ID
41898
Beschrijving
The Older Persons and Informal Caregivers Survey Minimum DataSet (TOPICS-MDS) is a public data repository which contains information on the physical and mental health and wellbeing of older persons and informal caregivers across the Netherlands. The database was developed in part to ensure uniform collection of outcomes measures, thus promoting comparability between studies. To date, 53 different research projects have contributed data to this initiative, resulting in a pooled dataset >44,000 older persons and >9,000 informal caregivers. Early 2021, the database will be updated with new data, specifically from older persons with dementia and their informal caregivers. More information can be found at https://topics-mds.eu This form contains the English and Dutch version of TOPICS-MDS 2017 questionnaire for the caregiver for the Baseline and Follow-up measurement. English Instructions for the participant (Dutch version below): Your experiences are valuable. You are caring for your partner, a family member, a friend or a loved one. This list contains questions about what this care means for you as a caregiver. Your answers will be used in research aimed at improving elderly care and informal care. The more information there is about these types of care, the more they can be taken into consideration. For example, when changing the facilities, regulations or legislation for care and wellbeing. Therefore, your experiences are also valuable for other caregivers. Instructions for filling in this questionnaire: Completing this questionnaire will take approximately twenty minutes. If you read ‘your loved one’, then the question refers to the person for whom you are a caregiver. Read each question through completely before answering. Some questions may appear to be ‘repeated’, but please answer all questions. They are intended to view your situation again from a different angle. When you are done, please check that you have not forgotten any questions Nederlandse aanwijzingen: U zorgt voor uw partner, een familielid, een vriend of andere naaste. In deze lijst staan vragen over wat die zorg betekent voor u als mantelzorger. Uw antwoorden worden gebruikt in onderzoek gericht op verbeteringen in de ouderen zorg en mantelzorg. Want hoe meer er bekend is over deze vormen van zorg, hoe beter er rekening mee gehouden kan worden. Bijvoorbeeld bij het veranderen van voorzieningen, regelingen of wetten voor zorgen wel zijn. Uw ervaringen zijn dus waardevol, ook voor andere mantelzorgers. Aanwijzingen bij deze vragenlijst: Het invullen van de vragenlijst kost u ongeveer twintig minuten. Als u leest ‘uw naaste’, dan gaat de vraag over de persoon voor wie u mantelzorger bent. Lees elke vraag eerst helemaal door voordat u een antwoord geeft. Sommige vragen lijken ‘dubbel’, maar we verzoeken u ze toch in te vullen. Ze zijn bedoeld om uw situatie nog eens van een andere kant te bekijken. Bent u klaar? Kijk dan of u geen vragen vergeten bent.
Link
Trefwoorden
Versies (5)
- 30-05-20 30-05-20 -
- 19-11-20 19-11-20 -
- 30-01-21 30-01-21 -
- 11-02-21 11-02-21 - Sarah Riepenhausen
- 11-02-21 11-02-21 - Sarah Riepenhausen
Houder van rechten
Radboud University Medical Center, Department of Geriatric Medicine
Geüploaded op
11 februari 2021
DOI
Voor een aanvraag inloggen.
Licentie
Creative Commons BY-NC 4.0
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TOPICS-MDS
TOPICS-MDS Caregiver - Baseline and Follow-up (Mantelzorger, baseline en vervolgmeting)
Beschrijving
Geboortedatum, geslacht en postcode van uw naaste
Alias
- UMLS CUI-1
- C1320722
- UMLS CUI-2
- C0017313
- UMLS CUI-3
- C1551356
Beschrijving
Date of birth care receiver
Datatype
date
Alias
- UMLS CUI [1,1]
- C0421451
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Beschrijving
Gender of care receiver
Datatype
text
Alias
- UMLS CUI [1,1]
- C0079399
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Beschrijving
Postal code of care receiver
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1514254
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Beschrijving
Relatie met uw naaste
Alias
- UMLS CUI-1
- C0439849
- UMLS CUI-2
- C0017313
- UMLS CUI-3
- C1551356
Beschrijving
Relationship to care receiver
Datatype
text
Alias
- UMLS CUI [1,1]
- C0439849
- UMLS CUI [1,2]
- C0085537
- UMLS CUI [1,3]
- C0017313
- UMLS CUI [1,4]
- C1551356
Beschrijving
Specification of relationship
Datatype
text
Alias
- UMLS CUI [1,1]
- C2348235
- UMLS CUI [1,2]
- C0439849
- UMLS CUI [1,3]
- C0085537
- UMLS CUI [1,4]
- C0017313
- UMLS CUI [1,5]
- C1551356
Beschrijving
Living situation with care receiver
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0682072
- UMLS CUI [1,2]
- C0017313
- UMLS CUI [1,3]
- C1551356
Beschrijving
Gezondheid van uzelf
Alias
- UMLS CUI-1
- C0018759
- UMLS CUI-2
- C0085537
Beschrijving
Health status
Datatype
text
Alias
- UMLS CUI [1,1]
- C0424575
- UMLS CUI [1,2]
- C0449438
Beschrijving
Health comparison to past year
Datatype
text
Alias
- UMLS CUI [1,1]
- C1707455
- UMLS CUI [1,2]
- C0018759
- UMLS CUI [1,3]
- C3898100
Beschrijving
Tijd besteed aan zorg voor uw naaste
Alias
- UMLS CUI-1
- C0040223
- UMLS CUI-2
- C0680968
- UMLS CUI-3
- C1947933
Beschrijving
Assisted in preparing food/drinks, cleaning the house, washing, ironing, sewing clothing, shopping for groceries, odd jobs in the house or garden
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1269765
- UMLS CUI [1,2]
- C1521827
- UMLS CUI [1,3]
- C0524819
- UMLS CUI [1,4]
- C2987125
- UMLS CUI [2,1]
- C1269765
- UMLS CUI [2,2]
- C1947930
- UMLS CUI [2,3]
- C2987125
- UMLS CUI [3,1]
- C1269765
- UMLS CUI [3,2]
- C0441648
- UMLS CUI [3,3]
- C2987125
- UMLS CUI [4,1]
- C1269765
- UMLS CUI [4,2]
- C2713000
- UMLS CUI [4,3]
- C2987125
- UMLS CUI [5,1]
- C1269765
- UMLS CUI [5,2]
- C2977585
- UMLS CUI [5,3]
- C2987125
- UMLS CUI [6,1]
- C1269765
- UMLS CUI [6,2]
- C0150768
- UMLS CUI [6,3]
- C2987125
- UMLS CUI [7,1]
- C1269765
- UMLS CUI [7,2]
- C0521114
- UMLS CUI [7,3]
- C0043227
- UMLS CUI [7,4]
- C3843862
- UMLS CUI [7,5]
- C2987125
- UMLS CUI [8,1]
- C1269765
- UMLS CUI [8,2]
- C0521114
- UMLS CUI [8,3]
- C0868963
- UMLS CUI [8,4]
- C2987125
Beschrijving
Hours/week of assistance in household activities
Datatype
integer
Maateenheden
- uur in de afgelopen week
Alias
- UMLS CUI [1,1]
- C0001288
- UMLS CUI [1,2]
- C1269765
- UMLS CUI [1,3]
- C2987125
- UMLS CUI [1,4]
- C0556976
Beschrijving
Assisted with personal care, going to the toilet, moving around the house, eating, drinking or administering medication
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0476651
- UMLS CUI [1,2]
- C2987125
- UMLS CUI [2,1]
- C0686904
- UMLS CUI [2,2]
- C1822189
- UMLS CUI [2,3]
- C2987125
- UMLS CUI [3,1]
- C1269765
- UMLS CUI [3,2]
- C2371429
- UMLS CUI [3,3]
- C2987125
- UMLS CUI [4,1]
- C1279813
- UMLS CUI [4,2]
- C2987125
- UMLS CUI [5,1]
- C3469597
- UMLS CUI [5,2]
- C3828841
- UMLS CUI [5,3]
- C2987125
Beschrijving
Hours/week of assistance in personal care
Datatype
integer
Maateenheden
- uur in de afgelopen week
Alias
- UMLS CUI [1,1]
- C0476651
- UMLS CUI [1,2]
- C2987125
- UMLS CUI [1,3]
- C0556976
Beschrijving
Assisting in moving around outside the house, going on outings and visiting family or friends, contacts with healthcare, arranging assistance, devices/home modifications and organising financial and administrative matters
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1269765
- UMLS CUI [1,2]
- C2371431
- UMLS CUI [1,3]
- C2987125
- UMLS CUI [2,1]
- C1269765
- UMLS CUI [2,2]
- C3842924
- UMLS CUI [2,3]
- C1269765
- UMLS CUI [2,4]
- C2987125
- UMLS CUI [3,1]
- C1269765
- UMLS CUI [3,2]
- C0332158
- UMLS CUI [3,3]
- C0086388
- UMLS CUI [3,4]
- C2987125
- UMLS CUI [4,1]
- C1269765
- UMLS CUI [4,2]
- C0420305
- UMLS CUI [4,3]
- C2987125
- UMLS CUI [5,1]
- C1269765
- UMLS CUI [5,2]
- C0025080
- UMLS CUI [5,3]
- C2987125
- UMLS CUI [6,1]
- C1269765
- UMLS CUI [6,2]
- C0850398
- UMLS CUI [6,3]
- C2987125
- UMLS CUI [7,1]
- C1269765
- UMLS CUI [7,2]
- C0016114
- UMLS CUI [7,3]
- C2987125
- UMLS CUI [8,1]
- C1269765
- UMLS CUI [8,2]
- C1292785
- UMLS CUI [8,3]
- C2987125
- UMLS CUI [9,1]
- C1300196
- UMLS CUI [9,2]
- C1822167
- UMLS CUI [9,3]
- C2987125
Beschrijving
Hours/week of assistance in moving around outside the house, going on outings and visiting family or friends, contacts with healthcare, arranging assistance, devices and/or home modifications and organising financial and administrative matters
Datatype
integer
Maateenheden
- uur in de afgelopen week
Alias
- UMLS CUI [1,1]
- C1269765
- UMLS CUI [1,2]
- C2987125
- UMLS CUI [1,3]
- C0556976
Beschrijving
Other support than the caregiver
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0205394
- UMLS CUI [1,2]
- C1521721
- UMLS CUI [2,1]
- C0205394
- UMLS CUI [2,2]
- C2367294
Beschrijving
Other support than the caregiver
Datatype
integer
Maateenheden
- uur per week
Alias
- UMLS CUI [1,1]
- C0085537
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C1521721
- UMLS CUI [1,4]
- C2584953
- UMLS CUI [2,1]
- C0085537
- UMLS CUI [2,2]
- C0205394
- UMLS CUI [2,3]
- C2367294
- UMLS CUI [2,4]
- C2584953
Beschrijving
Hoe zwaar de zorg is voor uzelf
Alias
- UMLS CUI-1
- C1299586
- UMLS CUI-2
- C1171174
Beschrijving
How difficult is the care for you
Datatype
float
Alias
- UMLS CUI [1,1]
- C1299586
- UMLS CUI [1,2]
- C1171174
Beschrijving
Satisfied by performing care tasks
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0242428
- UMLS CUI [1,2]
- C0597198
- UMLS CUI [1,3]
- C1947933
Beschrijving
Having problems with the loved one
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0425168
- UMLS CUI [1,2]
- C0085537
- UMLS CUI [1,3]
- C0017313
- UMLS CUI [1,4]
- C1551356
Beschrijving
Having problems with own mental health
Datatype
integer
Alias
- UMLS CUI [1]
- C1446377
Beschrijving
Having problems with own physical health
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0033213
- UMLS CUI [1,2]
- C0517226
Beschrijving
Difficulty to combine daily activities with care tasks
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0740765
- UMLS CUI [1,2]
- C0678226
- UMLS CUI [1,3]
- C1947933
Beschrijving
Financial problems concerning care tasks
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0549106
- UMLS CUI [1,2]
- C1947933
Beschrijving
Support from others to perform care
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1514756
- UMLS CUI [1,2]
- C1521721
- UMLS CUI [1,3]
- C1947933
Beschrijving
Happy at the moment
Datatype
float
Alias
- UMLS CUI [1,1]
- C0018592
- UMLS CUI [1,2]
- C0521116
Beschrijving
Feeling a burden by care for the other one
Datatype
float
Alias
- UMLS CUI [1,1]
- C1527305
- UMLS CUI [1,2]
- C1947933
- UMLS CUI [1,3]
- C1301771
Beschrijving
Kwaliteit van leven van uzelf
Alias
- UMLS CUI-1
- C0034380
- UMLS CUI-2
- C0085537
Beschrijving
Quality of life in general
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0034380
- UMLS CUI [1,2]
- C0205246
Beschrijving
Report mark for quality of life
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0441800
- UMLS CUI [1,2]
- C0034380
Beschrijving
Comparison of quality of life to one year ago
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1707455
- UMLS CUI [1,2]
- C0034380
- UMLS CUI [1,3]
- C3898100
Beschrijving
Afsluiting
Alias
- UMLS CUI-1
- C1707478
Similar models
TOPICS-MDS Caregiver - Baseline and Follow-up (Mantelzorger, baseline en vervolgmeting)
C0085537 (UMLS CUI-2)
C0085537 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0017313 (UMLS CUI-2)
C1551356 (UMLS CUI-3)
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
C0439849 (UMLS CUI [1,2])
C0085537 (UMLS CUI [1,3])
C0017313 (UMLS CUI [1,4])
C1551356 (UMLS CUI [1,5])
C0017313 (UMLS CUI [1,2])
C1551356 (UMLS CUI [1,3])
C0449438 (UMLS CUI [1,2])
C0018759 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])
C0680968 (UMLS CUI-2)
C1947933 (UMLS CUI-3)
C1521827 (UMLS CUI [1,2])
C0524819 (UMLS CUI [1,3])
C2987125 (UMLS CUI [1,4])
C1269765 (UMLS CUI [2,1])
C1947930 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C0441648 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1269765 (UMLS CUI [4,1])
C2713000 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C2977585 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0150768 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0521114 (UMLS CUI [7,2])
C0043227 (UMLS CUI [7,3])
C3843862 (UMLS CUI [7,4])
C2987125 (UMLS CUI [7,5])
C1269765 (UMLS CUI [8,1])
C0521114 (UMLS CUI [8,2])
C0868963 (UMLS CUI [8,3])
C2987125 (UMLS CUI [8,4])
C1269765 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C0556976 (UMLS CUI [1,4])
C2987125 (UMLS CUI [1,2])
C0686904 (UMLS CUI [2,1])
C1822189 (UMLS CUI [2,2])
C2987125 (UMLS CUI [2,3])
C1269765 (UMLS CUI [3,1])
C2371429 (UMLS CUI [3,2])
C2987125 (UMLS CUI [3,3])
C1279813 (UMLS CUI [4,1])
C2987125 (UMLS CUI [4,2])
C3469597 (UMLS CUI [5,1])
C3828841 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
C2371431 (UMLS CUI [1,2])
C2987125 (UMLS CUI [1,3])
C1269765 (UMLS CUI [2,1])
C3842924 (UMLS CUI [2,2])
C1269765 (UMLS CUI [2,3])
C2987125 (UMLS CUI [2,4])
C1269765 (UMLS CUI [3,1])
C0332158 (UMLS CUI [3,2])
C0086388 (UMLS CUI [3,3])
C2987125 (UMLS CUI [3,4])
C1269765 (UMLS CUI [4,1])
C0420305 (UMLS CUI [4,2])
C2987125 (UMLS CUI [4,3])
C1269765 (UMLS CUI [5,1])
C0025080 (UMLS CUI [5,2])
C2987125 (UMLS CUI [5,3])
C1269765 (UMLS CUI [6,1])
C0850398 (UMLS CUI [6,2])
C2987125 (UMLS CUI [6,3])
C1269765 (UMLS CUI [7,1])
C0016114 (UMLS CUI [7,2])
C2987125 (UMLS CUI [7,3])
C1269765 (UMLS CUI [8,1])
C1292785 (UMLS CUI [8,2])
C2987125 (UMLS CUI [8,3])
C1300196 (UMLS CUI [9,1])
C1822167 (UMLS CUI [9,2])
C2987125 (UMLS CUI [9,3])
C2987125 (UMLS CUI [1,2])
C0556976 (UMLS CUI [1,3])
C1521721 (UMLS CUI [1,2])
C0205394 (UMLS CUI [2,1])
C2367294 (UMLS CUI [2,2])
C0205394 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,3])
C2584953 (UMLS CUI [1,4])
C0085537 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
C2367294 (UMLS CUI [2,3])
C2584953 (UMLS CUI [2,4])
C1171174 (UMLS CUI-2)
C1171174 (UMLS CUI [1,2])
C0597198 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C0085537 (UMLS CUI [1,2])
C0017313 (UMLS CUI [1,3])
C1551356 (UMLS CUI [1,4])
C0517226 (UMLS CUI [1,2])
C0678226 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C1947933 (UMLS CUI [1,2])
C1521721 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,3])
C0521116 (UMLS CUI [1,2])
C1947933 (UMLS CUI [1,2])
C1301771 (UMLS CUI [1,3])
C0085537 (UMLS CUI-2)
C0205246 (UMLS CUI [1,2])
C0034380 (UMLS CUI [1,2])
C0034380 (UMLS CUI [1,2])
C3898100 (UMLS CUI [1,3])
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