 12 months/since (his/her) birth)?
Description

C4Q06_1C

Data type

integer

Alias
UMLS CUI [1,1]
C0011017
UMLS CUI [1,2]
C3843288
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth, was there any time when you or other family members needed genetic counseling for advice about inherited conditions related to (SC)’s medical, behavioral, or other health conditions?
Description

C4Q06_2

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0017382
UMLS CUI [1,3]
C0086282
UMLS CUI [1,4]
C3843288
Did you or your family receive all the genetic counseling that was needed?
Description

C4Q06_2A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0017382
Did you or your family get any genetic cousneling (during the past 12 months/ since (his/her) birth)?
Description

C4Q06_2C

Data type

integer

Alias
UMLS CUI [1,1]
C0017382
UMLS CUI [1,2]
C3843288
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth, was there any time when you or other family members needed mental health care or counseling related to (SC)’s medical, behavioral, or other health conditions?
Description

C4Q06_3

Data type

integer

Alias
UMLS CUI [1,1]
C2735312
UMLS CUI [1,2]
C0184643
UMLS CUI [1,3]
C0086282
UMLS CUI [1,4]
C3843288
Did you or your family receive all the mental health care counseling that was needed?
Description

C4Q06_3A

Data type

integer

Alias
UMLS CUI [1,1]
C3475494
UMLS CUI [1,2]
C0184643
Did you or your family get any mental health care or counseling (during the past 12 months/since (his/her) birth)?
Description

C4Q06_3C

Data type

integer

Alias
UMLS CUI [1,1]
C0184643
UMLS CUI [1,2]
C3843288
Does (S.C.) receive services from a program called Early Intervention Services? Children receiving these services often have an Individualized Family Service Plan.
Description

IF AGE FROM C2Q01 OR C2Q02 IS 36 MONTHS (3 YEARS) OR GREATER, SKIP TO C3Q13 [ALL SKIP TO C3Q13] READ IF NECESSARY: Early Intervention Services are defined as: family training, counseling, and home visits; health services; medicine; nursing; nutrition; occupational therapy; physical therapy; psychological services; service coordination services; social work services; special instruction; speech-language therapy; transportation, communication or mobility devices; and vision and hearing services.

Data type

integer

Alias
UMLS CUI [1]
C3179131
Does (S.C.) receive services from a program called Special Educational Services? Children receiving these services often have an Individualized Education Plan.
Description

READ IF NECESSARY: Special Education is any kind of special school, classes or tutoring.

Data type

integer

Alias
UMLS CUI [1]
C2372131
How old was (S.C.) when (he/she) first began receiving Special Educational Services?
Description

[Note: Item is follow up question for all children 3 years or above who receive Special Education Services.] HELP SCREEN: ENTER AGE IN MONTHS FOR 0 TO 23 MONTHS. IF 2 YEARS OR OLDER, ENTER AGE IN YEARS.

Data type

integer

Measurement units
  • VALUE (MUST BE LESS THAN OR EQUAL TO AGE OF CHILD)
Alias
UMLS CUI [1,1]
C0808070
UMLS CUI [1,2]
C2372131
VALUE (MUST BE LESS THAN OR EQUAL TO AGE OF CHILD)
At any time before [CHILD’S NAME] was 3 years old, did [he/she] receive services from a program called Early Intervention Services?
Description

asked only for children who receive Special Education Services

Data type

integer

Alias
UMLS CUI [1,1]
C3179131
UMLS CUI [1,2]
C1842990
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Similar models

SECTION 4: Access to Care – Use of Services and Unmet Needs

14 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
SECTION 4: Access to Care – Use of Services and Unmet Needs
C4Q0A
Item
Is there a place that (S.C.) USUALLY goes when (he/she) is sick or you need advice about (his/her) health?
integer
C0018704 (UMLS CUI [1,1])
C4Q0BR INDEX
Item
What kind of place?
text
C4Q0D
Item
Is there a place that (S.C.) USUALLY goes when (he/she) needs routine preventive care, such as a physical examination or well-child check-up?
integer
C1547538 (UMLS CUI [1,1])
C0476709 (UMLS CUI [1,2])
C1547538 (UMLS CUI [2,1])
C0031809 (UMLS CUI [2,2])
Item
Is that the same [place selected in C4Q0B] where (S.C.) goes to when (he/she) is sick?
integer
C0337611 (UMLS CUI [1,1])
C0868928 (UMLS CUI [1,2])
C0221423 (UMLS CUI [1,3])
C10Q02A
Code List
Is that the same [place selected in C4Q0B] where (S.C.) goes to when (he/she) is sick?
CL Item
BIOLOGICAL MOTHER (01)
CL Item
STEP MOTHER (02)
CL Item
FOSTER MOTHER (03)
CL Item
ADOPTIVE MOTHER (04)
CL Item
MOTHER, but TYPE REFUSED (05)
CL Item
BIOLOGICAL FATHER (06)
CL Item
STEP FATHER (07)
CL Item
FOSTER FATHER (08)
CL Item
ADOPTIVE FATHER (09)
CL Item
FATHER, but TYPE REFUSED (10)
CL Item
GRANDMOTHER (11)
CL Item
GRANDFATHER (12)
CL Item
AUNT (13)
CL Item
UNCLE (14)
CL Item
FEMALE GUARDIAN (15)
CL Item
MALE GUARDIAN (16)
CL Item
SISTER (BIOLOGICAL) (17)
CL Item
SISTER ( STEP) (18)
CL Item
SISTER ( FOSTER) (19)
CL Item
SISTER (HALF) (20)
CL Item
SISTER (ADOPTIVE) (21)
CL Item
BROTHER (BIOLOGICAL) (22)
CL Item
BROTHER (STEP) (23)
CL Item
BROTHER (FOSTER) (24)
CL Item
BROTHER ( HALF) (25)
CL Item
DON'T KNOW (77)
CL Item
REFUSED (99)
CL Item
BROTHER (ADOPTIVE) (26)
CL Item
COUSIN (27)
CL Item
IN-LAW OF ANY TYPE (28)
CL Item
OTHER RELATIVE/FAMILY MEMBER (29)
CL Item
PARENT'S BOYFRIEND/MALE PARTNER (30)
CL Item
PARENT'S GIRLFRIEND/FEMALE PARTNER (31)
CL Item
PARENT'S PARTNER, but SEX REFUSED (32)
CL Item
OTHER NON-RELATIVE OR FRIEND (33)
Item
What kind of place does (S.C.) (USUALLY) go to when (he/she) needs routine preventive care?
integer
C1547538 (UMLS CUI [1,1])
C0199176 (UMLS CUI [1,2])
C10Q02A
Code List
What kind of place does (S.C.) (USUALLY) go to when (he/she) needs routine preventive care?
CL Item
BIOLOGICAL MOTHER (01)
CL Item
STEP MOTHER (02)
CL Item
FOSTER MOTHER (03)
CL Item
ADOPTIVE MOTHER (04)
CL Item
MOTHER, but TYPE REFUSED (05)
CL Item
BIOLOGICAL FATHER (06)
CL Item
STEP FATHER (07)
CL Item
FOSTER FATHER (08)
CL Item
ADOPTIVE FATHER (09)
CL Item
FATHER, but TYPE REFUSED (10)
CL Item
GRANDMOTHER (11)
CL Item
GRANDFATHER (12)
CL Item
AUNT (13)
CL Item
UNCLE (14)
CL Item
FEMALE GUARDIAN (15)
CL Item
MALE GUARDIAN (16)
CL Item
SISTER (BIOLOGICAL) (17)
CL Item
SISTER ( STEP) (18)
CL Item
SISTER ( FOSTER) (19)
CL Item
SISTER (HALF) (20)
CL Item
SISTER (ADOPTIVE) (21)
CL Item
BROTHER (BIOLOGICAL) (22)
CL Item
BROTHER (STEP) (23)
CL Item
BROTHER (FOSTER) (24)
CL Item
BROTHER ( HALF) (25)
CL Item
DON'T KNOW (77)
CL Item
REFUSED (99)
CL Item
BROTHER (ADOPTIVE) (26)
CL Item
COUSIN (27)
CL Item
IN-LAW OF ANY TYPE (28)
CL Item
OTHER RELATIVE/FAMILY MEMBER (29)
CL Item
PARENT'S BOYFRIEND/MALE PARTNER (30)
CL Item
PARENT'S GIRLFRIEND/FEMALE PARTNER (31)
CL Item
PARENT'S PARTNER, but SEX REFUSED (32)
CL Item
OTHER NON-RELATIVE OR FRIEND (33)
C4Q02A
Item
Do you have one or more persons you think of as [CHILD’S NAME]’s personal doctor or nurse?
integer
C0439064 (UMLS CUI [1,1])
C1704221 (UMLS CUI [1,2])
C0439064 (UMLS CUI [2,1])
C0028661 (UMLS CUI [2,2])
C4Q02B INDEX
Item
Is this Person a /Are those people general doctor(s), pediatrician(s), specialist(s), Nurse practitioner(s), or physician’s assistant(s)?
integer
C0028811 (UMLS CUI [1])
C4Q03_B
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because the services (S.C.) needed were not available in your area?
integer
C0199168 (UMLS CUI [1,1])
C0686905 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q03_C
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because there were waiting lists, backlogs, or other problems getting appointments?
integer
C3854235 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C0043010 (UMLS CUI [1,3])
C4Q03_D
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because of issues related to cost?
integer
C3854235 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C0549106 (UMLS CUI [1,3])
C4Q03_E
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays because you had trouble getting the information you needed?
integer
C3854235 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C0079623 (UMLS CUI [1,3])
C4Q03_F
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], did you have any difficulties or delays for any other reason?
integer
C3854235 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C3840932 (UMLS CUI [1,3])
C4Q04
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how often have you been frustrated in your efforts to get services for (S.C.)? Would you say never, sometimes, usually, or always?
integer
C0016770 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C1554216 (UMLS CUI [1,3])
C6Q00
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) visit a hospital emergency room?
integer
C2114437 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
to C6Q00
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) visit a hospital emergency room?
integer
C2114437 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
K4Q20
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) receive a well-child check-up, that is a general check-up, when (he/she) was not sick or injured?
integer
C0476709 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
K4Q21
Item
[During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], how many times did (S.C.) see a dentist for preventive dental care, such as check-ups and dental cleanings?
integer
C0033109 (UMLS CUI [1,1])
C0282684 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
Item Group
Well child check up:
C4Q05_1
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed a well child check-up?
integer
C2735312 (UMLS CUI [1,1])
C0476709 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_1A
Item
Did (S.C) receive all the well-child check-ups that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0476709 (UMLS CUI [1,2])
Item Group
Why did (S.C.) not get all the well-child check-ups (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C0476709 (UMLS CUI-3)
C3843288 (UMLS CUI-4)
C4Q05_1B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_1B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_1B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_1B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_1B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_1B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_1B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_1B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_1B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_1B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_1B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_1B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_1B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_1B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_1B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_1B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_1B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Preventive Dental Care:
C4Q05_31
Item
(During the past 12 months/Since (his/her) birth, was there any time when (S.C.) needed preventive dental care, such as check-ups and dental cleanings?
integer
C2735312 (UMLS CUI [1,1])
C0033109 (UMLS CUI [1,2])
C0282684 (UMLS CUI [1,3])
C3843288 (UMLS CUI [1,4])
C4Q05_31A
Item
Did (S.C) receive all the preventive dental care that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0033109 (UMLS CUI [1,2])
C0282684 (UMLS CUI [1,3])
Item Group
Why did (S.C.) not get all the preventive dental care (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C0033109 (UMLS CUI-3)
C0282684 (UMLS CUI-4)
C3843288 (UMLS CUI-5)
C4Q05_31B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_31B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_31B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_31B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_31B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_31B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_31B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_31B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_31B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_31B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_31B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_31B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_31B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_31B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_31B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_31B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_31B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Other Dental Care:
C4Q05_32
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed any other dental care or orthodontia?
integer
C2735312 (UMLS CUI [1,1])
C0282684 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_32A
Item
Did (S.C.) receive all the other dental care that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0282684 (UMLS CUI [1,2])
C4Q05_32C
Item
Did (S.C.) get any non-preventive dental care (during the past 12 months/since (his/her) birth)?
integer
C0282684 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Why did (S.C.) not get all the other dental care (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C0282684 (UMLS CUI-3)
C4Q05_32B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_32B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_32B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_32B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_32B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_32B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_32B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_32B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_32B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_32B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_32B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_32B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_32B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_32B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_32B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_32B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_32B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Specialty care:
C4Q05_2
Item
(During the past 12 months/Since (his/her) birth), was there any time when (S.C.) needed care from a specialty doctor?
integer
C2735312 (UMLS CUI [1,1])
C2348234 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_2A
Item
Did (S.C) receive all the care from a specialty doctor that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C2348234 (UMLS CUI [1,2])
C4Q05_2C
Item
Did (S.C.) get any care from a specialty doctor (during the past 12 months/since (his/her) birth)?
integer
C0237078 (UMLS CUI [1,1])
C2348234 (UMLS CUI [1,2])
Item Group
Why did (S.C.) not get all the care from a specialty doctor (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C2348234 (UMLS CUI-3)
C4Q05_2B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_2B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_2B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_2B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_2B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_2B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_2B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_2B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_2B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_2B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_2B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_2B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_2B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_2B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_2B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_2B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_2B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Prescription medications:
C4Q05_4
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed prescription medications?
integer
C2735312 (UMLS CUI [1,1])
C0033081 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_4A
Item
Did (S.C) receive all the prescription medications that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0033081 (UMLS CUI [1,2])
C4Q05_4C
Item
Did (S.C.) get any prescription medications (during the past 12 months/since (his/her) birth)?
integer
C0033081 (UMLS CUI [1])
Item Group
Why did (S.C.) not get all the prescription medications (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C0033081 (UMLS CUI-3)
C4Q05_4B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_4B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_4B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_4B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_4B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_4B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_4B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_4B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_4B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_4B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_4B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_4B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_4B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_4B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_4B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_4B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_4B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Physical, Occupational, or Speech Therapy:
C4Q05_5
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed physical, occupational, or speech therapy?
integer
C2735312 (UMLS CUI [1,1])
C0034991 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_5A
Item
Did (S.C) receive all the therapy that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0034991 (UMLS CUI [1,2])
C4Q05_5C
Item
Did (S.C.) get any physical, occupational, or speech therapy (during the past 12 months/since (his/her) birth)?
integer
C0034991 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Why did (S.C.) not get all the therapy (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C0034991 (UMLS CUI-3)
C4Q05_5B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_5B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_5B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_5B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_5B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_5B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_5B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_5B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_5B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_5B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_5B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_5B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_5B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_5B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_5B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_5B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_5B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Mental health care or counseling:
C4Q05_6
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed mental health care or counseling?
integer
C2735312 (UMLS CUI [1,1])
C0184643 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_6A
Item
Did (S.C) receive all the mental health care or counseling that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0184643 (UMLS CUI [1,2])
C4Q05_6C
Item
Did (S.C.) get any mental health care or counseling (during the past 12 months/since (his/her) birth?
integer
C0184643 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Why did (S.C.) not get all the mental health care or counseling (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C0184643 (UMLS CUI-3)
C4Q05_6B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_6B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_6B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_6B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_6B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_6B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_6B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_6B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_6B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_6B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_6B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_6B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_6B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_6B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_6B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_6B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_6B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Substance abuse treatment or counseling:
C4Q05_7
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed substance abuse treatment or counseling?
integer
C2735312 (UMLS CUI [1,1])
C2551443 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_7A
Item
Did (S.C) receive all the substance abuse treatment or counseling that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C2551443 (UMLS CUI [1,2])
C4Q05_7C
Item
Did (S.C.) get any substance abuse treatment or counseling (during the past 12 months/since (his/her) birth)?
integer
C2551443 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Why did (S.C.) not get all the substance abuse treatment or counseling (he/she) needed?
C0746919 (UMLS CUI-1)
C0566251 (UMLS CUI-2)
C2551443 (UMLS CUI-3)
C4Q05_7B_1
Item
(01) COST TOO MUCH
boolean
C0010186 (UMLS CUI [1,1])
C3843660 (UMLS CUI [1,2])
C4Q05_7B_2
Item
(02) NO INSURANCE
boolean
C0085561 (UMLS CUI [1])
C4Q05_7B_3
Item
(03) HEALTH PLAN PROBLEM
boolean
C0018727 (UMLS CUI [1,1])
C0033213 (UMLS CUI [1,2])
C4Q05_7B_4
Item
(04) CAN'T FIND PROVIDER WHO ACCEPTS CHILD'S INSURANCE
boolean
C0021682 (UMLS CUI [1,1])
C1272684 (UMLS CUI [1,2])
C4Q05_7B_5
Item
(05) NOT AVAILABLE IN AREA/TRANSPORT PROBLEMS
boolean
C0018748 (UMLS CUI [1])
C4Q05_7B_6
Item
(06) NOT CONVENIENT TIMES/COULD NOT GET APPOINTMENT
boolean
C0586344 (UMLS CUI [1])
C4Q05_7B_7
Item
(07) PROVIDER DID NOT KNOW HOW TO TREAT OR PROVIDE CARE
boolean
C0086035 (UMLS CUI [1])
C4Q05_7B_8
Item
(08) DISSATISFACTION WITH PROVIDER
boolean
C0237166 (UMLS CUI [1])
C4Q05_7B_9
Item
(09) DID NOT KNOW WHERE TO GO FOR TREATMENT
boolean
C1555342 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
C4Q05_7B_10
Item
(10) CHILD REFUSED TO GO
boolean
C1321605 (UMLS CUI [1])
C4Q05_7B_11
Item
(11) TREATMENT IS ONGOING
boolean
C0549178 (UMLS CUI [1,1])
C0087111 (UMLS CUI [1,2])
C4Q05_7B_13
Item
(13) NO REFERRAL
boolean
C0034927 (UMLS CUI [1])
C4Q05_7B_14
Item
(14) LACK OF RESOURCES AT SCHOOL
boolean
C0204168 (UMLS CUI [1,1])
C0036375 (UMLS CUI [1,2])
C4Q05_7B_15
Item
(15) DID NOT GO TO APPT/NEGLECTED APPT/FORGOT APPT
boolean
C3854235 (UMLS CUI [1])
C4Q05_7B_16
Item
(16) OTHER
boolean
C3840932 (UMLS CUI [1])
C4Q05_7B_77
Item
(77) DON'T KNOW
boolean
C3840856 (UMLS CUI [1])
C4Q05_7B_99
Item
(99) REFUSED
boolean
C3844811 (UMLS CUI [1])
Item Group
Home health care:
C4Q05_8
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed home health care?
integer
C2735312 (UMLS CUI [1,1])
C0019855 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_8A
Item
Did (S.C) receive all the home health care that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0019855 (UMLS CUI [1,2])
C4Q05_8C
Item
Did (S.C.) get any home helath care (during the past 12 months/since (his/her) birth)?
integer
C0019855 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Eyeglasses or vision:
C4Q05_9
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed eyeglasses or vision care?
integer
C2735312 (UMLS CUI [1,1])
C0150177 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_9A
Item
Did [S.C.] receive all the eyeglasses or vision care that [he/she] needed?
integer
C3475494 (UMLS CUI [1,1])
C0150177 (UMLS CUI [1,2])
C4Q05_9C
Item
Did (S.C.) get any eyeglasses or vision care [during the past 12 months/ since [his/her] birth]?
integer
C0150177 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Hearing aids or hearing care:
C4Q05_10
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed hearing aids or hearing care?
integer
C2735312 (UMLS CUI [1,1])
C0200310 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_10A
Item
Did (S.C) receive all the hearing aids or hearing care that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0200310 (UMLS CUI [1,2])
C4Q05_10C
Item
Did (S.C.) get any hearing aids or hearing care (during the past 12 months/since (his/her) birth)?
integer
C0200310 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Mobility aids or devices:
C4Q05_11
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed mobility aids or devices, such as canes, crutches, wheelchairs, or scooters?
integer
C2735312 (UMLS CUI [1,1])
C3495449 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_11A
Item
Did [S.C.] receive all the mobility aids or devices that [he/she] needed?
integer
C3475494 (UMLS CUI [1,1])
C3495449 (UMLS CUI [1,2])
C4Q05_11C
Item
Did (S.C.) get any mobility aids or devices (during the past 12 months/since (his/her) birth)?
integer
C3495449 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Communication aids or devices:
C4Q05_12
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed a communication aids or devices, such as communication boards?
integer
C2735312 (UMLS CUI [1,1])
C0180037 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_12A
Item
Did (S.C) receive all the communication aids or devices that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0180037 (UMLS CUI [1,2])
C4Q05_12C
Item
Did (S.C.) get any communication aids or devices (during the past 12 months/since (his/her) birth)?
integer
C0180037 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
Durable medical equipment:
C4Q05_14
Item
During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth], was there any time when (S.C.) needed durable medical equipment?
text
C2735312 (UMLS CUI [1,1])
C0013314 (UMLS CUI [1,2])
C3843288 (UMLS CUI [1,3])
C4Q05_14A
Item
Did (S.C) receive all the durable medical equipment that (he/she) needed?
integer
C3475494 (UMLS CUI [1,1])
C0013314 (UMLS CUI [1,2])
C4Q05_14C
Item
Did (S.C.) get any durable medical equipment (during the past 12 months/since (his/her) birth)?
integer
C0013314 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
Item Group
In past 12 months, was there any time when you or other family members needed the following services:
C4Q06_1
Item
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth, was there any time when you or other family members needed respite care?
integer
C2735312 (UMLS CUI [1,1])
C0011017 (UMLS CUI [1,2])
C0086282 (UMLS CUI [1,3])
C3843288 (UMLS CUI [1,4])
C4Q06_1A
Item
Did you or your family receive all the respite care that was needed?
integer
C3475494 (UMLS CUI [1,1])
C0011017 (UMLS CUI [1,2])
C4Q06_1C
Item
Did you or your family get any respite care (during the past 12 months/since (his/her) birth)?
integer
C0011017 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C4Q06_2
Item
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth, was there any time when you or other family members needed genetic counseling for advice about inherited conditions related to (SC)’s medical, behavioral, or other health conditions?
integer
C2735312 (UMLS CUI [1,1])
C0017382 (UMLS CUI [1,2])
C0086282 (UMLS CUI [1,3])
C3843288 (UMLS CUI [1,4])
C4Q06_2A
Item
Did you or your family receive all the genetic counseling that was needed?
integer
C3475494 (UMLS CUI [1,1])
C0017382 (UMLS CUI [1,2])
C4Q06_2C
Item
Did you or your family get any genetic cousneling (during the past 12 months/ since (his/her) birth)?
integer
C0017382 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C4Q06_3
Item
(During the past 12 months/ [WHEN S.C. IS YOUNGER THAN 12 MONTHS] Since (his/her) birth, was there any time when you or other family members needed mental health care or counseling related to (SC)’s medical, behavioral, or other health conditions?
integer
C2735312 (UMLS CUI [1,1])
C0184643 (UMLS CUI [1,2])
C0086282 (UMLS CUI [1,3])
C3843288 (UMLS CUI [1,4])
C4Q06_3A
Item
Did you or your family receive all the mental health care counseling that was needed?
integer
C3475494 (UMLS CUI [1,1])
C0184643 (UMLS CUI [1,2])
C4Q06_3C
Item
Did you or your family get any mental health care or counseling (during the past 12 months/since (his/her) birth)?
integer
C0184643 (UMLS CUI [1,1])
C3843288 (UMLS CUI [1,2])
C3Q12
Item
Does (S.C.) receive services from a program called Early Intervention Services? Children receiving these services often have an Individualized Family Service Plan.
integer
C3179131 (UMLS CUI [1])
C3Q13
Item
Does (S.C.) receive services from a program called Special Educational Services? Children receiving these services often have an Individualized Education Plan.
integer
C2372131 (UMLS CUI [1])
C3Q13A
Item
How old was (S.C.) when (he/she) first began receiving Special Educational Services?
integer
C0808070 (UMLS CUI [1,1])
C2372131 (UMLS CUI [1,2])
C3Q13B
Item
At any time before [CHILD’S NAME] was 3 years old, did [he/she] receive services from a program called Early Intervention Services?
integer
C3179131 (UMLS CUI [1,1])
C1842990 (UMLS CUI [1,2])
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