ID

41614

Beschreibung

Study Title: LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients https://leoss.net Study Indication: COVID-19 Date: 14.10.2020, 16:08 Published with permission by Prof. Dr. med. J.-J. Vehreschild. LEOSS is mandated by the ESCMID Emerging Infections Task Force (EITaF) and supported by the German Infectious Disease Society. It aims at a better understanding of the implications of the new virus on patients by systematically documenting patient data across Europe (Text adapted from leoss.net). For more information please visit the official website. This document is for Pulmonary diseases - related baseline data. If a text field can't be filled out, note 'ND' (for not determined).

Link

https://leoss.net

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Versionen (2)
  1. 27.11.20 27.11.20 -
  2. 01.07.21 01.07.21 -
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LEOSS

Hochgeladen am

27. November 2020

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LEOSS: Lean European Open Survey on SARS-CoV-2 Infected Patients

Englisch

Pulmonary diseases - related baseline data

1 Formulare  
Other chronic pulmonary disease, please specify
Beschreibung

Other chronic pulmonary disease, please specify

Alias
UMLS CUI-1
C0205394
UMLS CUI-2
C0746102
UMLS CUI-3
C1521902
Cystic Fibrosis
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C0010674
OHS (Obesity hypoventilation syndrome)
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C4268182
OSAS (Obstructive Sleep Apnoea Syndrome)
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C0520679
Pulmonary fibrosis
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C0034069
Pulmonary hypertension
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C0020542
Sarcoidosis
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C0036202
Chronic bronchitis
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C0008677
Emphysema
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1]
C0034067
Other
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0746102
If Other, please specify
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C0746102
UMLS CUI [1,3]
C1521902
Unknown
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1,1]
C0746102
UMLS CUI [1,2]
C0439673
None
Beschreibung

Note: This question is critical for the further course of the questionnaire. Please specify the indicated other chronic pulmonary disease (not COPD or Asthma).

Datentyp

integer

Alias
UMLS CUI [1,1]
C0549184
UMLS CUI [1,2]
C0746102
Prior ventilation/oxygen support
Beschreibung

Prior ventilation/oxygen support

Alias
UMLS CUI-1
C3872899
UMLS CUI-2
C1514463
UMLS CUI-3
C0554804
CPAP (Continuous positive airway pressure)
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1]
C0199451
LTOT (Long-term oxygen therapy)
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1]
C0418996
NIV (Non invasive ventilation)
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1]
C1997883
Other
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C3872899
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0205394
UMLS CUI [2,1]
C0554804
UMLS CUI [2,2]
C0205394
UMLS CUI [2,3]
C1514463
If Other, please specify:
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

text

Alias
UMLS CUI [1,1]
C3872899
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0205394
UMLS CUI [1,4]
C1521902
UMLS CUI [2,1]
C0554804
UMLS CUI [2,2]
C0205394
UMLS CUI [2,3]
C1514463
UMLS CUI [2,4]
C1521902
Unknown
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C3872899
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0439673
UMLS CUI [2,1]
C0554804
UMLS CUI [2,2]
C1514463
UMLS CUI [2,3]
C0439673
No prior support
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C3872899
UMLS CUI [1,2]
C1514463
UMLS CUI [1,3]
C0549184
UMLS CUI [2,1]
C0554804
UMLS CUI [2,2]
C1514463
UMLS CUI [2,3]
C0549184
Regular use of inhaler
Beschreibung

Regular use of inhaler

Alias
UMLS CUI-1
C0205272
UMLS CUI-2
C1524063
UMLS CUI-3
C0021461
None
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C0549184
UMLS CUI [1,2]
C1524063
UMLS CUI [1,3]
C0021461
ICS (inhaled corticosteroids) monotherapy
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C2065041
UMLS CUI [1,2]
C4763675
LABA (long-acting b-agonist) or LAMA (long-acting muscarinic antagonist) monotherapy
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C4763675
UMLS CUI [1,2]
C3536829
UMLS CUI [1,3]
C0439591
UMLS CUI [2,1]
C4763675
UMLS CUI [2,2]
C0003385
UMLS CUI [2,3]
C0439591
ICS combination with LABA and/or LAMA
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C2065041
UMLS CUI [1,2]
C0205195
UMLS CUI [1,3]
C3536829
UMLS CUI [1,4]
C0439591
UMLS CUI [2,1]
C2065041
UMLS CUI [2,2]
C0205195
UMLS CUI [2,3]
C0003385
UMLS CUI [2,4]
C0439591
LABA and LAMA combination
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C0205195
UMLS CUI [1,2]
C3536829
UMLS CUI [1,3]
C0003385
UMLS CUI [1,4]
C0439591
Use of inhaler, but drug unknown
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0021461
UMLS CUI [1,3]
C0439673
UMLS CUI [1,4]
C0013227
Use of inhaler only on demand
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C1524063
UMLS CUI [1,2]
C0021461
UMLS CUI [1,3]
C0441516
Unknown
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C0439673
UMLS CUI [1,2]
C1524063
UMLS CUI [1,3]
C0021461
Last pulmonary function test before COVID-19 if available (Spirometry):
Beschreibung

Last pulmonary function test before COVID-19 if available (Spirometry):

Alias
UMLS CUI-1
C0024119
UMLS CUI-2
C1517741
UMLS CUI-3
C0332152
UMLS CUI-4
C5203670
UMLS CUI-5
C0037981
Last pulmonary function test before COVID-19 if available (Spirometry):
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C0024119
UMLS CUI [1,2]
C1517741
UMLS CUI [1,3]
C0332152
UMLS CUI [1,4]
C5203670
UMLS CUI [2]
C0037981
Pulmonary function test at diagnosis (Spirometry):
Beschreibung

Pulmonary function test at diagnosis (Spirometry):

Alias
UMLS CUI-1
C0024119
UMLS CUI-2
C2316983
UMLS CUI-3
C5203670
UMLS CUI-4
C0037981
Pulmonary function test at diagnosis (Spirometry):
Beschreibung

Note: This question is critical for the further course of the questionnaire.

Datentyp

integer

Alias
UMLS CUI [1,1]
C0024119
UMLS CUI [1,2]
C2316983
UMLS CUI [1,3]
C5203670
UMLS CUI [2]
C0037981
Is data entry for this section finished?
Beschreibung

Is data entry for this section finished?

Alias
UMLS CUI-1
C4684556
UMLS CUI-2
C1828479
UMLS CUI-3
C0205197
Is data entry for this section finished?
Beschreibung

Is data entry for this section finished?

Datentyp

integer

Alias
UMLS CUI [1,1]
C4684556
UMLS CUI [1,2]
C1828479
UMLS CUI [1,3]
C0205197
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Ähnliche Modelle

Pulmonary diseases - related baseline data

1 Formulare
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Item Group
Other chronic pulmonary disease, please specify
C0205394 (UMLS CUI-1)
C0746102 (UMLS CUI-2)
C1521902 (UMLS CUI-3)
Item
Cystic Fibrosis
integer
C0010674 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
Cystic Fibrosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
OHS (Obesity hypoventilation syndrome)
integer
C4268182 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
OHS (Obesity hypoventilation syndrome)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
OSAS (Obstructive Sleep Apnoea Syndrome)
integer
C0520679 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
OSAS (Obstructive Sleep Apnoea Syndrome)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Pulmonary fibrosis
integer
C0034069 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
Pulmonary fibrosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Pulmonary hypertension
integer
C0020542 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
Pulmonary hypertension
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Sarcoidosis
integer
C0036202 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
Sarcoidosis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Chronic bronchitis
integer
C0008677 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
Chronic bronchitis
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Emphysema
integer
C0034067 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
Emphysema
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C0205394 (UMLS CUI [1,1])
C0746102 (UMLS CUI [1,2])
Other chronic pulmonary disease
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other chronic pulmonary disease, specify
Item
If Other, please specify
text
C0205394 (UMLS CUI [1,1])
C0746102 (UMLS CUI [1,2])
C1521902 (UMLS CUI [1,3])
Item
Unknown
integer
C0746102 (UMLS CUI [1,1])
C0439673 (UMLS CUI [1,2])
Other chronic pulmonary disease
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item
None
integer
C0549184 (UMLS CUI [1,1])
C0746102 (UMLS CUI [1,2])
Other chronic pulmonary disease
Code List
None
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Prior ventilation/oxygen support
C3872899 (UMLS CUI-1)
C1514463 (UMLS CUI-2)
C0554804 (UMLS CUI-3)
Item
CPAP (Continuous positive airway pressure)
integer
C0199451 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
CPAP (Continuous positive airway pressure)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
LTOT (Long-term oxygen therapy)
integer
C0418996 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
LTOT (Long-term oxygen therapy)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
NIV (Non invasive ventilation)
integer
C1997883 (UMLS CUI [1])
Other chronic pulmonary disease
Code List
NIV (Non invasive ventilation)
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Other
integer
C3872899 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0554804 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
C1514463 (UMLS CUI [2,3])
Other chronic pulmonary disease
Code List
Other
CL Item
not quoted (0)
CL Item
quoted (1)
Other prior ventilation/oxygen support, specify
Item
If Other, please specify:
text
C3872899 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C1521902 (UMLS CUI [1,4])
C0554804 (UMLS CUI [2,1])
C0205394 (UMLS CUI [2,2])
C1514463 (UMLS CUI [2,3])
C1521902 (UMLS CUI [2,4])
Item
Unknown
integer
C3872899 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0554804 (UMLS CUI [2,1])
C1514463 (UMLS CUI [2,2])
C0439673 (UMLS CUI [2,3])
Other chronic pulmonary disease
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item
No prior support
integer
C3872899 (UMLS CUI [1,1])
C1514463 (UMLS CUI [1,2])
C0549184 (UMLS CUI [1,3])
C0554804 (UMLS CUI [2,1])
C1514463 (UMLS CUI [2,2])
C0549184 (UMLS CUI [2,3])
Other chronic pulmonary disease
Code List
No prior support
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Regular use of inhaler
C0205272 (UMLS CUI-1)
C1524063 (UMLS CUI-2)
C0021461 (UMLS CUI-3)
Item
None
integer
C0549184 (UMLS CUI [1,1])
C1524063 (UMLS CUI [1,2])
C0021461 (UMLS CUI [1,3])
Other chronic pulmonary disease
Code List
None
CL Item
not quoted (0)
CL Item
quoted (1)
Item
ICS (inhaled corticosteroids) monotherapy
integer
C2065041 (UMLS CUI [1,1])
C4763675 (UMLS CUI [1,2])
Other chronic pulmonary disease
Code List
ICS (inhaled corticosteroids) monotherapy
CL Item
not quoted (0)
CL Item
quoted (1)
Item
LABA (long-acting b-agonist) or LAMA (long-acting muscarinic antagonist) monotherapy
integer
C4763675 (UMLS CUI [1,1])
C3536829 (UMLS CUI [1,2])
C0439591 (UMLS CUI [1,3])
C4763675 (UMLS CUI [2,1])
C0003385 (UMLS CUI [2,2])
C0439591 (UMLS CUI [2,3])
Other chronic pulmonary disease
Code List
LABA (long-acting b-agonist) or LAMA (long-acting muscarinic antagonist) monotherapy
CL Item
not quoted (0)
CL Item
quoted (1)
Item
ICS combination with LABA and/or LAMA
integer
C2065041 (UMLS CUI [1,1])
C0205195 (UMLS CUI [1,2])
C3536829 (UMLS CUI [1,3])
C0439591 (UMLS CUI [1,4])
C2065041 (UMLS CUI [2,1])
C0205195 (UMLS CUI [2,2])
C0003385 (UMLS CUI [2,3])
C0439591 (UMLS CUI [2,4])
Other chronic pulmonary disease
Code List
ICS combination with LABA and/or LAMA
CL Item
not quoted (0)
CL Item
quoted (1)
Item
LABA and LAMA combination
integer
C0205195 (UMLS CUI [1,1])
C3536829 (UMLS CUI [1,2])
C0003385 (UMLS CUI [1,3])
C0439591 (UMLS CUI [1,4])
Other chronic pulmonary disease
Code List
LABA and LAMA combination
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Use of inhaler, but drug unknown
integer
C1524063 (UMLS CUI [1,1])
C0021461 (UMLS CUI [1,2])
C0439673 (UMLS CUI [1,3])
C0013227 (UMLS CUI [1,4])
Other chronic pulmonary disease
Code List
Use of inhaler, but drug unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Use of inhaler only on demand
integer
C1524063 (UMLS CUI [1,1])
C0021461 (UMLS CUI [1,2])
C0441516 (UMLS CUI [1,3])
Other chronic pulmonary disease
Code List
Use of inhaler only on demand
CL Item
not quoted (0)
CL Item
quoted (1)
Item
Unknown
integer
C0439673 (UMLS CUI [1,1])
C1524063 (UMLS CUI [1,2])
C0021461 (UMLS CUI [1,3])
Other chronic pulmonary disease
Code List
Unknown
CL Item
not quoted (0)
CL Item
quoted (1)
Item Group
Last pulmonary function test before COVID-19 if available (Spirometry):
C0024119 (UMLS CUI-1)
C1517741 (UMLS CUI-2)
C0332152 (UMLS CUI-3)
C5203670 (UMLS CUI-4)
C0037981 (UMLS CUI-5)
Item
Last pulmonary function test before COVID-19 if available (Spirometry):
integer
C0024119 (UMLS CUI [1,1])
C1517741 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C5203670 (UMLS CUI [1,4])
C0037981 (UMLS CUI [2])
Last pulmonary function test before COVID-19 if available (Spirometry):
Code List
Last pulmonary function test before COVID-19 if available (Spirometry):
CL Item
FEV1 > 80 % (1)
CL Item
FEV1 60 - 80% (2)
CL Item
FEV1 40 - 59 % (3)
CL Item
FEV1 <40% (4)
CL Item
Not done (5)
CL Item
Unknown (6)
Item Group
Pulmonary function test at diagnosis (Spirometry):
C0024119 (UMLS CUI-1)
C2316983 (UMLS CUI-2)
C5203670 (UMLS CUI-3)
C0037981 (UMLS CUI-4)
Item
Pulmonary function test at diagnosis (Spirometry):
integer
C0024119 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
C5203670 (UMLS CUI [1,3])
C0037981 (UMLS CUI [2])
Pulmonary function test at diagnosis (Spirometry):
Code List
Pulmonary function test at diagnosis (Spirometry):
CL Item
FEV1 > 80 % (1)
CL Item
FEV1 60 - 80% (2)
CL Item
FEV1 40 - 59 % (3)
CL Item
FEV1 <40% (4)
CL Item
Not done (5)
CL Item
Unknown (6)
Item Group
Is data entry for this section finished?
C4684556 (UMLS CUI-1)
C1828479 (UMLS CUI-2)
C0205197 (UMLS CUI-3)
Item
Is data entry for this section finished?
integer
C4684556 (UMLS CUI [1,1])
C1828479 (UMLS CUI [1,2])
C0205197 (UMLS CUI [1,3])
Is data entry for this section finished?
Code List
Is data entry for this section finished?
CL Item
Yes (1)
CL Item
No (2)
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