ID
41652
Beskrivning
ICHOM Overall Adult Health data collection Version 1.0.0 Date (downloaded on 1st April 2020) International Consortium for Health Outcomes Measurement (ICHOM) Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For Overall Adult Health, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Population: An adult (≥ 18 years) who is healthy, has well-controlled disease, or has poorly-controlled disease Excluded populations: Pediatrics (< 18 years) This document contains the Baseline and Annual Patient form. If the adult patient has any medical condition, the timepoints should be aligned with the timepoints of the respective condition standard set. (In the reference guide timeline, additional 6-monthly assessments are mentioned, but not defined further (yet)). Collecting Patient-Reported Outcome Measures: WHO (Five) Wellbeing Index (WHO5). The WHO-5 is free of charge and does not require permission to use. The scoring guide is only available upon a license agreement being made. PROMIS Scale V1.2 Global Health: As there is an official distribution site, this questionnaire will not be included in this version of the standard set. For more information see: http://www.healthmeasures.net/exploremeasurement-systems/promis/obtain-administer-measures WHO Disability Assessment Schedule 2.0 (WHO-DAS 12): As there is a license needed for use of this questionnaire, only the total score will be included in this version of the standard set. For more information see: https://www.who.int/classifications/icf/whodasii/en/ ICHOM was supported for this standard set by NSW Agency for Clinical Innovation, HCF Research Foundation, Providence St. Joseph Health and NHS Wales. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
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Nyckelord
Versioner (2)
- 2020-09-09 2020-09-09 -
- 2020-12-04 2020-12-04 - Sarah Riepenhausen
Rättsinnehavare
ICHOM
Uppladdad den
4 december 2020
DOI
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Creative Commons BY-NC 4.0
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ICHOM Overall Adult Health Data Collection
Baseline and Annual Patient form
- StudyEvent: ODM
Beskrivning
Demographic factors
Alias
- UMLS CUI-1
- C1704791
Beskrivning
Recorded as year of birth Inclusion: All patients Timing: Baseline Reporting Source: Patient-reported Type: Date by YYYY
Datatyp
integer
Måttenheter
- Year
Alias
- UMLS CUI [1]
- C0001779
- UMLS CUI [2]
- C2826771
Beskrivning
Inclusion: All patients Timing: Baseline Reporting Source: Patient-reported Type: Single Answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0079399
- UMLS CUI [1,2]
- C2599577
Beskrivning
Supporting Definition: Level of schooling defined in each country according to the International Standard Classification of Education Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer Response Option: 0 = None, 1 = Early Childhood Education, 2 = Primary Education, 3 = Lower Secondary Education, 4 = Upper Secondary Education, 5 = Short Cycle Tertiary Education, 6 = Bachelor’s or Equivalent Level, 7 = Master’s or Equivalent Level, 8 = Doctoral or Equivalent Level The original OID of this item was complemented by a numbering.
Datatyp
integer
Alias
- UMLS CUI [1]
- C2030935
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer The original OID of this item was complemented by a numbering.
Datatyp
integer
Alias
- UMLS CUI [1]
- C0024819
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer The original OID of this item was complemented by a numbering.
Datatyp
integer
Alias
- UMLS CUI [1]
- C0242271
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer The original OID of this item was complemented by a numbering.
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0521116
- UMLS CUI [1,2]
- C3475493
Beskrivning
Clinical Factors
Alias
- UMLS CUI-1
- C0449440
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0009488
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1274040
Beskrivning
Lifestyle Factors
Alias
- UMLS CUI-1
- C0023676
- UMLS CUI-2
- C1521761
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C1519386
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0001948
Beskrivning
Supporting Definition: Physical activity is any activity that makes you breath hard, feel warm and feel your heart beat faster Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single Answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0026606
- UMLS CUI [1,2]
- C0556976
Beskrivning
Seeing
Alias
- UMLS CUI-1
- C0042789
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0042789
Beskrivning
Hearing
Alias
- UMLS CUI-1
- C0018767
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually (6 months, 1y, 18months, 2 years etc.) Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting Source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C0018767
Beskrivning
Patient-Reported Outcome Measures
Alias
- UMLS CUI-1
- C4277735
Beskrivning
As nihpromis.org is the official distribution site of PROMIS scores, the actual 10 questions of the PROMIS Scale v1.2- Global Health are not included in this version of the standard set. The ICHOM ID's are PROMIS-10_Q01 to PROMIS-10_Q010 Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C3836333
- UMLS CUI [1,2]
- C2964552
Beskrivning
As license is needed for adaption of this questionnaire for electronic systems, the actual 12 questions of the WHODAS 2.0 questionnaire are not included in this version of the standard set. The ICHOM ID's are WHODAS_Q01 to WHODAS_Q12 Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C4321496
- UMLS CUI [1,2]
- C2964552
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3261637
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3261651
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3842459
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C2984071
Beskrivning
Inclusion: All patients Timing: Health individuals: Baseline/Annually Patients with comorbid conditions: Align timepoints with timepoints in condition Standard set Reporting source: Patient-reported Type: Single answer
Datatyp
integer
Alias
- UMLS CUI [1]
- C3829819
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